cancel
Showing results for 
Search instead for 
Did you mean: 

July 2018 Chemo Starters

Member

Re: July 2018 Chemo Starters

A few of us have put our photos with and without head coverings on the June 2018 Chemo board. You are very welcome to take a look.
Member

Re: July 2018 Chemo Starters

Best of luck tomorrow Iamstillme and all of those starting on Friday. Yes chemoers is a great word! Might have to borrow it if you don’t mind!
Member

Re: July 2018 Chemo Starters

PICC line went in Tuesday - which was painless at the time, a bit achy yesterday but now fine - now ready for my 1st EC tomorrow (I think!).
Good luck to my fellow chemoers (this should be a word if it's not IMO), fingers crossed that it treats us all kindly xx
Highlighted
Member

Re: July 2018 Chemo Starters

Hope all goes well tomorrow Lynsparkle with npminimal SEs. Sending best wishes and hugs xxx
Member

Re: July 2018 Chemo Starters

Hello all, have my second Chemo tomorrow on the mobile Chemo bus, my first Chemo i was a bit tired and a sore mouth, but that was all. Good luck to all of you going through treatment.  It really lovely that people are sharing their experience,

Member

Re: July 2018 Chemo Starters

Well done also for getting through 1st cycle Lai . I had my 2nd cycle of 8 yesterday. The steroids affected me badly too so now have a reduced dose. If you keep a record of any side effects it’s really useful to discuss these with the oncologist the next session. Mine has really made a effort to alter my medication to reduce the issues I was having. I had my head shaved the day before my 2nd chemo. I knew it was time as whenever I put my hand to my head it was just coming out and my scalp was itchy. I’m so glad I did- it was empowering for me as others have said and I’m almost used to seeing myself in the mirror at home! I wear scarves/turbans and hats when out and about- it’s quite fun experimenting with different styles.

Hi Allypops I have a Avery similar diagnosis to you Stage wise and ER positive at 8/8 Original tumour bigger than originally thought and then I found another on the other side which was confirmed as a tumour by MRI and further biopsies. I’ve already had Breast preserving surgery which worked on the left but had a re-excision on right which found further cancer cells so I will also need a mastectomy after 4xAC and 4xtaxol. I’m 50 and have a 9 year old. She’s been great but a little more concerned now the effects are more evident. I’ve tried to reassure her that this just shows the chemo is working. Good luck for Friday and all others starting soon. Please feel free to ask me any questions and I’ll see if I can help.

Willie it’s great you have minimal side effects and might be able to reduce no of cycles. Fingers crossed.

Sue thanks so much for sharing your encouraging post chemo hair experience.

Take care everyone xxx
Member

Re: July 2018 Chemo Starters

Hi all

Good luck to those starting chemo this week seems to be a few for Friday 13th!

I 'm day 15 after 1st of 8 x Fec-T - first 7 days were grim mainly due to steroid insomnia- since then not too bad - just a bit more tired tend to fade about 4pm but that could be down to heat as much as anything else. Just starting to shed hair - had it cut short before I started but just wondering at what point I need to go for the shave - not annoying at the moment so will wait a bit.

Hope everyone who hads started still feeling ok .

Lal
Member

Re: July 2018 Chemo Starters

Just to add, I am 45, have 2 children (15 year old and 12 year old), live on border of South London/Surrey and have decided not to cold cap.
Member

Re: July 2018 Chemo Starters

Hi Everyone! I have had my pre-chemo blood tests today and they were ok so I am all ready to start chemo on Friday 13th 😱
I have been given Emend tablet to take 1 hour before my appointment on Friday.
I am having chemo first as my tumour is bigger than first thought and has what looks like tendrils so quite spread out. Grade 2 er+ 8/8, pr+ 8/8, HER2-. Sadly, I also have some cancer cells in the lymph node that they biopsies so chemo was on the cards whether before or after surgery. It’s looking like either single or double mastectomy (I also have some bleeding from nipple on good boob and despite clear mri, I am anxious about it as the bad boob had the same a couple of years ago).
I will be having EC x 4 (every 3 weeks) then accelerated Taxol x 4 (fortnightly). Then surgery and rads but I’m trying to concentrate on getting through chemo first!

I think I’ve rambled on enough, so that’s me for now. I hope you are all doing ok xx

Allypops x
Member

Re: July 2018 Chemo Starters

Hi there, checking in.  

 

It's Day 14 for me.  Still no side effects, nothing.  I'm aware of a few hairs coming out, in my fingers, although it's not dropping out in lumps - yet.  Luckily it's really really short already, I'm happy I did that.

 

I've got a catch up with my oncologist today, I'm sure he'll be expecting me to trip in with a list of woes, but I've got nothing.  Well, one question.  His letter laying out my treatment said 4 FEC cycles and 4 T cycles but a document I got from the oncology nurses showing my drug list from the first chemo session and it says I'm having 6 cycles.  If I could reduce it to 6 from 8, I'd be cockahoop!   Although, then the sensible side of me says maybe I should just blitz those cells with the extra cycles.  

 

I'm also going to try to get a definitive answer about exercise.  I don't know what I can/can't do with a picc line in.  I don't want to do anything to compromise it.   Also, I wondered if doing intensive exercise might cause a problem with blood pumping through it at an increased rate.  Anyway, I did a spin class last night and I'm still alive, for now!

 

willie xxx

 

 

Community Champion

Re: July 2018 Chemo Starters

Hi Ladies
Losing your hair, sadly is upsetting. There's no getting round that unfortunately. But you can take control. I had my hair cut really short and then when it started to shed, I used scarves. Some are brave enough to shave and that seems empowering to a lot of ladies.
I just wanted to say that it is temporary. My hair grew back very quickly...... Weirdly curly!..... And now, 18months on, can nearly pull off a bob.
Hugs
Sue xx
Member

Re: July 2018 Chemo Starters

Hi Shi. Good to hear some encouraging words tonight. I’ve asked about booking on to a LGFB session but there is no availability till November. I’m hoping I’ll be finishing my treatment by then! Finding it hard today because whilst I realise that losing my hair is no biggy in the grand scheme of things, it is still a shock when it just comes out by the handful! Will try and get the rest shaved off tomorrow. It feels really itchy at the moment and I’m hoping that feeling will go once the hair that’s left has gone. I e donated to Little Princess Trust before but my hair isnt long enough this time around,

Thanks for the positive words. Best Wishes xxx
Shi Community Champion
Community Champion

Re: July 2018 Chemo Starters

Hi beautiful 💪💪💪ladies, just a reminder to book your look good feel better sessions through your local Mcmillan centres, its a make-up session with other ladies and professional make up artists and free goody bag of beauty products 😘also please think about donating hair to little princess trust who do wigs for kids with hair donations. Pace yourselves on this journey ladies, keep 💪💪💪and look at those bells in your units, tell it each visit, i’ll Be ringing you soon. Mai7 who’s posted her blog is the angel who took me under her wing on this journey. Us Oct 17 Chemo ladies are on hand if any of you need us, just jump on our thread and let us know ❤️❤️❤️💕💕✨✨✨shi xx
Member

Re: July 2018 Chemo Starters

Hiya Willie,, it just so happens I'm doggy sitting for the next two weeks. We could meet up somewhere pretty like Elvaston Castle and walk the pooches xxx

Member

Re: July 2018 Chemo Starters

Hi all
Hi Kate I’ve also had surgery - bilateral therapeutic mammoplasties then a re-excision and will also need a mastectomy after my 6 months of chemo. I started in June and I’m due my second cycle next Tuesday. I’m having AC then T. I’m also in the June chemo thread but may well be starting taxol with some July starters as my regime is 4 x AC and followed by 4 x T and not 3 FEC and 3 T. Hope all goes well for you next week and if you have any questions please post on here or the June thread. Everyone is always ready to help and share their experiences x
Member

Re: July 2018 Chemo Starters

Hi all -- I am trying to catch up on everyone who has posted since I was last in this thread. As ever, it is so great to hear from everybody about their experiences. And so I thought I should add my report, for those joining.

I am now at my 1-week anniversary of neoadjuvant FEC cycle 1 (29 June PM, so barely made the previous month).

So far, so good, despite the heat -- barely any SEs. I seem to have come off the steroids with minimal weepiness and I haven't had to take anti nausea meds since the required pills ended on Day 3. My chemo nurse suggested that I "get ahead of the nausea" by taking my mandatory 2 pills before breakfast and supper, and take 1 of the "as needed" before lunch. I gave them all a nice 30-45 minutes to settle and they seem to have done the trick. Might be worth asking your nurse about this option. Only small bit of nausea I had was on the night of chemo, and it may have been provoked by the lingering taste of Corsodyl.

I am fatigued -- but cannot work out how much is chemo versus the heat and lack of sleep (first the steroids, now the loo trips). I work from home freelance, so I am just trying to do things at a comfortable pace.

On Day 6 I woke with my scalp tingling, which the Junebugs have observed means the hair is beginning its journey to the bin. I am set for a wig-fitting this Tuesday, but not yet decided if I want one. My hairdresser volunteered to come with me, however, and I know he wants to help out in some way. (He's been cutting my hair since I moved here 9 years ago, and cutting my OH's hair for 25+ years.) I am trying to think in practicalities: come November I might be happy to have a second layer of warmth on my scalp. Plus, I think my hormone therapy on the other side of surgery means my hair will be returning slowly. I stocked up on beanies and some scarves because I think I will use them more often, especially through the early autumn.

Last night was my first temp scare -- I have been taking AM and PM simply because I tend to run a bit cold -- and found I was at 37.6C, which my hospital has decided should get a call to the chemo hotline. I took it 4 times with 2 different thermometers to be sure, then phoned. The on-call onco was with another patient and asked if I could call back in 15 or so minutes. Somehow my temp dropped to 37.2C in the 20 minutes I waited, so I decided to just keep monitoring it in the night during my loo visits. Back to my usual 36.2 this morning. Phew. (I started chemo 10 days after my biateral sentinel lymph node biopsy surgery, and one side sprung a leak in surgery day, so I had a bit of worry, all the more so since I have finished my neutrophil-boosting injections, too.)

Now just back to the SLNB side effects -- the tingling pain in my hands, the pain in my left biceps. By the time I recover I'll be having surgery on the breasts themselves! (All my nodes were negative -- best news in months.) I am hoping that getting back to my Knitted Knockers will distract the nerves and provide some relief.

Take care everyone -- and stay hydrated! I have been aiming for 2 to 3 litres each and every day, given the heat, and that may be helping a lot.
Member

Re: July 2018 Chemo Starters

Hi Sam , I'm Kate and I'm 52. I will also be starting chemo on the 13th ! I was diagnosed in Feb and had several operations and still have to go through a mastectomy at the end of the chemo .  Feeling a bit anxious about next week as I feel so well at the moment . 

 

I wanted to wish you the best for next week ..... we can do this !! 

 

Kate xx

Member

Re: July 2018 Chemo Starters

Morning All,

Warm welcome to Sam and Calista 😊

Reading the posts I found it funny how everyone is telling us we look better with short hair, I thought they were being kind but now being advised to keep it short after it’s all over! I am not a huge fan if I am honest but time will tell, at least it drys with a towel rather than an hour blow drying my thick mop...

Feeling much better after a tough old week but made it and ready for the next round 👊

Had a steady flow of visitors in recent days and much fun was had trying on my wigs by each and every one of them, they are great fun. My grandson only likes the one the same as my own hair as he said it looks like me again and it’s pretty 😥. He is slightly obsessed with just when I am going to be bald and mildly concerned about me picking him up from school like it.. bless him he is only 7 and have reassured him I will never do that so he is happy.

Today my lovely friend is going to teach me to crochet and this I am hoping will stop me internet shopping and produce a lovely blanket for my new grandchild due in September.

I have arranged for my mammogram I had done privately two years ago to be sent to the consultant for a recheck... Was concerned then but told all was fine and now here we are. Maybe nothing was there then but with the MRI stuff now going on I think like you cdc I could have been advised to have an MRI, would have been happy to pay for it myself.

Good luck to all having treatments today and those recovering enjoy the sunshine while it lasts and have a lovely day.

Best wishes

Karen

Member

Re: July 2018 Chemo Starters

Thank you cdc1811. I'm still trying to find my feet on here and I'm looking forward to sharing my experiences to help others in any way I can as well as learning to get through my treatment.
Sam xx
Member

Re: July 2018 Chemo Starters

Thank you Warcol. I have just requested to join.
Sam xx