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February 2019 chemo starters

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Re: February starters 2019 - yes, we rule!

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Got the baking urge today.

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Re: February starters 2019 - yes, we rule!

Marlyn, we both enjoyed ‘Blinded By The Light ‘ . H1 could totally relate to it. Says his childhood was similar but worse as it was the 70s . I noticed him taking off his specs and wiping his eyes.

 I can’t imagine being chased by thugs on a regular basis 😳

 I had ‘Born in the USA ‘ on a cassette tape. 

If you have seen and enjoyed ‘Bend it like Beckham’ you will enjoy this.

 I admire the director Gurinder Chadha  ( female) she also did ‘The Viceroy’s House ‘ which was excellent as well as the really funny ‘Bride and Predjudice’

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Re: February starters 2019 - yes, we rule!

I know daisy....and I haven't even factored in when I go away....I'm going to give it a week or so and see how I get on.....it may well be infusions for me too..xxx

Member

Re: February starters 2019 - yes, we rule!

Maryln dont think I could be bothered with that every morning before I have a coffee.  Think I will go down the infusion route!  Good to hear from you Sarah x

 

PS I take my Anastrazole in the morning along with my turmeric and probiotic so I can get everything out the way.  I only have to remember to take my Loratadine before bed and hopefully wont have to do that for much longer.

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Re: February starters 2019 - yes, we rule!

Implausible...our posts crossed....good to see you! Xxx

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Re: February starters 2019 - yes, we rule!

Daisy, it was the bone scan that picked up my oesteopenia, hence the extra strong calcium with vit D....took The chondrites this morn, I have to take it with a litre of filtered tap water....not bottled water as there's minerals in the plastic (!) then after an hour I can eat or have my coffee...

 

edinbird, glad you've managed a sleep...boy that was much needed! Here's to a speedy recovery....

 

rosina....you prompted me to look at my local cinema, and I've booked to see " blinded by the light" I could just do with a feel good film right now..

 

hope everyone one is ok? Implausible? Your a bit quiet? Xxxx

Member

Re: February starters 2019 - yes, we rule!

Just popping in to reassure you all that I'm alive ....  I have been busier this past fortnight than I have the whole year....  I have been off work and blessed with unexpected energy so I've been making the most of it hence hardly online...

 

I've been reading but, because my posts on here usually take a couple of hours to write as I like to reply to everybody, I just haven't had the time to do it.

 

But don't worry I'm back at work next week and that means, ironically, I will have more time to chat!  

 

So.... a quickie....

Edinbird take your painkillers!  I don't like to take them willy nilly either but you have just had major surgery girl!

 

Rosina et al.... my hair is also coming back grey and if you think I am going to gracefully accept that and stop dying my hair, then you clearly don't know me very well Smiley Very Happy

 

MBJ lovely photo on the choo choo

 

Seaside have an amazing time in Florida!!!!   (Typhoon Lagoon is the one with the big lazy river, but I always preferred Blizzard Beach because of the break neck slides Smiley Happy )

 

Marlyn your drug cocktail is impressive, ask them to slip something fun in there too to make it worth your while, some ecstasy perhaps or a couple of shroomsSmiley Happy

 

Everyone else, I'll catch up properly next week

 

Love y'all lots

 

Sarah x

 

Signing out with a photo of piggy eyed, no make up me (although I did notice this morning that my lashes are finally starting to grow back, yay!!) and son on the ferris wheel in Bristol last Wednesday:

20190807_190722-picsay.jpg

 

MBJ
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Re: February starters 2019 - yes, we rule!

Rosina I think I  am going to work my way though all of those colours. Fab.

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Re: February starters 2019 - yes, we rule!

Morning (again) 

Snoopy cartoon is funny 😂 although I have to say that I belong to a group of people that suffer with aches and pains (especially in the lower back region) when I don’t exercise. 

Anyway post surgery, just getting up out of bed and going to the loo, downstairs/upstairs counts as exercise . I really would love to be allowed to swim 🤗 but have another 7 rads to go. Totally agree with you Daisydi on not having to traipse to Hospital this morning ( I actually got excited because I have a 3 day stint of not needing to go - Monday’s session got cancelled and tagged on to August 20th due to technical checks this will be my last one and all the nurses know it’s my 50 th birthday on the 19th as I have to state my name, date of birth and full address prior to every zapping - looked at the computer screen last time and went ‘yup, that’s me’ ).

The Tamoxifen is also okay, hot flush that wakes me up at night and that is it  so far. So pleased on that score too.

Now to walk to Tesco’s (exercise) , then the Guardian Readers Group have picked ‘The Grapes of Wrath’ as the book to read this month. I found it in my Library and made a start yesterday (I will juggle it with the Biography of Cancer one as my mood takes me).

Seasidesar , have a great time in Florida. Which reminds me must get grapefruit 🤗

 

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Re: February starters 2019 - yes, we rule!

flipping eck its getting very very windy here!  Edinbird I never used to take tablets either but I have given in to that one!

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Re: February starters 2019 - yes, we rule!

Morning xx got home yesterday afternoon had a sleep got up and watched the football (Norwich were never going to win!) then had another sleep. Only took two paracetamol at 7pm so was very pleased with myself for sleeping! Was not that hot at all. Ended up having the painkillers at 6am instead so still laid in bed. My problem is that I don’t normally feel like being in discomfort requires painkillers - and I hate taking tablets. I got less painkillers for this op than the last! But signed off for longer.

 

Need to get up but after actually feeling comfortable in my bed I don’t want to move. Don’t want a blood clot either though and I don’t have anyone sticking needles in my stomach here. Saw this Snoopy and it’s pretty much the two positions I’ve been in all night 😂

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Re: February starters 2019 - yes, we rule!

Morning my bits of hair growing back are white so I dont fit the grey trend!  I used to have my hair highlighted but havent done so for years and now I have natural ones.  The bit at the front comes through white and then turns blonde.  All very strange but Im happy with it.  Eyebrows are growing dark and bushy which I quite like too but little sticks of eyelashes are growing through white and digging in my eye ball as they come through.  Cant wait for them to grow.

Must say it is a relief not to be having to go to radiotherapy today.  Only 8 more left, 3 normal ones and then 5 boosters. My skin is not too bad.  My chest is more red and freckly than usual and I have a bit of a sore bit by my clavicle but no broken skin so far.  I have been using lashings of Aveeno and also use organic Aloe Vera Gel as soon as my treatment finishes to take away the heat.  I have 3 late nights left and then all the rest are mid morning.  I really can see a light at the end of the tunnel.  Also so far I have had no problems with taking the Anastrazole. Are you finished now Rosina?

Hope everyone is ok  Seaside hope you have a fantastic time in Florida.

Edinbird hope you are recovering ok.  Just keep the painkillers topped up.  There is no need to be in pain.

Sarah you are very quiet, hope everything is ok.

Susie hope you are not suffering too much with the chemo.  Only 2 more?

Maryln that cocktail of drugs sounds interesting.  How do you know you need to take calcium.  Was it from a blood test?  I am still pushing for my bone scan although I found out yesterday that my oncologist is on sick leave so think I will go back to the breast care team, again.

Nettie hope you are feeling well and getting on with life.  Do you have any further treatment?

Love to everyone xx

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Re: February starters 2019 - yes, we rule!

Morning Rosina,

 

Thanks for the article. Have to say, I'm embracing the grey hair too. No more sitting in salons for hours or enduring an itchy scalp. I told my hairdresser I probably wouldn't be dyeing my hair anymore. She looked horrified! Also, my Mum has been going blonder for years now to cover up her greys and she has no intention of stopping so it looks like I'll be grey before her. Think I can convince her that I'm on trend? 😊

Member

Re: February starters 2019 - yes, we rule!

Morning Ladies,

a well written piece in ‘The Guardian ‘ this morning:

women-ageing-loss-looks-liberate-society-shame?CMP=Share_iOSApp_Other

My hair is growing back a steel grey and I have to say I like it 🤗

Was at the cinema yesterday ( with H1 ) to see ‘Blinded by the Light ‘ which we both enjoyed and during the ads at the start , one was for hair colour and greys and steel metallics were definitely ‘IN’ colours.

This was the advert :

Shwarzkofp Live Colour

Have a good weekend everyone,

Rosina

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Re: February starters 2019 - yes, we rule!

Thanks for the reply Marilyn and Seaside Sar.  I will be having them through IV as far as i know.  

 

It's nice to hear all you ladies are doing ok, i like to peek on your thread as it helps to keep me positive.

 

Thanks

Debi

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Re: February starters 2019 - yes, we rule!

Hi Everyone 

 

Seaside Sar, brilliant news that you're flying out to Florida on Monday.🌎🎢🎠🛫🛬😊. Make sure you get onto the Lazy River. Trouble is I know it's not Blizzard Beach but can't remember the name of the other beach resort. Chemo brain strikes again 🤤😨😩😩. Enjoy your day at the races. Hope the weather doesn't spoil things⛅🌧🌫🌬⛈. Good news on the ECG. As for the neutrophils, how strange. Perhaps yours naturally go up and down like a yo-yo⬆️⬇️.  

 

On the chemo front I may not have such a rough time with the T☺🤞. I was talking to my nurse today about the side effects some of you had and she told me that as I am having C aswell my T dose is lower. Result.

 

Hope you are recovering from your surgery Edinbird. Are you back home? Let us know how you are when you feel ready xx 

 

MBJ, hope you had a lovely day and the weather didn't interfere too much with your plans. 

 

Enjoy the rest of the evening. Hugs for all of you ❤❤❤❤❤❤❤❤❤❤❤❤❤❤ 

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Re: February starters 2019 - yes, we rule!

Evening everyone,

 

MBJ, the Northern Belle looks very posh. Lovely photo of you and your hubby looking very happy 😊

 

Well done Susie for getting another chemo ticked off. Hope you're home by now having a good rest.

 

Debi, I'm on 3 weekly Herceptin injections but no Pertuzumab for me. Can't say I've noticed any side effects (touch wood!)

 

Edinbird, hope you're recovering well from your op. Are you allowed to go home today?

 

Had my echocardiogram today and all appears to be well. Had bloods taken and my neutrophils are at 2.9 which is lower than when I finished chemo. Work that one out!

 

The good news is, we've booked our flights to Florida! Going on Monday, eek! Would start packing tomorrow but I'm at Newmarket races for the day so guess it will have to wait until Sunday. Phoned daughter earlier to let her know we'll see her soon. She's very excited.

 

Hugs to you all.

 

Sar xxx

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Re: February starters 2019 - yes, we rule!

Hi Marlyn

.................. and the G&T at 8:00 pm 🍸🍸 perhaps😉?

 

  

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Re: February starters 2019 - yes, we rule!

Hi debi2,

i can only speak about herceptin which I get via injection every 3 weeks, as far as I know I'm tolerating it very well, I do still have residual effects of chemo and rads...but on the whole I seem ok....I'm assuming you'll get both these meds via infusion? 

 

Im sure someone will be along to offer more than I've been able....hope your otherwise doing ok? Xxx

 

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Re: February starters 2019 - yes, we rule!

Hi Feb starters

 

I have just been told that i will have to carry on having Herceptin and Pertuzumab every 3 weeks for a year.  Does anyone on this thread have the same?  I am just wanting to know if there are any side effects with these two drugs as i have only had them along side my Docetaxol up to now.

 

Thanks 

Debi

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Re: February starters 2019 - yes, we rule!

Susie,

im glad your almost done , it's funny when you say rather Paul than you off to the dentist while your sat in the chemo unit! 😂 

 

Well, I got a call from my bone nurse this morning giving me the green light to start my bone meds, Sooooo....it's..

2x clodronate 7.30am

1x high dose calcium with breakfast 

1x high dose calcium with dinner

and last but not least good old anastrozole at 7pm...

 

Nearly forgot herceptin every 3 weeks,,  and the heart scans, bone scans and bloods...all thrown in between to keep you on your toes

 

just hoping theres not some other nurse lurking about somewhere, waiting to ring me to say there's another anti cancer regime I have to embark on! Like rubbing stinging nettles on me chest once a week as it's been proven to prevent tumours coming back...or poke me eye with a knitting needle ( no other needle will do) everyday as this reduces the risk of recurrence!.... I'm verging on the hysterical ridiculous now I know but there does come a point in treatment when you think.....what now???? Surely I've enough on me plate??? 

Thank god for you lot xxxx

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Re: February starters 2019 - yes, we rule!

Hi Marlyn 

 

Just finished my chemo but here until about 3:30 for coldcap to finish. Paul's just left to visit the dentist. Rather him than me. I'm with a fairly chatty lot so I'm not alone😊. It's a bit wet and windy here. Thanks for the hug, it's very much appreciated. xxx

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Re: February starters 2019 - yes, we rule!

Susie,

i see you posted an hour ago? How long you in for? It's a pretty muggy day too....I hope your home by now and getting in that familiar post chemo routine that your so used to by now....I used to love it when it rained on chemo days, I would get home, straight into me jimjams and in bed....listening to the wind and rain....almost seemed quite befitting.....sending you a gentle hug.....and while I'm at it one for our edinbird.....oh blow it...here's one for all of you.....I think you're all super stars......xxxxxxx

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Re: February starters 2019 - yes, we rule!

Hi MBJ

 

Gorgeous photo of you and your husband. The Northern  Belle looks very plush. Enjoy the rest of your day. I'm a bit jealous as I'm sat here having chemo and looking silly in my wonderful cold cap🙁 xx

 

 

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Re: February starters 2019 - yes, we rule!

Mjb,

oh that looks just lovely! I adore train journeys, I had a lovely cream tea on the Severn railway for my birthday last year and a Scrooge who dunit at Crimbo....

you both look so happy....xxxxx

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Re: February starters 2019 - yes, we rule!

Rosina,

i love Kathy Burke, she's on the one show tonight....xxx

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Re: February starters 2019 - yes, we rule!

https://www.channel4.com/programmes/kathy-burkes-all-woman

Quick catch up :

driving back from rads today I was listening to Women’s Hour on radio 4.

Now I want to watch this :

https://www.channel4.com/programmes/kathy-burkes-all-woman.

Link pasted above. 

Kathy Burke interview was very good.

Kathy Burke on WH

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Re: February starters 2019 - yes, we rule!

Hi MBJ,

what a treat. Love trains journeys. This looks very civilised 🤗

MBJ
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Re: February starters 2019 - yes, we rule!

Hi Girls here we are on the Northern Belle weather dry so far fingers crossed it stays dry.IMG_20190809_113228.jpg

 

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Re: February starters 2019 - yes, we rule!

Hi Edinbird 

 

Glad to hear the op went well and that your surgeon is confident that  has removed everything☺. Hope you managed to get some sleep last night😴😴. A room with a balcony, there's posh but maybe not so good if it rained where you are. We had rain hare in Somerset from about 7:00pm onewrds🌨🌨🌨🌨.

As for the fat transfer just wait and see how you feel about the dent at a future date. For now  concentrate on making a full recovery, take painkillers💊💊 if you need them and continue with the arm exercises💪💪. If you find them boring then try and introduce some of them by standing a bit further away when opening cupboards, closing/opening curtains or switching on lights so you have to stretch. 

Take care. Susie B xxxxx

MBJ
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Re: February starters 2019 - yes, we rule!

Dear Edinbird

I am so pleased to hear you are back on the ward. It's good they are keeping a watch over you tonight. A room with s balcony sounds really posh I can tell it's not Wales we only have cupboards for wards here 😮. I hope you have a restful night unlikely I know. Don't forget to ask for pain relief if you need it. XX 

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Re: February starters 2019 - yes, we rule!

Edinbird, I hope you’ve got a nice breeze coming in from the balcony so you can get some zzzzzz’s in between the checks but it’s good they are keeping a close eye on you. Everything crossed you can get home to your own bed tomorrow. Xxxxx

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Re: February starters 2019 - yes, we rule!

Well done Edinbird.  If you have a dent in your boob then so what frankly.  Im getting used to mine and dont think I would go through another op to have it filled in from somewhere else but everyone is different.  Now make sure you rest up. Lots of love xxxxx

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Re: February starters 2019 - yes, we rule!

Have a good nights sleep Edinbird,

 

0A228F0C-7B34-4258-B84E-6BD3CB684D82.jpegGreen vibes

 

Member

Re: February starters 2019 - yes, we rule!

Hi Edinbird,

 

Thanks for the update. You are amazing. Well done. Now rest up and hopefully you can go home soon. Thinking of you xxx

Shi Community Champion
Community Champion

Re: February starters 2019 - yes, we rule!

edinbird ❤️❤️Glad ops gone well for you, take it steady and let your body heal now, I’m still wonky and just stuff my bra with stuffing from knitted knocker or use the half prosthesis, you’ll do what’s right for you when you are ready ❤️❤️Found having pillow between arm and boob comfy for sleeping, so hope that helps ❤️❤️💕💕✨✨Shi xx

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Re: February starters 2019 - yes, we rule!

Hi all xx

 

Sorry for the delay! So I get told I’m third in, and then second so I need to get changed and no sooner have I put the gown and stockings on but I’m getting called in!! Hastily fire off a few messages - glad I could get one to Sarah - and that was that!

 

So I came out at 1.30 came round at 2.30. But didn’t get a bed until 5 and didn’t get my belongings back including phone and glasses until 6!! Then I’m getting every check under the sun including a check of my drain and wounds every 30 mins plus dinner plus blood sample which was a farce as ever and took about 20 mins and was out of the bad arm as good arm not playing ball at all!

 

So amongst this fuss I’m trying to get on and reply to people who are all worrying why they’ve not heard from me! Finally got round to the forum now. Am so tired but I’m going to keep getting checked so no idea how this night is going to go. I have a balcony and the door open so that’s a good start as I’ve had a zillion hot flushes already.

 

My nodes were a bit screwed from chemo and one was stuck to some blood vessels but they got them all. And the surgeon has taken a fair chunk from the boob she says to hopefully mean that she’s got it all. So I will at a later date need to have a fat transfer to even things out. Great another op. I think I’ll just have to see how bad it is, I don’t fancy having fat taken from other places as surely that then leaves a dent there? When I was in recovery a woman was coming round from surgery and she seemed to have had stuff taken from all over her body and she was in a lot of pain. Sarah when you have the good boob made smaller can I just have some of yours? It all looks ok for now with the bandages on and the swelling. But it was already pretty dented before today so who knows what mess I’m going to be in.

 

Anyway, the surgeon was pleased so I just have to wait for tomorrow and see if they’ll let me home and then I guess it’ll be three weeks again before the results. Surgery grump has already set in. Probably should put the phone down but I don’t really want to do anything. Thanks for all your love and support xxxx

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Re: February starters 2019 - yes, we rule!

Hey lovelies,

 

Edinbird ,hope that all goes well today. Thinking if you. Considering how stressed you’ve been feeling you looked beautiful on your night out.

 

SeasideSar I hope that you feel more a5 ease booking your holiday. I’m sure that once you get there and see your daughter it’ll make up for all your worries.

 

Sarah, more lovely street art pics. Oskar looks lovely and tell grandpa that he’s got a magnificent beard. Been trying for years without success to get my other half to grow his back. I’m in the love beards camp. My dad had one and both my sons have them. My eldest son’s is a beaut, his brother has beard envySmiley Happy 

 

My nails are in a dreadful state, look like they’ve been bashed with a hammer! Yours look far more human than mine.

 

 

Trying to remember who’s doing what and where and frankly not getting far. I remember themes though.

 

Families, it’s a struggle isn’t it. Once I told my children what’s been happening  I told my brother . Never heard a word back. That hurt and still does really , I thought we were close . Anyway I’ve parcelled it away , can’t add to my stress levels. He’s a lovely man and probably doesn’t know how to respond really. He’s not the best at showing his emotions.

 

Havent told my sister a thing. We don’t get on. She doesn’t like me and I’ve given up trying to be human to someone so patronising and controlling and just downright cold. I have nothing to do with her and honestly I don’t feel bad about it because I’ve been honest with myself and recognised that for whatever her she’s never wanted a relationship with me and been quite nasty about it so I’ve moved on.

 

My grandchildren are over this weekend, super excited. Two weeks of grandma doings to look forward to🥰🥰🥰

 

Started my rads last Thursday. All well so far . Under my arm feels a bit tender but other than that everything has been going along really smoothly so far. My taxi drivers are lovely and well used to ferrying people to and from the radiotherapy dept.

 

After my complaint I’m down to see the consultant now and not that horrid man I had before. The driver I had today is the owner of the taxi company and he’s been taking people for rads for a while. From what he said today the horrible man I saw is known for his behaviour but it seems that people have just put up with it.  Why?! 

 

Anyway, my consultant is female. I was down to have a consultation on Tuesday but as she’d just got back from holiday she got the secretary to ask if I could go in yesterday so she could spend more time with me. I really appreciated that. 

 

So , 5 down 29 to go. 8 of those are specifically for lymph nodes. Consultant said there’s nothing wrong with them but they’re being blasted as insurance. Not really happy at having so many sessions but if it’s going to help I’ll have it. I’ve no idea how they work out dosages, like our chemo regimes they might differ from team to team.The treatment protocol the consultant oncologist gave me showed they on the chemo regime I was on you’re supposed to have 6 weeks of rads so that’s 30 sessions .I’m having 4 more. Now I’ve actually started  and things have been moving along so swiftly, having 4 more doesn’t bother as much as it did. When I’m under the machines I just close my eyes and meditate.

 

GP has put me on a huge monthly dose of vitamin D so my blood results show I’m low in that. 

Got my bone density scan to come so fingers and everything crossed.

 

Right better go. Love and big hugs to every one of you.

 

😘😘😘

 

 

 

 

 

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Re: February starters 2019 - yes, we rule!

Rosina, when you download the photo there is black X in the top right hand corner which is difficult to see if it appears on a dark background. Press it and the photo will be deleted. Hope this helps.

Susie xx  

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Re: February starters 2019 - yes, we rule!

Thanks for update Sarah. Op should be well underway by now. I always feel so anxious when one of us is undergoing an op.  Xxx

Member

Re: February starters 2019 - yes, we rule!

Thinking of you Edinbird x

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Re: February starters 2019 - yes, we rule!

Just to let you all know I got a message from Edinbird just before 10am to say she was going down to theatre, so at least they didn't leave her waiting around for ages.... 

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Re: February starters 2019 - yes, we rule!

Edinbird, be as grumpy as you like,  we've all been there at one time or another. The confusion in what you're actually having done certainly won't help. I was asked many times by various medics to confirm my details, what I was having done and where the lumpectomy and ANC  was being done, so hopefully your team will do likewise. On the plus side the drain won't be coming home with you☺ and any remaining cancer cells will be gone. Get some rest if you can. xxxxx 

Member

Re: February starters 2019 - yes, we rule!

No need to apologise, you have every right to feel grumpy. I do hope you don’t have to wait too long and that you are soon out the other side. We love you. Xxxxxx

Member

Re: February starters 2019 - yes, we rule!

Morning Edinbird, sending you lots of positive energy. If you can shut your eyes and focus on your breath this is highly recommended 🍀🍀🍀

Member

Re: February starters 2019 - yes, we rule!

Edinbird, with so much love and support from your extended family here you can't go wrong, let us know when your able that you're ok? You know how we all worry about each other...gentle hugs my love xxx

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Re: February starters 2019 - yes, we rule!

Thanks guys I’m just getting checked in. This definitely seems like a bigger deal today. The surgeon is happy with what she’s doing but everyone else seems really confused I’ve been told I’m having a mastectomy and the latest nurse has just wandered off with my notes again even though 10 mins ago I signed for a clearance and a re-excision!!!

 

They’ve just told me I’m getting checked every hour for the drain and every two for the wound so yet again I’m getting no sleep 😞

 

Just fed up of everything at the moment. I know it’s all necessary and I’ll definitely be cancer free after this if I’m not already but I hated surgery recovery last time and this is only going to be worse. Only good thing I’ve heard so far is that I won’t be taking the drain home. I’m to come back next week to get checked over which is good too but also a pain that I’ll have to get the busy bus during the festival.

 

Hope we get on with it soon I don’t know where I am in the schedule. I’m not in a good mood and just want to lie down so if I’m not early then let’s hope I’m late and I can try and rest. Sorry to be so grumpy xx

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Re: February starters 2019 - yes, we rule!

Good luck Edinbird. I've got everything crossed for you 🤞xxx

Member

Re: February starters 2019 - yes, we rule!

Morning lovely ladies 

Edinbird thinking about you today xx

Member

Re: February starters 2019 - yes, we rule!

Hi Edinbird 

 

Just to let you know I'll be thinking of you today. Hope all goes well. 

 

Susie xxxx