23-05-2018 09:48 PM
Hi Jude51,I bought a cooling pillow - JML £10 in Asda it feels cool but seems really heavy and uncomfortable to lay on despite being in a pillow case.Is there different types??
23-05-2018 08:48 PM
Evening all - that Docetaxal certainly has some nasty side effects but really good to hear Bibi and Macneech that you are almost done with it. How many more cycles have you got Wee Burd ?
My hair is growing back at a rate of knots - got a good cm and its getting thicker, cant help stroking it. Its strange but i have got so used to no hair that when i tried on my wig it just looked wierd ! In retrospect i shouldn't have bothered getting it as i have only worn it once. Well done on sticking with the cold cap Wee Burd. Eyebrows and lashes definitely thinner but hanging in there.
I've bought a 4.5 tog duvet and although it gets kicked off at times its better than a sheet. Have also bought a cooling pillow - first try tonight so will feed back.
Big hugs to everyone xx
23-05-2018 07:17 PM
Evening ladies - like you Bibi and weeburd I have been suffering the nasties of Docetaxol.The first couple of days with steroid high give you a false sense of security 😕.No sickness for me fortunately but horrible gripes and Wind - tried to keep to the Almond and coconut milk and low fibre diet- really hard when you can't taste.
I think the taste issue goes on for much longer with Docetaxol than the Fec.Then there is having the energy of s gnat - I do a bit, lay down then do a bit more.
Wee Burd -I can't believe you have held on to your hair! Not sure if I can feel a 4m or two of baby fuzz on the top of my head?? About 5 eyebrow hairs left on the right and about 3 on the left.Getting quite good at drawing them in now ☺No eye lashes - I used to have really long ones 😣
Again like you Wee Burd my Hb has been dropping with each cycle- had done spinach - will move on to steak!!
Last Docetaxol for me next weds - whoop whoop! Worst bit of the journey over for me I hope.Have surgeon appt 7th June for mastectomy and axillary clearance. Planning to have overnight stay with temporary implant - this is what I have been recommended ( I think because I have small boobs).
I will be looking on here for advice 're the surgery next.
Good luck to everyone having hopefully their last treatments xxx
23-05-2018 04:48 PM
23-05-2018 04:28 PM
Afternoon everyone - hope you are all sorted with the hot flushes - I barely use a duvet and have window open all night - just too hot. Had 3rd Docetaxol last Thursday and after an initial good couple of days I am struggling to feel well - nausea and disgusting taste in mouth that just keeps lingering 😒
Was feeling really good this morning and mowed the lawn, went out for lunch and just felt horribly sick and had to come home 😢 - so fed up of it. Sofa is my best friend atm.
At least the sun is shining and I can watch hubby working lol😅
Hoping to get away next week for a break so let’s hope this weather holds 🤞
One more to go - can’t wait!
Take care everyone xxx
20-05-2018 03:19 PM
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20-05-2018 08:15 AM - edited 20-05-2018 08:16 AM
I wore Pj's but the t-shirt tops were quite loose so easy to get on and off - they suggested button up tops but didnt want to buy anything i wasnt going to wear after.
I had a drain bag i took in (bought from drain dollies) but they actually provided one anyway. Invaluable as i had two drains and they get heavy. Also useful as i got up a couple of times and forgot i had them...dropped on the floor - well stitched in so risk of falling out ! They show you how to empty them and record the amount - its not hard. Woody mentioned about having a district nurse in daily - i was never offered that but as i used to be a nurse i wasnt bothered. Theres always someone to ring if you have problems though.
The one thing i wasnt expecting was not being able to shower until drains out and dressings off - that first shower was bliss. Again that might be different for you but worth checking.
Bras are a nightmare - i am def on the larger size and there is very limited availability out there. I was provided with a front opening bra to take home so didnt have to buy one - not particularly uplifting but very stretchy and comfortable. The dressing was just one layer - no padding. I would just go with normal size bra as a little tighter to begin with is no problem - can always loosen off if needed. Alot of it is trial and error - just adapt as you go along.
20-05-2018 06:09 AM
Thanks v much Jude.
What did you wear in hosp and to deal with the drains? I don't normally wear pajamas as I get hot in bed and have bought a couple of nightshirts. Hope they'll be ok.
I'm having a lumpectomy and have been advised to get front opening bras which has proved diff. M and S do sports ones which are too small for me. Have ended up with a nursing bra via the internet but size is diff as don't know how swollen I might be plus padding from wadding covering the incisions. Just want to get things right to make the whole experience easier and go as smoothly as poss.
Also, my husband not the nursing type so discharged from hosp and then dealing with it all oneself at home quite daunting.
19-05-2018 08:24 PM
Hi Camilla9 - just thought id add my experience too. I had mastectomy and axillary node clearance 19th dec. I had the option of a day case but ended up staying in for 2 nights as quite painful - extra bit of morphine at night was bliss in helping with sleeping ! Went home with minimal painkillers (paracetamol/ibuprofen) but actualIy it was the axilla/drains that were more uncomfortable than the mastectomy site. I had my drains out after a week but needed seromas draining weekly at the hospital for about 3-4 weeks - not painful at all as everything is so numb. I would agree about keeping up with the exercises. After a couple of weeks i realised although i had pretty good movement ie i could get arms above my head i had to really stretch them to get any further. I found i could reach the top of the shower screen and literally hung off that - will do no harm, just little and often did the trick. Within a week or so i felt much looser. Now 5 months on i dont do any specific exercises but i have started back at the gym with my PT so keeping up with stretching and building up strength. I still have some numbness in the back of my arm,axilla and mastectomy site - not sure how much improvement there will be but def better than after surgery. Also was back to driving after about 4-5 weeks.
Hope thats useful - must admit i wasnt sure what to expect after surgery and everyone is different. The advice and support available from hospitals can be vastly different too so be guided by them. Good luck ! x
19-05-2018 05:17 PM
How functioning is your arm now? Do you feel more or less back to normal? I am doing jobs round the house and gardening while I have 2 good arms before the op on Weds as I don't know how long I'll be out of action.
Hope you're doing ok now.
18-05-2018 05:11 PM - edited 18-05-2018 05:13 PM
Actually woody, I didn’t have that...I’d get that checked out by my gp. I was getting swollen legs and wondering if my heart was having a tough time.....so have just had an echocardiogram.
we are more prone to blood clots a cancer changers the clotting mechanism
hope all goes well
18-05-2018 01:53 PM
Hi Chrissy - I don’t think I have any phlebitis atm but will keep an eye out thanks - so much to monitor!
Yes just one more to go - an extra one from original plan- so hoping I can see it out now on a cannula 🤞
Had a nice morning planting my pots - the reaction from this chemo - Docetaxol- seems to arrive after a couple of days so making the most if feeling reasonably good.