13-01-2018 08:37 PM
I love that you ladies can make me laugh on here. So glad I wasn’t standing in that queue Rosie.
I asked about your surgery as I had a double mastectomy in November and because there was evidence of spread into left axillary nodes I had total axillary clearance on that side. I had already had total right axillary clearance following a WLE on the 16 years ago. I know lymphoedema is always a concern but you just have to adjust and be careful. Ive managed perfectly well for the last sixteen years. It is now slightly more problematical as the potential is for lymphoedema in both arms, so unless it is an emergency, blood will need to be taken from somewhere else (usually feet) and blood pressure on the leg. I have already bought a couple of lymphoedema medic alert bands, just in case for any reason I can’t warn people off!
13-01-2018 05:10 PM
13-01-2018 05:05 PM
13-01-2018 04:47 PM
Hi Dealdoh...yes that’s what they’ve said which is a bit of a bummer but not the end of the world!!
im guessing having it post Chemo means at least I can’t get cellulitis when my immune system bows out.
Well done Tracey on the trip out...I’m with you dealdoh on the feeling a bit fraudy especially reading Fec’s reattion. I’m wondering if it’s because I’ve started with the T and not the FEC.
Fec you’ve got a baby too bless you, bloody disease doesn’t discriminate does it...hopefully by Monday you may have settled a bit.
I just popped out to do a few bits but unfortunately my tummy is a bit rumbley shall we say which is resulting in a certain aroma...I may not feel too bad but I’m not entirely sure the same could be said for anyone in the M&S queue behind me!!! Xx
13-01-2018 04:33 PM
13-01-2018 04:22 PM
Im day 2 and so far so good. Slept well last night and while I woke with a headache it was only mild. Trying to drink loads and taking my medication like a good girl. Feeling a bit of a fraud at the moment, as I seem to have got off very lightly but waiting for the s@#*t to happen.
hugs for those who are not faring so well and Aliand thanks for the positive words as usual.
Rosie when you talk about radical do you mean mastectomy and total axillary clearance.
13-01-2018 02:49 PM
FEC as a friend told me, dont worry in a few days you will feel so much better, I hung onto that and believe me it was true. I'm keeping a diary of how I feel everyday, they suggested I did and I think it will be god to look back on.
I'm on different treatment to you but on day 4 I was suffering from headaches, murky brain, lethergy, and horrible constipation. Day 5 it was lifting and by day 6 I was almost back to normal. Took to about day 7 for tastes to be more normal though water is only just tasting better as of yesterday. I'm now day 11 and I'm totally back to myself, housework and taxi driver. The only thing I'm not doing is mixing with others. DH is so worried about me picking anything up as theres so much flu around and some of it isnt covered by the flu vaccine and also pneumonias that are landing healthy people in ITU. So amazon and ASOS are my best friends and I send my teenage kids or friends out to get what I need.
The other advise my friend gave me is when people offer to help use them. People want to help and feel good that they have done something for you. If you keep saying no some will stop asking. If youve people offering to do school run take it up. If people will take your daughter to play after school say yes please. Don't think you have to do this on your own you don't. And this is coming from the woman who used to bend over backward trying to do things for other people but NEVER asking for anything from anyone unless I was absolutely desperate. I'm learning.
Tracy12059 hope you got to the park, my daily walk is a lifesaver getting out and about.
There is light at the end of the tunnel with each cycle. I much less worried about my second dose. In fact I'd have it this week if I could. Get them over and done with, it's going to be a long 24 weeks !
Keep in touch girls and keep smiling xx
13-01-2018 02:29 PM - edited 13-01-2018 02:32 PM
thank god for my husband who is doing everything for my daughter who is 5.
real test starts for me on Monday when he goes back to work!
Let me me know how you are tomorrow x
13-01-2018 02:12 PM
Crikey Fec...bless you. Only day two over here.
Tracey I feel for you Mummies so much. Mine are grown although I’m only 46 and it’s hard to watch their pain.
To be looking after babies must be so so...I don’t know the word but my thoughts are with you xxx
13-01-2018 01:57 PM
Day 2: steroid red face
Day 3: Vomitting, stomach cramps, nauseous
Day 4: Nauseous, exhausted, pain in bones from injections...so bad!
Diet of biscuit, greek yoghurt with Manuka, soup and plain bread.
anyone else on day 4?
13-01-2018 11:44 AM
13-01-2018 11:29 AM
First T down and feeling ok. Not like I want to go dancing ok but not horrific. Strange taste in my mouth and very red cheeks!! Found out yesterday all organs and bones are clear but my Sentinal nodes were positive for cancer. Apparently no change in treatment but when I have surgery it will be a radical!
However back to Chemo and one day at a time it felt awesome to get started on the treatment...hope all you other ladies are doing ok? Xxx
13-01-2018 11:13 AM
12-01-2018 11:55 PM
Ahh Jamesy that made laugh - you sound like a woman after my own heart. The nurse said it depends on the type of chemo and maybe the way it is administered by I got the impression I was good to go if I wanted to after the three days. Aaparently alcohol doesn’t react well with the antisickness stuff.
Aliand, the nurse said the injections affect the white cell producing bits of the body and mentioned the long bones and hips. I still miss the nursing but I wouldn’t go bac as it is now. I think having been a nurse has helped prepare me a bit for this. Would you say the same.?
off to bed now to try and catch up on some zzzzs. Night all - hope it is a good one x
12-01-2018 10:52 PM
12-01-2018 10:19 PM
Thanks Aliand, the cake was good, left over from my birthday on Wednesday and I’m keeping my fingers crossed. I’m not particularly worried about giving the injections (was a nurse in a previous life) just the possible aches and pains.
Sorry Jamesy. One of the chemo nurses told me no alcohol for 48hours post chemo and another nurse said no alcohol while taking the anti sickness medication (so three days I guess).
12-01-2018 09:55 PM