Member
Posts: 135
Registered: ‎22-01-2018

Re: February Chemo Starters 2018

Macneech that is great news about the shrinkage of your tumour 👏👏👏

Welcome Annie - hope you find the thread useful for support - I have .

I feel for all you ladies coping with all this and also having your young children to look after - tough times but sure you are getting lots of love from them to help you cope.

My baby ( she’s 26 lol) has been home for a couple of days and that has certainly helped to lift my spirits. 

Heart scan this week for me to check effects of chemo on it 🤞it won’t be too much.

Have a good week everyone xxx

Member
Posts: 59
Registered: ‎21-01-2018

Re: February Chemo Starters 2018

Welcome Annie, - hopefully you will find like the rest of us that posting on this site helps, even if it is just to have a good rant or just to share the horrible bits we are going through.

I too am a nurse - a palliative care nurse of all things.Really scary being on the other side!

Like you,I  am doing Fec T.Have had a 8cm grade 3 tumour that I didn' even feel.Had onc review today following 3rd Fec - tumour shrunk to 3cm - whoop whoop! 1st T weds - again like you bit scary not knowing what side effects I might experience but know like our fellow Feb chemo girls - we will get through it!!

I have got to have right mastectomy and axillary clearance - hopefully early July,then radiotherapy so we can discuss mastectomy bras nearer the time.

Thinking of everyone having chemo this week - have my survival kit ready for T. Loratidine,Brufen,Lansoprazole,(double steroids- urgh!),Been told I shouldn't need Emend this time as shouldn't feel as sick 😕.Will have Ondansetron ( prunes seem to work for me ).Have Aveeno moisturizing cream.Oh and 7 days of Gcfs  injections for me - had 5 days previously. 

Big hugs to everyone xx

Member
Posts: 3
Registered: ‎24-01-2018

Re: February Chemo Starters 2018

Thank you for your lovely comments!! Glad to see theres a few nurses in here, i Have struggled to seperate the nurse from the patient lol. But im getting better. I havnt even started looking at masectomy bras? 🙈.
Highlighted
Member
Posts: 9
Registered: ‎27-02-2018

Re: February Chemo Starters 2018

Hi everyone

Sorry have been very quiet on here for past 4 weeks been really struggling with side effects and feeling really down. It's nice to know I m not alone and am sorry everyone seems to be struggling a bit.
I'm now due my 4th TC on Weds and have only really felt well since weekend. Although have terrible swollen legs and fluid retention am really breathless and feel 99 yrs old as I reach top of stairs!!
Easter holidays were tricky with my children think they are over mummy being unwell! It' goes on for so long doesn't it? Was diagnosed in Dec and I think they want things back to normal as do I!

Welcome Annie I too am a nurse and have 3 children 13,11 and 7.

Cuddles great news about tumour reduction. Great to know chemo is working. I too would love to run away to the hills.

Weeburd aveeno cream is fab isn't it. Constipation is just the worse. I used senna this cycle which helped a lot. Think it's the ondansetron which is so constipating not forgetting the rest of poison they are giving us!

Chrissy glad to hear your on the list for counselling and reiki sounds lovely. Did you get that through your BCN?

Macneech and Bibi I too will join your drippy gang drippy eyes drippy nose and sometimes a drippy bladder another gorgeous side effect!

Good luck Bibi with your counselling hope you find it helpful.

Miss Green hope your arm is feeling better now. So unfair to have more injections on top of everything else.

Take care everyone let's hope the sun helps lift everyone's mood..
Member
Posts: 132
Registered: ‎16-05-2014

Re: February Chemo Starters 2018

Welcome to this fabulous thread Annie.

I had my mastectomy and immediate tram flap reconstruction back in 2003 when I too was 33 but I had it before chemo. Afterwards I found wearing sports bra helped, I don't have a sporty bone in my body lol, but as the months passed I slowly moved to normal underwear bras. I am sure you will find what's best for you.

T

xx
Member
Posts: 83
Registered: ‎17-12-2017

Re: February Chemo Starters 2018

Hi Annie welcome to the thread and guess what I’m a nurse and there are quite a few other nurses on here too . That is a concern is it a NHS Thing LOL !
Glad to here you not been too bad I too am due to start T soon but have been really ill with FEC . I have a 12 and 16 yr old so GCSEs this year .
Let’s hope if you’ve not been too bad you’ll manage with the T part . Good luck .
There’s quite a few of you due to have mastectomy well I had mine first probably in hindsight I should have done chemo first as I’m triple negative with node involvement . So anyone who wants to know about surgery feel free to ask me .

I’ve had right mastectomy and reconstruction and sentinel node biopsy but unfortunately have node involvement so now need radio. So after my radio I may have more surgery to remove other nodes. I’m also having repeat bone scan end May as lumbar changes seen . So I’m keeping my fingers crossed and it’s a shame I had reconstruction as the radio may cause capsular contraction .

Anyway I wanted to say I was advised to buy front opening bras they were brilliant and comfortable and when I’m better I can use them again for exercise (which I feel is in my dreams at the mo !)
I ordered them off eBay and Amazon . They had removable pads in them and if wanted could put a softie in it. I’m now 4 months post surgery and back in normal bras but no underwire. George is very good and much cheaper for bras to .

Anyway good luck can’t believe how much Tumor has shrunk cuddles that’s fantastic news.

Weeburd I found movicol great for constipation and works quickly.

I rang back cancer support again and have got date in June for reiki so looking forward to that and on waiting list for counselling .

Good luck everyone I’m on my last week of feeling normal then back to it again x
Member
Posts: 3
Registered: ‎24-01-2018

Re: February Chemo Starters 2018

Hi everyone. I have only just found this thread!! My name is annemarie (annie) dx on 7th feb with inflammatory breast cancer with lymph node involvement. At the age of 33. I am a registered nurse and have two young kids who are 11 and 10. I started chemo pretty much straight away on the 16th feb. Ive now finished the fec part of the treatment and will start the t part and herceptin this thursday and Friday. Feel like im on the home straight now. Had the typical hair loss and incrrased fatigie but other than that i have been well. Ill have a single masectomy june/july time then radio therapy after that. Then hormone treatment and herceptin to continue 😒.its been a lot to deal with and im scared of how ill cope with the next lot of chemo
Member
Posts: 11
Registered: ‎08-02-2018

Re: February Chemo Starters 2018

Hi all, oh gosh what a journey this is... 5 days after 3rd EC constant dizzyness weakness and nausea. I do flag sometimes. But at least I had 4 weeks to recover after 2nd one and had some good days to weed and plant my garden. 1.9 cm tumour has reduced by 4 mms so that's something positive. Yes the port picc line thing does ache a bit but I try to ignore.
Bald head gets quite sweaty with hot flushes. Real urge to run away from all this and frolic free in the hills but I'll be good and stay. Lots of love to all and thank you for your stories.
Member
Posts: 84
Registered: ‎12-02-2018

Re: February Chemo Starters 2018

Seems like everyone is having issues of some kind as we go along. I'm on day 5 cycle 3 of FEC feeling sensitive all over. All the skin around my jaw line and across my shoulders is sore to touch. Having to cover myself in Aveeno cream otherwise itching all the time. Appetite has been up due to the steroids I think but getting heartburn. Fortunately that's resolved with Tesco's own brand indigestion tablets. Bad constipation this time round has led to sore bottom and a tear - gave myself a fright with blood on the tissue paper. Feeling a bit sorry for myself! But I am halfway through the treatment so it's not all bad. If only the promised good weather would come along!
Thanks for sharing ladies it's good to know that I'm not alone xx
Member
Posts: 135
Registered: ‎22-01-2018

Re: February Chemo Starters 2018

Hi everyone- all the things we write about show our shared concerns and problems on this horrid journey.

Jude - bras 😬 I am looking at post surgery bras ready for after my mastectomy- a few months away yet but having a look - apparently if you are a large cup size like me you obviously don’t like pretty bras - at least in M and S - it’s v annoying. Will have to have a look online - trouble is I like to try them on as you can never be sure of sizes from shop to shop. 

Macneech- drippy nose, drippy eyes here too - then sore nose from coping with wiping drippy nose . 

Chrissy - hope you get your acid stomach sorted - I take omeprazole too and find it really good .

In terms of mental well being I think I am finding it harder and harder, feeling low and really fed up with it all at times - but yes the sun does help. Chrissy I hope you manage to get some support- I also phoned my local cancer support centre as they offer counselling and have managed to get an appointment this week. Never tried counselling before , a bit nervous about it but hoping it will help me. 

Have a good week everyone- I feel almost back to normal ( day 11 of  round 4  - 1st round of Docetaxol, Pertuzumab and Trastuzumab) 

Take care x

Member
Posts: 83
Registered: ‎17-12-2017

Re: February Chemo Starters 2018

Hello everyone
Sorry been quiet been in my chemo coma first day out yesterday In 12 after 3rd FEC .
Some of you sound how I’ve been feeling obviously the horrible symptoms as everyone else but yes Jude the feeling of low is horrible isn’t it . On Tuesday I rang a local cancer support place to see if some counselling may help no one has returned my call !
Luckily the cloud lifted with the sun yesterday and I am feeling happier. So hang in there everyone keep telling yourself it’s temporary and I’m sure the weather doesn’t help when it’s so gloomy.
I’ve had the most horrendous heart burn rang unit increased lansoperazole to twice a day but not helped then rang again told need to change so had a bit of hassle getting,had to go to gp in the end on omperazole it’s helping abit but still not brilliant. It’s horrible not enjoying food .
Anyway my last week of feeling alive til I start docetaxel on 24th x
Good luck to everyone it’s so funny for 2 weeks my bank account doesn’t get used and now I feel better I’ve been spend spend spend !!
Member
Posts: 132
Registered: ‎16-05-2014

Re: February Chemo Starters 2018

Hi all

Glad to hear your last cycle hasn't been so bad Jude. Good luck with the Docetaxel Macneech and you're right we all seem to be effected in different ways.

Bibi the tummy troubles settled down thank heavens.

So despite having 5 days of injections my arm is still swollen and sore from the blood clots that have blocked the veins my PICC is in. Admittedly it's not as bad as it was so that must be a good sign. So that on top of, nausea, sore mouth, horrible taste in my mouth and sore hands I am still battling with the mental side of things. I'm sure I am not the only one.

Yesterday the sun was out and I left the house as cabin fever had definitely in. The sun seemed to make everthing seem okay. Plus my boyfriends Mum gave me some Aveeno cream for my hands and it's made a difference already. Highly recommend it.

Hug n love to all

T

xx
Member
Posts: 59
Registered: ‎21-01-2018

Re: February Chemo Starters 2018

Glad you have had a better time this time round Jude.First cycle of Docetaxol for me weds - who knows what to expect as we all have such differing experiences 😕.I  am just bothered by the drippiness at the moment - drippy eyes,drippy nose - strange that this seems to come on at the end of my Fec cycles ?!

Haven't had my mastectomy yet but seems frustrating that many women seem to struggle to get bras/ prosthesis that look half decent for shape.

Hope everone else is ok and coping - been a bit quiet on here last few days.Looking forward to the sunshine coming - hopefully will lift our moods 😎🌻

Member
Posts: 63
Registered: ‎09-11-2017

Re: February Chemo Starters 2018

Morning all...day 10 after 4th cycle EC. Ondansetron definitly helped this time, no shakiness, min nausea  or feeling the need to eat every few hrs, just the tiredness that kicks in. Mentally seem to be struggling a bit - so desperate to just feel normal...no headache, no horrible taste, no gut issues...just normal. I know it will come but so unbelievably fed up witht the whole thing now. 

Halfway through chemo now - due to start Palitaxel 27th april. Weekly sessions doesnt fill me with joy but maybe something to aim for each week will make it go quicker...or just feel like it will never end...who knows. Looking forward to the sunny weather expected but now realise i need to look at my wardrobe. Bras are the bain of my life with being on the large side but even more so now - there really is very limited availablity post mastectomy. Ive just been wearing a softie or mostly nothing at all so really must look into getting a prosthesis as nothing sits straight now...one up and one down. Although so nice not to have to think of long hair in hot weather occured to me that little beanie hats will not be very comfortable - my head sweats very randomly as it is ! Oh the joys of this bloody journey....

Hugs to everyone xx

Member
Posts: 84
Registered: ‎12-02-2018

Re: February Chemo Starters 2018

Interesting article Bibi - wish I had known about it before surgery and could have discussed with the surgeon. I was prescribed dihydrocodeine post surgery and advised against anti inflammatories which could inhibit healing. However I just have to trust that the node biopsy didn't miss anything too microscopically small to be detected and if it did that the chemo and herceptin are going to kill and/or disable any stray cancer cells roaming around.
Member
Posts: 135
Registered: ‎22-01-2018

Re: February Chemo Starters 2018

Happy Anniversary Wee Burd - glad you are all sorted - stay well.

 

Just read this article,- quite interesting 

https://www.usatoday.com/story/news/2018/04/11/breast-cancer-surgery-healing-study/506525002/

Might have a chat to my oncologist about it next time.

 

Hope everyone is OK and staying on top of things - Miss Green hope those tummy troubles have eased - that was not a nice experience for me. Also had terrible backache last night - Docetaxel really does keep throwing a curve ball. 

Finding I am good in the morning but tired in afternoons- getting a bit of knitting done-am knitting angels for local church for Xmas would you believe - passes the time.

Waiting for sunshine now so can enjoy some time outdoors.

Good night - sleep well xx

 

Member
Posts: 84
Registered: ‎12-02-2018

Re: February Chemo Starters 2018

Hi All - pleased to report all went fine this morning and I have now reached the halfway stage already! Slight delay in getting started as the nurse doing my line care hadn't removed the stitches when they were supposed to be and so we started off with that and a good clean of the whole area and new dressing but it all feels much better now. Chemo went fine and I felt ok when I came out but have been sleeping all afternoon.
Noticed today that my scalp has gone a bit scabby - like caked on dandruff 😩. Took a walk out to the local pharmacist to buy some cradle cap shampoo but he recommended pure olive oil so have got some to massage in tomorrow when I wash my hair.
Today I am rocking the Jennifer Saunders look with my white turban on. Almost frightened to look at my hair today as it felt like it was all sticking to the inside of the cold cap when I took it off!
Not the best wedding anniversary ever but was feeling good last night and so we went out for the most delicious dinner and even managed to enjoy a wee glass of wine.
Thanks for the tips for the T Jujubee. As ever the worst bit is the fear of the unknown! Think I will treat myself to a manicure and get my nails painted a nice dark purple. The oncologist said it's thought that the nail thing is brought on by sun exposure and that's why dark nail polish helps.
Miss Green hope you're keeping better now and fingers crossed for you for the next scan.
Love to everyone - keep well and strong and make the drugs do their work 💪💪👍❤
Community Champion
Posts: 3,294
Registered: ‎04-02-2016

Re: February Chemo Starters 2018

Awwww what a nuisance xxm

Member
Posts: 132
Registered: ‎16-05-2014

Re: February Chemo Starters 2018

Hi all

Glad everything went okay Wee Burd and that you're feeling better Bibi.

Jujube I am on 6 cycles of Docetaxel (Taxotere) and Capecitibane. I have them at the same time as the latter is chemo in tablet form which I have to take everyday for 14 days.

Yesterday and this morning I was hit with "tummy troubles" not pleasant at all. Thank heavens I am still off work at the moment. On top of this today's PICC line maintenance didnt go to plan. Mentioned my swollen and painful arm. I am the proud owner of two blot clots on top of everything else !! Now need to inject myself in the tummy to try and break up the clots. Feeling peed off to say the least. Sorry for moaning ladies .

T

xx



Member
Posts: 21
Registered: ‎18-02-2018

Re: February Chemo Starters 2018

Hi Wee Burd, hope it has gone ok today,  the only advice I would give you about starteing T after FEC is to rest,  I found it harder on the T but I think I was trying to do to much.  Keep the fluids up and rest as much as you need, eat healtthy, even if you cant taste it and be good to yourself.

Good luck x