Hi Stuck at 14
It was day 9 before my food started to taste normal and after that I had much more energy.
It's day 16 now and my hair has started pulling and falling out - it's time to brave the shave - my husband wants to do it - I might stick it out for another day or 2 - I didn't think it would be this hard to do. I had several friends who were going to help - guess what - all got colds. I'm not sure how short to go - any suggestions please.
I love all the tips that we share on here - it really helps.
Hugs to all
I had emend. But still feel bit sicky. Not a lot. But still feel I want to take one of my prn (as needed) anti nausea tablets. Anyone else done that, or just brave out the slight sickness.
Hugggsss to all x
MaMaJuJu - yes I'm getting #2 on Friday as well (assuming my WBCs are back up), G is too I think. I'm dreading it after horrendous #1, but in a strange way I kind of want it done too, because then I'll be one closer to the end. I complained to my onc about the severe nausea especially in the first 24 hours and so he's adding Ativan/Lorazepam (which I find odd because I thought it was for anxiety/sleeplessness rather than nausea?), here's hoping it helps. Maxolon/metoclopramide did nothing for me. I'm also going to be getting filigrastim shots (for the WBCs) & taking Clarantyne, so lots of extra drugs for my poor body to cope with!!! Eeek.
Wantolive - welcome and very sorry you have to be here. I'm 44 too (with 3 kids) and it all sucks SO much, but at least here we are all going through something similar so understand in a way that's hard to if you haven't experienced it. Let us know how you get on with everything.
I hope you are all well and I would like to give a warm welcome to the newbies.
I haven’t checked in for a wee while; I just wanted some time to get over the first chemo session.
B74, sorry to hear that you have ended up in hospital, I hope you are on the mend and get out soon.
I have decided that tomorrow is the day I get my hair shaved off. My hairdresser is going to do it for me. I am feeling nervous and at this point in time I have no idea how I am going to feel when it does actually happen. My hair isn’t coming out in chunks but it is starting to come out so I would rather take control and get it done. I have always had the mindset that it is going to grow back in but I shall see how I feel when it actually happens.
My next chemo cycle is on Friday and I am starting to get anxious already as my first cycle wasn’t the best. I am hoping they will tweak my anti-sickness and I won’t feel as bad. Fingers crossed.
Anyone else getting their chemo on Friday?
I hope everyone is well.
Semding lots of love xxx
Hi G, i'm not far behind you, second EC will be next Tuesday 29th. Also have hormonally responsive cancer (PR8 and ER8) not discussed my hormone treatment yet, I am assuming it will be tamoxifen. I hope it goes ok for you this Friday with number 2. I cold capped too and using vitamin d oil at night on my scalp, I'm guessing from what others have written that this week might be the week it sheds some! Good luck to everyone having their second session soon. xx
Hi ladies & welcome to the newcomers to our January party!
On the topic of ovarian suppression - I actually asked my onc at the first appointment about getting my ovaries removed - my sister died last year of ovarian cancer (yes it's been a really awful year) so it's something I was already worried about - even without the effect of oestrogen on my ER+ cancer. (Although all the doctors keep telling me her cancer was unlikely to be genetic - even with my BC diagnosis - because she had a very rare type & we have no other family history etc etc).
The onc said we'd discuss again after chemo, but they would give me injections to suppress ovarian function for a while to see how I felt, before making the decision to have irreversible surgery. He said normally they just give tamoxifen to block oestrogen from the cancer cells, while still allowing oestrogen to be produced and do all its normal female things in your body.
The only person I know who's had ovarian suppression DURING chemo had it to try & preserve her fertility (I think by temporarily shutting down the ovaries to stop them being damaged). Not a concern for me as I'm done having kids!
I have been following the thread all month and I have picked up lots of tips and advice - thank you!
So far I have had a lumpectomy with two sentinel lymph nodes removed, one of which contained cancer. I then had an axillary lymph node clearance. My tumour was Her 2 positive and ER positive so I will be treated with Herceptin alongside chemotherapy and then radiotherapy to finish.
I haven't started chemo yet but I am meeting with the onologist tomorrow to find out what's in store for me.
Good luck to everyone undergoing chemo at the moment.
Hi Bluetit! welcome to the party!
I'm 42 and in a similar boat. Had a PICC line put in last week before my first FEC. Procedure was fine (albeit a little surreal) and I'm sure it's better than messing up veins in the long run.
I was given a leaflet about ovarian supression by my BCN but the oncologist hasn't said anything about it so not sure what's going on there. I'm also in the high scoring oestrogen bracket but I suspect having two babies in the last two years didn't help that one little bit...
I totally echo the nesting theme - the batch cooking came out in force last weekend so now we have nothing but chilli in the freezer. Duh. Didn't quite reach the cleaning frenzy of pre-mat leave this time...
Sunnydaze - when I got a period during chemo I was a bit panicked but the chemo line said it was normal to have one or two. Some people get them return after chemo finishes, but so far I haven't. I think i was 8/8 ER+ but not been mentioned about ovary suppressants. It will be interesting to know what the guidelines are for it.
I'm late to the January party - due to have my first EC on 29th Jan (4x EC, 4xT).
PICC line is going in this Thursday.
I'm having the Ovarian supression too - my 1st injection is on EC day.... eek.
I've skimmed through your Jan thread and written myself some notes along the way.... thank you! x
Well done ladies, another week ticked off and you are all dealing with hair issues really well... be strong!
Sunnydaze - I think you asked about periods. I was 47 when I started my chemo (almost 48) and was still having regularly periods, I had one during my first cycle of chemo (FEC) and then I have had no more since, I think a couple of other ladies on my thread were the same. I am now on Tamoxifen and I think no more periods for me... some bonus to this whole procedure. I haven't been advised to have injections either but I know some do.. not sure of the whys and wherefores, perhaps age?
LB, I asked people visting not to hug me, I explained why and they seemed to understand and then kept a bit of a distance - lol. I think that's the only thing we can do. X
Anyone else here doing 4 x EC followed by 4 X paclitaxel ?
Hello Ladies, I am with you all on the hair loss. Sunnydaze I am one day behind you on treatment, had my second FEC 100 yesterday. Still did the cold cap but the nurse said it rarely works with the high dose, gives better results with FEC 75 so that might be something to consider for those about to start treament. Washed my hair this morning and still loads coming out but when I look in the mirror there is still some left, more than I thought. I will keep persevering before I brave the shave.
I feel pretty good today so that is something, my nurse also said you can expect to feel 5% more fatigued with each treament but everyone is different - I have asked that question before but she is the first to give a definite answer. Start my injections this evening, not looking forward to it. But am now a third of the way through the chemo journey.
Sending good vibes to everyone.
Thanks LB I thought I'd cracked the nausea today but woke up feeling a bit quesy so had another sneaky anti-nausea tablet. The steroids are making me ravenous though! I shall definitely follow up your umami tip and stock up on some crackers. I may be the size of a small house when this is over...
And Happy Birthday! Hope you have a great weekend
G - thanks also for your advice it's such a strange thing to be going through. I am constantly shuttling between rational and irrational thoughts and arguing with myself (mainly at 3am!). This is certainly the oddest thing I've ever been through!
Hi everyone, I've been catching up on all your posts, those getting through the first few days after chemo and those getting ready for the next one and those still waiting to start. This is a tough business! Sunnydaze & G I'm in a similar place with the hair. My scalp has been prickly and painful for days, I am shedding random hairs everywhere, I know for a fact that if I gave a tug it would just come out by the handful, so I am not touching it at all! As a consequence my hair is unwashed, unbrushed and basically just horrible looking, but I'm completely unable to accept the inevitable. Maybe tomorrow if I'm feeling stronger I'll do something about it.
I just got out of hospital today (after pleading with the registrar to please let me go - they wanted to monitor me for another day!) and am a physical and emotional wreck. I barely slept for the 3 nights (constant noise and disruptions all night - I'm not a great sleeper at the best of times). That on top of the IV antibiotics, bad hospital food and lack of exercise have left me feeling 10 times worse than when I went in. Far harder though was seeing all the very sick people on the oncology ward with me and hearing their stories. Obviously the hospital has the worst case scenarios and not all the people who've recovered and been 20+ year survivors, but it really did my head in. I'm hoping a good night's sleep at home will restore some of my positivity. There are only a few days until I have to start fasting for AC#2 on Friday, so I really need all my strength! It's a bugger because I was feeling so good before I went in.
Hugs & strength to all of you xx