Hi Claire Yes I’m also a Clare!
So sorry to hear about the bad cold and even worse, the neutropenia! Hope you recover quickly and the coughing and bad wind have abated!! Fingers crossed you’ll be home very soon.
Your kids sound great! I’m hoping my daughter will be fine once she gets to the holiday club. She did go occasionally last Summer but never for a full week. She’s sociable and will be fine but she’s been more tired and emotional than usual because it’s the end of term and probably because she’s had a lot of late nights recently with school events etc... As they broke up from school early on Friday, a lot of kids from different schools in Islington ended up going for picnics on Highbury Fields . We’ve never been before as usually we try to get a head start on our holiday that day. This year I thought it would be a fun way to end the school term. How wrong was I? It started so well with a lovely picnic but by the end it was utter chaos! There was a water fight which got totally out of hand and then two parents started having a full on row as their kids were laying blows on each other. Apparently one child had been bullying the other the whole year! Really didn’t think it was appropriate for the adults to vent their anger on each other in front of all the children so I was glad when they both stormed off in opposite directions. At one point it looked like they were going to have a physical fight too! It was not a fun and relaxing way to end the term in the slightest. Don’t think we’ll be doing it again at the end of Year 5!
Its a shame your daughter found out about your BC that way but you obviously handled it well and now things are out the open it must be easier in many ways. We can’t protect them unfortunately. As we were walking up to the fields from school yesterday, two girls were walking in front of my daughter and her best friend. I heard one child announce loudly (in a way that made me think that they wanted my daughter to hear) “Well she had cancer so of course she’s dead now”. I was shocked and my daughter and her friend looked upset. Momentarily I didn’t know what to do but then, in as unemotional a voice as possible, said “Well most people don’t die of cancer and my treatment is working so i’m not going to die” which seemed to reassure them.
I know there are no absolute guarantees but not sure what else I could have done in the circumstances.
It’s hard when comments are made out of the blue but I feel because I’ve been honest it has helped my daughter cope and we had also shared the news of my diagnosis with certain friends and their families already in the hope of ‘normalising’ things. In my good weeks, so usually two out of three, I feel very positive which I think helps. For the first time in my life I am being forced to put myself first and in some ways it’s liberating., I do have my days when the worry gremlins come for me but it’s usually when the SEs are at their worst and at least I know they won’t last forever.
Hugs Clare xx
Hello July-ers... glad things going ok, sorry to one of you had to stay in hospital, hopefully it wont last long and you recover quickly. As for the itchy head.. I fear the shedding is approaching.. Mine was itchy and sore their starting going... day 15 cycle 1 I had to brave the shave but although it was distressing at the time, you quickly adapt and in this weather the bald head is a god send. Taste buds do return too, mine came back by weeks 3 so enojiyjgna week of eating everything I can.. ready for Monday and cycle 3.
Hello July Chemo Ladies!! Glad to see you are all doing well and dealing with the joys of chemo. I have had 2 x FEC so far, next one is on Monday followed by 3 x T so almost half way. Must say the thought of the chemo is actually a lot worse than the actually thing (so far that is!!).. I have had some strange mouth problems, dry, bit sore feels like its been burnt, foggy head and nauseaus feeling but they all pass and by 2nd week I feel almost back to normal. I braved the shave on day 15 of cycle 1 as the hair was really falling out, I've got used to being a baldie now, I have a wig and various hats/scarves.. thats not to say i can't wait to have hair again.. althoug not teh washing and styling of it!!
By the way I am ER+ HER- and had a single MX (no reconstruction) back in May... keep on keeping on girls...
take care Kip xx