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July 2017

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Re: July 2017

Oh Angela hun its not bloody fair, im so sorry to hear your news im absolutely gutted that day we met at radiotherapy we were both buzzing about coming to the end of treatments if you hadn't been having tge diep would you have even had this scan? Im furious with our trust the lack if scans after initial op then completion of treatment is just rediculous it needs changing if you need to talk im here hun im always a pm away xxx
This pissing disease makes me so angry but as tge other ladies have said today the treatment is excellent and you are a tough cookie sending you 💖💖💖💖💖💪💪💪💪💪👭👭👭👭👭👭👭
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Re: July 2017

I might feel like I need counselling in the future but for now I’m okay.
I think it helps that I’ve decided this is not a death sentence and there will be something out there to put me into NED and keep me there.
There have been some really big break throughs this year with these new targeted therapies.
Oncologist hasn’t ruled out maybe immunotherapy in the future either.
My bc nurse says she has ladies 10 years on and doing great and they didn’t have access to as many drugs so I’m hopeful. 🤞
Member

Re: July 2017

Thanks tatyana. It’s good to hear you’re doing well on your chemos.
Yes, I rather not be going through this, but I’ll be okay. I can’t wait to start blasting the little b******

Apparently I may not need chemo as my oncologist is hoping to use one of these new cdk46 drugs.
Then hopefully surgery. 🤞
My next ct is booked for Saturday so hoping to have more answers next week. X
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Re: July 2017

Angela, I've just been catching up with this thread, so sorry to hear about your new diagnosis. I was diagnosed with secondaries in January, I've been on a couple of different chemos since then, and at least I can tell you they are a lot more doable than our old friend fec-t! Some SEs of course, but nothing unmanageable, mainly fatigue.
Are you getting some emotional support such as counseling? It's hard to adjust to the new reality but it can be done, but take all the help you can get. You are one strong lady, as we all know! Sending love and hugs.xxx
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Re: July 2017

Yes please Carole. I’ve sent you a pm
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Re: July 2017

Pm me if you want the name of her surgeon as he is world leading and one of a few who can cure st IV liver.
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Re: July 2017

Hey Carole.
Fantastic news about your sister. Thanks for sharing that. How brilliant. I do want to have surgery if possible. X
Member

Re: July 2017

Oh Angela so sorry to hear this.  But you are right, there are some very good drugs to help now. Also surgery. My sister had 15 tumours removed from her liver stage IV.  She is currently no evidence of cancer over 2 years on. 

You've got a great attitude and that helps a lot.  Stay positive hun xxx. Love and hugs,

Member

Re: July 2017

Morning ladies.
Had oncology appointment yesterday and the cancer has spread to at least my liver. Booked in for another ct to find out how much there is and whether it’s gone anywhere else.
Not the best news at 44. Apparently there are a few brand new drugs showing great promise and I’ll have access to these.
I’ve told my hubby I plan on being a medical marvel 😀
Im going to be around for a good while yet and while this news is devastating, I’m feeling quite positive that there will be treatments that work for me. I cope very well with SE’s and I’m good at utilising mind over matter so at least I’ll cope well with any meds. 🙄 x
Shi Community Champion
Community Champion

Re: July 2017

Mishy, some breaking news on any triple negative survivors out there thread from billierule, worth reading darling ❤️❤️❤️Ftf, great news brca clear 👍👍👍💕💕✨✨Shi xx
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Re: July 2017

Fab news about the braca Angela waiting for mine atm 💩 for results will keep you posted, keep that 💪 you had right through the treatment you were a tough cookie then and still are keeping everything crossed for you 💖
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Re: July 2017

Thanks for the positive vibes ladies. It means a lot. I’ll keep you informed.
At least my brca results were negative. So relieved as I was worried for my daughters. X
Shi Community Champion
Community Champion

Re: July 2017

Ftf and mishy ❤️❤️❤️Keep positive my 💪💪💪💪beautiful friends, mishy the waiting for the brca results is 😳😳😳but you will feel like you are in control of things no matter what the results are, it kind of puts you back in control if that makes sense. Ftf, were not having any more of that thank you, it’ll just be something caused by the chemo hammering you had, keep positive ❤️❤️❤️💕💕✨✨✨Shi xx
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Re: July 2017

Oh Angela this is like a roundabout we think its just about time to get off then off it gies again, i really hope its not cancer, and as you say lots of scares which have been just that so thinking positively is the best thing for you atm, i sincerely hope it is a scare and nothing else, if you need to talk i will be popping on x again good luck for Monday xx
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Re: July 2017

Hi Michelle.
Definitely one forward two back. Bloody nightmare. Apparently something on my liver looks like it could be cancer.
Most of us have had scares so thinking positively until I know otherwise.
I’m sure yours will be fine. I think you’d of heard by now if they found anything sinister.
I just got a phone call this afternoon with very little info apart from to say they’ve found something that needs investigation. Not even an appointment in place to discuss it yet.
On the fear train again. 🙄 x
Member

Re: July 2017

Hi Angela haven't got results yet im quite impatient by nature though so im thinking if ringing it will be 2 weeks Thursday so i suppose no news and all that!!!! Sorry to hear about the ct scan and diep, its like 2 steps forward then 3 back some of this isn't it good uck for Monday it bloody hurt on my sore swollen boob x
Member

Re: July 2017

Hi ladies.
Michelle, did you get your results? Assuming all is good 🤞
Mine is on Monday. Not looking forward to it. Apparently there’s something on my new ct scan that needs further investigation before I can go on the diep waiting list. 😳
I knew it wouldn’t be straight forward. Nothing is these days.
Hope everyone is doing well. Xxxx
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Re: July 2017

Hi Angela it was over in a flash but my sore boob really hurt 😨 anyway its done just waiting for the results and results for Braca test, in tge whole feeling alot better these days i hope your scan for diep goes well and you get your lovely new boob
I tell you something our bodies must be so resilient for the battering they took recovery is noticeably getting better each week 👍
Good luck for your mammo too Angela keeping everything x take care x 💖 to everyone x
Member

Re: July 2017

Morning Michelle.
How did the mamo go? Mine isn’t until the 25th now. I have a ct on Tuesday to check if I’m good to go onto the diep waiting list.
Got back from zante on the 7th. It was absolutely wonderful. Two weeks of bliss having nothing to worry about. I managed to put 7lbs on with all of the eating and drinking, but hey ho, I might get a bigger boob out of it. 😀
Lovely that your hair is growing back so well. I was rocking a pineapple look for a while where new hair was sprouting up at the top. I didn’t even realise I’d lost any until it started to grow back.

I hope everyone else is doing well. Tatyana, hoping those meds are still working as well for you.

Xxx
Member

Re: July 2017

Evening ladies hows everyone doing mammo time will be round about now for everyone mines tomorrow 😨
Tatanya lovely how are things with you im hoping you are doing ok 💖
Angela hope the holiday was good and you had some free time from the worry re the mammo mines tomorrow not going to lie im a bit nervous but suppose we all fet the nerves before one, anyway apart from thst things are good enjoying having lots of very thick hair its mostly brown again but there is till a white flash at the front 😨 the grey is only on the ends now strange 🤔 its curly slash wavy haven't cut it yet as i hace a style in mind and with the help of lush shop hair custard it styles quite well i use hair tie things too to tame the top which is shorter than side and back 😂
Lots of 💖💖💖💖 to you all keep staying 💪😚
Shi Community Champion
Community Champion

Re: July 2017

Mishy, I’ve pm’d you ❤️❤️❤️💕💕✨✨Shi xx
Shi Community Champion
Community Champion

Re: July 2017

Hi tatyana is it this week you’ve got over to Greece again, have a beautiful time as I know you will beautiful lady 💕💕💕✨✨✨Shi xx
Member

Re: July 2017

Mishy, taking Ella to the seaside? What a great way to spend the day! Have a wonderful time. I was making sandcastles with our three-year old granddaughter a couple of weeks ago, so I know how much fun you're going to have.
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Re: July 2017

Carole thats fantastic news so pleased to hear that xxx Angela new boobs and a flat stomach you can do it your a 💪 cookie you too Carole sounds like a big op but it will be worth it you did chemo so im sure the op will be very doable to you both my boib is a lot smaller than the other even with the fluid build up and swelling 😨 Tatanya kimi hope you too enjoy this lovely sunshine at the weekend and whos watching the Royal Wedding I'll watch it on catch up taking Ella to the seaside 💖
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Re: July 2017

Carole, that's great news about your liver! What a relief! It's a shame you can't have the implant, but I hope the diep solution will work for you. I knew from the start that a recon was impossible because of the nature of my cancer with inflammatory elements affecting the skin, which was already weak from rads 15 years previously, would you believe! The poor surgeon who did my Mx confessed afterwards (or maybe boasted!) that it was really difficult to stitch me back up!!
Good luck with whatever you choose to do, and hey, cancer free! How good that sounds!
Member

Re: July 2017

Michelle and Carole how brilliant that it’s good news for you both. Time to relax now.

Hopefully the lymphodema will clear up Michelle. 🤞

Carole I’m having a diep. I need to put a little bit of weight on and then hopefully I’ll be ready for the waiting list. I’ve got a fair amount of excess skin from having twins, so can’t wait to have a flat stomach.

I know it’s a more gruelling process than an implant but much better in the long term I think. X
Member

Re: July 2017

Mishy I’m so pleased you had good news on your boob.  Hope the lymphodema is soon better.

 

i too had good news tonight.  My liver lesions are fat deposits.  The original ones have shrunk almost to the point of disappearing and I have a small new one.  It’s the first time I could really say I’m cancer free. 

 

On the not so good side i saw my breast surgeon yesterday and he says my skin is too weak, due to rads, to have an implant reconstruction.  So my choice is limited to a tissue recon such as DIEP or nothing.  

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Re: July 2017

Ah thanks Tatanya yeah its doable and im definitely not going to fret over it how are you Tatanya hope you are still good on the Cape and its doable for you how did the haircut go i haven't been brave enough yet but its starting to get on my nerves i feel bad saying that now i have hair and think back to when i had none it was rubbish xxx
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Re: July 2017

Mishy, I'm so happy to hear this, you must be so relieved! Of course the lymphoedema is a nuisance, but not the worst! Now relax and enjoy yourself! xx
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Re: July 2017

Evening ladies just thought id pop on to let you know that my boob worry is nothing sinister its a breast lymphodema which is basically build up of oedema due to rads he explained the orangey peel thickening in skin is due to the fluid under skin causing the follicles to look prominent im being referred to the lymphodema clinic for now i just have to be careful in terms of lifting too heavy things but he said its not the worst case he has seen just thought i would let you ladies know Carole i hope you are OK thinking about you xxx
Shi Community Champion
Community Champion

Re: July 2017

Ftf, zante is glorious if you get up to alykinas go to the mill bar near the beach and say hi to Julie the owner, she’s lovely and the do a banging greak night 💃🏻💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻Ooopppa 😁😁😁😁💕💕💕✨✨✨Shi xx
Member

Re: July 2017

Good morning ladies.

Kimi I’m so relieved for you. My bc nurse says oncologists scan whenever there is even a minute possibility something could be cancer. She says it’s to cover their own backs. I absolutely agree that a bit of reassurance goes a long way. I find I have to seek it out rather than just being given it freely.

I’ve decided to put my scan on hold until after my holiday. I just really need to go away without any worry hanging over me. I don’t think getting the scan a cpl of weeks later will make any difference to my physical health but it will certainly help my mental health.

Tatyana, great that you’re off to Greece for a week. It’ll be my first time to zante on the 24th. Can’t wait.
I’m not religious, so I’m asking the universe to keep those meds working for you. 👍👍👍

Michelle, I’ll keep everything crossed for your scan. My mastectomy skin is still changing. Still hurts when I lie on that side for any amount of time as well. I’m sure it’ll be nothing. It takes such a long time for our bodies to fully recover from what they’ve been through. I think some changes are to be expected. Doesn’t help when you’re worrying yourself sick though.

Carole, I’m sending positive vibes over to you. You’ve had a scare before and it turned out okay. Here’s hoping they’re just being extra cautious.

Shi, I hope everything is going well for you.

Miserable weather here today, so indoors drinking gallons of tea listening to Cerys on radio 6.
Hoping the sun gets out later so I can swap the tea for a glass of wine and a nice plate of Italian spezzatino alfresco.
Xxx
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Re: July 2017

Kimi forgot to say as well how pleased i am for you that it turned out to be scarring what an absolute relief whst an awful experience for your 1st mammo take care xx
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Re: July 2017

Ooh my typos were terrible in that post 😨
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Re: July 2017

Carole i sincerely hope everything is ok with rhe MRI i will be keeping everything crossed for you its awful when you are waiting for something like that the anxiety is terrible i remember it too well from diagnosis and now feeling it again for my appointment this Wed coming i keep trying to forget about it till then but cant im so worried about it as i have an orange peel area of thickening on breast too 😨 Kimi what an awful time for you too it really doesn't matter what people say when you feel like that does it, i don't think anyone really understands unless they have been through it themselves
Tatanya i am so pleased you are having a holiday between treatment you aee so positive and unbelievably 💪 i hope they keep you on the easy chemo!!! Your attitude is definitely the best one to have about enjoying everything the sun has been lovely fir lifting iur spirits i think im currently having a cuopa in garden listening to the birds and deciding what to do today!! Im trying very hard to distract myself till Wednesday
Angela hoping you are ok and feeling positive about 1st Mammo app its definitely the one i think we must all dread the first one but don't let it spoil your holiday you know what they say about no news and all that! !!
Ladies have a lovely day i will keep you posted how i get on 💖
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Re: July 2017

Hi ladies
Well done Kim and Shi on your food results.
Angela I hope you are doing well and good luck for Monday.
I’ve got my MRI on Monday 14th for
Liver lesions. Getting terrible stress headaches in the meantime 😬
Shi Community Champion
Community Champion

Re: July 2017

Tatyana beautiful lady 😘😘everything 🤞🤞🤞🤞and also a 💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻💃🏻And ✨✨✨✨✨for your results darling. How lovely you’ve got a week in Greece 🌿🌿🍈🍈🍈🇬🇷🇬🇷🇬🇷Enjoy as I know you will 😘😘😘💕💕✨✨✨Shi xx
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Re: July 2017

Kimi,so glad it turned out ok for you. And you too, Shi! It seems everyone gets these scares now and then, it's just something we have to learn to live with!
Kimi, unfortunately I don't get a reprieve from the chemo, I just stay on it until it stops working --which I'll find out after my next scan in a couple of weeks! If it's not working we'll switch to another chemo, which will be IV instead of tablets, so it will interfere with life a lot more! So keep everything crossed for me.
Meanwhile we're off to Greece for a week's holiday, somehow managed to squeeze it in between hospital appointments!
Have a good weekend everyone, and good luck to Mishy, Angela, Carole, and anyone else who is in worryland!
Shi Community Champion
Community Champion

Re: July 2017

Kimi, brilliant news everything ok my lovely 👍👍👍😘😘😘 bit of a 😳😳a couple of weeks ago but got ultrasound and checked out and all ok thanks 😘🤞🤞🤞💕💕💕✨✨✨for everyone with appointments big ❤️❤️❤️To everyone Shi xx
Member

Re: July 2017

Hi Girls. Well, I worried myself silly, turned into “pushy Pauline” & couldn’t stop crying with my BC nurse, who was brilliant & got me a scan appt same week as phone call from Consultant who told me about unclear mammogram. Thank goodness it was fine, scar tissue apparently, but what a week, my husband & I were complete wrecks in scanning room, BC nurse even came with us, bless her. I do think these Consultants should walk in our shoes & think about how they deliver news, a bit of reassurance would go a long way, I know they walk in fear of being sued, but there must be a way of not frightening the pants off us.
Glad your feeling ok on treatment Tatyana, & it will be done soon & you can enjoy the summer. Carole, you know we’ve got everything crossed for you & you get good results & soon & you too Mishy, one of the girls on our group said she was told to buy a wallpaper seam roller & use that to massage her boob, I’m thinking of getting one. Good luck on 14th Feelthefear, be good to go on holiday without it hanging over you, don’t think they are very speedy with results though, usually a couple of weeks. Hope all ok with you Shi?
I’m off to Portugal again in June for a week, it’ll be the first holiday without treatment/results or imminent appt looming, hope I can relax this time.
Enjoy the nice weather, thinking of you all & still holding hands.
Much love. Xxx
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Re: July 2017

Carole im sorry about your ct results im keeping everything crossed for you 💖 Angela yeah 1st mammo coming up is daunting mine is due around same time as you i had to poke them in back so to speak as i discovered by accident yesterday after call from bcn that my request card had gone walk abouts screening were blaming bcs secretary so i rang her today and as it turns out the request had been sent out and disappeared!! She was very helpful and within 15 minutes rang me back to say it was sorted and should be having it in June as they have a back log at least i have a clinic appointment which has been arranged by bcn and im sure if they are concerned i will have an ultrasound or something 😨
So yes a few of us are in worryland again but hopefully we will al be alright
Carole big hugs for you i will be thinking of you Tatanya wise words from you lovely to hear from you take care ladies we are expecting sunshine this Bank Holiday weekend so enjoy xxxx
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Re: July 2017

Hi Carole, sorry to hear you didn't get the results you wanted. Fingers crossed, it may turn out to be nothing. But even if it is something, they've got treatments lined up for whatever happens. And we're here for you. Meanwhile enjoy the precious sunshine.
It's true that waiting and worrying seems to be our new normal. I wonder will we ever get used to it? I've got a scan in a couple of weeks after which we decide whether I stay on this nice easy chemo or switch to another. I'm trying to just enjoy this time and let the future be what it will!
Love and hugs to everyone.xx
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Re: July 2017

Morning Carole.

Sorry to hear that you’re in the waiting game again as well.
Given that there are only a few of us on this July thread, and one of us is always waiting for uncertain results, I think this is probably our new normal.

I think we just have to try and assume everything is fine, unless we’re told it’s definitely not, or we’d worry ourselves to death. 😳
On a brighter note, enjoy the rest of your break and maybe a lovely glass of Somerset cider in the sunshine. 🌞
Member

Re: July 2017

Hi ladies
I’ve not been able to reply on here for a while but hopefully working again now. I see some of us are still having issues and worrying about appointments and send hugs to you all.
I’ve just got my 3 months on CT results on liver and not what I wanted. They seem to have found another suspect area. Got to have another MRI as soon as possible.
I’m enjoying a week in Somerset at the moment xx
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Re: July 2017

Hey ladies. I hope everyone is doing well.

Kimi, sorry you’re in that horrible waiting/worrying place yet again. I’m sure it’ll be nothing. Like tatyana says, they’ll be being extra cautious with our past.
I’ve got my first mamo on May 14th.
The fear monster is creeping in already. I go away for two weeks on May 24 and I’m even considering changing my appointment to when I get back so I can enjoy my holiday without any bad news or uncertainty hanging over me. 😳
It’s bloody awful this merry go round we seem to be on.
Tatyana, it’s good that you’re feeling well on the treatment.
michelle, hope you’re doing well and your boob issues are nothing. No the wonder we’ve got dodgy bits and bobs on our boobs and non boobs. We’ve been hacked and burnt to bits. 🙄
I hope you got sorted with your meds Shi.

Here’s hoping we will all be enjoying some lovely sunshine soon. Apparently there’s a heatwave coming mid month. Wouldn’t that be fantastic.

Take care everyone. Xxx

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Re: July 2017

Hi Kimi,sorry to hear you're in worryland again. It's pretty common for mammos to be unclear when you've had surgery in that area, I would guess they are just being careful, which is good. Fingers crossed for you. You sound like you are doing really well, it's great to hear from people getting on with their lives. And yes short hair is great! Having mine properly cut tomorrow for the first time since chemo, quite nervous about it!!
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Re: July 2017

Kimi lovely to hear from you, i am keeping everything crossed for you re the ultrasound my mammo is due soon, am waiting for app for some breast isdues (some swelling and pitting) bcn wants me to come to clinic to be checked i hope your daughter is ok she must have got a fright and you but im sure it will be post treatment stuff sending you big hugs
As you said we may not come on as often but still here for each other
July ladies sending you all my 💖 and best wishes xxx
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Re: July 2017

Hello Lovely Friends. Glad all seems to going well for you all at the moment. I’m doing ok, had bad back & tummy pains, scan was all clear & think with help of an osteopath is slowly improving. Had my second Zolendronic infusion & apart from tired was ok after it, was told it’s only the first one that makes you feel rough, & it seemed to be true. Got results of my mammogram today, unclear result so now got to have an ultrasound, had a meltdown earlier & my daughter phoned Mamillan helpline bless her, what a lovely lady on the phone, told me it’s not unheard of & can be scar tissue from lumpectomy, but started the worry yet again & here we go again with more worrying & waiting. Have ditched the wig & have found short hair quite liberating, doesn’t get in your face when the wind blows or frizzy when it rains, don’t think I’ll ever have it too long again. Good luck to you all & hope it’s still onwards & upwards, & whilst we’re not on this forum so much now, still here holding hands. Much love to you all. Xxx
Shi Community Champion
Community Champion

Re: July 2017

Tatyana 😘😘😘glad to hear you are feeling quite well on the new chemo 😘😘😘 the 🌞🌞🌞🌞has been glorious I hope everyone’s 😎😎😎😎enjoyed it 💕💕✨✨Shi xx
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Re: July 2017

Tatanya lovely to hear from you i hope the treatment is doing its stuff but glad to hear that you are doing ok your last post was very heartfelt and inspiring thank you x ladies hi just checking in hope you are well Angela hope you enjoyed your family celebrations my own were good last week sons 21st first time in a long time i felt so happy it was lovely to get all the family together really enjoyed my time at Seahouses and Bamburgh it was just what the doctor ordered went for long beach walks relaxed and just enjoyed being there its a place we like to visit x