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January chemo starters ?

Shi Community Champion
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Re: January chemo starters ?

Dealdoh 🍺🍺there you go, those and the extra steroid for the t should have you bouncing off the walls nicely to cope with first t 😁😁 once 3rd one is done it’s only really 6 more weeks if you think of it that way and aliand who’s showing everyone how it’s done with the mega 8 will be using her extra 2 weeks to collect any floats up on her way in πŸ˜˜πŸ˜˜πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: January chemo starters ?

Dealdoh, I'm in awe, I'm just too cold to go bald even in the house !! I have however bought a silly black and green wig for a laugh for a party I'm going on Saturday. Yes the hubby is given me permission to mix with people.
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Re: January chemo starters ?

All the best for today Dealdoh and hoping the SE's aren't too harsh πŸ‘πŸ’ͺ🐟🐠

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Re: January chemo starters ?

I’ll be thinking of you tomorrow dealdoh , it is a lot of steroids isn’t it ? They gave me mine today ready for T in 3 weeks and I was shocked , as you can see I’m awake at silly o’clock and I haven’t even took my two yet just the ones they put in the IV xx
Starfire I think you must of been the tester for every side effect going , I don’t know how you’ve coped my β€˜big woolly hat β€˜ comes off for you ,you really are a star x
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Re: January chemo starters ?

Sorry Starfire.  I guess this only goes to show how we all react differently to what is being thrown at us and you have had much more than your fair share and now peripheral neuropathy!!  XX

 

Well ladies, I went commando today - head wise I hasten to add!  No hat, no scarf, no wig, just me and my baldness went to Tesco’s to do a bit shopping.  Unusually for me, I did put on a bit of lipstick as, with no hair, no breasts, jeans, t-shirt and trainers, I wanted to give the other shoppers a clue to my gender.  I felt good. I think maybe IT WAS THE STEROIDS THAT MADE ME DO IT as I took my first increased dose today in preparation for my first T tomorrow.  The possible peripheral neuropathy side effect does worry me.  I already have discolouration of four of my nails, with some prickling in some of my fingers, palms and soreness of the soles of my feet.  I thought this was more usual with T, I didn’t realise it happened with Fec.  Anyway, onwards and upwards, only three more to go.

Shi, can I have a pint of your ”upbeat ness”

xx to all 

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Re: January chemo starters ?

Congratulations James...half way there!!

i had two T sessions and whatever neuropathy I had has now pretty much cleared...has taken a few weeks with a few twinges. So hopefully the difference between 2 sessions and 3 won’t be too bad for everyone. 

Starfire did the fast make ant difference for you?  Xxx

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Re: January chemo starters ?

Starfire - don't know what to say you seem to have drawn the short straw with SE from the start and taken all of the worst possible. Peripheral neuropathy is the one SE that I can't cope with as the thought of permanent nerve damage is so scary, the onc just keeps dismissing my concerns as worrying about something that may not happen but as I already have some neuropathy that they are blaming on PD drugs as its a known SE I think I'm being rational being wary of T I'm being human

 

Jamesy - yay half way hope the SE are kind to you this round.

Shi Community Champion
Community Champion

Re: January chemo starters ?

Hi brilliant lovely 🐟🐠🐟🐠🐟swimmers 😘😘think I mentioned it before about πŸ’©jams another lady used prunes to get the logs flowing, you’ll find in t you will probably get πŸŒͺπŸŒͺπŸŒͺπŸ’©πŸ’©πŸ’©πŸ’©β€™s it’s been a se for a few, so Imodium and up the carbs and mention to your onc s if it gives you πŸƒβ€β™€οΈπŸƒβ€β™€οΈπŸƒβ€β™€οΈπŸ’©πŸ’©πŸ’©β€™s. Shocked πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ’ƒπŸ»πŸ’ƒπŸ» Bit of riverdance on the jukebox, up two three and up two three, up two three four five six seven, point behind and point behind, hop heel toe and point behind πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ’ƒπŸ»πŸ’ƒπŸ» After a few shandy’s mind πŸ˜˜πŸ˜˜πŸ˜˜πŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨shi xx
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Re: January chemo starters ?

O flipping heck starfire. I dread peripheral neuropathy. Though I’m sure the onc will be quite used to dealing with it as it’s so common. But I hope it starts to ease. How many more treatments are you due ?

Jamsey whoop whoop

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Re: January chemo starters ?

Feel better soon Starfire xx

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Re: January chemo starters ?

Fec 3 done !!!! Fec off !! Just eating a piece of cake while I still feel up to it lol xxxxx
🐠🐠🐠🐠
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Re: January chemo starters ?

Direct from onc ward. It’s Peripheral Neuropathy. Got to discuss with consultant next meeting to see if need to reduce the dosage,,,, again! A bag of meds to take home. I’m to keep my eye on the floaters and return if still around in seven days.

Enjoy the rest of the day ladies xxx

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Re: January chemo starters ?

Dealdoh thank you for your advice but I tried MOVICAL and was blue lighted to hospital due to an allergic reaction. Strange I know (especially as another forum member having had Abraxane chemo had the same reaction recently too) but onc has referred me to an allergy specialist now xx

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Re: January chemo starters ?

May I suggest movicol/cosmocol for constipation.  I tried senna and the lactulose with very little result, which resulted in an unfortunate log jamπŸ€ͺ

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Re: January chemo starters ?

Oh god Starfire a dancer...Id have loved to do that. Far too shy as a kid though.

We went to see Thriller at new year and thats all dancing..I was mesmerised.

Going to def look at Matthew Bourne, just did a ticket alert on Ticketmaster.

Has anyone done opera? Would like to try that at least once too..xxx

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Re: January chemo starters ?

Starfire, if your eyes are 'sparking' I would definitely mention that. It could be blood pressure, I had that when pregnant. But my husband had a torn retina a while back and he had those symptoms. Get it checked to be sure.
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Re: January chemo starters ?

Rosie go and see a Matthew Bourne. Much easier watch than traditional ballet - though I do love that too. And no you don’t need to dress up. Like any theatre you get some who do and some who go in jeans.

Starfire - so jealous if that workshop. I’ve 2 ballet dancer children one girl one boy. Will have to look out for that.

60% reduction. That’s very reassuring to hear.

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Re: January chemo starters ?

Rosie. 

 

I tried The Good Place the other night... it is very nuts, Flying prawns etc... I couldn’t stop focusing on the fact that the main female lead is Anna from Disney’s Frozen... a film well known in our house.

breaking Bad helped me through the first two.... my favourite series of all time I think!

 

Have a good day x

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Re: January chemo starters ?

Jamesey good luck today.

 

will try drinking more water today as you advise to see how the floaters go!

 

Yes I liked Requiem on iPlayer. If you like Mulder off the ex files Californication is worth a watch. Be warned it is very saucy and not for everyone. Makes me laugh though at times like these...

 

i did a Micheal Bourne Cinderella Ballet workshop with my daughter at a festival last year. I sat in a chair and danced along. Really frustrating as I used to be a dancer.. We took her to see The Little Mermaid by northern ballet for her 5th birthday. Lovely.

 

I think it’s common for T to blast the tumour if FEC didn’t Aliand! My friend from the someone like me Service had 60% size reduction on T and none on FEC.

 

easter will be chocolate free for me as well this year. It’s true that most of our treatment timings have clashed with usual fun times 😭😩

 

im going to phone the onc ward now as last night I had to take pain killers for my painful throbbing feet. I’m sure it’s Neuropathy.

 

lots of love xxx

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Re: January chemo starters ?

Starfire...I get a few floaters but eyesight has def gone a bit off track especially for the first week after FEC, didnt happen with T though, Im going to tell the onco tomorrow and about weird coordination issues I had too.

 

Im currently watching The Good Place...pre warning its about being dead but in a very funny lighthearted way, very easy TV.

Im also sadly watching the first series of Walking Dead again, which I love.

Might have another run through of Breaking Bad too...

Did anyone do Orange is the New Black which is brilliant.

 

Also reading awesome book at the moment Red Sparrow...trying to get thorugh it so I can go and see the film but it is brilliant.

 

The ballet...sounds amazing, Ive never been to one but would love too one day. Do you have to dress up? Im fascinated by dancers and how strong they are...

 

Sorry ladies Im refusing to swim now Im on the raft with Idris and Thor..xx

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Re: January chemo starters ?

Oh and Amy I’m too much of a wimp to watch Requiem -spooky freaks me out.
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Re: January chemo starters ?

Aliand - Haven’t been to the ballet for years - sounds fab. 

 

 

I think a few of us are up for the worst SE’s Easter weekend booooooooo. So far chemo has claimed my birthday, my mums 70th, mother’s day, Valentine’s Day and is due to claim Easter and my OH’s birthday- every single one of them has been a few days after my chemo sessions. Oh and surgery took Christmas away -come the summer I am going to be ready to party πŸŽ‰ big time, may have to borrow Shi’s playlist!!

 

 

Today is going to be a good day for getting back in the water and swimming like crazy. 🐟🐟🐟🐟🐟

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Re: January chemo starters ?

Shi, ha ha - the chocolatiest of cakes! πŸ˜πŸ’©

Yeah Starfire, I get those.  Sometimes so vivid I think I've seen something that isn't there.  Shocked could be right about the dehydration theory, I've not been drinking as much as I normally would and I've noticed them more.  So looking forward to being able to drink water again!  Gotta love a Netflix series, I've not seen that one but highly recommend The Sinner.  I'm currently watching Requiem which is on BBC, I love all things spooky and/or scary.

All the best for today Jamesy, hoping SE's aren't too awful for you 🐠🐟🐠🐟

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Re: January chemo starters ?

Great news Rosie I can’t wajt til my lump is reducing it hasn’t yet even after 4 EC def a reason to celebrate.

Jamsey good luck today halfway is soooo good.

Starfire not seen californication. Might look it up though I’ve not a lot of patience for tv at the moment. Wait till that T train hits hey ! Due Easter weekend lucky me !
Your SE still sound pants. Hope you’ve rang your unit to check they are ok to tolerate. I use senna to get my πŸ’© going lactulose is a softener senna stimulates.


I went out to the ballet last night Matthew Bournes Cinderella it was fabulous. And Matthew Bourne himself was sat in front of us !!

Think I might get the male lead to row the boat for a bit his muscles were amazing. Though he can start off in his airforce uniform
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Re: January chemo starters ?

RosieH - Fantastic news sooooooo pleased for you that FEC is working,

Managed to get a difflam spray from GP can't believe I can get so many appear at once my tongue is so sore just as I can taste again this little joy has appeared.

Starfire - are you dehydrated?? maybe that can explain the floaters my OH used to get this occAsionally in his eyes when dehydrated,
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Re: January chemo starters ?

 

RosieH goodish news you are back on track!

 

So jealous of the big πŸ’©Aliand! I’m still struggling with numb index, middle and ring finger tips, painful ankles, fatigue and the dreaded constipation. Having Lactulose twice daily 😬😬😬

 

The other her new SE I am having is floaters.... obviously not of the πŸ’© kind but visually, especially when looking at the sky... it looks like fireworks going off? Has anyone else experienced this.

 

Have started on my new compulsive Netflix relay for this round... Californication. Anyone else seen it?

 

Lots of love xxx

Shi Community Champion
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Re: January chemo starters ?

Aliand and jan ladies google Bristol stool chart cakes πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’© and look at the photos, always good for a πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚when talk goes to πŸ’©πŸ’©πŸ’©πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: January chemo starters ?

Aliand ha ha ha ! Glad you’ve β€˜been β€˜
Shocked the onc gave me difflam mouthwash and I got difflam spray from the gp , haven’t really suffered so haven’t had to use it as yet , hope you get sorted xx
Had phone call I’m ok for chemo tomorrow ! Yay so excited ( can’t believe excited over chemo ) it means FEC can FEC off !! And I will be halfway there ! Then I will be dreading T xxxxx
🐠🐠🐠🐠🐠keep swimming ladies but I’d advise keeping your mouth closed πŸ’©πŸ’©πŸ’©lol xxxxx
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Re: January chemo starters ?

Wooo hooo....

before I start Shocked I’m using Aloe toothpaste, touch wood no ulcers yet!!!

Aliand congratulations one of the most beautiful things in life is a great poo!!!!

......but (and I don’t want to steal Aliands poo thunder) I got a call today and the FEC is working 

Who’d have thought that being told you need 3 more sessions of poison injected into your veins could bring such utter joy!!! 

Inflamatory BC biopsy also negative...woo woo back on the chemo train

 

xxx

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Re: January chemo starters ?

Lol, way to go Aliand! πŸ‘πŸ’©

Shocked, that doesn't sound fun.  Hope you can get some Difflam like the others have suggested.  Thankfully the yuck taste in my mouth seems to be fading.  Ooh ooh I can see my "week of something resembling normal" just on the horizon πŸ˜ƒπŸŒ…

All the best everyone, swim swim xx 

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Re: January chemo starters ?

Ouch shocked that sounds painful. I've had oral thrush every cycle (I'm on TCH) and icky taste, but touch wood no ulcers....yet anyway. Agree with Aliand...Difflam is amazeballs, use 5 / 10 mins before eating and it really helps.
Aliand...congrats on the poo's lol.. your post made me giggle!!! Mines gone the other day thanks to these bloomin antibiotics the hospital gave me...doh!!
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Re: January chemo starters ?

Shocked
I use diffkam mouthwash it’s fab and was recommended to me by my bc survivor friend who suffered with ulcers.
And gelclair sachets. Seem to keep mine under control at the moment though T I’m led to believe is more harsh on mouth attack !
Ring your chemo unit for a prescription that where I got mine from. Do not suffer one more minute without something to help xxxxx
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Re: January chemo starters ?

Smiley LOL The things this journey makes you appreciate!!!

 

Anyone any advice on mouth ulcers - nausea gone and tastbuds returning to somewhere near normal but I feel like I have been chewing a cactus - I literally have over 20 mouth ulcers just come up on my tongue and they flipping well hurt loads!!! I am prone to the odd one or two mouth ulcers but this is extreme my tongue is actually a different shape.

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Re: January chemo starters ?

Water not weather. !
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Re: January chemo starters ?

πŸ˜‚ yes I’m much better now. I was celebrating πŸŽ‰πŸŽŠπŸŽ‰πŸŽŠ my big poos πŸ’© ! The constipation has been hard work to crack this cycle. 😳😳😳
Today I think I’m winning πŸ…

Don’t worry though. I’ve not left any floaters in the weather πŸŠπŸ»β€β™‚οΈπŸ˜‚
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Re: January chemo starters ?

Aliand - you OK?? That was a very graphic post Smiley Very Happy

Shi Community Champion
Community Champion

Re: January chemo starters ?

Aliand are you πŸŽ‰πŸŽ‰πŸŽ‰having a big πŸ’©πŸ’©πŸ’©πŸ’©? πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: January chemo starters ?

OMG
πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©πŸ’©

I feel so much better
πŸ’ƒπŸ‘―β€β™€οΈπŸ‹πŸ»β€β™‚οΈπŸ˜„
Shi Community Champion
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Re: January chemo starters ?

Crazytimes, big ❀️❀️❀️And extra ✨✨✨✨for you and big hug too, sorry your oh being a πŸ’© hope he gets a πŸ₯ŠπŸ₯ŠπŸ₯Što knock some sense into him, do you want us to send Karana round? Mai7 is the amazing brilliant lady I met at my first chemo and she took me under her wing on this whole journey as well as having her own journey, I love her more than words can ever say, she is so amazing and then some. Aliand how lovely to receive some gifts 😘😘it’s always a surprise pick me up when you receive something unexpected 😘😘keep 🐟🐟🐠🐟🐠🐟🐟🐠🐠you are all πŸ’ͺπŸ’ͺπŸ’ͺπŸ’ͺand fabulous πŸ˜πŸ˜πŸ˜πŸ’•πŸ’•βœ¨βœ¨βœ¨shi xx
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Re: January chemo starters ?

CT yay you’re ready...that’s good news...

I’m still waiting for my decision...if I’m staying on the chemo train I’ve been moved back to Monday....which means treat weekend, apart from the fact I’m considering fasting 😩....

 

Any ladies that go alone just remember we are all there with you...xxx

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Re: January chemo starters ?

Rosie, such lovely words, thank you. On a different tack, I’m from Oct thread and when I opened the Jan thread it was somewhere near the start of your journey. You asked if anyone else was on T-FEC. I was; my onc (at West Suffolk) said the majority of their ladies are that way around. They use FEC-T for ladies who are going to need Herceptin as it’s not possible to have that with FEC. If it’s any consolation, they say T is usually worse than FEC so you might have an easier ride on your last chemos. On a down note, FEC is much worse for hair. A lot of ladies start to regrow on T but here I am, nearly six weeks after last chemo, feeling very bald. When I searched, the only other lady I found on T-FEC was also from West Suffolk Hosp.

While I’m here on your thread, I thought I’d spread my nail tip (I didn’t have time to go through all your thread, so you might know this already.) Early on I read a blog by a lady who is a hand/nail model. The only thing she uses is Boots Almond oil. I have used it throughout chemo and since, usually twice a day. I don’t wear any nail polish and always wear gloves outside or hide my nails. T is the nail hitter and its effects only become apparent months after T. My nails improved from their pre chemo state and although I have a little β€˜purpleing’ on two nails, those nails are structurally still very strong. You have to ask for it at the pharmacy and they often don’t have it. Easiest is to order off web, for free pickup at your local boots. It’s cheap as chips, actually cheaper, about Β£1.50ish for 50ml.

Good luck with your journey ladies. Stay strong and support each other. Here’s some licky penguins for you (don’t ask!) and unicorns from our thread. πŸŽ‡βœ¨πŸŽ‡βœ¨πŸ‘…πŸ§πŸ¦„πŸ‘…πŸ§πŸ¦„βœ¨πŸŽ‡βœ¨πŸŽ‡and a few hugs to keep you going. πŸ€—β€πŸ€—β€


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Re: January chemo starters ?

CT I go on my own too. DH has poor tolerance for sitting around though I know if I asked him he would come. It really doesn’t bother me. I know what you mean about being pleased that it’s all going ahead. I totally dread delays.
Rosie the person that wrote that poem knows me. All the housework still falls to me and the majority of the kids taxi service. DH just hasn’t the time to do much.
Starfire hows the numbness. When I got carpel tunnel it started in the middle fingers.

ThNks to whoever said stop antihistamine e at 5. I’ll stop and hope tomorrow is ok too.

I’ve had a lovely delivery of cards fliers chocks and Mext gift voucher today from the Mims at my kids dance classes. I’m really touched as I do t know them all that well. It’s finny how you can be surprised by the kindness of people you don’t know all that well.

Watching celebratory bake off now, don’t think I can tolerate the cancer stories on it though in case they are not positive. πŸ™ˆ


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Re: January chemo starters ?

I know Mai, I couldn't believe that even water tastes horrible! I found that when lack of taste buds were at it's worst, hot choc was quite a good drink as I could vaguely taste that! x

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Re: January chemo starters ?

Shocked, sending hugs. I suffered a lot with my mouth. Sore, couldn't taste or everything tasted horrid, even water. Try having warm drinks as these are easier when you can't taste and you need to keep hydrated. I found cold drinks hard to tolerate, possibly due to oversensitive mouth. Xxx
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Re: January chemo starters ?

Starfire, glad to help out. The chemo train is a tough ride at times. As you approach half way you feel you've lost who you were and can't quite see the end either. Hang in there, you'll get through it. Xxxx
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Re: January chemo starters ?

Fab news CT , had my bloods today to see if my count is up ready for Thursday , I’m hoping so too so I can say fec off to fec , it will be crap if I have to deviate from my plan !!!
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Re: January chemo starters ?

Thanks Shocked, yes I am feeling marginally better today.  I'm worried tho if the taste problem gets worse with every cycle?  Really not looking forward to any more 😝

All the best with your next cycle CT πŸ’ͺ

That's awesome Rosie, love it! πŸ‘

 

X 🐟 X

 

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Re: January chemo starters ?

Crazytimes fab news - it’s a weird feeling being pleased about chemo going ahead isn’t it. Shame your OH feels he couldn’t face being with you for your chemo - has he asked how you feel about that? Stay brave lovely lady xx 

Shi Community Champion
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Re: January chemo starters ?

Rosie H, beautiful thanks for sharing i’ll Spread the word πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: January chemo starters ?

No delays for me Yay! All results Ok and feeling sooo much better. Onc happy to proceed as planned. I did giggle at myself for being happy that I'm still going to feel like poo next week lol!
Shi - no he won't come with me. He came to the unit to look aroubdxwhen I was first informed I needed chemo and said that he couldn't face coming - so I go on my own, with my portable DVD player and Harry potter books to keep me company