Member
Posts: 141
Registered: ‎16-05-2014

Re: February Chemo Starters 2018

Hi Macneech

The op seemed to go well. Off work recuperating. Get results next week.

I haven't had my hair cut yet, 22 weeks since I stopped chemo, and it's gone a little curl. Good old chemo curl lol.

Xx
Member
Posts: 65
Registered: ‎21-01-2018

Re: February Chemo Starters 2018

Hi Miss Green - I hope your surgery went ok.

Chrissy - how did you get on with your moving forward course?I was interested in this but our nearest one for Portsmouth is Kent!

My hair like you is curly on top and very unruly😞I am still wearing a wig at work as can't do a thing with it!! I have dyed it a couple of times with no I'll effects.

Hope everyone else is doing ok xx

Member
Posts: 141
Registered: ‎16-05-2014

Re: February Chemo Starters 2018

Hi Chrissy

Sorry just re read my last post and realised it wasn't clear. Sitting at the hospital as I type this. Need to get a wire inserted into my boob to help surgeon as the remaining tumours cannot be felt. Got to wait around until this afternoon for the op.

I am so pleased your Occupational Health meeting went well and now your boss will have it in black and white that you need to take your time in getting back to work full time xx
Member
Posts: 92
Registered: ‎17-12-2017

Re: February Chemo Starters 2018

Hi miss green omg you have been mucked about I hope you get it done soon let me know if you get a date.

I had occ health doctor last week who was brilliant and so understanding she did a report to management and expressed I shouldn’t work full time when I go back for at least 4-6 moths which is totally appropriate as I felt my manager doesn’t get it . I actually said to her are you trying to kill me !!

yesterday I had my sick review which for the first time went well and my return date is beginning jan to use all my AL for phased return then the rest of AL TIL end of financial year so the maximum I’ll be working is a 2 or 3 day week then I’ll do flexi working 3 day week for 6 maths then reevaluate. I feel much happier with this.

 

have you still got many symptoms? My hair is ever so thick and on top curly I want to put a wash in hair dye but worried if too soon ? Going to a living beyond course day Monday at local hospital and I’ve been using rehab gym at hosp it’s really making me stronger and helping fatigue.

hope you are getting on ok .

hello to everyone else keep strong 💪 xx

 

Member
Posts: 141
Registered: ‎16-05-2014

Re: February Chemo Starters 2018

Hi Chrissy

No the op has not been cancelled but my normal BC Consultant isn't doing it as he's now off this week due to a family emergency. Yesterday I haf a hospital apt for me to meet the new consultant. He seems nice and I am back to feeling okay. Bit of a melt down when I first heard. So fingers crossed for tomorrow xx
Member
Posts: 92
Registered: ‎17-12-2017

Re: February Chemo Starters 2018

Hello macneech
Lovely to hear from you . I would say it’s the nerves causing the pain I have the same thing and it hurts so much I can’t wear bras or lie on that side . Time will help . Great news you back at work I will return new year tbh you sound like your trust are supportive I’ve found I’ve had to battle all the way with mine. But saw a lovely occupational health doctor who documented recommendations so fingers crossed.
I agree with you the year has flown and I’ll be due my yearly mam soon too !!

Just wanted to say good luck miss green for your operation I hope it hasn’t been cancelled again .

Good luck to everyone else hope you starting to feel a little more normal although I do feel life has changed a lot for us all . I think moving forward is the next stage of this rollercoaster ride xxx thinking of you all .
Member
Posts: 65
Registered: ‎21-01-2018

Re: February Chemo Starters 2018

Hello Ladies, it's good to hear how we are all still soldiering on.

Jude - I hope all is ok with your tender spot.I think we all have a right to be paranoid!

I have healed up following my radiotherapy burns but am still tender under my armpit.Not sure if it is to do with the nerves tuning back in.My implant is very "squidgy" - hoping for a permanent implant next Spring.Didnt you have an implant Wee Burd? How are you getting on?

I am back to work 30hrs instead of full time for a while to use up some accrued annual leave ( something good about working for the NHS).

Don't think I have suffered fatigue from the rads however I have had some afternoons when my eyes are sooo tired.I have been surrounded by family with colds and touch wood so far I haven't caught anything.I have probably spoken too soon - my immunity must be at it's lowest in years😞.I have had my flu jab ( another bonus from the NHS) - so 🤞.

I can't believe how quickly this horrible year has gone - it will be time for my yearly repeat mammogram come Jan/Feb!! But like you Jude - I am more worried about recurrent problems on the right side than the left😔

I have been told the paranoia does settle the further along we go.

Big hugs to you all.xx

 

Member
Posts: 92
Registered: ‎12-02-2018

Re: February Chemo Starters 2018

Miss Green you were right to rant about the uncertainty. It's the last thing you need from your doctors. Hope the treatment is now back on track.
Chrissy I hope that the OH assessment goes well. I found my phased return worked well. I was surprised how tired I got at the start but was able to build up the hours over 6 weeks. So much depends on having a supportive and understanding employer. I was lucky with that and hope you are too.
Flora my hair is coming in curly too! I have never had curls before and don't quite know how to deal with them! Sadly it's also mostly grey. It's growing much more slowly than it used to. I'm hoping when I finish the herceptin treatment it will grow a bit more quickly.
My husband and I have just had a lovely holiday - a week in the Trossachs with clear cold weather and lots of fresh air. It has given me a boost as I was beginning to feel as if my energy levels were dropping again and now I feel quite refreshed and ready to be a bit more active.
Member
Posts: 428
Registered: ‎01-01-2010

Re: February Chemo Starters 2018

Hope today’s appointment with OH goes well today, Chrissy. Are you expecting to be put on a phased return? Does that worry you?

I’m currently waiting for an appointment back with my surgeon’s clinic, as I have a tender spot on my collarbone that is worrying me. Could just be a rads hangover, or maybe the dog did stand on me and bruise me (but I don’t remember it and it’s been sore for a few weeks), or maybe just paranoia, but as soon as I called the BC nurses, they said they’d put me in for clinic. So glad they take it seriously. I’ve told my husband but no-one else. Not sure when the appointment will be for yet.

Ovary removal looks like it will be in January.

How is everyone’s hair growth? Mine has done the typical and come back curly. My natural colour has caught everyone by surprise - we’d forgotten how dark it is naturally! I now have white wings at my temples though!!!

Member
Posts: 92
Registered: ‎17-12-2017

Re: February Chemo Starters 2018

Oh miss green that is terrible you rant to them they have messed you about xx fingers crossed for 8th . I haven’t got occ health til 1st Nov so know more then x good luck xx
Member
Posts: 141
Registered: ‎16-05-2014

Re: February Chemo Starters 2018

Hi all

Hope you're all feeling okay?

Maccneech - I hope your skin is getting better.
Chrissy - hope Occupational Health were helpful and understanding.


My WLE operation has been moved to the 8th and my BC Consultant put me on the wrong list, someone elses, and he wants to do the surgery himself.

Lost my emotional cool at my Oncology appointment last week which resulted in the BC Nurse booking me in to see her to go over my concerns it really helped.

Just want to get off this cancer treadmill now.

Hugs to all

X
Member
Posts: 92
Registered: ‎17-12-2017

Re: February Chemo Starters 2018

Hello everyone hope you are all keeping well.

i just wanted to say to miss green good luck with your WLE I hope everything goes well and you have a speedy recovery.

Im finally feeling stronger and due to see occupational health soon to return to work as I go onto no pay soon .

i wish everyone the best of health and good luck with everything xxx

Member
Posts: 148
Registered: ‎22-01-2018

Re: February Chemo Starters 2018

Hi everyone- oh macneech sorry to hear your skin has reacted so badly - hope you recover soon.

I finish my rads tomorrow- had a slight delay as machine broke one day - you are right Chrissy it has been a long hard year - I’m feeling worn out and can’t wait to ditch these long daily drives to hospital. 

I haven’t had any big skin reaction to rads but am getting nervous now that it might still happen.

I still have the 3 weekly Herceptin injections for a while yet (12 more) so will be having associated heart scans and meetings with oncologist so won’t feel like I’m at the end till that is completed but obviously a lot less active treatment going on. In a way going through treatment has felt secure because you know they are doing something and monitoring you closely, finishing it and then not getting monitored will be a big step and I feel I will need to build my confidence up to feel ‘normal’ again. I’m wondering if other people will appreciate that and not just think my treatment is finished and everything is the same again. 

Take care all xxx

Member
Posts: 92
Registered: ‎17-12-2017

Re: February Chemo Starters 2018

Hi macneech

im sorry to hear what has happened to your skin despite all your hard work using creams etc that doesn’t seem fair. I think you are right about paranoia it is really hard and I too find it hard switching off . It makes you wonder if it is a cost cutting exercises to not offer scans. I hope work goes ok for you try not to do to much. Hello to everyone else hope you are all coping ok and that you are starting to feel a little better it’s been such a long year ! Xx

Member
Posts: 65
Registered: ‎21-01-2018

Re: February Chemo Starters 2018

Hi everyone - sorry to hear that some of us are still struggling.I have felt a bit sorry for myself too with my skin coming off following rads.Finished mine Mon week ago and all was going fine until last weekend.Red,blistered and sooo itchy all over my boob and into my armpit.My armpit has completely de - skinned,is weepy and really sore.l have been given non stick sponge dressings which are difficult to keep in place.

I creamed routinely and used Sanex in my bathwater so wasn't expecting such damaged skin - happy days!

I am on Tamoxifen - very stiff in the mornings and still getting hot flushes but not as bad.I have read a lot about ladies suffering different side effects with different brands so maybe a different brand of Letrozole Bibi is worth a try.

I am back to work - gradually increasing my hours trying to be distracted from the paranoia of reoccurence😚😣.I haven't been reassured by the doctors when they say they won't do routine scans unless I am symptomatic. It will be too late then! I didn't feel my lump the first time round.

Hey ho - I have been told it gets easier with time.

Thinking of everyone.xx

Member
Posts: 148
Registered: ‎22-01-2018

Re: February Chemo Starters 2018

Thanks for your replies everyone - I feel so much better today - think Im just going to keep a diary of what’s happening and see if it I can spot any patterns. Only 6 more rads to go now so hopefully can soon eliminate that from possibilities. The Herceptin injections are every 3 weeks and I have 12 more to go so hoping it’s not that , but also hoping it’s not the Letrozole as I’ll be taking that for years ! But if it is that Inwill try a different brand like you suggested Wee Burd. Sorry to hear you are not feeling so good Christie - hope you can sort it out. 

Nearly the weekend - looking forward to not having to go to hospital for 2 days . Have a good weekend everyone x

Member
Posts: 141
Registered: ‎16-05-2014

Re: February Chemo Starters 2018

Hi Chrissy68

Sorry for the late response. I have been on a well deserved holiday.

Glad your hats been getting some use. Yes in 2014 and 2017 my recurrances were both in my reconstruction. Just unlucky I guess or maybe lucky as I found it.

I agree with you they should teach it in school.

I worked a few days in between each chemo cycle and since my last cycle in June I have been in work everyday with the exception of hospital appointments and annual leave. I started working around 4 to 5 hrs each day and then built it up to full time by having shortened lunches. I am meant to be at work for 8.30 but don't get there until 8.45 as it means I can get a later train. Getting there on time means getting a train 50 min earlier. I do like my sleep.

Xx



Member
Posts: 92
Registered: ‎12-02-2018

Re: February Chemo Starters 2018

Hi Bibi you're right to rant and where better than to people facing the same sort of worries! Sending hugs and hoping you get to the bottom of what's causing the nausea. I was okay on radiotherapy other than feeling tired and then had the burning about 10 days after the end which was really uncomfortable for about a week.

Have you checked what the filler/binders are in the letrozole tablets? If there's something like lactose in them that could affect your tummy. Maybe a different brand would be better for your insides? Fingers crossed that things improve soon.
Member
Posts: 63
Registered: ‎09-11-2017

Re: February Chemo Starters 2018

Hi all

Bibi - i've had 8 herceptin injections so far but no tummy troubles. Looking at the side effects it sounds very much like the herceptin might be causing it but so difficult to know sometimes. I have a constant runny nose and  joint pain especially knees and fingers. Started on Ramapril as BP too high and that causes an irritating cough  which combined with the runny nose makes me sneeze - feels like a never ending cold ! 

Also on Tamoxifen so just the hot flushes and night sweats although i have noticed they arent so intense if i eat well and not too much sweet stuff. I only had 5 days of RT (reduced as in a trial ) but can sympathise with the boob redness - it became quite sore and tight after i finished. Pilates is helping to stretch it all out though.

Chrissy - sorry to hear you are feeling rough. Do you need to go back to work for financial reasons ? I couldnt decide how long to stay off but decided just to throw myself back into it and see what happens. They have been fab and just let me do whatever but actually i feel pretty good. The herceptin injections are 3 weekly and pretty thick so can be a bit stingy but they give them over a few minutes so not to bad.

Looking back on everything i feel the chemo was pretty easy - just feel like all these side effects albeit minor are just never ending. Have been looking into taking Turmeric/Curcumin - anyone had any experience of it or taking any other supplements ?

Member
Posts: 92
Registered: ‎17-12-2017

Re: February Chemo Starters 2018

Hi everyone bibi you are  allowed to rant I finished my rads 2nd aug but past few weeks been getting bad side and chest pain that it’s keeping me awake at night . Bibi everyone is different so don’t give yourself a hard time. After radio I had bad reflux and had to have a gastroscopy which was vile . I still feel so tired and have such aches in my legs since treatment . It’s 8 weeks since I finished treatment and don’t feel much better and worry that I need to get back to work . How often are the herceptin injections? Is it painful ?