Well done Bibi for getting through such a long day of chemo ( is that with a line in)? Count down to last one !!xx 😀
I have just come out the other side of cycle 4 T, first good night sleep in 10 days!!! Been waking with migrains and the tummy trouble has been rough - need to discuss with onc on Mon.I suppose one bonus with gripes and diarrhoea is that it keeps my weight off!! Getting through the treatment is hard enough let alone worrying about weight gain/ right diet.I find I have to eat what gives me pleasure ( and taste a little!) to keep me sane😣.
I commend those exercising - just walking up the stairs is currently a challenge for me.Crouching to the floor and getting back up again- omg! Poterring in my greenhouse - even pricking out seedlings has been a daunting task of late.Today I think I have my mojo back (Well helped if I can eat something and keep it in!) - so hopefully out and about a bit ( if only in the greenhouse) the rain hasn't stopped here since our 2 day heat wave! - and I am down in Hampshire !!
Hoping everyone else is doing ok xxx
Morning everyone - 5 down only 1 more left 🎉
such a long day 10-5.30 so felt tired as I don’t sleep well the night before chemo - good sleep and feel fine today. If it follows last time I will fell well for 2days and then not so good ( Pertuzumab, Trastuzumab and Docetaxol) - typically weather was lovely yesterday whilst we were in unit and is horrible today - not so good for gardening project ☔️ So will make the most of it doing a few crafting things and catching up with friends.
Trying to manage my weight but it keeps increasing- steroids don’t help, not as much exercise as usual but trying to walk and do yoga when I can. People tell me not to worry it’s not the most important thing at the moment but it is depressing - doesn’t help to feeling good - but will keep trying.
Hope evryone is managing their treatment well, have a good weekend 😊 x
sorry you feel rough I’m feeling slightly better today and for the very first time...less nauseous....I read on one thread that milk can worsen the tummy pains...so I’m trying out soya and oat milk just to see. Also I’ve hardly eaten much today and wonder if my liver feels more able to cope?
my fingers are very sore.....
have pm’d youxx
Morning ladies.Day 7 after first Docetaxol for me .Day 5 I was rough with tummy gripes,diarrhoea and generally feeling blurgh.Horrible night waking every 2 hours or so.Yesterday felt better - bit gripey ,bit tender but able to do some chores.Rough again today - so frustrating.Woke at 4am with achy pelvis, gripes.Horrible mouth. Tender nail beds.
Symptoms seem so up and down- is this due to amount of fluid we drink or rest we get?? Even water tastes yuk still.Lemonade tastes better but I suppose not good for the reflux/ gut symptoms😔
Thought this was going to be an easier ride this time as had such a good start - feeling fed up today.
Just having a moan - need to stay positive.2 thirds of the way there😃
Good luck with chemo 5 Bibi - I am staying close on your tail !! How are you doing Anne Marie??
Big hugs to all xx
Cool hat Miss Green - I bought a big floppy one from Sainsbury’s - reminds me of my youth in the 70’s
have you tried something like lanszaperole or omeprazole for the reflux? Works for me.
Hope you are feeling better Wee Burd and sorted out the thrush issue
Thanks for the bra info Chrissy will definitely have a look at them.
I had a great weekend catching up with old friends and feel ready to tackle the next round of Docetaxol on Thursday - how quickly it comes around - but this will be 5 of 6 which means in 23 days I will be having my last chemo 🤞
Have a good week everyone xxx
Yes that was alcohol and it tasted bloody lovely lol. I try to do something nice when I start feeling normal after my 2 weeks of chemo stops. The last two times alcohol has been involved - whoops lol 😁. I added the photo by switching from the mobile version to the full site version of the website. Hope that helps?
I too suffer from reflux, mine is extrem and I constantly regurgitate my food/liquid. It's not caused by the chemo, has been an issue for a couple of years, but sorting it out has taken a back seat to the cancer.
I also understand your pain and frustration with your brother as I have a similar issue with my father. You can't choose your blood family but you can choose your non blood family ie. Your friends.
Good luck with starting Docetaxel. That's one of the chemo drugs I am on.
Hi miss green lovely pic was that alcohol is so have one for me next time as with my reflux I don’t want to risk have only managed tea recently. I too Feel ‘normalish’’ at the mo but tomorrow start cycle 4 new chemo for me docetaxel . Had all my steroids today bloods done hope they ok and stitches out of Hickman so will have bath in preparation for tomorrow.
Have been told got GCFS INJ for 8 days so hope that’s ok too.
withregards to bras Go for zipped front opening if mastectomy you will not be able move arm well for quite a few weeks .This is what I bought off AMAzon and were brilliant left no marks unlike a more expensive one can’t remember if took a while to come so order early unlike as I didn’t have a clue about anything until after op .
Sorry can someone tell me how you put a pic on here.
just wanted to say to everyone we need to have a moan on here it’s important so don’t feel bad moaning . We all can totally empathise as we’ve physically been through it as some people just don’t get it and when they see you on a good day they think that everything is fine . So don’t feel quilty for moaning . My bloody brother has only rang me once in feb and I had the op on 21st dec and I’ve not heard from him since . I won’t say how I feel about it but thankfully I’ve got some fabulous friends .
good luck everyone for any treatment you are having xxx
Hope you're all well.
I feel I have been quite negative of late with all the horrible side effects and thrombosis I had this cycle. As the sun has been out today and my taste buds have finally come back I thought I would do a positive post. Cancer and chemo are horrible but it's not like that all the time. I raise my glass of cosmopolitan to all you strong cancer kicking ladies 😁🍹
Normal service is due to resume on Wednesday for cycle 4.
Love n hugs to you all.
Morning everyone - doesn’t the sun lift your mood ? 🌞😍😀
Macneech hope you continue to feel well - I had 2 great days after T and then hit a bad low when steroid high had gone - so take care of yourself xxx
Flora thanks for the reminder about hydration - it really does help .
Interested to know if you were able to get the soft crop bras on easily after mastectomy- could you lift your arm easily to manoeuvre? Heard it’s quite hard to lift arm high so looking at getting bras easy to get on and off and shirts to wear. I will be having a mastectomy in a couple of months - don’t know what they offer at the hospital I’m under so interested to hear about people’s experiences.
Hope your return to work goes smoothly xx
Have a great weekend everyone - I’m off to a college reunion to see my friends from 40 years ago! Should be fun .
Stay well x
Hi Flora - glad you are feeling mostly normal and back to work is on the horizon.I have heard that although radiotherapy is easier to cope with it can still be exhausting. Was hoping to work through mine but a long way off to me yet.
Thank you for the advice re mastectomy bras.
So sorry about your pregnancy difficulties - another reason to hate this disease.You are amazingly strong to share all this on here.
I had my first T yesterday and so far feel ok! High on steroids I think.Had an unexpected good night sleep too with no aches and pains yet.Did take cocktail of anti sickness and painkillers plus Loratidine however.Not even a hint of nausea and eating well - not sure if this will continue with steroid drop tomorrow 😞.
Hope everyone else is doing ok xxx
Hi Ladies and welcome Annie
Like Miss Green, I've been a bit quiet of late, but more because I feel mostly fine apart from 4-5 days of bone aches after each chemo (which is the T many of you are now moving on to).
I've just had my final treatment, as I only needed 4 of them, as the main aim was to get me onto the herceptin. My first cancer was aged 36 (I'm now 45, and this is a new primary, not a recurrence), but no children. I was trying to get pregnant when I found the lump, but bthe first round of chemo put paid to that, and an urgent, single round of IVF to freeze an egg didn't work.
At today's treatment, they did the herceptin first, and after that as they were putting the cannula in (2 attempts needed), I had a low blood pressure crash. I went woozy, distant, hot and my BP dropped to 97/54. I guess that's what it feels like to faint, although I didn't black out. I came back OK, obs for an hour, drink more water, then they gave me the abraxane (which is taxotere/docetaxel in a fancy format) when my BP came up to 105/67. It was either an allergic reaction to the herceptin (but this was my 4th, so unlikely), or I was dehydrated. So, the lesson is, make sure you drink plenty the day before and the day of treatment! I think I had forgotton that yesterday.
M&S is the easiest source for mastectomy bras. They have quite a range, and they are reasonably priced. You can claim the VAT back on mastectomy bras too, as they are medical aids. You'll probably get given a 'softie' insert initially (like a little pillow!), but I found it rode up as you moved about. The proper sillicone prosthetic is heavier and sits more nicely, but I found that I needed higher tops as you're missing cleavage and the gap feels obvious, especially when you lean forward. The mastectomy bras also tend to be fuller than other bras. I had reconstruction (back flap) 3 years after my initial mastectomy and am really pleased with it. I didn't bother with creating a new 'nipple'. Ain't no-one but my husband gonna see it! M&S also do some slip on bra vest/crop top type things, which I used after my WLE this time around to give gentle support. I'll probably revert to these again during radiotherapy if I get sore. http://www.marksandspencer.com/2-pack-non-wired-crop-bras/p/p20138158?image=SD_02_T33_7001A_YZ_X_EC_...
I'll be back to work in 2 weeks, but will do a kind of phased return - basically, I'll be sensible and do what I can, and my boss trusts me to do the right thing. I'll do short days during radiotherapy, which starts on 10th May.
Best wishes to everyone, especially those moving on to the next stage. xxxx
Oh macneech you have made me laugh so much with the Dennis healey eyebrows and hair ! Great comments!
i was brave yesterday had to go into work for another sick review they do them every 4 to 6 weeks (do others have this harassment?) and when I saw the girls I work (ed) with I showed my head !
The look good course is fab . I also attended the breast care workshop in Solihull west mids that was good too but a shame so far away as too far to remain in contact with people who attended.
Good luck to everyone I too got oncol appointment Friday to discuss the T part of chemo on Tuesday will be interesting macneech if I have Gcfs as they are not too keen here have had 3 doses for last 2 cycles but only because I asked as was neutropenic and chemo was delayed.
kitty75 the reiki is at a local cancer support group I don’t hear from the bcn at our hospital think they are really busy.
hugs to all xxxx
Well - went to the Macmillan 'look good feel better ' session this afternoon.Good for a laugh if nothing else!Came out plastered in make up(applied by oneself)!! Lovely big mirrors but difficult with fuzzy/ drippy eyes,some Dennis Healey eyebrows and gappy eye lashes.Should be grateful I suppose for some hair hanging on🤔(still got some on the wrong places though which is annoying).
It was interesting how some ladies there were hairless,some had very convincing wigs.One lady promptly took her wig off at the table when we sat down - she says she struggled to keep it in place,we were able to give her some tips.It was a bit like the Specsavers advert (long haired guinea pig in this case)-lol. I don't have the courage to de- wig in public yet.
Came away with a lovely bag of goodies😁.
Macneech that is great news about the shrinkage of your tumour 👏👏👏
Welcome Annie - hope you find the thread useful for support - I have .
I feel for all you ladies coping with all this and also having your young children to look after - tough times but sure you are getting lots of love from them to help you cope.
My baby ( she’s 26 lol) has been home for a couple of days and that has certainly helped to lift my spirits.
Heart scan this week for me to check effects of chemo on it 🤞it won’t be too much.
Have a good week everyone xxx
Welcome Annie, - hopefully you will find like the rest of us that posting on this site helps, even if it is just to have a good rant or just to share the horrible bits we are going through.
I too am a nurse - a palliative care nurse of all things.Really scary being on the other side!
Like you,I am doing Fec T.Have had a 8cm grade 3 tumour that I didn' even feel.Had onc review today following 3rd Fec - tumour shrunk to 3cm - whoop whoop! 1st T weds - again like you bit scary not knowing what side effects I might experience but know like our fellow Feb chemo girls - we will get through it!!
I have got to have right mastectomy and axillary clearance - hopefully early July,then radiotherapy so we can discuss mastectomy bras nearer the time.
Thinking of everyone having chemo this week - have my survival kit ready for T. Loratidine,Brufen,Lansoprazole,(double steroids- urgh!),Been told I shouldn't need Emend this time as shouldn't feel as sick 😕.Will have Ondansetron ( prunes seem to work for me ).Have Aveeno moisturizing cream.Oh and 7 days of Gcfs injections for me - had 5 days previously.
Big hugs to everyone xx
Hi everyone- all the things we write about show our shared concerns and problems on this horrid journey.
Jude - bras 😬 I am looking at post surgery bras ready for after my mastectomy- a few months away yet but having a look - apparently if you are a large cup size like me you obviously don’t like pretty bras - at least in M and S - it’s v annoying. Will have to have a look online - trouble is I like to try them on as you can never be sure of sizes from shop to shop.
Macneech- drippy nose, drippy eyes here too - then sore nose from coping with wiping drippy nose .
Chrissy - hope you get your acid stomach sorted - I take omeprazole too and find it really good .
In terms of mental well being I think I am finding it harder and harder, feeling low and really fed up with it all at times - but yes the sun does help. Chrissy I hope you manage to get some support- I also phoned my local cancer support centre as they offer counselling and have managed to get an appointment this week. Never tried counselling before , a bit nervous about it but hoping it will help me.
Have a good week everyone- I feel almost back to normal ( day 11 of round 4 - 1st round of Docetaxol, Pertuzumab and Trastuzumab)
Take care x
Glad you have had a better time this time round Jude.First cycle of Docetaxol for me weds - who knows what to expect as we all have such differing experiences 😕.I am just bothered by the drippiness at the moment - drippy eyes,drippy nose - strange that this seems to come on at the end of my Fec cycles ?!
Haven't had my mastectomy yet but seems frustrating that many women seem to struggle to get bras/ prosthesis that look half decent for shape.
Hope everone else is ok and coping - been a bit quiet on here last few days.Looking forward to the sunshine coming - hopefully will lift our moods 😎🌻
Morning all...day 10 after 4th cycle EC. Ondansetron definitly helped this time, no shakiness, min nausea or feeling the need to eat every few hrs, just the tiredness that kicks in. Mentally seem to be struggling a bit - so desperate to just feel normal...no headache, no horrible taste, no gut issues...just normal. I know it will come but so unbelievably fed up witht the whole thing now.
Halfway through chemo now - due to start Palitaxel 27th april. Weekly sessions doesnt fill me with joy but maybe something to aim for each week will make it go quicker...or just feel like it will never end...who knows. Looking forward to the sunny weather expected but now realise i need to look at my wardrobe. Bras are the bain of my life with being on the large side but even more so now - there really is very limited availablity post mastectomy. Ive just been wearing a softie or mostly nothing at all so really must look into getting a prosthesis as nothing sits straight now...one up and one down. Although so nice not to have to think of long hair in hot weather occured to me that little beanie hats will not be very comfortable - my head sweats very randomly as it is ! Oh the joys of this bloody journey....
Hugs to everyone xx
Happy Anniversary Wee Burd - glad you are all sorted - stay well.
Just read this article,- quite interesting
Might have a chat to my oncologist about it next time.
Hope everyone is OK and staying on top of things - Miss Green hope those tummy troubles have eased - that was not a nice experience for me. Also had terrible backache last night - Docetaxel really does keep throwing a curve ball.
Finding I am good in the morning but tired in afternoons- getting a bit of knitting done-am knitting angels for local church for Xmas would you believe - passes the time.
Waiting for sunshine now so can enjoy some time outdoors.
Good night - sleep well xx
Hi Wee Burd, hope it has gone ok today, the only advice I would give you about starteing T after FEC is to rest, I found it harder on the T but I think I was trying to do to much. Keep the fluids up and rest as much as you need, eat healtthy, even if you cant taste it and be good to yourself.
Good luck x
Hope everyone is doing better today.
Wee Burd, good luck with your appointment and fingers crossed your bloods are OK.
Bibi, if you cant moan on here then who can you moan to, it does you good to get your feelings out.
Miss Green, are you on TC? I had my 3rd yesterday, at work today but starting to feel really tired so will probably take the rest of the week off, thought I would be OK as its 4 weeks since my last one due to Easter but I definately think ther tiredness has kicked in sooner. How many are you having?
Take care everyone, each day that goes by is a day closer to the end.
Morning Wee Burd 🤞for you - hope you get through it OK xxx
I have woken feeling quite normal again - sorry for the moans just felt so bad the last couple of days 😏
OK going to be positive today and tackle the ironing lol 😂 so much rain here got to do something useful ☔️ ☔️ ☔️
have a good day everyone xxx
Oh Miss Green I feel your pain - sending you hugs - was all fine for 2 days after chemo on Thursday and hoping it would be easier this time . Totally flattened by nausea and tiredness yesterday- first time I’ve not made it out of bed. Today has been slightly easier but really tired, and the tummy troubles are horrendous. Admitting to also feelings no sorry for myself ☹️
Hoping tomorrow will bring a bit of relief - hope you feel better soon- we can do this 👊💪 xx
Well, I’m on the same regime as you...but have been told I will need 6-8 cycles...am just finished my third but although it’s my week off, the side effects are unpleasant. Have an mri soon...just praying it’s workingxx
Thank you for all your tips Moijan 😗Interesting that you are having it weekly for the summer and I am just having 3 doses 3 weekly??
Am already booked into the look good session - looking forward to it.
Week three for me currently so feeling ok however still struggling with wearing my wig - I long to get home if I have been out to have a good head scratch and put my woolly pom pom hat on😣Have bought a couple of sun hats/cap - anticipating some sunshine soon but still not sure if will wear out in public 😕
Hope everyne else is doing ok xxx
Hi Mackneesh,I’m om taxol weekly for most of the summer.....I find day 1 and 2 are ok(don’t overdo stuff on day. 2 as I did and it was fatal...take it easy)
I find I’m queasy most of the time, but not sick, was advised to graze on tiny snacks all the time and that does seem to work...was given drugs which would help, but then can’t drive so have mostly avoided those.
Sore mouth - this comes in on day 3, but I use mouthwash given to my by the hospital now and rinse mouth every time I have eaten food and at bedtime.
bowels, yes tendency to get constip, but I now do try to drink about three litres of water a day, intake 500 mls bottles with me and try to keep track...also I drink jugs of decaf tea rather than mugs,....just to keep count.and bran at breakfast seems to work..
sore fingers, dry skin, I use aveeno at least twice a day.
Someone mentioned losing eyebrows...hasn’t happened yet on taxol, but it did on Eribulin...I went to a macmillan...’look good feel better course’
these are run by beauty therapists, who give you a BIG bag of famous makes , makeup and demo exactly how to replace eyebrows with make up....really good session to do! All free.
Very best wishes to you Mackneesh and everyone else on Taxol or other....there are food guides for this drug which I posted before....they say,, no caffeine any source, for one thing -will see if I can find them
Thinking of you Bibi - am a week or so behind you for treatment and have my first dose of T on the 18th.Anxious about how this might affect me.You had an extremely long day.As far as I am aware I am not having any other drugs like you.I am due to have double dose steroids and to start the day before.I think this is to reduce the chance of reaction.I am glad although long,your day went ok without any hitches.
Worried about the nails discolouring or dropping off,puffy face,losing my eye brows and lashes- still have them currently!Not sure personally about the gothic nails. Is this just a way of covering up the discoloration so you feel better - does letting the sun get to them really make this worse??
Hope everyone else is doing ok.I am on my good week now - whoop whoop.Been out shopping this morning and did some gardening this afternoon 😁🌻🌱
Had a groggy time this cycle however with gastric symptoms- colic/ gripes,raw stomach feeling.Back on the Lansoprazole.Wonder if this is something yo do with the chemo taking the lining off stomach/bowel??Better today- managed a choc brownie in Costa!Might be able to enjoy my Easter eggs . Little pleasures mean so much☕🍰