Hi Georgie and Val. Another TN here.
Well 10 days post chemo 2 and now got my taste buds back and nausea gone. So hopefully a pleasant 2 weeks and then will be round 3 of FEC . Ugh. Still got hair but coming out in handfulls so thinning nicely
Huggs to all
Wantolive, sorry to read about your nausea - are your team prescribing Emend for you? It has helped me and made sure for the first two days after chemo I can manage, it's an expensive drug so I don't get it for longer so days 3-5 after chemo I had nauasea coming and going. If you're not already on Emend please do ask for it. xx
Hi Georgie and Val, I'm from the Oct '17 thread and TN like you,sending you best wishes as you start your chemo x
I'm late to the January party but starting FEC-T this Monday. A bit like cramming for an exam and just really starting to delve in deeper to the SE and remedies etc! And getting the hang of the forum.
I have triple negative and over 2 ops I've had a mastectomy and axillary clearance. 4 weeks since mastectomy and feeling ready for this next stage to start.
Going to browse through more now to see if there's anything I missed!
Look forward to meeting you all. X
I'm due a picc line. They couldn't fit it before chemo number 2 (next Tuesday for me) at my hospital and wanted me to come into the hospital during my week 2 of my second EC to have it fitted and I refused as that's the week my wbc drops and I would have felt really anxious having it fitted then so I'm having mine done in week 3 of my cycle before my third EC. I imagine it's harder to bring an appointment forward, rather than put it back, so in your position I would ask for it to be done the week before your next (3rd) chemo. RE: hair, there are lots of things you can do like using oils for your scalp and shampoos that boost hair growth, even minoxidil was mentioned by a lady on here who was cold capping and kept her hair. I posted some suggestions lower down this thread and all are topical, with the exception of biotin supplements of which you should be able to ate 900 iu per day safely. Obviously run by your onc at next appointment. For anyone with sensitive scalps, chillow pillows are great. Can be bought on Ebay/Amazon for under a tenner and keep your head cool at night, just slip in between your pillow and pillow case.
Hi G that's great to hear. Is the one they gave you at the hospital very heavy - I've heard that they are so that's why I thought I'd get prepared. What colour is yours? Mine's a lovely torquoise on the front and lilac mix on the back. I love it.
Just wanted to reassure you about having the PICC line, I had one throughout my chemo and I had no problems at all. It didn't hurt having it inserted or when taken out. It said on my letter that relatives couldn't come in with you, but they let my daghter stay with me, so it might be worth checking. Do you think it might be worth phoning your onc on Monday to see if they could sort you being fitted in before Thursday as it doesn't seem at all fair that they're making you come in the day after you've had chemo. Or if you've already had chemo on Thursday via your vein, can it be dalayed until nearer your 3rd chemo when you're feeling better? I don't know if the procedure's the same in all hospitals, but I had to lie on a bed to have mine fitted which wouldn't be good for you if you're feeling sick.
I don't know if I've already mentioned this, but I wore the travel sickness bands whilst having chemo and for a few days afterwards, so they might be worth a try if you haven't done already xx
Ah thanks ladies, not sure if its smiley and fun or "drugged up to the eyeballs".. but I'll take the compliment. you'll soon be posting your new mad hairdos...
hi January Chemo Campers! I've just been reading through your latest posts (hope you don't mind) and it really brought tears to my eyes as you all deal with the hair loss. I was transported straight back to that day when I braved the shave. The head pain when its shedding, the prickleness when laying on your pillow (that goes once all the hair has), the worry and fear for your children.. bless you all... I remember it so well (and it was only a few months back). Had to smile at the stories of hair disappearing "elsewhere".. I remember that too... mine fell out in my knickers virtually all at once... what a fright! In terms of using something to encourage hair back... I use the Lush hair shampoo bar called "new"... its a little red circle thing. I began using it when the first hairs starting showing and (also rubbed it into where my eyebrows once were). I think I said before my hair began growing during the last 2 x T chemos, 4 months since the end of my chemo and I am having a little trim next week to remove the startings of a lovely mullet! If I can I'll upload some photos.
hang in there girls... you are doing wonderfully...this will make you smile.. the first place i remember seeing new hair growth was my toes....Bloody Cancer!!!
Kip.. heres my before and afters (and the after one was a month or so ago!).. Excuse the eye bags.. just another joy of BC
Well AC#2 was uneventful, the nurses are all so nice which really helps a lot. This time I was nervous but not terrified like the first time around, just knowing what's to come made it easier somehow. The good news was that my blood counts including neutrophils were "all excellent, better than before you started"!!! Not so happy about having to have a neulasta injection tomorrow, but I definitely don't want another trip to hospital.
Now I'm home waiting for side effects to kick in.... oh joy. Do the rest of you come home and rest, or just do normal stuff until you can't any more?
Oh and I didn't manage to shave last night - I got my husband to cut as close to the scalp as he could with scissors (we both shed a few tears!), then got into the shower with the intention of shaving the rest, but I couldn't see what I was doing, the razor was getting clogged up etc etc so I gave up and went to bed. So my current new look is very mangy and motheaten with obvious scissor marks all over my head. More concentration camp than proper bald. I still get a shock every time I see myself in the mirror. The kids have been ok, lots of extra hugs from my 7yo (as if to reassure herself I'm still the same mum underneath), but not entirely comfortable yet.
Hugs everyone & good luck G, MMJJ, Wantolive & anyone else also having treatment today.
sunnydaze, yes good carrier oils would be coconut, castor and for those with tender scalps almond oil is a very soothing carrier. You'll find biotin (b vitamin) is also used in many shampoos that promote hair growth and if you take up to the EVA you won't do yourself any harm - however do run this by your onc so they know. I checked I could do all of this first.
I don't know if any of you are near a Haven centre, if so there might be a herbalist there who can supply you with an oil for your scalps. I know there is one at the Haven in Fulham, London.
I know G, i am a bit obsessed I think (!) probably because I lost so much hair before. I was devastated. At the moment I still have mine but aware that could change tomorrow as this is my first time having chemo so unsure how it will affect me and when.
Wantolive, I hope you get some rest before tomorrow. Will be thinking of you all xxx
Hi B74 and sunnydaze, the reason live yoghurt and sourdough are not advised is they both contain bacteria, sourdough bread is made with a 'starter' which is a combination of yeast and bacteria. Ordinary bread is made with only yeast which isn't bacteria. I miss both but for what is a relatively short period in my life of treatment I have decided not to take any risks and follow the advice given, frustrated though as live yoghurt protects against thrush which I have read can be a s/e of EC and Paclitaxel. Am making do with supermarket greek style yoghurt
G, you asked about hair supplements further down the thread. I've had hair loss before from anaemia which was really upsetting. I'm prepared if it happens to me again this time from chemo but I decided to do all I could to prevent it, including cold cap. I asked my onc if I could take biotin and b complex throughout chemo and she said yes but I had to stick to the EVM, for biotin it's 900ug. Rosemary oil also good for the scalp (came out as good as minoxidil in trials) and vitamin d oil. Also, if your internal vitamin d level is low (which is really common in the northern hemisphere) hair won't grow as fast, so might be worth asking them to check your vitamin d, if they haven't before you began chemo. Finally, I swear by Watermans shampoo for fast hair growth. Also to avoid build-up neutrogena /t-sal shampoo is excellent. I hope this is of use maybe.
Good luck to everyone for the next round xx