09-01-2019 01:14 AM
Helen, I just wanted to let you know that I was thinking about you and understand how you're feeling x I'm from the Oct '17 thread and finished chemo last March. I didn't think I'd be able to cope with having chemo, (I still sometimes think did I really go through that!) but it's doable. I didn't always feel great, tiredness mostly, but it was ok. If there's anything I can help you with please ask xx
09-01-2019 12:13 AM
08-01-2019 10:16 PM
B74 - you're not being depressing at all. This is just a safe place to vent where we know that other people on here "get" us x
MMJJ - if the T is for Taxol, that's what I'm on. I know I only had it yesterday but so far I'm surprised at the lack of side effects. I've taken my stomach lining tablet, and my anti-sickness ones, and haven't felt bad at all (I know it could still hit me like a ton of bricks)
08-01-2019 09:25 PM
PS And sorry to be depressing! Everyone experiences it differently so this will not be everyone's experience by any means.
Also MMJJ - is the 'T' for Taxol? If so I've been told it's much easier than EC / AC
08-01-2019 09:23 PM
MaMa JuJu - that sounds truly awful, so sorry for you. I found it bad enough with 'just' nausea and no violent vomiting. I really hope they can find you better meds for next time.
The thing that's really taken me by surprise are the psychological effects. I expected to feel sick, tired etc (though the 'hangover' and 'flu' analogies they used didn't come close to the reality!). I didn't realise I'd feel like my whole essence had been stripped away so nothing was left except a husk. For the first few days I couldn't care about anything. Friends were trying to remind me that I'm doing it so I can live to see my kids grow up, and I felt too depressed to care. I'm only just beginning to feel more like myself again (mostly).
Yes next stop is hair loss! I know I have about another week, but like the rest of me, it no longer feels like itself. Very limp and lifeless. At the beginning of this journey I thought hair loss was the least of my worries, but as with everything the reality is often a bit more confronting!
08-01-2019 07:19 PM
08-01-2019 07:03 PM
08-01-2019 12:41 PM
08-01-2019 11:36 AM
Hello HelenBumbleBee. It is all a bit overwhelming to start off with, isn't it? But, don't worry, you've found this lovely site now (I'm so glad I did).
As Kip says, we're all just starting off so in the same place as you. We'll just support each other every step of the way.
08-01-2019 09:30 AM
Hello HelenBumbleBee, so sorry you find yourself in this nightmare but you have definately found the place to be.. everyone on here gets exactly how this feels. Talk and read away, these lovely ladies are doing great with their first chemo sessions.. you'll be the same. Its so tough at the beginning but when you get into a pattern you'll be fine. I finished my chemo at end of September 18 after having masectomy, I then had ANC clearance and 15 x radiotherapy finishing on 19th December. All went ok, never as bad as I thought, yes some grim days with the chemo and surgeries etc but always picked up and moved on and always always always came on here, asked questions, moaned, whinged and chatted to the ones who really get it.
Take care... let these lovely girls guide you along..
07-01-2019 11:09 PM
07-01-2019 09:56 PM
I've also been feeling pretty nauseous & generally rotten, but also busy replying to messages from friends and family, and also just taking a break from the internet because I'm sick of thinking non-stop about cancer and chemo. DebsE - I'm having Taxol after AC and my Dr told me Taxol is much easier so hopefully you won't have too bad a time of it. All the best everyone. xx
07-01-2019 08:16 PM
Hi Welshj and all. I tried to post, telling you how it went today but kept getting error messages (several posts might all appear at the same time).
It was better than I expected. The nurses were great, talking me through the drugs and what they were for, as they were being adminstered.
I need a bigger cold cap as they had to force it on my head (which won't help the roots) but after the first 15 minutes I was numb so it was fine. Heavy though.
I'm home now, have had a good tea and am ready for bed.
07-01-2019 06:09 PM
Hi Welshj and all. I'm home now and it all went really well.
There was a bit of waiting around, mainly because they're still playing catch up after Christmas. The administering of the drugs was very straightforward, with the nurse naming each one as she gave it and telling me what it was for. There were 4-5 of us in the room. The chairs were recliners and there were heated pads to put over us to keep us warm (that sounds a bit like we were all huddled up together - we weren't!)
The cold capping was a bit troublesome, mostly because they didn't have a cap in my size so I had to have slightly too small one. I had a pain in one temple to start off with so the nurse put a piece of gauze between the cap and my skin and the pain went straight away. After about 15-20 mins it was all numb so I couldn't feel anything. It's a bit heavy though. At one point I nipped out to the loo and could see in the mirror I didn't look as daft as I felt!
So home now and I'm feeling fine though tired. I'll see how it is when the drugs wear off, but they've sent me home with half a pharmacy to use if I need to
07-01-2019 03:50 PM
Hi I had my information appointment today and the nurse was so helpful and I feel a little less anxious now. She went through some of the side effects and showed us around the chemo area so that we know what to expect when I go for my first FEC-T tomorrow. I just hope it all goes well for all of us new starters. Good luck everyone.
07-01-2019 03:33 PM
I'm also starting taxol tomorrow, weekly for 12 weeks and her herceptin for a year. So anxious re side effects particularly nausea and vomiting as due to previous abdominal surgery I am unable to be sick. Going to try the cold cap, fingers crossed. Good luck to you , let me know how you get on. I also have a picc line. Can't believe this is happening and will I ever reach acceptance.
07-01-2019 11:53 AM