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February Chemo Starters 2018

622 REPLIES
Member

Re: February Chemo Starters 2018

Fantastic news Miss Green! What a good start to the New Year. Onwards and upwards!
Member

Re: February Chemo Starters 2018

Hi again.

I had a hospital appointment today. It was 2.5 hrs late and only lasted all of 10 min max. However, I'll forgive them as they confirmed the 2nd WLE was successful so there's NO cancer in the surrounding area. Just have a CT scan and Onc appointment in 5 weeks to go through before they can say "no evidence of disease". Got my first Post Chemo hair cut today as well.

Feeling happy

XX
Member

Re: February Chemo Starters 2018

Happy New Year ladies. Hope you're all okay and had a fabulous Xmas and New Year xx
Member

Re: February Chemo Starters 2018

Happy new year wee bird hope you had a good and everyone else xx
Member

Re: February Chemo Starters 2018

Happy New Year to you all. Wishing everyone good health and happiness in 2019.
Member

Re: February Chemo Starters 2018

Hi

Wee Burd it most definitely sounds like you had a better day than last year. Well deserved too.

Macneech - that's a hard choice for you to make. I chose a Diep back in 2003 and just had enough tummy fat for it. Mine was done at the same time as my Mastectomy. I did need a little lipo after a few months as it was too big but I've never regretted having done. Take your time, if you can? And ask to see photos of the surgeons work. I didn't have the luxury of time but my surgeon showed me photos and it helped me realise I'd made the right decision. Good luck with whatever you choose.


Chrissy - my family and friends are also shocked we don't get regular scans. Because I've had two recurrences now I asked whether my boob would now have regular ultrasounds? NOPE was the response so again it will just be down to my vigilance. It doesn't seem right especially as they didn't show on CT scans. The scan I am due in Jan/Feb is for lungs and chest. Too be honest I want a full head to toe won every 6 mths and I think all cancer patients would.

Like Wee Burd said- thanks for all your support this year. It's trully helped xx
Member

Re: February Chemo Starters 2018

Hi All it's good to hear from you. We have had a rough year. I had my surgery a year ago today and it seems like a lifetime ago. Had a much better day this year with a Christmas quiz and raffle at work, went to my circuits class and then went to the pub quiz tonight!
Miss Green I hope that the surgery has been successful this time. It all sounds quite hopeful. Macneech maybe there are other forums on here that can help you decide what's best to do.
I've been for manual lymphatic drainage for the lymphoedema in my breast and been shown what to do for self care. It seems to be helping although it's not gone away yet.
I hope you all have a peaceful and stress free time over the festive season and wishing all of us the best of health for 2019. It's been a hell of a year and I'll be glad to see the back of it!
Thinking of you all and thanking you for all the support ❤❤
Member

Re: February Chemo Starters 2018

Hi macneech

its horrible to not have any scans unless symptoms when I tell friends this they don’t believe as people think you would have a scan yearly ! So I know how you feel about that.

i had an implant at time of surgery ( mastectomy) which is amazingly 1 year ago tomorrow. I agree with you it’s hard to make decisions. I think looking back I didn’t do research as I should have asked for an expander but wasn’t offered. As a result my SNB showed lymph node spread and then I had to have radio so yes I run the risk of capsulation now.

A lady I met also had implant but she is bigger breasted than me and tbh she’s had uplift other side and hers looks brilliant where’s as I am a lot smaller and I feel it just sits on my chest and is rigid . So I would take that into consideration as no one told me that when I had it done .

i can’t have uplift or anything else now for over a year as I won’t get sick pay . It’s annoying as I would like to just get things sorted now! Good luck with your decision and make sure you research it all . I have since found a reconstruction group which I go to and have learnt a lot . Wish I knew about it before perhaps there my be something like that near you x

Member

Re: February Chemo Starters 2018

Hi all- I hope you are all going along ok.Miss Green - fingers and toes are crossed for you Good that you are having repeat CTs atleast they will hopefully be reassuring.I have been told that I won't get any further investigations on my affected side unless I have symptoms🤔

I had my appt with a plastic surgeon today - I came out very confused as I thought I would have my temporary implant transformed into a permanent one.It seems I have a choice of a Diep ( I haven't got much fat so I could work on that over xmas!) But I might have to have 2 more ops after to get the shape right.Or I could have an implant that comes with long term difficulties/hardening but will need 2 ops here as well ( needing a saline filled skin stretcher first).I hope the surgeon would say what he thought would be best for me but he has sent me away to think about it - very confused!! Any advice???

Wishing everyone a Happy xmas and hopefully a much better 2019. Xx

Member

Re: February Chemo Starters 2018

HI Miss miss green lovely to hear from you and I’m so glad you’ve had surgery . Let me know how margins go keeping everything crossed for you . 

Hope everyone has a lovely Xmas. I’m back to work 4th jan dreading it and would rather retire but I’m too young ( but don’t feel it now ) 

 

HAPPY CHRISTMAS XXX

Member

Re: February Chemo Starters 2018

Hi Ladies

How's everthing going with your radiotherapy, hair growth, lymphedema etc? Getting there I hope.

Had the re-excision of my Wide Local Excision yesterday. Pretty much slept from 8.30pm to 7.30 am this morning. Still feeling tired and now the anaesthetic has worn off I feel uncomfortable but that's to be expected. At least this time I don't have to worry about having a drain in. Now just the dreaded 2 week wait to see if the clearance is good. Last time they got 0.8 of a millimetre and they need 1mm. Who new the margin only had to be that little?

Also, this week I have had an appointment with Oncology. The apt went well. Was worried I'd need more chemo as tumours that were removed 6 wks ago were grade 2 & 3 but I don't. Having a CT beginning of Feb which will be about 6 mths since my last one and I hope I can finally say Woo Hoo "no evidence of disease".

Wishing you all a fabulous Christmas and New Year. I think we have bloody well deserved it.

Xx


Member

Re: February Chemo Starters 2018

That's my hair from before the chemo took effect! I had just had it cut from shoulder length. It got really thin and patchy during the treatment. It's coming in quite thick again now - and also surprisingly curly! - but mostly grey. I'm going to get it coloured again on Tuesday as I don't like the way it has aged me.
It's reasonably easy to add a photo on here. The instructions were quite easy to understand even for a technophobe like me!
Member

Re: February Chemo Starters 2018

Yes - thank you Wee Burd I think I will.I noticed your picture - all that hair! Mine is similar but still unruly.I have had 2 tiny trims to try and get some control.I am still wearing my wig out and to work.

Was it easy to get your picture on here? I  will have a go. X☺

Member

Re: February Chemo Starters 2018

Hi Macneech I didn't have an implant and don't need reconstruction - my boobs are slightly uneven but not so much that it's noticeable when I have my clothes on. Maybe that will change after the manual lymphatic drainage if the swelling goes down!
I hadn't realised that radiotherapy could give me swelling either. I also hadn't realised that it was classed as lymphoedema- I had thought that just affected the arm. Probably someone explained it at some point but it didn't stick in my head!
If you've got the option of massage treatment it's probably worth taking up even if it's just for the relaxation.
Member

Re: February Chemo Starters 2018

I forget Wee Burd - did you have a temporary implant like me? I seem to be getting more tender and I have a bit of swelling by the evening. I thought the pain is from where the nerves are tuning back in - it was numb all across my implant ,under my armpit and around to my back before.I thought the swell8ng was something I would have to put up with- lymphodaema.I didn't appreciate it could still be an after effect of the radiotherapy. 

I had some muscle twitching in my shoulder towards the end of the treatments which was annoying but that's gone now.

I wonder if I should make use of my  Haven sessions and have some massage/lymphatic drainage??

I have had my radiotherapy follow up but didn't achieve much from that.I asked the oncologist about recurrence and he suggested I looked at the Predict website on line.This was a bit scary and didn't take into account the radiotherapy😞

I  have had to refer myself back to the surgeons for permanent reconstruction. My BCN sorted an appointment for this really quickly - (next Thurs) but I appreciate they won't do any surgery until atleast 6 months after the rads.

Hope everyone is doing ok.Thinking if you Miss Green - we have all become expert patients! Xx

 

Member

Re: February Chemo Starters 2018

Hi Miss Green, hope the next surgery goes well and with a quick recovery time. It sounds like it's all hopeful anyway.
I did get my mammogram results back - all clear thank goodness although there are changes due to surgery and oedema from the radiotherapy. The BCN is going to refer me to see if I would benefit from manual lymphatic drainage to reduce the swelling. It's a relief to know there's something that might be able to relieve it as it's been getting increasingly tender.
Member

Re: February Chemo Starters 2018

Hi miss green I will keep fingers and toes crossed for you and hope it’s a day case too. Thankyou for letting us know x do you know when the next op will be xx
Member

Re: February Chemo Starters 2018

Hi lovely ladies

Got to have another operation 😔. They cut out the 2 remaining cancers that chemo couldn't shift cancers which is good but they didn't get the clearance they need. Got 0.8 of a millimetre rather than the 1mm they want. Who knew that's all they need to start with? This time round it will be less invasive so no guide wire needed and doubt I need an overnight stay. I'll pretty much be up for anything to try and stop me having a 3rd recurrence.

WeeBurd - have you had your results back yet?

Xx
Member

Re: February Chemo Starters 2018

Hello everyone hi miss green hope you are doing well and recovering .let me know how your results go.

 

macneech I hope work is going ok for you. My hair has got really thick and so dark I looked like action man at first but it’s looki ng really scruffy looking now but I don’t want to cut it !.i have bought a wash in out /dye but worried to use it .

 

The moving forward course was very good and worth going to. Mine was a distance away and I travelled on the train there took me about 1.5 hours but would have took much longer to drive . In fact next week I’m going to the same place to meet the ladies and have lunch .

 

hi weeburd I think it’s normal to feel how you are. I will be a year on 21st of dec and it’s very emotional. I went to my cancer centre yesterday and have met a lovely bunch of ladies and listening to them makes you realise that most people feel anxious about reoccurrence. In a way I find it reassuring knowing I am not going mad have you got a group you could join as talking to others really does help. Unfortunately I think a lot of family and friends think you should be back to normal and get on with it but that is so difficult sometimes but being with those who truly understand does help immensely. 

Thining of you all xx

Member

Re: February Chemo Starters 2018

Hi everyone. Glad the surgery seems to have gone well Miss Green. Here's hoping you have a good recovery.
I've had a bit of a trying week as I thought I had felt a change in my breast and the skin was looking a bit odd. Phoned the BCN and was told to come into the breast clinic. Saw the consultant and he reckons the changes are still the effects of the radiotherapy that finished at end of July. I was so relieved. Was sent for a mammogram and waiting for the results.
I thought I was recovering pretty well but it just sent me back to the start! It's just over a year since my diagnosis and it's been quite an emotional time. How are you all coping these days?