29-12-2015 11:06 PM
29-12-2015 07:42 PM
29-12-2015 06:12 PM
28-12-2015 10:49 PM
28-12-2015 02:17 PM
24-12-2015 08:24 AM
i am am from Decided 2015 group and had my second dose of FEC on Tuesday. It is not as bad as I expected, everyone seems to react a bit differently but I haven't been sick once and have managed to get through well so far. I feel a bit tired and lose my appetite and sense of taste. I didn't cold cap so have lost my hair but my wig is really good and have only worn it since Saturday and is just part of me now.
just ask if you have any questions there are lots of us who are midway and can offer support.
I had a small ductal tumour and a 3mm bit in my sentinel node, if it had been 2mm I would have escaped chemo, but feel reassured that it gives me the very best chance to be cancer free. Gillian x
24-12-2015 08:09 AM
I too am starting chemo - 1st EC on Jan 5th. Trying not to think about it over Xmas, & that includes putting off decisions about the hair. I've opted to try the cold cap, but even if it does work, I can't see how 6 months or so without being able to touch up grey roots is going to be a good look!
Katy - so good to hear your story & to know there is light at the end of this tunnel, your words of encouragement are so appreciated!
I'm finding all the earlier threads so helpful. Although I'm far from prepared, at least I've an idea of what to expect - just hope I don't get all the side effects at once..
Hope everyone manages to get to enjoy Xmas..
23-12-2015 02:41 PM
Hi Kim, my husband grew up near Shorwell and has lots of family still on the Island so we go back regularly. We live in Kent now though. I have just been to see my BCN for a prosthesis fitting and she reassured me that putting off seeing the onc till Jan was ok and won't make any difference. I just need a bit of breathing space before chemo starts. She also talked to me about the cold cap. It may work and she had just seen a patient who had kept most of her hair. I have got pretty thick hair and don't suffer from headaches so it's worth a try. Nothing to lose! well except my hair!!
I am a teacher and I am very worried about how I will cope with being off work so long. I love my job. As you say being at work was the best medicine for me pre op. I teach year 6 but I am also deputy head so I may be able to go into work on the good week to do some admin jobs. I definitely won't be allowed too much contact with the children.
we must keep telling ourselves this is only a small part of our lives and we will be doing it to ensure our future! Hard though!
have a great Christmas.
23-12-2015 10:42 AM
23-12-2015 10:00 AM
Thanks Katy. I am petrified about chemo but I have decided to put it out of my mind until January.I was offered an appointment to see the onc next Tues but we have a big family gathering planned on the Isle of Wight and I can t let them down. I am sure another week won't make too much difference as some people have to wait far longer than me. All my nodes were clear bar one and they don't seem too bothered about scanning me to check for spread. I have had nothing but stress and worry about BC since I first went to the GP at the beginning of September so I reckon I need a break from it before I face the next very big hurdle. Enjoy your first Christmas post treatment! Claire xxxx
22-12-2015 10:35 PM
Just wanted to say hello to all you January starters. I was a January starter in 2015 having been diagnosed in Dec 2014 I want straight in to chemo. I urge you to use this forum as much as you can to support each other - there was nothing more powerful for me than being able to write all my innermost thoughts and fears in such a safe place with people who completely got it.
I finished active treatment in October and am now just taking Tamoxifen, I am celebrating a very different Christmas this year and know that you will all get there however long the road appears now. Sending you love and hugs, I'll drop in every so often if I can offer support. Katy x
22-12-2015 02:31 PM
I will be a January starter too. Waiting to see onc prob 4th jan then starting as soon as poss after that. I had two ops long story but ended up with bilateral mx and lymph clearance on right side. Second op was 3rd Dec. I Had op results yesterday. Only the sentinel node affected on right. Other side clear but got to have chemo. I am absolutely dreading it but I know I have to do it to ensure my future. Hair loss is my biggest hang up but I will try the cold cap. Not looking forward to not being able to work for so long either. There are a few of us on the just diagnosed thread who will also be staring in Jan so I am sure we will all find our way over here. Let's hope the mutual support will help us get through it.
I am going to try to forget it over Christmas than face it again after that!
Hugs Claire xxx
22-12-2015 01:42 PM