17-01-2019 09:21 AM
Hi B74... hope are you bearing up in Casa NHS. I had exactly the same during my T chemo, a 2 night stay. I had IV antibiotics and regularly blood tests throughout the day and by day 2 the neuts were 0.6 (still not great) but they said as there were no signs of an infection I could go home. I actually think I was a more risk of an infection in the horrible little room I was put in than being at home!! Hang in there... use the time to rest up and get waited on...
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16-01-2019 05:51 PM
Hi debs, thanks for your message, great to know your side effects have not been too bad. I did have some nausea and aching joints for 2 days. Both relieved with paracetamol and the anti nausea meds. Also some diarrhoea 3 days post chemo. I kept a journal to see if this week follows the same pattern. The nausea is much the same but manageable. I have a picc line and is much easier than stressing they won't find a vein as mine are terrible. It's ok , I attend hospital one day for bloods and line redressing then chemo the next.
Hope you have a good week xx
16-01-2019 12:19 PM
16-01-2019 12:09 PM
I'm 50 in July, so all quite similar. I love your grey crop Kit, really brings out your eyes. I've always had my hair coloured but its it's pretty much full grey so that's going to be interesting for me too when it grows back x
16-01-2019 11:47 AM
Meant to add DiKat... my chemo nurses always told me not to worry about the diet during chemo... you need to eat what you can when you can... its not a time to worry about that. If you are struggling to keep weight on, then fill up when you can with what you can!
16-01-2019 11:45 AM
TrixieLady: I'm 48 so not far behind you. To be quote honest I think I was fairly lucky with the chemo. The FEC part I used to find I felt a bit sickly (almost pregnancy like) for about 4-5 days and then had the loss of taste and sore tongue but this used to sort itself by about day 8-9. The tiredness builds up but I don't think I was too bad, only remember 1 or 2 days where I had a sleep during the day. BUT I am very luck in that I work part timea and from home and was able to fall out of bed in PJs and sit at a desk for a few hours, my work is only centered around answering phones if they ring and a bit of typing so somedays I laid on the sofa and read a book inbetween or pottered around. The hair loss was a big big milestone for me. I had told myself I wouldn't let it bother me "Its only hair".. but when on day 12 of the first chemo it started to go.. my resolve followed suit. By Day 15 I had to have the shave.. I will never ever forget that day, in fact I feel tears just thinking about it...a friend sat and held my hand and my son watched as they shaved the lot. I couldn't bear to see myself for a few days but I had a nice wig which everyone said looked fab and used that and went around the house bald for most of the summer as it was so hot. It was hard to make people understand that even though I had lost a boob, losing my hair was harder. I felt I had gone from being a healthy person to looking like the chemo patient. Having said all that, after a couple of weeks I did move forward and accepted it.. never like it particularly.. but accepted it and wow it saved time in the shower.
The T Part of chemo was a differnet kettle of fish. I didn't have herceptin, just docetaxol and I was dreading it. I had read about it, it was going to be awful etc etc and I was so scared. But it was anymore awful... just different I guess. The SEs I found didn't start for a few days, the worst being the horrible mouth, T seems to affect that more I think. I got oral thrush during the 1st cycle of T and mouth ulcers but the hospital sorted me out and gave me medication for the next 2 cycles which helped it from getting too bad. The loss of taste was worse, lasted longer. I did have a stay in hopsital during cycle 4 (first T) when my temperature was high, 2 nights in a single room wasn't pleasant but they looked after me and made sure I didn't get an infection. The next time round I was fine, during the last cycle I had the self administered injections to ensure white bloods were high enough for the last bout. Eyelashes and eyebrows going was hard too, they didn't go until chemo 5 but they are back now. My hair was growing again during chemo 5 (apparently thats quite common if you have FEC first and then T). Now its full coverage. Oh my thumb got numb during T too, look out for numb fingers and toes and report it as they can reduce the chemo to prevent neuropathy. After chemo finished my thumb came back to normal but the nails are quite ugly, very short and have ridges, par for the course I'm afraid but they are growing too. As they always say, everyone reacts differently to all of this and its best to wait and see and just deal with it as it happens. Don't be hard on yourself if you need to rest, ask for help it you need to (my mum used to come over once a week and clean for me so I didn't need to worry even though I could have done it). Hope that helps.
DiKat - after treatment ends? Well I have read everything going about what I should eat, what I should do etc etc.. the conflicting reports are a nightmare. I am taking magnesium and zinc for my joint aches (chemo or Tamoxifen not sure which is causing it) but checked that with teh Onc nurse first. As for eating, I wasn't sure if I should be avoiding dairy (many posts suggeste that) but I asked at the hospital and they said no, just eat a balanced healthy diet... don't worry if you drink a bit, keep within the guidelines and just try to maintain a healthy weight and do some exercise. Its a minefield of information and quite overwhelming but I was asked if I wanted to see a dietician for some advice and although I haven't yet I may ask. Its hard to move forward when you wonder what you should be doing for the best but I think just be sensible and try to eat well, I still eat dairy, meat, drink alcohol and eat chocoloate
I know this is a bit further down the line for you guys still but worth a read:
"After the Treatment Finishes - Then What? by Dr Peter Harvey... you can find this on line and it hits the nail on the head! Ive just printed it off to show my hubby, gives him an insight into how this feels to.
16-01-2019 10:33 AM
Hi Kip 'm a December starter so post on that forum. If you've seen any of my posts you'll know I'm struggling big time with the chemo. It's really useful hearing your journey and bet it must be really strange to no longer have all these appointments. I'm struggling to keep my weight on so not adopting the most healthy of lifestyles at the moment. Im interested to know how you feel about lifestyle once you've finished treatments Kip. Does it send people into a blind panic about doing only the right?? No alcohol, parabens only wholegrains wholefoods etc. etc. I'd be interested to know what anyone else thinks too. I've read the lifeafterlola blog and found that interesting. Am I going to be a nervous wreck about anything that I eat, drink, use for ever! X