Member
Posts: 53
Registered: ‎15-11-2017

Re: January chemo starters ?

Hi Dealdoh...yes that’s what they’ve said which is a bit of a bummer but not the end of the world!!

im guessing having it post Chemo means at least I can’t get cellulitis when my immune system bows out.

Well done Tracey on the trip out...I’m with you dealdoh on the feeling a bit fraudy especially reading Fec’s reattion. I’m wondering if it’s because I’ve started with the T and not the FEC. 

Fec you’ve got a baby too bless you, bloody disease doesn’t discriminate does it...hopefully by Monday you may have settled a bit. 

I just popped out to do a few bits but unfortunately my tummy is a bit rumbley shall we say which is resulting in a certain aroma...I may not feel too bad but I’m not entirely sure the same could be said for anyone in the M&S queue behind me!!! Xx

Member
Posts: 16
Registered: ‎29-12-2017

Re: January chemo starters ?

FEC in hell you are really suffering bless you. Sounds absolutely awful. Have you called to see if they can give you any alternative anti sickness meds? Was that the first docetaxel for you?
RosieH - yes I managed to get to the park for an hour with my sister and her children. Was lovely for my little one. Yes it’s hard work with youngsters but it also gives you something to focus on. I’m staying with my parents at the moment as my hubby works abroad and isn’t due home until next Thursday. They are absolutely fab but it breaks my heart 💔 that they are watching me go thorough this. I’m also 45 and so used to being active and independent so this has really clipped my wings.
Aliand - yes I want to try and get out walking as much as I can just to keep me active and give me a focus. Fingers crossed I can continue to do so.
Love to you all ladies xx 💪💖
Member
Posts: 24
Registered: ‎25-10-2017

Re: January chemo starters ?

Hi Ladies

 

Im day 2 and so far so good.  Slept well last night and while I woke with a headache it was only mild.  Trying to drink loads and taking my medication like a good girl.  Feeling a bit of a fraud at the moment, as I seem to have got off very lightly but waiting for the s@#*t to happen. 

hugs for those who are not faring so well and Aliand thanks for the positive words as usual.  

Rosie when you talk about radical do you mean mastectomy and total axillary clearance.

Member
Posts: 28
Registered: ‎27-12-2017

Re: January chemo starters ?

FEC as a friend told me, dont worry in a few days you will feel so much better, I hung onto that and believe me it was true. I'm keeping a diary of how I feel everyday, they suggested I did and I think it will be god to look back on.

I'm on different treatment to you but on day 4 I was suffering from headaches, murky brain, lethergy, and horrible constipation. Day 5 it was lifting and by day 6 I was almost back to normal. Took to about day 7 for tastes to be more normal though water is only just tasting better as of yesterday. I'm now day 11 and I'm totally back to myself, housework and taxi driver. The only thing I'm not doing is mixing with others. DH is so worried about me picking anything up as theres so much flu around and some of it isnt covered by the flu vaccine and also pneumonias that are landing healthy people in ITU. So amazon and ASOS are my best friends and I send my teenage kids or friends out to get what I need.

 

The other advise my friend gave me is when people offer to help use them. People want to help and feel good that they have done something for you. If you keep saying no some will stop asking. If youve people offering to do school run take it up. If people will take your daughter to play after school say yes please. Don't think you have to do this on your own you don't. And this is coming from the woman who used to bend over backward trying to do things for other people but NEVER asking for anything from anyone unless I was absolutely desperate. I'm learning.

 

Tracy12059 hope you got to the park, my daily walk is a lifesaver getting out and about.

 

 

There is light at the end of the tunnel with each cycle. I much less worried about my second dose. In fact I'd have it this week if I could. Get them over and done with, it's going to be a long 24 weeks !

 

Keep in touch girls and keep smiling xx

Member
Posts: 34
Registered: ‎23-10-2017

Re: January chemo starters ?

[ Edited ]

Hi RosieH,

 

thank god for my husband who is doing everything for my daughter who is 5.

 

real test starts for me on Monday when he goes back to work!

 

Let me me know how you are tomorrow x

Member
Posts: 53
Registered: ‎15-11-2017

Re: January chemo starters ?

Crikey Fec...bless you. Only day two over here. 

Tracey I feel for you Mummies so much. Mine are grown although I’m only 46 and it’s hard to watch their pain. 

To be looking after babies must be so so...I don’t know the word but my thoughts are with you xxx

Member
Posts: 34
Registered: ‎23-10-2017

Re: January chemo starters ?

Day 2: steroid red face

Day 3: Vomitting, stomach cramps, nauseous

Day 4: Nauseous, exhausted, pain in bones from injections...so bad!

 

 

Diet of biscuit, greek yoghurt with Manuka, soup and plain bread.

 

anyone else on day 4?

Member
Posts: 16
Registered: ‎29-12-2017

Re: January chemo starters ?

RosieH that’s fab news!
I feel exactly the same. The bright red face and neck are apparently a side effect of the steroids - I called the oncology unit yesterday to double check. I feel almost flu like today - my hips and lower legs ache! I’ve got a slightly fuzzy head too but once I get some fluids inside me that seems to lift they feeling . I also woke up in the night with a horrific taste in my mouth and a sore tongue 😛. I think I’m a day ahead of you so will keep you up to date. Hope you have a good day - I’m going to try and take my little boy to the park for an hour - fingers crossed!!! Hugs 💖
Member
Posts: 53
Registered: ‎15-11-2017

Re: January chemo starters ?

Hi ladies

First T down and feeling ok. Not like I want to go dancing ok but not horrific. Strange taste in my mouth and very red cheeks!! Found out yesterday all organs and bones are clear but my Sentinal nodes were positive for cancer. Apparently no change in treatment but when I have surgery it will be a radical!

However back to Chemo and one day at a time it felt awesome to get started on the treatment...hope all you other ladies are doing ok? Xxx

Member
Posts: 83
Registered: ‎11-10-2017

Re: January chemo starters ?

What’s everyone’s hickmans like? I must if turned on to side in night and I’ve dressing had moved and the stitches on the exit side were exposed , so I’ve just wanged another dressing over it ,no bleeding but was worried about the air getting to them , it looks ok so may ring Monday morning and tell them as I’m not due back till Friday for a flush
Member
Posts: 24
Registered: ‎25-10-2017

Re: January chemo starters ?

Ahh Jamesy that made laugh - you sound like a woman after my own heart.  The nurse said it depends on the type of chemo and maybe the way it is administered by I got the impression I was good to go if I wanted to after the three days. Aaparently alcohol doesn’t react well with the antisickness stuff. 

Aliand, the nurse said the injections affect the white cell producing bits of the body and mentioned the long bones and hips.  I still miss the nursing but I wouldn’t go bac as it is now.  I think having been a nurse has helped prepare me a bit for this.  Would you say the same.?

off to bed now to try and catch up on some zzzzs.  Night all - hope it is a good one x

Highlighted
Member
Posts: 28
Registered: ‎27-12-2017

Re: January chemo starters ?

Is everyone on 6 cycles over 18 weeks. I’m being given 8 cycles over 34 weeks. I’ve 1 lymph node involved and there’s evidence of spread within the one breast so I’m assuming that’s why. Must ask.
Dealdoh I was a nurse once upon a time too.
I thought the injections were giving me headaches but the last 3 I didn’t get a headache so ?
Member
Posts: 83
Registered: ‎11-10-2017

Re: January chemo starters ?

I can cope with that I thought you meant the whole 18 weeks , swoon
Member
Posts: 24
Registered: ‎25-10-2017

Re: January chemo starters ?

Thanks Aliand, the cake was good, left over from my birthday on Wednesday and I’m keeping my fingers crossed.  I’m not particularly worried about giving the injections (was a nurse in a previous life) just the possible aches and pains.

Sorry Jamesy.  One of the chemo nurses told me no alcohol for 48hours post chemo and another nurse said no alcohol while taking the anti sickness medication (so three days I guess).

Member
Posts: 83
Registered: ‎11-10-2017

Re: January chemo starters ?

Oh no ! Can i not have a glass of wine !!!!
Member
Posts: 16
Registered: ‎29-12-2017

Re: January chemo starters ?

Hi FEC
If the drugs they have given you aren’t working then yes definitely request it and the domperidone which reminds me of champagne!!! So far they have worked for me although I know it’s still early days! I’ve felt a bit under the weather today with a fuzzy head, extreme tiredness and feeling like I’m jet lagged. I also woke up with a bright red face which apparently is a side effect of the steroids! I looked like I’d been on holiday and forgot my sun cream!
Hope your feeling better this evening xxx
Member
Posts: 34
Registered: ‎23-10-2017

Re: January chemo starters ?

Kirstyp86 how are you feeling? x

Member
Posts: 28
Registered: ‎27-12-2017

Re: January chemo starters ?

Well done Deldoah the battle has commenced. Glad it all went well let’s hope you sail through the next week. If not don’t worry it won’t last x
I had filgrastim injections and they were very easy to give.

You’ve not spoiled it with chocolate cake / that’s a well deserved treat x
Member
Posts: 24
Registered: ‎25-10-2017

Re: January chemo starters ?

Well first one down - yayyy. All went well and feeling ok at the moment.  I have the same medication as you Fec, hope it works.  My hubby made me an omelette when we got in from the hospital,and then I spoiled it by having some chocolate cake.  I hope that wasnt a mistake!,trying to drink plenty but oh my I would love a glass of wine but I do know that that is a no no.

 

Was also given the GCSF injections, which I have to self administer for five days starting on day five. Yuk

 

Glad and to hear that your tooth is feeling better Aliand

 

onwards and upwards ladies x

Member
Posts: 23
Registered: ‎14-12-2017

Re: January chemo starters ?

[ Edited ]

Hi there, i hope you and your mum are doing ok? What is the Alice  band for with the cold cap?


Confuseddaughter wrote:
Hi everyone...

I've been bit quiet on here for a while but mum starts the second part of her journey this week so thought via me, she could be part of this. Lumpsectory done back in November, lovely Christmas now time to start!

Tomorrow she has her first dose of herceptin so it's a good few hours at the hospital tomorrow we are told for observation, then Thursday starts chemo, as she is her2+.

Bit surreal that this day we knew was coming is here... mum is having paclitaxel weekly for 12 weeks and herceptin every three weeks.

We have been following everyones great tips and support, mum has been taking the manuka honey since diagnosis. We got it from holland and barrett, the 24+ one, highest concentration, it's a bit pricey at £55 but they have a penny sale on so you get two large pots for £55 which helps and she has a spoon a day! My sister dad and I have all had a cold the last month and mums the only one who hasn't! Think we need to start taking it!

Lots of deliveries in the post this week, paxman shampoo and conditioner, hair nets for sleeping in, silk pillowcases which are meant to be better for the scalp, eyebrow stamps (!), wide comb,

Confuseddaughter wrote:
Hi everyone...

I've been bit quiet on here for a while but mum starts the second part of her journey this week so thought via me, she could be part of this. Lumpsectory done back in November, lovely Christmas now time to start!

Tomorrow she has her first dose of herceptin so it's a good few hours at the hospital tomorrow we are told for observation, then Thursday starts chemo, as she is her2+.

Bit surreal that this day we knew was coming is here... mum is having paclitaxel weekly for 12 weeks and herceptin every three weeks.

We have been following everyones great tips and support, mum has been taking the manuka honey since diagnosis. We got it from holland and barrett, the 24+ one, highest concentration, it's a bit pricey at £55 but they have a penny sale on so you get two large pots for £55 which helps and she has a spoon a day! My sister dad and I have all had a cold the last month and mums the only one who hasn't! Think we need to start taking it!

Lots of deliveries in the post this week, paxman shampoo and conditioner, hair nets for sleeping in, silk pillowcases which are meant to be better for the scalp, eyebrow stamps (!), wide comb,Alice bands for the cold cap and have been told that whatever you do reg the cold cap, just make sure it fits right!

I know I'm not going through this myself but have been there every step with my mum and am always reading everything posted on here, it helps. Was thinking this morning, of all the emotions felt the last few months more so at the time of diagnosis, feel like they are resurfacing a bit and try to not get upset but we are ready for this now. Also will show mum the responses and comments from everyone so she knows she's not the only one! (She's not too technological!)

Thinking of you all and here's to the next few months. Reassuring knowing you are all out there going through similar experience and I think when mum goes to the ward Thursday she will see that herself.

Take care everyone and if starting, sending you hugs and support

Xxxxxx



I know I'm not going through this myself but have been there every step with my mum and am always reading everything posted on here, it helps. Was thinking this morning, of all the emotions felt the last few months more so at the time of diagnosis, feel like they are resurfacing a bit and try to not get upset but we are ready for this now. Also will show mum the responses and comments from everyone so she knows she's not the only one! (She's not too technological!)

Thinking of you all and here's to the next few months. Reassuring knowing you are all out there going through similar experience and I think when mum goes to the ward Thursday she will see that herself.

Take care everyone and if starting, sending you hugs and support

Xxxxxx

Confuseddaughter wrote:
Hi everyone...

I've been bit quiet on here for a while but mum starts the second part of her journey this week so thought via me, she could be part of this. Lumpsectory done back in November, lovely Christmas now time to start!

Tomorrow she has her first dose of herceptin so it's a good few hours at the hospital tomorrow we are told for observation, then Thursday starts chemo, as she is her2+.

Bit surreal that this day we knew was coming is here... mum is having paclitaxel weekly for 12 weeks and herceptin every three weeks.

We have been following everyones great tips and support, mum has been taking the manuka honey since diagnosis. We got it from holland and barrett, the 24+ one, highest concentration, it's a bit pricey at £55 but they have a penny sale on so you get two large pots for £55 which helps and she has a spoon a day! My sister dad and I have all had a cold the last month and mums the only one who hasn't! Think we need to start taking it!

Lots of deliveries in the post this week, paxman shampoo and conditioner, hair nets for sleeping in, silk pillowcases which are meant to be better for the scalp, eyebrow stamps (!), wide comb,Alice bands for the cold cap and have been told that whatever you do reg the cold cap, just make sure it fits right!

I know I'm not going through this myself but have been there every step with my mum and am always reading everything posted on here, it helps. Was thinking this morning, of all the emotions felt the last few months more so at the time of diagnosis, feel like they are resurfacing a bit and try to not get upset but we are ready for this now. Also will show mum the responses and comments from everyone so she knows she's not the only one! (She's not too technological!)

Thinking of you all and here's to the next few months. Reassuring knowing you are all out there going through similar experience and I think when mum goes to the ward Thursday she will see that herself.

Take care everyone and if starting, sending you hugs and support

Xxxxxx



Xx