Hi B74 and sunnydaze, the reason live yoghurt and sourdough are not advised is they both contain bacteria, sourdough bread is made with a 'starter' which is a combination of yeast and bacteria. Ordinary bread is made with only yeast which isn't bacteria. I miss both but for what is a relatively short period in my life of treatment I have decided not to take any risks and follow the advice given, frustrated though as live yoghurt protects against thrush which I have read can be a s/e of EC and Paclitaxel. Am making do with supermarket greek style yoghurt
G, you asked about hair supplements further down the thread. I've had hair loss before from anaemia which was really upsetting. I'm prepared if it happens to me again this time from chemo but I decided to do all I could to prevent it, including cold cap. I asked my onc if I could take biotin and b complex throughout chemo and she said yes but I had to stick to the EVM, for biotin it's 900ug. Rosemary oil also good for the scalp (came out as good as minoxidil in trials) and vitamin d oil. Also, if your internal vitamin d level is low (which is really common in the northern hemisphere) hair won't grow as fast, so might be worth asking them to check your vitamin d, if they haven't before you began chemo. Finally, I swear by Watermans shampoo for fast hair growth. Also to avoid build-up neutrogena /t-sal shampoo is excellent. I hope this is of use maybe.
Good luck to everyone for the next round xx
Glad you're feeling a bit better today Stuckat14 :-) If it's any consolation I suddenly seemed to emerge from the land of spaced out oddness yesterday exactly a week to the day of my first chemo and feel pretty much back to my normal self now. It was very strange, almost like someone had switched my brain back on. My mouth feels rather revolting though so that's at least one sign that the drugs are still working their magic.
Re: hair loss - for everyone curently shedding - does it all start to shed at the same time from all areas ?
There are parts of me I haven't seen hairless for years! I fear the drains will be blocked in no time.
Re: kids - yes it adds a whole new layer of cack to what is effectively the worst thing I've ever been through (and oh how I used to whinge about work/childbirth/life). It's the endless worry that I'm screwing up my seven year olds childhood versus the stark realisation that if I don't take these nasty drugs I will be screwing things up for all of them even more. He seems to be coping okay with things although probably getting fed up with repeatedly being asked by me if he's okay. Luckily my two year old is two and therefore remotely disinterested in anything not related to Peppa Pig and the baby is too busy learning to crawl to care if I am bald and sad at times. It is hard with small kids but I fear it would be much harder for you guys who have older children who are far more aware of what's happening and more likely to worry. I take my hat off to you all. I like the idea of the photos though - great idea. Soon we will have luscious locks again.
Hope y'all have a good day :-)
Hi everyone - wow - I went to sleep and woke up to a new look forum and a dozen new messages! G how have your kids reacted to your bald head? (sorry if I'm getting mixed up but I think it was you who said they were really worried about it?) Sunnydaze I'm sorry you're feeling worse this time around - oh dear - not good to hear! - but also not really surprising I guess. This stuff knocks you around so it must get harder & harder for our bodies to bounce back. I certainly don't feel as good going into #2 as #1. Sparkie2001 - I don't know how you're doing it with little kids. My youngest is 7 and they've been on school holidays for the last 5 weeks which has been tough enough, I'm counting the days (6) til school goes back. (Only so I can get more rest time!!) Wantolive - geez I wish your husband would step up and support you by learning how to clean!! I can't believe you'd be up that late on chemo night cleaning up his mess. Time to put your foot down?
I'm 19 hours into my fast ready for next infusion Fri, feeling a bit weak but the fasting doesn't seem as big a deal as last time, maybe because I'm just so scared about the infusion and afterwards. I now just want it over and done with. Today I'm taking the kids roller skating and to the orthodontist and preparing a couple of meals and tonight I'll shave. I've been putting it off as long as possible but last night the back of my shirt was like a rug and lying down felt like pins in my head.
Take care everyone, thinking of you all xxx
Hi stuckat14, I am on 4x EC (1st one was 8th Jan) have you asked for Emend for your sickness? It's expensive to NHS but a very good drug. If they haven't given it to you please ask your onc or bcn to have it for the next round. I suffer with nausea quite easily but this helped me enormously. You should have it before your chemo then each day for 2 days afterwards.
Sunnydaze, i really miss live yoghurt too and not allowed sourdough bread either! I'm on 4 x EC and was told bloods start dropping on day 7 and come back up day 14 onwards, onc said the drop can start as early as day 5 though. Please take it easy and rest and I hope you feel better soon.
Hi Wantolive, I do try to get organised before chemo. Live alone so try to have a full fridge and freezer in. I ate pretty lightly first few days but on day 5 was back to normal eating, no taste changes as yet. I've been brushing teeth or rinsing mouth out with salt water each time after eating and for first time in my life using a tongue scraper as taste buds are on the tongue. If anyone here is on paclitaxel I read that sucking ice lollies when you have infusions helps with taste thing - not sure how you keep them ice cold though in chemo unit. I have a cool bag but it's not a freezer.
G, thank-you for your good wishes hon.Hair is holding on for now, I'm day 15 since first one and shedding could happen any day so thanks for the symptoms. I think i had a tingling on top of scalp on day 12 but it went.I definitely will continue to cold cap even I lose it all because from what I've seen hair does grow back faster afterwards and same as it was before. Got 3 friends all early 40s going through this and at different stages (some had chemo first). I'm going to continue with the vitamin D oil at night too.
Day 6 and still some naseau. Im wondering if the filgrastim jabs have something to do with it as when I get up I feel fine and then half hour later I do the jab and then a short while after I start feeling sick.
But at least Im not getting the bone pain which is a more common side effect.
Huggss to all.
LB - I've got a number 2! It's very cold though so if you're ready to roll get your hat ready :-)
As with most things I went head long in to the hair loss and thought I'd take my hair before any horrible drugs were getting their hands on it. I had a series of terrible haircuts from a seven year old on the day of my first cycle and then we shaved it all off. The thought of it dropping out made me sadder than just getting it over and done with. Can't say I particularly love the look but I guess it won't be around for much longer anyway!
Stuck at 14 - I'm a week into it all and my food tastes rubbish but I am eating like a horse. I'm not back to normal by any stretch of the imagination and have felt pretty spaced out the last few days. I've not been too bad with the nausea but the indigestion/heartburn is doing me up like a kipper. My kids have been out at school/nursery for the last couple of days so that's helped but today the two youngest are at home and it's double the effort to keep on top of things. Don't be too hard on yourself. And I frequently feel like running away...
Wanttolive - your chicken noodle soup sounds fab. Recipe please! :-) It is really odd that so many of us seem to be in our early 40s with kids but comforting to know we're not alone. I am planning to spend my good days getting everything sorted so the house runs like clockwork (hahaha) or at least emptying the overflowing laundry basket.
Hi Stuck at 14
It was day 9 before my food started to taste normal and after that I had much more energy.
It's day 16 now and my hair has started pulling and falling out - it's time to brave the shave - my husband wants to do it - I might stick it out for another day or 2 - I didn't think it would be this hard to do. I had several friends who were going to help - guess what - all got colds. I'm not sure how short to go - any suggestions please.
I love all the tips that we share on here - it really helps.
Hugs to all
I had emend. But still feel bit sicky. Not a lot. But still feel I want to take one of my prn (as needed) anti nausea tablets. Anyone else done that, or just brave out the slight sickness.
Hugggsss to all x
MaMaJuJu - yes I'm getting #2 on Friday as well (assuming my WBCs are back up), G is too I think. I'm dreading it after horrendous #1, but in a strange way I kind of want it done too, because then I'll be one closer to the end. I complained to my onc about the severe nausea especially in the first 24 hours and so he's adding Ativan/Lorazepam (which I find odd because I thought it was for anxiety/sleeplessness rather than nausea?), here's hoping it helps. Maxolon/metoclopramide did nothing for me. I'm also going to be getting filigrastim shots (for the WBCs) & taking Clarantyne, so lots of extra drugs for my poor body to cope with!!! Eeek.
Wantolive - welcome and very sorry you have to be here. I'm 44 too (with 3 kids) and it all sucks SO much, but at least here we are all going through something similar so understand in a way that's hard to if you haven't experienced it. Let us know how you get on with everything.
I hope you are all well and I would like to give a warm welcome to the newbies.
I haven’t checked in for a wee while; I just wanted some time to get over the first chemo session.
B74, sorry to hear that you have ended up in hospital, I hope you are on the mend and get out soon.
I have decided that tomorrow is the day I get my hair shaved off. My hairdresser is going to do it for me. I am feeling nervous and at this point in time I have no idea how I am going to feel when it does actually happen. My hair isn’t coming out in chunks but it is starting to come out so I would rather take control and get it done. I have always had the mindset that it is going to grow back in but I shall see how I feel when it actually happens.
My next chemo cycle is on Friday and I am starting to get anxious already as my first cycle wasn’t the best. I am hoping they will tweak my anti-sickness and I won’t feel as bad. Fingers crossed.
Anyone else getting their chemo on Friday?
I hope everyone is well.
Semding lots of love xxx
Hi G, i'm not far behind you, second EC will be next Tuesday 29th. Also have hormonally responsive cancer (PR8 and ER8) not discussed my hormone treatment yet, I am assuming it will be tamoxifen. I hope it goes ok for you this Friday with number 2. I cold capped too and using vitamin d oil at night on my scalp, I'm guessing from what others have written that this week might be the week it sheds some! Good luck to everyone having their second session soon. xx
Hi ladies & welcome to the newcomers to our January party!
On the topic of ovarian suppression - I actually asked my onc at the first appointment about getting my ovaries removed - my sister died last year of ovarian cancer (yes it's been a really awful year) so it's something I was already worried about - even without the effect of oestrogen on my ER+ cancer. (Although all the doctors keep telling me her cancer was unlikely to be genetic - even with my BC diagnosis - because she had a very rare type & we have no other family history etc etc).
The onc said we'd discuss again after chemo, but they would give me injections to suppress ovarian function for a while to see how I felt, before making the decision to have irreversible surgery. He said normally they just give tamoxifen to block oestrogen from the cancer cells, while still allowing oestrogen to be produced and do all its normal female things in your body.
The only person I know who's had ovarian suppression DURING chemo had it to try & preserve her fertility (I think by temporarily shutting down the ovaries to stop them being damaged). Not a concern for me as I'm done having kids!
I have been following the thread all month and I have picked up lots of tips and advice - thank you!
So far I have had a lumpectomy with two sentinel lymph nodes removed, one of which contained cancer. I then had an axillary lymph node clearance. My tumour was Her 2 positive and ER positive so I will be treated with Herceptin alongside chemotherapy and then radiotherapy to finish.
I haven't started chemo yet but I am meeting with the onologist tomorrow to find out what's in store for me.
Good luck to everyone undergoing chemo at the moment.
Hi Bluetit! welcome to the party!
I'm 42 and in a similar boat. Had a PICC line put in last week before my first FEC. Procedure was fine (albeit a little surreal) and I'm sure it's better than messing up veins in the long run.
I was given a leaflet about ovarian supression by my BCN but the oncologist hasn't said anything about it so not sure what's going on there. I'm also in the high scoring oestrogen bracket but I suspect having two babies in the last two years didn't help that one little bit...
I totally echo the nesting theme - the batch cooking came out in force last weekend so now we have nothing but chilli in the freezer. Duh. Didn't quite reach the cleaning frenzy of pre-mat leave this time...