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Re: July 2017

Kimmi
Good luck at the doctors tomorrow. Hope it is useful and brings you some peace of mind.
My feet are still very painful. I have to limit my walking a bit which is annoying when I’m trying to lose weight for my Diep/muscle fix op. I have orthotics from podiatrist now but they are difficult to fit in shoes and very uncomfortable.
It is so hard to lose weight on letrozole. I’m keeping to around 1200 cals a day and eating healthy stuff but hardly losing anything.
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Re: July 2017

Kimi

 

Hiya lovely to hear from you but sorry you have been sffering with anxiety.  Sending you loads of hugs for your apt tomorrow, I am sure that your friends and OH are right if they were concerned they would have you in.

 

I am doing well, at the Docs tomorrow for my six week (although it is 7) post op check up and with any luck she will give me a fit note to start back to work in December.  I will only be doing 3 hours a day but it is a start, I have to say I am ready to go back and get some normality/routine, lets hope when i go back I wont regret it!!

 

Sending you huggles

 

Helena xxx

Member
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Re: July 2017

Hi Kimi lovely to hear from you sorry to hear about the anxiety its horrible isn't it i have had a few blips with it here and there i hope you are feeling OK apart from that worrying about bc can be awful and we can take alot of reasurring to persuade us ohr fears are just that, rhe only thing i find didtracts me is a long walk but this slippy weather is stopping me i cant fall 😨 so im trying to find a different distraction
Shi i don't blame you for making up for last year theres nothing like recovering from a chemo lock down to make you a bit shopping bonkers and why not!!! Yiu enjoy 🎄🎄🎄 you and your family deserve it 💖
Shi Community Champion
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Registered: ‎11-10-2017

Re: July 2017

Hi kimi 😘😘I’ve been to spirit and soul Eaac, you can have 4 free sessions with Macmillan, it’s very good, you spend time with horses, it has been very good and might be worth you looking into ❤️❤️😁😁😁I’ve been 🤪🤪🤪🤪🤪🎄🎄🎄🎄🎄✨✨✨✨kimi, wheeeeee ✨✨✨✨✨✨✨because I was on lockdown from Oct to feb during chemo, I’ve gone proper 🤪🤪🤪🤪🤪🤪ftf hope you’ve had some news about a trial 😘😘 mishy hope you mum had a nice birthday ❤️❤️It’s always difficult at birthdays, Christmas, anniversaries, Father’s Day ❤️❤️Tatyana sending you ✨✨✨❤️❤️❤️Beautiful lady 💕💕💕✨✨✨Shi xx
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Posts: 57
Registered: ‎13-09-2017

Re: July 2017

Hi Lovely Ladies

I’m sorry it’s been so long since I’ve been in contact, I’m struggling with anxiety & am trying to get on with my life, but with all the aches & pains etc I’m not succeeding really.  Got an appointment with GP on Weds as I contacted my BC nurse who spoke with Oncologist about rib/liver pain, reply was “ not BC related, contact your GP”, although before speaking to Onc BC nurse thought I’d be having a scan, let’s hope I’m worrying unnecessarily! I’m also getting headaches and feel “woozy”, do feel a bit cast adrift if I’m honest, but friends & OH tell me they would be keeping an eye on me if they thought it necessary, again, let’s hope they’re right. Enough about me, I’m so sorry to hear of your continuing problems, this BC lark is so **bleep** you’d think after all we’ve been through there would be some peace by now, but our strength still continues to be challenged.

Sending you loads of love & luck Angela, I hope your appointment with Onc brings you a plan of action. Michelle, good luck with your Op’, all procedures come with scary warnings, none of us would go ahead with anything if we didn’t have faith in our surgeons, hope it brings you some relief.

Tatyana, glad your treatment is not too bad to tolerate and hope it’s finished soon, and good news on the sugar front, I’ll be getting the chocolate out soon, not so keen on mince pies!

Hope you’re feeling better Carole, you don’t need that do you, my foot has only improved slightly, I bought my own insoles and am now wearing very unattractive trainers with them in, but they do help. Hope you get your Op’ date soon.

Shi & Helena, hope your both doing well, not spending too much on the shopping Shi!!

Sending you all lots of love and hand holding, thank you as always for being there “Booby Friends”.

Kim xxx

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Registered: ‎16-03-2017

Re: July 2017

Angela I have sent you a PM x
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Re: July 2017

Mishy

 

DOnt worry about the typos xx Ha ha just realised mine with the capital O, I am awful with the word the I always type it as teh, except on this occasion because I really thought about it.

 

Angela

 

Just sending you hugs because xxxx

 

Had a wonderful evening out with two of my best girlfriends, it was lovely, the first time I have been out in the evening for a couple of months, but knackered now but oh so worth it and I can spend the day resting tomorrow.

 

Love to you all xxxx

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Re: July 2017

Typos awful numb fingers xx
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Re: July 2017

Angela re second opinions my onc who was the speaker at my where now course at Maggies told us during his talk it is always good to be a pest so to speak and if you feel your not happy with anything to go for a second opinion!!! He is excellent i put my trust in him and reseearched him when assigned him nothing is too small for him if you are worried about stuff he will see you in his following clinic when i had my problems with chemo he insisted he wasn't going to throw the towel in and allowed me to go ahead on the very expensive Abraxane as i was TN abd wanted the best for me when i have asked what would i do if my cancer came back and i can't have the drugs due to being allergic and he insisted there would always be a drug there for me in his cupboard if i needed it he is head of oncology in my hospital maybe you could look him up???
Anyway i don't blame you for doing this yes you trust your onc but to be honest im like you and would do everything in my power to get the very best as that is what you deserve, you are very strong Angela and im sure youv do whatever you have to do and if that mwans a second opinion so be it 👍
Yes the power of this forum is fantastic you ladies were more supportive when i needed over some i have known for many years not their fault they just didn't get it bug higs to you and yours 💖💪
Big hugs July girls Shi and Helena those pants were just what was needed xxx
Member
Posts: 541
Registered: ‎15-04-2017

Re: July 2017

Hey ladies.
Thank you so much for my gold hot pants. Hubby has had the day off today and read a few of your messages. Yous have had him in tears. Now he realises the power of our online friendship. 😍 I’m so lucky. Xxx
Carole, thank you for trying to gather info for me on Facebook. I really appreciate it. My oncologist says my nets have grown that quickly and extensively that for now surgery would be out of the question. 🙁
I asked him about surgery when I was first diagnosed and he said I didn’t need it. 🙄 I think I trust him, but who knows if we’re making the right decisions.
I’m busy asking for 2nd opinions via email to specialists, also on twitter and the American site inspire. I’ve actually just had a reply from the only woman ever to be cured of bc through immunotherapy. So I’m holding out hope. Xxx
Member
Posts: 269
Registered: ‎16-03-2017

Re: July 2017

Hi Angela, I’ve asked Emma about her trial and will let you know.
Sorry if I’ve asked before but is it “just” liver secondaries? If so I know of a surgeon who can remove them. He took 15 tumours out of my sisters liver nearly 3 years ago (stage 4 BC) and she is fine now. I think I wrote to you about him a while ago.

I’m ok. I retired 31st October and have had a horrendous cough, sore throat and headache since. Also had tummy problems and usual bad feet etc, so just feeling a bit rough. Nothing to worry about I hope.
Had my CT angiogram last week to check I’m ok for Diep so I’ve got the usual scanxiety, hoping I don’t hear from anyone as they also check for secondaries in liver etc.
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Re: July 2017

Shi

 

Found a pair of gold hotpants for Angela xx

 

gold hotpants.jpg

Community Champion
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Re: July 2017

Angela

 

I am so sorry that your results have not been what you and we all hoped for.  There are ladies on the secondary thread who are on capecitabine who will be able to help with any questions you might have, regardless of where you post we are all here for you my dear and everything crossed that this and the potential trial will work for you

 

I am sure it is the same with all of us when I say I wish there was something I could do or say to change what is happening to you but you know we are always here for you.  Sending you loads of hugs

 

helena xxxx

Shi Community Champion
Community Champion
Posts: 3,247
Registered: ‎11-10-2017

Re: July 2017

Ftf ❤️❤️❤️Sorry to hear it’s not the news you hoped for 🤞🤞there is a trial you are able to get on yeo we’ve got hold of your gold hot pants 😘😘👭👭💕💕✨✨✨Shi xx
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Registered: ‎15-04-2017

Re: July 2017

Thank you for the well wishes ladies. I know yous have my back. 😘
I’ll look at that link tatyana. What a week we’ve had eh. 🙄
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Registered: ‎30-05-2017

Re: July 2017

Carole, lovely to hear from you, sorry you've been feeling rough. We're all here for each other whether we're actively posting or not. Group hug!!🤗🤗🤗🤗🤗
Member
Posts: 764
Registered: ‎30-05-2017

Re: July 2017

Angela, so sorry to hear this. There's a very lively thread on here about capecitabine with some lovely ladies and good info, I don't know if you've found it, it's https://forum.breastcancercare.org.uk/t5/Treatments-and-medical-issues/Xeloda-Capecitabine-Your-Top-...
I was on cape myself for a few months but then it stopped working for me, but it's not too hard to tolerate and it's done wonders for some people, so well worth a try.
Hang on in there my dear, you're a fighter if ever there was one. Sending hugs by the shed load.
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Re: July 2017

Oh Angela im really sorry you didn't get the result you hoped for im pleased they have started you on another drug straight away and i am keeping everything crossed for you re a trial you so deserve it you are right bloody Cancer i could have used a different word but wouldn't have allowed it on here you know what i mean though x please know im thinking about you you are such a special person sending you my 👭♀️
Carole lovely to hear from you don't worry about not replying individually we know you are 👭 i hope you are ok and nothing too troubling xx
Member
Posts: 541
Registered: ‎15-04-2017

Re: July 2017

Nice to hear from you Carole. Sorry you’ve not been feeling to well. Nothing serious I hope.
I’d be interested to know what bc your Facebook friend has. I wonder if she’s ER positive HER2 negative like me. I think I trial is my only hope at this point. X
Member
Posts: 269
Registered: ‎16-03-2017

Re: July 2017

Best wishes to all you lovely ladies with your treatments and problems.  Sorry not replied individually, been feeling a bit rough lately.  I always read your comments and think of you, even if I don’t say so xx