cancel
Showing results for 
Search instead for 
Did you mean: 

January 2019 chemo starters

Member

Re: January 2019 chemo starters

Hi B74 and sunnydaze, the reason live yoghurt and sourdough are not advised is they both contain bacteria, sourdough bread is made with a 'starter' which is a combination of yeast and bacteria. Ordinary bread is made with only yeast which isn't bacteria. I miss both but for what is a relatively short period in my life of treatment I have decided not to take any risks and follow the advice given, frustrated though as live yoghurt protects against thrush which I have read can be a s/e of EC and Paclitaxel. Am making do with supermarket greek style yoghurt Smiley Frustrated

 

G, you asked about hair supplements further down the thread. I've had hair loss before from anaemia which was really upsetting. I'm prepared if it happens to me again this time from chemo but I decided to do all I could to prevent it, including cold cap. I asked my onc if I could take biotin and b complex throughout chemo and she said yes but I had to stick to the EVM, for biotin it's 900ug. Rosemary oil also good for the scalp (came out as good as minoxidil in trials) and vitamin d oil. Also, if your internal vitamin d level is low (which is really common in the northern hemisphere) hair won't grow as fast, so might be worth asking them to check your vitamin d, if they haven't before you began chemo. Finally, I swear by Watermans shampoo for fast hair growth. Also to avoid build-up neutrogena /t-sal shampoo is excellent. I hope this is of use maybe.

 

Good luck to everyone for the next round xx

LB
Member

Re: January 2019 chemo starters

My husband and I cut my hair and then shaved the rest off - wow - I quite like it 😊 the discomfort of the prickly scalp and the horrible pulling is a thing of the past. I have found that it’s shedding from all over 😊
Good luck to those going for their next session and hugs to all 🤗
G
Member

Re: January 2019 chemo starters

Hi Sparkie2001, just a quickie on the hair. I had long hair and my hair wasvwry important to me, my comfort blanket etc socially. It started to feel like it had been in a tight pony tail for a month and released so it felt painful every time I moved or touched my head. It then started coming out Saturday/Sunday a little every time I touched it, which as you can imagine became my new obsession unless I always messed with my hair subconsciously!! I knew the inevitable would happen as soon as it was washed but I had no choice on Monday after my kettles class, two thirds came out in about an hour with the washing and the combing and this just continued. I had it clipped last night by my hair dresser but right down so I do look pretty bold but at least minimal hair will now fall..I found the emoji for this too, who knew 👩🏻‍🦲! With regards other hair loss, definitely falling from body too but I wouldnt have noticed as such just yet if I wasn’t heightened in looking for hair loss!!! It is emotional every time I have to discuss it with a new good friend or family member but when I am on my own I am okay with it, and I can feel a weight has lifted with the worrying of if, when and how it would happen.

Thank you everyone for advice re eyebrows and eyelashes. I have invested in Revitalash for lashes and one for brows but the brow one references not being used in chemo, can’t recall exactly what it said, I think I took it more that it hadn’t been tested but I’m not sure whether to continue to use or not, will take a look at the other suggestions.

Wishing all the best as we approach a big day for some of us tomorrow and I hope the move into some well deserved good days for others xx
Member

Re: January 2019 chemo starters

I’m still feeling nauseous this morning. Urrgh, (day 6) but going to get up and make some soup, take my mind off things and stop me going stir crazy. Hey Sparkie2001, can’t beat snuggling down to a bit of Pepper Pig when the going gets tough. Incompetent Daddy pig and George’s shower cries. Loved it all. I remember those days fondly.
I’m not usually one for crap memes, but I liked this one. I just stumbled across it as I was searching for a celeriac and fennel soup, as you do.
I think the soup (and the meme) are good for the cold winter days and nights. .Its freezing temperatures out here in the countryside.
“I will love the light for it shows me the way.
Yet I will endure the darkness for it shows me the stars.”
Apologies now, if it’s too crass, being house bound and yucky is getting to me. 🤣Have a grand day ladies and if you are losing your hair, the prickling, migraine heads and raw emotion came as part of that particular hair loss package for me.😢😢😢 It’s all just weather passing us by. It will get better.
Sunnydaze
Member

Re: January 2019 chemo starters

Morning all! 

 

Glad you're feeling a bit better today Stuckat14 :-) If it's any consolation I suddenly seemed to emerge from the land of spaced out oddness yesterday exactly a week to the day of my first chemo and feel pretty much back to my normal self now. It was very strange, almost like someone had switched my brain back on. My mouth feels rather revolting though so that's at least one sign that the drugs are still working their magic. 

 

Re: hair loss - for everyone curently shedding - does it all start to shed at the same time from all areas Smiley Wink ?

There are parts of me I haven't seen hairless for years! I fear the drains will be blocked in no time. 

 

Re: kids - yes it adds a whole new layer of cack to what is effectively the worst thing I've ever been through (and oh how I used to whinge about work/childbirth/life). It's the endless worry that I'm screwing up my seven year olds childhood versus the stark realisation that if I don't take these nasty drugs I will be screwing things up for all of them even more. He seems to be coping okay with things although probably getting fed up with repeatedly being asked by me if he's okay. Luckily my two year old is two and therefore remotely disinterested in anything not related to Peppa Pig and the baby is too busy learning to crawl to care if I am bald and sad at times. It is hard with small kids but I fear it would be much harder for you guys who have older children who are far more aware of what's happening and more likely to worry. I take my hat off to you all. I like the idea of the photos though - great idea. Soon we will have luscious locks again. 

 

Hope y'all have a good day :-) 

 

 

 

MBJ
Member

Re: January 2019 chemo starters

I hope you are feeling better today. I will be looking for the eyebrow stuff you suggest. I am sure when you feel a bit better you will have a go with it.
Member

Re: January 2019 chemo starters

I bought some lipocils stuff from Amazon for eyebrows and lashes. Have felt mainly too horrendous to remember to put it on so far (still in first bad bad week) but saw it recommended on Instagram (@cancerwithasmile) . My kids are 5 and 2 and I've talked a lot about losing my hair- we've joked about it and they've tried on my wig etc but ibdont know how they will cope with seeing me when it actually goes- it's been a very teary week for all of us with me in bed and them having colds and missing their mum etc.
Anyway, I feel a tiny bit better today so fingers crossed it's true and there is an end to the nausea.
G
Member

Re: January 2019 chemo starters

Thank you Sunnydaze for your accurate and kind words. Aren’t children amazing, they are going through something I can’t ever imagine and that is hard as a parent as you always draw on your experience to nurture and lead but we are learning this all together, I guess a different kind of bond will be there at the end of all this.

One thing I wasn’t prepared for was the prickliness u feel when turning over on my pillow ladies, not sure if unique to me or others had this...actually quite a few ow moments 😂

Hey B74, I agree it is another brutal thing to happen to our bodies but I am learning that I have surprisingly quickly got used to the new normal on other things (still emotional but accepting) so I am hoping I will here too 🤞, will see how a full day goes as all I really did today after was hug my hubbie and girls and go to bed!

I am already worrying though about eyelashes and eyebrows as they stand out now and as other areas have started shredding too...always a positive, saving so much time in the shower😳, I am really hoping they don’t start as think that will be hard. Anyone doing anything here to help protect them? Also anyone else going to continue to cold cap after the shave to help stimulate the follicles? Last question, anyone been advised to take any hair supplements etc or do we have to wait until after chemo?

Loads of hugs xx
LB
Member

Re: January 2019 chemo starters

My hair has started to shed in earnest today and I’m surprised at how upset I feel. I thought I was fully prepared and upbeat about it but it feels shocking. You’re right Sunnydaze one step closer to the end of this journey. Hugs to all x
Member

Re: January 2019 chemo starters

Hey G,
Sending you love💕 re; hair loss. Well Done for braving the shave. I sent my girls a photo before hand too (12 &15) I think it helped them too. They have been supportive “We still love you. You’re still our Mum” and that meant a lot. I was quite gutsy about it at first and I think they picked up on my positive vibes and started creating a new rock chick image for me at first. Now, I just wear a hat in the house and it’s becoming the new horrible normal. I hate looking in the mirror too. Going bald is such a “cancer patient” look isn’t it and so frightening for our children. I am sure you are dealing with it really sensitively G with your kids. My eldest saw me crying when it started to shed. I felt bad for exposing her to my tears, but then again it’s not good to hide our emotions too much either, because they just learn to hide emotions too then and then that’s not healthy . Just think, every horrible step we take is a step closer to better health and an end to this horrendous journey.
Sunnydazexx
G
Member

Re: January 2019 chemo starters

Hey B74, still in awe of your fast, amazing.
Also quite in awe of your memory, yes it was I worrying about my 11 & 9 yr old girls as the hair thing has been an upsetting topic throughout for them. They have been very upset tonight and neither have seen me yet without a hat thing on although both have looked at a photo I took which has helped to calm them and demystify it a little, hoping tomorrow they are brave enough to look but I will take their lead here. I hope your shave goes ok, I was quite emotional through it, more than I thought I would be as usually can hold things together somewhat but then I have had an emotional couple of days generally.
Wishing u well with your fast, your shave and your chemo xx
Member

Re: January 2019 chemo starters

Live Yoghurt.....B74. I would carry on eating it if you have not been told otherwise. My friend had BC when she was in Hong Kong (she had top class treatment) and she was never told about it either and ate it all the way through treatment. My hospital told me to avoid, but here is a good link from Guys and St. Thomas’s hospital and it offers clarity. It says “generally considered safe, but use with caution” re; probiotic yoghurt.
https://www.guysandstthomas.nhs.uk/resources/patient-information/cancer/diet-and-chemotherapy.pdf
B74
Member

Re: January 2019 chemo starters

PS none of the doctors or nurses has said anything to me about yoghurt! Also, I don’t see the problem with sourdough. Yes it’s made with a live culture - but normal bread is also made with a live organism (yeast) - both are killed by cooking.

I’ve eaten yoghurt & drunk kombucha with no ill effects that I can tell. What did they say the risks were?
B74
Member

January 2019 chemo starters

Hi everyone - wow - I went to sleep and woke up to a new look forum and a dozen new messages! G how have your kids reacted to your bald head? (sorry if I'm getting mixed up but I think it was you who said they were really worried about it?) Sunnydaze I'm sorry you're feeling worse this time around - oh dear - not good to hear! - but also not really surprising I guess. This stuff knocks you around so it must get harder & harder for our bodies to bounce back. I certainly don't feel as good going into #2 as #1. Sparkie2001 - I don't know how you're doing it with little kids. My youngest is 7 and they've been on school holidays for the last 5 weeks which has been tough enough, I'm counting the days (6) til school goes back. (Only so I can get more rest time!!) Wantolive - geez I wish your husband would step up and support you by learning how to clean!! I can't believe you'd be up that late on chemo night cleaning up his mess. Time to put your foot down?

 

I'm 19 hours into my fast ready for next infusion Fri, feeling a bit weak but the fasting doesn't seem as big a deal as last time, maybe because I'm just so scared about the infusion and afterwards. I now just want it over and done with. Today I'm taking the kids roller skating and to the orthodontist and preparing a couple of meals and tonight I'll shave. I've been putting it off as long as possible but last night the back of my shirt was like a rug and lying down felt like pins in my head. 

 

Take care everyone, thinking of you all xxx

G
Member

Re: Hi everyone, it's good to know I'm not the only one strug...

I have done it ladies, hair has gone. Still in shock but feels better and I hope emotionally I will just get on with it. Eventful week really..port yesterday (not very nice to be honest), hair today, second chemo Friday (onc going to give me different sickness drugs so fingers crossed)....bloody exhausted!!! Wishing u all well xxx
Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Nausea can make you feel miserable I know. But you have almost passed those worse days and Iam sure you will feel better and better every day. Of they sort out yoir drugs better next time you will feel the difference. Big hugs. I know what you mean about kids and every day life. My husband can't even use dishwasher. I was up at midnight on my first day of chemo and cleaning my kitchen as he left it in such a mess.
It seems at the moment that this 3-4 months will never end but iam sure we can get through it. Big hugs to you x
Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Hi Lorraine.1
Thanks for the info re; sourdough bread. I wasn’t told that one, but of course it’s live too isn’t it. Harrrumph. It must be so tough going through this by yourself. I hope you have good people close to you to support and help out. You realise who your friends are through all of this.
I’m pleased your hair is holding out girl, even if you lose it, it will grow back the same as it was before. I didn’t think I would mind losing my hair, but it has been a really tough gig looking in the mirror
Sparkle, your post made me smile when you mentioned your washing basket. It’s an achievement when I’ve managed to empty mine. My kids are at school though, so it must be hard for you ladies with little ankle biters still at home during the day and needing attention.
I’ve just made myself go out for a walk in the winter sunshine for about a mile and I’m keeping drinking loads of water. These two things definitely help with the se’s.
Sunnydazex
Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Hi stuckat14, I am on 4x EC (1st one  was 8th Jan) have you asked for Emend for your sickness? It's expensive to NHS but a very good drug. If they haven't given it to you please ask your onc or bcn to have it for the next round. I suffer with nausea quite easily but this helped me enormously. You should have it before your chemo then each day for 2 days afterwards.

 

Sunnydaze, i really miss live yoghurt too and not allowed sourdough bread either! I'm on 4 x EC and  was told bloods start dropping on day 7 and come back up day 14 onwards, onc said the drop can start as early as day 5 though. Please take it easy and rest and I hope you feel better soon.  

 

Hi Wantolive, I do try to get organised before chemo. Live alone so try to have a full fridge and freezer in. I ate pretty lightly first few days but on day 5 was back to normal eating, no taste changes as yet. I've been brushing teeth or rinsing mouth out with salt water each time after eating and for first time in my life using a tongue scraper as taste buds are on the tongue. If anyone here is on paclitaxel I read that sucking ice lollies when you have infusions helps with taste thing - not sure how you keep them ice cold though in chemo unit. I have a cool bag but it's not a freezer. 

 

G, thank-you for your good wishes hon.Hair is holding on for now, I'm day 15 since first one and shedding could happen any day so thanks for the symptoms. I think i had a tingling on top of scalp on day 12 but it went.I definitely will continue to cold cap even I lose it all because from what I've seen hair does grow back faster afterwards and same as it was before. Got 3 friends all early 40s going through this and at different stages (some had chemo first). I'm going to continue with the vitamin D oil at night too. 

 

Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Hi everyone,
Just catching up and loving reading all of the many different posts. We are quite a community now 😍 Don’t apologise for your long post WantOlive, I loved learning about your life! The Christmas glass baubles sound lovely and the chicken noodle soup. I understand many of your feelings too. Why me? Why have I got breast cancer when I have looked after myself and lived a healthy life 😢 Life sucks sometimes. I also agree with the lady who mentioned she doesn’t like the new design of this thread. It’s so much harder to see who said what and remember names and stuff. It might look better, but I don’t find it very user friendly. Worse than it was! Oh well .
Stuck at 14 I am on day 6, second round of FEC and I am still feeling grim, worse than last time. I feel nauseous and my skin has darkened, looks like I’ve been under a sun bed😵No chemo pallor for me, but it’s a bit worrying, so keeping my eye on it. Last time I was baking on day 6, this time I can only get out of bed for a couple of hours during the day to do a bit of housework or preparing food for dinner. One of the ladies on here said she felt like a “dead battery”, great description, sadly that’s how I feel too. Really done in. This corner is taking a long time to turn. Fingers crossed 🤞 all those feeling rough today feel better tomorrow ❤️ I think I feel worse because my bloody period has dragged me down. I’m trying to eat lots of leafy greens to stop any anemia. Does anyone know when your bloods drop in the cycle? I thought it was about day 4-9 but maybe I’m wrong.
My heart goes out to all of you ladies struggling with hair loss just now, although we put a brave face on it, it’s a tough one especially when you are feeling rubbish from chemo se’s. I told my husband last night that this whole process is So dehumanising. I have lost my breast and my hair and I look rubbish, it’s definitely upsetting when you’re feeling vulnerable. My husband said, but I still love you, so that was nice, but it’s hard and at least we are not on our own on here. I do know that the effects of chemo are dragging me down right now and I will hopefully have a “glass half full “ not”half empty” again soon.
Anyway, I was having a laugh with my sister. I was wearing a little black type of sleep cap and my sister called me”Ali G innit”. Well that made me laugh, so true😂 It felt good to laugh.
I am really missing strained Greek Yoghurt and Yeovalley Yoghurt because it’s live Yoghurt I haven’t been able to eat it, due to the live cultures. However, I have been able to find a Tesco and Asda Greek Style yoghurt that don’t state they have live cultures, only pasteurised British milk, so hoping these are ok.
Ok ladies keep fighting the good fight. I’m up here fighting from Scotland. Look after yourselves those that are struggling this week and enjoy the freedom for those of you who are enjoying their “normal” days.
Sunnydazexxx
Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Day 6 and still some naseau.  Im wondering if the filgrastim jabs have something to do with it as when I get up I feel fine and then half hour later I do the jab and then a short while after I start feeling sick.

But at least Im not getting the bone pain which is a more common side effect.  

 

Huggss to all. 

Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Hi all 

 

LB - I've got a number 2! It's very cold though so if you're ready to roll get your hat ready :-) 

 

As with most things I went head long in to the hair loss and thought I'd take my hair before any horrible drugs were getting their hands on it. I had a series of terrible haircuts from a seven year old on the day of my first cycle and then we shaved it all off. The thought of it dropping out made me sadder than just getting it over and done with. Can't say I particularly love the look but I guess it won't be around for much longer anyway! 

 

Stuck at 14 - I'm a week into it all and my food tastes rubbish but I am eating like a horse. I'm not back to normal by any stretch of the imagination and have felt pretty spaced out the last few days. I've not been too bad with the nausea but the indigestion/heartburn is doing me up like a kipper. My kids have been out at school/nursery for the last couple of days so that's helped but today the two youngest are at home and it's double the effort to keep on top of things. Don't be too hard on yourself. And I frequently feel like running away... 

 

Wanttolive - your chicken noodle soup sounds fab. Recipe please! :-) It is really odd that so many of us seem to be in our early 40s with kids but comforting to know we're not alone. I am planning to spend my good days getting everything sorted so the house runs like clockwork (hahaha) or at least emptying the overflowing laundry basket. 

 

ktk
Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Hi LB. when I found a small animal in the bottom of the shower I decided to brave the shave. I went all in and took the lot off, mind you it was June!!!🤣. Felt much better afterwards. Lots of pretty scarves. Kx
Member

Re: January 2019 chemo starters

Hi , I started last week 23 jan , ec x 3 then will decide after , feel ok , sick once , very tired in afternoons but pretty much feel ok 😄
LB
Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Hi Stuck at 14

It was day 9 before my food started to taste normal and after that I had much more energy.

It's day 16 now and my hair has started pulling and falling out - it's time to brave the shave - my husband wants to do it - I might stick it out for another day or 2 - I didn't think it would be this hard to do.  I had several friends who were going to help - guess what - all got colds. I'm not sure how short to go - any suggestions please.

I love all the tips that we share on here - it really helps.

Hugs to all  

Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Thanks G and Wanttolive. Yeah first one, I was so sure if have 3 days out then be feeling better so now I'm just thoroughly miserable. Everything tastes and smells disgusting - ginger and pineapple especially. Also struggling with being so helpless with the kids etc, all this and I still have hair. Does anyone else feel like giving up? I wouldn't obviously but I just wasn't prepared for how bad I feel.
Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Hi Stuck at 14
Was it your first cycle?
Day 6 I was feeling nauseous too. I remember thinking that it's already day 6 and still feeling sick but then suddenly this feeling left me on day 7. Sorry you feeling poorly though to the point you don't can't go to doctor. Ask them to try different medicine this time. They will be happy to do so.
G
Member

Hi Stuck at 14, my sicknesss lasted exactly a week, almos...

Hi Stuck at 14, my sicknesss lasted exactly a week, almost to the hour, and then just lifted. I was able to do the walk to and from school but that was all. I definitely didn’t want to meet friends or socialise so if u don’t either don’t beat yourself up. The following two weeks I was back to myself (if a little hyper because I didn’t feel sick!!). I also got emotional on about day 5 (steroids reaction has been suggested) but really low, I now know to expect that and again that will pass.
Big hugs xxx
Member

Hi everyone, it's good to know I'm not the only one strug...

Hi everyone, it's good to know I'm not the only one struggling with sickness. I'm on day 6 now and haven't left the house apart from to see the out of hours doc. I had first ec on Friday, started domperido Saturday and changed to cyclotizen on Sunday but I've still barely left bed or the sofa. Is this just how it is? I feel so sick, weak and tired. I've not got the energy to go back to docs to try a different anti sickness, surely it should be better now? How many days was it before you could say arrange to meet a friend? X
G
Member

Hi Wanttolive, please don’t apologise for anything on her...

Hi Wanttolive, please don’t apologise for anything on here hun, if you want to do a long post then do it.
I can’t imagine having your phobia and going through this, although you have to keep telling yourself that people aren’t physically sick usually having chemo, it is just the feeling to manage and it sounds like another thing you have conquered in this horrific journey! I was given domperidone same as you but I really want something else on Friday so going to see what they say based on suggestions from my very knowledgable friends here 😊
I think you sound like your are doing amazing...I think we alll need your chicken noodle soup recipe especially if it is something healthy in chemo week...all I could eat was beige food, and carbs aren’t great for my tummy either...lactulose is what you need, you need to ensure you drink a lot of fluid and the lactulose (get some from your pharmacy).
I know what you mean regarding the emotional side, I wanted to tell someone the other day to stop moaning about the wait to pay for some shopping at the till, I found my self getting cross thinking if that is all you have to moan at!!! Then I thought I don’t know what people are going through as I have never looked like I have cancer, I imagine the first time I will is when I sort out my very thinning hair. But I totally empathise, everything has a different weird spin on it. I found the hardest thing to deal with about feeling so nauseated was what had made me feel this way, total brain confusion on what the hell am I doing.
Sounds like your crafting is a good escape for you, I often read for a few hours before the rest of the house is awake (or message on here!) and I quite like that mebtime where the world isn’t up yet.
Take care x
One last thing, anyone else finding the new look of this forum weird to get used to...I don’t like change 😂
Member

Re: January 2019 chemo starters

Hi girls it will take me a few days to remember who is who. Looks like a few of you having chemo on Friday. I also can't believe so many of us the same age. With kids.
MaMaJuJu good luck with hair. I have shaved my hair myself. Just sat on the floor with shaving machine and decided to try. And ended up shaving off all of it. Not very short. Left about an inch. I have good thick hair and a thought of it coming off in big chunks makes me feel sad... So I think it's better this way. Now I have just a few hair here and there left and I look so weird in the mirror. I wear wig. For about 2 weeks now. I love the look. To be honest better than my own hair. But I already miss my hair.
I haven't red all comments yet but can see everyone suffer with nausea mainly. I was thinking wow all of us having different pills prescribed. I was sent home with Ondansetron and domperidone. I took all of them LOL as I suffer with phobia of vomiting unfortunately and one thought of being sick is making me wanting cancel my treatment. I am having EC chemo. And I had very strange nausea during my first round that make me eat , making me very hungry. Like bring pregnant when you feel nauseous but craving sour and salty foods, first day after treatment I spend on kitchen cooking a lot. I was really craving chicken noodle soup and Russian salad. I ate a lot during my first week. I would get up in the morning and had noodle soup at 7 in the morning which would make me feel so much better. And it tasted so special. Also found crisps and greapfruits are very helpful with nausea. My nausea was was mild and I wasn't very fatigue at all. Maybe first a few days. Another side effect I had was indigestion on the day 2 and constipated for first 4 days.
I also was going to ask you girls what is your routine on the week of chemo. Are you trying to get yourself organised before chemo? To have utoninv done and food shopping cleaning and cooking?
I feel like I live somebody else's life for months now. I feel like there is no dignity during this treatment. Starting from mammogram and continue with surgent drawing on your boob and looking your hair through treatment, I found it very emotional sitting there for your first chemo watching this drug going through yoir vein knowing and at same time not knowing what it will do to your body. I often think when iam walking into the shop or being around strangers on the street that all those people don't have cancer and I do.

G, I had high oncotype as well. Because I had breast implant I can't have chemo. So my doctor advised to have chemo.
I don't work at the moment but I do have my little workshop at home. Where I handpaint my glass Christmas tree baubles. I have sold a lot and I am planning to sell a lot next Christmas. This is what keep me sane. Sometimes I get up at 5 in the morning put my jazz music on and start painting. Before my demanding family makes up.
I hope girls you all having a relaxing evening and looking forward hearing from you.
I am sorry for such a long post. I will try yo keep it short.
Xxxxx
LB
Member

Re: January 2019 chemo starters

Hi go cat I was told to take the as and when anti sickness pills as often as I needed - better than feeling nauseous. I also found that eating a salty cracker helped with that queasy feeling - someone described it as like morning sickness. I too had Emend. I saw my oncologist today and asked to see my breast mri scans. I just needed to see what i’m taking on. I’m pleased that I am enjoying the good week and have got a lot of energy ready to start again next week. Good luck and hugs to all x
Member

Re: January 2019 chemo starters

I had emend.  But still feel bit sicky.  Not a lot.  But still feel I want to take one of my prn (as needed) anti nausea tablets.  Anyone else done that, or just brave out the slight sickness.  

Hugggsss to all x

G
Member

Re: January 2019 chemo starters

Thank you Dikat, I will ask them today when there for port, appreciate u popping over!!! Hope all going ok with you x
Member

Re: January 2019 chemo starters

Hey lovely ladies
I’ve just popped in from the December thread. I have had 2 Fec so far. All of you who are struggling with sickness, have you been prescribed Emend. If not I would contact your unit as you have to take first tablet 1 hour before unit. I am a really sickly person and apart from feeling a bit nauseous with first cycle not had any major problems with sickness. Good Luck xx
G
Member

Re: January 2019 chemo starters

Hey wanttolive a very warm welcome, really glad you found us!! I am 43 with a husband and two girls age 9 and 11. I too had a lumpectomy to get rid of grade 3 invasive lobular cancer but then needed a mastectomy as they found non invasive ductal all over when they checked the margins which hadn’t shown on any scans. I came back high on the oncotype DX test I had for reoccurrence hence the chemo journey (4xEC then 4x tax) as originally it was lumpectomy and radio was the plan but hey ho. We have truly wonderful ladies here who all have different things to share and knowledge of different areas that they are into, really is a wonderful mix and very comforting. Looking forward to sharing journey with you x

Good luck today Seaside Sar, hope you get a plan, realise it maybe scary but at least the process will be in place and that element of worry has gone x

Thanks for msg Lorraine 1. Wishing you all the best for Tuesday now, as if number 2 is like number 1, I may go awol over weekend for a few days on the forum but at least this time I know there is an end so that is comforting. I am also going to request all the nausea drugs in the world to see if something will help!!! With regards hair, my head really hurt (like it had been in a tight ponytail) for a few days before if that helps so if all feels ok then try to keep doing what u r doing. I actually lost probably two thirds of my hair yesterday in about an hour after washing it and gentle combing. I haven’t called my hair dresser yet as it has thinned all over rather than gaps at the minute so going to hold off if I can until after second lot of chemo, not sure why but that is what my mind has decided, may very well change as week goes on! Regardless I am going to continue to cold cap as should still help follicles in the long run.

Hey MaMaJuJu wishing you well with your hair and will be thinking of you and B74 on Friday whilst having my second too x
B74
Member

Re: January 2019 chemo starters

MaMaJuJu - yes I'm getting #2 on Friday as well (assuming my WBCs are back up), G is too I think. I'm dreading it after horrendous #1, but in a strange way I kind of want it done too, because then I'll be one closer to the end. I complained to my onc about the severe nausea especially in the first 24 hours and so he's adding Ativan/Lorazepam (which I find odd because I thought it was for anxiety/sleeplessness rather than nausea?), here's hoping it helps. Maxolon/metoclopramide did nothing for me. I'm also going to be getting filigrastim shots (for the WBCs) & taking Clarantyne, so lots of extra drugs for my poor body to cope with!!! Eeek.

 

Wantolive - welcome and very sorry you have to be here. I'm 44 too (with 3 kids) and it all sucks SO much, but at least here we are all going through something similar so understand in a way that's hard to if you haven't experienced it. Let us know how you get on with everything.

Member

Re: January 2019 chemo starters

Hi All,

 

I hope you are all well and I would like to give a warm welcome to the newbies. 

 

I haven’t checked in for a wee while; I just wanted some time to get over the first chemo session. 

 

B74, sorry to hear that you have ended up in hospital, I hope you are on the mend and get out soon. 

 

I have decided that tomorrow is the day I get my hair shaved off. My hairdresser is going to do it for me. I am feeling nervous and at this point in time I have no idea how I am going to feel when it does actually happen. My hair isn’t coming out in chunks but it is starting to come out so I would rather take control and get it done. I have always had the mindset that it is going to grow back in but I shall see how I feel when it actually happens. 

 

My next chemo cycle is on Friday and I am starting to get anxious already as my first cycle wasn’t the best. I am hoping they will tweak my anti-sickness and I won’t feel as bad. Fingers crossed. 

 

Anyone else getting their chemo on Friday?

 

I hope everyone is well.

 

Semding lots of love xxx

Member

Re: January 2019 chemo starters

Wanted to introduce myself and ask if I could join in. Just found this thread. I live in South Yorkshire and was diagnosed with breast cancer in September. Stage 2 grade 2, 2.8cm. Had lumpectomy then mastectomy nodes are clear and no vascular invasion. I am not going yo gave radiotherapy but decided for chemo ECx6. My cancer strongly ER+ so will be on Tamoxifen after chemo. I had my first chemo on 28december and was due to second one on the 18th but had to have antibiotics due to tooth infection. So having my second round 25 Jan. Iam 44 married and have daughter of 5 years old.
Would be great to have company of all of you lovely women during this dreading chemo. X
Member

Re: January 2019 chemo starters

Hi G, i'm not far behind you, second EC will be next Tuesday 29th. Also have hormonally responsive cancer (PR8 and ER8) not discussed my hormone treatment yet, I am assuming it will be tamoxifen. I hope it goes ok for you this Friday with number 2. I cold capped too and using vitamin d oil at night on my scalp, I'm guessing from what others have written that this week might be the week it sheds some! Good luck to everyone having their second session soon. xx

Member

Re: January 2019 chemo starters

Sending love B74
Member

Re: January 2019 chemo starters

Sending love B74.
I'm also done with having kids, it was trying to stabilise my nocturnal seizures during/after chemo that was the decision maker in my situation x
G
Member

Re: January 2019 chemo starters

Thanks B74 really useful, been niggling me all day.
Such sad news with regards your sister, sending you lots of love and positivity 💗 G x
B74
Member

Re: January 2019 chemo starters

Hi ladies & welcome to the newcomers to our January party!

 

On the topic of ovarian suppression - I actually asked my onc at the first appointment about getting my ovaries removed - my sister died last year of ovarian cancer (yes it's been a really awful year) so it's something I was already worried about - even without the effect of oestrogen on my ER+ cancer. (Although all the doctors keep telling me her cancer was unlikely to be genetic - even with my BC diagnosis - because she had a very rare type & we have no other family history etc etc).

 

The onc said we'd discuss again after chemo, but they would give me injections to suppress ovarian function for a while to see how I felt, before making the decision to have irreversible surgery. He said normally they just give tamoxifen to block oestrogen from the cancer cells, while still allowing oestrogen to be produced and do all its normal female things in your body. 

 

The only person I know who's had ovarian suppression DURING chemo had it to try & preserve her fertility (I think by temporarily shutting down the ovaries to stop them being damaged). Not a concern for me as I'm done having kids!

Member

Re: January 2019 chemo starters

Hi Seaside sar, hope your appointment goes well tomorrow. Like yourself I haven't started chemo yet, need my heart scan on Wednesday first. This is a lovely friendly thread and very informative. If only it wasn't happening to us. Xx
Member

Re: January 2019 chemo starters

Welcome Seaside Sar😊
Good luck with your Onc visit and chemo .
Just a quick note to say I follow this American dietician nutritionist on facebook, or email if you’re not on fb. I think she gives great qualified free advise, both sensible and practical. She is a qualified dietician. . For example myth busting around cancer nutrition, whether we can eat things like soy or flax seed, does sugar feed cancer? what about an alkaline diet? What should we have on our plates to help protect us against cancer? I have listened to some of her “webinars “ too and in my opinion I just find them practical and realistic. Here is the link if you think you might be interested in her professional free knowledge re; nutrition and cancer. It’s definitely worth registering and looking and listening to her back cataloghttps://www.cancerdietitian.com/2017/10/eat-protector-foods-plus-recipe.html?utm_sq=fxxm4q5wqp&utm_source=Fa...
Member

Re: January 2019 chemo starters

Hi everyone,

 

I have been following the thread all month and I have picked up lots of tips and advice - thank you!

 

So far I have had a lumpectomy with two sentinel lymph nodes removed, one of which contained cancer. I then had an axillary lymph node clearance. My tumour was Her 2 positive and ER positive so I will be treated with Herceptin alongside chemotherapy and then radiotherapy to finish.

 

I haven't started chemo yet but I am meeting with the onologist tomorrow to find out what's in store for me.

 

Feeling nervous.

 

Good luck to everyone undergoing chemo at the moment.

Member

Re: January 2019 chemo starters

Hi Bluetit! Smiley Happy welcome to the party! 

 

I'm 42 and in a similar boat. Had a PICC line put in last week before my first FEC. Procedure was fine (albeit a little surreal) and I'm sure it's better than messing up veins in the long run. 

 

I was given a leaflet about ovarian supression by my BCN but the oncologist hasn't said anything about it so not sure what's going on there. I'm also in the high scoring oestrogen bracket but I suspect having two babies in the last two years didn't help that one little bit... 

 

I totally echo the nesting theme - the batch cooking came out in force last weekend so now we have nothing but chilli in the freezer. Duh. Didn't quite reach the cleaning frenzy of pre-mat leave this time... 

 

Member

Re: January 2019 chemo starters

Hi Ladies, at this rate I'll be on the February thread can't stand the waiting, the stress levels are up and down, I've been trying to keep busy. I've been reading the threads since fist diagnosed in Oct , keep looking at the Predict and the Nottingham prognostic score, God knows if I've actually unstood it , think my chance of reacurrance is moderate so hopefully I'll be fine to hang on in there a bit longer, heart scan is Wednesday. I think it's the waiting that is hard but also had tears with getting used to my temporary reconstruction this week as its starting to increase in size. BIG HUGS to each and everyone of you, so sad but so brave & beautiful xx
Member

Re: January 2019 chemo starters

Good idea G. I am ER 7/8, but also have nocturnal seizures that are strongly linked to my hormones - so I think that was a big push in favour of oestrogen suppression x

Hi daisydi, Thank you! Please keep me posted Smiley Happy xxx
G
Member

Re: January 2019 chemo starters

Hmm thanks for that, I too was the highest ER positive and nothing mentioned for me, I will enquire 😘