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July 2017

Shi Community Champion
Community Champion

Re: July 2017

Ftf 👭👭❤️❤️Darling mishy have great time at Christmas jumper day, I’m pleased to see better prices on them this year all round, they were silly prices last year, I think the retailers should dontate at least half of every jumper sold to save the children fund, that would boost things even more.💕💕✨✨Shi xx
Member

Re: July 2017

Ah these tyoos have never improved have they 😂😂😂😂
Member

Re: July 2017

Singing reindeer sound lovely Shi i hope you are enjoying everything Christmas i know you love it!!! Ellas nursery Christmas fair tomorrow and Christmas jumper day i got her a lovely one, im pleased to see 5he lush shampoo is working its magic for everyone how lovely tho think my little find could help so many of ojr lovely ladies get Lush thick hsir back Angela i still use it my hair is growing like mad now im having it cut again after the holidays as the girl was busy
I will be thinking of you tomorrow got your back as always sending the positive vibes and hand holding 👭
Tatanya sending you my love too hope you are keeping well and treatment is still not giving you any blood problems 💃💃💃 just incase
Carole 👭 for you too lovely
Kimi hope you are enjoying the Christmas build up not long now ladies
Missa you are in my thoughts too if you are reading sending you 💖👭💪
Well ladies for now xxx
Member

Re: July 2017

Yes Shi, we saw the singing reindeers, they’re absolutely fabulous. 😍
I’m still using the lush shampoo. It’s the only shampoo my mam will use now too. It’s bloody marvellous.
I hope we all have a good weekend. I’m off for bloods this morning, then oncologist appointment tomorrow. Hoping he has the results of my tumour profiling and that they open more doors for drug options.
Dreamt last night that docs had it wrong and it was pepper on my liver not mets. 😂😂 dear me. !
Xxxx
Shi Community Champion
Community Champion

Re: July 2017

Carole 😘😘 This is our warm cozy hot blanket place where we all can wrap ourselves up with each other and our loving friendships 😘😘where we come to when we have 😳😳 times, 😁😁😁times 🤪🤪🤪times 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻Times and any other time ❤️❤️. Ftf, so happy you had lovely time in Keswick and garden centre, was the big unicorn still there? And did you see the singing reindeer outside near the santaland bit? I hope you did they were lovely 💕💕tatyana darling sending big big ❤️❤️To you and mishy your red dot lush shampoo is going down a storm with threads 👍👍everyone is getting good thick hair back 👍👍hope Ella’s getting excited for Christmas 💕💕love to everyone Shi xx
Member

Re: July 2017

Carole you are not whinging you are just sharing your feelings so don't apologise this is what this site is for x Angela pleased you enjoyed Keswick its beautiful there and i admire your spirit as I don't think i could do it im Scared of heights too!!!!!!xxx
Member

Re: July 2017

I’m hoping it’s good news for you Carole. It’s absolutely crap that you’re having to deal with this again.
It’s that awful feeling of dread. I know it so well. It makes it difficult to think positively. Rads cause all sorts of problems and if you’ve had a cough for weeks that could be the cause of the shadow. It doesn’t mean it has to be cancer. I had bits and bobs on my lungs which the docs thought may be cancer. They weren’t.
Never feel bad about talking about your fears. We’re all here to support each other. Xxx
Member

Re: July 2017

Thank you Angela, Michelle and Shi. Angela I’m glad you enjoyed Keswick, one of my favourite places and beautiful walking.

This latest news has floored me. Angela you’re right I have had two liver scares which they said was chemo damage and a lung nodule that disappeared. This one just seems so scarey though.
I know I’m whinging to the wrong people here as you are all doing well dealing with your own traumas, but I really hoped I’d have at least a few years respite before this came back to haunt me. I don’t feel up to dealing with it now.
I just have to hope and pray that it’s just rads damage. 😥xx
Member

Re: July 2017

Afternoon ladies.
Carole, hold tight. You’ve been in a similar situation before with your liver and it turned out to be nothing sinister. I’m hoping with everything that’s the case this time. 🤞🤞🤞🤞

Michelle. Thanks for sharing the love. It’s the most important thing in the world isn’t it. Xxxx

Shi I took your tips in Keswick. I also went to castlerigg stone circle and pressed my liver against the rock that looks like the boss. 😀
the garden centre. OMG. How amazing. I could of spent a fortune. Hubby wanted a giant polar bear. 😀 I’ve decided I’m going back to Keswick in January to do a spot of fell walking. Terrified of heights so catbells it is.
I hope everyone else is doing okay. We haven’t heard from tatyana for a while. Sending you my love if you read this. Also Kimi and missa. Xxx
Member

Re: July 2017

*Carole *
Member

Re: July 2017

Carile the positive vibes hand holding and virtual hugs ciming your way 💖👭💖 im keeping everything crossed for you stay 💪
We are here for you lovely lady xxx
Shi Community Champion
Community Champion

Re: July 2017

Carole 🙏🙏🙏🙏🙏and ❤️❤️❤️❤️❤️And ✨✨✨✨✨for you and 👭👭👭👭👭and a 💃🏻💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻💃🏻The 💃🏻💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻Bloods dance from may17 works wonders on everything which is why I’ve sent to you tooo 😘😘💕💕✨✨✨Shi xx
Member

Re: July 2017

Hi girls
Please send me some good vibes or prayers. I’ve had a call from GP to say there’s a shadow on my lung on cancer side and something on my rib on X-ray I had on Friday . I have had a cough for 6 weeks. Got to go back tomorrow for another X-ray.
Hope you’re all doing ok. Sorry I’ve not replied to your individual comments. I struggle with keeping up on this forum but do think of you all xx
Member

Re: July 2017

Wiuld have been better without the typos 😂😂😂
Member

Re: July 2017

Sending my lovely Booby mates a 👭💖 and huge hug today as Christmas is drawing close putting up tge tree did it for me a lump in my throat no tears though!!! im feeling all kinds of strange emotions i never knew were inside me they must have been buried deep inside but the strongest which feels like its bursting to get out is a feeling of overwhelming love for my kids and family
I wonder is this what happens to everyone who has had a bc diagnosis??
You ladies of course are never far from my thoughts too my fabulous strong courageous booby mates just wanted to ahare my feelings with you all 💖💖💖💖👭👭👭👭🌟🌟🌟🌟
Shi Community Champion
Community Champion

Re: July 2017

🤣😂🤣😂only kidding, just wanted to make everyone 😁😁😁 although sue from my thread found some interesting baubles for her work tree 🤣😂🤣😂💕💕💕✨✨✨Shi xx
Member

Re: July 2017

😂😂😂😂😂😂 why not 😨🌟👍
Shi Community Champion
Community Champion

Re: July 2017

🤪🤪🤪🤪mishy 😁😁😁😁shall I glitter my Mary too 😂🤣😂😂😂💕💕✨✨Shi xx
Member

Re: July 2017

Enjoy Keswick bloody lovely it will be lovely and festive atm 👍
Shi love your positivity it is fab only you could have glitter in your Doris!!! With a twinkling top 🌃🌃🌃🌃🌃🌟🌟🌟🌟🌟🌟
Shi Community Champion
Community Champion

Re: July 2017

Ftf, I’ve pmd you 💕💕💕✨✨✨Shi xx
Member

Re: July 2017

Bingo hair and twinkly top sound absolutely fabulous Shi. 😍😀😀 I’ve been wearing a few twinkly tops myself. 😀 you’re right, a bit of tinsel should hide the trays. 😂
Well I’m off to Keswick for a few days. Fancy getting away from it all and enjoying a few walks and good food that someone else cooks. Hoping to find some lovely xmas presents too.
I hope everyone is well. Xxx
Shi Community Champion
Community Champion

Re: July 2017

Ftf 😘😘glad your meds are better ❤️❤️ Go with the tray idea 👍👍you can just cook and throw then, if you put loads of tinsel on the table you can nestle the trays in there no one will see the trays 👍 mishy darling 😘😘glad you’ve got a plan and someone who sounds like they know what’s what, always a comfort when you feel safe in their hands 😘😘had my glitter in my ‘bingo’ hair today at work ✨✨✨✨✨and twinkly top ✨✨✨✨as noddy said it’s chhhhrrrriiissstttmmmmaaasssss 🎄🎄🎄🎄🎄🤪🤪🤪🤪💕💕✨✨✨✨Shi xx
Member

Re: July 2017

Hmmm Jamie’s gravy. I’ll look into that.

I had a massive moan at everyone on Sunday while clearing the dinner dishes away. I told them all I wasn’t going to make xmas dinner. For a while I had them believing we were going for a curry instead. 😂

I LOVE to cook but absolutely hate the clearing up. It’s horrible, especially when you’re stuffed. They all sit chatting round the table while I run around like a loon. My mam offers to help, but to be honest she just gets in the way and does it all wrong. 😂 there’s no pleasing me sometimes. Hubby says I like being a martyr. 🤔😂

I’ve decided I’m going to prep everything xmas eve and use foil trays etc that I can just throw away. Then there’s just plates cutlery and glasses for the dishwasher.

I’m doing great on the meds. Much better than the last regime. I feel slightly light headed but that’s it.
Yes, we should meet up when the weather picks up. That’ll be lovely. X
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Re: July 2017

Hi Angela yes we sre frosty too i need to get ine ASAP i have the decs up just not the tree Ella won't leave her tree alone!!! But is is a lovely cosy feeling when the tree goes up winter soups and stews in order
Im going to make some Jamies Christmas gravy at the weekend to freeze so its mot last minute
How are you feeling Angela hows the treatment have you many Se i hope not, enjoy your tree my friend we must have that catch up after the xmas when the weather improves and ehen you are up to it xx
Member

Re: July 2017

Morning Michelle.
Good you now know what the plan is. Hopefully by this time next year you’ll be pain free.
There’s frost on the garden this morning so it’s defi time you had your tree up. Ella will love it.
I only paid £30 for ours for our local garden centre. 😍 I love it. Makes the house all cosy as well. X
Member

Re: July 2017

Evening everyone im now on waiting list fir surgery probably a couple of months 😠 as he wants to make sure i have not had radiotherapy for over a year apparently it can hinder healing also need to take some bone meds as im osteopenia pleased i had the dexa scan oh the joys, anyway i now know what im having done a 3 level decompression from the back of neck basically hes going to be widening the space in spine canal by removing boney spurs etc so no more supervet for me 😨 he does it on the dogs 😨
Feeling festive some of decs up no tree yet xx
Member

Re: July 2017

Fab im sure you will get good results too 👍 and as you say thete really is no harm approaching another onc for 2nd op they might be able to help with a trial too i have no doubt in my mind that you will get one as you are very clued up and are strong willed!!! Cuddles with your Grandaughter im sure she loves too but yes babies can be quite hard to look after as the needs lots of attention im sure she enjoys the cuddles you give though she will feel the love 💖
Ive got to sort my tree out been getting decs in and some new lights just need a tree that would help haha!!!!
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Re: July 2017

Haha. Ella sounds absolutely lovely. Good that’s she’s into decorating so soon. 😂

It’s rubbish when you can’t handle them on your own for whatever reason. I feel like I talk about our miles all the time but never our gorgeous little Rosalind, his baby sister. The most I could have her on my own is a cpl of hours. I just never know when that absolute drug exhaustion is going to kick in. Not that I nap, but I just worry I won’t be able to give her the attention she needs. When she’s a bit bigger it should be better.
I feel great on the new drug. Better than on the letrozole and palbociclib. Unfortunately, I’d already had my zoladex injection for the month before I got my results. Gutted as it means I’m having hot flushes for bot all.
I’ve got a feeling this drug is going to work. 👍
I’m sitting waiting for my tree to arrive. 8ft was the biggest I could find. I don’t care if the neighbours call me, it’s going up tonight. 😀😀😀
Enjoy your time with Ella. Xxx
Member

Re: July 2017

Morning ladies Angela how lovely enjoy that grandson of yours grandchildren are definitely yhr best medicine of all i hope you are feeling a little after last week and your new meds are ok to tolerate, we are sitting Ella at daughters tomorrow Oh is taking Tuesday and the off to help as i can't lift her but still enjoying having Granma time shes a cheeky monkey bren pulling wall paper of caught her yesterday 😂😂😂😂
Member

Re: July 2017

Morning ladies.
Kimi, good to hear from you. If your docs say your pains aren’t bc related then I’d believe them. Pointless wasting time worrying if you shouldn’t be. I know it’s easier said than done. Our brains go into overdrive and most aches and pains turn out to be nothing. I don’t blame you for trying to get on with your life and put bc behind you. I wish I could.
The headaches and woozy sound like anxiety. I’ve always suffered from it and get the same symptoms. Long before bc was on the scene.

Anyway, I’ve got my grandson’s here so I best rush off. He’s very demanding. 😀
Hugs to you all ladies. Here’s hoping the weather improves. It feels like we’ve had 40 days and nights of rain. 😳 xxx
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Re: July 2017

Kimmi
Good luck at the doctors tomorrow. Hope it is useful and brings you some peace of mind.
My feet are still very painful. I have to limit my walking a bit which is annoying when I’m trying to lose weight for my Diep/muscle fix op. I have orthotics from podiatrist now but they are difficult to fit in shoes and very uncomfortable.
It is so hard to lose weight on letrozole. I’m keeping to around 1200 cals a day and eating healthy stuff but hardly losing anything.
Community Champion

Re: July 2017

Kimi

 

Hiya lovely to hear from you but sorry you have been sffering with anxiety.  Sending you loads of hugs for your apt tomorrow, I am sure that your friends and OH are right if they were concerned they would have you in.

 

I am doing well, at the Docs tomorrow for my six week (although it is 7) post op check up and with any luck she will give me a fit note to start back to work in December.  I will only be doing 3 hours a day but it is a start, I have to say I am ready to go back and get some normality/routine, lets hope when i go back I wont regret it!!

 

Sending you huggles

 

Helena xxx

Member

Re: July 2017

Hi Kimi lovely to hear from you sorry to hear about the anxiety its horrible isn't it i have had a few blips with it here and there i hope you are feeling OK apart from that worrying about bc can be awful and we can take alot of reasurring to persuade us ohr fears are just that, rhe only thing i find didtracts me is a long walk but this slippy weather is stopping me i cant fall 😨 so im trying to find a different distraction
Shi i don't blame you for making up for last year theres nothing like recovering from a chemo lock down to make you a bit shopping bonkers and why not!!! Yiu enjoy 🎄🎄🎄 you and your family deserve it 💖
Shi Community Champion
Community Champion

Re: July 2017

Hi kimi 😘😘I’ve been to spirit and soul Eaac, you can have 4 free sessions with Macmillan, it’s very good, you spend time with horses, it has been very good and might be worth you looking into ❤️❤️😁😁😁I’ve been 🤪🤪🤪🤪🤪🎄🎄🎄🎄🎄✨✨✨✨kimi, wheeeeee ✨✨✨✨✨✨✨because I was on lockdown from Oct to feb during chemo, I’ve gone proper 🤪🤪🤪🤪🤪🤪ftf hope you’ve had some news about a trial 😘😘 mishy hope you mum had a nice birthday ❤️❤️It’s always difficult at birthdays, Christmas, anniversaries, Father’s Day ❤️❤️Tatyana sending you ✨✨✨❤️❤️❤️Beautiful lady 💕💕💕✨✨✨Shi xx
Member

Re: July 2017

Hi Lovely Ladies

I’m sorry it’s been so long since I’ve been in contact, I’m struggling with anxiety & am trying to get on with my life, but with all the aches & pains etc I’m not succeeding really.  Got an appointment with GP on Weds as I contacted my BC nurse who spoke with Oncologist about rib/liver pain, reply was “ not BC related, contact your GP”, although before speaking to Onc BC nurse thought I’d be having a scan, let’s hope I’m worrying unnecessarily! I’m also getting headaches and feel “woozy”, do feel a bit cast adrift if I’m honest, but friends & OH tell me they would be keeping an eye on me if they thought it necessary, again, let’s hope they’re right. Enough about me, I’m so sorry to hear of your continuing problems, this BC lark is so **bleep** you’d think after all we’ve been through there would be some peace by now, but our strength still continues to be challenged.

Sending you loads of love & luck Angela, I hope your appointment with Onc brings you a plan of action. Michelle, good luck with your Op’, all procedures come with scary warnings, none of us would go ahead with anything if we didn’t have faith in our surgeons, hope it brings you some relief.

Tatyana, glad your treatment is not too bad to tolerate and hope it’s finished soon, and good news on the sugar front, I’ll be getting the chocolate out soon, not so keen on mince pies!

Hope you’re feeling better Carole, you don’t need that do you, my foot has only improved slightly, I bought my own insoles and am now wearing very unattractive trainers with them in, but they do help. Hope you get your Op’ date soon.

Shi & Helena, hope your both doing well, not spending too much on the shopping Shi!!

Sending you all lots of love and hand holding, thank you as always for being there “Booby Friends”.

Kim xxx

Member

Re: July 2017

Angela I have sent you a PM x
Community Champion

Re: July 2017

Mishy

 

DOnt worry about the typos xx Ha ha just realised mine with the capital O, I am awful with the word the I always type it as teh, except on this occasion because I really thought about it.

 

Angela

 

Just sending you hugs because xxxx

 

Had a wonderful evening out with two of my best girlfriends, it was lovely, the first time I have been out in the evening for a couple of months, but knackered now but oh so worth it and I can spend the day resting tomorrow.

 

Love to you all xxxx

Member

Re: July 2017

Typos awful numb fingers xx
Member

Re: July 2017

Angela re second opinions my onc who was the speaker at my where now course at Maggies told us during his talk it is always good to be a pest so to speak and if you feel your not happy with anything to go for a second opinion!!! He is excellent i put my trust in him and reseearched him when assigned him nothing is too small for him if you are worried about stuff he will see you in his following clinic when i had my problems with chemo he insisted he wasn't going to throw the towel in and allowed me to go ahead on the very expensive Abraxane as i was TN abd wanted the best for me when i have asked what would i do if my cancer came back and i can't have the drugs due to being allergic and he insisted there would always be a drug there for me in his cupboard if i needed it he is head of oncology in my hospital maybe you could look him up???
Anyway i don't blame you for doing this yes you trust your onc but to be honest im like you and would do everything in my power to get the very best as that is what you deserve, you are very strong Angela and im sure youv do whatever you have to do and if that mwans a second opinion so be it 👍
Yes the power of this forum is fantastic you ladies were more supportive when i needed over some i have known for many years not their fault they just didn't get it bug higs to you and yours 💖💪
Big hugs July girls Shi and Helena those pants were just what was needed xxx
Member

Re: July 2017

Hey ladies.
Thank you so much for my gold hot pants. Hubby has had the day off today and read a few of your messages. Yous have had him in tears. Now he realises the power of our online friendship. 😍 I’m so lucky. Xxx
Carole, thank you for trying to gather info for me on Facebook. I really appreciate it. My oncologist says my nets have grown that quickly and extensively that for now surgery would be out of the question. 🙁
I asked him about surgery when I was first diagnosed and he said I didn’t need it. 🙄 I think I trust him, but who knows if we’re making the right decisions.
I’m busy asking for 2nd opinions via email to specialists, also on twitter and the American site inspire. I’ve actually just had a reply from the only woman ever to be cured of bc through immunotherapy. So I’m holding out hope. Xxx
Member

Re: July 2017

Hi Angela, I’ve asked Emma about her trial and will let you know.
Sorry if I’ve asked before but is it “just” liver secondaries? If so I know of a surgeon who can remove them. He took 15 tumours out of my sisters liver nearly 3 years ago (stage 4 BC) and she is fine now. I think I wrote to you about him a while ago.

I’m ok. I retired 31st October and have had a horrendous cough, sore throat and headache since. Also had tummy problems and usual bad feet etc, so just feeling a bit rough. Nothing to worry about I hope.
Had my CT angiogram last week to check I’m ok for Diep so I’ve got the usual scanxiety, hoping I don’t hear from anyone as they also check for secondaries in liver etc.
Community Champion

Re: July 2017

Shi

 

Found a pair of gold hotpants for Angela xx

 

gold hotpants.jpg

Community Champion

Re: July 2017

Angela

 

I am so sorry that your results have not been what you and we all hoped for.  There are ladies on the secondary thread who are on capecitabine who will be able to help with any questions you might have, regardless of where you post we are all here for you my dear and everything crossed that this and the potential trial will work for you

 

I am sure it is the same with all of us when I say I wish there was something I could do or say to change what is happening to you but you know we are always here for you.  Sending you loads of hugs

 

helena xxxx

Shi Community Champion
Community Champion

Re: July 2017

Ftf ❤️❤️❤️Sorry to hear it’s not the news you hoped for 🤞🤞there is a trial you are able to get on yeo we’ve got hold of your gold hot pants 😘😘👭👭💕💕✨✨✨Shi xx
Member

Re: July 2017

Thank you for the well wishes ladies. I know yous have my back. 😘
I’ll look at that link tatyana. What a week we’ve had eh. 🙄
Member

Re: July 2017

Carole, lovely to hear from you, sorry you've been feeling rough. We're all here for each other whether we're actively posting or not. Group hug!!🤗🤗🤗🤗🤗
Member

Re: July 2017

Angela, so sorry to hear this. There's a very lively thread on here about capecitabine with some lovely ladies and good info, I don't know if you've found it, it's https://forum.breastcancercare.org.uk/t5/Treatments-and-medical-issues/Xeloda-Capecitabine-Your-Top-...
I was on cape myself for a few months but then it stopped working for me, but it's not too hard to tolerate and it's done wonders for some people, so well worth a try.
Hang on in there my dear, you're a fighter if ever there was one. Sending hugs by the shed load.
Member

Re: July 2017

Oh Angela im really sorry you didn't get the result you hoped for im pleased they have started you on another drug straight away and i am keeping everything crossed for you re a trial you so deserve it you are right bloody Cancer i could have used a different word but wouldn't have allowed it on here you know what i mean though x please know im thinking about you you are such a special person sending you my 👭♀️
Carole lovely to hear from you don't worry about not replying individually we know you are 👭 i hope you are ok and nothing too troubling xx
Member

Re: July 2017

Nice to hear from you Carole. Sorry you’ve not been feeling to well. Nothing serious I hope.
I’d be interested to know what bc your Facebook friend has. I wonder if she’s ER positive HER2 negative like me. I think I trial is my only hope at this point. X
Member

Re: July 2017

Best wishes to all you lovely ladies with your treatments and problems.  Sorry not replied individually, been feeling a bit rough lately.  I always read your comments and think of you, even if I don’t say so xx