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July 2019 chemo starting

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Lucylump 😁no pink poo 😂🤣😂🤣😂you need to google the unicorn squatting potty 😁😁that’ll make you 🤣😂🤣😂💕✨✨✨Shi xx

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Re: July 2019 chemo starting

Hi LucyLump, 

in hospital at the moment. I have an infection went to see surgeon on Monday and he operated Tuesday cleaning the implant and removed some puss 🤮 on strong antibiotics at the moment through a IV and 🤞🏼🤞🏼 Seems to be looking a lot better. He wants me to stay in over the weekend as a precaution and hopefully go home Monday with oral antibiotics. 

Not what I wanted as it will set chemo back but I definitely need to be well enough to go through chemo anyway so 🤞🏼🙏🏼🤞🏼🙏🏼 Infection free very soon. 

Good luck to everyone starting chemo soon and fab news with the side effects not too bad for you 

 

xx

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Re: July 2019 chemo starting

Hi Flower, so pleased you have joined us. Side effects so far are bearable but wee has turned orange which is a bit disconcerting! Wow being in Korea must be an experience. Hope they do give you the anti sickness pills. Will be thinking of you and Aww on Monday and I think Kaytee on Tuesday. LMC hope you are ok too. Xx

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Re: July 2019 chemo starting

Hi AWW and LucyLamp,

 

I am too ER and Her2 positive and will be on Carboplatin+ Taxetere+ Herceptin for 6 cycles and then only on Herceptin for another 12 cycles. I had a lumpectomy and lymph node removal both sides (yeah, I know, both sides at 39 with no family history), I am stage 2A.

AWW, I will start my first cycle on Monday, July 8th as well. I had my chemo port done yesterday, and it wasn't as painless as I expected it will be but I am happy it is done. I live in Korea working here. The health care is great but they are not a big fan of pain management - way different than in the states or in Europe.

I am pretty anxious about my first chemo session, I hope there will be no allergic reaction and that the side effects will be tolerable.

LucyLump, I hope you are feeling a bit better today.

xx

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Re: July 2019 chemo starting

Feeling not too bad this morning. Ended up being very sick 9.30pm. It comes out pink too like the wee. Then got paranoid about cleaning it up perfectly in case the dog got it! Felt nauseous until about 5.30am probably because I had sicked up the anti-sickness pill earlier. After that though slept till 8.30 and now feeling loads better. Looking forward to seeing if first poo is pink too! Xx Update: disappointingly poo is not pink.

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

👍Lucy 😘😘now keep the water flowing 😘I was as needle phobic too but soon injecting those jabs alternative sides of my belly button like a trooper, used a antiseptic swab on skin first (just to make sure everything nice and clean and then again after) grab a bit of belly with one hand, stick it in, plunge down and voila done 😁 once you get 1st one done you’ll be pah, easy peats lemon squeeze 😁👍👍💕💕✨✨Shi xx

AWW
Member

Re: July 2019 chemo starting

Glad all is going well for you, hope it continues to go well for you, will be having my first on Monday so it's reassuring to know yours went well.

 

Member

Re: July 2019 chemo starting

Glad u have got the first one out of the way and it's not too bad so far.

I hadn't heard about injections! Not looking forward to that :-(

Hope you don't get too many side effects .

Xx

Member

Re: July 2019 chemo starting

Hi Ladies, I am just back home from first chemo! All went well. It was honestly nothing to worry about. It did take 3 hours but the actual process was totally fine. Only thing that bothered me was the package of goodies you get to take home.....anti sickness pills OK, steroids to boost the anti sickness pills too OK.......injections to boost white blood cell production for me to do myself NOT OK. I explained that I was really worried about injecting myself though and they were fine about that and are sending a district nurse out to do it for me. First one tomorrow late afternoon. Feeling good so far. Xx

Community Champion

Re: July 2019 chemo starting

Hi there, I was a May 2017 chemo starter and did 8 rounds of FEC-T and I still have my bounce so it’s all doable.  Keep hydrated and regular temperature checking.  Here’s my story which you may find helpful:  http://lifeafterlola.com

Best wishes xxx

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Few others I checked with my onc with before chemo and told to keep off till after chemo were green tea/matcha powder, turmeric, black cumin seed oil, soft cheeses, no friendly bacteria stuff either, but please speak to your units and get their specialist advise directly ❤️Hope that helps 💕💕✨✨Shi xx

AWW
Member

Re: July 2019 chemo starting

Hi LucyLump, thanks for your kind words, I hope all goes well for you tomorrow, will be thinking about you.

Do let us know how you get on. 

Cheers xxx

Member

Re: July 2019 chemo starting

Thank you Jencat and thank you for reminding me about the travel sickness bands too. I will put them in my bag before I forget. Xx

 

Member

Re: July 2019 chemo starting

I hope your chemo goes okay tomorrow Lucy and as you say, it will be worth it in the end xx

Member

Re: July 2019 chemo starting

Hi everyone, just to add to the foods to avoid, I was told no grapefruit-I think it can interfere with the chemo drugs.

Also, I found wearing travel sickness bands whilst I had chemo and for a few days afterwards helped with sickness-I wasn't sick at all xx

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Re: July 2019 chemo starting

Hi AWW, welcome as well. It is a scary thought but I keep telling myself many people go through this and all the teams helping us know what they are doing. Will be worth it in the end to zap those nasty cells. I am alsoHER2+ and having first of session of FEC-T tomorrow. Xx

AWW
Member

Re: July 2019 chemo starting

Hi all, 

Also starting chemo 8th July. 

I had right breast mastectomy, ER positive and Her2 positive so will be on FEC-T 6 cycles and Herceptin 12 months.

Feeling anxious at the moment. 

Member

Re: July 2019 chemo starting

Hi Helly, Welcome to our group. My first chemo is tomorrow at 2pm. I am trying not to think about it! I will be having operation later follow by radio or more chemo I think. Xx

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Re: July 2019 chemo starting

Hello everyone

 

I'm going to be joining you on this chemo journey - my first cycle is 10th July.

 

I had lumpectomy and sentinal node removal on 13th June, grade 3, stage 1 confirmed.

Oncotype score came back at 22, and as I'm 39 there is a clear benefit to chemo, then onto radio and followed up with tamoxifen. 

 

Nice to meet you all

 

Helly x

 

 

 

 

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Re: July 2019 chemo starting

Hi Kaytee, I am guessing that it is to do with risk of food poisoning but could be wrong. No one at the hospital has told me anything to avoid but on some of the other threads people have been given lists. I think pate was on there too. Xx

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Re: July 2019 chemo starting

Hi ladies

Just catching up on your posts and I have been making lists of things to get but I hadn't even thought about things to avoid. So apart from blue cheese and Chinese ( why is this?)

Is there anything else to be avoided?

Thanks xx

Member

Re: July 2019 chemo starting

Wow thank you so much everyone. You are all giving me so much hope. MacDonalds, Pizza etc balanced with fruit and vegetables sounds quite doable! Xx

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Re: July 2019 chemo starting

Lucy, I had a McDonalds most weeks after I'd had my line flush-I don't even like them that much normally! x

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Re: July 2019 chemo starting

Hi July team,

 

I started on 20th June, EC and aside from being quite exhausted days 4 and 5 it hasn't been too bad. I was worried about nausea and taste changes, so every day I am not getting those effects I am celebrating it. I had pizza the other day with parma ham which I ate with pleasure Smiley Happy I also had a banana, yoghurt an chocolate smoothie made at home during the weekend - this is from a Macmillan recommended cookbook . So make the most of those domino's -just balance them with broccoli and veggies some other time!

 

I also have a PICC line and even though it IS there, you can get by.

 

Big hugs to you all xxx 

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

😁steak and kidney pie, chips and beans every Tuesday and the dominos every Friday, you do what you gotta do to get through chemo 😁 wash all salads and veg though 👍💕💕✨✨Shi xx

Member

Re: July 2019 chemo starting

Shi that is hilarious. Please don't tell my daughter! Xx

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Hi Lucy lump, I had dominos mighty meaty stuffed crust every Friday during chemo 👍big massive one and polished the lot off every time 😁

Member

Re: July 2019 chemo starting

Hi LMC, I am having FEC-T plus Perjeta and Herceptin. Not being able to eat Chinese takeaway is a pain but just think how many we will be owed at the end of this. My daughter is not going to be happy at the reduction in dominoes pizza being delivered to my house either! Xx

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Re: July 2019 chemo starting

Hi Lucy Lump. 

Really hope you enjoyed your blue cheese, I’ve read quite a few things we aren’t allowed to eat such as Chinese takeaway, heartbroken about that one 😂

Good luck to you and Kaytee on your first lot of chemo! Which chemo is it you both are having? 

Xx

Member

Re: July 2019 chemo starting

Hi Kaytee and LMC88, 

 

So sorry to hear about your infection LMC. We are willing those antibiotics to work for you. I haven't had surgery yet. Am having the chemo first and surgery after that. Kaytee I will be thinking of you on Tuesday. I have spent the last few days rushing round doing everything I can just incase I feel ill and eating everything I won't be able to eat like blue cheese! 

 

Xx

 

 

Member

Re: July 2019 chemo starting

Hi Kaytee

Thank you for to reply 😀

hopefully the antibiotics will work overnight and I can carry on with the rest of the treatment as planned. Don’t want to be getting an infection whilst having chemo 

 

xx

Member

Re: July 2019 chemo starting

Hi lmc88

Sorry to hear you have an infection.

I had a masectomy and node clearance but my wounds have healed without complications so I can't comment on Infection but I remember my surgeon did say that I had to be completely healed before I started chemo as it will effect how the body can repair. 

Hope this helps

Xx

Member

Re: July 2019 chemo starting

Hi ladies. 

Quick question, has anyone already had surgery? 

Ive had mastectomy with immediate reconstruction and lymph node removal, however I have an infection ☹️

My surgeon has put me on antibiotics but if the infection doesn’t clear I’m having to go back down to surgery for him to flush it all out and put a drain back in. 

I can’t seem to find any threads about something similar to this. 

Im worried if I do end up having the surgery my chemo will be delayed until I’m healed. 

 

Thanks 

xx

Member

Re: July 2019 chemo starting

Hi everyone 

Thank you for the handy hints and I enjoyed the mountain lion post :-)

Looks like iam starting on Tuesday next week.

Hope your first one goes ok on Thursday xx

Member

Re: July 2019 chemo starting

Thank you for the reply Susie B it’s good to hear from someone who has had the line fitted. Also the reassurance that I won’t feel it is very comforting ❤️

I’ll have a look online for some covers 😃 

xxx

Member

Re: July 2019 chemo starting

Hi LMC88

 

I'm from the Feb group and just popped in and seen your post. I had a PICC line put in back in February as that was my oncologist's preferred way. I must admit when I was reading about PICC lines my first thought was I don't think so thank you but I can honestly say you'll be fine with it. The area will be aneathetised first, administered with a needle, but that will be the last time in ages that you will have an injection. The actual proceedure is completely pain free, I promise you. It took me a couple of weeks to get used to my PICC line which I call Klingon and it is a pain that every time I have a shower I have to put  a water proof cover over it. The hospital should give you a prescription for one. They're the same as the ones for covering plaster castes. Whilst you are having chemo you won't feel the drugs going in at all. The down side to having a line is having to go to hospital once a week for line care which I'm sure has been explained. You can buy some pretty PICC line covers on line. Personally I found annabanda to be the most reasonably priced. Hope this helps. If you want any help, advice or just a chat you'll find we're a talkative group and someone will always reply to you. Good luck on your journey that none of us ever wanted to be on in the first place.   xxxx  

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Re: July 2019 chemo starting

Thank you so much Shi and Strawberry this is awesome. Xx

 

Mountain Lion

“What’s it like to go through cancer treatment? It’s something like this:
One day, you’re minding your own business, you open the fridge to get some breakfast, and OH MY GOD THERE’S A MOUNTAIN LION IN YOUR FRIDGE.
Wait, what? How? Why is there a mountain lion in your fridge? NO TIME TO EXPLAIN. RUN! THE MOUNTAIN LION WILL KILL YOU! UNLESS YOU FIND SOMETHING EVEN MORE FEROCIOUS TO KILL IT FIRST!
So you take off running, and the mountain lion is right behind you. You know the only thing that can kill a mountain lion is a bear, and the only bear is on top of the mountain, so you better find that bear. You start running up the mountain in hopes of finding the bear. Your friends desperately want to help, but they are powerless against mountain lions, as mountain lions are godless killing machines. But they really want to help, so they’re cheering you on and bringing you paper cups of water and orange slices as you run up the mountain and yelling at the mountain lion - “GET LOST, MOUNTAIN LION, NO ONE LIKES YOU” - and you really appreciate the support, but the mountain lion is still coming.
Also, for some reason, there’s someone in the crowd who’s yelling “that’s not really a mountain lion, it’s a puma” and another person yelling “I read that mountain lions are allergic to kale, have you tried rubbing kale on it?”
As you’re running up the mountain, you see other people fleeing their own mountain lions. Some of the mountain lions seem comparatively wimpy - they’re half grown and only have three legs or whatever, and you think to yourself - why couldn’t I have gotten one of those mountain lions? But then you look over at the people who are fleeing mountain lions the size of a monster truck with huge prehistoric saber fangs, and you feel like an asshole for even thinking that - and besides, who in their right mind would want to fight a mountain lion, even a three-legged one?
Finally, the person closest to you, whose job it is to take care of you - maybe a parent or sibling or best friend or, in my case, my husband - comes barging out of the woods and jumps on the mountain lion, whaling on it and screaming “GODDAMMIT MOUNTAIN LION, STOP TRYING TO EAT MY WIFE,” and the mountain lion punches your husband right in the face. Now your husband (or whatever) is rolling around on the ground clutching his nose, and he’s bought you some time, but you still need to get to the top of the mountain.
Eventually you reach the top, finally, and the bear is there. Waiting. For both of you. You rush right up to the bear, and the bear rushes the mountain lion, but the bear has to go through you to get to the mountain lion, and in doing so, the bear TOTALLY KICKS YOUR ASS, but not before it also punches your husband in the face. And your husband is now staggering around with a black eye and bloody nose, and saying “can I get some help, I’ve been punched in the face by two apex predators and I think my nose is broken,” and all you can say is “I’M KIND OF BUSY IN CASE YOU HADN’T NOTICED I’M FIGHTING A MOUNTAIN LION.”
Then, IF YOU ARE LUCKY, the bear leaps on the mountain lion and they are locked in epic battle until finally the two of them roll off a cliff edge together, and the mountain lion is dead.
Maybe. You’re not sure - it fell off the cliff, but mountain lions are crafty. It could come back at any moment.
And all your friends come running up to you and say “that was amazing! You’re so brave, we’re so proud of you! You didn’t die! That must be a huge relief!”
Meanwhile, you blew out both your knees, you’re having an asthma attack, you twisted your ankle, and also you have been mauled by a bear. And everyone says “boy, you must be excited to walk down the mountain!” And all you can think as you stagger to your feet is “f*ck this mountain, I never wanted to climb it in the first place.” 

 
 
Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Just pace yourselves ❤️Focus on ringing those bells in your units (and those of you who don’t have one) we’ll 🛎🛎🛎on here for you. Now kylie gold hot pants on (the fantastic kylie a bc survivor herself) keep 👭👭of each other and you will get each other through safely 👍😁and always a ring your units. If you are on fec the red one will turn your pee pink till you flush it through, don’t 😲. If your pee does start to burn but you don’t have temp, phone the unit you’ll need antibiotics no self medicating during chemo and if you get thrush mouth get them to give you fluconzole don’t get fobbed off with drops 💪💪💪once you get first one out the way you’ll settle into routine and you will all 🥊🥊🥊🤸‍♂️🤸‍♂️🤸‍♂️Kick it’s ass. Try and find mountain lion story on the threads by strawberry, it’s inspirational ❤️💕💕✨✨Shi xx

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Re: July 2019 chemo starting

Thank you so much Shi, that’s really helpful. Will definitely add all these to my list as well. It is so good to hear from people who have done all this before. Xx

Member

Re: July 2019 chemo starting

Hi LMC88, thank you for joining us too. Hope your PICC line goes ok. I am sure I am not a great patient either and may also faint.....when I took my daughter to A&E with a cracked knee cap she was fine. I was lying on the floor! Still the nurses are well used to these kinds of things happening. I keep telling myself as well that many 1000s of people have done this before me. Gets a bit more scary though the closer it gets to Thursday. More shopping tomorrow including rubber gloves! Never used them before but apparently needed to protect hands when washing up! Will also get big water bottle. That’s a good idea. Read somewhere on here that some people like ice cold water on chemo so planning on freezing it half full the night before and topping it up before I leave. Xx

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Re: July 2019 chemo starting

Hi All! 

I too am starting chemo in July. 11th to be precise. I am having  PICC line fitted as I am terrible with needles. I am more scared of this than actually going through the chemo at the moment. I’m also scared of feeling the meds go through my body and may faint. I am going to be the nurses nightmare lol. 

Thanks for the tips on the shopping list I think I need to start mine and be more prepared. I have bought head scarfs and a huge water bottle but that’s about it. 

Hope your meeting goes well with the oncologist goes well Kaytee and big hugs for your first chemo LucyLump

 

Xx

 

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Few quick tips for shopping list for chemo, get some baby wipes and anosol cream and senokot/movicalthe steroids can make you have a bit of botty back up 😳nothing to worry about it’s just you don’t expect it. Oral hygiene is very important, see if they can give you difflam in your ‘goody bag’. Any problems with antisickness meds phone your units, they will tweak meds till they get right combo. I was on akynzeo and metochlopromide and no sickness or appetite loss. Think about sending your hair to little princes trust they make wigs for kids for free with cancer, can make you feel like taking control. Also you ask about a wig voucher at your trusts too also your Macmillan units have lots of preloved wigs too. Drink 2-3 litres of water a day and keep skin moisturised, chemo can dry it out. Hope that helps a bit and know we are all here 👭to help in any way we can. Just always ring your units with any concerns during chemo, they want you to ring them, then they can keep you safe ❤️💕💕✨✨Shi xx

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Re: July 2019 chemo starting

Hi Kaytee, it's good to hear from you. I hope your meeting with oncology on Monday goes OK. It is definitely a bit of a relief to finally know what the treatment is going to be. I am making the most of the last few days before it all starts. 

Member

Re: July 2019 chemo starting

Hi Lucylump

I am also due to start chemo in July. Have first meeting with oncology on Monday. 

Obviously not looking forward to starting but like you I am glad to be moving forward.

Member

July 2019 chemo starting

Hi, I was just wondering if anyone else is starting chemo next week? I was diagnosed in May and have first chemo session next Thursday (4 July). I am Her2+ and will be having Fec-T plus Herceptin and Perjeta. I saw the oncologist on Tuesday but can't actually remember everything she said (yes I should have written at least the important bits down!). Have been reading other months starters to get handy hints. What lovely people are on here. It is so great how everyone can support each other and I am certain this will help. In the meantime I am making myself a shopping list - thank you those from June. So far I am getting prunes, boiled sweets, a new thermometer, ice cube thingy and rocket ice lollies. Have also ordered 2 chemo scarves. Not doing cold cap - didn't sound too easy so think will manage with no hair and look forward to seeing how it grows back. Have also already told my hairdresser she can dye it pink when it does. Anyway I am looking forward to meeting some new friends on here. Being positive at least at the moment but expecting to get more anxious as Thursday gets closer. Am just so pleased the wait for biopsy results, CT scans etc is over. I just want to get on with it. We CAN do this together! Xx ps note to self....start drinking lots of water!