Sorry Starfire. I guess this only goes to show how we all react differently to what is being thrown at us and you have had much more than your fair share and now peripheral neuropathy!! XX
Well ladies, I went commando today - head wise I hasten to add! No hat, no scarf, no wig, just me and my baldness went to Tesco’s to do a bit shopping. Unusually for me, I did put on a bit of lipstick as, with no hair, no breasts, jeans, t-shirt and trainers, I wanted to give the other shoppers a clue to my gender. I felt good. I think maybe IT WAS THE STEROIDS THAT MADE ME DO IT as I took my first increased dose today in preparation for my first T tomorrow. The possible peripheral neuropathy side effect does worry me. I already have discolouration of four of my nails, with some prickling in some of my fingers, palms and soreness of the soles of my feet. I thought this was more usual with T, I didn’t realise it happened with Fec. Anyway, onwards and upwards, only three more to go.
Shi, can I have a pint of your ”upbeat ness”
xx to all
Congratulations James...half way there!!
i had two T sessions and whatever neuropathy I had has now pretty much cleared...has taken a few weeks with a few twinges. So hopefully the difference between 2 sessions and 3 won’t be too bad for everyone.
Starfire did the fast make ant difference for you? Xxx
Starfire - don't know what to say you seem to have drawn the short straw with SE from the start and taken all of the worst possible. Peripheral neuropathy is the one SE that I can't cope with as the thought of permanent nerve damage is so scary, the onc just keeps dismissing my concerns as worrying about something that may not happen but as I already have some neuropathy that they are blaming on PD drugs as its a known SE I think I'm being rational being wary of T I'm being human
Jamesy - yay half way hope the SE are kind to you this round.
Direct from onc ward. It’s Peripheral Neuropathy. Got to discuss with consultant next meeting to see if need to reduce the dosage,,,, again! A bag of meds to take home. I’m to keep my eye on the floaters and return if still around in seven days.
Enjoy the rest of the day ladies xxx
Dealdoh thank you for your advice but I tried MOVICAL and was blue lighted to hospital due to an allergic reaction. Strange I know (especially as another forum member having had Abraxane chemo had the same reaction recently too) but onc has referred me to an allergy specialist now xx
May I suggest movicol/cosmocol for constipation. I tried senna and the lactulose with very little result, which resulted in an unfortunate log jam🤪
Oh god Starfire a dancer...Id have loved to do that. Far too shy as a kid though.
We went to see Thriller at new year and thats all dancing..I was mesmerised.
Going to def look at Matthew Bourne, just did a ticket alert on Ticketmaster.
Has anyone done opera? Would like to try that at least once too..xxx
I tried The Good Place the other night... it is very nuts, Flying prawns etc... I couldn’t stop focusing on the fact that the main female lead is Anna from Disney’s Frozen... a film well known in our house.
breaking Bad helped me through the first two.... my favourite series of all time I think!
Have a good day x
Jamesey good luck today.
will try drinking more water today as you advise to see how the floaters go!
Yes I liked Requiem on iPlayer. If you like Mulder off the ex files Californication is worth a watch. Be warned it is very saucy and not for everyone. Makes me laugh though at times like these...
i did a Micheal Bourne Cinderella Ballet workshop with my daughter at a festival last year. I sat in a chair and danced along. Really frustrating as I used to be a dancer.. We took her to see The Little Mermaid by northern ballet for her 5th birthday. Lovely.
I think it’s common for T to blast the tumour if FEC didn’t Aliand! My friend from the someone like me Service had 60% size reduction on T and none on FEC.
easter will be chocolate free for me as well this year. It’s true that most of our treatment timings have clashed with usual fun times 😭😩
im going to phone the onc ward now as last night I had to take pain killers for my painful throbbing feet. I’m sure it’s Neuropathy.
lots of love xxx
Starfire...I get a few floaters but eyesight has def gone a bit off track especially for the first week after FEC, didnt happen with T though, Im going to tell the onco tomorrow and about weird coordination issues I had too.
Im currently watching The Good Place...pre warning its about being dead but in a very funny lighthearted way, very easy TV.
Im also sadly watching the first series of Walking Dead again, which I love.
Might have another run through of Breaking Bad too...
Did anyone do Orange is the New Black which is brilliant.
Also reading awesome book at the moment Red Sparrow...trying to get thorugh it so I can go and see the film but it is brilliant.
The ballet...sounds amazing, Ive never been to one but would love too one day. Do you have to dress up? Im fascinated by dancers and how strong they are...
Sorry ladies Im refusing to swim now Im on the raft with Idris and Thor..xx
Aliand - Haven’t been to the ballet for years - sounds fab.
I think a few of us are up for the worst SE’s Easter weekend booooooooo. So far chemo has claimed my birthday, my mums 70th, mother’s day, Valentine’s Day and is due to claim Easter and my OH’s birthday- every single one of them has been a few days after my chemo sessions. Oh and surgery took Christmas away -come the summer I am going to be ready to party 🎉 big time, may have to borrow Shi’s playlist!!
Today is going to be a good day for getting back in the water and swimming like crazy. 🐟🐟🐟🐟🐟
Shi, ha ha - the chocolatiest of cakes! 😝💩
Yeah Starfire, I get those. Sometimes so vivid I think I've seen something that isn't there. Shocked could be right about the dehydration theory, I've not been drinking as much as I normally would and I've noticed them more. So looking forward to being able to drink water again! Gotta love a Netflix series, I've not seen that one but highly recommend The Sinner. I'm currently watching Requiem which is on BBC, I love all things spooky and/or scary.
All the best for today Jamesy, hoping SE's aren't too awful for you 🐠🐟🐠🐟
RosieH goodish news you are back on track!
So jealous of the big 💩Aliand! I’m still struggling with numb index, middle and ring finger tips, painful ankles, fatigue and the dreaded constipation. Having Lactulose twice daily 😬😬😬
The other her new SE I am having is floaters.... obviously not of the 💩 kind but visually, especially when looking at the sky... it looks like fireworks going off? Has anyone else experienced this.
Have started on my new compulsive Netflix relay for this round... Californication. Anyone else seen it?
Lots of love xxx
before I start Shocked I’m using Aloe toothpaste, touch wood no ulcers yet!!!
Aliand congratulations one of the most beautiful things in life is a great poo!!!!
......but (and I don’t want to steal Aliands poo thunder) I got a call today and the FEC is working
Who’d have thought that being told you need 3 more sessions of poison injected into your veins could bring such utter joy!!!
Inflamatory BC biopsy also negative...woo woo back on the chemo train
Lol, way to go Aliand! 👍💩
Shocked, that doesn't sound fun. Hope you can get some Difflam like the others have suggested. Thankfully the yuck taste in my mouth seems to be fading. Ooh ooh I can see my "week of something resembling normal" just on the horizon 😃🌅
All the best everyone, swim swim xx
The things this journey makes you appreciate!!!
Anyone any advice on mouth ulcers - nausea gone and tastbuds returning to somewhere near normal but I feel like I have been chewing a cactus - I literally have over 20 mouth ulcers just come up on my tongue and they flipping well hurt loads!!! I am prone to the odd one or two mouth ulcers but this is extreme my tongue is actually a different shape.
CT yay you’re ready...that’s good news...
I’m still waiting for my decision...if I’m staying on the chemo train I’ve been moved back to Monday....which means treat weekend, apart from the fact I’m considering fasting 😩....
Any ladies that go alone just remember we are all there with you...xxx
I know Mai, I couldn't believe that even water tastes horrible! I found that when lack of taste buds were at it's worst, hot choc was quite a good drink as I could vaguely taste that! x
Thanks Shocked, yes I am feeling marginally better today. I'm worried tho if the taste problem gets worse with every cycle? Really not looking forward to any more 😝
All the best with your next cycle CT 💪
That's awesome Rosie, love it! 👍
X 🐟 X
Crazytimes fab news - it’s a weird feeling being pleased about chemo going ahead isn’t it. Shame your OH feels he couldn’t face being with you for your chemo - has he asked how you feel about that? Stay brave lovely lady xx