I ve just sent a join request to the facebook page, hope you got it.
I start chemo on july 14th . I m having 3 cycles of EC and then doxetaxal (probably mis-spelt!) I had surgery on May 31st so am quite glad of the break as I m not fully out of pain from the surgery and not sure I d want to cope with chemo on top of that.
Anyone else having EC? Or already started it?
Anyone at Christies Manchester?
I'm booked on to a 'look good, feel better' session on Tuesday as my breast canncer care nurse really recommended it to me. This is the website: www.lookgoodfeelbetter.co.uk
Day 3 of chemo and feeling better than I thought but very lacking in energy and a bit headachey (perhaps not helped by teenage daughter no. 2 arriving home a bit the worse for wear this morning from a party)!
Hope everyone has a good day.
hope this doesn't create more confusion, but as promised I have started a Facebook group called Breast cancer care July 2017 chemo starters. It is a closed group, so only those n the group will be able to see your posts.
Certainly I hope this thread continues, but personally I find it easier to post and reply or add photos to facebook.
please ask if you struggle to join or find the FB group. I'm not that techie so hope I've set it up right. The cover photo is of pink roses!
Glad your first cycle was ok. Mine was too and like you I just feel a bit fuzzy headed today. Didn't sleep at all last night, possibly because steroids taken at 3pm. I was very tired by 8pm but still couldn't sleep, but not unusual for me.
For the benefit of anyone not started yet, I'll give you a summary of my first of 6 FEC-T. Started off with choosing cold cap and then nurse sprayed a bit of water on my hair followed some lovely conditioner. Actually the same salon one I use at home, donated by someone to hospital. Then on with the cold cap as it needs to cool down for half hour before drugs start. Whilst waiting for this I had a saline drip connected to my PICC and was given steroid tablets and anti sickness. Nurse changed my PICC dressing which had been fitted 24 hours earlier and was getting very sore. At this point we discovered I'm allergic to the dressing and skin had gone red with a blister, burst by dressing removal. Painful having it cleaned but arm is much more comfortable with a sensitive dressing (looks like cling film).
Cold cap now ready and I'm coping with the cold easily. Worst part was the chin strap being tight and restrictive. Don't plan on eating your lunch wearing cold cap. It didn't have any bad effects on me, not even a headache and I sat in my tee shirt throughout.
The nurse sat with me and chatted whilst pushing the three drugs through. I didn't feel anything.
All done after an hour or so and then I had to wait a further 90 minutes of scalp cooling.
Cold cap does make it a much longer and more uncomfortable process, but not painful and no bad effects for me. If it works I'll keep on with it. If it doesn't I've got a wig and lots of headgear ready.
Good luck to everyone who has not started yet and don't worry it's not to bad.
i hope your first chemo session went well yesterday. It was my first one yesterday too and I had felt very apprehensive but it wasn't as bad as i had anticipated. Only 7 more cycles to go! I am feeling slightly fuzzy headed but ok at the moment- how about you?
I did try the cold cap (despite the fact that I am a migrane sufferer) - it was bearable but I'm undecided whether to continue with it or not. I have already ordered a gorgeous wig from a lovely lady based in London who i can definitely recommend.
I'm trying to keep everthing as normal as possible for my 4 children but it isn't always easy is it?
best wishes to everyone,
I start FEC chemo next Thursday 6th July and having PICC line in on the day before. Feeling quite apprehensive!
Good luck for your first one today Carol and yes I would love to join a Facebook group if you set one up, great idea!
Hugs to all
Is anyone interested in joining a Facebook closed group for July chemo starters. If so I will try and start one, unless someone else wants to do it.