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July 2018 Chemo Starters

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Re: July 2018 Chemo Starters

Hi Lai reflux is horrible. I’m getting it a little. Glad the omeprazole is working. Hope you get a good nights sleep. X
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Re: July 2018 Chemo Starters

Hi Claire Yes I’m also a Clare!

 

So sorry to hear about the bad cold and even worse, the neutropenia!  Hope you recover quickly and the coughing and bad wind have abated!!  Fingers crossed you’ll be home very soon. 

 

Your kids sound great! I’m hoping my daughter will be fine once she gets to the holiday club.  She did go occasionally last Summer but never for a full  week.  She’s sociable and will be fine but she’s been more tired and emotional than usual because it’s the end of term and  probably because she’s had a lot of late nights recently with school events etc...  As they broke up from school early on Friday, a lot of kids from different schools in Islington ended up going for picnics on Highbury Fields .  We’ve never been before as usually we try to get a head start on our holiday that day. This year I thought it would be a fun way to end the school term.  How wrong was I?    It started so well with a lovely picnic but by the end it was utter chaos!  There was a water fight which got totally out of hand and then two parents started having a full on row as their kids were laying blows on each other.  Apparently one child had been bullying the other the whole year!  Really didn’t think it was appropriate for the adults to vent their anger on each other in front of all the children so I was glad when they both stormed off in opposite directions.  At one point it looked like they were going to have a physical fight too! It was not a fun and relaxing way to end the term in the slightest.  Don’t think we’ll be doing it again at the end of Year 5! 

 

Its a shame your daughter found out about your BC that way but you obviously handled it well and now things are out the open it must be easier in many ways.  We can’t protect them unfortunately.  As we were walking up to the fields from school yesterday,  two girls were walking in front of my daughter and her best friend.  I heard one child  announce loudly (in a way that made me think that they wanted my daughter to hear)  “Well she had cancer so of course she’s dead now”. I was shocked and my daughter and her friend looked upset.  Momentarily I didn’t know what to do but then, in as unemotional a voice as possible, said “Well most people don’t die of cancer and my treatment is working so i’m not going to die” which seemed to reassure them.  

I know there are no absolute guarantees but not sure what else I could have done in the circumstances.

It’s hard when comments are made out of the blue but I feel because I’ve been honest it has helped my daughter cope and we had also shared the news of my diagnosis with certain friends and their families already in the hope of ‘normalising’ things.  In my good weeks, so usually two out of three, I feel very positive  which I think helps.  For the first time in my life I am being forced to put myself first and in some ways it’s liberating., I do have my days when the worry gremlins come for me but it’s usually when the SEs are at their worst and at least I know they won’t last forever.   

 

Hugs Clare xx

 

 

 

 

Kip
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Re: July 2018 Chemo Starters

Hello July-ers... glad things going ok, sorry to one of you had to stay in hospital, hopefully it wont last long and you recover quickly. As for the itchy head..  I fear the shedding is approaching..  Mine was itchy and sore their starting going... day 15 cycle 1 I had to brave the shave but although it was distressing at the time, you quickly adapt and in this weather the bald head is a god send.  Taste buds do return too, mine came back by weeks 3 so enojiyjgna week of eating everything I can.. ready for Monday and  cycle 3.

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Re: July 2018 Chemo Starters

Thank you ktk. I will have a look.
Sam xx
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Re: July 2018 Chemo Starters

Sorry! I mean klaree
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Re: July 2018 Chemo Starters

And cdc hope your infection clears up quickly!! X
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Re: July 2018 Chemo Starters

Hi
First round ok thus far! Even cold cap for 3 hours wasn't too bad. I was very tired when I got home and started to feel a bit sickly early evening. Took one of my emergency sickness tablets and was fine. Slept well and full of beans this morning even cleaned the fridge. My daughter did my injection but I know I will have to get over it and do it myself eventually! I've been told day 3 is when you can feel bad so going to make the most of today.
Hope all you ladies are ok.
Hugs to all

B x
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Re: July 2018 Chemo Starters

Morning all

So day 4 of 2nd round of fec and new se appeared - acid reflux not nice but got hold of omeprazole from gp which appears to be working. Been a bit of a plank this morning think cos I'm tired from steroid insomnia and didnt reduce my steriod dose as I should - the upside is I don't have to take any more today so may get some more sleep tonight. I am actually feeling a bit better this round I think it being less hot is helping- though I am I in Buckinghamshire and they are forecasting 30 degrees again tomorrow so that may change.

Hope everyone's ok and coping with se's

Lal
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Re: July 2018 Chemo Starters

Hi cdc1811. (I think you are another Clare right?)

Your daughter will love summer camp when she starts.... mine do although apprehensive to start as they did not know anyone and they are separated into groups for their ages.....fingers crossed she likes it!

My girls have actually been handing it really well although the 10 year old found out by hearing me on the phone telling a friend which was not great....she then came in and asked me ‘Mum did you just tell someone you have breast cancer?’ We both had a little cry but now we keep everything out in the open but just factual as advised by a Macmillan nurse and so far it’s worked well. I did find out recently that they do talk to teachers about it which is fine as the school has been great and so long as they are getting the support they need from us or school that the important thing.

Saying that my 10 year old had a cry tonight... I think she got worried as we had to pack them off to family last minute as i’ve been admitted to hospital...initially with temperature at 37.6 and a stinking cold, sore throat but after having my bloods done an hr ago I have neutropenia...so a stint in hospital for me for the next couple of days...it was going so well! Only thing is i’m In a ward with 3 other ladies and I can’t stop coughing and I also have bad wind at the moment....I asked the nurse if there was a another toilet so I could go and fart and there isn’t so these poor ladies will have to listen to me farting and coughing all night!

When’s your next chemo Clare?

Hi Beckett, how did you get on today for your 1st round?

Karen, hope your feeling ok after round 2 today!
Good luck on Monday kip and I had a burnt mouth feeling also....oh and head is starting to get very itchy....not sure if that’s the hair follicles giving up or I need a wash 😂 I think I’ll be shaving the rest off soon myself.

Hi to all the other ladies on here...loving the posts x
ktk
Member

Re: July 2018 Chemo Starters

Hi Sam. Have s look at Life Kitchen on FB. It is brilliant and provides recipes specifically for the lack of taste issue. They do free courses so see if there is one near you. Kxx
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Re: July 2018 Chemo Starters

Day 8 of the 1st cycle of EC, Sam's taste buds have been evicted (imagined BB voice style haha). It's weird for everything to taste the same, completely bland and actually tasteless, and for even the strongest flavours that usually would burn my face off to have no effect whatsoever. I hope it soon comes back as I'm losing my appetite because of this. I know it could be worse (eg mouth ulcers, sores, etc) so any suggestions would be very much appreciated.
Sam xx
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Re: July 2018 Chemo Starters

Hi Claire. I’m glad you’re first cycle of chemo went ok and you managed to cope with the cold cap. Glad your side effects seem manageable. The medication chart sounds great. Might ask my hospital if they can do something similar as I’ve been getting confused. I’ve had one spot on my face for a while -now you’ve mentioned about the zits I’m wondering if it’s chemo related. I also have loss of appetite for a few days after treatment which then comes back with a vengeance! I’ve got cravings for white chocolate and crisps! Glad you like your short haircut. I did the same initially and everyone said I looked great and younger! I eventually shaved it all off. Yesterday My 9 year old daughter said she couldn’t imagine me with hair now, She thinks I look cool bald and also likes my beanie headwear which has been admired by her schoolfriend?! She got a bit upset earlier when I told her that I’d booked her in to a holiday club. It’s only for the week after my next chemo and I just know I won’t be up to much that week and think she’d rather have the opportunity to play with kids of a similar age than staying at home entertaining herself. . How are your kids getting on? Well I’d better get off to bed. Have a good night xx

Good luck with cycle 2 Karen. Great to hear tumour is shrinking. I’m on the waiting list for a LGFB course but might have to wait until November!

Great you’re almost half way through chemo Kip. Hope Monday goes ok. Have you been told anything about the T part of treatment? Can we expect different side effects? Read something about numb hands and feet. Oh joy! Hope it treats us all kindly. Xxx
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Re: July 2018 Chemo Starters

Hi fellow Chemo’ers, been a while since my last post in this thread but I have been following you all on your chemo experiences which helped me prepare for my start. So here is my 1st check in....

Diagnosis: Grade 3 ER5/8 HER23+cN0 MX or in my simplistic terms Grade 3 HER2 positive BC 😉
Started Chemo on the 10th July (2 red and 1 clear meds) and managed the cold cap. I initially was not going to do the cap but that morning had my over colour processed hair cut really short and shaved round the sides and I love it and everyone approves including my 6 and 10 year girls... so the nurses and OH persuaded me to try it and at 1st it was fine...it does gradually get more uncomfortable as time goes on and I felt the onset of a migraine lurking but the full migraine never really hit...I’ll give it a go next time and see how I get on. The 5 days after chemo I had no major side effects, I was expecting the worst, sickness and diarrhoea but have actually been really lucky. I took my meds as prescribed...the pharmacist at the hospital was lovely and created and printed off a sheet for me with the medicines and times to take them and colour coded each medicine which I really really needed as I was a bit spaced out (or very very chilled) during the days after chemo...tastebuds were all over the place so appetite was not great and had a ravenous thirst on so carried around a 2ltr bottle of water. Day 6 and 7 the fog in my head has cleared and I feel almost normal again except for ZITS....yes since day 6 zits have been appearing on my face...the horrible zits I had when I was teenager...I think it probably the toxins coming out so will try and flush through with water. Oh one other thing is my appetite had returned with a vengeance.... and I want to eat anything and everything.....chocolate, the kids cereal with cows milk...I gave up cows milk when I was diagnosed and moved onto almond but I think my body wants it again...has anyone experiencing zits and ravenous appetite?

Right better get back to attempting to do some work now that I can 😉...oh and housework ☹️ Have so much washing and cleaning to do where I could not be bothered last week.
2nd Chemo on the 2nd Aug.

Good luck ladies with you next treatment and look forward to your posts 😘
Claire x
Kip
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Re: July 2018 Chemo Starters

Hello July Chemo Ladies!!   Glad to see you are all doing well and dealing with the joys of chemo.  I have had 2 x FEC so far, next one is on Monday followed by 3 x T so almost half way.  Must say the thought of the chemo is actually a lot worse than the actually thing (so far that is!!).. I have had some strange mouth problems, dry, bit sore feels like its been burnt, foggy head and nauseaus feeling but they all pass and by 2nd week I feel almost back to normal.  I braved the shave on day 15 of cycle 1 as the hair was really falling out, I've got used to being a baldie now, I have a wig and various hats/scarves.. thats not to say i can't wait to have hair again.. althoug not teh washing and styling of it!! 

By the way I am ER+ HER- and had a single MX (no reconstruction) back in May... keep on keeping on girls...

take care Kip xx

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Re: July 2018 Chemo Starters

Hi ladies,

Hope all is well for all of you.

Welcome to Fran and Beckett and Mishy 😀

Had a busy day, oncology appointment with a different dr today as my usual dr was away. He didn’t discuss the issue of the MRI guided biopsy so I thought I would leave it until next time and talk it through with my other dr she seems much better. 🙄

All good to go for cycle 2 on Friday with a slightly different mix on the C part which made me ill last time... good news is the tumour has shrunk by half a cm already , yay 😃

I did the look good feel better after my appointment and have to say it was fab and well worth doing. Taught how to draw on eyebrows and enhance your eye make up which was very useful, not to mention the goody bag with lots of very good make up , Chanel, D&G, Clinique, Lancôme. The ladies were lovely and we all had fun, book up if you can 👍🏻

Using a mixture of wigs and hats has helped get used to the lack of hair and been getting out and about a bit more after hiding away for a day or two.

Good luck to all those having treatment this week , another step on the road to beating this 👊. Stay strong and positive 😘

Best wishes

Karen
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Re: July 2018 Chemo Starters

Glad you got the PICC line sorted iamstillme and that you got to go home, Hope the injection went ok. Have a restful night x
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Re: July 2018 Chemo Starters

Really glad you’ve found us Fran! I’m also on the June thread but my regime 4 x Ac and 4 x T means I’ll be starting the T part with some of the people on the July thread. it’s worth a peek at earlier months because you can really see how people are progressing and find a wealth of information and advice about how to cope with SEs. I had my second cycle of AT last Tuesday and I think I’ve recovered more quickly this time around. It’s hard not to stress at times but as you say what’s to come will come. I’ve realised that I cope best by dealing with things on a day to day basis but also arranging a few things to look forward to such as seeing friends on my good weeks. I’m quite enjoying trying out different headgear too! Enjoy the sunshine.
Best wishes Clare xx
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Re: July 2018 Chemo Starters

Hello ladies, I'm Fran in South Herts.

Have just read all 6 pages of this thread(!) and have to say it's marvellous that everyone is so upbeat, everything I've read has been informative and helpful.

I was diagnosed at the beginning of May and although I've now had my surgery it was delayed a couple of times after the MRI picked up two further areas that had to be investigated, secondary cancer in the breast and also in the lymph nodes so on 12 June I lost a few pounds, bye bye right boob, and some lymph nodes, thankfully ct & bone scan shows no spread. I saw my oncologist today (I think I fell in love a little bit hehe) and he tells me I'm due to start EC T chemo in the next couple of weeks, I think he was a little alarmed that I wasn't stressing over what's coming but it's gonna come whether I stress or not right? I told him that I knew I was in the right hands and was just along for the ride. Knowing how all you lovely ladies are doing is definitely going to help me deal with stuff I may not want to burden my daughters with.

I've decided not to opt for the cold cap even though I too will probably look like Daniel Craig and anyway I've always fancied swanning around in a variety of different hats, and it's just another (perfectly valid) excuse to go shopping 😁.

I'll lurk on here reading about all your experiences and will post again with my own experiences when my journey has begun. In the meantime I'll be sunbathing like mad until then hehe

Good luck lovelies

F x
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Re: July 2018 Chemo Starters

Thanks Shi. I'm doing fine, meds are working as they should be so SE are practically zero at the moment. 1st G-CSF injection tonight, scary but I will do it! I have a very high pain-threshold so I know I'll get through it.
PICC line bled Saturday so went to A&E to get it changed but ECG showed a discrepancy and blood tests showed an abnormality so nearly had to spend the night. Luckily I had no other symptoms so they let me go home instead, phew!
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Re: July 2018 Chemo Starters

Thanks! Xx