Member
Posts: 1,751
Registered: ‎21-06-2017

Re: January 2019 chemo starters

Helen, I just wanted to let you know that I was thinking about you and understand how you're feeling x I'm from the Oct '17 thread and finished chemo last March. I didn't think I'd be able to cope with having chemo, (I still sometimes think did I really go through that!) but it's doable. I didn't always feel great, tiredness mostly, but it was ok. If there's anything I can help you with please ask  xx

Member
Posts: 4
Registered: ‎07-01-2019

Re: January 2019 chemo starters

That's so kind, thank you xx
I had my mastectomy in November, and have had my chemo workshop today, ahead of 6 months of chemo on Thursday and then 15 x radiotherapy sessions too, so similar.
To think my husband and I were planning to try for another baby 15 months ago, but this was the path I was destined to follow instead.
Surgery, pain, loss of a breast....none of it bothered me but Thursday terrifies me beyond words. I want to run away but there isn't a place on earth that's far enough.
Member
Posts: 12
Registered: ‎19-12-2018

Re: January 2019 chemo starters

B74 - you're not being depressing at all.  This is just a safe place to vent where we know that other people on here "get" us x

 

MMJJ - if the T is for Taxol, that's what I'm on.  I know I only had it yesterday but so far I'm surprised at the lack of side effects.  I've taken my stomach lining tablet, and my anti-sickness ones, and haven't felt bad at all (I know it could still hit me like a ton of bricks)

 

Debs

x

B74
Member
Posts: 37
Registered: ‎06-12-2018

Re: January 2019 chemo starters

PS And sorry to be depressing! Everyone experiences it differently so this will not be everyone's experience by any means.

 

Also MMJJ - is the 'T' for Taxol? If so I've been told it's much easier than EC / AC

B74
Member
Posts: 37
Registered: ‎06-12-2018

Re: January 2019 chemo starters

MaMa JuJu - that sounds truly awful, so sorry for you. I found it bad enough with 'just' nausea and no violent vomiting. I really hope they can find you better meds for next time.

 

The thing that's really taken me by surprise are the psychological effects. I expected to feel sick, tired etc (though the 'hangover' and 'flu' analogies they used didn't come close to the reality!). I didn't realise I'd feel like my whole essence had been stripped away so nothing was left except a husk. For the first few days I couldn't care about anything. Friends were trying to remind me that I'm doing it so I can live to see my kids grow up, and I felt too depressed to care. I'm only just beginning to feel more like myself again (mostly).

 

Yes next stop is hair loss! I know I have about another week, but like the rest of me, it no longer feels like itself. Very limp and lifeless. At the beginning of this journey I thought hair loss was the least of my worries, but as with everything the reality is often a bit more confronting!

Member
Posts: 11
Registered: ‎04-01-2019

Re: January 2019 chemo starters

Thanks for the feedback everyone. I've still got a few days to wait and feel a bit upset about the lack of information from my chemo centre. I have an appointment the day before- is that when they'll show me round etc ya think?
LB
Member
Posts: 22
Registered: ‎10-12-2018

Re: January 2019 chemo starters

Thankyou Kip your posts always make me feel more positive 🤗
LB
Member
Posts: 22
Registered: ‎10-12-2018

Re: January 2019 chemo starters

Hi everyone I started my FEC-T today. All went well and the nurses were lovely 😊 I have just felt a little bit “spaced” out 😊 I managed to prepare the evening meal and enjoyed it - I just hope I keep it 😀 what a strange journey we’re on but from reading the comments from previous people I have great confidence that we can do it 😊 good luck everyone x
Member
Posts: 7
Registered: ‎06-12-2018

Re: January 2019 chemo starters

Hallo everyone!

I am now feeling slightly more human!

Well done for everyone who has been through their first chemo!

I haven’t had the best start to my chemo journey. Unfortunately I was violently sick from 3 to just after midnight on the first day and ended up back in the hospital to get checks done but all ok so it’s just a case of getting on with it until the side effects subside.

Steroids played havoc with my anxiety which I have anyway so I felt like I was tuned to the moon and could not sleep!

Felt very emotional, I am not really a crier but I have certainly cried over the last couple of days. I am guessing it’s a mixture of diagnosis, hormones, fear etc.

No appetite since chemo but I enjoyed some scrambled egg this morning.

Taste in mouth is yucky but heard mints are good for that.

Next stop, hair loss.

Sorry I have not sugar coated this up but it is just the way I reacted to it. Everyone has completely different reactions which I understand after speaking to friends had reading on here.

The nurses were amazing when I got the chemo and I had no issues with getting it at all. I guess I know what to expect the next time.

I am getting 3 x EC and then T.

Anyone got any experience of the T part? Is it just as gruelling?

I hope your are all doing well, sending my love and let’s get this done! Not long in the grand scheme of things!

Xxxx

Member
Posts: 12
Registered: ‎19-12-2018

Re: January 2019 chemo starters

Hello HelenBumbleBee.  It is all a bit overwhelming to start off with, isn't it?  But, don't worry, you've found this lovely site now (I'm so glad I did).

 

As Kip says, we're all just starting off so in the same place as you.  We'll just support each other every step of the way.

 

Debs x

Kip
Member
Posts: 914
Registered: ‎27-04-2018

Re: January 2019 chemo starters

Hello HelenBumbleBee, so sorry you find yourself in this nightmare but you have definately found the place to be.. everyone on here gets exactly how this feels.   Talk and read away, these lovely ladies are doing great with their first chemo sessions.. you'll be the same.  Its so tough at the beginning but when you get into a pattern you'll be fine.   I finished my chemo at end of September 18 after having masectomy, I then had ANC clearance and 15 x radiotherapy finishing on 19th December.   All went ok, never as bad as I thought, yes some grim days with the chemo and surgeries etc but always picked up and moved on and always always always came on here, asked questions, moaned, whinged and chatted to the ones who really get it.

Take care... let these lovely girls guide you along..

Kip

xx

Member
Posts: 4
Registered: ‎07-01-2019

Re: January 2019 chemo starters

I am new to the site as of 2 minutes ago, and due to start treatment on Thursday. Feeling isolated and overwhelmed, and struggling with family reactions when I've not even started. Just wondered if I could join this thread in the hope I find company from people who get it.
B74
Member
Posts: 37
Registered: ‎06-12-2018

Re: January 2019 chemo starters

I've also been feeling pretty nauseous & generally rotten, but also busy replying to messages from friends and family, and also just taking a break from the internet because I'm sick of thinking non-stop about cancer and chemo. DebsE - I'm having Taxol after AC and my Dr told me Taxol is much easier so hopefully you won't have too bad a time of it. All the best everyone. xx

G
Member
Posts: 24
Registered: ‎09-10-2018

Re: January 2019 chemo starters

Well done D 💗x
Member
Posts: 12
Registered: ‎19-12-2018

Re: January 2019 chemo starters

Hi Welshj and all.  I tried to post, telling you how it went today but kept getting error messages (several posts might all appear at the same time).

 

It was better than I expected.  The nurses were great, talking me through the drugs and what they were for, as they were being adminstered.

 

I need a bigger cold cap as they had to force it on my head (which won't help the roots) but after the first 15 minutes I was numb so it was fine.  Heavy though.

 

I'm home now, have had a good tea and am ready for bed.

 

D

Member
Posts: 12
Registered: ‎19-12-2018

Re: January 2019 chemo starters

Hi Welshj and all.  I'm home now and it all went really well.

 

There was a bit of waiting around, mainly because they're still playing catch up after Christmas.  The administering of the drugs was very straightforward, with the nurse naming each one as she gave it and telling me what it was for.  There were 4-5 of us in the room.  The chairs were recliners and there were heated pads to put over us to keep us warm (that sounds a bit like we were all huddled up together - we weren't!)

 

The cold capping was a bit troublesome, mostly because they didn't have a cap in my size so I had to have slightly too small one.  I had a pain in one temple to start off with so the nurse put a piece of gauze between the cap and my skin and the pain went straight away.  After about 15-20 mins it was all numb so I couldn't feel anything.  It's a bit heavy though.  At one point I nipped out to the loo and could see in the mirror I didn't look as daft as I felt!

 

So home now and I'm feeling fine though tired.  I'll see how it is when the drugs wear off, but they've sent me home with half a pharmacy to use if I need to 

 

D

LB
Member
Posts: 22
Registered: ‎10-12-2018

Re: January 2019 chemo starters

Hi I had my information appointment today and the nurse was so helpful and I feel a little less anxious now.  She went through some of the side effects and showed us around the chemo area so that we know what to expect when I go for my first FEC-T tomorrow.  I just hope it all goes well for all of us new starters. Good luck everyone. 

Member
Posts: 4
Registered: ‎07-01-2019

Re: January 2019 chemo starters

I'm also starting taxol tomorrow, weekly for 12 weeks and her herceptin for a year. So anxious re side effects particularly nausea and vomiting as due to previous abdominal surgery I am unable to be sick. Going to try the cold cap, fingers crossed. Good luck to you , let me know how you get on. I also have a picc line. Can't believe this is happening and will I ever reach acceptance.

G
Member
Posts: 24
Registered: ‎09-10-2018

Re: January 2019 chemo starters

Hi D, Stuck at 14 and everyone else, after my first EC on 4th, I have been feeling very nauseas and screen time not helping this as it seems to be a feeling in my head and my stomach but other than this ok. Thinking of u all so much x
Member
Posts: 11
Registered: ‎04-01-2019

Re: January 2019 chemo starters

How are those of you who started on the 4th doing? Is it quiet because you are having so much fun it and about? (Crosses fingers) xx