17-04-2018 08:55 AM
Macneech that is great news about the shrinkage of your tumour 👏👏👏
Welcome Annie - hope you find the thread useful for support - I have .
I feel for all you ladies coping with all this and also having your young children to look after - tough times but sure you are getting lots of love from them to help you cope.
My baby ( she’s 26 lol) has been home for a couple of days and that has certainly helped to lift my spirits.
Heart scan this week for me to check effects of chemo on it 🤞it won’t be too much.
Have a good week everyone xxx
16-04-2018 10:20 PM
Welcome Annie, - hopefully you will find like the rest of us that posting on this site helps, even if it is just to have a good rant or just to share the horrible bits we are going through.
I too am a nurse - a palliative care nurse of all things.Really scary being on the other side!
Like you,I am doing Fec T.Have had a 8cm grade 3 tumour that I didn' even feel.Had onc review today following 3rd Fec - tumour shrunk to 3cm - whoop whoop! 1st T weds - again like you bit scary not knowing what side effects I might experience but know like our fellow Feb chemo girls - we will get through it!!
I have got to have right mastectomy and axillary clearance - hopefully early July,then radiotherapy so we can discuss mastectomy bras nearer the time.
Thinking of everyone having chemo this week - have my survival kit ready for T. Loratidine,Brufen,Lansoprazole,(double steroids- urgh!),Been told I shouldn't need Emend this time as shouldn't feel as sick 😕.Will have Ondansetron ( prunes seem to work for me ).Have Aveeno moisturizing cream.Oh and 7 days of Gcfs injections for me - had 5 days previously.
Big hugs to everyone xx
16-04-2018 07:05 PM
16-04-2018 01:49 PM
16-04-2018 12:32 PM
16-04-2018 12:21 PM
16-04-2018 07:53 AM
15-04-2018 11:29 PM
15-04-2018 11:12 PM
15-04-2018 11:01 PM
Hi everyone- all the things we write about show our shared concerns and problems on this horrid journey.
Jude - bras 😬 I am looking at post surgery bras ready for after my mastectomy- a few months away yet but having a look - apparently if you are a large cup size like me you obviously don’t like pretty bras - at least in M and S - it’s v annoying. Will have to have a look online - trouble is I like to try them on as you can never be sure of sizes from shop to shop.
Macneech- drippy nose, drippy eyes here too - then sore nose from coping with wiping drippy nose .
Chrissy - hope you get your acid stomach sorted - I take omeprazole too and find it really good .
In terms of mental well being I think I am finding it harder and harder, feeling low and really fed up with it all at times - but yes the sun does help. Chrissy I hope you manage to get some support- I also phoned my local cancer support centre as they offer counselling and have managed to get an appointment this week. Never tried counselling before , a bit nervous about it but hoping it will help me.
Have a good week everyone- I feel almost back to normal ( day 11 of round 4 - 1st round of Docetaxol, Pertuzumab and Trastuzumab)
Take care x
15-04-2018 12:34 PM
15-04-2018 11:29 AM
15-04-2018 10:52 AM
Glad you have had a better time this time round Jude.First cycle of Docetaxol for me weds - who knows what to expect as we all have such differing experiences 😕.I am just bothered by the drippiness at the moment - drippy eyes,drippy nose - strange that this seems to come on at the end of my Fec cycles ?!
Haven't had my mastectomy yet but seems frustrating that many women seem to struggle to get bras/ prosthesis that look half decent for shape.
Hope everone else is ok and coping - been a bit quiet on here last few days.Looking forward to the sunshine coming - hopefully will lift our moods 😎🌻
15-04-2018 07:51 AM
Morning all...day 10 after 4th cycle EC. Ondansetron definitly helped this time, no shakiness, min nausea or feeling the need to eat every few hrs, just the tiredness that kicks in. Mentally seem to be struggling a bit - so desperate to just feel normal...no headache, no horrible taste, no gut issues...just normal. I know it will come but so unbelievably fed up witht the whole thing now.
Halfway through chemo now - due to start Palitaxel 27th april. Weekly sessions doesnt fill me with joy but maybe something to aim for each week will make it go quicker...or just feel like it will never end...who knows. Looking forward to the sunny weather expected but now realise i need to look at my wardrobe. Bras are the bain of my life with being on the large side but even more so now - there really is very limited availablity post mastectomy. Ive just been wearing a softie or mostly nothing at all so really must look into getting a prosthesis as nothing sits straight now...one up and one down. Although so nice not to have to think of long hair in hot weather occured to me that little beanie hats will not be very comfortable - my head sweats very randomly as it is ! Oh the joys of this bloody journey....
Hugs to everyone xx
11-04-2018 10:45 PM
11-04-2018 09:52 PM
Happy Anniversary Wee Burd - glad you are all sorted - stay well.
Just read this article,- quite interesting
Might have a chat to my oncologist about it next time.
Hope everyone is OK and staying on top of things - Miss Green hope those tummy troubles have eased - that was not a nice experience for me. Also had terrible backache last night - Docetaxel really does keep throwing a curve ball.
Finding I am good in the morning but tired in afternoons- getting a bit of knitting done-am knitting angels for local church for Xmas would you believe - passes the time.
Waiting for sunshine now so can enjoy some time outdoors.
Good night - sleep well xx
11-04-2018 07:22 PM
11-04-2018 06:48 PM
11-04-2018 02:55 PM
Hi Wee Burd, hope it has gone ok today, the only advice I would give you about starteing T after FEC is to rest, I found it harder on the T but I think I was trying to do to much. Keep the fluids up and rest as much as you need, eat healtthy, even if you cant taste it and be good to yourself.
Good luck x