16-09-2016 01:44 PM
This is me. Like Claire I cold capped and didn't lose all of my hair. Had it properly coloured so grey roots covered now. It's a very funny texture now and there's lots of short sprouty bits between the longer hair. I had it cut short during treatment and its great not having to blow dry or straighten it ...saves a lot of time.
I am am feeling soooo much better now. My burn has healed and my boob no longer sore. Got to start concentrating on getting fit and tackling the lymphoedema. I have several sessions booked with a lymphoedema specialist nurse. Been on tamoxifen for about 5 weeks now. Not noticed any side effects except had a few spots recently but that could be down to anything. I saw the consultant a couple if weeks ago and she really put my mind at ease. I have a lump in my boob that I was worried about and she was sure it's tissue but let me have an ultrasound scan anyway. There is nothing there and I'm feeling really positive now (that could all change!).
Cassy well done on your weight loss, I find losing weight the hardest thing in the world but I've got to start that too. It's great seeing all your photos. Take care everyone and keep well.
15-09-2016 05:18 PM - edited 15-09-2016 05:19 PM
Hi everyone, it is lovely to put faces to names after so long. I've attached a photo taken of me about a month ago showing my much shorter than it was pre bc cold cap hair! I have got used to it now but I'm looking forward to growing it again although it's going to take a while. It was just too thin and straggly not to cut! I'm surprised I'm not grey!
I agree with what has been said before. I don't know how I would have got through chemo without you all. You were a lifeline for me!
It's so good to hear of everyone returning to normality, working and having holidays!
I've just bought a horse!!
15-09-2016 09:55 AM
Hi everyone .
Love the 'grey parade' comment - think Sissys looks good too. Tried my wigs on yesterday , deciding if to take on holiday on 27th for 'evening wear' , however they don't seem to sit properly - although as you see from the photograph , my hair is quite thick, despite not being very long yet.
Cassy - do hope you have a wonderful holiday, I'm sure, like me , you're sooooo ready for it. Sure you will have a fabulous time. Did you have much problem with travel insurance ? ie cost, which company. I have cover for this holiday, but policy due to be renewed November - mmm should be interesting.
Several of you are now back at work and hope it going well and good to being back to some sense of normality.
I agree totally with Cassy's last comments on her post - really has made such an journey more tolerable, so thankyou to all.
Best wishes to all
Mechele X X
14-09-2016 11:12 PM
I am loving the photos that are popping up on here. There is currently the grey parade (myself, Mechele and Kim) and the lovely Sissy, with a lovely soft shade and definately no grey. Everyone looks so well.
I am definately embracing the grey and the short hair. I love the fact that doing my hair takes all of 5 seconds. I am going to stay with the natural grey but try to grow my hair into a modern pixie cut then grow into a longer side fringe.
It is so good to have hair, eyebrows, eyelashes...feeling better with each week, more confident
We are off to Corfu on Monday, can't wait! I am definately ready for this holiday.
I hope everyone continues to keep in touch on this thread, you all helped me get through the chemo and help put my mind at rest at times, just finding out what was happening for everyone else stopped me feeling like I was going through it alone. I really can't thank you all enough.
You are all amazing! xxx
14-09-2016 09:33 PM
There's no moving on courses close to me at the moment but I'll keep a look out. Feeling better at the moment though
Here's a pic I took this morning before I out my wig on for work. I took several - all dreadful but it gives you an idea of how my hair is coming along. Seeing my hairdresser next week to come up with a plan - it will involve hair dye or the wig stays!!!! Sorry the photo is so big - hope it's not too much of a shock!!
09-09-2016 11:09 AM
Hi everyone , everyone seems to be moving on in one way or another.
Sissy - your hair suits you and looks quite thick - did you have a short style previously. Mine seems to be thickening up , but doesn't seem to grow very quick - probably me just being inpatient!! Just over 2 weeks to our holiday , just really cannot come quick enough. Had yet another chest infection - never had them prior to this, GP thinks re rads and if still coughing/ slight breathlessness on return from hols, will send me for chest X-ray. Mammogram on Nov 7th and hopefully nothing found !! I'm back to having grandaughter one day a week, then up to 2 on return from holiday. She's such a sweetie and puts her hands on my cheeks, looking into my eyes saying ' I love you Mamar ' - I just melt !!! Best wishes to everyone , Mechele
09-09-2016 08:58 AM
Looking lovely ladies! The first anniversary is a strange one, having to go back to the place it all began wasn't nice but it's something we have to do and it felt so good to get that one under my belt!! Cassie we fly to Corfu the week after you for 11 nights, can't wait! 😎☉
Sissy I've been fine on Tamoxifen, 17 months now and no major side effects, lovely to see everyone begining to move on, it's been quite a year! Xx
09-09-2016 07:12 AM
har looks good Sissy! I'm really appreciating my eyelashes too. Even though I kept my hair I had to have it cut short so I'm having to get used to having short hair. when I look in the mirror it's still a bit of a shock! I struggle with my flat chest too. It's ok when I'm dressed but my boobs and my hair were the two parts of my body l liked best!
Doht worry too much about the tamoxifen Sissy. I was dreading starting it and put it off as long as possible, but luckily I've had hardly any side effects. I take it at night which I was advised is the best time.
im sorry younarecfeelng a bit down Kim. It's going to be hard over the next few weeks with anniversaries and breast cancer awareness month coming up. I've got my first routine check up with the surgeon on Monday and when I phoned up to check what time I felt sick just thinking about going back! Too many horrible memories. I think it's quite common for people to suffer from ptsd after cancer treatment and I can understand why! As Sissy said, have you booked onto a moving forward course? I'm doing one with Sissy and Ellie in October and I'm really looking forward to it.
I started beck to my normal work hours this week which I'm really enjoying. We are taking my younger son off to university for the first time this weekend so it's going to be an emotional one! I'm very proud of him for doing so well at a level through such a horrible year!
love to all. We're all still here to support each other,
08-09-2016 11:33 PM
Sorry about the big picture size!
Hello all, as you can see my hair has thickened out, the curling around the ears is very annoying though, I have my first hair trim booked for two weeks time! I'm now four weeks post my second mx, am back at work for 5hrs a shift, will up it to 6hrs soon. Have started a new role at work, which means no more nights and I now have evenings off. I've been working shifts for the last 10yrs, so I'm enjoying the change and hoping to take up an evening hobby! Mentally I'm not too bad, however it's always at the back of my mind.
Cassie, you're looking fab, enjoy your holiday, it's well deserved. Kim, have you been able to book on to a moving on course? It could help?
how is everyone else getting on with things?
Im meant to start tamoxifen today, feeling a bit apprehensive about it and worried about SE's, think I will wait until Monday and start them on a new week. How do you all get on with it?
Love be to all xx
08-09-2016 10:55 PM
03-09-2016 11:58 PM
I too have been thinking about anniversaries, it was a year ago today I had my recall appointment, which resulted in having a bioposy and it's almost a year since I was diagnosed.
I have my mammogram on Wednesday and then a follow up with my oncologist on the 12th Sept. I will be glad once I am past that, trying not to worry about it...I am really busy at work and we fly to Corfu on Mon 19th Sept for a fortnight, so those two things have helped me not to fixate on 'what if'.
I am quite a large lady, I have been trying to lose weight, I have managed just over a stone and a half so far, but really need to lose quite a few more stones to get to a healthier weight. I am determined to be healthier and give myself the best chance.
My hair has begun to thicken now and has grown a bit, I am used to it now and I am even considering sticking with the steely grey! I will be happier once I can get it to look a little more feminine.
I hope that you all keep posting every so often, it is good to keep up to date with everyone's recovery, worries and achievements.
With love from Cassy x
03-09-2016 09:00 AM
Hi all it's good to hear from everyone. Claire I'm so pleased you've found your horse, hope it is just what you want, Kim and Mechele I'm definitely putting Santorini on my list of places to visit, it sounds like heaven. Sissy it's great that you'll renew your vows in Vegas, v Rock'n'Roll! Ellie, thank goodness you've found a way out of the work situation, although sorry it will be an upheaval. Hope you find something else with nice people soon. I think it's good to be decisive and move on. Elizabeth I'm so sorry you've suffered with skin problems, I hope it all settles down quickly and. Debbie and Cassie hope all going well and recovery continues to be smooth. I agree with everyone that having rubbishy hair is quite liberating, just wash and go has its advantages and saves so much time! I'm going back to work on Monday, have been swimming 30 lengths every other day, and have lost 3lbs so feeling positive! X
02-09-2016 03:41 PM - edited 02-09-2016 03:42 PM
Sorry you are struggling Elizabeth. I hope you heal up soon.
You are right about anniversaries coming up. It's exactly a year today that I went to the GP ( at this exact time!) with my breast dimple and the nightmare began. I knew as soon as I saw the doctors face that I wasn't going to get good news. Two weeks later I was at the hospital and was diagnosed on 30th Sept.
I look back and think how the hell did I get though it all. I never ever want to have to do it again!
I'm just about to go and ride the horse I am buying so I'm doing the thing I really love and thinking very positively about the future.
I guess the next month or so will be difficult but THANK GOD we are out the other side,
Love to all
P.S Lookng forward to seeing Ellie and Sissy at the moving forward course. I hope your job hunting goes well Ellie. X
02-09-2016 03:26 PM
i hope you are all ok. Mechele that's a lovely photo. Well done Ellie on handing in your notice...life's too short to take too much crap. Are you going to be job hunting now? Good luck if you are. Sissy I hope you do manage to renew your wedding vows n Vegas...you must post a pic. We are probably all approaching our first anniversary. I had a mammogram late last September and was recalled mid October...and so it began😩 I finished my rads 3 weeks ago and I am still in a lot of pain. My skin keeps breaking down and I am in my 3rd lot of antibiotics. My boob is swollen and v sore it feels like it could explode. Got appt with consultant later so maybe she will fix me. It has been getting me down because I had wanted to begin to exercise and gain some fitness back. But I've been lying around with my tits out as much as possible letting the air get to it. I thought I would be through this bit by now.
Have a good weekend everyone.
31-08-2016 06:12 PM
No - iPad . Didn't realise I could but above where I'm writing , there's the usual icons showing font sizes, bold text etc etc - saw the picture icon and thought I'd give it a try - voila 😊