Member
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Registered: ‎13-02-2016

Re: January 2016 Chemo starters

Finally got the nuclear bone scan result which was clear, hurrah!

 

I celebratied by joining the gym to motivate myself to keep doing gentle daily exercise: swimming, yoga and Pilates to stop the pain from getting any worse and hopefully get rid of it.

 

I've signed up for the moving on course as I still think about breast cancer at least twenty times every day!  It's been a strange year.  I'm looking forward to Christmas, but I'll be glad to see the back of 2016 for sure.

 

Hope everyone else is doing well and getting back to normal.  Lots of love, Fiona. X

Community Champion
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Re: January 2016 Chemo starters

Hi everyone, 

good to hear from you Fiona. Fingers crossed all well for you with the bone scan. I also suffer a lot of hip and back pain but I had it for years before bc so I think it's just age!

The freak of spread is a tough one isn't it. I've just done the moving forward course (I'd recommend it if there's one near you) and the bc nurse who did a talk said that " most people with bc do not get recurrence or spread"  I've decided to try and adopt  that mindset and stop being so worried about it! It's not easy though!

i hope everyone is doing well and enjoying life post bc and treatment. I still shudder when I think back to a year ago. 

I see the plastic surgeon on Monday to start talking reconstruction! I'm still unsure about when or if I'll do it. 

Have a fab weekend everyone,

Claire xxxx

Member
Posts: 94
Registered: ‎13-02-2016

Re: January 2016 Chemo starters

Hi everyone, I went for a check up yesterday.  Ended up having ultrasound on my scar area as there seemed to be a lump there, I had been ignoring it but the breast surgeon said best to check it out and biopsy if necessary.  The ultrasound person said it was completely fine so that's good.  I also had a bone scan yesterday (day of hospital visits getting everything done at once).  I had a radioactive injection then went back 2 hours later for a whole body photo which took 30 minutes of lying still with my legs and arms tied together to keep me still!  This is to rule out any cancer related cause of my hip and leg pain.  So fingers crossed.  I am not too worried as all the specialists seem to be relaxed about it but there is a question mark in the back of my mind.  And it will be nice to get all clear confirmed.... hope all going well for everyone else.  X

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Re: January 2016 Chemo starters

It's hard around these anniversary times Kim as all the memories come flooding back. I'm  sure all will well for you this year though. One of the few upsides of a double mx is that won't have ever have a mammogram and the associated stress of results again! Just got to worry about recurrences!! 

Im glad you've had a good break. It's gone very quickly. I'm about to tackle some  school work ready for  next week. I'm not complaining though as I'm so pleased to be back to relative normality. I look back on a year ago and think how the hell did I get through all that!

love  to everyone,

Claire xxx

Community Champion
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Registered: ‎20-12-2015

Re: January 2016 Chemo starters

Nothing quite prepares you for the letter inviting you for your first mammogram since diagnosis......
Mine came this morning (15 Nov - a year and 3 days after I was diagnosed) Wasn't upset - just opened it and I thought 'Oh crap!'
On the plus side, having a lovely half term decorating and found for nice autumnal walks as the weather is so nice here at the moment 😊🍃🍂🍁
Xxx
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Registered: ‎01-11-2015

Re: January 2016 Chemo starters

Happy birthday Claire! Hope you've had a great day. X🎂

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Registered: ‎06-02-2016

Re: January 2016 Chemo starters

Ps, Ellie.  How lovely to have met up with your first love.  I hope the spark ignites for you!  😉

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Re: January 2016 Chemo starters

Happy birthday Claire.  I hope you have done something nice.  It sounds as though you are all taking control of your health and wellbeing.  Keep it up!

 

Welcome Jilly sorry you are struggling.  Don't be too hard on yourself your body has been through so much. Our hormones are messed up.  I think I have a bit of chemo brain left too.  It is annoying and frustrating.  I had a very stupid accident a few weeks ago...forgot to put handbreak on car which resulted in me being crushed by the car 😬😩🙈 I have bruised my ribs and and back which has put my fitness plan back a few weeks.  It's a set back and I'm getting back on track now.   It sounds as though you would benefit from a moving on course, have you looked into them in your area?  I'm based in Hertfordshire btw, are you anywhere near me?  

 

Take care all and enjoy the break if you are off work.  Xx

 

 

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Re: January 2016 Chemo starters

Same here! At work when I'm busy, it doesn't really cross my mind although my compression sleeve does serve as a reminder!
If I need to slow down I do, but if I sit for too long, seize up - it's hilarious to watch me stagger to my feet until my muscles have warmed up again!! So I try to keep moving and go on daily walks until my Fitbit tells me I've done my 10,000 steps!
Happy Birthday for tomorrow Claire 😊🎉
Xxx
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Re: January 2016 Chemo starters

I agree. If I feel I need to slow down or stop and rest I do now! Xxx
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Re: January 2016 Chemo starters

Fiona I know what you mean. When I am at work I am totally engrossed. But I am accepting that pacing myself might be permanent. I've always quite liked afternoon naps but I just need them more now! 

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Re: January 2016 Chemo starters

Hi all, Ellie I was so pleased to hear all your news and that you're doing so well.  I'm still improving very slowly.  Went to 3 yoga classes this week which was great.  Also swam for over an hour on Thurs and had a walk every day.  Had kids off on half term so lots of activities.  I'm trying to relax and take it as easy as possible, but it's difficult.  I still feel exhausted every afternoon!

 

Jilly good to hear from you and welcome.  I live in Scotland and have just one local friend who was diagnosed with BC just after me (in January).  I don't think I'll ever bounce back to where I was before the diagnosis, but am definitely feeling a little better with each week that goes by.  When I'm busy at work I forget about it completely, which is nice!  Lots of love to you all and a huge Happy Birthday to Claire.  Hope you are celebrating in style.  I am planning to celebrate being 51 with a big party as my 50th was in the middle of chemo and I didn't feel like doing anything!  Fiona x

 

 

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Re: January 2016 Chemo starters

Hi Jilly,

 

I guess we all find this site when we need it! I know the symptoms you are describing! And I guess many of us do. She says whilst having a hot flush...

 

i am in Kent if that is of any help - you don't say where you are based. 

 

Although i I still feel really affected by many of the side effects of the chemo I am finding a way forward and am really starting to enjoy life again. 

 

I hope olé you find someone near to you.

 

ellie. 

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Re: January 2016 Chemo starters

Hi Jilly, I was also diagnosed at the end of September last year. I finished chemo on 3rd may (same as Kim) and Rads on 24th June. I'm on tamoxifen now and (touch wood) have bounced back pretty well. I do ache a bit but just get on and work through it, it could be my age too!!! I'm 50 on Monday! Theee of us are from Kent and have all met up at the moving forward course. Where are you?
Treatment was awful, but everyone here helped me get through it! ,
Anniversaries are hard. This time last year I was in the operating theatre!
Lots of love,
Claire xx
Community Champion
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Re: January 2016 Chemo starters

Hi Jilly,
Welcome to our group! We're not in here as much as we used to be - during chemotherapy we were quite often commenting daily!
I'm coming up to my first year anniversary - my actual diagnosis was 12 November and I'm expecting an appointment for my first mammogram to come through in a few weeks. I feel fine about it now, but I know I'll be in tears when I go into the room!
I had left breast masectomy with immediate reconstruction on 7 Dec, started chemotherapy 18 Jan and radiotherapy 25 May (I think) I'm on Anastrozole which gives me aching feet and hands at night and makes me seize up if I sit for too long, but I can cope with it. I'm also taking bisphosphonates along side it.
I'm from Shropshire and there's no one near to me, so I haven't met up with anyone here, but I chat regularly to 2 local ladies who were diagnosed a few months and a few weeks before me - we usually just compare hair length now, as one of them had triple negative so has no further tablets to take and the other is on herceptin.
Pretty sure I still have chemo brain too!
Sending you loads of love
Kim xxx
Member
Posts: 14
Registered: ‎06-11-2015

Re: January 2016 Chemo starters

Hi everyone , I hope it's ok for me to join in , I haven,t really used this site much . My BC was diagnosed last September , so finished rads , chemo and had right mascetomany , I'm coming up to my 1st mammogram , I'm still not feeling great. Find it hard to sleep , feel very fidgety lots of bone pain and aches, also got the stupid chemo brain, which really does make me feel stupid sometimes X I wondered if you have a page on here as to where we are all located or any meet up that you have xx love and hugs to all xx 

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Posts: 209
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Re: January 2016 Chemo starters

Claire have a lovely afternoon! 

 

Kim - our course is 4 sessions 10-1. Hope you find a convenient one. When I booked my place it seemed a long time to wait but there's one woman on


@Kim555pink wrote:
Yes, that is good news Ellie, fingers crossed it all works out Smiley Happy
I'm going to look out for the Moving on course coming near me - think it will be a distance to travel though. Hopefully if there's one in Cardiff, I can catch the train and have a day out too!! Is it just one day, or a series of days?
Hope you have a great afternoon and meal Claire - Happy 21st to you son 😊🎉
Off to visit my sister in law bearing gifts (fushia pink V pillow from Not Another Bunch of Flowers, meals made from mince, and baby wipes and pain killers!! Was thinking practical!!)
Xxx


it who is 3 years since treatment and it still seems useful. 

 

Hope you and your gifts are appreciated! 

 

Ellie. 

Community Champion
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Re: January 2016 Chemo starters

Yes, that is good news Ellie, fingers crossed it all works out Smiley Happy
I'm going to look out for the Moving on course coming near me - think it will be a distance to travel though. Hopefully if there's one in Cardiff, I can catch the train and have a day out too!! Is it just one day, or a series of days?
Hope you have a great afternoon and meal Claire - Happy 21st to you son 😊🎉
Off to visit my sister in law bearing gifts (fushia pink V pillow from Not Another Bunch of Flowers, meals made from mince, and baby wipes and pain killers!! Was thinking practical!!)
Xxx
Community Champion
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Re: January 2016 Chemo starters

That's lovely news Ellie! I'm so pleased for you. It must have been so tough going through it on your own. You deserve to be happy. I really hope it all works out for you!
I think we are all doing so well considering we are only about 5 months post chemo and 3 post rads. I hope people still going through it see our comments and realise there is life after bc treAtment. It certainly didn't seem so at the time, but I remember reading positive post treatment comments and it helped me.
I was ticking off everyday as I got closer to the end of the nightmare!
I always say that with everything crossed as I have that lurking fear of it coming back! But that's something I've got to deal with!
My son is 21 today so we're off out later to celebrate!
Claire xx
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Re: January 2016 Chemo starters

I am getting a lot out of the moving forwards course too and brilliant to meet Sarah and Claire. There is stuff on it that I wish I had been told initially! 

 

I I think I need to share my exciting news. I have been divorced for 10 years now and although I had a sort of partner for a while he vanished the moment I had the cancer diagnosis. I have just met up with my childhood sweetheart and we have got on really well. I don't know if it will blossom into a relationship but it's looking hopeful at the moment! 

 

With th my new job as well it feels like a real time of moving on! 

 

Ellie.