Well AC#2 was uneventful, the nurses are all so nice which really helps a lot. This time I was nervous but not terrified like the first time around, just knowing what's to come made it easier somehow. The good news was that my blood counts including neutrophils were "all excellent, better than before you started"!!! Not so happy about having to have a neulasta injection tomorrow, but I definitely don't want another trip to hospital.
Now I'm home waiting for side effects to kick in.... oh joy. Do the rest of you come home and rest, or just do normal stuff until you can't any more?
Oh and I didn't manage to shave last night - I got my husband to cut as close to the scalp as he could with scissors (we both shed a few tears!), then got into the shower with the intention of shaving the rest, but I couldn't see what I was doing, the razor was getting clogged up etc etc so I gave up and went to bed. So my current new look is very mangy and motheaten with obvious scissor marks all over my head. More concentration camp than proper bald. I still get a shock every time I see myself in the mirror. The kids have been ok, lots of extra hugs from my 7yo (as if to reassure herself I'm still the same mum underneath), but not entirely comfortable yet.
Hugs everyone & good luck G, MMJJ, Wantolive & anyone else also having treatment today.
sunnydaze, yes good carrier oils would be coconut, castor and for those with tender scalps almond oil is a very soothing carrier. You'll find biotin (b vitamin) is also used in many shampoos that promote hair growth and if you take up to the EVA you won't do yourself any harm - however do run this by your onc so they know. I checked I could do all of this first.
I don't know if any of you are near a Haven centre, if so there might be a herbalist there who can supply you with an oil for your scalps. I know there is one at the Haven in Fulham, London.
I know G, i am a bit obsessed I think (!) probably because I lost so much hair before. I was devastated. At the moment I still have mine but aware that could change tomorrow as this is my first time having chemo so unsure how it will affect me and when.
Wantolive, I hope you get some rest before tomorrow. Will be thinking of you all xxx
Hi B74 and sunnydaze, the reason live yoghurt and sourdough are not advised is they both contain bacteria, sourdough bread is made with a 'starter' which is a combination of yeast and bacteria. Ordinary bread is made with only yeast which isn't bacteria. I miss both but for what is a relatively short period in my life of treatment I have decided not to take any risks and follow the advice given, frustrated though as live yoghurt protects against thrush which I have read can be a s/e of EC and Paclitaxel. Am making do with supermarket greek style yoghurt
G, you asked about hair supplements further down the thread. I've had hair loss before from anaemia which was really upsetting. I'm prepared if it happens to me again this time from chemo but I decided to do all I could to prevent it, including cold cap. I asked my onc if I could take biotin and b complex throughout chemo and she said yes but I had to stick to the EVM, for biotin it's 900ug. Rosemary oil also good for the scalp (came out as good as minoxidil in trials) and vitamin d oil. Also, if your internal vitamin d level is low (which is really common in the northern hemisphere) hair won't grow as fast, so might be worth asking them to check your vitamin d, if they haven't before you began chemo. Finally, I swear by Watermans shampoo for fast hair growth. Also to avoid build-up neutrogena /t-sal shampoo is excellent. I hope this is of use maybe.
Good luck to everyone for the next round xx
Glad you're feeling a bit better today Stuckat14 :-) If it's any consolation I suddenly seemed to emerge from the land of spaced out oddness yesterday exactly a week to the day of my first chemo and feel pretty much back to my normal self now. It was very strange, almost like someone had switched my brain back on. My mouth feels rather revolting though so that's at least one sign that the drugs are still working their magic.
Re: hair loss - for everyone curently shedding - does it all start to shed at the same time from all areas ?
There are parts of me I haven't seen hairless for years! I fear the drains will be blocked in no time.
Re: kids - yes it adds a whole new layer of cack to what is effectively the worst thing I've ever been through (and oh how I used to whinge about work/childbirth/life). It's the endless worry that I'm screwing up my seven year olds childhood versus the stark realisation that if I don't take these nasty drugs I will be screwing things up for all of them even more. He seems to be coping okay with things although probably getting fed up with repeatedly being asked by me if he's okay. Luckily my two year old is two and therefore remotely disinterested in anything not related to Peppa Pig and the baby is too busy learning to crawl to care if I am bald and sad at times. It is hard with small kids but I fear it would be much harder for you guys who have older children who are far more aware of what's happening and more likely to worry. I take my hat off to you all. I like the idea of the photos though - great idea. Soon we will have luscious locks again.
Hope y'all have a good day :-)