Hi Willie, I've just finished FECT and I live in Derby too (well Draycott, just outside), if you want to meet up and chat about the chemo etc xxxx
Hello Ladies, I thought i would join the July thread had my first Chemo 20 June all went smoothly. Just felt a bit tired. Had my wig appointment last week, the ladies are so amazing and fun. I know how a lovely wig that i will wear from time. This page is so helpful, and it help me a lot. My second chemo is next week. all the best to all of you.
The gscf injections are usually given in the first week to boost the white blood cells and so help fight infection. The number and availability of these seem to vary from one hospital to another. I had 5, and were very effective. May be worth asking ?
@Karen942 What a tough introduction!
I had a late start (2:30pm appointment, chemo drugs starting around 4pm), and they syringe-pushed my E first, then syringe-pushed my F, then gave me IV bags of the C with saline -- the protocol it sounds as though they're advising for you for your next round. My experience was tMUCH better. My vein was wide open and free flowing, so I was done with my final saline flush and out the door by 5:30pm.
The Friday chemo date is a drag, isn't it? My OH and I used to have "date night" on Friday, then we're usually out for a walk in the country, followed by the pub, one or both days of the weekend. That routine was already rejiggered, of course. I was, though, hoping for a Monday start so that I might have a chance to squeak out 2 old-routine weekends. But after the long wait to start treatment, I took the first date they offered.
Hope the hydration regime keeps you feeling more steady. With the heat, it seems even more essential.
@Karen942 I'm also a 2 May diagnosis, first chemo Friday, 29 June. I am delighted to be starting treatment after all the waiting.
And hello everyone!
I decided I'd join both the June and July chemo threads, as there were a few later folks in the June thread and I found reading that thread from start to finish was enormously helpful in preparing myself for the possible rhythms of the next 3 weeks.
My Tx is 3x FEC, followed by THP -- either 4 or 5 THP, I've was told 5 at consent, but order is for 4, which I'll need to clarify with the oncologist at my next meeting.
I've got bilateral, left is grade 2, 15mm mucinous type ER+ (8), PR+ (4), HER2-; right presented as 2 areas of microcalcification only visible on mammogram -- one is grade 2 IDC ER+ (8), PR+ (6), HER2+, the other is DCIS/LCIS, labeled "pre-invasive" rather than non-invasive given the givens. The right side is 63mm, per the MRI, and the oncologist explained that's for both areas (IDC + DCIS/LCIS) combined. (Still nagging to get a copy of the MRI reading for myself.) SLNB was 0/4 left, 0/5 right -- best news in months.
In any case, Dx that means chemo, then surgery TBA, then (probably) radiotherapy, continuing Herceptin injections, and hormone therapy.
I hope all us July jumpers are doing well today. I feel lucky thus far, just a bit of nausea overnight and hardly any sleep, thanks to the steroids; of course, I'm only 18 or so hours in. I'm glad I start hydrating before cycle 1 -- getting in my 2+ liters of water before and day-of, as well as now -- per advice from the June starters. I think it's helping (though there are a lot of loo trips).
Also relieved when my first neupogen injection this morning went off without a hitch. It's one thing to read about giving yourself a subcutaneous injection, but I'd never done it before. (My mother, who was a nurse, assured me it would be easy... but she was a nurse.) Are any of you getting the injection at your shop? I think some folks get a course of antibiotics, but it might also depend on your regime.
Hi I am another one saying hello from the June thread. I had my first dose on 19th June Next one due on 10th July. However, I am having 4 AC followed by 4 T whereas many people seem to be doing 3 FEC and 3 T. I may well be starting T with many of you July ladies. Do take it easy after your first chemo. I overdid it in the first few days and thought "Well this isnt so bad". Hit a brick wall between days 4-6. Extremely fatigued and what I can only call 'other-worldy'. I was also very depressed. My oncologist thinks it was the steroids I had to take for 3 days after the chemo. They are known to cause severe mood swings in some people and I seem to be one of them - Lucky me!! Have to say after that and once I got the timing right for my anti-sickness medicine, I have been feeling pretty 'normal'. It's good to know that the god awful feeling I had didn't last and I'm going to ask for advice on how to manage it after Cycle 2. The forum is a fantastic place to share the good, the bad and the ugly! I also find It's also a good place to ask questions. Good luck everyone and hope you can enjoy the weekend. xxx
I had a broken sleep, more to do with the heat and a fan as noisy as the large Haddon collider. Felt as normal when I got up, walked the dog (8000 steps). I spoke to the oncology nurse because I'd forgotten to put the Pegfilgistram syringe in the fridge yesterday. He said it was okay.
I went to town to buy some stuff - Movicol laxatives recommended by the nurses as its very important to avoid constipation, SPF 50 (ffs), Jungle spray insect repellent as its important to avoid bites or any entry point for infections - and had my hair cut v v short. My new hairdresser also had a wig for me which she cut to suit me. I was worried it'd look too 'wiggy' but I walked home in it and I think it's fine.
When I got home, I was supposed to give myself the immunity boosting injection but just couldn't do it. Gary offered and tried but I couldn't let him do it. I called my surgery but they had no practice nurses in do I went to the hospital. Took 3 seconds, didn't feel it. I really am a Muppet.
I told John, the nurse, that I feel amazing today and he warned me not to overdo it or even to behave as normal as this is not a normal time. It's a false high because of the steroids and when I stop them tomorrow things will change and its important not to go into that time without energy in the bank. Slow down, basically. Listen up, ladies!!!
As I have to avoid the sun, I had a little read on the sofa which turned into a 2 hour snooze, again the heat more than anything, I think. Anyway, despite what I just said above, the dog won't walk himself and that dinner won't make or eat itself!
Take care my lovelies, I look forward to meeting you all over coming days and weeks.