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Re: July 2017

Hello lovely ladies have you all had snow yet we have it looks lovely but it's starting to freeze so I can't get out and about incase I fall 😨 before I get surgery still on the list but my symptoms seem to be stable just a waiting game took advantage this morning before it freezes over and had a lovely walk got my ct on Sunday morning then onc 4th with the results of that fingers crossed I'm going to take my onc a hairband for a joke!!! I'm going to pop in before hand to Maggies as they are having a mindfulness drop in might come in handy!!!!!!!!
Anyway enough about me! Kimi lovely to hear from you and sending you all big hugs and positive vibes
👭👭👭
Shi Community Champion
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Re: July 2017

Hi kimi 😘😘fantastic news about your clear X-ray 👍👍hope you are in the mend after your tumble is so easy to loose balance from a chair, hope work have now got you a set of small steps? Is it me or is January flying? I’ve never known a January whizzz by like this one. Sending big ❤️❤️❤️❤️❤️And lots of ✨✨✨✨✨to you all 👭👭👭👭😘😘💕💕💕✨✨✨Shi xx
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Re: July 2017

Hi Lovely Ladies and Happy New Year.

Sounds as though we all had a good Christmas, can’t believe the amount of work it all took and now it’s all done, decs are back in their boxes and back in the loft, does make the house look tidy eh?

So pleased with the good news stories, long may it continue, Angela, you are amazing, so pleased your new meds’ are working and with more in the arsenal, go get ‘em girl. & Mishy & Carole, thank goodness results are good, although all this worry does nothing for our wellbeing. Hope you’re recuperating well Helena, and Shi, I’m with you next Christmas, going with the easy version, too much work for it to be demolished in minutes! My x-ray came back clear, still have the discomfort under my ribs, but reading about your experiences think I’ll have to put it down to rad damage, just wish there was more aftercare in my area.

We had a couple of days in the New Forest just before New Year, lovely seeing the ponies and donkeys roaming free, Mark, my OH now wants to live there! 

Back at work now, managed to fall backwards off a chair shutting the waiting room window yesterday, hurt my bum (it’s got plenty of padding!) and banged my head and worst of all my jaw hurts, must have clenched my teeth, suppose I work in the right place (dentists) if I need something done. I find I still get quite tired, thank goodness it’s only three days, but it does give me some normality, hope I don’t always have to rely on that, don’t want to work forever!

Anyway, onwards and upwards Lovely Ladies, look after yourselves, as usual thank you all for being here, good luck with appointments etc, holding hands very tightly still.

 

Love Kim xxxx

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Re: July 2017

Ftf 😁😁😁😁😁blooming wonderful darling absolutely blooming wonderful 😁😁😁😁thanks for update ❤️❤️❤️💕💕💕✨✨✨Shi xx
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Re: July 2017

Lovely news Angela. Well done. xxx
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Re: July 2017

Great news Angela absolutely fantastic news 👍👭
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Re: July 2017

Quick update ladies as my phone is about to die. Bloods including liver are all back in normal range so even better sign that cape is working.
I have the ATM gene. They have a trial for this once cape stops working so all very good news.
Yes I have some appointments at the bobby robson Michelle. I’ll let you know when my next one is. Xxxx
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Re: July 2017

Mishy just realised predictive text changed pm’d you to pms 🤣😂🤣😂🤣😂you’d have given me a 🖕if I’d pms’d you 😂🤣😂🤣😂🤣😘😘💕💕✨✨✨Shi xx
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Re: July 2017

Mishy, I pms you yesterday 😘😘but know what you are like for looking in your box 🤣😂🤣💕💕✨✨Shi xx
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Re: July 2017

Carole I think that's what my onc is coming up with I asked the Same as you about it wasn't there in Feb (last chest x-ray and bone scan) anyway it's the senior radiographer who has called the shots with the scan onc says to have it as it will be clearer but in his experience he's not convinced its anything else I trust him explicitly and I'm pleased I rang him, I will never get complacent as we know to be vigilant I'm lucky really as I have heard other ladies struggle to get taken seriously and were never told about what to look out for xx
I'm pleased though you got the results you were hoping for xxx
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Re: July 2017

I am so pleased you enjoyed your trip sounds absolutely wonderful I never realised you were having treatment at freeman I'm keeping everything crossed about your trial x is it always there where you go I could meet you there if you are there soon and we could have a cuppa also Maggies is just over the road Angela you should pop in it's a lovely place if you have appointments and stuff you can use the centre before and after instead of sitting in the hospital it really relaxes you and everyone is amazing there there's lots of people on hand if you need the physiologists people that help with money issues etc most people go to get away from the clinical environment when in between apps bloods etc xxx
Enjoy your curry tonight got your back too for today 👭💖
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Re: July 2017

Morning Michelle.
If your onco says he’s pretty certain it’s the rads, then I’m pretty certain it will be. They don’t put themselves on the line like that unless they’re sure. They just have to be very careful with us and leave absolutely no room for error.

We were away with family (including the grandkids) and also two of our friends and their 3 children. It was absolutely lovely. Plenty tears of laughter, which is just what we needed.
Off to the bobby robson in a minute to find out if there’s an update on my potential trial, then oncology appointment, then hopefully off to the chemo ward to pick up my cape. Going for a curry tonight, so at least we have something to look forward to. Xxx
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Re: July 2017

Mishy my lung shadow has stressed me out all over Christmas and NY but GP and radiologist did say at the start they thought it was rads damage. I didn’t really believe that because I’ve had a horrendous cough for 2 months and this shadow didn’t show up on numerous previous CTs and X-rays. When I said to BCN how come it wasn’t there before, she said that the rads keeps acting for ages and scarring develops over time.
Certainly I’ve always been told that ribs can be affected by rads.
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Re: July 2017

Thanks for the 👭💖 Everyone xx
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Re: July 2017

Hi Angela yes I remember it's looking as if it's some kind of damage to the rib from radiotherapy and surgery my onc was pretty confident but the radiographer is unsure so he has called it with the scan I won't tell my kids till I know for certain
I hope you had a great time when you were away was it just family or friends too its lovely getting together just spending time with loved ones is the best thing ever x thank you for thinking about me Angela too you are so selfless xx 👭💖
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Re: July 2017

Michelle. Just logged on and saw your post.
Remember, I had swelling around ribs a cpl of months ago. It’s gone now. Was nothing to do with my mets, it’s the bloody radio. I’m sure yours will turn out the same. Once bc gets it’s nails into us every single thing is an horrendous worry. We’ve got your back. Xxxxxx

Carole, so relieved for you. New boobies for 2019. 🥂🥂🥂🎉🎉🎉
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Re: July 2017

Mishy, I'm so pleased to hear this, I've been thinking of you and wondering how you'd got on. When I got the results from my CT scan a couple of weeks ago there was some fluffiness as my onc put it, on my lungs. Again she wasn't worried as the radiotherapy had been directly in the middle of it and she said it was from that and it sounds as if it's the same for you xx

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Re: July 2017

Mishy

 

that is so reassuring from your onc, they are the experts and he sounds so so sure that it is rads, however it is good that they are making sure with the CT scan, a friend of mine had something similar and it turned out that it was as a result of the rads as well.

 

Sending you hugs

 

Helena xxx

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Re: July 2017

Hi girls quick update I saw onc who isn't massively concerned I still have to have the ct but he seems to think it's from radiotherapy but because a senior radiographer has requested the ct I should have it and he will see me once the results are in he did go as far as to say he would eat my hair band if he was wrong very reassuring thank you all for your support this forum is such a special place 👭💖👍
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Re: July 2017

Mishy, just wanted to let you know that I was thinking of you xx