Member
Posts: 257
Registered: β€Ž11-10-2017

Re: January chemo starters ?

Aliand ha ha ha ! Glad you’ve β€˜been β€˜
Shocked the onc gave me difflam mouthwash and I got difflam spray from the gp , haven’t really suffered so haven’t had to use it as yet , hope you get sorted xx
Had phone call I’m ok for chemo tomorrow ! Yay so excited ( can’t believe excited over chemo ) it means FEC can FEC off !! And I will be halfway there ! Then I will be dreading T xxxxx
🐠🐠🐠🐠🐠keep swimming ladies but I’d advise keeping your mouth closed πŸ’©πŸ’©πŸ’©lol xxxxx
Member
Posts: 281
Registered: β€Ž15-11-2017

Re: January chemo starters ?

Wooo hooo....

before I start Shocked I’m using Aloe toothpaste, touch wood no ulcers yet!!!

Aliand congratulations one of the most beautiful things in life is a great poo!!!!

......but (and I don’t want to steal Aliands poo thunder) I got a call today and the FEC is working 

Who’d have thought that being told you need 3 more sessions of poison injected into your veins could bring such utter joy!!! 

Inflamatory BC biopsy also negative...woo woo back on the chemo train

 

xxx

Member
Posts: 121
Registered: β€Ž21-01-2018

Re: January chemo starters ?

Lol, way to go Aliand! πŸ‘πŸ’©

Shocked, that doesn't sound fun.  Hope you can get some Difflam like the others have suggested.  Thankfully the yuck taste in my mouth seems to be fading.  Ooh ooh I can see my "week of something resembling normal" just on the horizon πŸ˜ƒπŸŒ…

All the best everyone, swim swim xx 

Member
Posts: 111
Registered: β€Ž04-11-2017

Re: January chemo starters ?

Ouch shocked that sounds painful. I've had oral thrush every cycle (I'm on TCH) and icky taste, but touch wood no ulcers....yet anyway. Agree with Aliand...Difflam is amazeballs, use 5 / 10 mins before eating and it really helps.
Aliand...congrats on the poo's lol.. your post made me giggle!!! Mines gone the other day thanks to these bloomin antibiotics the hospital gave me...doh!!
Member
Posts: 241
Registered: β€Ž27-12-2017

Re: January chemo starters ?

Shocked
I use diffkam mouthwash it’s fab and was recommended to me by my bc survivor friend who suffered with ulcers.
And gelclair sachets. Seem to keep mine under control at the moment though T I’m led to believe is more harsh on mouth attack !
Ring your chemo unit for a prescription that where I got mine from. Do not suffer one more minute without something to help xxxxx
Member
Posts: 455
Registered: β€Ž25-11-2017

Re: January chemo starters ?

Smiley LOL The things this journey makes you appreciate!!!

 

Anyone any advice on mouth ulcers - nausea gone and tastbuds returning to somewhere near normal but I feel like I have been chewing a cactus - I literally have over 20 mouth ulcers just come up on my tongue and they flipping well hurt loads!!! I am prone to the odd one or two mouth ulcers but this is extreme my tongue is actually a different shape.

Member
Posts: 241
Registered: β€Ž27-12-2017

Re: January chemo starters ?

Water not weather. !
Member
Posts: 241
Registered: β€Ž27-12-2017

Re: January chemo starters ?

πŸ˜‚ yes I’m much better now. I was celebrating πŸŽ‰πŸŽŠπŸŽ‰πŸŽŠ my big poos πŸ’© ! The constipation has been hard work to crack this cycle. 😳😳😳
Today I think I’m winning πŸ…

Don’t worry though. I’ve not left any floaters in the weather πŸŠπŸ»β€β™‚οΈπŸ˜‚
Member
Posts: 455
Registered: β€Ž25-11-2017

Re: January chemo starters ?

Aliand - you OK?? That was a very graphic post Smiley Very Happy

Shi Community Champion
Community Champion
Posts: 2,708
Registered: β€Ž11-10-2017

Re: January chemo starters ?

Aliand are you πŸŽ‰πŸŽ‰πŸŽ‰having a big πŸ’©πŸ’©πŸ’©πŸ’©? πŸ’•πŸ’•βœ¨βœ¨shi xx
Member
Posts: 241
Registered: β€Ž27-12-2017

Re: January chemo starters ?

OMG
πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©

I feel so much better
πŸ’ƒπŸ‘―β€β™€οΈπŸ‹πŸ»β€β™‚οΈπŸ˜„
Shi Community Champion
Community Champion
Posts: 2,708
Registered: β€Ž11-10-2017

Re: January chemo starters ?

Crazytimes, big ❀️❀️❀️And extra ✨✨✨✨for you and big hug too, sorry your oh being a πŸ’© hope he gets a πŸ₯ŠπŸ₯ŠπŸ₯Što knock some sense into him, do you want us to send Karana round? Mai7 is the amazing brilliant lady I met at my first chemo and she took me under her wing on this whole journey as well as having her own journey, I love her more than words can ever say, she is so amazing and then some. Aliand how lovely to receive some gifts 😘😘it’s always a surprise pick me up when you receive something unexpected 😘😘keep 🐟🐟🐠🐟🐠🐟🐟🐠🐠you are all πŸ’ͺπŸ’ͺπŸ’ͺπŸ’ͺand fabulous πŸ˜πŸ˜πŸ˜πŸ’•πŸ’•βœ¨βœ¨βœ¨shi xx
Member
Posts: 281
Registered: β€Ž15-11-2017

Re: January chemo starters ?

CT yay you’re ready...that’s good news...

I’m still waiting for my decision...if I’m staying on the chemo train I’ve been moved back to Monday....which means treat weekend, apart from the fact I’m considering fasting 😩....

 

Any ladies that go alone just remember we are all there with you...xxx

Member
Posts: 466
Registered: β€Ž17-10-2017

Re: January chemo starters ?

Rosie, such lovely words, thank you. On a different tack, I’m from Oct thread and when I opened the Jan thread it was somewhere near the start of your journey. You asked if anyone else was on T-FEC. I was; my onc (at West Suffolk) said the majority of their ladies are that way around. They use FEC-T for ladies who are going to need Herceptin as it’s not possible to have that with FEC. If it’s any consolation, they say T is usually worse than FEC so you might have an easier ride on your last chemos. On a down note, FEC is much worse for hair. A lot of ladies start to regrow on T but here I am, nearly six weeks after last chemo, feeling very bald. When I searched, the only other lady I found on T-FEC was also from West Suffolk Hosp.

While I’m here on your thread, I thought I’d spread my nail tip (I didn’t have time to go through all your thread, so you might know this already.) Early on I read a blog by a lady who is a hand/nail model. The only thing she uses is Boots Almond oil. I have used it throughout chemo and since, usually twice a day. I don’t wear any nail polish and always wear gloves outside or hide my nails. T is the nail hitter and its effects only become apparent months after T. My nails improved from their pre chemo state and although I have a little β€˜purpleing’ on two nails, those nails are structurally still very strong. You have to ask for it at the pharmacy and they often don’t have it. Easiest is to order off web, for free pickup at your local boots. It’s cheap as chips, actually cheaper, about Β£1.50ish for 50ml.

Good luck with your journey ladies. Stay strong and support each other. Here’s some licky penguins for you (don’t ask!) and unicorns from our thread. πŸŽ‡βœ¨πŸŽ‡βœ¨πŸ‘…πŸ§πŸ¦„πŸ‘…πŸ§πŸ¦„βœ¨πŸŽ‡βœ¨πŸŽ‡and a few hugs to keep you going. πŸ€—β€πŸ€—β€


Member
Posts: 241
Registered: β€Ž27-12-2017

Re: January chemo starters ?

CT I go on my own too. DH has poor tolerance for sitting around though I know if I asked him he would come. It really doesn’t bother me. I know what you mean about being pleased that it’s all going ahead. I totally dread delays.
Rosie the person that wrote that poem knows me. All the housework still falls to me and the majority of the kids taxi service. DH just hasn’t the time to do much.
Starfire hows the numbness. When I got carpel tunnel it started in the middle fingers.

ThNks to whoever said stop antihistamine e at 5. I’ll stop and hope tomorrow is ok too.

I’ve had a lovely delivery of cards fliers chocks and Mext gift voucher today from the Mims at my kids dance classes. I’m really touched as I do t know them all that well. It’s finny how you can be surprised by the kindness of people you don’t know all that well.

Watching celebratory bake off now, don’t think I can tolerate the cancer stories on it though in case they are not positive. πŸ™ˆ


Member
Posts: 1,546
Registered: β€Ž21-06-2017

Re: January chemo starters ?

I know Mai, I couldn't believe that even water tastes horrible! I found that when lack of taste buds were at it's worst, hot choc was quite a good drink as I could vaguely taste that! x

Member
Posts: 1,319
Registered: β€Ž19-04-2017

Re: January chemo starters ?

Shocked, sending hugs. I suffered a lot with my mouth. Sore, couldn't taste or everything tasted horrid, even water. Try having warm drinks as these are easier when you can't taste and you need to keep hydrated. I found cold drinks hard to tolerate, possibly due to oversensitive mouth. Xxx
Member
Posts: 1,319
Registered: β€Ž19-04-2017

Re: January chemo starters ?

Starfire, glad to help out. The chemo train is a tough ride at times. As you approach half way you feel you've lost who you were and can't quite see the end either. Hang in there, you'll get through it. Xxxx
Member
Posts: 257
Registered: β€Ž11-10-2017

Re: January chemo starters ?

Fab news CT , had my bloods today to see if my count is up ready for Thursday , I’m hoping so too so I can say fec off to fec , it will be crap if I have to deviate from my plan !!!
Highlighted
Member
Posts: 121
Registered: β€Ž21-01-2018

Re: January chemo starters ?

Thanks Shocked, yes I am feeling marginally better today.  I'm worried tho if the taste problem gets worse with every cycle?  Really not looking forward to any more 😝

All the best with your next cycle CT πŸ’ͺ

That's awesome Rosie, love it! πŸ‘

 

X 🐟 X