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January 2016 Chemo starters

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Re: January 2016 Chemo starters

I have just repainted my toe nails - I thought the worst was over but ink for nails it's just starting! My finger nails keep feeling sore but I can't see beneath the shellac - moment of truth on Friday when I have them Redone! 

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Re: January 2016 Chemo starters

Ellie - hope all goes ok today - think you must be the first to start - look forward to hearing how it went. Don't know why I feel nervous about rads , don't think the attitude of the 'chief ' oncologist helped - said I was worried about it being Left side and effects on heart/ lungs - rather brusk ' we try to avoid it but does sometimes catch lung tissues and effects permanent '!!!!, not saying what of course, just really worries me - hope planning staff are a bit more 'caring' 

My nails not looking good - feel very sore, middle section purple and end section a yellowy discoloured ( look a bit like nicotine stains on a smoker 😨- all ten fingernails same . 

Hope everyone has a good day , best wishes Mechele 

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Re: January 2016 Chemo starters

Delighted for you Debbie! 

 

I start rads today! 4.15. I also go back to work today, just doing 11-3 this week. 

 

Ellie.

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Re: January 2016 Chemo starters

That's excellent news Debbie, will be so nice for you to get home to your family and own bed. Don't know if you got much sleep, I never did - just so much going off. I've got my planning appt today at 11.30 ( have to go to Sheffield which can take 45/50 mins or 2 hrs - traffic dependant ). I start 1/6 to 21/6 , know some already had planning appt and start after me - sure there's some that start before me but can't remember who ! 

Youll be glad to get your drain out - hope you don't have long to wait to getting ' released' , so pleased you got that out of the way , best wishes Mechele X 

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Re: January 2016 Chemo starters

Morning all,
Surgery update- I've just had my drain checked and it's OK to come out today so I can go home- yippee!! Looking forward to getting into my own bed, some good food and seeing Hubble and kids!!
I hope everyone is doing ok. Who is the first to start rads?
Love and hugs
Debbie xx
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Re: January 2016 Chemo starters

Aww Debbie

I think everyone has been thinking of you. Let the emotions out, they will have been building up with the anticipation of your surgery. Make sure you take it easy during your recovery. Hope the drain is done with soon, I was forever forgetting I had one and would walk off and then go 'oh' once it had a gentle pull. Hope you managed to get hold of some nice food. Best wishes for a speedy recovery, it's nice to get home in your own bed. xxx

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Re: January 2016 Chemo starters

Hi Debbie, so pleased the surgery went ok and the anxieties/ unknown is always the worst . Hope you feeling a little better and that you get home tomorrow - as long as you are well enough of course. Have been thinking of you - with love, hugs and best wishes , Mechele X 

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Re: January 2016 Chemo starters

Hi Fiona,
I'm doing ok, surgery was fine it's the build up that's the worst. I'm still in hospital, I'm hoping that I might be out tomorrow but I don't want to go home with drain in as not nice for kids, and it's still producing quite a bit. I'm feeling quite emotional today, reality is kicking in. I'm waiting for my husband to bring in some nice food, why is hospital food so awful!! Hope you manage to get your sleep back on track.
Take care
Debbie xxx
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Re: January 2016 Chemo starters

Fiona, have you tried taking a nap earlier in the day and keeping it to no more than an hour? Or even half an hour at 6 if you are working? Ellie. 

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Re: January 2016 Chemo starters

Morning all, my sleep pattern has changed so much, I've been feeling exhausted by 6pm every night, so I go to bed early, then wake up  every 2 or 3 hours in the night, which is really annoying because I always used to sleep very well, does anyone else have this?

 

Pat least I seem to have plenty of energy in the mornings, I'm going to start exercising next week to try to build up some strength before my surgery, in 3 weeks.

 

Re nails, there does seem to be some evidence that keeping dark nail varnish on can save them, although it's not well documented.  I have decided to keep putting dark nail varnish on for 4 months from my last chemo, and then after that I'm going to switch to OPI nail envy strengthened, which is clear.  You put it in in layers each day, then after about 5 days take it off and start again.  I think the only other thing we can do is wear gloves when doing anything which might damage them, and hope for the best!

 

debbie how are you doing?  Will you stay in hospital for the weekend or go home?  Thinking of you and hope that the surgery went well and that you are feeling OK.  Fiona.  XX

 

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Re: January 2016 Chemo starters

My tablets start the day after rad finishes. 

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Re: January 2016 Chemo starters

When I re-did my nails on Monday I noticed that a couple of them look purple and bruised underneath. Really hoping not to lose them.

Claire, I haven't heard anything else about when to start tables, but when I last saw oncologist she indicated that it would happen after rads. She was also concerned about my arm swelling that I was having clexane injections for as if it was still swollen I'd have to have different meds. I'm due to see her on 31st may so will find out more then xx
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Re: January 2016 Chemo starters

Kim, I know how you feel about loosing your nails, I can't imagine what they will look like and there is nothing we can put over them if they come off. I've used onicolife drops too and dark nail varnish. I just took nail varnish off on Wednesday in preparation for surgery then noticed the changes, before putting last lot of nail varnish on mine were purple to third/half of the way up. Once I'm out of hospital I'm going to put nail varnish on and just hope for the best that they stay on!! Today is 4 weeks since my last chemo- where has that gone!!
Hope everyone is doing ok.
Love Debbie xx
Community Champion

Re: January 2016 Chemo starters

I hate the thought of losing my nails 😨 Still have the dark nail varnish in mine and as I've said, they're tender and look faintly bluish under the nail polish. They seem strong enough but worried it won't last! I used the oncolife nail drops all through FEC and painted them dark for the T part, putting the nail drops on when I changed my nail varnish. I notice the December thread are discussing nails too!!
Xxx
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Re: January 2016 Chemo starters

Fiona, I am not sure about your research - I think it's coming up with the wrong answers! We need a solution to this nail problem! I think the nails on both of my middle fingers are starting to lift and I don't like it. 

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Re: January 2016 Chemo starters

Well done Debbie! Hope you are comfortable - enjoy the rest! 

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Re: January 2016 Chemo starters

That is fabulous news Debbie, I'm so glad that all went well.  Take it easy and heal well. So sorry about your nails, I've been reading up on some of the threads about nails to try to work out the best thing to do and there doesn't seem to be any consistent tried and tested advice.  I don't know whether the dark nail varnish is better than strengthener or whether either of them actually make any difference.  Also read that a couple of people suddenly lost their nails 6 MONTHs after last chemo out of the blue - urghhh.

 

Kim I've been using Carbomer eye gel (on prescription) which I find really good for my dry eyes.

 

I had a great start to the day, walked the dog, out for lunch and crossing various things off my to do list.  Then I got out of my car this afternoon and went round to the back seat to get my handbag out and somehow opened the car door and slammed it right into my face quite hard, it really hurt and I 've now got a black eye!  Marvellous......

 

hope we everyone else is doing wel.  Love to you all.  Fiona   XX

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Re: January 2016 Chemo starters

Claire, I'm 3 wks today - pushed myself to go on dog walk and was ok, walking upstairs is terrible - by the time I get 3/4 way up, I feel I'm nearly on 'all fours ' and muscles above knee hurt so much. My onc gave me my tabs on pre chemo review 3 wks ago and instructed to commence on 1st day of rads - 1st June - on Letrozole, 

 

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Re: January 2016 Chemo starters

Debbie, that's excellent news, so pleased you ok and hope you get a fairly restfull night ( as far as you can in hospital ) sending lots of hugs and best wishes , Mechele X X X 

Community Champion

Re: January 2016 Chemo starters

Great news! There's nothing better (in my opinion) than tea and toast after surgery!! Hope you're relatively pain free and have a peaceful night. Take care xxx
Community Champion

Re: January 2016 Chemo starters

My eyes are the same Kim and it's a pain. It ruins any make up I try to put on and makes the area around my eyes sore. I've got some artificial tears I had for my contact lenses so will try them.

like you Mechele I still feel shattered and my legs ache. I walked my dogs today and it was all I could do to get up a small slope! I was beginning to think it was something else, but it seems we all feel  this way. I am looking forward to passing the three week mark and seeing how I feel then. 

I still haven't heard from the onc about hormone tablets. I will phone the hospital if I don't hear soon. Have you heard anything Sissy? 

Debbie I hope all went well. I've been thinking of you too.

love to all

Claire xxx

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Re: January 2016 Chemo starters

Hi.
I'm back on ward, all well. Had tea and toast Kim!! So relieved it's over. Hopefully staying in for a couple of days, so lots of rest!
Thank you for your messages.
Debbie xx
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Re: January 2016 Chemo starters

Thanks Maureen - I'll give that a go too! Xx
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Re: January 2016 Chemo starters

Kim. I have had the same problem with my eyes apparently chemo affects the tear ducts. I think at some stage our eyes are dry and the body then floods with tears to rectify it. I use artificial tear drops during the day and Lubristil lubricating eye drops at bedtime. I have had no problems since using this. Maureen
Community Champion

Re: January 2016 Chemo starters

Same here! Hopefully you're out of theatre by now Debbie and having a well deserved tea and toast Smiley Happy
I finally got around to going to the chemist to get done eye drops for my streaming eyes. Was recommended Viscotears liquid gel for dry eyes. Really don't understand how my eyes can be dry when they constantly stream down my face! I guess they e made my eyes feel a little more comfortable but they're still watering. What are the rest of you with this problem using?
I've been doing quite a bit of walking each day which has helped stop me stiffening up. Not as fit as I used to be but I'm improving, legs don't feel so heavy now.
Xxx
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Re: January 2016 Chemo starters

Kept thinking of Debbie on and off throughout the day - do hope surgery went well and she ok . 

Cassy - hope you feeling a little better today and also you Fiona - hope you remain hospital free and s/e not too bad .

How is everyone else feeling - don't know if everyone feels they should be getting a bit more 'back to normal' , I know I feel I should but I just continue to feel so tired, heavy legs etc etc - almost beginning to wonder if something is wrong, but probably isn't. Got planning appt for rads on Monday and appt for 3 different bone density scans ( ? got to change date as on a rads day and as yet, don't know times ) . Commence hormone therapy tabs on first day rads 1/6/- that should be fun . Sending best wishes Mechele .

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Re: January 2016 Chemo starters

Good luck today Debbie, will be thinking of you, in a few hours it'll all be done xx
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Re: January 2016 Chemo starters

Oh Debbie. It certainly sucks. Why hAve we all had to face and deal with this horrible disease. It's cruel and unfair.
You will feel better after surgery. I was very comforted by the thought that once surgery was done the b****y cancer was no longer in me and could not invade my body any more.
A couple of weeks after surgery and you will feel so much better.
Hugs Claire xxxx
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Re: January 2016 Chemo starters

Aww Debbie, it really does suck Smiley Sad Sending you virtual hugs xxx
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Re: January 2016 Chemo starters

Yes lifting!! My fingers haven't turned black, the whites are just getting bigger. I've got 1 black toe nail though. I'm in bits, ive just said buy to the kids, it's so unfair why me. Cancer sucks.
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Re: January 2016 Chemo starters

Good luck today Debbie! Hope it all goes well, I'm sure it will. My fingernails are tender and faintly bluish but feel secure (at the moment!!!) are yours actually lifting ??
Xxx
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Re: January 2016 Chemo starters

Oh crikey - Discoloured or actually feeling loose 😨
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Re: January 2016 Chemo starters

Yikes my finger nails have started showing signs of falling off!!
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Re: January 2016 Chemo starters

Good luck Debbie, thinking of you today. Hope it all goes really well. 

Ellie. 

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Re: January 2016 Chemo starters

Good luck Debbie , thinking about you and look forward to hearing from you , best wishes and sending big hugs Mechele X
Community Champion

Re: January 2016 Chemo starters

Goid luck today Debbie. We're all here cheering you on through surgery. This time tomorrow it will be over! 

Take care

Claire xxx

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Re: January 2016 Chemo starters

Thank you all for your kind words. I'm up and just had breakfast, nothing now until after op. I've got to be at the hospital for 11. Feeling nervous but just want it over now. Not sure if I'll have wifi in hospital, so it might be Monday before I can do update!!!
Take care everyone. Cassy and Fiona hope you are feeling better soon. Debbie xxx
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Re: January 2016 Chemo starters

Goid luck today Debbie. We're all here cheering you on through surgery. This time tomorrow it will be over! 

Take care

claire xxx

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Re: January 2016 Chemo starters

Debbie, In your pocket tomorrow.  Sure you will be fine, it will be great to get it over and done, another milestone passed.

 

Hope everyone else is feeling a bit better day by day.  I'm struggling on day 6 now but managed to stay out of hospital so far and am taking it easy.  Having my sister with me is a great support.  Love to all. Fiona xx

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Re: January 2016 Chemo starters

I definately felt worse on the last one came down to earth with a huge bump after the first couple of days when I was so happy it was all over!! There are some people I'm honest with how I've been feeling - mainly those who like to tell me how bad their cold is!! But on the whole my standard reply is "I'm fine" too.  

I can't say that I'm suffering, but I generally feel "meh' the whole time.  Still got the metalic taste in my mouth and I'm slightly achey.  The most annoying thing really is my tender fingernails - I can't open cans and tins with ring pulls without using something to help lever them open and opening packets is difficult too. I can't even scratch an itch!  I'm generally feeling positive though - can't wait until I can get back to work! Phased return is planned for 22 June as I'm signed off until 21st.  That's about a week after radiotherapy finishes, so I have time to enjoy not having to go to the hospital each day, but I'm sure I'll be bored and frustrated at being at home still!!  I am concerned about the side effects of whichever hormone blocking tablet I'll be given - just hope that any of us due to have them don't suffer any!

Cassy, I hope you start to feel better soon xxx

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Re: January 2016 Chemo starters

Hi Cassy, I'm on day 17 after last T and I have also found this one tougher then any other cycles For the first time I have numb feet and heavy legs and I'm really tired. I also find walking tough as my legs ache and I'm out of breath. I did start to pick up,around day 10 but then overdid it and felt rough again I've been going to bed really early and sleeping so soundly that I haven't even heard my husband come up later! 

I have to say that I am so pleased there is no more. I don't think my body could take it! I know I have been quite lucky in that my side effects have not been too bad but my goodness this has been a challenge! 

T is definitely harder than FEC as it has so many side effects. I just hope to god I never ever have to do it again.

On a positive note i had my thin straggly hair trimmed today. She took off all the wispy bits and it looks better. The new hair us growing well so my thin patches are less obvious. It's nothing like my old hair but I'm glad I persevered with the cap.

Sissy I am thinking of having my eyebrows tinted too. I can feel them but they are so pale I can't see them. No sign of eyelashes yet but I've been told they take a bit longer. I am too impatient as its only just two weeks since the last chemo!

love to all

claire xx

 

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Re: January 2016 Chemo starters

Ahh bless you Cassy - couldn't resist a reply - even on my worst days , when friends have tel to ask how I am , it's always ' I'm fine ' - my husband gets cross and asks why I don't just say how I feel !!! However, I'm sure people who haven't been on this journey , do find the 'tale of woe ', difficult to respond to , and probably get fed up of hearing it. That's one good aspect ( of which there are many ) of this forum , as we can say how we are feeling , knowing others have or are , feeling the same. 

Feeling jealous this am 😊, son and family at Manchester airport awaiting 18 days in Orlando !!! . I'm tired today, had my ' munchkin' ( grand daughter Alexis aged 2 ) yesterday from 7 am until 5 pm 😨 Loved having her of course, but don't know where her energy comes from. Getting expert at building train tracks, ( my grandsons ) and delights in knocking 'mamars' train off the track ha ha . Do hope you start to feel better soon x

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Re: January 2016 Chemo starters

Cassy and Mechele - loads of sympathy winging its way to you through the airwaves! I'm day 23 now after last T and yesterday was significantly better. 

 

The thing that hit me this week was how on earth did I summon up the strength to get through chemo? It made me feel really emotional. A bit like after you Survive an accident and realise you are still alive! 

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Re: January 2016 Chemo starters

Aww thank you Mechele,

you have made me smile! I am just fed up of feeling rubbish...fed up of smiling and saying 'I am fine'...

I really don't know how you have managed your way through your chemo journey as I think you have had the worst of it. I know when you're in the thick of it, you have no choice but to muster on and find strength from somewhere...but you have had so many challenges, you have been an inspiration to the 'January starters'. I really do wish you well.

From, a now smiley, Cassy xxx

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Re: January 2016 Chemo starters

Cassy  - The Docetaxel / Taxotere is certainly the most evil drug ever  - just so many s/e it's unreal . You certainly aren't going cuckoo at all - I thought after having the last one that I should feel relieved ( I did) , on top of the world - certainly don't !!! I am now nearly 3 wks post last one - legs feel like lumps lead , finger nails look bruised in parts and feel I've trapped them in the door , soooo tired etc etc - and yes, I do think others think that we all should feel great - just really can't understand how we all feel unless one has been there !! So many psychological / emotional aspects to it for sure. Do hope you feel better soon, it really is hard at times isn't it. Sending best wishes , Mechele X X 

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Re: January 2016 Chemo starters

Hi everyone

Firstly, good luck Debbie, I hope it all goes as well as can be expected.

Secondly, I am on day 10 of the last Docetaxel, I seem to go through stages of what side effect is worse for a few days... All over body aches and pains, tingling and painful feet, toenail and fingernail pain, earache, awful mouth or my current top of the list tummy ache, bloated, struggling to eat and feeling sick Smiley Sad Sorry to moan, but I am back at my lowest again, private moments of tears - I feel like I have had enough. I know that hopefully in a few days it should all be over, well the worst of it anyway.

Is it me or do people think, you have had your last chemo, give it three days and you should be feeling on top of the world??? I am not including nearest and dearest in this, as they actually know what you're going through. Maybe it is all in my head and I am going a bit cuckoo...Smiley Frustrated

I am sure next time I post I will be positivity personified!!!

With love

Cassy x

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Re: January 2016 Chemo starters

My rads start next Weds - 25 May and finish 15 June. Got a rota of friends to take me as I haven't driven since early December and it's over an hour away.
my first 3 appointments are 10am so I'm hoping I can get the rest at a similar time so I have the afternoons to get out and about!
Xxx
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Re: January 2016 Chemo starters

Hi Debbie, do hope all goes well on Thursday and will be thinking of you. Good to hear how everyone else is getting on and that you've had your portacath removed Claire. It does generally seem that a lot are having the s/e last longer, I know mine seem to . Still feel so tired, legs feel like lumps of lead and a little breathless when walking upstairs, right eye keeps twitching , but the main thing that came on about 4-5 days ago is ? my body temp control ( or should say how it feels to me rather than actual temp !) Feel so cold most of the time and shivery - today indoor/ outdoor temp showing 19 degs, yet with bra, vest top, thinish jumper plus cardigan , I feel cold - body temp ok - how strange . Will see how it goes - sure I read somewhere that the thyroid ? can be affected but not sure. Sending best wishes to everyone - be interesting to see how all are with rads - can't remember who is and who isn't - or is it all of us. Love Mechele X
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Re: January 2016 Chemo starters

Yay! My portacath is out! No going back now chemo really is over. It was nice to be going to the hospital for a positive reason  instead of the gut wrenching feeling before each chemo,session. Rads planning appointment on Friday then two weeks with no hospital before rads start.

Debbie, I will be thinking of you on Thursday. If you can get through chemo you can get through surgery. I found front fastening tops and pyjamas very useful and carried my drains around in a small bag. I didn't need too many painkillers and my wounds healed up well. They are both very flat and neat.  I have  religiously moistursed them with aveeno cream. I was ok with lookIng at my scars. I have found the hair thinning and loss of eyelashes and eyebrows more difficult to deal with.

well done for getting back to work Sissy. I go back part time when rads start. I'm a bit nervous about it as I've been off so long. Good for you on starting wieight loss too. I still feel fat and puffy from chemo and have nose sense of taste and really watery eyes. Oh well at least  next week I won't have to go back and do it again!

Love to all

claire xx

 

 

 

 

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Re: January 2016 Chemo starters

Hi Debbie.  I have large boobs and had an aux clearance and breast reduction on my cancer boob so I am very lopsided.   In hospital I managed with v loose t shirts and vest tops.  I did buy front buttoning pjs but have never worn them because they are not comfortable.  I hate being in hospital and came home as soon as I could.  I carried my drain around in a cotton bag for life but I kept dropping it and getting it caught in door handles!  Luckily the seal is very strong.   My wound got a nasty infection which meant the healing took a lot longer and I had to go back to the hospital every other day to have the dressing changed.  It felt like it went in for ever and I really missed having lovely deep bubble baths.  I bought some sleep bras and soft bra tops on line and wore them all the time. They were really comfortable they supported my new boob and stopped my old one from hitting my knees.  Now I wear sports bras all the time or I have a couple on non wired Royce bras that are comfy and give good support.  I'm hoping to get the other one reduced when the treatments finished.   Good luck for Thursday.  

E