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July 2019 chemo starting

Member

Re: July 2019 chemo starting

Morning everyone!

 

So sorry to hear your chemo had to be stopped MBJ and also really sorry to hear of your worries Dot. Hope you are back on track soon. Kaytee I hope you are getting used to your new hair. I have two chemo scarves and am finding it so strange that people don't recognise me. I am certain they are not avoiding me it is just that my face looks so different with no hair which is weird. I also have a sunhat which fits closely (£8.75 in Joules sale) and actually that makes me look more like me so I may try going out in that. 

 

So yesterday I had second round of FEC-T and so far am feeling much better than first time. I had new anti-sickness meds (Emend/Aprepitant) in addition to the ones I took before (Ondansetron). I did feel nauseous through the night but I was not sick and am feeling lots better than last time plus I have already eaten Malt Loaf and Baby Bel cheese. Last time I really struggled to eat anything for 4 days. Am feeling sleepy but that's Ok. 

 

Thinking of you all and sending hugs. Xx

Member

Re: July 2019 chemo starting

Hi BOD2019

 

I did find that my side effects ran a similar pattern each cycle.  I did have the odd different one now and again but i looked on the forums and found that some others had that side effect too.  It is the emotional side with me that is all over the place but that too is felt by a lot of the ladies on the forums.

 

This site is so good for information and to connect with people that are going through the same things, and they help through sharing their experiences.  

 

Take care

Debi

MBJ
Member

Re: July 2019 chemo starting

Hi Dot70

Hi I am from the February 19 thread. Sorry to hear of your issues with chemo. I too had a big problem after my first FEC I developed neutropenic sepsis after six days. I had to give it up as my risk of having it again was too high. I am now taking Letrozole as I am Er+ . But the worry of not carrying on is always in my mind. But we have to live for today too and the benefits have to be less than the risk to life to be worth carrying on. 

I hope your issues get resolved so you can get back on the chemo bus. X

Member

Re: July 2019 chemo starting

Hi Debi Thanks for your imput. Did you find your side effects were similar each time?

BOD

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

❤️❤️😘😘everything does take a battering on Chemo, it’s not unusual to have delays with one thing or another and as kip says you want to stamp your feet and scream give me the chemo now 😤😤but the delays are there to protect you as you know so your teams can get you through your treatment plans safely 😘😘frustrating but you will all get through together 💪💪💪keeping each other 💪💪👭👭💕💕✨✨Shi xx

Member

Re: July 2019 chemo starting

Hope your chemo went okay Lucy. Interested to know how you get in with different ant sickness pills. 

What pills are you other ladies taking? Does it depend on different treatments? x

Member

Re: July 2019 chemo starting

Hi Kip,

I just spent ages replying and it's disappeared!!

In a nushell:

Thank you for encouragement.

Didn't want chemo until told can't have it. Now I'm desperate for it!!!

It's my ALT levels that causing most concern. They are going down though.

Good to hear from others who are going through similar crap or have been through it and can offer advice. 

Thank you all xx

Kip Community Champion
Community Champion

Re: July 2019 chemo starting

Hi Dot, I had one cycle when my liver was too high, but eventually I got the chemo and got back on track.  Its amazing isn't it , we so don't want chemo but when we get told we can't have it .. boy we want it.  You'll be fine, its our poor old livers which take a bashing from the drugs.

Lucylump - sorry to hear the shave has happened, but lovely your little boy thinks its cool.   Its a very emotional moment, so be strong, and enjoy having no hair in this heat.  its lovely to be able to just pop your head under the tap to call down!

Kip

x

Member

Re: July 2019 chemo starting

Hi ladies

My new haircut is ok. The kids enjoyed doing it and my son (who's 3) thinks it's cool that my hair is like his lol. It is a very strange look for me and I was more emotional than I thought I would be. Been online shopping for a range of hats which was fun. Too hot to wear at the mo tho!

Hope your chemo goes well today Lucy, and let me know if the anti sickness works better, I was also sick the first night so seeing oncology on Monday ready for next session on Tuesday. 

Hi Dot sorry to hear your news, hope your liver picks up and you can continue soon. X

Hugs to all x

Member

Re: July 2019 chemo starting

Oh Dot I am so sorry to hear your news. I really hope your chemo will get going for you again soon. Hair falling out is not easy. Mine has nearly all gone now and I am finding it odd that people do not recognise me! Thank you for coming to visit us Debi. It is really helpful. Bod I am not sure what my anti sickness meds were but I think they were the same as yours. I am getting new ones today though which hopefully should work better. Hope everyone is managing OK. Kaytee how was your haircut? Xx


@Dot70 wrote:

Couldn't have chemo again yesterday so again deferred. Liver levels are coming down but oncologist wants them even lower before continuing. Said may try reducing dosage. So, only had one of my weekly paclitaxel and missed next 2 and last night my hair started falling out!!! 😪 Have to admit, I did cry. I'm ok this morning. Just got to suck it up but how ironic would it be if I end up bald after 1 cycle and can't have any more chemo?!!


 

Member

Re: July 2019 chemo starting

Couldn't have chemo again yesterday so again deferred. Liver levels are coming down but oncologist wants them even lower before continuing. Said may try reducing dosage. So, only had one of my weekly paclitaxel and missed next 2 and last night my hair started falling out!!! 😪 Have to admit, I did cry. I'm ok this morning. Just got to suck it up but how ironic would it be if I end up bald after 1 cycle and can't have any more chemo?!!

Member

Re: July 2019 chemo starting

Hi All

 

I am popping in from the April starters thread, hope you are all doing ok with your side effects.  I found it helpful to write a diary with my side effects : sickness, lightheadedness, emotional state, aches and pains and temperature, then i could look back each cycle and know what was normal for my reaction to chemo.  It also helps when you see your oncologist to refer back when he is asking about side effects etc.

 

I have just one more dose of Docetaxel, Herceptin and Pertuzumab to go before surgery, its been a slog at times but it is doable, stay strong ladies you've got this.

 

Debi

Member

Re: July 2019 chemo starting

Thanks for welcoming me to the group.

Oh dear Lucy it must be quite scary when you have pets or young kids. I was sick last time on day 3 but mainly vomiting water into a bucket as I couldn’t eat. Not been

sick this time but still feel iffy today. But tomorrow I’m on the mend. 

What sickness meds are you on? I’m  on Ondasetrin. Good luck with your Oncologist x

Member

Re: July 2019 chemo starting

Hi Bod, I was OK when I stopped taking the steroids last time but I have noticed on the other months threads that quite a few ladies report that their mood lowers at that point. I am seeing my oncologist today to hopefully discuss second FEC tomorrow. Will be asking for better sickness meds because last time sickness on first night was bad for me. Went everywhere and I was scared it would kill the dog! Xx

Member

Re: July 2019 chemo starting

Not too bad today but last time Day 3 was not good. Keeping fingers crossed it will be better this time. I think it’s when steroids leave the system. Anyone  else had this?

Member

Re: July 2019 chemo starting

Thanks LucyLump for replying .  Good to know how if might be and best good luck for your second lot on 25th ... will be thinking of you too x

Member

Re: July 2019 chemo starting

Hi Silver Pixie, I had my first FEC on the 4th and have the 2nd on the 25th. The process of having it is OK but it did take 3 hours. I was sick that night and then very sleepy for about 5 days afterwards but everyone is different. Some people are not sick at all. On day 7 though it suddenly changed and I felt totally back to normal and I have had 2 weeks feeling absolutely fine. Going in to the 2nd FEC knowing that after a few days it gets better feels so much less scary than the first time. Most of my hair has gone now but I keep telling myself that all side effects are evidence that it is killing fast growing cells and that is exactly what we want so it is OK. We will all be thinking of you on the 29th. Xx

Member

Re: July 2019 chemo starting

Hello Kip,

thanks for your post .. such a help as I’m about to start FEC on 29th.. feeling apprehensive is an understatement ! 

I think once the first one is done you’ve an idea then how it will work out although I’m not taking anything for granted ! 

Anyone else starting about the same time ? 

Fingers crossed it goes ok🤞

SilverPixie 

Member

Re: July 2019 chemo starting

Hi LMC88

Sorry to hear you have been getting headaches,  I have been struggling to with migraines. I take sumatriptan and they are helping but the migraines are recurring.  I am on day 13 and have had 2 free migraine days so fingers crossed. I struggled to drink enough water the first week so am hoping that will help next time.

Hi Lucy 

I chickened out of cutting my hair yesterday but its coming out in handfuls now so tomorrow I think :-) the kids are very excited about this! :-)

best wishes everyone xx

Member

Re: July 2019 chemo starting

Hi Bod, welcome to our wee group too and thank you Jencat for dropping in to see us as well. I am getting Taxine for the final 3 cycles of Fec-T. I have heard it makes you achey but not sick. Good Luck with your second round today. Xx

Member

Re: July 2019 chemo starting

Hi everyone I’m just getting my 2nd round of IV treatment at the moment. My 1st round of treatment was over 2 days and straddled June/July. 

Hi Lucy Im also HER2 + and the having Herceptin and Perjeta. Bu I’m In also getting Doxataxil ( taxine) and  Carboplatin. So slightly different. TCHP

Anyone else with the same treatment plan as me?

Goodluck everyone 

 

Member

Re: July 2019 chemo starting

I'm from the Oct'17 group and just wanted to say hello and like Kip, I wore the travel bands whilst I was having chemo and for a few days afterwards. I wasn't sick either, so I don't know if it was just a coincidence about the bands, but they might be worth a try x

AWW
Member

Re: July 2019 chemo starting

Hi LMC88, 

 

Sorry you are having headaches, it's terrible, isn't it.... I had the headaches too, mine was actually migraine, though I usually suffer from migraine before all this, so my GP stocked me up with my medication (sumatriptan), so I took that whenever I got the attack, which helped me. 

My headaches don't go away with just paracetamol, so if you are like me, you will need to talk to your GP. 

 

All the best. xxx


@LMC88 wrote:

Hi All. I’ve finally made it past the nausea stage 🤞🏼🤞🏼 Still a little tired but not as much. Now it’s just the headaches ☹️ Any advice? I’ve taken paracetamol and try to keep hydrated 

Thank You xx

Member

Re: July 2019 chemo starting

Well done LMC getting your first chemo out of the way. I am sorry you are having headaches. If you phone the helpline they may be able to give you something else to help. Worth a try anyway. Thank you Kip for all your advice. It is really helpful. I have my tins of prunes ready for this weekend! I have signed up for a Looking Good Feeling Better course at my local Maggie's Centre. It's not until November. They offered me earlier dates but they were just a day or two after chemo sessions so no good but November is (hopefully) after all chemo has finished so I am really looking forward to that. Hope your haircut went OK Kaytee and Dot hope you can go ahead with your 2nd chemo this week too. Had my bloods taken today. Fingers crossed they don't come up with any surprises! By the way our Maggie's centre was built with slopey walls. Have always thought that really odd. Even the little interview rooms have slopey walls. I would not be going in there if I was still feeling sick! Who would think it would be helpful to build a Maggie's Centre that looks like a boat on the outside and feels like a boat keeling over when you are in it! I will only be going in when I feel better! Xx

AWW
Member

Re: July 2019 chemo starting

Thank you @Kip !!! 


@Kip wrote:

Morning,  just thought I'd pop back in and see if I can offer up any extra tips for you ladies starting out.  The first chemo is so daunting isn't it, not sure what to expect.  I remember going home and just sitting there waiting for something to happen.. with FEC I was generally a bit nauseous the first 2-3 days (bit like morning sickness feeling) but took the pills given and it usually passed.   Don't be a hero and try without the pills, just pop everything they give you, it all helps.  I also wore anti-sickness travel bands during FEC, not sure if they helped but worth a try, I was never actually sick, just a but woozy sometimes.  I found I got weird food cravings though, salt n vinegar crisps and sausage rolls!   So I would say eat what you can when you can, its not time to diet!  If you are having steroids to take just watch out for the emotional dip when you come off of them, not everyone felt it, but I know many do, and I did.  About day 6-7 I would be teary and emotional.. got used to it though and just let it go, husband would keep out of my way!!!   The tummy injections are odd aren't they, I got them but only on random cycles, not every time, don't know why?  Money I expect.  Once I had done one they were ok, just keep them in the fridge but take it out 1/2 hour before using, so its not sooo cold.  I If you suffer from the aches and pains from the injections (usually only lasts a few hours) take paracetomal but always take your temperature BEFORE you take them as it can mask a high one.

Going back to eating, on FEC I got a sore tongue for a few days each cycle, Difflam mouth wash was good (hospital gave me some but you can buy it), but boil some water and add salt and let it cool then use that as a mouth wash after eating, that really helped stop too much soreness.  Ice lollies, sucking sweets, mints, anything ginger, dry crackers.. or indeed frozen grapes (sounds delicious .. wish I had known) they all help.  Oh and Manuka honey - took a spoonful each morning and swilled it around my mouth before swallowing, supposed to be good antiseptic powers.  You may find the steroids/chemo make you constipated.. I did... nurse told me to get Lactulose and take a spoonful every night before bed, definitely helped.  Eat prunes too, they are good.

Pretty much with FEC I found the worse days for SEs were the first week, then I picked back up and could carry on.  I managed to work throughout my chemo (I work from home though and part time so much easier for me - no germs around) and I got out and about with friends, just avoid crowded places during the middle week when white cells are low.  

I saw somebody mentioned the sore scalp when hair sheds.. it is sore, sort of tingly feeling but so much better once I had braved the shave... that's not an easy thing to do... but it does feel so much better when its gone, you can stop wondering and worrying about when it will happen.  Mine fell out big time about day 12 cycle 1, so shaved it all off.  But the good news is by Cycle 6 (docetaxol) it started growing again.  I finished chemo at end of Sept 18 and now its full, curly and grey but grows quickly.  Other hair (everywhere!!!) didn't fall out so soon, eyebrows and lashes remained until about chemo 4-5.  They too came back after a couple of months . 

If you can, see if you can get booked into a Looking Good Feeling Better course. its a half day course for cancer patients and they show you how to draw in eyebrows and do your make up and best of you - you get a big load of freebies, lovely products too.  It was really nice to be with others and so funny trying to get your eyebrows to match!  Best bit of advice I got there was "Eyebrows are sisters..  not twins".. hee hee.

Umm... trying to think of anything else I can add...drink lots, always phone the chemo hotline if you are worried about anything.. they are there to help.  I was worried at first about bothering them but they are brilliant and will always get you sorted.   Take your temperature regularly.. write it down, I kept a little diary and wrote down how I felt each day and at what time I took tablets... chemo brain is real!!  You will see a pattern most cycles so can plan around how the SEs are.  Most of all, take notice of your body,  if you need to sleep .. do it... rest is very important but likewise if you can, get out and take a little stroll. even if its just round the garden, it does help too.  

I hope I haven't overwhelmed you all with my waffle!   It does seem like a long road when you are at the beginning.. but you'll help each other along.. and its amazing when you look back to think "I did that".

Take care and big hugs to you all.

Kip

 

 


 

Kip Community Champion
Community Champion

Re: July 2019 chemo starting

Morning,  just thought I'd pop back in and see if I can offer up any extra tips for you ladies starting out.  The first chemo is so daunting isn't it, not sure what to expect.  I remember going home and just sitting there waiting for something to happen.. with FEC I was generally a bit nauseous the first 2-3 days (bit like morning sickness feeling) but took the pills given and it usually passed.   Don't be a hero and try without the pills, just pop everything they give you, it all helps.  I also wore anti-sickness travel bands during FEC, not sure if they helped but worth a try, I was never actually sick, just a but woozy sometimes.  I found I got weird food cravings though, salt n vinegar crisps and sausage rolls!   So I would say eat what you can when you can, its not time to diet!  If you are having steroids to take just watch out for the emotional dip when you come off of them, not everyone felt it, but I know many do, and I did.  About day 6-7 I would be teary and emotional.. got used to it though and just let it go, husband would keep out of my way!!!   The tummy injections are odd aren't they, I got them but only on random cycles, not every time, don't know why?  Money I expect.  Once I had done one they were ok, just keep them in the fridge but take it out 1/2 hour before using, so its not sooo cold.  I If you suffer from the aches and pains from the injections (usually only lasts a few hours) take paracetomal but always take your temperature BEFORE you take them as it can mask a high one.

Going back to eating, on FEC I got a sore tongue for a few days each cycle, Difflam mouth wash was good (hospital gave me some but you can buy it), but boil some water and add salt and let it cool then use that as a mouth wash after eating, that really helped stop too much soreness.  Ice lollies, sucking sweets, mints, anything ginger, dry crackers.. or indeed frozen grapes (sounds delicious .. wish I had known) they all help.  Oh and Manuka honey - took a spoonful each morning and swilled it around my mouth before swallowing, supposed to be good antiseptic powers.  You may find the steroids/chemo make you constipated.. I did... nurse told me to get Lactulose and take a spoonful every night before bed, definitely helped.  Eat prunes too, they are good.

Pretty much with FEC I found the worse days for SEs were the first week, then I picked back up and could carry on.  I managed to work throughout my chemo (I work from home though and part time so much easier for me - no germs around) and I got out and about with friends, just avoid crowded places during the middle week when white cells are low.  

I saw somebody mentioned the sore scalp when hair sheds.. it is sore, sort of tingly feeling but so much better once I had braved the shave... that's not an easy thing to do... but it does feel so much better when its gone, you can stop wondering and worrying about when it will happen.  Mine fell out big time about day 12 cycle 1, so shaved it all off.  But the good news is by Cycle 6 (docetaxol) it started growing again.  I finished chemo at end of Sept 18 and now its full, curly and grey but grows quickly.  Other hair (everywhere!!!) didn't fall out so soon, eyebrows and lashes remained until about chemo 4-5.  They too came back after a couple of months . 

If you can, see if you can get booked into a Looking Good Feeling Better course. its a half day course for cancer patients and they show you how to draw in eyebrows and do your make up and best of you - you get a big load of freebies, lovely products too.  It was really nice to be with others and so funny trying to get your eyebrows to match!  Best bit of advice I got there was "Eyebrows are sisters..  not twins".. hee hee.

Umm... trying to think of anything else I can add...drink lots, always phone the chemo hotline if you are worried about anything.. they are there to help.  I was worried at first about bothering them but they are brilliant and will always get you sorted.   Take your temperature regularly.. write it down, I kept a little diary and wrote down how I felt each day and at what time I took tablets... chemo brain is real!!  You will see a pattern most cycles so can plan around how the SEs are.  Most of all, take notice of your body,  if you need to sleep .. do it... rest is very important but likewise if you can, get out and take a little stroll. even if its just round the garden, it does help too.  

I hope I haven't overwhelmed you all with my waffle!   It does seem like a long road when you are at the beginning.. but you'll help each other along.. and its amazing when you look back to think "I did that".

Take care and big hugs to you all.

Kip

 

 

Member

Re: July 2019 chemo starting

Hi All. I’ve finally made it past the nausea stage 🤞🏼🤞🏼 Still a little tired but not as much. Now it’s just the headaches ☹️ Any advice? I’ve taken paracetamol and try to keep hydrated 

Thank You xx

Member

Re: July 2019 chemo starting

Thank you so much Kip. I am having the same as you except with Herceptin and Perjeta instead of Tamoxifen. I have my second cycle on Thursday this week. Morning everyone. Hope you are all managing Ok. Xx

Kip Community Champion
Community Champion

Re: July 2019 chemo starting

Hi July ladies,   looks like you've found a great support base already but just wanted to say hi.  I was diagnosed in April 18 and had FECT chemo, mastectomy ANC clearance, radiotherapy and now Tamoxifen so if I can help in any way give me a shout. 

Keep posting... Just being there for each other really helps and you pick k up great tips.

Sending hugs 

Kip

Member

Re: July 2019 chemo starting

Sorry to hear that Dot. Fingers crossed for next week. Xx

Member

Re: July 2019 chemo starting

The frozen grapes were delicious and kept my mouth lovely and cool Smiley Happy 

Unfortunately, I didn't get to eat them while having my second chemo. 2 of my liver enzymes were too high so treatment deferred til next week depending on blood results. Fair to say, I was gutted. I didn't want chemo but now I'm worrying incase I can't have it!!!!

Also ended up with a nasty reaction to my PICC line dressing so had to go back to hospital to get it redressed yesterday. Upgraded me to an IV3000 which feels sooooooo much better.

Onwards and upwards!!

Member

Re: July 2019 chemo starting

Morning everyone. Just to let you know when your hair falls out it feels a bit prickly. Not exactly sore but an odd sort of prickly!

Member

Re: July 2019 chemo starting

Hi , 

i had fist chemo last Friday and felt much the same as yourself. Luckily no nausea but achy bones. I am not too sure what i am doing either. I tried to send a hug to someone yesterday but nothing happened. We will learn. Hope you have a better night tonight 

Member

Re: July 2019 chemo starting

Hi Mini, the ones I had were called filgrastin. They stimulate the bone marrow to produce more white blood cells in order to reduce the risk of us getting an infection. The chemotherapy reduces our white blood cells and these injections try to make up for it (at least I think so!). Xx

Member

Re: July 2019 chemo starting

Hello Lucylump,

 

Do you mind if iask you what the tummy injections are called n what do they do ??

thanks. Mini mad xx

Member

Re: July 2019 chemo starting

Hi Kenny1970, of course we won't throw you off. We are all lovely on here! Sorry to hear you have been having such an awful time. Your description sounds very like how it was for me a couple of weeks ago. I too was thinking how on earth can I do this. The sickness/ nausea though did wear off though after the first day. I slept loads for the next 5 days and then on day 6 felt so much better. I have my second chemo next week and am now thinking 'bring it on'. Hopefully it will be like this for you too but if not phone the cancer helpline number. They can give you better nausea tablets and apparently they have some which work really really well so if you are still feeling sick give them a phone and see what they can do to help. Yeah I know what you mean about the injections. I told them there was no way I could do them to myself so they agreed to send round the community nurse to do them for me every day. Next time they are swapping them for a one off injection instead of the 7. Apparently it does the same job but is more expensive so they don't routinely use it. Worth asking for though for anyone who finds injections difficult. Hope your sinus pain gets better soon and you have a better night tonight. Xx

Member

Re: July 2019 chemo starting

Hi

 

I had my first chemotherapy session yesterday I was the same it went ok and then I got this bag and what the hell are these injections about? No one told me about them! Last night we difficult feeling nauseous and restless quite emotional thinking how the hell will I get through the next 4/5 months? Today I felt very very tired felt better after breakfast but then made the mistake going out for a few hours without eating felt crap nauseous, fatigue emotional. Had some lunch felt better lay down and recharged. It just comes over you oh and had sinus’s pain to add to my hot sweets as on the menopause but can’t take anything as my cancer was hormone based!

Moan over xx

Member

Re: July 2019 chemo starting

Hi

i think I have just pressed the wrong bloody button and reported a post! I am so sorry!

i really don’t know what I am doing my apologies.

i wanted to add onto the July Chemotherapy start dates but you will probably throw me off now!

Had my first session yesterday but crappy worst last night and today very tired feeling nauseous and emotional.

xx

Member

Re: July 2019 chemo starting

Good Luck today LMC. We are all thinking of you. I took a magazine with me, snack food and water. It took about 3 hours and the actual process was no problem at all. It knocked me for about 6 days afterwards but now I feel back to my old self so all good. Really sorry to hear you are having migraines and awful stomach acid Kaytee. Hope it sorts gets better soon. I also got a new mattress and I love it! I love the idea of your kids doing the haircut. That could be lots of fun! It will grow back again and I have already told my hairdresser she can dye mine pink when it does. By the way one other odd thing.....have also been getting really intense cravings (bizarrely like being pregnant) for tuna wraps and chips! Xx

Member

Re: July 2019 chemo starting

Hi Lucy 

Sorry to hear your hair is going but I loved your positive response. Xx

I am getting my kids to cut my hair off at the weekend as I thought it would be less scary for them to see it happening and have a laugh about it rather than just suddenly mums bold ! 

Member

Re: July 2019 chemo starting

Hi all

Glad to read everyone is progressing as well as can be expected with their chemo.

I had my first one last Tuesday and apart from being sick that night and generally not feeling well I was ok until Saturday when I got a really bad migraine which I just couldn't shift. I ended up ringing the help desk for advice in the end on Sunday morning . Not much they can do tho so just keep taking tablets :-(

Feel a bit better today but have developed a really bad acid stomach every time I swallow.  It's quite painful. Anyone else had this?

Anyway had a new mattress delivered this morning so hopefully that will help with the insomnia!

Best wishes everyone x

Member

Re: July 2019 chemo starting

That’s great. I’m dreading the side effects. First chemo today and to say I’m scared is an understatement. Any tips of what to take with me? Xx

Member

Re: July 2019 chemo starting

Day 14 - hair definitely falling out otherwise all good. Telling myself hair falling out shows that chemo is working and that those nasty fast growing cells are being zapped. Hope you are all managing ok. Xx

Member

Re: July 2019 chemo starting

Love the frozen grape idea! Xx

Member

Re: July 2019 chemo starting

Just been reading that claritin somehow helps with the joint pain that is caused by herceptin and chemo. I'm paranoid about doing harm so I'll double check that tomorrow when I go for bloods.

Another article suggested freezing red grapes to eat while having chemo treatment as they cool your mouth to prevent ulcers and they also have anti cancer properties if eaten regularly. I'm off to freeze my grapes ready for cycle 2 on Wednesday...

Member

Re: July 2019 chemo starting

Hi, i had my first chemo on Friday, hip and leg pains started this morning. Not too bad but was told to expect them. I am on docetaxel and carboplatin. Luckily no nausea either as yet

Member

Re: July 2019 chemo starting

Hip pains went but are now back with a vengeance. Trying to go for a walk each day in hope it keeps me supple. Feel like an old woman though!!! Anyone else had hip/pelvis/leg pain? 

 

Community Champion

Re: July 2019 chemo starting

Hi LMC88

 

I had a PICC line put in prior to starting chemo (I'm from the Oct 18 starters) 

- it was straight forward.. i had a local anaesthetic, the line is then inserted into your arm, I had an x-ray to make sure it was in the right place and then a dressing is put over it! You do have to have the line flushed once a week and the dressing changed but the District Nurse came to my house to do that! Some ladies have to go to the chemo unit for this! You would also need a waterproof cover for when you're showering!

It was much easier having the PICC line for chemo..have bloods taken from it..I had antibiotics through mine and even a blood transfusion! Far easier that needles in dodgy veins! 

Best wishes to you all...hope all goes well with your treatment x 💕💕

Member

Re: July 2019 chemo starting

Hi Dot, welcome to our group. Hope your pains go away soon for you. Xx

Member

Re: July 2019 chemo starting

Hi, I've just registered but have been reading these forums for a while for nuggets of advice. Started chemo and herceptin last Wednesday 10th July. Having 12 weekly paclitaxel. Thought I was doing ok and feeling rather pleased no sickness or other side effects but I have now developed the most horrendous pains in my hips!!! Think this may be due to herceptin?? Hoping paracetamol kick in soon....