Member
Posts: 20
Registered: ‎09-06-2017

Re: July 2017

Hi Jo, thanks for the positive message, it is good to here 😊 a question I forgot to ask at the hospital, are we ok to drive while getting treatment? I'm worried about this chemo brain I've read about on here so wouldn't want to make any mistakes behind the wheel, probably being paranoid xx
Member
Posts: 269
Registered: ‎16-03-2017

Re: July 2017

Thanks Jo.  I think I'll take something soft to go between me and the chin strap.

Member
Posts: 541
Registered: ‎15-04-2017

Re: July 2017

Hi Jo. Thanks for taking the time to pop in and give us an update. I hope things continue as well as they are.
I keep telling myself it's mind over matter. 🤞🤞
Member
Posts: 5
Registered: ‎18-06-2017

Re: July 2017

Hi July starters,

 

I started FEC-T chemo on 23 June, and thought a postitive story from June might be useful here...

 

I am on day 5 and I think things aren't as bad as I'd led myself to believe.  I managed the cold cap - the cold was OK, but the strap under my chin was tight!  Very few side effects - day 4 I felt a bit fuzzy in the head, but very manageable.  It's no worse than a bit of a hangover.  I'm feeling a bit of a fraud!! People keep asking me how I am, and I'm feeling fine.

 

Good luck all!

Member
Posts: 541
Registered: ‎15-04-2017

Re: July 2017

Hi everyone. It's good to see that I'm not alone as a July starter. Just wish none of us needed to be here.
Im also waiting for the gene test. Four of my mam's sisters had bc. One died when it spread to her brain in her 30's. However, she was misdiagnosed for two years and this was 35 years ago, so things have moved on leaps and bounds since then.
Mishy, lovely you have a grandchild to look forward to. My daughter gave birth four days after my op to a gorgeous girl. At the time I was scared of bonding with her as I was convinced the bc had spread and didnt want to break my heart more than it already was. It sounds silly now, but I lost at least two weeks of bonding while I was waiting for results. 😳
Never again. I'm living for today. X
Member
Posts: 269
Registered: ‎16-03-2017

Re: July 2017

I've just been and collected my wig but I'm going to try the cold cap just because I'm scared of the small chance of permanent loss. Wig looks ok.
Also saw oncologist this morning and all fit for chemo on Friday. PICC in tomorrow.
What a fun life I lead.
Member
Posts: 20
Registered: ‎09-06-2017

Re: July 2017

What a lovely thing to focus on Mishy18 😊
I definitely do not want to try the cold cap I don't deal well with the cold lol, I get migraines so don't want to risk triggering them. I have already cut my hair short to prepare myself and it felt good taking that bit of control xx
Member
Posts: 1,854
Registered: ‎29-04-2017

Re: July 2017

Starting week July 10th had a call yesterday to say app being made and should get it in post probably 10th July but will need pre assessment First!! Fec t for me too 6 rounds been urged to try cold cap due to small links to permanent alopecia with this treatment not looking forward to that bit but raring to go so I can put this behind me and get back to Work!!!! I have my first little grandchild due in October and don't want to miss out on cuddles!!! A little girl what a lovely goal to get me through my treatment to be my daughters birthing partner my onc said!!!
Member
Posts: 20
Registered: ‎09-06-2017

Re: July 2017

He Carol, both my mum and gran have had BC but at an older age, I'm 40 so that's why they are testing me, if it comes back positive I will get a double mastectomy and also my tubes down below removed xx
Member
Posts: 269
Registered: ‎16-03-2017

Re: July 2017

Hi Maryann and welcome to the group.
My sister has had breast cancer twice and had the BRACA test done a few years ago because there's lots of family history. It came back clear but I've still got it!
Why does your result determine surgery?
Member
Posts: 20
Registered: ‎09-06-2017

Re: July 2017

Hi everyone, I'm starting next Wednesday the 5th, getting FEC-T, I've had the gene test done due to history so waiting for the results of that to determine whether I get surgery or not.
I'm eager to get started as all this waiting has been driving me potty, good luck everyone ❤ xx
Member
Posts: 541
Registered: ‎15-04-2017

Re: July 2017

Thanks for the info.
I had a full lymph node clearance so they can't use my right arm, but here's hoping they have plenty to work with on the left. I dont really like the idea of having a line inserted throughout treatment, but nurses usually struggle to take blood etc, so I have a feeling I won't get through chemo without one.
Member
Posts: 269
Registered: ‎16-03-2017

Re: July 2017

Hi Angela
Yes I've been diagnosed since February.
My veins are a bit small and now I've only got one arm to chose from thanks to ANC to the other. Chemo makes your veins worse too. It seems to take 3 attempts every time they cannulate me so we've gone for the PICC. It's quite a common procedure and saves needles and cannulas whilst in.
Member
Posts: 541
Registered: ‎15-04-2017

Re: July 2017

Hi Carole.
Yes, I've been hanging around here since early April when I was first diagnosed. It seems forever ago.
No one has mentioned a pic line to me? Doesn't sound very nice. I wonder if I'll get one when I go for me chemo ward visit on Monday. Ahh the joys.
Angela x
Member
Posts: 269
Registered: ‎16-03-2017

Re: July 2017

Hi feel the fear

ive seen your posts over the months.  Welcome to the July starters, although strictly I'm a June (30th). 

 

Think I'm going to try cold cap, but I'll see how it goes.

Member
Posts: 269
Registered: ‎16-03-2017

Re: July 2017

Hi Clare, you have the same name and spelling as my daughter.  I too start my chemo this Friday.  Getting a PICC line fitted tomorrow. I'm having FEC-T, what are you having?

 I'm eager to get on with the chemo, this has all been going on too long for my liking, but I'm not really totally recovered from surgery yet.

Member
Posts: 541
Registered: ‎15-04-2017

Re: July 2017

Hi Carole.
I'm due to start on July 4. The gloves are off and I'm ready for battle with chemo as my closest ally.
I'm going to try the cold cap. I've had my hair cut and I'm now rocking the pixie look. I'm hoping because there's less weight in it, less will fall out. I've got a wig consultation on Monday as a back up. My bc nurse says most people who cap lose around 40%. That will do for me, so it's worth a try.
Member
Posts: 21
Registered: ‎18-04-2017

Re: July 2017

[ Edited ]

Hi Carol nice to meet you I start my chemo on Friday for twelve weeks so I fall on June and July group. I've decided not to use the cold cap if I'm going to loose my hair any way x

Member
Posts: 269
Registered: ‎16-03-2017

July 2017

Hi
I'm just starting the July group for all of us lucky people about to start our chemo.
Bet you're all raring to go!
Who is going to try the cold cap?