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January 2019 chemo starters

Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Hi everyone,
Just catching up and loving reading all of the many different posts. We are quite a community now 😍 Don’t apologise for your long post WantOlive, I loved learning about your life! The Christmas glass baubles sound lovely and the chicken noodle soup. I understand many of your feelings too. Why me? Why have I got breast cancer when I have looked after myself and lived a healthy life 😢 Life sucks sometimes. I also agree with the lady who mentioned she doesn’t like the new design of this thread. It’s so much harder to see who said what and remember names and stuff. It might look better, but I don’t find it very user friendly. Worse than it was! Oh well .
Stuck at 14 I am on day 6, second round of FEC and I am still feeling grim, worse than last time. I feel nauseous and my skin has darkened, looks like I’ve been under a sun bed😵No chemo pallor for me, but it’s a bit worrying, so keeping my eye on it. Last time I was baking on day 6, this time I can only get out of bed for a couple of hours during the day to do a bit of housework or preparing food for dinner. One of the ladies on here said she felt like a “dead battery”, great description, sadly that’s how I feel too. Really done in. This corner is taking a long time to turn. Fingers crossed 🤞 all those feeling rough today feel better tomorrow ❤️ I think I feel worse because my bloody period has dragged me down. I’m trying to eat lots of leafy greens to stop any anemia. Does anyone know when your bloods drop in the cycle? I thought it was about day 4-9 but maybe I’m wrong.
My heart goes out to all of you ladies struggling with hair loss just now, although we put a brave face on it, it’s a tough one especially when you are feeling rubbish from chemo se’s. I told my husband last night that this whole process is So dehumanising. I have lost my breast and my hair and I look rubbish, it’s definitely upsetting when you’re feeling vulnerable. My husband said, but I still love you, so that was nice, but it’s hard and at least we are not on our own on here. I do know that the effects of chemo are dragging me down right now and I will hopefully have a “glass half full “ not”half empty” again soon.
Anyway, I was having a laugh with my sister. I was wearing a little black type of sleep cap and my sister called me”Ali G innit”. Well that made me laugh, so true😂 It felt good to laugh.
I am really missing strained Greek Yoghurt and Yeovalley Yoghurt because it’s live Yoghurt I haven’t been able to eat it, due to the live cultures. However, I have been able to find a Tesco and Asda Greek Style yoghurt that don’t state they have live cultures, only pasteurised British milk, so hoping these are ok.
Ok ladies keep fighting the good fight. I’m up here fighting from Scotland. Look after yourselves those that are struggling this week and enjoy the freedom for those of you who are enjoying their “normal” days.
Sunnydazexxx
Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Day 6 and still some naseau.  Im wondering if the filgrastim jabs have something to do with it as when I get up I feel fine and then half hour later I do the jab and then a short while after I start feeling sick.

But at least Im not getting the bone pain which is a more common side effect.  

 

Huggss to all. 

Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Hi all 

 

LB - I've got a number 2! It's very cold though so if you're ready to roll get your hat ready :-) 

 

As with most things I went head long in to the hair loss and thought I'd take my hair before any horrible drugs were getting their hands on it. I had a series of terrible haircuts from a seven year old on the day of my first cycle and then we shaved it all off. The thought of it dropping out made me sadder than just getting it over and done with. Can't say I particularly love the look but I guess it won't be around for much longer anyway! 

 

Stuck at 14 - I'm a week into it all and my food tastes rubbish but I am eating like a horse. I'm not back to normal by any stretch of the imagination and have felt pretty spaced out the last few days. I've not been too bad with the nausea but the indigestion/heartburn is doing me up like a kipper. My kids have been out at school/nursery for the last couple of days so that's helped but today the two youngest are at home and it's double the effort to keep on top of things. Don't be too hard on yourself. And I frequently feel like running away... 

 

Wanttolive - your chicken noodle soup sounds fab. Recipe please! :-) It is really odd that so many of us seem to be in our early 40s with kids but comforting to know we're not alone. I am planning to spend my good days getting everything sorted so the house runs like clockwork (hahaha) or at least emptying the overflowing laundry basket. 

 

ktk
Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Hi LB. when I found a small animal in the bottom of the shower I decided to brave the shave. I went all in and took the lot off, mind you it was June!!!🤣. Felt much better afterwards. Lots of pretty scarves. Kx
Member

Re: January 2019 chemo starters

Hi , I started last week 23 jan , ec x 3 then will decide after , feel ok , sick once , very tired in afternoons but pretty much feel ok 😄
LB
Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Hi Stuck at 14

It was day 9 before my food started to taste normal and after that I had much more energy.

It's day 16 now and my hair has started pulling and falling out - it's time to brave the shave - my husband wants to do it - I might stick it out for another day or 2 - I didn't think it would be this hard to do.  I had several friends who were going to help - guess what - all got colds. I'm not sure how short to go - any suggestions please.

I love all the tips that we share on here - it really helps.

Hugs to all  

Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Thanks G and Wanttolive. Yeah first one, I was so sure if have 3 days out then be feeling better so now I'm just thoroughly miserable. Everything tastes and smells disgusting - ginger and pineapple especially. Also struggling with being so helpless with the kids etc, all this and I still have hair. Does anyone else feel like giving up? I wouldn't obviously but I just wasn't prepared for how bad I feel.
Member

Re: Hi everyone, it's good to know I'm not the only one strug...

Hi Stuck at 14
Was it your first cycle?
Day 6 I was feeling nauseous too. I remember thinking that it's already day 6 and still feeling sick but then suddenly this feeling left me on day 7. Sorry you feeling poorly though to the point you don't can't go to doctor. Ask them to try different medicine this time. They will be happy to do so.
G
Member

Hi Stuck at 14, my sicknesss lasted exactly a week, almos...

Hi Stuck at 14, my sicknesss lasted exactly a week, almost to the hour, and then just lifted. I was able to do the walk to and from school but that was all. I definitely didn’t want to meet friends or socialise so if u don’t either don’t beat yourself up. The following two weeks I was back to myself (if a little hyper because I didn’t feel sick!!). I also got emotional on about day 5 (steroids reaction has been suggested) but really low, I now know to expect that and again that will pass.
Big hugs xxx
Member

Hi everyone, it's good to know I'm not the only one strug...

Hi everyone, it's good to know I'm not the only one struggling with sickness. I'm on day 6 now and haven't left the house apart from to see the out of hours doc. I had first ec on Friday, started domperido Saturday and changed to cyclotizen on Sunday but I've still barely left bed or the sofa. Is this just how it is? I feel so sick, weak and tired. I've not got the energy to go back to docs to try a different anti sickness, surely it should be better now? How many days was it before you could say arrange to meet a friend? X
G
Member

Hi Wanttolive, please don’t apologise for anything on her...

Hi Wanttolive, please don’t apologise for anything on here hun, if you want to do a long post then do it.
I can’t imagine having your phobia and going through this, although you have to keep telling yourself that people aren’t physically sick usually having chemo, it is just the feeling to manage and it sounds like another thing you have conquered in this horrific journey! I was given domperidone same as you but I really want something else on Friday so going to see what they say based on suggestions from my very knowledgable friends here 😊
I think you sound like your are doing amazing...I think we alll need your chicken noodle soup recipe especially if it is something healthy in chemo week...all I could eat was beige food, and carbs aren’t great for my tummy either...lactulose is what you need, you need to ensure you drink a lot of fluid and the lactulose (get some from your pharmacy).
I know what you mean regarding the emotional side, I wanted to tell someone the other day to stop moaning about the wait to pay for some shopping at the till, I found my self getting cross thinking if that is all you have to moan at!!! Then I thought I don’t know what people are going through as I have never looked like I have cancer, I imagine the first time I will is when I sort out my very thinning hair. But I totally empathise, everything has a different weird spin on it. I found the hardest thing to deal with about feeling so nauseated was what had made me feel this way, total brain confusion on what the hell am I doing.
Sounds like your crafting is a good escape for you, I often read for a few hours before the rest of the house is awake (or message on here!) and I quite like that mebtime where the world isn’t up yet.
Take care x
One last thing, anyone else finding the new look of this forum weird to get used to...I don’t like change 😂
Member

Re: January 2019 chemo starters

Hi girls it will take me a few days to remember who is who. Looks like a few of you having chemo on Friday. I also can't believe so many of us the same age. With kids.
MaMaJuJu good luck with hair. I have shaved my hair myself. Just sat on the floor with shaving machine and decided to try. And ended up shaving off all of it. Not very short. Left about an inch. I have good thick hair and a thought of it coming off in big chunks makes me feel sad... So I think it's better this way. Now I have just a few hair here and there left and I look so weird in the mirror. I wear wig. For about 2 weeks now. I love the look. To be honest better than my own hair. But I already miss my hair.
I haven't red all comments yet but can see everyone suffer with nausea mainly. I was thinking wow all of us having different pills prescribed. I was sent home with Ondansetron and domperidone. I took all of them LOL as I suffer with phobia of vomiting unfortunately and one thought of being sick is making me wanting cancel my treatment. I am having EC chemo. And I had very strange nausea during my first round that make me eat , making me very hungry. Like bring pregnant when you feel nauseous but craving sour and salty foods, first day after treatment I spend on kitchen cooking a lot. I was really craving chicken noodle soup and Russian salad. I ate a lot during my first week. I would get up in the morning and had noodle soup at 7 in the morning which would make me feel so much better. And it tasted so special. Also found crisps and greapfruits are very helpful with nausea. My nausea was was mild and I wasn't very fatigue at all. Maybe first a few days. Another side effect I had was indigestion on the day 2 and constipated for first 4 days.
I also was going to ask you girls what is your routine on the week of chemo. Are you trying to get yourself organised before chemo? To have utoninv done and food shopping cleaning and cooking?
I feel like I live somebody else's life for months now. I feel like there is no dignity during this treatment. Starting from mammogram and continue with surgent drawing on your boob and looking your hair through treatment, I found it very emotional sitting there for your first chemo watching this drug going through yoir vein knowing and at same time not knowing what it will do to your body. I often think when iam walking into the shop or being around strangers on the street that all those people don't have cancer and I do.

G, I had high oncotype as well. Because I had breast implant I can't have chemo. So my doctor advised to have chemo.
I don't work at the moment but I do have my little workshop at home. Where I handpaint my glass Christmas tree baubles. I have sold a lot and I am planning to sell a lot next Christmas. This is what keep me sane. Sometimes I get up at 5 in the morning put my jazz music on and start painting. Before my demanding family makes up.
I hope girls you all having a relaxing evening and looking forward hearing from you.
I am sorry for such a long post. I will try yo keep it short.
Xxxxx
LB
Member

Re: January 2019 chemo starters

Hi go cat I was told to take the as and when anti sickness pills as often as I needed - better than feeling nauseous. I also found that eating a salty cracker helped with that queasy feeling - someone described it as like morning sickness. I too had Emend. I saw my oncologist today and asked to see my breast mri scans. I just needed to see what i’m taking on. I’m pleased that I am enjoying the good week and have got a lot of energy ready to start again next week. Good luck and hugs to all x
Member

Re: January 2019 chemo starters

I had emend.  But still feel bit sicky.  Not a lot.  But still feel I want to take one of my prn (as needed) anti nausea tablets.  Anyone else done that, or just brave out the slight sickness.  

Hugggsss to all x

G
Member

Re: January 2019 chemo starters

Thank you Dikat, I will ask them today when there for port, appreciate u popping over!!! Hope all going ok with you x
Member

Re: January 2019 chemo starters

Hey lovely ladies
I’ve just popped in from the December thread. I have had 2 Fec so far. All of you who are struggling with sickness, have you been prescribed Emend. If not I would contact your unit as you have to take first tablet 1 hour before unit. I am a really sickly person and apart from feeling a bit nauseous with first cycle not had any major problems with sickness. Good Luck xx
G
Member

Re: January 2019 chemo starters

Hey wanttolive a very warm welcome, really glad you found us!! I am 43 with a husband and two girls age 9 and 11. I too had a lumpectomy to get rid of grade 3 invasive lobular cancer but then needed a mastectomy as they found non invasive ductal all over when they checked the margins which hadn’t shown on any scans. I came back high on the oncotype DX test I had for reoccurrence hence the chemo journey (4xEC then 4x tax) as originally it was lumpectomy and radio was the plan but hey ho. We have truly wonderful ladies here who all have different things to share and knowledge of different areas that they are into, really is a wonderful mix and very comforting. Looking forward to sharing journey with you x

Good luck today Seaside Sar, hope you get a plan, realise it maybe scary but at least the process will be in place and that element of worry has gone x

Thanks for msg Lorraine 1. Wishing you all the best for Tuesday now, as if number 2 is like number 1, I may go awol over weekend for a few days on the forum but at least this time I know there is an end so that is comforting. I am also going to request all the nausea drugs in the world to see if something will help!!! With regards hair, my head really hurt (like it had been in a tight ponytail) for a few days before if that helps so if all feels ok then try to keep doing what u r doing. I actually lost probably two thirds of my hair yesterday in about an hour after washing it and gentle combing. I haven’t called my hair dresser yet as it has thinned all over rather than gaps at the minute so going to hold off if I can until after second lot of chemo, not sure why but that is what my mind has decided, may very well change as week goes on! Regardless I am going to continue to cold cap as should still help follicles in the long run.

Hey MaMaJuJu wishing you well with your hair and will be thinking of you and B74 on Friday whilst having my second too x
B74
Member

Re: January 2019 chemo starters

MaMaJuJu - yes I'm getting #2 on Friday as well (assuming my WBCs are back up), G is too I think. I'm dreading it after horrendous #1, but in a strange way I kind of want it done too, because then I'll be one closer to the end. I complained to my onc about the severe nausea especially in the first 24 hours and so he's adding Ativan/Lorazepam (which I find odd because I thought it was for anxiety/sleeplessness rather than nausea?), here's hoping it helps. Maxolon/metoclopramide did nothing for me. I'm also going to be getting filigrastim shots (for the WBCs) & taking Clarantyne, so lots of extra drugs for my poor body to cope with!!! Eeek.

 

Wantolive - welcome and very sorry you have to be here. I'm 44 too (with 3 kids) and it all sucks SO much, but at least here we are all going through something similar so understand in a way that's hard to if you haven't experienced it. Let us know how you get on with everything.

Member

Re: January 2019 chemo starters

Hi All,

 

I hope you are all well and I would like to give a warm welcome to the newbies. 

 

I haven’t checked in for a wee while; I just wanted some time to get over the first chemo session. 

 

B74, sorry to hear that you have ended up in hospital, I hope you are on the mend and get out soon. 

 

I have decided that tomorrow is the day I get my hair shaved off. My hairdresser is going to do it for me. I am feeling nervous and at this point in time I have no idea how I am going to feel when it does actually happen. My hair isn’t coming out in chunks but it is starting to come out so I would rather take control and get it done. I have always had the mindset that it is going to grow back in but I shall see how I feel when it actually happens. 

 

My next chemo cycle is on Friday and I am starting to get anxious already as my first cycle wasn’t the best. I am hoping they will tweak my anti-sickness and I won’t feel as bad. Fingers crossed. 

 

Anyone else getting their chemo on Friday?

 

I hope everyone is well.

 

Semding lots of love xxx

Member

Re: January 2019 chemo starters

Wanted to introduce myself and ask if I could join in. Just found this thread. I live in South Yorkshire and was diagnosed with breast cancer in September. Stage 2 grade 2, 2.8cm. Had lumpectomy then mastectomy nodes are clear and no vascular invasion. I am not going yo gave radiotherapy but decided for chemo ECx6. My cancer strongly ER+ so will be on Tamoxifen after chemo. I had my first chemo on 28december and was due to second one on the 18th but had to have antibiotics due to tooth infection. So having my second round 25 Jan. Iam 44 married and have daughter of 5 years old.
Would be great to have company of all of you lovely women during this dreading chemo. X
Member

Re: January 2019 chemo starters

Hi G, i'm not far behind you, second EC will be next Tuesday 29th. Also have hormonally responsive cancer (PR8 and ER8) not discussed my hormone treatment yet, I am assuming it will be tamoxifen. I hope it goes ok for you this Friday with number 2. I cold capped too and using vitamin d oil at night on my scalp, I'm guessing from what others have written that this week might be the week it sheds some! Good luck to everyone having their second session soon. xx

Member

Re: January 2019 chemo starters

Sending love B74
Member

Re: January 2019 chemo starters

Sending love B74.
I'm also done with having kids, it was trying to stabilise my nocturnal seizures during/after chemo that was the decision maker in my situation x
G
Member

Re: January 2019 chemo starters

Thanks B74 really useful, been niggling me all day.
Such sad news with regards your sister, sending you lots of love and positivity 💗 G x
B74
Member

Re: January 2019 chemo starters

Hi ladies & welcome to the newcomers to our January party!

 

On the topic of ovarian suppression - I actually asked my onc at the first appointment about getting my ovaries removed - my sister died last year of ovarian cancer (yes it's been a really awful year) so it's something I was already worried about - even without the effect of oestrogen on my ER+ cancer. (Although all the doctors keep telling me her cancer was unlikely to be genetic - even with my BC diagnosis - because she had a very rare type & we have no other family history etc etc).

 

The onc said we'd discuss again after chemo, but they would give me injections to suppress ovarian function for a while to see how I felt, before making the decision to have irreversible surgery. He said normally they just give tamoxifen to block oestrogen from the cancer cells, while still allowing oestrogen to be produced and do all its normal female things in your body. 

 

The only person I know who's had ovarian suppression DURING chemo had it to try & preserve her fertility (I think by temporarily shutting down the ovaries to stop them being damaged). Not a concern for me as I'm done having kids!

Member

Re: January 2019 chemo starters

Hi Seaside sar, hope your appointment goes well tomorrow. Like yourself I haven't started chemo yet, need my heart scan on Wednesday first. This is a lovely friendly thread and very informative. If only it wasn't happening to us. Xx
Member

Re: January 2019 chemo starters

Welcome Seaside Sar😊
Good luck with your Onc visit and chemo .
Just a quick note to say I follow this American dietician nutritionist on facebook, or email if you’re not on fb. I think she gives great qualified free advise, both sensible and practical. She is a qualified dietician. . For example myth busting around cancer nutrition, whether we can eat things like soy or flax seed, does sugar feed cancer? what about an alkaline diet? What should we have on our plates to help protect us against cancer? I have listened to some of her “webinars “ too and in my opinion I just find them practical and realistic. Here is the link if you think you might be interested in her professional free knowledge re; nutrition and cancer. It’s definitely worth registering and looking and listening to her back cataloghttps://www.cancerdietitian.com/2017/10/eat-protector-foods-plus-recipe.html?utm_sq=fxxm4q5wqp&utm_source=Fa...
Member

Re: January 2019 chemo starters

Hi everyone,

 

I have been following the thread all month and I have picked up lots of tips and advice - thank you!

 

So far I have had a lumpectomy with two sentinel lymph nodes removed, one of which contained cancer. I then had an axillary lymph node clearance. My tumour was Her 2 positive and ER positive so I will be treated with Herceptin alongside chemotherapy and then radiotherapy to finish.

 

I haven't started chemo yet but I am meeting with the onologist tomorrow to find out what's in store for me.

 

Feeling nervous.

 

Good luck to everyone undergoing chemo at the moment.

Member

Re: January 2019 chemo starters

Hi Bluetit! Smiley Happy welcome to the party! 

 

I'm 42 and in a similar boat. Had a PICC line put in last week before my first FEC. Procedure was fine (albeit a little surreal) and I'm sure it's better than messing up veins in the long run. 

 

I was given a leaflet about ovarian supression by my BCN but the oncologist hasn't said anything about it so not sure what's going on there. I'm also in the high scoring oestrogen bracket but I suspect having two babies in the last two years didn't help that one little bit... 

 

I totally echo the nesting theme - the batch cooking came out in force last weekend so now we have nothing but chilli in the freezer. Duh. Didn't quite reach the cleaning frenzy of pre-mat leave this time... 

 

Member

Re: January 2019 chemo starters

Hi Ladies, at this rate I'll be on the February thread can't stand the waiting, the stress levels are up and down, I've been trying to keep busy. I've been reading the threads since fist diagnosed in Oct , keep looking at the Predict and the Nottingham prognostic score, God knows if I've actually unstood it , think my chance of reacurrance is moderate so hopefully I'll be fine to hang on in there a bit longer, heart scan is Wednesday. I think it's the waiting that is hard but also had tears with getting used to my temporary reconstruction this week as its starting to increase in size. BIG HUGS to each and everyone of you, so sad but so brave & beautiful xx
Member

Re: January 2019 chemo starters

Good idea G. I am ER 7/8, but also have nocturnal seizures that are strongly linked to my hormones - so I think that was a big push in favour of oestrogen suppression x

Hi daisydi, Thank you! Please keep me posted Smiley Happy xxx
G
Member

Re: January 2019 chemo starters

Hmm thanks for that, I too was the highest ER positive and nothing mentioned for me, I will enquire 😘
Member

Re: January 2019 chemo starters

Good luck and loads of love Bluetit.  You go girl!  Will know if I will be joining you on Wednesday xxx

Kip Community Champion
Community Champion

Re: January 2019 chemo starters

Sunnydaze - when I got a period during chemo I was a bit panicked but the chemo line said it was normal to have one or two.   Some people get them return after chemo finishes, but so far I haven't.   I think i was 8/8 ER+ but not been mentioned about ovary suppressants.  It will be interesting to know what the guidelines are for it.  

Kip

xx

Member

Re: January 2019 chemo starters

Hi
I think the ovarian suppression might be to do with how strongly your tumour is er+ mine was 8. I think that is the highest marker.
Hi Bluetit 😊 and yes, I also went through a nesting phase pre chemo. Good luck.
Member

Re: January 2019 chemo starters

Thanks G x
I'm 41 & am also nesting & going out for coffee/ lunch a lot! It definitely feels like I'm getting ready for mat leave in a strange way x
G
Member

Re: January 2019 chemo starters

Hi Bluetit, welcome!
Same treatment as me although I am not having the ovarian suppression (not been mentioned to me), I am now 43 and will go on to tamoxifen for 10years. Welcome to the group and please try and make the most of the next few weeks so u can mentally go with however your body and mind need to after your first session. I seemed to go through a nesting phase the week before like I did before having my children! think mentally I needed a straight house etc to regroup in afterwards!
xx
Member

Re: January 2019 chemo starters

Hi All,

I'm late to the January party - due to have my first EC on 29th Jan (4x EC, 4xT).

PICC line is going in this Thursday.

I'm having the Ovarian supression too - my 1st injection is on EC day.... eek.

I've skimmed through your Jan thread and written myself some notes along the way.... thank you! x

 

Member

Re: January 2019 chemo starters

Hi Kip,
Thank you for your reply, 😍it’s really good to know how you and other ladies have got on regarding periods. I will keep my fingers crossed that chemo and tamoxifen will stop my periods. This way, I will feel better knowing that the oestrogen flying around my body will have its wings clipped !!! I will discuss with my Onc next time I see her, which will be after my third FEC so I should have some idea what is going on with my menstrual cycle.
Sunnydaze xxx
Kip Community Champion
Community Champion

Re: January 2019 chemo starters

Well done ladies, another week ticked off and you are all dealing with hair issues really well... be strong!

Sunnydaze - I think you asked about periods.  I was 47 when I started my chemo (almost 48) and was still having regularly periods, I had one during my first cycle of chemo (FEC) and then I have had no more since, I think a couple of other ladies on my thread were the same.   I am now on Tamoxifen and I think no more periods for me... some bonus to this whole procedure.   I haven't been advised to have injections either but I know some do.. not sure of the whys and wherefores, perhaps age?

Kip

xx

G
Member

Re: January 2019 chemo starters

Here’s to a new week ahead ladies. For those on a good week like myself then here’s to making the most of it (although having my port fitted tomorrow before Friday’s second lot of EC so that will curtail exercise I had planned to try and maximise in my good weeks 😏). For those on not so good a week, big hug and be kind to yourself, you will get through the horribleness xx

Hair update, despite cold capping, definitely shredding, handfuls are coming out, this is my girls (age 9 & 11) biggest fear in the whole process and it is happening. I haven’t told them yet, I have just said that my scalp is now very tingly so we should expect this, just to position it to give them time, as the week goes on I will explain it is happening. B74, it is amazing you were able to put an element of fun into it and a bonding experience, I know this won’t work for mine but well done you on every level 😊

Hi Lorraine1, I am with you on the first part, 4x EC (second one this Friday) but then I have 4x Taxotere.

xxx
LB
Member

Re: January 2019 chemo starters

Lorraine.1 that’s a good idea thanks. A couple of people who wanted to call in have colds so they’re going to come another time.
Highlighted
Member

Re: January 2019 chemo starters

LB, I asked people visting not to hug me, I explained why and they seemed to understand and then kept a bit of a distance - lol. I think that's the only thing we can do. X

 

Anyone else here doing 4 x EC followed by 4 X paclitaxel ? 

LB
Member

Re: January 2019 chemo starters

Hello ladies, I’m day 13 and I’m so pleased that I was able to do the whole of our usual dog 🐕 walk today - about 2.5 miles. It feels great that for a few days I hope to be myself 😀 good luck and best wishes to all 🤗
Member

Re: January 2019 chemo starters

Good luck LB2 with your chemo, round 2 and good luck with your cold capping🤞 I hope your perseverance pays off. Even if your hair is not behaving itself now, it should grow in much quicker, once we’ve walked through this hellish journey.
It was useful learning about the 5% thing. A good way to help us pace ourselves. I feel worse this time because I have got my period to drag me down too. I was hoping chemo would kiss goodbye to those. No such luck.I hope this doesn’t effect my neutrophils later this week 😢 I was wondering if anyone on here has been told they have to have those ovarian suppression injections if chemo doesn’t arrest their periods? I am 50 in a couple of weeks time and really hope that chemo kicks in an earlier menopause so I don’t have to deal with ovarian suppression injections. Breast cancer is pretty dehumanising at best isn’t it! I can’t wait for sunnier days.x
LB2
Member

Re: January 2019 chemo starters

Hello Ladies, I am with you all on the hair loss. Sunnydaze I am one day behind you on treatment, had my second FEC 100 yesterday. Still did the cold cap but the nurse said it rarely works with the high dose, gives better results with FEC 75 so that might be something to consider for those about to start treament. Washed my hair this morning and still loads coming out but when I look in the mirror there is still some left, more than I thought. I will keep persevering before I brave the shave.

 

I feel pretty good today so that is something, my nurse also said you can expect to feel 5% more fatigued with each treament but everyone is different - I have asked that question before but she is the first to give a definite answer. Start my injections this evening, not looking forward to it. But am now a third of the way through the chemo journey.

 

Sending good vibes to everyone.

Member

Re: January 2019 chemo starters

Glad you’re feeling better B74 and glad you had some fun along the way with your daughter cutting your hair. It is quite freeing really, a rare opportunity. Good luck with the rest of the shave xx
B74
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Re: January 2019 chemo starters

Feeling so much better today, so I got my 13 year old daughter to cut my hair really short. At first she was reluctant & a bit freaked out, but I said “come on - how often are you going to be given a pair of scissors & free rein on someone’s hair?!” She ended up giving me about 5 different hairstyles along the way & it was fun. Everyone agrees I look better with short hair anyway!! I’m going to keep it til the morning & then shave, the prickling has become almost unbearable, and it’s shedding everywhere.
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Re: January 2019 chemo starters

Hello lovely ladies,
Just catching up on all of your messages. It’s a lively thread😊 I have to say your heart warming messages are very comforting, it’s a horrid time for all of us, but
it’s great to come on this thread and realise you are not alone. So I’m sending a huge hug out to each and everyone of you 😍 G, you are so right when you say we are strong and vulnerable all at the same time!
Thank you B74, G, LB , Nelly Mcnelly and Kip for your reassuring words. B74 I am so pleased you are now out of hospital and that you can enjoy some quality time at home getting your strength back. Onwards and upwards.
I send out get well vibes to stuck at 14, sparkle 2001 and Go Cat as they deal with their infusions. I had my second poison yesterday . The steroids kept me awake last night, ravenously hungry too, but I’ve realised I burn the excess of during the good days in the latter part of my cycle when my appetite normalises.
I do feel like a “dead battery” today after yesterday.’s Chemo, more so than last time. I guess the next few days will be tough. I think you are right. Day 1-7 you feel rough and from day 12 you feel grand again.
Well I braved the final shave yesterday and I have now got a baldy, funnily enough, honest to god it quite suits me. I am channelling my inner wild rock chick at the grand old age of 49. 🤣
I was crying the night before it happened though. I had a bath and afterwards my hair was coming out in big clumps. Very distressing and the same happened yesterday morning. My hair was looking raveged. I had it shaved as a half way house last Saturday and then again yesterday, Three weeks to the day from my first chemo I got a baldy shave. Once you start losing it, it falls thick and fast in that final week. I had a medium length blonde bob 3 weeks ago. I am glad I did the shave in too stages, it helped me to cope.
So, now it’s gone 😵 and you are so right Kip, the Shedfing and the anxiety attached to it all is really tough, but when it’s gone you do feel so much better. It’s both freeing and liberating in a sad kind of way. You’ve just got to embrace your inner Sinead O’Connor. Big earrings definitely help. We are beautiful in the inside and outside and we can positively rock this. So all of you ladies losing your hair I send you huge hugs and positivity..
Ok, I’ll leave it here for now. Yours in sisterhood.
😎 sunnydaze xxx
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Re: January 2019 chemo starters

Thanks LB Smiley Happy I thought I'd cracked the nausea today but woke up feeling a bit quesy so had another sneaky anti-nausea tablet. The steroids are making me ravenous though! I shall definitely follow up your umami tip and stock up on some crackers. I may be the size of a small house when this is over... 

And Happy Birthday! Hope you have a great weekend Smiley Very Happy

 

 

G - thanks also for your advice Smiley Happy it's such a strange thing to be going through. I am constantly shuttling between rational and irrational thoughts and arguing with myself (mainly at 3am!). This is certainly the oddest thing I've ever been through!