I had an e mail too and I'm booked on.
Just been out for lunch with a group of work friends one of whom has just had a baby. Lovely to talk about normal things and not the dreaded bc! Life is beginning to be normal!
Yes I have Ellie. I have also eased up on the anti bacterial hand gel and general germ paranoia! I have nearly got my taste buds back so I am enjoying food again rather than eAting for the sake of it!
i have been craving a rare steak and intend to have one very soon. I'm giving my tastebuds a bit longer first! I have had shellfish, soft cheeses and soft yolk eggs already though!
i am eating as healthily as I can with lots of veg and fruit but annoying,y I already ate like this before diagnosis. I do intend to be as healthy as I possibly can and I'm going to ask the onc about diet, alcohol consumption and supplements as I want to do everything I can to stop it coming back!
love to all
Canterbury ladies that would be really fab to meet up. Yesterday when I did the look good course although it was fantastic all we wanted to do was talk to each other and see whose hair was starting to grow etc! It will be funny when we've shared some of our darkest moments, the state of our bowels and periods, to actually see each other! I'm definitely up for it. Ellie. Ps should we swap numbers / set up an email group so we are not boring everyone with local arrangements?
Hi Claire - that sounds a great idea , if you are able to meet up - think I'm the only one in South Yorkshire. On the Look good feel better on Tuesday after rads - gather the free makeup or whatever you get is quite good and handy tips X
I want to do that cours too. Maybe we could all do it together. I think there is one in Canterbury. Do you know Sissy.
thanks for the info re dr M. I think I wil. Phone to see if an appointment is in the impel be fir me. I would rather not start tablets till after my holiday.mi had a period at the beginning of chemo then one around cycle 3 and nothing since. Maybe I have started menopause. No hot flushes though!
i am trying not to focus on the negative and I try to never look,at the bad news stories. I feel better and have been told from the beginning my prognosis is good so I'm trying to hold on to that. The fear does bubble up from time to time and makes me very cautious about the future but I'm determined not to let it rule me or my life!
this thread feels a positive place to be at the moment. Thanks ladies!
love to all
Glad to hear you are healing well Debbie. The exercises do help. I had two nodes removed initially one of which had a 12mm tumour in so I had to go back and have a full clearance. I had another ten removed all f which were clear so it was on,y the one that was affected. Like Mechele I had no idea that we all have different numbers of nodes. I will have everything crossed for you on Thursday.
Glad rads going well for everyone. I want to get mine started now so I can tick it off the list! The look good feel better is fab Ellie. I love my bag of goodies and use the make up everyday.
i hope all well for everyone
Hi Mechele, red boob is still glowing nicely thank you! I have just done the look good feel good session and one of the women there had the same thing - when I walked in she was just showing everyone! Loved the make up by the way!
Hi Debbie, yes I had a second op for full node clearance. You can imagine how my heart sank when I was told, but like everything else you just get on with it - what else can you do?! The a opting thing is that there wasn't any more cancer in the second lot they took out, but I least I have e assurance of knowing that I suppose.
My my fingers won't work - that should have said the ANNOYING thing and THE assurance!
Hello there Debbie , pleased you're gradually improving and will be thinking of you on Thursday and you get the news you're hoping for. I had full node clearance - I actually found quite a large lump deep in my armpit and never felt one in the breast. On pathology it was found I had 3/18 positive cancer nodes ( never realised prior to this that no of nodes varies from one person to another !) A friend of mine had 26, yet someone else had only 12 . Not really had a problem and did the exercises 3 times a day, stopped briefly for a few days after the planning appt but found my arm was stiffening a bit , so now doing them again. Thinking of you Mechele
four weeks since last chemo and I feel like myse.f again for the first time since chemo started. Still get tired and achy but I have a lot more motivation to get on and do things. It all seems less of an uphill struggle just to do housework, food shopping etc....
im back to work next week same day as rads start. Looking forward to it but a bit nervous! It's been a long time.
I still haven't heard from the onc re hormone tablets so I don't know when I will start. Have you seen her yet Sissy? Therefore no hot flushes or night sweats yet which is a bonus. I'm a.so still waiting for my genetic test resu,to. It's been ten weeks now so I should hear soon. I've a.ready had both boobs off so I could just face ovary removal.
rubbish day here today so im going with my husband to see kitchen designers to plan the kitchen in the new house we are building.
Oh and I went to look at a horse last week. Lovely but unfortunately sold yesterday. Looking at another in Dover this week. It's time to get on and start living again! I want to ma,e the most of everyday from now on!
im doing the race for life on 12th June. It will be more of a slow walk as I can't get very far at the moment!
Hi Fiona - interesting re the power surges - I've had them for years , usually at night ( night sweats) and often wondered how many years it would go on for , being menopausal for about 25+ yrs !!! . However, suddenly stopped the min I started chemo !! but recently come back again. During the day tho have been soooo cold, despite having numerous layers on - wondered if needed thyroxine levels checked. Had planning appt last Wed, given huge tub Diprobase to use and was told by oncologist that I need not continue with exercises ! However, felt arm / armpit getting a bit tight and down arm ( really don't want a problem with cording etc ), so started doing them again . NOT looking forward to starting the Letrozole ( accord ) after reading all the info on other site on Letrozole/ Femara !!! - have such leg/ knees muscle / bone aches - legs still feel heavy and really hope this doesn't increase - will wait and see. First rads tomorrow 😨. Hope you doing ok and not too anxious on forthcoming surgery. Sissy - is it your 6 th rads today, hope it going ok.Ellie - has your red boob improved, did you find out what is was etc. Hope everyone else is doing ok - we've all come such a long way and hopefully all feeling quite positive. Love and best wishes to all . Mechele
Sissy I've been having the hot "power surges" (as I like to call them). Mostly in the evening and they also wake me up during the night.
Ellie I hope you were OK back at work. Nice to have the long weekend to recover after going back!
Elizabeth hope you are still doing well and not too tired. Only a few more weeks to go.
Kim I hope the lymph oedema is improving, and Debbie hope you are starting to feel as though you are recovering from the surgery.
cassy, Mechele, Claire, hope you are having a good weekend and enjoying nice weather. I'm going to my allotment for a bit of gardening: I must be feeling better! Fiona x
I have found I have needed e shoulder exercises lots at the moment. It seems to help if I do the, just before rads and then again afterwards. I would say I a. Doing them several times a day, not just twice. My mum got a frozen shoulder when she was having her rads and that looked so painful I don't want it!
I a, 4 and a half weeks after me last chemo and I just want to shout I AM FEELING REALLY WELL!
Sorry about the typos but ,y fingers are still not working very well. Hope you can still read it.
i hope rads going ok for those who have started and the daily trips to the hospital are not too tedious. Nothing could be as bad as chemo!
Debbie I hope you are recovering well from your op.
more hair and eyelashes info in case anyone is interested!
when I was having my portacath taken out I was talking to the nurse in recovery and her sister has just been through bc. She was devastated about lying eyelashes so researched a lot of products to help them grow back. She discovered something called nanolash which is a serum and both she and the nurse who also tried it swear it's very effective. I have got some and have started using it so I await to see what happens. It's not cheap bug I reckon I have spent so litt,e since I've been on chemo it's worth a try!
I have also been researching hair dye and e mailed Daniel Field who make the organic colours about when I could use colour on my post chemo cold cap damaged hair. I got a very quick reply and they said it's safe to use! I really want to cover up the grey but I'm not sure if I dare yet! My hair is growing fast and I k ow I'm lucky to have hair (the cold cap torture was worth it!) but it's not like my old hair! I am determined to be blonde by my 50th in October!
sorry if I sound obsessed by my appearance but chemo and surgery have really knowcked my confidence!
have a fab bank holiday weekend everyone,
I think I have a few eyebrow hairs appearing as they are in the wrong places... It felt very odd to pluck them out!
Hair is is definitely growing but I still look more or less bald. I can't top touching it!
Ellie, hopefully it's not cellulitis - fingers crossed!
Saw the oncologist after rads today and got my tablets to take for the next 10 years (only a months supply - not a whole 10 years supply ) I'm on Anastrozole so I've made an appointment with my GP as I need to take other medication to help prevent further bone loss. Take the first one this evening and if I have any side effects from taking these tablets, please, please don't let hairloss be one of them!! How vain is that?!
Eyebrows are growing back, but no sign of eyelashes yet. My opinion of the speed of hair growth changes daily from being pleased and then disappointed!
Right, I need to get the wig back on and drag myself out for a walk, otherwise I know I'll be asleep on the sofa.
I hope all is ok Ellie. Fingers crossed its not cellulitis.
i must be one of the last to start rads. I just can't wait to get it over and done with now! It is nice having a couple of hospital free weeks especially as I am finally feeling much more myself after the last chemo. I think we have all struggled with the last one. I've passed the three week mark now and it was only yesterday that I felt more energetic and actually managed a walk without my legs aching.
Victoria Derbyshire has put a new video diary on rhe BBC website. It's about 11 mins long and is about radiotherapy and finishing active treatment. She really sums up,how we all feel. Also very encouragingly 12 weeks after chemo finished she has eyelashes and brows again! I can't wait for mine to grow! We are getting there girls!
Love to all
At rads 3 yesterday I asked whether looking like a beacon was normal so they had a look and said no! I might be developing cellulitis which would mean I need antibiotics, but as the breast was not tender they are not sure. They said some people react to rads by blood vessels coming to the surface and it might just be that, but it's not common.
But i I have to say I am really liking not having chemo!
Evening all, well today feels like the first day I've felt relatively OK since my last T. It's day 13 today so it's taken ages. I'm feeling confident that chemo side effects are more or less done now, been feeling really really tired and lethargic but today is the first time feeling alright and not completely wiped out by 8pm.
The next milestone for me will be surgery on 9th June, and then a week later finding out what was left of the Cancer. I don't know how long after that the radiation will start, I think they said about 4 weeks after, so really useful to find out how it's going for everyone. The impression I got from the surgeons was that the main inconvenience was going to the hospital every day, and that side effects were next to non-existent, so we'll see how it really is from the patient's point of view!
hope everyone is feeling well tonight, Debbie I hope your scar is not too sore and that you can relax at home. Elizabeth, thinking of you as we count you down until we're all done with chemo. What a great thing to have got through it, and thanks so much to everyone for sharing so much and helping us all to get through, it's certainly made a huge difference to me for one. Knowing everyone else's story just makes us feel that we're not in our own in this horrible experience,.. Lots of love, Fiona xx
No I haven't felt anything during the rads at all. During the first one I felt a bit uncomfortable and was worried about lymphodema but that hasn't developed into anything yet. Although my breat looks red t doesn't hurt. But I've only had 2/20 sessions!
When I undressed ready for the second rads today I was interested (read shocked!) to find my breast glowing like a red beacon! I've upped the moisturiser! Hope that's normal.
Hurrah that's great news Debbie, it sounds as though it has all gone as well as you could have hoped. Must be nice to get those drains out and to be home at last.
I really hope we all start to feel a LOT better soon. After finishing chemo I think we were maybe a bit optimistic about how we were going to bounce back immediately. Only to find ourselves exhausted by the slightest thing.
Claire I know what you mean about making plans: I can't even seem to plan a holiday, but I don't think getting a horse is tempting fate at all. It just means that you'll be able to do something that makes you really happy, which has got to be a good thing. It's good for so many reasons: relaxation, fresh air, having another creature to look after, getting great exercise, it'd be all pros and no cons as far as I can see (except maybe mucking out and vets bills...)
I've had good news today. My MRI, X Ray and ultrasound scans showed no visible trace of the tumour now - the chemo seems to have worked. I'm so pleased because it was quite big to start with, nearly 5cm. Can't wait to get the surgery done to find out whether there are any Cancer cells left at all, hopefully not.
Hope the rads are uneventful - it sounds as though it's mostly a bit of a bore, nothing like horrible chemo. Let's hope! Lots of love Fiona x
Yes thank you Sissy, all okay with my first rads! Slightly uncomfortable keeping arms up for so long, but I think the actual rads were about 2x 12 seconds and 1 X 2 secs! They said I was unlikely to get any side effects in the first week. Bit tired after work today though! Brilliant to be back. Ellie.
I start rads 6th June. I'm also going back to work that week but only two days a week to start with. I've got 15 sessions all afternoons, which means I can fit it in round work
i need to go back to work as I desperately need routine and structure to my days. It's been so long. I'm a bit nervous about dipping my toes back in to the real world! I also hope that by then I feel better. I'm still very tired and lacking in energy after the last chemo. It's three weeks tomorrow since the last one and I thought I would be better than this by now.
Im also finding it hard to plan for the future. I have lots of things I want to do, but I'm scared to think too far ahead in case it all comes crashing down again! I'm not sure how to deal with the fear of it coming back or spreading. I am desperate to buy a horse as I have always had horses and having lost my old boy, was about to get one when I was diagnosed. I've seen a perfect horse for sale but the "fear" is holding me back. Part of me says just do it, but another part says that if I go ahead I might be tempting fate and everything will go wrong again. How are the rest of you coping with the aftermath of it all. I know it's early days so maybe I need to give it more time.
Glad you are going home Debbie. That's another hurdle crossed.
My nails are ok so far. Not painful in fact I stopped biting them through chemo so they are the best they have very been. Not expecting it to last though as I have read they can come off quite a long time after chemo has finished.
Take care everyone