Member
Posts: 290
Registered: ‎15-11-2017

Re: January chemo starters ?

Wow...stupid cancer with every high you seem to get a low...I was so happy Friday getting the news the Chemo is at last working and that I only need 3 FEC which means I was lucky enough to drop 1 session. I was all that’s great news and I can take anything chemo throws at me now I know it’s working ...well that didn’t last long because for some reason I am dreading tomorrow’s session. The thought of going seems to be getting harder each time...urgh my positive buzz has turned into anxious moan...is anyone else finding each session harder than the last to face? Xxx

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Member
Posts: 87
Registered: ‎14-03-2018

Re: January chemo starters ?

Thanks for the welcome ladies Woman Happy I like the swimming theme and the life raft sounds a mighty good option Woman Wink

My regime has been to have the steroids 4 x 2mg tablets twice a day for the first 4 days for each of the FEC cycles for anti-sickness and have been told to start them the day before T and for the next 2 days in order to make it less likely to have an allergic reaction to the T. 

With the chemo, 2 different anti-sickness drugs, the steroids and the injections, its hard to work out what is causing side affects sometimes. I have suffered aches and pains and tenderness in neck and shoulders and stabbing pains in my legs but wasn't sure if its the chemo or injections. Other side affects have been sore mouth/throat (ice lollies helped) numbness in feet (was told it was nothing to do with chemo), stinging eyes, chest pains and flutterings (which I found very scary and Triage told me to call an ambulance), teariness, horrible taste in mouth (sucking sugar free polos helped), heartburn, nausea (ginger biscuits helped) and waking up with my hands numb and tingly, which went away when I wiggled them around rapidly, most recently a really painful tear caused by constipation which made it feel like I was pooing razor bladesSmiley Frustrated(Prune juice Woman Tongue and an ointment from GP have helped) hair loss and nearly all my eyebrows already too, but still have eyelashes. I missed my period the first cycle but had one the second cycle. Had a red rash/spots and very sensitive skin on my cheeks for a few days each time which went away on its own.

Have also been allergic to dressings on my Picc line, so have had skin reactions and soreness.

I was told painting my nails a dark colour before starting the T might protect them a bit. I had really long thick hair, which I was very fond of but was told there was no point using the cold cap as the drugs were too strong and it wouldn't work.

I wake up about 6 times a night and something that has really helped me get back to sleep and to stop my mind going a hundred miles an hour has been listening to audio cassette books with headphones, couldn't do without it now. Xx

Member
Posts: 260
Registered: ‎11-10-2017

Re: January chemo starters ?

Thanks ladies re the steroids , haven’t had any effect of the few I’ve had to take on fec , just thought it was a lot for the T, re weather last time I was lucky enough to get a friend with a 4x4 take me in , it’s a nightmare x and so cold !
Member
Posts: 114
Registered: ‎04-11-2017

Re: January chemo starters ?

Hmmmm bit concerned as snowing big time and cycle 4 due morrow. Anyone get delayed in the last snow? No idea how it works..
Member
Posts: 114
Registered: ‎04-11-2017

Re: January chemo starters ?

Hi Jamesy. I have 8 a day sun mon (chemo day) and Tues. I had no issues while on them but massive steroid downer on the weds, so asked them the be reduced gradually. I now do 4 on weds, 2 thurs and 1 Fri.. much better for me that way.
Member
Posts: 162
Registered: ‎25-10-2017

Re: January chemo starters ?

Hi Jamesy, I was given the same amount (i.e. 8mg twice daily) and was concerned but no apparent ill effects, other than had a problem sleeping but they wouldn’t have gone ahead with chemo if I hadn’t have taken them.  To try and resolve the sleeping issue,I took the first dose early, and the second dose around about 2pm. 

Member
Posts: 260
Registered: ‎11-10-2017

Re: January chemo starters ?

Morning day 4 of last fec , feeling yuk , 🐠🐠🐠
Bit concerned by the amount of steroids I’ve been given to start before T , 8 a day ! That’s a lot isn’t it ?
Is this normal ?
Member
Posts: 486
Registered: ‎17-10-2017

Re: January chemo starters ?

Marie, for bone pain you need a Loratadine based antihistamin. Piriton isn’t Loratadine. Tesco and boots have own brand Loratadine.
Member
Posts: 61
Registered: ‎14-01-2018

Re: January chemo starters ?

Thanks everyone. I tried Paracetamol and ibruffen and neither seemed to help but have used co codamol today which has definately taken the edge off.
Hi Paloma, we have ‘met’ on the other forum but here is definitely a great place for support. Also pop into the earlier months as the ladies there also give great advice and support. Xx
Member
Posts: 162
Registered: ‎25-10-2017

Re: January chemo starters ?

Hi Paloma and welcome. 

Had my first T on Friday.  Felt fine yesterday but a bit achy today.  With regard to the injections, up until now I have found ibuprofen helps. 

Member
Posts: 114
Registered: ‎04-11-2017

Re: January chemo starters ?

Welcome to our team Paloma xx

Well first steroid day prior to round 4 / 6 TCH tomorrow. Getting bit anxious bout feeling so crappy again for the week...but my Onc reminded me to think about it as having only 3 weeks of icky feelings left... which is a good point.

Went out last night with a couple of friends had a run and coke (which I could taste!!!) Had a fab night! Defo going to plan in another one or two of those evenings for my next cycle - really helped lift my mood. Hubby didn't like me going out much...but tbh I'm a bit passed caring now - harsh as it sounds.

Happy swimming ladies!!
Member
Posts: 496
Registered: ‎25-11-2017

Re: January chemo starters ?

Hi Paloma - glad you found us Smiley Happy as Amy says welcome to the swim team. How has your journey been so far??

Marie - I was initially on 7 days of jabs but when I mentioned the bone pain increased towards day 5 the Onc reduced to 5 days saying that my body was working to hard, so keep a track and if it gets worse as you go tell the team. I have found the antihistmine have worked for me though so may be worth a try.

Rosie - I hope you have had a weekend of celebrating your news before your next round Smiley Happy
Member
Posts: 290
Registered: ‎15-11-2017

Re: January chemo starters ?

Welcome Paloma to our little band of swimmers. If you’ve read our posts you might see we have a keep swimming moto...thought out by one of our ladies little girl. We also have an emergency life raft for bad days crewed by Idris Elba, Tom Hardy and Thor!!! Yes things get a little weird here at times...I blame all the drugs.

 

Marie I found the first T the most painful, second much better, general pain killers will definitely help loads just check your temp before each dose of Paracetamol. Space out your dose too so you tKe Paracetamol then 2 hours later your Ibuprofen and so on...I used some 15mg codeine tablets for a couple of nights which helped me sleep but you have to be a bit careful if you’re constipated.

Good luck it does pass after a couple of days...

ive got my 4th session tomorrow and FEC number 2!!! Xxx

Member
Posts: 146
Registered: ‎21-01-2018

Re: January chemo starters ?

Welcome to the swim team Paloma 😊🐠

I'm doing EC-T, finished EC (woop) and start T on the 27th (eek) 😯

Hey Marie, this might be a silly suggestion but have you tried paracetamol or ibuprofen?  I found the clariton didn't do anything but ibuprofen did.  Also, check with your doc if you have to take all 8 as it seems it varies around the country - I get given 10 but some others only 5.

Member
Posts: 61
Registered: ‎14-01-2018

Re: January chemo starters ?

Hi. I had my first T on Wednesday, I was feeling ok just a bit ‘heavy’ but since yesterday morning the bone pain/aches are awful. I’m assuming it’s since I used the injections on Friday night. I am in constant pain, can’t sleep just have to keep moving about. I can’t keep this up for 8 days! 😔. Epsom salt bath helped for the time I was in it and am going to get some piriton today. Has anyone got any ideas? Do I have to have 8 injections? Thanks x
Member
Posts: 260
Registered: ‎11-10-2017

Re: January chemo starters ?

Welcome paloma XX
Member
Posts: 87
Registered: ‎14-03-2018

Re: January chemo starters ?

Hi Ladies, not sure if I am posting in the right part? Good to read some of your posts on your journey's so far. I started FEC-T in January also, I've had 3 x FEC so far and will be starting the T part on 29th March.  Best wishes to you all x

Member
Posts: 114
Registered: ‎04-11-2017

Re: January chemo starters ?

Rosie that's amazing. You must feel so relieved.. congrats my lovely xxxxx
Member
Posts: 162
Registered: ‎25-10-2017

Re: January chemo starters ?

Fantastic news Rosie and thanks for the heads up on what to expect with the T.  Have felt fine this evening although a little tired but that might be the lack of sleep last night.  

Thanks for all your kind words ladies.  I think as the weather gets warmer I will go commando more often - it feels great.  Have a great weekend everyone x

Shi Community Champion
Community Champion
Posts: 3,247
Registered: ‎11-10-2017

Re: January chemo starters ?

Rosie ❤️❤️❤️Brilliant news darling 💕💕✨✨shi xx