Member
Posts: 146
Registered: β€Ž21-01-2018

Re: January chemo starters ?

Hi pinklily and congrats on almost finishing the 1st part of your chemo πŸ‘

 

As Aliand says, everyone is different but in regards to your hands, are you referring to peripheral neuropathy?  I think it is pretty common side effect of taxane chemos but if you keep a record of any changes and discuss when you see your onc they will try to keep it to a minimum if they can.  I started on docetaxel (developed hypersensitivity) then had 3 x weekly Paclitaxel and at this stage still didn't have any neuropathy (again developed hypersensitivity) then was prescribed 2 rounds of Abraxane.  After the 1st one is when I noticed the pn so I discussed this with my doctor and they decided I'd had enough by then and didn't want to cause any lasting damage so the 2nd one was cancelled.  I'm happy to say that the peripheral neuropathy I did develope has since completely gone away!

I wish you all the best with it,
Amy xx

Member
Posts: 280
Registered: β€Ž27-12-2017

Re: January chemo starters ?

Hipinklily. I had Ros oare but didn’t get nasty side effects. In fact I found it easier than EC we are all so different. Try not to overthink it. Go one step at a time. Changing from one treatment to another is really scary, at least it was for me but you will get there. Your team will support you. Write down any side effects so if you do have problems with your hands they can address them quickly.
Keep going you are doing great πŸƒπŸΌβ€β™€οΈπŸ’ͺ🏻
Shi Community Champion
Community Champion
Posts: 3,247
Registered: β€Ž11-10-2017

Re: January chemo starters ?

Hi pink lilly, think there are other threads that could help answer your questions, if you put paclitaxel in the search bit and do a search. Sorry I can’t help I was fec-t. Well done finishing ec πŸ’ͺπŸ’ͺπŸ’ͺπŸ’ͺkeep strong darling πŸ‘­πŸ‘­πŸ‘­πŸ’•πŸ’•βœ¨βœ¨Shi xx
Member
Posts: 87
Registered: β€Ž04-08-2018

Worried about Paclitaxel

[ Edited ]

I have my last of four cycles of Ec tomorrow, thank goodness and start the first of 9 cyles of Paclitaxel over 18 weeks on the 16th January.

 

I know the EC has made me ill every time and was rushed into hospital with an infection after the last cycle, so I'm grateful to be at the end of it.

 

But I'm worried about the Paclitaxel, because I do so much sewing, cross stitch, machining, etc and I've read and been told Paclitaxel affects the hand and feet. I'm not too worried about my feet, but really concerned about my hands and how it will affect them.

 

Can anyone tell me how they were on this drug please and what the effects were on their hands?

 

Would appreciate anyone who can give info on the side effects they had?

Member
Posts: 87
Registered: β€Ž14-03-2018

Re: January chemo starters ?

I quite like Paulina πŸ˜‚. Amy, I would ask them if they can rearrange the mammogram xx
Member
Posts: 496
Registered: β€Ž25-11-2017

Re: January chemo starters ?

Happy Christmas Shi, fel and paloma hope you are having a lovely day xx

Member
Posts: 496
Registered: β€Ž25-11-2017

Re: January chemo starters ?

Happy Christmas Shi, fel and paloma hope you are having a lovely day xx

Shi Community Champion
Community Champion
Posts: 3,247
Registered: β€Ž11-10-2017

Re: January chemo starters ?

Amy πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚I know my typo was the text gremlins what can I say πŸ€·β€β™€οΈYou all know they pop up from time to time just to 😁😁😁make us look like plonkers πŸ€·β€β™€οΈπŸ’•πŸ’•βœ¨βœ¨Shi xx
Member
Posts: 146
Registered: β€Ž21-01-2018

Re: January chemo starters ?

You're a bit late to the party Paulina but welcome πŸ˜‚

Hello and merry Christmas Fel, Shi, Michelle and the rest of the January crew!!

I'm looking forward to a normal Christmas compared to last year.  Finish up at work on Friday until the new year, altho have just received appointment for my first annual mammogram on the 28th and we're away, do I cancel our night away or see if I can rearrange? 

Love and best wishes,
Amy xx

Shi Community Champion
Community Champion
Posts: 3,247
Registered: β€Ž11-10-2017

Re: January chemo starters ?

Sorry paloma predictive text changed you to Paulina πŸ€·β€β™€οΈXx
Shi Community Champion
Community Champion
Posts: 3,247
Registered: β€Ž11-10-2017

Re: January chemo starters ?

Hi Paulina 😁😁wishing you and all amazing jan ladies a beautiful Christmas too ❀️❀️And a glorious new year ❀️❀️Hope you’ve all amazing things planned and wonderful snuggly time too πŸ˜πŸ˜πŸ’•πŸ’•βœ¨βœ¨βœ¨Shi xx
Member
Posts: 87
Registered: β€Ž14-03-2018

Re: January chemo starters ?

Hi Michelle, Fel and Shi. Wishing you a lovely Christmas ladies xxx
Member
Posts: 593
Registered: β€Ž30-03-2018

Re: January chemo starters ?

Hi Rosie and all you lovely January ladies!
Sounds like life is settling down for you and you are enjoying your meet ups! I completed rads in November so just have herceptin until May. I’m glad the big 3 are done and look forward to a bit of normality with less hospital appointments!
I hope you all have a wonderful Christmas and a happy healthy 2019 x
Member
Posts: 71
Registered: β€Ž13-01-2018

Re: January chemo starters ?

Hi Ailand,

Yes I sent you a private reply.

Member
Posts: 280
Registered: β€Ž27-12-2017

Re: January chemo starters ?

Fel did you get my message ?
Member
Posts: 71
Registered: β€Ž13-01-2018

Re: January chemo starters ?

Thanks Shi,

Hope you have a great Christmas and New Year.

Shi Community Champion
Community Champion
Posts: 3,247
Registered: β€Ž11-10-2017

Re: January chemo starters ?

Fel 😘😘lovely to hear from you 😘😘 keep the curls hydrated it does help tame them a bit πŸ‘πŸ‘πŸ’•πŸ’•βœ¨βœ¨Shi xx
Member
Posts: 71
Registered: β€Ž13-01-2018

Re: January chemo starters ?

Hi Rosie,

 

Lovely to hear from you again.  I am doing okay have got my taste back and I am enjoying my G&T's again.

My hair is curly and I am still getting used to it.  I would really love to come to your next meet up can you let me know via private message when and where it will be.  Yesterday was exactly a year since I had my operation.  Looking forward to this Christmas and New Year planning to see friends and entertain something I couldn't do last year.  Please give my Best Wishes for Christmas and New Year to all on the What's App.

 

Felicity

Shi Community Champion
Community Champion
Posts: 3,247
Registered: β€Ž11-10-2017

Re: January chemo starters ?

Rosie sorry babe I can’t make jan, me and meesh are away weekend before you ladies, but we will get meet up arranged πŸ˜πŸ˜πŸ˜˜πŸ˜˜πŸ’•πŸ’•βœ¨βœ¨βœ¨Shi xx
Member
Posts: 290
Registered: β€Ž15-11-2017

Re: January chemo starters ?

Hi Online Ladies

Im sorry Ive gone over to the darkside of WhatsApp.

Shi its great news that you are coming in January it will be so lovely to meet you. Hows your health are you doing ok?

Fel...how are things with you?

Michelle whats happening with you? xxx