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January 2019 chemo starters

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Re: January 2019 chemo starters

I had emend.  But still feel bit sicky.  Not a lot.  But still feel I want to take one of my prn (as needed) anti nausea tablets.  Anyone else done that, or just brave out the slight sickness.  

Hugggsss to all x

G
Member

Re: January 2019 chemo starters

Thank you Dikat, I will ask them today when there for port, appreciate u popping over!!! Hope all going ok with you x
Member

Re: January 2019 chemo starters

Hey lovely ladies
I’ve just popped in from the December thread. I have had 2 Fec so far. All of you who are struggling with sickness, have you been prescribed Emend. If not I would contact your unit as you have to take first tablet 1 hour before unit. I am a really sickly person and apart from feeling a bit nauseous with first cycle not had any major problems with sickness. Good Luck xx
G
Member

Re: January 2019 chemo starters

Hey wanttolive a very warm welcome, really glad you found us!! I am 43 with a husband and two girls age 9 and 11. I too had a lumpectomy to get rid of grade 3 invasive lobular cancer but then needed a mastectomy as they found non invasive ductal all over when they checked the margins which hadn’t shown on any scans. I came back high on the oncotype DX test I had for reoccurrence hence the chemo journey (4xEC then 4x tax) as originally it was lumpectomy and radio was the plan but hey ho. We have truly wonderful ladies here who all have different things to share and knowledge of different areas that they are into, really is a wonderful mix and very comforting. Looking forward to sharing journey with you x

Good luck today Seaside Sar, hope you get a plan, realise it maybe scary but at least the process will be in place and that element of worry has gone x

Thanks for msg Lorraine 1. Wishing you all the best for Tuesday now, as if number 2 is like number 1, I may go awol over weekend for a few days on the forum but at least this time I know there is an end so that is comforting. I am also going to request all the nausea drugs in the world to see if something will help!!! With regards hair, my head really hurt (like it had been in a tight ponytail) for a few days before if that helps so if all feels ok then try to keep doing what u r doing. I actually lost probably two thirds of my hair yesterday in about an hour after washing it and gentle combing. I haven’t called my hair dresser yet as it has thinned all over rather than gaps at the minute so going to hold off if I can until after second lot of chemo, not sure why but that is what my mind has decided, may very well change as week goes on! Regardless I am going to continue to cold cap as should still help follicles in the long run.

Hey MaMaJuJu wishing you well with your hair and will be thinking of you and B74 on Friday whilst having my second too x
B74
Member

Re: January 2019 chemo starters

MaMaJuJu - yes I'm getting #2 on Friday as well (assuming my WBCs are back up), G is too I think. I'm dreading it after horrendous #1, but in a strange way I kind of want it done too, because then I'll be one closer to the end. I complained to my onc about the severe nausea especially in the first 24 hours and so he's adding Ativan/Lorazepam (which I find odd because I thought it was for anxiety/sleeplessness rather than nausea?), here's hoping it helps. Maxolon/metoclopramide did nothing for me. I'm also going to be getting filigrastim shots (for the WBCs) & taking Clarantyne, so lots of extra drugs for my poor body to cope with!!! Eeek.

 

Wantolive - welcome and very sorry you have to be here. I'm 44 too (with 3 kids) and it all sucks SO much, but at least here we are all going through something similar so understand in a way that's hard to if you haven't experienced it. Let us know how you get on with everything.

Member

Re: January 2019 chemo starters

Hi All,

 

I hope you are all well and I would like to give a warm welcome to the newbies. 

 

I haven’t checked in for a wee while; I just wanted some time to get over the first chemo session. 

 

B74, sorry to hear that you have ended up in hospital, I hope you are on the mend and get out soon. 

 

I have decided that tomorrow is the day I get my hair shaved off. My hairdresser is going to do it for me. I am feeling nervous and at this point in time I have no idea how I am going to feel when it does actually happen. My hair isn’t coming out in chunks but it is starting to come out so I would rather take control and get it done. I have always had the mindset that it is going to grow back in but I shall see how I feel when it actually happens. 

 

My next chemo cycle is on Friday and I am starting to get anxious already as my first cycle wasn’t the best. I am hoping they will tweak my anti-sickness and I won’t feel as bad. Fingers crossed. 

 

Anyone else getting their chemo on Friday?

 

I hope everyone is well.

 

Semding lots of love xxx

Member

Re: January 2019 chemo starters

Wanted to introduce myself and ask if I could join in. Just found this thread. I live in South Yorkshire and was diagnosed with breast cancer in September. Stage 2 grade 2, 2.8cm. Had lumpectomy then mastectomy nodes are clear and no vascular invasion. I am not going yo gave radiotherapy but decided for chemo ECx6. My cancer strongly ER+ so will be on Tamoxifen after chemo. I had my first chemo on 28december and was due to second one on the 18th but had to have antibiotics due to tooth infection. So having my second round 25 Jan. Iam 44 married and have daughter of 5 years old.
Would be great to have company of all of you lovely women during this dreading chemo. X
Member

Re: January 2019 chemo starters

Hi G, i'm not far behind you, second EC will be next Tuesday 29th. Also have hormonally responsive cancer (PR8 and ER8) not discussed my hormone treatment yet, I am assuming it will be tamoxifen. I hope it goes ok for you this Friday with number 2. I cold capped too and using vitamin d oil at night on my scalp, I'm guessing from what others have written that this week might be the week it sheds some! Good luck to everyone having their second session soon. xx

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Re: January 2019 chemo starters

Sending love B74
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Re: January 2019 chemo starters

Sending love B74.
I'm also done with having kids, it was trying to stabilise my nocturnal seizures during/after chemo that was the decision maker in my situation x
G
Member

Re: January 2019 chemo starters

Thanks B74 really useful, been niggling me all day.
Such sad news with regards your sister, sending you lots of love and positivity 💗 G x
B74
Member

Re: January 2019 chemo starters

Hi ladies & welcome to the newcomers to our January party!

 

On the topic of ovarian suppression - I actually asked my onc at the first appointment about getting my ovaries removed - my sister died last year of ovarian cancer (yes it's been a really awful year) so it's something I was already worried about - even without the effect of oestrogen on my ER+ cancer. (Although all the doctors keep telling me her cancer was unlikely to be genetic - even with my BC diagnosis - because she had a very rare type & we have no other family history etc etc).

 

The onc said we'd discuss again after chemo, but they would give me injections to suppress ovarian function for a while to see how I felt, before making the decision to have irreversible surgery. He said normally they just give tamoxifen to block oestrogen from the cancer cells, while still allowing oestrogen to be produced and do all its normal female things in your body. 

 

The only person I know who's had ovarian suppression DURING chemo had it to try & preserve her fertility (I think by temporarily shutting down the ovaries to stop them being damaged). Not a concern for me as I'm done having kids!

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Re: January 2019 chemo starters

Hi Seaside sar, hope your appointment goes well tomorrow. Like yourself I haven't started chemo yet, need my heart scan on Wednesday first. This is a lovely friendly thread and very informative. If only it wasn't happening to us. Xx
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Re: January 2019 chemo starters

Welcome Seaside Sar😊
Good luck with your Onc visit and chemo .
Just a quick note to say I follow this American dietician nutritionist on facebook, or email if you’re not on fb. I think she gives great qualified free advise, both sensible and practical. She is a qualified dietician. . For example myth busting around cancer nutrition, whether we can eat things like soy or flax seed, does sugar feed cancer? what about an alkaline diet? What should we have on our plates to help protect us against cancer? I have listened to some of her “webinars “ too and in my opinion I just find them practical and realistic. Here is the link if you think you might be interested in her professional free knowledge re; nutrition and cancer. It’s definitely worth registering and looking and listening to her back cataloghttps://www.cancerdietitian.com/2017/10/eat-protector-foods-plus-recipe.html?utm_sq=fxxm4q5wqp&utm_source=Fa...
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Re: January 2019 chemo starters

Hi everyone,

 

I have been following the thread all month and I have picked up lots of tips and advice - thank you!

 

So far I have had a lumpectomy with two sentinel lymph nodes removed, one of which contained cancer. I then had an axillary lymph node clearance. My tumour was Her 2 positive and ER positive so I will be treated with Herceptin alongside chemotherapy and then radiotherapy to finish.

 

I haven't started chemo yet but I am meeting with the onologist tomorrow to find out what's in store for me.

 

Feeling nervous.

 

Good luck to everyone undergoing chemo at the moment.

Member

Re: January 2019 chemo starters

Hi Bluetit! Smiley Happy welcome to the party! 

 

I'm 42 and in a similar boat. Had a PICC line put in last week before my first FEC. Procedure was fine (albeit a little surreal) and I'm sure it's better than messing up veins in the long run. 

 

I was given a leaflet about ovarian supression by my BCN but the oncologist hasn't said anything about it so not sure what's going on there. I'm also in the high scoring oestrogen bracket but I suspect having two babies in the last two years didn't help that one little bit... 

 

I totally echo the nesting theme - the batch cooking came out in force last weekend so now we have nothing but chilli in the freezer. Duh. Didn't quite reach the cleaning frenzy of pre-mat leave this time... 

 

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Re: January 2019 chemo starters

Hi Ladies, at this rate I'll be on the February thread can't stand the waiting, the stress levels are up and down, I've been trying to keep busy. I've been reading the threads since fist diagnosed in Oct , keep looking at the Predict and the Nottingham prognostic score, God knows if I've actually unstood it , think my chance of reacurrance is moderate so hopefully I'll be fine to hang on in there a bit longer, heart scan is Wednesday. I think it's the waiting that is hard but also had tears with getting used to my temporary reconstruction this week as its starting to increase in size. BIG HUGS to each and everyone of you, so sad but so brave & beautiful xx
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Re: January 2019 chemo starters

Good idea G. I am ER 7/8, but also have nocturnal seizures that are strongly linked to my hormones - so I think that was a big push in favour of oestrogen suppression x

Hi daisydi, Thank you! Please keep me posted Smiley Happy xxx
G
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Re: January 2019 chemo starters

Hmm thanks for that, I too was the highest ER positive and nothing mentioned for me, I will enquire 😘
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Re: January 2019 chemo starters

Good luck and loads of love Bluetit.  You go girl!  Will know if I will be joining you on Wednesday xxx