Tatyana sorry about your unfortunate results. I know how you feel. Since they told me I have a liver lesion I am becoming an emotional wreck. Not confirmed as secondary yet. I’m having MRI next Friday to diagnose, but don’t know if it’s likely to be anything else. Oncologist did say it would be unlikely to grow with FEC T and was in a strange place for a met, but I don’t seem to get much luck with my diagnosis.
its hard to live with the thought of not getting over it. 😥I’m nearly a year in from diagnosis and had mentally thought it would take a year to get over. Now I feel like I’m back to square one with diagnosis, worry and tests, only now it’s more serious. xx
been to see oncologist again today for CT results. Not good news. I have a lesion in my liver and they don’t know what it is but it has grown there in the last 6 months. Oncologist says it is in an unusual place for a met as it’s right near the bile ducts, which also makes it very difficult to get at. Also says he would be surprised if a cancer has grown during the aggressive chemo I’ve had. Could be something else, don’t know yet. Got to have MRI to diagnose. Wish me luck xxx
Hi CK, I had a mastectomy after chemo, so not quite the same as you, but I guess the general rules are the same! How long are you expecting to be in hospital? I'm guessing it will probably only be one night, so you don't need to take much stuff with you, but do remember to take any moisturizers etc that you are using to cope with chemo side effects, lip balm, etc. They will probably tell you to remove all makeup and nail varnish before the op, this is so the anaesthetist can see what colour you are! However, I'd lost all my hair due to chemo and asked if I could still keep my eyebrow pencil on, they were happy with that. Also they let me wear one of my sleep caps -- I don't know whether they removed it for the op, but anyway it was still on when I came round.
So, take a sleep cap, headscarf, wig, or whatever you are using if you've had hair loss. Take clothes that you can unbutton rather than things that you have to take off over your head, because it will be very difficult to get your arms up over your head for a few days! Take pyjamas that button up -- although they didn't actually let me wear mine, they insisted I wear a hospital gown for the first night.
You'll probably have a drain in when you wake up, at least for 24 hours, possibly more, depending on your hospital. So a dressing gown with big pockets is a good idea, so that when you are walking around the ward, you can put the drain bottle and tubing in your pocket, it's convenient and relatively hygienic! Otherwise you could take a shopping back with longish straps so you can hang it on your shoulder.
Take your phone and make sure it's charged up beforehand as it may be difficult to reach a charging point if you're stuck in bed! You might want to take soft drinks and sweets to suck in case you get a dry mouth (but only after the op, of course, nil by mouth before!).
Basically, if there is anything that is making your life more comfortable with ongoing side effects from chemo, remember to take it with you! And remember to take a lot of patience and a sense of humour!
Hi Typical Me
ive not seen your name in here before, so wonder if you are new to the group. Just to let you know that I have a Facebook group of 44 lovely supportive ladies. If you want to join us it is called Breast Cancer Care July 2017 Chemo Starters (but you don’t have to have started chemo then! )
Hi ladies hope you don't think me rude jumping in just wondered what yours and Carole original diagnosis were as there's no profiles on this site. I never asked figures but being aggressive grade three doubt they'd be so good. Many thanks. X
Carole, I think 62% sounds excellent. Don't forget that they are talking 10 years, and after 10 years your chances go back to being pretty much the same as anyone else's. And don't forget also that a certain proportion of people will be dead in 10 years' time anyway -- oops,that sounds a bit harsh!
I'm biased, because when I had my first cancer diagnosis in 2002, the number they gave me was, would you believe, 62%! At the time, we discussed chemo but decided against it, because the oncologist said it would be about 60-62% without chemo or 62-65% with, so it wasn't worth the side effects and other risks for only a marginal possible benefit. So after the surgery and radio, I had zoladex for two years, tamoxifen for five years (concurrently) and then letrozole for five years (total 10 years). I was in excellent health for 15 years before getting my second diagnosis, which is supposedly unrelated to the first and just bad luck (though nobody can positively rule out that it was the return of an old enemy in new clothing, so to speak!).
So what I want to say is, 62% is what I had, and it was good! Congrats! But it's tough that they didn't have the radiologist's report. It's so frustrating when you don't get all the information that you should get.
great that you have clear margins, but as you say, more waiting. Hope they decide soon for you.
The radiologist hadn’t done the report so oncologist couldn’t confirm anything. He did have a look at my images and said it looks ok, but I still need to go back in a week or two. So can’t celebrate yet. He is arranging genetic testing and zolendronic acid infusions for me. I asked what my chances are for surviving and he said 62% for 10years, following surgery, chemo, radio and taking hormone therapy for 10years. 😕. Not sure if that is good? Sort of hoped it would be more 75-80%, but for now I’ll just be happy if they say I’m clear and don’t need more treatments. xx
Mishy, well done! Enjoy the good emotions, and just ride the bad ones -- we've all had to learn to do that a bit. It will take a while to get your head together, but at least you can say goodbye to daily hospital visits and all that goes with it!