Finally got the nuclear bone scan result which was clear, hurrah!
I celebratied by joining the gym to motivate myself to keep doing gentle daily exercise: swimming, yoga and Pilates to stop the pain from getting any worse and hopefully get rid of it.
I've signed up for the moving on course as I still think about breast cancer at least twenty times every day! It's been a strange year. I'm looking forward to Christmas, but I'll be glad to see the back of 2016 for sure.
Hope everyone else is doing well and getting back to normal. Lots of love, Fiona. X
good to hear from you Fiona. Fingers crossed all well for you with the bone scan. I also suffer a lot of hip and back pain but I had it for years before bc so I think it's just age!
The freak of spread is a tough one isn't it. I've just done the moving forward course (I'd recommend it if there's one near you) and the bc nurse who did a talk said that " most people with bc do not get recurrence or spread" I've decided to try and adopt that mindset and stop being so worried about it! It's not easy though!
i hope everyone is doing well and enjoying life post bc and treatment. I still shudder when I think back to a year ago.
I see the plastic surgeon on Monday to start talking reconstruction! I'm still unsure about when or if I'll do it.
Have a fab weekend everyone,
Hi everyone, I went for a check up yesterday. Ended up having ultrasound on my scar area as there seemed to be a lump there, I had been ignoring it but the breast surgeon said best to check it out and biopsy if necessary. The ultrasound person said it was completely fine so that's good. I also had a bone scan yesterday (day of hospital visits getting everything done at once). I had a radioactive injection then went back 2 hours later for a whole body photo which took 30 minutes of lying still with my legs and arms tied together to keep me still! This is to rule out any cancer related cause of my hip and leg pain. So fingers crossed. I am not too worried as all the specialists seem to be relaxed about it but there is a question mark in the back of my mind. And it will be nice to get all clear confirmed.... hope all going well for everyone else. X
It's hard around these anniversary times Kim as all the memories come flooding back. I'm sure all will well for you this year though. One of the few upsides of a double mx is that won't have ever have a mammogram and the associated stress of results again! Just got to worry about recurrences!!
Im glad you've had a good break. It's gone very quickly. I'm about to tackle some school work ready for next week. I'm not complaining though as I'm so pleased to be back to relative normality. I look back on a year ago and think how the hell did I get through all that!
love to everyone,
Happy birthday Claire. I hope you have done something nice. It sounds as though you are all taking control of your health and wellbeing. Keep it up!
Welcome Jilly sorry you are struggling. Don't be too hard on yourself your body has been through so much. Our hormones are messed up. I think I have a bit of chemo brain left too. It is annoying and frustrating. I had a very stupid accident a few weeks ago...forgot to put handbreak on car which resulted in me being crushed by the car 😬😩🙈 I have bruised my ribs and and back which has put my fitness plan back a few weeks. It's a set back and I'm getting back on track now. It sounds as though you would benefit from a moving on course, have you looked into them in your area? I'm based in Hertfordshire btw, are you anywhere near me?
Take care all and enjoy the break if you are off work. Xx
Fiona I know what you mean. When I am at work I am totally engrossed. But I am accepting that pacing myself might be permanent. I've always quite liked afternoon naps but I just need them more now!
Hi all, Ellie I was so pleased to hear all your news and that you're doing so well. I'm still improving very slowly. Went to 3 yoga classes this week which was great. Also swam for over an hour on Thurs and had a walk every day. Had kids off on half term so lots of activities. I'm trying to relax and take it as easy as possible, but it's difficult. I still feel exhausted every afternoon!
Jilly good to hear from you and welcome. I live in Scotland and have just one local friend who was diagnosed with BC just after me (in January). I don't think I'll ever bounce back to where I was before the diagnosis, but am definitely feeling a little better with each week that goes by. When I'm busy at work I forget about it completely, which is nice! Lots of love to you all and a huge Happy Birthday to Claire. Hope you are celebrating in style. I am planning to celebrate being 51 with a big party as my 50th was in the middle of chemo and I didn't feel like doing anything! Fiona x
I guess we all find this site when we need it! I know the symptoms you are describing! And I guess many of us do. She says whilst having a hot flush...
i am in Kent if that is of any help - you don't say where you are based.
Although i I still feel really affected by many of the side effects of the chemo I am finding a way forward and am really starting to enjoy life again.
I hope olé you find someone near to you.
Hi everyone , I hope it's ok for me to join in , I haven,t really used this site much . My BC was diagnosed last September , so finished rads , chemo and had right mascetomany , I'm coming up to my 1st mammogram , I'm still not feeling great. Find it hard to sleep , feel very fidgety lots of bone pain and aches, also got the stupid chemo brain, which really does make me feel stupid sometimes X I wondered if you have a page on here as to where we are all located or any meet up that you have xx love and hugs to all xx
Claire have a lovely afternoon!
Kim - our course is 4 sessions 10-1. Hope you find a convenient one. When I booked my place it seemed a long time to wait but there's one woman on
Yes, that is good news Ellie, fingers crossed it all works out
I'm going to look out for the Moving on course coming near me - think it will be a distance to travel though. Hopefully if there's one in Cardiff, I can catch the train and have a day out too!! Is it just one day, or a series of days?
Hope you have a great afternoon and meal Claire - Happy 21st to you son 😊🎉
Off to visit my sister in law bearing gifts (fushia pink V pillow from Not Another Bunch of Flowers, meals made from mince, and baby wipes and pain killers!! Was thinking practical!!)
it who is 3 years since treatment and it still seems useful.
Hope you and your gifts are appreciated!
I am getting a lot out of the moving forwards course too and brilliant to meet Sarah and Claire. There is stuff on it that I wish I had been told initially!
I I think I need to share my exciting news. I have been divorced for 10 years now and although I had a sort of partner for a while he vanished the moment I had the cancer diagnosis. I have just met up with my childhood sweetheart and we have got on really well. I don't know if it will blossom into a relationship but it's looking hopeful at the moment!
With th my new job as well it feels like a real time of moving on!
How was the Moving On course? It's nice to think that the 3 of you managed to finally meet each other.
It's now a year ago since I was called back for further testing from my routine mamogram and the 12 November will be the anniversary of the day I was diagnosed. I have a letter from the hospital to arrange an appointment, so I'm guessing it's for my yearly mamogram. I'm not worried about it, but I'm quite sure that I'll be in tears when I approach the machine. But I guess it will get easier from there.
I had my first visit to the hairdresser 3 weeks ago (don't think I posted that at the time). It was so nice to feel pampered! She spent nearly an hour trimming and chatting. Still wearing my wig and have decided to carry on doing so until Christmas when I'll have had it cut a couple more times and then finally coloured.
Half term is approaching and I'm pleased to say I've managed a whole half term!! It's so good to be back at work I think I am so much more calmer and laid back than I used to be at work - just enjoying the company of the children rather than feeling the stress.
A couple of weeks ago my sister in law (Mark's sister) was also diagnosed with brest cancer, which has been a shock. You kind of think that having it yourself means that your friends and relatives will be spared (law of averages) but it really isn't the case. The good news (not that cancer is good news) is that they think it is stage 1 and she will have radiotherapy after her lumpectomy and not chemotherapy. But as we know, things can change once they've analysed what they've removed. I've just been cooking meals made from mince for her to put in the freezer to tide her over for the next 2 weeks as she has her operation on Thursday. She lives just with her daughter who has just started a new job so it is going to be tough for her too.
I hope you are all well and enjoying being able to get on with day to day life
Lots of love Kim xxx
Hello lovely January ladies,
so it's one year tomorrow since I was diagnosed and the nightmare unfolded. I'm sitting here with a glass of wine reflecting on all that happened to me. I find it very difficult to think too deeply about the day my life came crashing down and everything that followed as its all still so painful and raw. I think about myself a year ago and ask myself how the hell did I cope with everything that followed. At the start of it all I couldn't imagine ever getting to where I am now with life pretty much back to normal. I am so lucky to have got through it and hopefully have a long future ahead of me. I've got a new house to move into, two happy and healthy sons, a lovely husband, a job I love and a new horse. I am so grateful for all this.
Thank you to all the lovely ladies on this thread for all you did to support me through chemo.
love to all
I have also finally worked out how to add a photo! Still feeling a bit up and down, but I think the trend is up. Seeing my oncologist later this week, hopefully for the last time EVER. Not sure how long it will take me to feel over this extended episode, what a year it has been..... thanks so much to all of you fab ladies for helping me through it all. It has made such a difference to have fellow travellers. Lots of love. X
I have the hot flushes Mechelle - boy! Dr suggested switching to all cotton sheets, cool pillow, avoiding red ine, chocolate, cheese and coffee and drinking sage tea.
I have the aches and pains too! I find the warmth helps and so whilst trying to keep cool I end up wearing socks!
I can't believe how thick my hair is as I am sure it wasn't before!
Hi Ellie, what a good photo - your hair looks quite thick too. It's strange how a few of us have this 'steely grey' colour- I wonder how many were grey prior to treatment. I had some grey, but having dyed it for several years, it's difficult to say to what extent !!!
Re your post - I am on Letrozole and for the first 4-5 weeks had no s/e whatsoever . Then started with hot flashes, much worse than the flushes I'd had for numerous years, but nothing I can't cope with. I also had ' morning sickness/ nausea , oh boy !!! Re started Domperidome with ? slightly helped. On review with con onc, he suggested taking it at night( instead of a morning ) and that he didn't think it was due to the Letrozole !!!!!!!( does say tho on info ? nausea / vomiting). Saw GP as the nausea was getting me down and put me on Cyclizine- I take one at night with the Letrozole - problem solved , yehhh. Now 12 weeks since having the Dexa scan with no result as yet - need result for when I renew travel insurance at the beginning of November, so hopefully will come whilst on holiday. Hope you are feeling ok, love and best wishes to all. X X
Elizabeth, your hair looks great! Mine is very bushy and sticks up so I'm hoping as it grows and gets more weight it will lie flatter! Not moaning though I'm so pleased I managed to hang on to it!
I saw my surgeon on Monday. All v good. Haven't got to go back for a year! I'm being referred to the plastic surgeon for recon and he said I mustnt lose any weight! I've never been particularly fat and they will need the weight I have put on to make new boobs! That's a result!! Although I hate feeling fat and untoned, so I'm trying ,y best to get as fit as possible!
Have a wonderful weekend. Happy holidays Cassy and Mechele,
My husband shopped arouind online and we used a company called GetGoing Travel Insurance. Obviously, it was like writing a book having to inform them of absolutely everything. But wasn't expensive, nothing like I had imagined.
Hi Elizabeth - lovely to hear that you're feeling so much better and your hair really does look lovely - probably be early spring before mine gets to that length . It's great seeing everyone's photos and being able to put a face to a name .
Wishing everyone a good weekend
This is me. Like Claire I cold capped and didn't lose all of my hair. Had it properly coloured so grey roots covered now. It's a very funny texture now and there's lots of short sprouty bits between the longer hair. I had it cut short during treatment and its great not having to blow dry or straighten it ...saves a lot of time.
I am am feeling soooo much better now. My burn has healed and my boob no longer sore. Got to start concentrating on getting fit and tackling the lymphoedema. I have several sessions booked with a lymphoedema specialist nurse. Been on tamoxifen for about 5 weeks now. Not noticed any side effects except had a few spots recently but that could be down to anything. I saw the consultant a couple if weeks ago and she really put my mind at ease. I have a lump in my boob that I was worried about and she was sure it's tissue but let me have an ultrasound scan anyway. There is nothing there and I'm feeling really positive now (that could all change!).
Cassy well done on your weight loss, I find losing weight the hardest thing in the world but I've got to start that too. It's great seeing all your photos. Take care everyone and keep well.
Hi everyone, it is lovely to put faces to names after so long. I've attached a photo taken of me about a month ago showing my much shorter than it was pre bc cold cap hair! I have got used to it now but I'm looking forward to growing it again although it's going to take a while. It was just too thin and straggly not to cut! I'm surprised I'm not grey!
I agree with what has been said before. I don't know how I would have got through chemo without you all. You were a lifeline for me!
It's so good to hear of everyone returning to normality, working and having holidays!
I've just bought a horse!!
Hi everyone .
Love the 'grey parade' comment - think Sissys looks good too. Tried my wigs on yesterday , deciding if to take on holiday on 27th for 'evening wear' , however they don't seem to sit properly - although as you see from the photograph , my hair is quite thick, despite not being very long yet.
Cassy - do hope you have a wonderful holiday, I'm sure, like me , you're sooooo ready for it. Sure you will have a fabulous time. Did you have much problem with travel insurance ? ie cost, which company. I have cover for this holiday, but policy due to be renewed November - mmm should be interesting.
Several of you are now back at work and hope it going well and good to being back to some sense of normality.
I agree totally with Cassy's last comments on her post - really has made such an journey more tolerable, so thankyou to all.
Best wishes to all
Mechele X X
I am loving the photos that are popping up on here. There is currently the grey parade (myself, Mechele and Kim) and the lovely Sissy, with a lovely soft shade and definately no grey. Everyone looks so well.
I am definately embracing the grey and the short hair. I love the fact that doing my hair takes all of 5 seconds. I am going to stay with the natural grey but try to grow my hair into a modern pixie cut then grow into a longer side fringe.
It is so good to have hair, eyebrows, eyelashes...feeling better with each week, more confident
We are off to Corfu on Monday, can't wait! I am definately ready for this holiday.
I hope everyone continues to keep in touch on this thread, you all helped me get through the chemo and help put my mind at rest at times, just finding out what was happening for everyone else stopped me feeling like I was going through it alone. I really can't thank you all enough.
You are all amazing! xxx
There's no moving on courses close to me at the moment but I'll keep a look out. Feeling better at the moment though
Here's a pic I took this morning before I out my wig on for work. I took several - all dreadful but it gives you an idea of how my hair is coming along. Seeing my hairdresser next week to come up with a plan - it will involve hair dye or the wig stays!!!! Sorry the photo is so big - hope it's not too much of a shock!!
Hi everyone , everyone seems to be moving on in one way or another.
Sissy - your hair suits you and looks quite thick - did you have a short style previously. Mine seems to be thickening up , but doesn't seem to grow very quick - probably me just being inpatient!! Just over 2 weeks to our holiday , just really cannot come quick enough. Had yet another chest infection - never had them prior to this, GP thinks re rads and if still coughing/ slight breathlessness on return from hols, will send me for chest X-ray. Mammogram on Nov 7th and hopefully nothing found !! I'm back to having grandaughter one day a week, then up to 2 on return from holiday. She's such a sweetie and puts her hands on my cheeks, looking into my eyes saying ' I love you Mamar ' - I just melt !!! Best wishes to everyone , Mechele
Looking lovely ladies! The first anniversary is a strange one, having to go back to the place it all began wasn't nice but it's something we have to do and it felt so good to get that one under my belt!! Cassie we fly to Corfu the week after you for 11 nights, can't wait! 😎☉
Sissy I've been fine on Tamoxifen, 17 months now and no major side effects, lovely to see everyone begining to move on, it's been quite a year! Xx