Oh Fiona - so sorry to hear that , certainly a bit of a rough time. Do hope you start to recover and feel a bit better. Sending love and hugs X X Mechele
I am still in hospital as last night I suddenly developed a haematoma in the non-tumour breast and had to go back to theatre to be reopened up to stop the bleeding which was pouring out of the drain. I also had to have a blood transfusion at 2am as I had lost so much. I'm still feeling a bit wobbly and really tired after the 2 anaesthetics in 12 hours but am definitely on the mend now and think I will probably be able to go home on Sunday. I am happy to have passed another milestone, and despite the bruising, I can already see that the results look good! Fiona x
I'm glad all went well Fina. I hope you managed to get a reasonable nights sleep.
i had a bit of a cathartic day yesterday. I was driving to rads and I had the radio on and I was singing along to the music when I suddenly realised I was feeling HAPPY and I was not constantly thinking and worrying about BC!
All through this vile experience I haven't felt like listening to or dancing and singing along to music, but now I feel as if I can again. Ths week I have been at work, had good news from the oncologist and been signed off by the physiotherapist as they don't think I have lymphodema after all. Our house build is going well, and I feel as though the future is achievable and I will be there! Im going to look at a horse this afternoon too!
i haven't felt like this for a long time ( well since last September when I first went to the GP) and it's good!
on the other hand I still can't face taking my first tamoxifen. I hate taking medication and I'm scared of the side effects. I know I've got to and I will (eventually). I know I will have down days when the fear rises to the surface again, but I'm enjoying the way I'm feeling right now!
four rads down , eleven to go!
i hope everyone is ok
Hi all it went really well, what a relief. I was last on the list, so they let me go home last night and come back in at 8am, then I had a wire put into my breast and attached to the titanium clip which had been put into the tumour in January. Then I waited until 1pm to go to theatre. My husband insisted on staying with me all morning, poor thing. I got back to the ward for 6pm, with drains in, and new breasts, they look good! Now going to try to get some sleep. My room is right above the entrance to A&E so I'm guessing it could get a bit noisy later on tonight... Fiona. x
Hi everyone , everyone seem to be getting on with their treatment ok and we will all be looking forward to reaching the finishing line 😊.
Cassy - we are at the same stage - you will be on No 7 today like me, and I too have a fair trip to the hospital - the M18 /M1 is always so busy , with the usual roadworks than have been in operation for about 18 months and nothing much seems to change. I am beginning to colour up a bit, but am applying the Diprobase 3 times a day as instructed. Just hoping my energy levels start to improve , which are better than they were, but nowhere near as pre treatment . Finger nails getting darker, and neuropathy to feet improving. No real s/e from Letrozole as yet and hopefully it will remain that way.
Sending best wishes to everyone , Mechele X
Fiona , will be thinking of you this morning, hope all goes well and early on the list ! The waiting is always the worst. Look forward to hearing how you are. Hugs and best wishes, Mechele .x
Just wanted to say that I do still read the posts every few days to see how everyone is getting on. Today will be my 6th out of 20 radiotherapy sessions, other than having my husband drive me the 1½ hour each way journey to Maidstone every day it is going well. I have noticed my arm is a little swollen, but feeling stronger and chirpier every day! I have returned to work part-time and feel like life is returning to some sort of normality.
Sissy and Ellie I have had neuropathy in my feet, numbness and a constant prickly feeling as well as very heavy legs, I havent spoke to anyone about it as I don't see my oncologist until 11th July. My fingernails aren't really bothering me now, although my toenails (especially big toes) are painful still. Ellie, I also start Tamoxifen the day after radiotherapy finishes.
Fiona, good luck for tomorrow.
From Cassy xxx
Hi MrMunch, it's always good to hear positive comments from someone who's been through it all. Cannot imagine having that much hair, but maybe I'll be commenting on Jan 2017 starters thread this time next year with similar news!!
I'm nearly 2 weeks into my hormone therapy tablets and no side effects to report still - taking that first tablet is always a big step! I have my first bisphosophonate tablet to take on Sunday morning (to protect my bones) It's one tablet a week and I have to take it first thing, 30 mins before eating or drinking anything other than water, and have to sit upright for 15 mins (or might have been 30 mins) to ensure it goes quickly to my stomach!! Got them on Friday, but decided against taking the first one on Sunday as we had a family meal and I didn't want to suffer any side effects while I was out!! I guess once I've got over taking the first one, it will just become normality along with everything else that's thrown at us!
Good luck for surgery on Thursday Fiona, and hope everything goes smoothly when you go in tomorrow.
Thanks for that Mr Munch. It's good to hear from people well out the other side of treatment. Thanks for your comments re tamoxifen too. I picked up my first lot today and will take my first one later. Dreading side effects especially weight gain, so it's good to hear it doesn't happen to everybody. Five inches of hair is fab! I miss my long hair so much!
Lovely to meet you for real today Sissy. Nearly there with the rads. I'm two down now! It's all so quick compared to chemo and the staff are lovely!
good luck with surgery Fiona. We will all be thinking of you.
love to all
I hope you don't mind me popping on your thread. I started FEC-T in January last year. I had my last infusion on 2nd June 2015. Last Radiotherapy 22nd July. Groeshong line removed in July also. I guess some of you will be very near the end of treatment now.
It is a distant memory and I now have 5 inches (yes, I said 5 inches) of thick curly hair. Went back to work, decided I needed a change, started a new job in February. Absolutely no side effects from Tamoxifen. Zero weight gain (this was something I was worried about).
Remember to do some fun things when you can, eat what you enjoy and I hope you to can be like I am, getting on with your lives.
All the best with comforting hugs.
Hi all, I've been feeling great, forgetting all about Cancer, was in London yesterday working hard and just getting on with things. Trying to keep my mind off surgery. I have to go into hospital Wednesday lunch time, and will have the surgery Thursday morning. Trying not to think about it at all is my approach! Plenty of time to do that afterwards. Glad to hear that's rads seem to be pretty uneventful for everyone. My nails still seem OK, and I haven't had neuropathy at all, don't know if I was just lucky or whether icing my hands and feet with freezer blocks during docetaxl helped. Luckily I don't mind the cold.
Debbie, has is the recovery going? How are you feeling now?
Sorry to to hear about all the lymphedema issues, sounds really annoying with the non fitting sleeves and puffy fingers. Hopefully it will be sorted out so that you have the right equipment!
I start my tablets the day after the radiotherapy finishes.
Yes i I still have pains in my nails, but the clumsiness is fading now, and the heavy legs are improving at last. I am still struggling to touch cold things.
Feeling very disappointed as up to now not had any problems with communication!
When had last apt post chemo was told I'd have bloods month after chemo to decide where I am?! Had period during second cycle nothing since. No menopause symptoms before chemo! Told new drug is from new research and better one but the info conflicts!! How have they decided I'm post? I've not got apt till 22nd.... I'll ring onc nurse again tomorrow!! Haven't brought meds with me so can't start anyway till Friday if I do get answers tomorrow??!?
Yay! Well done Claire. I've had number 13/19 today.
Very confused about meds!!!! Rang again today but nobody got back to me!! Hadn't heard anything so I rang the unit month after chemo. Was sent prescription in post for EXEMESTANE ...... One a day, but says in info that these are usually given after being on tamoxifen 2/4 years and for post menopausal women. But I've not had any bloods to decide where I am menopausal wise!!?! Was told I'd have this month after chemo! Nope, just sent prescription.... Also given ZOLADEX ......info says, for pre menopausal women!? And I'm told one injection every 3 months though info says one a month!..... CONFUSED!!
Worrying ive gone two months past chemo now and not started any medication!! I didn't want to start taking without getting answers!? Am I pre or post?!?! Xxx
So first rads done and dusted. All very straightforward and quick and not too scary! I'll be counting the sessions down then no more hospital appointments till 1st August.
i saw the onc today and got my prescription for tamoxifen. She said I need to start taking it straight away and will have to take it or something else post menopause for at least ten years. Not looking forward to it but if it stops it coming back I'll have to. I chickened out of getting it today so I'll get it and start tomorrow .
Good news though, My ct scan pre rads has come back all clear which is a big relief. Also I've had my genetic results and I don't have the bc gene which is good for family members. There may be an undiscovered gene so they keep my bloods on file and will cross check if any more are discovered. It also means my ovaries can stay for the time being! The onc said to me to remember that I had cancer and now I don't!!! Yippee and every thing crossed it stays that way!
And I went back to work today. It was as if I had never been away!!
love to all you wonderful ladies
I hope so Claire! Tomorrow mine has been changed to 5.15 but should be back to 4.15 from Tuesday onwards. I love the way they change the times but don't tell you!
Hi Kim. The lymph nurse said the sleeve didn't fit properly so she has ordered another make to try. I think that if it's too tight the worry is that it does more damage than good. My had is the puffiiest and I also have a glove and a strap to wear (not with the sleeve tho). This is quite comfy and I have slept in the glove. Bandage sounds like a good idea.
re radiotherapy the consultant said that patients can become tired half way through because they are zapping your cells in the targeted area and the n your body is working hard to replace them. It makes sense to me. Perhaps we have to learn that recovery will take time and not put too much on ourselves.
Good Luck tomorrow Claire, so far I've found radiotherapy fine. I'm tired but I'm not sure if it's the radiotherapy, the travelling or that I'm doing more during the day and napping less! Maybe a combination of both. It's quite a social occassion in the little waiting room where we wait in our dressing gowns after we've been called from the main one. There's the men with prostate cancer drinking water - they have to have 37 sessions!! But then they havent had to have the chemo. There's about 4 ladies I see regularly with breast cancer, one had her last one Friday, then a lady with a brain tumour and a young man, late 20's who has to wear a mask for his radiotherapy, but not sure which cancer he has. We all have a good chat and everyone is in good humour - it certainly helps with the waiting!!
Getting impatient (again!) with how slow my hair is growing!! What I have is growing at a decent rate, but I still have a couple of bald patches which I'm getting concerned about. Think it's going to be a long time until I can discard the wig :/
Hope you have all had a good weekend
Thanks for parking advice. My rads are all at 4.30 so hopefully I will find somewhere on the road. Gong to leave myself extra time tomorrow.
Ts my first day back at work tomorrow. I'm nervous and excited to be gong back to normal routines, but I feel fat and don't even know if my work clothes still fit! I have also coloured my hair today with the organic dye. I couldn't stand the grey. My straggly bits look awful and I'm stressing more about my hair at work tomorrow than anything else! I know I'm lucky to have some and actually my new hair is growing really fast now. I hope the dye doesn't make it all fall out!
Oh well. The weather here is actually nice for once and I feel better!
Ellie, I think you rads are just before mine so I may see you this week.
love to all
Claire, parking is a problem for me! I have finally found that you can park in the car park on the left of the drive to the main entrance for £2 if there is a space. I am still really struggling with walking so they have said that if I arrive after 4 I can park right outside the main entrance in the drop off as the parking department have gone home! Otherwise I have to go to the main car park, get myself to the fracture clinic entrance and ask for a porter!
Great Ellie. See you there.
I hope everyone is ok. Mechele I managed to slice my finger open with a new kitchen knife yesterday. Typical it was my right side where I had full clearance. Hopefully it won't be the start of lymphodema.
I am definitely feeling better. I've done a lot this week and don't feel exhausted. The real difference I noticed yesterday was when I was a able to strip and change the bedding without having to sit down exhausted afterwards. It nearly killed me doing that during chemo! Things don't seem like such an uphill battle now!
For those in the middle of rads, how is it affecting you regarding tiredness? Luckily I have t got to drive too far to the hospital so the traveling shouldn't be a problem.
also Ellie and Sissy. Where are you parking for rads? The k and c is a Nightmare for parking spaces. Where do you find best?
Busy weekend for me. It's nice to be doing normal things again!
i hope everyone has a good weekend. Hopefully we will get some better weather down here. It's been like winter all week!
Hi! This thread has been very busy, taken me a while to catch up!
Really good news Debbie, hope you enjoyed your celebratory meal and glass (or 2?) of wine!
Elizabeth, good luck with your last 2, not long now!! How did your appointment go with your lymphodeima therapist? I have the sleeves to wear, mine also cover my hand, leaving the fingers and thumb free, but I find that my hand still swells up as does my fingers and thumb when I wear them I stopped wearing the for a while because as my nails were so sensitive, I was unable to get them on andso my husband has been bandaging my arm up at nights (specially shown how to!) but that is also uncomfortable!! The therapist has said that I shouldn't really expect any real improvement until at least 4 weeks after radiotherapy has finished and my body starts to get back to normal. I have an appointment to see her again on the last day of radiotherapy and them I guess 4 weeks after that. Having real problems wearing tops with tighter sleeves :/
Mechele, I'm having radiotherapy on the left hand side and don't have to do any holding of breathe which is probably fortunate as I have a cough and I don't imagine I'd manage it!! Don't know if that's because I have a silicone reconstruction? Or if my scar is in a different place? Hope your finger is starting to heal well!
I'm back to eating the banned foods too. Some of them I ate anyway, such as runny eggs because I just didn't think! Nice to be back on the soft cheeses
Fiona, my house is in chaos too - ordered new furniture for our 'dining room' which has been used as an office and general dumping ground, so we've started a major sort out which seems to have just made things worse!! Hopefully by the end of this weekend we'll have a tidy house again.
Radiotherapy is going well so far. Have had a different friend driving me to appointments all week, it's been more like a social occasion than a hospital trip as we've gone and done a bit of shopping after and stopped off for a coffee on the way back. My skin looks fine, and they seem to be getting quicker at getting me into the right position, so I'm not having to lie still for long.
The hormone therapy tablets aren't giving me any side effects yet either - long may that last!! I went to see my GP today to get a prescription for another tablet which should help with the bone loss side effect. I really wasnt keen on having it, but I'd be daft not to and my GP was quite positive about it, and I do trust him. So that's me sorted with my medication for the next 10 years!!
It's great a few of you are getting together to do the move on course. I'm in Shropshire, so I don't think any of you are near me. I'll be looking forward to hearing all about it! I have the 'Big C and me' on record to watch on my own one afternoon. I wasn't going to watch it, but decided I would in the end.
Well the weekend has come round again quickly - think its the daily trips to hospital that are making the week go quickly! Hope you all have a good one!
Take care, xxx
Fiona I don't know how you do it all! I am just about feeding and washing myself!
Today i I have a really bad back - don't really need that! Hope I still make it to radio!
Oh no Mechele! Hope you don't get an infection.
great news Debbie 👍. Fiona glad you're enjoying your half term. All your activity makes me feel tired!
Fabulous Debbie, so pleased for you! Michele so sorry to hear about your finger, sounds awful.
I've forgotten all about Cancer for the last few days, we've been having a mini heatwave and the children were off school so it's been picnics, shopping and relaxing. Heaven. I haven't been thinking about the future at all, just enjoying each day. So nice to have some energy without having to have it all taken away by another chemo session. Elizabeth you're nearly there, in a few more weeks you'll be feeling great and it will all seem like a distant memory!
House is in chaos as I'm having bathrooms re done and we had no hot water for 24 hours and had to empty the loft and lots of cupboards so they could do pipe work. My husband away on business so I've taken the opportunity to have a good clear out of his stuff. Hope he doesn't notice all the things I've got rid of, or see them in the local charity shop,
I'm going to make tthe most of the next few days, then it's off to hospital on Wednesday, for my surgery on Thurs. X
Hi Elizabeth - yehhh only 2 to go for you - not long now . Yes , I've recommenced doing my exercises due to feeling it stiffening a little - definately worthwhile as did feel it being 'stretched' yesterday and believe area will ? get tighter. Mine is the left and wondered / worried about heart and maybe doing the 'breath hold '. However, did detailed scan on planning appt to see exactly position of heart/ lung and do not have to do it . Just don't know if I would have felt less anxious if I did have to do it - but I suppose just have to trust their judgement. Worries me also re lymphodema , particularly with having a real nasty double cut through index finger on left - one deep cut width of finger, the other right through nail - only just heeling after 2 wks and boy did it throb!!
Got my finger in blender blade with it still switched on 😨- just don't ask how - basically down to rushing and total stupidity !!!
Recorded the big C , but not watched it yet. Must dash, off for rads no 2 , best wishes , Mechele
I had my 10th of 12 yesterday so only 2 more to go. No new side effects but feeling more tired. I have been struggling with chesty cough which has probably been taking energy. My rads to start 18 July having 20 sessions. Been interesting for me to read your progress on this. It has made me start my arm exercises again. Any of you affected the left? I've been told that I have to do some special breathing to move heart out of the way. How is that? I've fhad some lymphoedema and have got a sleeve and glove but it's really uncomfortable. So I'm not really wearing it. Seeing the nurse again in Friday.
I've been thinking about moving forward and the future and what I am going to do when I've finished with treatment. At the start I had thought that life would continue the same. But I do need to make some lifestyle changes; better diet, more exercise and less stress. I find my job quite stressful, that leads me to reach for the wine when I get in and that leads to not eating properly. This hasn't happened during treatment because I haven't been doing my usual job and only working part time. I can't go back to that cycle again. I think I need to book on the moving forward course too.
Did anyone watch the big C yesterday? I wasn't going to watch, although it was distressing I am glad I did There was a woman on who had been living with BC for 20 years. I had never thought that was possible so it gave me hope.
its great that some of you will meet up. I wonder what you will have to talk about 😉. Keep well everyone. Debbie, I think you will get your results today - will be thinking of you