20-04-2018 11:08 AM
Morning everyone - doesn’t the sun lift your mood ? 🌞😍😀
Macneech hope you continue to feel well - I had 2 great days after T and then hit a bad low when steroid high had gone - so take care of yourself xxx
Flora thanks for the reminder about hydration - it really does help .
Interested to know if you were able to get the soft crop bras on easily after mastectomy- could you lift your arm easily to manoeuvre? Heard it’s quite hard to lift arm high so looking at getting bras easy to get on and off and shirts to wear. I will be having a mastectomy in a couple of months - don’t know what they offer at the hospital I’m under so interested to hear about people’s experiences.
Hope your return to work goes smoothly xx
Have a great weekend everyone - I’m off to a college reunion to see my friends from 40 years ago! Should be fun .
Stay well x
19-04-2018 01:01 PM
Hi Flora - glad you are feeling mostly normal and back to work is on the horizon.I have heard that although radiotherapy is easier to cope with it can still be exhausting. Was hoping to work through mine but a long way off to me yet.
Thank you for the advice re mastectomy bras.
So sorry about your pregnancy difficulties - another reason to hate this disease.You are amazingly strong to share all this on here.
I had my first T yesterday and so far feel ok! High on steroids I think.Had an unexpected good night sleep too with no aches and pains yet.Did take cocktail of anti sickness and painkillers plus Loratidine however.Not even a hint of nausea and eating well - not sure if this will continue with steroid drop tomorrow 😞.
Hope everyone else is doing ok xxx
18-04-2018 06:32 PM
Hi Ladies and welcome Annie
Like Miss Green, I've been a bit quiet of late, but more because I feel mostly fine apart from 4-5 days of bone aches after each chemo (which is the T many of you are now moving on to).
I've just had my final treatment, as I only needed 4 of them, as the main aim was to get me onto the herceptin. My first cancer was aged 36 (I'm now 45, and this is a new primary, not a recurrence), but no children. I was trying to get pregnant when I found the lump, but bthe first round of chemo put paid to that, and an urgent, single round of IVF to freeze an egg didn't work.
At today's treatment, they did the herceptin first, and after that as they were putting the cannula in (2 attempts needed), I had a low blood pressure crash. I went woozy, distant, hot and my BP dropped to 97/54. I guess that's what it feels like to faint, although I didn't black out. I came back OK, obs for an hour, drink more water, then they gave me the abraxane (which is taxotere/docetaxel in a fancy format) when my BP came up to 105/67. It was either an allergic reaction to the herceptin (but this was my 4th, so unlikely), or I was dehydrated. So, the lesson is, make sure you drink plenty the day before and the day of treatment! I think I had forgotton that yesterday.
M&S is the easiest source for mastectomy bras. They have quite a range, and they are reasonably priced. You can claim the VAT back on mastectomy bras too, as they are medical aids. You'll probably get given a 'softie' insert initially (like a little pillow!), but I found it rode up as you moved about. The proper sillicone prosthetic is heavier and sits more nicely, but I found that I needed higher tops as you're missing cleavage and the gap feels obvious, especially when you lean forward. The mastectomy bras also tend to be fuller than other bras. I had reconstruction (back flap) 3 years after my initial mastectomy and am really pleased with it. I didn't bother with creating a new 'nipple'. Ain't no-one but my husband gonna see it! M&S also do some slip on bra vest/crop top type things, which I used after my WLE this time around to give gentle support. I'll probably revert to these again during radiotherapy if I get sore. http://www.marksandspencer.com/2-pack-non-wired-crop-bras/p/p20138158?image=SD_02_T33_7001A_YZ_X_EC_...
I'll be back to work in 2 weeks, but will do a kind of phased return - basically, I'll be sensible and do what I can, and my boss trusts me to do the right thing. I'll do short days during radiotherapy, which starts on 10th May.
Best wishes to everyone, especially those moving on to the next stage. xxxx
18-04-2018 07:47 AM
Oh macneech you have made me laugh so much with the Dennis healey eyebrows and hair ! Great comments!
i was brave yesterday had to go into work for another sick review they do them every 4 to 6 weeks (do others have this harassment?) and when I saw the girls I work (ed) with I showed my head !
The look good course is fab . I also attended the breast care workshop in Solihull west mids that was good too but a shame so far away as too far to remain in contact with people who attended.
Good luck to everyone I too got oncol appointment Friday to discuss the T part of chemo on Tuesday will be interesting macneech if I have Gcfs as they are not too keen here have had 3 doses for last 2 cycles but only because I asked as was neutropenic and chemo was delayed.
kitty75 the reiki is at a local cancer support group I don’t hear from the bcn at our hospital think they are really busy.
hugs to all xxxx
17-04-2018 06:55 PM
Well - went to the Macmillan 'look good feel better ' session this afternoon.Good for a laugh if nothing else!Came out plastered in make up(applied by oneself)!! Lovely big mirrors but difficult with fuzzy/ drippy eyes,some Dennis Healey eyebrows and gappy eye lashes.Should be grateful I suppose for some hair hanging on🤔(still got some on the wrong places though which is annoying).
It was interesting how some ladies there were hairless,some had very convincing wigs.One lady promptly took her wig off at the table when we sat down - she says she struggled to keep it in place,we were able to give her some tips.It was a bit like the Specsavers advert (long haired guinea pig in this case)-lol. I don't have the courage to de- wig in public yet.
Came away with a lovely bag of goodies😁.
17-04-2018 08:55 AM
Macneech that is great news about the shrinkage of your tumour 👏👏👏
Welcome Annie - hope you find the thread useful for support - I have .
I feel for all you ladies coping with all this and also having your young children to look after - tough times but sure you are getting lots of love from them to help you cope.
My baby ( she’s 26 lol) has been home for a couple of days and that has certainly helped to lift my spirits.
Heart scan this week for me to check effects of chemo on it 🤞it won’t be too much.
Have a good week everyone xxx
16-04-2018 10:20 PM
Welcome Annie, - hopefully you will find like the rest of us that posting on this site helps, even if it is just to have a good rant or just to share the horrible bits we are going through.
I too am a nurse - a palliative care nurse of all things.Really scary being on the other side!
Like you,I am doing Fec T.Have had a 8cm grade 3 tumour that I didn' even feel.Had onc review today following 3rd Fec - tumour shrunk to 3cm - whoop whoop! 1st T weds - again like you bit scary not knowing what side effects I might experience but know like our fellow Feb chemo girls - we will get through it!!
I have got to have right mastectomy and axillary clearance - hopefully early July,then radiotherapy so we can discuss mastectomy bras nearer the time.
Thinking of everyone having chemo this week - have my survival kit ready for T. Loratidine,Brufen,Lansoprazole,(double steroids- urgh!),Been told I shouldn't need Emend this time as shouldn't feel as sick 😕.Will have Ondansetron ( prunes seem to work for me ).Have Aveeno moisturizing cream.Oh and 7 days of Gcfs injections for me - had 5 days previously.
Big hugs to everyone xx
16-04-2018 07:05 PM
16-04-2018 01:49 PM
16-04-2018 12:32 PM
16-04-2018 12:21 PM
16-04-2018 07:53 AM
15-04-2018 11:29 PM
15-04-2018 11:12 PM
15-04-2018 11:01 PM
Hi everyone- all the things we write about show our shared concerns and problems on this horrid journey.
Jude - bras 😬 I am looking at post surgery bras ready for after my mastectomy- a few months away yet but having a look - apparently if you are a large cup size like me you obviously don’t like pretty bras - at least in M and S - it’s v annoying. Will have to have a look online - trouble is I like to try them on as you can never be sure of sizes from shop to shop.
Macneech- drippy nose, drippy eyes here too - then sore nose from coping with wiping drippy nose .
Chrissy - hope you get your acid stomach sorted - I take omeprazole too and find it really good .
In terms of mental well being I think I am finding it harder and harder, feeling low and really fed up with it all at times - but yes the sun does help. Chrissy I hope you manage to get some support- I also phoned my local cancer support centre as they offer counselling and have managed to get an appointment this week. Never tried counselling before , a bit nervous about it but hoping it will help me.
Have a good week everyone- I feel almost back to normal ( day 11 of round 4 - 1st round of Docetaxol, Pertuzumab and Trastuzumab)
Take care x
15-04-2018 12:34 PM
15-04-2018 11:29 AM
15-04-2018 10:52 AM
Glad you have had a better time this time round Jude.First cycle of Docetaxol for me weds - who knows what to expect as we all have such differing experiences 😕.I am just bothered by the drippiness at the moment - drippy eyes,drippy nose - strange that this seems to come on at the end of my Fec cycles ?!
Haven't had my mastectomy yet but seems frustrating that many women seem to struggle to get bras/ prosthesis that look half decent for shape.
Hope everone else is ok and coping - been a bit quiet on here last few days.Looking forward to the sunshine coming - hopefully will lift our moods 😎🌻
15-04-2018 07:51 AM
Morning all...day 10 after 4th cycle EC. Ondansetron definitly helped this time, no shakiness, min nausea or feeling the need to eat every few hrs, just the tiredness that kicks in. Mentally seem to be struggling a bit - so desperate to just feel normal...no headache, no horrible taste, no gut issues...just normal. I know it will come but so unbelievably fed up witht the whole thing now.
Halfway through chemo now - due to start Palitaxel 27th april. Weekly sessions doesnt fill me with joy but maybe something to aim for each week will make it go quicker...or just feel like it will never end...who knows. Looking forward to the sunny weather expected but now realise i need to look at my wardrobe. Bras are the bain of my life with being on the large side but even more so now - there really is very limited availablity post mastectomy. Ive just been wearing a softie or mostly nothing at all so really must look into getting a prosthesis as nothing sits straight now...one up and one down. Although so nice not to have to think of long hair in hot weather occured to me that little beanie hats will not be very comfortable - my head sweats very randomly as it is ! Oh the joys of this bloody journey....
Hugs to everyone xx
11-04-2018 10:45 PM