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July 2018 Chemo Starters

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Re: July 2018 Chemo Starters

Hi Willie, I've just finished FECT and I live in Derby too (well Draycott, just outside), if you want to meet up and chat about the chemo etc xxxx

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Member

Re: July 2018 Chemo Starters

Hello Ladies, I thought i would join the July thread had my first Chemo 20 June all went smoothly.  Just felt a bit tired.   Had my wig appointment last week, the ladies are so amazing and fun.  I know how a lovely wig that i will wear from time.  This page is so helpful, and it help me a lot.  My second chemo is next week.  all the best to all of you.

Member

Re: July 2018 Chemo Starters

Many happy returns Lai67! No steroids definitely a great birthday present. They’ve been the worst side effect for me too. I can cope with the nausea but not the suicidal feelings!! Honestly that’s how bad they made me feel so I hope I won’t need any after my 2nd cycle on the 10th. Hope you’ve had an enjoyable day today and can have a lazy Tuesday. I was 50 last November but wasn’t up to celebrating. I went away to Malaga in March to celebrate with a group of friends all celebrating their 50ths this year. It was wonderful - I found a change in texture in my right breast four days after we returned. As you say ‘such is life’! Still let’s hope to many more years when we can put all this Bc c***p behind us. Onwards and upwards xx
Member

Re: July 2018 Chemo Starters

Thanks Karen , year ahead of you so did manage the big 50 celebrations - fingers crossed for your plans. Definately need things to look forward to.

Lal

Member

Re: July 2018 Chemo Starters

Happy Birthday my lovely 💐

It’s my 50th in a few weeks and had made lots of lovely plans so know how you feel. Not where we thought we would be....
Think we are ok to to be a bit over emotional at the moment , knocked a cup of tea off the landing all over the wall down the stairs, cried ha ha . It’s only paint and I wouldn’t normally think it was such a huge deal. You are not alone.
Make the most of your special day.
Take Care

Karen
Xxx
Member

Re: July 2018 Chemo Starters

So today is my birthday - not quite how I had planned for this year but such is life. Best birthday present is no steroids now until next cycle on 18th- definitely worst se for me - mini meltdown yesterday over spilling a drink because I was so tired. Gave in and had afternoon nap and still got 4hrs last night.
Planning to enjoy a couple of lazy days before back to work on Weds- though i'll work from home for a week and planning to do shorter hours so shouldn't be too bad.

Take care all

Lal
Member

Re: July 2018 Chemo Starters

Oh ok I wonder as the girl opposite was being shown how to do them , maybe my white blood cells are ok. I have 7 days antibiotics to take from day 8 onwards so maybe that’s the difference 🤷‍♀️.

Thank you for putting me straight Sue x
Community Champion

Re: July 2018 Chemo Starters

Hi Karen

The gscf injections are usually given in the first week to boost the white blood cells and so help fight infection. The number and availability of these seem to vary from one hospital to another. I had 5, and were very effective. May be worth asking ?

Sue xx

Member

Re: July 2018 Chemo Starters

I am back already , can I just ask what the injections are for which you do yourself ? I don’t have these and just curious as to what they are for ?
Member

Re: July 2018 Chemo Starters

Hello Again,

Special hello to my BC journey twin Reddi and a warm welcome to Lal 😊

Well feeling much more human today after a tough day and night. Finally got up at 5am after a restless sicky feeling night of it. My legs ache a bit still but turned a corner.

Managed some plain yogurt and honey this morning to take tablets and a small bit of pre prepared homemade soup and feeling ok, just had a nap for an hour so getting through the day 😊
Thank you for all your good wishes and support I am sure this is just the first one and it will get better.
Pleased everything is at least on the move and see each treatment as a step to the final goal.
We have been looking at a little holiday for before my next one so hopefully I will be ok.

Tip of the day cheap ginger and camomile tea from Lidl’s worked a treat with the sicky feeling , added a bit of honey to taste 👍🏻
Gentle pot planting in the shade for me now , god I feel old 🤣
Keep on keeping on we will all get there ❤️

Best wishes

Karen

PS . I live in Southampton never mentioned where I am from 🙄
Member

Re: July 2018 Chemo Starters

@Karen942 What a tough introduction!

 

I had a late start (2:30pm appointment, chemo drugs starting around 4pm), and they syringe-pushed my E first, then syringe-pushed my F, then gave me IV bags of the C with saline -- the protocol it  sounds as though they're advising for you for your next round. My experience was tMUCH better. My vein was wide open and free flowing, so I was done with my final saline flush and out the door by 5:30pm.

 

The Friday chemo date is a drag, isn't it? My OH and I used to have "date night" on Friday, then we're usually out for a walk in the country, followed by the pub, one or both days of the weekend. That routine was already rejiggered, of course. I was, though, hoping for a Monday start so that I might have a chance to squeak out 2 old-routine weekends. But after the long wait to start treatment, I took the first date they offered.

 

Hope the hydration regime keeps you feeling more steady. With the heat, it seems even more essential.

 

All best,

r

Member

Re: July 2018 Chemo Starters

@Karen942  I'm also a 2 May diagnosis, first chemo Friday, 29 June. I am delighted to be starting treatment after all the waiting.

 

And hello everyone!

 

I decided I'd join both the June and July chemo threads, as there were a few later folks in the June thread and I found reading that thread from start to finish was enormously helpful in preparing myself for the possible rhythms of the next 3 weeks. 

 

My Tx is 3x FEC, followed by THP -- either 4 or 5 THP, I've was told 5 at consent, but order is for 4, which I'll need to clarify with the oncologist at my next meeting.

 

I've got bilateral, left is grade 2, 15mm mucinous type ER+ (8), PR+ (4), HER2-; right presented as 2 areas of microcalcification only visible on mammogram -- one is grade 2 IDC ER+ (8), PR+ (6), HER2+, the other is DCIS/LCIS, labeled "pre-invasive" rather than non-invasive given the givens. The right side is 63mm, per the MRI, and the oncologist explained that's for both areas (IDC + DCIS/LCIS) combined. (Still nagging to get a copy of the MRI reading for myself.) SLNB was 0/4 left, 0/5 right -- best news in months.

 

In any case, Dx that means chemo, then surgery TBA, then (probably) radiotherapy, continuing Herceptin injections, and hormone therapy.

 

I hope all us July jumpers are doing well today. I feel lucky thus far, just a bit of nausea overnight and hardly any sleep, thanks to the steroids; of course, I'm only 18 or so hours in. I'm glad I start hydrating before cycle 1 -- getting in my 2+ liters of water before and day-of, as well as now -- per advice from the June starters. I think it's helping (though there are a lot of loo trips).

 

Also relieved when my first neupogen injection this morning went off without a hitch. It's one thing to read about giving yourself a subcutaneous injection, but I'd never done it before. (My mother, who was a nurse, assured me it would be easy... but she was a nurse.) Are any of you getting the injection at your shop? I think some folks get a course of antibiotics, but it might also depend on your regime.

 

All best,

r.

Member

Re: July 2018 Chemo Starters

Hi I have decided to nip into July started though I started on Weds (27th) it feels like July!

Bizarrely feeling glad I have actually started treatment- chemo is my first step (8× fec-t ) then hopefully only WLE if tumour shrunk enough ( apparently currently 6cm x 6cm) then rads.
First got the hint i had bc on 23rd April so it's been a long wait to start . Have had mri & snb ( no nodes involved yay!) But couldn't get out of my head that nothing was being done for the bc.

So far not too bad se - had face flush from the red one the following day which is a bit more unusual.
Found a juice receipe to hep with constipation - spinach, pear and prunes - doesn't taste too bad and definitely worked. Worst thing is the 3am wakeup with steriods - cant wait to finish them tomorrow. Just having to learn to pace myself - have a flurry of activity and then need a sit down.

Hope you all enjoy this sunny day - sitting in the shade. ☹
Member

Re: July 2018 Chemo Starters

Hi I am another one saying hello from the June thread.  I had my first dose on 19th June  Next one due on 10th July.  However, I am having 4 AC followed by 4 T whereas many people seem to be doing 3 FEC and 3 T.  I may well be starting T with many of you July ladies.   Do take it easy after your first chemo.  I overdid it in the first few days and thought "Well this isnt so bad".  Hit a brick wall between days 4-6.  Extremely fatigued and what I can only call 'other-worldy'.  I was also very depressed.  My oncologist thinks it was the steroids I had to take for 3 days after the chemo.  They are known to cause severe mood swings in some people and I seem to be one of them - Lucky me!!  Have to say after that and once I got the timing right for my anti-sickness medicine, I have been feeling pretty 'normal'.  It's good to know that the god awful feeling I had didn't last and I'm going to ask for advice on how to manage it after Cycle 2.  The forum is a fantastic place to share the good, the bad and the ugly!  I also find It's also a good place to ask questions.  Good luck everyone and hope you can enjoy the weekend.  xxx

Member

Re: July 2018 Chemo Starters

Hi All,

Thank you for all your best wishes yesterday 😘

First day check in...

Willie I am really pleased you are feeling so well and have been out and about today that’s fab 😀

All seemed to be going well, by 9am I binned off the cold cap after about 15 minutes , was freezing as the description implies 🤣 and also covered my ears so I couldn’t hear a thing. Wigs will do for me thank you ...

The red E stuff went in fine no problems , thought this is great be out for lunch soon enough. Then came the C stuff, instantly felt unwell nearly passed out and BP dropped , more fluid try again in half an hour, same thing. Ended up giving me the F stuff which was fine and putting the rest of the C in a slow drip which was better. Left at 4.00pm!
I can only compare it to coming round from an anaesthetic , that woozy not quite there feeling with jelly legs.

New mix for next time with a drip rather than syringe.

Anyway at home bring waited on a bit and after lots of water feeling more human, still walking a bit weakly , achy legs but hoping to be ok tomorrow. No sickness though 👍🏻

When my Fridays usually consist of a few G&T’s and a meal out 🍸🍽🙄...

Best wishes to you all
Community Champion

Re: July 2018 Chemo Starters

I couldn't do the injections either Willie! I got a friend/nurse to do them for me x

Member

Re: July 2018 Chemo Starters

Karen942, 

 

I hope it went well, it is scary eh?  Be kind to yourself.

 

Wx

Member

Re: July 2018 Chemo Starters

Another check-in.

 

I had a broken sleep, more to do with the heat and a fan as noisy as the large Haddon collider.  Felt as normal when I got up, walked the dog (8000 steps).  I spoke to the oncology nurse because I'd forgotten to put the Pegfilgistram syringe in the fridge yesterday.  He said it was okay.

 

I went to town to buy some stuff - Movicol laxatives recommended by the nurses as its very important to avoid constipation, SPF 50 (ffs), Jungle spray insect repellent as its important to avoid bites or any entry point for infections - and had my hair cut v v short.  My new hairdresser also had a wig for me which she cut to suit me.  I was worried it'd look too 'wiggy' but I walked home in it and I think it's fine.  

 

When I got home, I was supposed to give myself the immunity boosting injection but just couldn't do it.  Gary offered and tried but I couldn't let him do it.  I called my surgery but they had no practice nurses in do I went to the hospital.  Took 3 seconds, didn't feel it.  I really am a Muppet.

 

I told John, the nurse, that I feel amazing today and he warned me not to overdo it or even to behave as normal as this is not a normal time.  It's a false high because of the steroids and when I stop them tomorrow things will change and its important not to go into that time without energy in the bank.  Slow down, basically.  Listen up, ladies!!! 

 

As I have to avoid the sun, I had a little read on the sofa which turned into a 2 hour snooze, again the heat more than anything, I think.  Anyway, despite what I just said above, the dog won't walk himself and that dinner won't make or eat itself!  

 

Take care my lovelies, I look forward to meeting you all over coming days and weeks.  

 

Wx

 

 

Member

Re: July 2018 Chemo Starters

Thanks ladies!

Willie your post has filled me with confidence and so pleased to hear it’s gone well so far 😀

Off to bed as mine starts at 8.30, off work and having to get up earlier than normal 😳 but hopefully be home by lunchtime.

Best wishes you all

Karen
X
Member

Re: July 2018 Chemo Starters

Good luck Karen, I hope you find it as easy as I have so far.   All the best. 

 

Willie