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July 2017

Member

Re: July 2017

Oh Angela im really sorry you didn't get the result you hoped for im pleased they have started you on another drug straight away and i am keeping everything crossed for you re a trial you so deserve it you are right bloody Cancer i could have used a different word but wouldn't have allowed it on here you know what i mean though x please know im thinking about you you are such a special person sending you my 👭♀️
Carole lovely to hear from you don't worry about not replying individually we know you are 👭 i hope you are ok and nothing too troubling xx
Member

Re: July 2017

Nice to hear from you Carole. Sorry you’ve not been feeling to well. Nothing serious I hope.
I’d be interested to know what bc your Facebook friend has. I wonder if she’s ER positive HER2 negative like me. I think I trial is my only hope at this point. X
Member

Re: July 2017

Best wishes to all you lovely ladies with your treatments and problems.  Sorry not replied individually, been feeling a bit rough lately.  I always read your comments and think of you, even if I don’t say so xx

Member

Re: July 2017

Angela, so sorry to hear it’s not the best news.  Onwards with new treatments.  Keep your chin up 🙂.  One of my friends in my Facebook group has just started a new trial at the Marsden for her liver secondaries.  There are lots of new trials around so hope they have something to help you.  Sending hugs xxx

Member

Re: July 2017

Morning ladies.
News as I expected. Drugs aren’t working and it’s spread throughout my liver. 😳
Starting me on capecitabine today and looking for a clinical trial. My tumour profiling results are due back soon so hopefully that will help give us some answers. Bloody cancer. 😡 xxx
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Member

Re: July 2017

Thanks Helena i wind myself up sometimes not always the best way to deal with things!!!! As Angela says you were there in April when diagnosed for me too and reassured ne back then if i recall aometimes the mind tends to wander!!
Angela hey thanks you are right about fear its horrible isn't it ive only just over a week till app so im sure he will sort me out!!
Anyway enough about me!!! Angela i hope that you are managing to distract yourself before your appointment tomorrow keep thinking about Christmas thats what I'll be doing i don't think the rain helps it kind of makes us abit house bound i go crazy when im not distracted!!!!!
Its my mams birthday tomorrow so im going to spend the night with her watch a film and get a Chinese 👍 she feels funny about her birthday since we lost dad don't blame her really it must be hard he always spoiled her rotten 💖
Its his birthday soon would have been 70 💖
I have neen trying to decide whether or not to get a real tree this year too Angela mine is on its last legs literally (one of them has to be gaffer taped on) it's a lovely tree but nearly as old as my youngest!!!! Im just worried I'll finish a real one off!!!
Hand holding and hugs going with you tomorrow Angela 👭👭♀️
Michele x
Member

Re: July 2017

Nice to hear from you Helena. I’ll never forget how you helped scrape me up from the floor last April when I was diagnosed with my primary. Thanks for that. 😀

Michelle, please don’t beat yourself up about being scared. Who wouldn’t be.
Cancer does a lot of things but it doesn’t make you bulletproof from future fear. Bad news is still bad news, fear is still fear. Just remember that your grit and determination will see you through your recovery once it’s done and dusted. And you’ll no longer have to live your life worrying that one wrong move could have terrible consequences. Xxx
Community Champion

Re: July 2017

Mishy

 

Mate just sending you a hug thats all, you are amazing you will get through this and it sounds like you have one of if not the best surgeons looking afer you.

 

Helena xxx

Shi Community Champion
Community Champion

Re: July 2017

Mishy 👭👭👭my lovely mate ❤️❤️Totally agree with tatyana don’t be too hard on yourself and get that 🖕mishy famous 🖕out and give it what for, you know you can 😘😘love you all very much song on the jukebox is ‘for good’ from the musical wicked for everyone (tatyana think you love this musical if memory serves me) ❤️❤️❤️Sorry I don’t know how to upload to the thread 💕💕✨✨✨Shi xx
Member

Re: July 2017

Thanks Mishy Shi and ftf for your lovely positive vibes, it's so nice to have friends here who really get it! Mishy, don't be hard on yourself, you are totally right to be scared because it sounds....scary! But you are in very good hands and it'll be worth it. And we have all learned ways of coping with fear...in between the occasional meltdown! Just focus on that stocking for your gorgeous Ella! Sleep well everyone and keep that fear monster in his place - underfoot! 👠
Member

Re: July 2017

Also forgot to say before as i slightly went off tangent i hope there is a trial available that you can get onto keeping on their case x
As you also know as Shi says we are in your corner with the hot pants virtual hugs and 👭👭👭 and just here 👭♀️
Member

Re: July 2017

Hi Tatanya im pleased to hear that they aee putting you on a different regime of treatment im sure the rads will zap the 💩 out of it x i was thinking about you this morning and had everything crossed for you im pleased your lungs are stable the palitaxel is that the weekly one i remember a lady i was having treatment along side with was on that and she coped really well with it, sending a 💃💃💃💃💃💃💃 for your bloods so they behave for you lovely news about your freind x
Angela im sending you the positive vibes for Friday its awful waiting for any kind of results so i wish you the very best for your appointment and will be asking the Angels to look after you,
i sincerely wish you girls were not having to go through any of this its so unfair and your positivity and relisliance is fantastic your really are troupers x i was giving myself a check in regards to my neck and impending op after an absolutely rediculous meltdown last week i need to remember that having dealt with bc that anything aside from cancer should be something to be thankful for but i wish the doctor hadn't scared me about this op but in hindsight i know i need to have it im living on a very weak tight rope and accident or fall could mean immediate emergency surgery, if can feel my arms getting more weakness i keep dropping things and wake up with dead arms so when i see him on 3rd i will be getting my date for surgery its the thought of having pins and scaffold in my skull to keep spine in place what put the 💩 up me although he has asurred me he has not mucked up yet he is uo there with the best in country for neurosurgery 😨 i looked him up haha trust me im a bloody liability haha xxx
Missa if you are reading 👭 thinking about you Keep 💪 girls youve got this 👭👍💖♀️
Shi you keep sparkling that tree sounds lovely and Angela is right a huge tree the bigger the better i fancy going rustic with mine with cinnamon sticks pine cones dried oranges birds the whole shibang and of course lots of lights but i think i might regret jt after i start buying aren't the expensive now i haven't bought any decs for a few years but i have changed my living room and fancy a change with the tree also need a stocking for Ella but haven't found one i like yet x
Michele 👭🎄🌟
Shi Community Champion
Community Champion

Re: July 2017

😘😘😘tatyana, as ftf says a mixed bag🤔🤔but plan in place which is always good👍👍bit like a maze and you darling lady have the 🥊🥊🥊💪💪💪to go through the hedges ❤️❤️ftf ❤️❤️❤️for Friday darling 🤞🤞🤞gold hotpants on the way and tatyana, ftf, mishy, mai7, me and rest of oct17 🤪🤪🤪gang got 👭hold of em 👍👍yes tatyana going full out 🎄🎄🎄🎄✨✨✨✨✨🤪🤪🤪🤪this year as we all should ✨✨✨✨✨wheeeee✨✨✨✨✨Christmas ✨✨✨✨✨✨mince pies ✨✨✨✨✨✨sparkles ✨✨✨✨✨💕💕✨✨✨Shi xx
Member

Re: July 2017

Hopefully if it’s a small dose the infusion won’t take too long either. I hope the SEs are very manageable and you can enjoy Xmas without any drama.

I’m a bit late to the baking game this year too. Hubby is at work the second weekend of next month so I’m going to make a very late Xmas cake. It might not taste as good but at least the house will smell wonderful for a few hours. 😀

Xxx
Member

Re: July 2017

Hi Angela,
Paclitaxel is a weekly infusion for 3weeks, then you get week 4 off. So it's a bind, but the idea is that the SEs are more manageable because it's a small dose each time. We'll see! Meanwhile I might join you in a mince pie! Usually make my own but haven't got around to anything like that yet.
I'll be thinking about you on Friday. Yes the waiting is horrible.xxx
Member

Re: July 2017

On a brighter note tatyana. Cancer research have released a video stating cutting out sugar does not help treat cancer. The only way cutting down sugar can help is if you’re overweight.
For now, that’s all the advice I need to treat myself to a couple of mini sweet mince pies with a cuppa. Xxx
Member

Re: July 2017

Hi tatyana.
Yes , a mixed bag. Here’s hoping this new drug will work better and the rads do there job. 🤞🤞🤞🤞
The fact that your lungs are stable is very good news.
How do you take paclitaxol?
I really hope there’s a trial for you. If palbociclib isn’t working for me I definitely want a trial if there is one.
I think we should all have a consultation at a teaching hospital.


I’ve worked out the pain on my rib feels like a vein or cartilage rather than the bones. 🙄 goodness knows what sort of treats are going on there.

Xxx
Member

Re: July 2017

Afternoon ladies.
Good news that your friend doesn’t have to join us Tatyana. 👍 my results are Friday. 😳😳😳
Dreading it. I HATE sitting in that waiting room and the journey to the hospital is terrible isn’t it. I wish he’d just ring me. If I’m getting devastating news I’d rather have it in the comfort of my own home.

Your musical tree sounds lovely Shi. I’ve got a musical fairground. Its huge. We bought it from the range last year. I can’t wait to get it out again. Everything’s going up on the 1st. I’m going to buy the biggest real tree I can find. 😀
Member

Re: July 2017

So, scan results were a mixed bag. Lump in left (remaining!) breast has grown a bit. I knew that cos I can feel it. Lungs no change to speak of. Lumps inside centre of chest have grown but not by much. Something in lower back/pelvic area which looks like scarring, so this could mean that there was previously undetected cancer cells there which the chemo has zapped. (Aha, gotcha, you little blighters!)
The onc doesn't think there's any point in continuing with gemcarbo because my bloods have struggled, with repeated dose reductions and delays, so he wants to try me on paclitaxel.

But meanwhile he wants to try a 5-day course of rads localised to the breast lump, to try and shrink that. So it's rads planning on Tues, treatment asap, then aim to start paclitaxel at end of Dec so I get some recovery time in between.
As plans go, it makes sense. He's very sympathetic about the neck/chest pain and dodgy breathing, but hopes we can keep that under control in the meantime. Oh, and he's going to consult colleagues at the nearest teaching hospital to see if they have any trials that might be suitable.
I do feel better now there's a plan, even though it's all sht anyway and plans have a habit of getting messed up, don't they!
Shi, I'd love to see your house full of sparkly trees! Love to Mishy, Carole, Angela and anyone else who drops by!xxx
Shi Community Champion
Community Champion

Re: July 2017

❤️❤️❤️for today tatyana 😘😘 ✨✨✨ftf and mishy ❤️❤️❤️to you too, it was my right one too that was the naughty one 🥊got another tree 😁it’s a little Christmas musical ceramic thing, 😁😁😁I’ve gone nuts 🤪🤪🤪nothing new there then. Love you all 💕💕✨✨✨Shi xx