Member
Posts: 65
Registered: ‎21-01-2018

Re: February Chemo Starters 2018

Hi Jude51,I  bought a cooling pillow - JML £10 in Asda it feels cool but seems really heavy and uncomfortable to lay on despite being in a pillow case.Is there different types??

Member
Posts: 63
Registered: ‎09-11-2017

Re: February Chemo Starters 2018

Evening all - that Docetaxal certainly has some nasty side effects but really good to hear Bibi and Macneech that you are almost done with it. How many more cycles have you got Wee Burd ?

My hair is growing back at a rate of knots - got a good cm and its getting thicker, cant help stroking it.  Its strange but i have got so used to no hair that when i tried on my wig it just looked wierd ! In retrospect i shouldn't have bothered getting it as i have only worn it once. Well done on sticking with the cold cap Wee Burd. Eyebrows and lashes definitely thinner but hanging in there.

I've bought a 4.5 tog duvet and although it gets kicked off at times its better than a sheet. Have also bought a cooling pillow  - first try tonight so will feed back. 

Big hugs to everyone  xx

Member
Posts: 65
Registered: ‎21-01-2018

Re: February Chemo Starters 2018

Evening ladies - like you Bibi and weeburd I have been suffering the nasties of Docetaxol.The first couple of days with steroid high  give you a false sense of security 😕.No sickness for me fortunately but horrible gripes and Wind  - tried to keep to the Almond and coconut milk and low fibre diet- really hard when you can't taste.

I think the taste issue goes on for much longer with Docetaxol than the Fec.Then there is having the energy of s gnat - I do a bit, lay down then do a bit more.

Wee Burd -I  can't   believe you have held on to your hair! Not sure if I  can feel a 4m or two of baby fuzz on the top of my head?? About 5 eyebrow hairs left on the right and about 3 on the left.Getting quite good at drawing them in now ☺No eye lashes  - I used to have really long ones 😣

Again like you Wee Burd  my Hb has been dropping with each cycle- had done spinach - will move on to steak!!

Last Docetaxol for me next weds - whoop whoop! Worst bit of the journey over for me I hope.Have surgeon appt  7th June for mastectomy and axillary clearance. Planning to have overnight stay with temporary implant - this is what I have been recommended ( I think because I have small boobs).

I will be looking on here for advice 're the surgery next.

Good luck to everyone having hopefully their last treatments xxx

Member
Posts: 92
Registered: ‎12-02-2018

Re: February Chemo Starters 2018

Hi All,
Back on the treatment tricycle today. Saw oncologist yesterday and she has knocked the docetaxel down a notch in the hope it doesn't send me quite so low this time round. She was concerned I might not have recovered enough for treatment today but temperature check and second blood test were ok. My haemoglobin was bizarrely low but apparently possibly just a blip but good excuse to treat myself to a few nice steak dinners! Steroids have kicked in so am ravenous again although I also couldn't get a decent sleep last night because of them. Had my treatment today and so far feeling ok now that my brain freeze has cleared! Cold cap has been working pretty well for me. Hair still hanging on in there. My eyebrows have more or less completely gone now apart from one remaining hair and some stubble! Very few eyelashes too. I went out to a friend's wedding party on Saturday (not the one in Windsor 😂) and tried putting on mascara for the first time in ages. There was barely anything left to catch it😃.
Hope everyone is coping and able to enjoy a bit of fresh air and sunshine. I'm making the most of it while I can as I'm expecting to be flat out by Saturday. Hugs to you all xx
Member
Posts: 148
Registered: ‎22-01-2018

Re: February Chemo Starters 2018

Afternoon everyone - hope you are all sorted with the hot flushes - I barely use a duvet and have window open all night - just too hot. Had 3rd Docetaxol last Thursday and after an initial good couple of days I am struggling to feel well - nausea and disgusting taste in mouth that just keeps lingering 😒 

Was feeling really good this morning and mowed the lawn, went out for lunch and just felt horribly sick and had to come home 😢 - so fed up of it. Sofa is my best friend atm. 

At least the sun is shining and I can watch hubby working lol😅

Hoping to get away next week for a break so let’s hope this weather holds 🤞

One more to go - can’t wait! 

Take care everyone xxx

Member
Posts: 165
Registered: ‎30-11-2017

Re: February Chemo Starters 2018

Thanks for all your helpful comments. Just wanted to be as prepared as poss to help it all go smoothly. All rather daunting...never had an Op before!

Member
Posts: 9
Registered: ‎27-02-2018

Re: February Chemo Starters 2018

Hi Chrissy night sweats are awful aren't they? I am 4 weeks post last chemo and still having. My only tip is to keep a wet facecloth next to bed and when I wake up with one put on head or back of neck -helps to a degree... it's the insomnia they bring rich is also challenging!! Chemo the gift that keeps on giving😂
Anyone suffer with fluid retention? Really struggling with that at mo.


Member
Posts: 92
Registered: ‎17-12-2017

Re: February Chemo Starters 2018

Thanks girls yes I hope it goes after next chemo it’s horrible and so disturbing at night xseeing oncologist fri so will ask if any help . Has anyone tried sage tea ? X
Member
Posts: 63
Registered: ‎09-11-2017

Re: February Chemo Starters 2018

Chrissy if this is hormonal sweats I sympathise! I've had them for the last month and it's miserable at times. Duvet off - just the cover and a light blanket which usually gets kicked off too ! Fan if needed but too noisy for my liking. Window wide open even if cold outside. I'm cold most of the time but if I try and wrap up it just sets them off. Might buy one of those cooling pillows as mine gets turned over constantly. Hoping it will settle a little once off chemo but who knows.
Member
Posts: 92
Registered: ‎12-02-2018

Re: February Chemo Starters 2018

On my last chemo (1st docetaxel) I got really shivery at night and took a hot water bottle to bed. Had it stuck at the small of my back as it was the only relief I got from the shivers. I then found by the morning I was sweating but couldn't find any way to relieve the hot sweats sorry. It really only lasted about a day and a half like that before I started to feel a bit more normal again.
Member
Posts: 92
Registered: ‎17-12-2017

Re: February Chemo Starters 2018

Hi sorry to change the conversation but a quick question I had 5th doxcetaxel on tue and the hot and cold sweats are driving me crazy at night and constantly waking me x
Has any one any tips ? X
Member
Posts: 63
Registered: ‎09-11-2017

Re: February Chemo Starters 2018

Oh yes I completely forgot about the cushion for support - again they gave them out at the hospital but I had one made for me too. Heart shaped to fit under your arm but any cushion good. Took me over a month before I could sleep on my side so hubby also bought me a giant u-shaped cushion which was fab.
Member
Posts: 92
Registered: ‎12-02-2018

Re: February Chemo Starters 2018

Camilla I had lumpectomy and sentinel node biopsy. I couldn't get a front opening bra so ended up with a soft ( not underwired) one with a larger back and smaller cups than my usual. I didn't have any drains to cope with. I did have some swelling but it wasn't too enormous - basically just put my breast back to the size it was before the lump and margin were taken out.
The sorest part was under my arm where the node had been removed. Putting the bra on was a struggle to go home that night because of that but my husband helped me to get dressed. After that it quickly became much easier especially after the exercises. The lumpectomy site gave me no trouble at all. But make sure you have plenty of good pain relief and I used a cushion at night to support my arm so that I could get some sleep.
Member
Posts: 92
Registered: ‎17-12-2017

Re: February Chemo Starters 2018

Hello everyone
Camilla if you scroll back quite a few pages there is a web site I put on from amazon for bras . I found these really good and when I am feeling normal again (i hope that will be after radio) I will use for the gym so at least not wasting money . I would recommend anything Front fasting as you will not have range of movement so that’s bras pjs and tops it will make life easier for dressing and carrying drains . As Jude said make sure u ready to be discharged home I had lot of pain and they wanted me home but refused (think it was as it was Xmas time and no staff ) . Drain bag was provided by breast care nurses who will visit after and physio . As said before make sure you do exercises religiously especially if you having radio at later date to . Good luck 😉
Member
Posts: 63
Registered: ‎09-11-2017

Re: February Chemo Starters 2018

[ Edited ]

I wore Pj's but the t-shirt tops were quite loose so easy to get on and off  - they suggested button up tops but didnt want to buy anything i wasnt going to wear after.

I had a drain bag i took in (bought from drain dollies) but they actually provided one anyway. Invaluable as i had two drains and they get heavy. Also useful as i got up a couple of times and forgot i had them...dropped on the floor - well stitched in so risk of falling out ! They show you how to empty them and record the amount - its not hard. Woody mentioned about having a district nurse in daily - i was never offered that but as i used to be a nurse i wasnt bothered. Theres always someone to ring if you have problems though. 

The one thing i wasnt expecting was not being able to shower until drains out and dressings off - that first shower was bliss. Again that might be different for you but worth checking. 

Bras are a nightmare - i am def on the larger size and there is very limited availability out there. I was provided with a front opening bra to take home so didnt have to buy one - not particularly uplifting but very stretchy and comfortable. The dressing was just one layer - no padding. I would just go with normal size bra as a little tighter to begin with is no problem  - can always loosen off if needed. Alot of it is trial and error - just adapt as you go along. 

Member
Posts: 165
Registered: ‎30-11-2017

Re: February Chemo Starters 2018

Thanks v much Jude.

 

What did you wear in hosp and to deal with the drains?  I don't normally wear pajamas as I get hot in bed and have bought a couple of nightshirts. Hope they'll be ok. 

 

I'm having a lumpectomy and have been advised to get front opening bras which has proved diff. M and S do sports ones which are too small for me. Have ended up with a nursing bra via the internet but size is diff as don't know how swollen I might be plus padding from wadding covering the incisions. Just want to get things right to make the whole experience easier and go as smoothly as poss.

 

Also, my husband not the nursing type so discharged from hosp and then dealing with it all oneself at home quite daunting.

Member
Posts: 63
Registered: ‎09-11-2017

Re: February Chemo Starters 2018

Hi Camilla9 - just thought id add my experience too. I had mastectomy and axillary node clearance 19th dec. I had the option of a day case but ended up staying in for 2 nights as quite painful - extra bit of morphine at night was bliss in helping with sleeping ! Went home with minimal painkillers (paracetamol/ibuprofen) but actualIy it was the axilla/drains that were more uncomfortable than the mastectomy site. I had my drains out after a week but needed seromas draining weekly at the hospital for about 3-4 weeks - not painful at all as everything is so numb. I would agree about keeping up with the exercises. After a couple of weeks i realised although i had pretty good movement ie i could get arms above my head i had to really stretch them to get any further. I found i could reach the top of the shower screen and literally hung off that - will do no harm, just little and often did the trick. Within a week or so i felt much looser. Now 5 months on i dont do any specific exercises but i have started back at the gym with my PT so keeping up with stretching and building up strength. I still have some numbness in the back of my arm,axilla and mastectomy site - not sure how much improvement there will be but def better than after surgery. Also was back to driving after about 4-5 weeks. 

Hope thats useful - must admit i wasnt sure what to expect after surgery and everyone is different. The advice and support available from hospitals can be vastly different too so be guided by them. Good luck ! x

Member
Posts: 165
Registered: ‎30-11-2017

Re: February Chemo Starters 2018

Thanks, Woodie.

 

How functioning is your arm now? Do you feel more or less back to normal? I am doing jobs round the house  and gardening while I have 2 good arms before the op on Weds as I don't know how long I'll be out of action.

 

Hope you're doing ok now.

Community Champion
Posts: 3,294
Registered: ‎04-02-2016

Re: February Chemo Starters 2018

[ Edited ]

Actually woody, I didn’t have that...I’d get that checked out by my gp. I was getting swollen legs and wondering if my heart was having a tough time.....so have just had an echocardiogram.

 

we are more prone to blood clots a cancer changers the clotting mechanism

 

hope all goes well

 

Moijan

Member
Posts: 148
Registered: ‎22-01-2018

Re: February Chemo Starters 2018

Hi Chrissy - I don’t think I have any phlebitis atm but will keep an eye out thanks - so much to monitor! 

Yes just one more to go - an extra one from original plan- so hoping I can see it out now on a cannula 🤞

Had a nice morning planting my pots - the reaction from this chemo - Docetaxol- seems to arrive after a couple of days so making the most if feeling reasonably good.

Bibi x