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February 2019 chemo starters

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Re: February 2019 chemo starters

Im having 6 sessions of FEC-T the first 3 FEC and then 3 T.  

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Re: February 2019 chemo starters

Hi Ive already had 3 surgeries, the first in October, second in November (where they forgot to do the anc) and then 3rd revision and anc on 10th Jan.  They found an area of DCIS near my original tumour which caused all the problems as they couldnt see it.  I was only expecting radiotherapy but had 4 nodes positive out of 24 removed so got the chemo call.  I am going to cold cap and really hope not to be ill as I live alone with 2 cats and 2 rescue dogs.  Dont have time for this cancer rubbish!

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Re: February 2019 chemo starters

Hi Sandra 

I'm absolutely fabulous at the moment going out to the Ramside Hall Hotel tonight for a meal,, really looking forward to doing something normal getting dressed up it seems like I let my life change with my diagnosis but no more, taking one day at a time and if energy levels temperature is good and I'm well enough life will hopefully remain as normal as possible starting tonight, slowly slowly does it as long as I'm aware that whatever I might be experiencing is a normal side effects but the emergency helpline are absolutely fantastic xx

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Re: February 2019 chemo starters

Thank you Trixielady, I did not know about this.

We have an appointment with the chemo nurse on Monday, and I will ask her about this.

How are you feeling?

Member

Re: February 2019 chemo starters

Hi Sandraindurham

So pleased your daughter has a start date . 

I had my hair cut much shorter before chemo but I'm pleased I haven't shaved it yet 11 days after first FEC and it's still great apart from needing a dye that apparently it can't have until 6 months after chemo. 

I find pineapple fab going to try freezing tinned but think I started using a soft toothbrush and sensitive toothpaste too soon even though my mouth is tender at times went back to my electric brush feels fresher, I have found my taste bubs lacking but enjoying fruit & Veg smoothies .

Sandra just make sure with the oncologist that you have some strong pain relief in place that can be taken if necessary, I didn't and had to go nearly 12 hours before they decided I could have something to manage my pain due to Neutrophils injection xx

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Re: February 2019 chemo starters

A Sash nurse is the home visiting nurse. Your district nurse I guess.

You are doing your best. 

Sending positive energy. 

Breath. 

No more headless chicken stuff 🌸🌺🌼

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Re: February 2019 chemo starters

Hi Daisydi 

Forgot to ask what your actually having and is it before or after surgery for you? Sorry not sure if you'd already wrote it on a thread xx

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Re: February 2019 chemo starters

Never heard of that MBJ?!

i read to keep away from animals and like you I got three cats and new puppy. You just have to be careful not to get a bite and wash hands a bit more. 

Just looked up flower thing and it looks like florist is right as they carry germs harmless to normal people but not to immune suppressed. Great eh? And it’s only a few days a month immune system properly down but people go to work on chemo don’t they? Think we need to be sensible. I won’t touch roses as they have thorns. My friend re did her entire garden during chemo... hands in soil and garden centers. So who knows. It’s a pain isn’t it🌷🌷🌷🙄

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Re: February 2019 chemo starters

Feeling it too daisydi. 

My friend texted me and said it’s six months and that’s not long in scheme of things. I actually felt better after I read that ...for about 5 minutesSmiley Wink I’m 3 days after you. Starting EC at 75% for 3 then 8 weeks Paclitaxel. 

Walking every day, guzzling water and I’m doing the Valter Longo fasting before as so many of my pals said it lessened side effects massively...and makes chemo more effective according to the research. Will try it anyway.

Youre not alone 🥰

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Re: February 2019 chemo starters

Hi daisydi 

Oh hun I know it's easy for us to say but it really isn't as bad as we all make out! Saying that I had a total melt down the day before mine,  I'm 1 a head of you  back on 25th for my 2nd. Honestly most of my first chemo has been managed well just keep checking that whatever happens is part & parcel of chemo anything to uncomfortable or different you ring them plus keep check on temperature xx big hugs 

 

 

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Re: February 2019 chemo starters

Hi Rosina, thank you so much.

Being a celiac, she cannot eat much of the wholesome foods, I bake at home and we rely heavily on fruit, vegetables and home made food at all times. We have been burned many times by the 'safe gluten free food'.... not!

I do not know what is a SASH nurse, but we had district nurses here. Unfortunately most of the times they have hurt when taking dressings out and caused further issues.

Lucky me, I am trained to deal with these situations, and I have managed to clean and dress the wound properly.

We are doing Giquong at home but no, we do not have any extra services in Durham, even the 'Look good' workshop does not come here.

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Re: February 2019 chemo starters

Eeeeeeek!! Just got my start date of 25th Feb.  Now gone into panic mode

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Re: February 2019 chemo starters

Dear Sandraindurham, 

I am truly sorry to hear about your daughter ( leaking wound). 

Have the SASH nurses not been round?

 The face mask will not protect from a virus!

Please reduce the anxiety and panic.

You are well prepared. 

Eat wholesome food, relax, watch fun films. 

Reduce the stress levels.

Sending you positive thoughts.

Is there a Cancer Support Center nearby for some complementary therapy? Reiki?

Reduce those stress levels.

Most important!

MBJ
Member

Re: February 2019 chemo starters

Hi Girls

Does anyone know if it's safe or not to be given flowers when we are on chemo as the florist told my sister that she should not buy them. 😣

 

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Re: February 2019 chemo starters


@MBJ wrote:

 

I now have another sort of worry. I will be going to church on Sunday but do I risk the communion bread and wine??? I think I might just have the bread and not the wine as everyone drinks from the same cup. Oh the possibility of GERMS 🤧😷😱👾👹 is never ending. Can't get any now before chemo on Wednesday just had antibiotics for a chest infection 2 weeks ago. 

 

Hi MBJ,

Please do not share the wine. Before all this I was training for ministry and although alcohol content is high it is not enough to kill bacteria and virus, and you will be risking herpes, colds, flu and all sorts of nasty stuff.

And I would not advise church either. Many people will be ill and the air will be full of what you do not need when your immune system in non-existent.


 

MBJ
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Re: February 2019 chemo starters

Hi All

Well had a lovely morning out with girl friends, coffee then a look around then lunch. I have already put on 9lbs since I stopped going to Slimming World last September. I am like my dog I need short term pleasures at the moment and that is usually for him and me food. 

I now have another sort of worry. I will be going to church on Sunday but do I risk the communion bread and wine??? I think I might just have the bread and not the wine as everyone drinks from the same cup. Oh the possibility of GERMS 🤧😷😱👾👹 is never ending. Can't get any now before chemo on Wednesday just had antibiotics for a chest infection 2 weeks ago. 

Now waiting for my sister to arrive from Hampshire 😀.

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Re: February 2019 chemo starters

Right, after many complications with a constant leak from her wound, my daughter is finally starting her FEC next week, on Thursday.

We are absolutely terrified and I look like an headless chicken.

I have ordered rosemary oil and almond oil for her scalp (she will have her hair shaved before starting), Bio oil to try to prevent eczemas, nail oil for daily treatment of her nails, special moisturising gloves to protect her hands and nails, face masks to protect from virus when we have to travel for chemo, loads of Purell and Dettol in all forms, including the one to do the laundry, small plastic spoons to be used when using creams, lotions or lip creams in order to avoid spreading bacteria, Simple shampoo, loads of disposable gloves and those disposable plastic shoes when entering the house until I can reach my indoors footwear, antibacterial socks to keep her feet confortable with mosturising cream, two thermometers, Bicabornate sodium, Difflan and Listerine to keep mouth ulcers far away, ginger cookies, trying to find pineapple ice lollies, if not, I am going to try do it and mints.

Am I forgetting something? Any advice about what is working for you, please, please, please?

I am keeping my poker face whilst completely panicking!!!

Member

Re: February 2019 chemo starters

Hi Stargazer1 

I had rang the emergency helpline they had advised paracetamol and then ibuprofen 2 hourly alternatively but it didn't shift it eventually was allowed by oncologist to take oxoycodone. Seen Oncologist today who's said unfortunately the injections are a must so be prefared for same things next chemo cycle ( lovely man) but to take oxoycodone before bed on my 6th night he's still saying it's usually the 1st or 7th day xx take care 

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Re: February 2019 chemo starters

Yes it’s wise to avoid germfests! I’m getting through the antibac hand spray .. And that nasal spray that stops colds. I never felt so well in ages it’s such a waste😂 Yep 6 blipping months... and back to our new normal and life more precious for it! Xxxxx

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Re: February 2019 chemo starters

I was due to spend Sunday in London with pals, but as a couple of them have colds, and I really don't want to risk having to put my first chemo back, I've cried off.

 

I'm sad as it was going to be my last "fun" day for a while.  Thinking of something I can do instead that's less germy Smiley Happy

 

All in all this is a 6 month or so blip, and we can all get back to our lovely full crazy lives afterwards.  I reckon it will go by quicker than we think.

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Re: February 2019 chemo starters

Yes forests are the best you’re right! Healing trees aah. 

I think a happy thing a day is good ideaSmiley Happy

Mine is superficial but we had new French door and new windows in kitchen yesterday, ours were falling apart! It’s such a pleasure looking out to garden now and clean windows hehe! Cheered me up☀️☀️☀️

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Re: February 2019 chemo starters

Hi Nettienoo, Enjoy your weekend away. We went to London before chemo day. Way too busy to give Gremlim (that's what we call my unwanted guest) much thought. You'll be surprised at how much good a few days away can do😊

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Re: February 2019 chemo starters

Sunny good morning

hope everyone has an okay day today.

i woke up with the usual anxiety! Haven’t really slept properly since diagnosis , can fall asleep but wake up very early and then the mind starts up. I do want to be a resilient warrior but am more a jelly on a plate Woody Allen style...!  

On the onco score I did get obsessed and worried about it... it’s been in the US for ages and they’re more clued up on it. I speak to a couple of women who said no to chemo with scores in the mid 30’s. They are ok 9 yrs on and one who had a score of only 4 had recurrence so it’s not perfect by any means. One has a score of 59 and ok after 12 years but did chemo as would be sensible! The Tailorx trial didn’t focus on 26-31 score so all the data for grey area is taken from other trials. . Oh well it’s better safe than sorry eh?

Im glad your portacath all ok, Sarah. I’m having mine under local so just in and out they said. I’m trusting it’s all ok to not have a general but didn’t have a choice....yes definitely something in the grief thing I’ve heard it many times...and mine was similar timing to yours. Mine was there a while as I thought it was scar tissue as it came on site of a previous lumpectomy... right under the scar!

 

Of course having a good weep over hair and cancelled holidays is normal and natural. It’s those things that remind us our life is on hold for a bit and not in a way we’d ever wish for. Ice hockey tour Stateside sounds awesome... I think we go through such a lot from diagnosis to surgery to chemo, radiation and the bit I don’t fancy is the hormone therapy for next 10 years! It’s easy to feel isolated although it’s so common! So many women around where I live have had it and now just getting on with their lives ... and that’s encouraging! As one said to me seeing others carrying on is tough but you have to suck it up.. and people say some weird things but just have to let it go...my BC nurse said a good weep is therapy... start of chemo can be most daunting bit. Hoping weekend is good for all and that all who started are feeling okSmiley Happy

Glad you are all hereSmiley Happy)

Roz xxxx

 

 

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Re: February 2019 chemo starters

Hi Rosie, pleased to know that like me the cold cap experience was ok, so many seem to have  a terrible  time. I had my first session last Friday. I don't know if this will help, but I am on FEC chemo and was given the worst offender for hair loss first followed by the one that may cause some loss. The nurse then started the clock for the time needed following chemo for the cap to hopefully do it's job once the second one had dripped through. By the time the third lot had gone through, which doesn't cause hair loss, saline pushed through my PICC line, meds to take home explained, etc, etc, I was ready to go. Hope this makes sense. 

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Re: February 2019 chemo starters

😂😂 backspin!!! If only 😂 back pain xxx

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Re: February 2019 chemo starters

Hi Trixielady I’ve been looking through the forum to find your message about backspin. Day 8 for me and was woken up in the night with bad pain in my back, hips and legs. I went out last night with hubby for a meal & all sorts going through my head, was it something I ate? Oh no was it that 1 glass of wine? So I’m grateful to know that you had it too, thank goodness for this forum. I’ve taken paracetamol but it hasn’t gone, thinking of ibruprofen next?xxxx

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Re: February 2019 chemo starters

Forests are the best 🌳🌲🎄🌵🌴

Remember to hug some trees ( or pat) when you get the urge.

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Re: February 2019 chemo starters

My happy thing today is that I am going for a weekend away with my family to Center Parcs at Woburn Forest. Last trip before chemo starts in 12 days (not that I’m counting! Lol). Because I’m worried about picking up an illness, I won’t be using any of the facilities and will just spend my time in the lodge and outside in the forest. Looking forward to the change of scenery because I haven’t been out very much recently due to recovery from mastectomy and reconstruction. Sad to miss out on the Spa and pool but I’ll be back there to do it ALL as soon as I can. 

Love and hugs Jeanette xxxx

ps it will make up for cancelled trips to Philippines and Amsterdam a bit.

 

 

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Re: February 2019 chemo starters

Hi holiday chat, we had to cancel I got our money back from TUI but unfortunately as my sister and family weren't on our booking she wasn't covered yeah obviously she could still go but there was no way she was going whilst I was going back under my absolutely wonderful surgeons knife the exact day we were due to fly off into the sunset for my hubby's 50th but I'd been lucky we'd already celebrated my lovely 50th & 12th wedding anniversary in July fantastic cruise can't believed how quick we were converted from hubby walking my feet off  no sunbathing always busy to lovely relaxing sea days fabulous menu's & entertainment, sorry got carried away with the happy memories that seemed a lifetime away and from happening again but back on track my sister gave her holiday to her partner & family they only need to pay a change of name fee. I thought it would have really upset me looking at the photos but it didn't it made me believe I'm gonna beat this coz I want my lovely wonderful life back I'm not willing to give up without one hell of a fight, but we did manage a small 50th birthday party for the select few scared silly of getting ill before my chemo started xx Stay positive lovely ladies  we should write on here one happy experience to each other every day however little silly or big it maybe to remind us we're alive and happiness is in our control xxx big hugs xx

MBJ
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Re: February 2019 chemo starters

Hi Rosina and all

Yes I have read that book too it was very good. I am a realistic person, who has carded for many individuals during my years as a nurse and health visitor and witnessed much suffering at first hand. So yes I know that many people are dealt a terrible hand in life. I am really an upbeat sort of girl who enjoys family friends and my wonderful dog and cats ( who are the bane of my husband's life). Ha ha. This is our new normal and deal with it we all will in our own strong ways. So I am off to get ready put my heated rollers in (won't be doing that much longer) and going off out for coffee with the girls on a very lively Friday morning. 

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Re: February 2019 chemo starters

Also thinking out aloud here re. Planned holidays apart from cancelling altogether another idea would be to allow / offer/ suggest for someone else to take the place of the person who can’t go : good friend, relative ( older/younger) why not?

 I am sure both parties ( the one going- the one staying) would have lots to tell each other when they get back together.

Just a thought 🌈

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Re: February 2019 chemo starters

Morning MBJ ( and fellow readers)

just one more penny ‘s worth from moi:

My day job is a Special Needs Teacher and I tell you plenty of kiddies have been dealt a very poor set of cards indeed but it’s how you play them that counts!

Funny I am applying , all the tools of the trade to myself now. 

Song comes to mind :

https://youtu.be/MN1AtzLrW4Y

🤪

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Re: February 2019 chemo starters

Morning,

Re. Predict , I did it myself first ( it was mentioned in my book ‘The Complete Guide to Breast Cancer by the 2 lady doctors Greenhalgh and O’Riordan and they actually state doing this with your medic)  and then asked my Breast Surgeon about it and we did it together on her computer which was better as she drew my attention to the benefits of chemotherapy 10 years from now which I hadn’t noticed).

The same book also mentions the Oncotype Dx which is given in the NHS when you’re borderline. Quoting from the book :

’ You are given a recurrence score: low, intermediate or high. A large trial called TAILORx showed that if your score is high you should be offered chemotherapy. If it is low or intermediate you should be able to avoid chemotherapy. although individual factors such as your age will also be taken into account ‘.

MBJ
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Re: February 2019 chemo starters

Good morning Sissy60 and all you lovely ladies. 

Yes I think the ONCO trump's everything else as it's individuals to us and our tumor. In Singleton Hospital here in Swansea they also only work to a score of 50 not 100, so with a score of 27 I was definitely getting chemo.

Now on a lighter note yes Swansea or as it's better known the Gower coast is fantastic, Mumbles is really lovely and the scenery is beautiful. We do get a bit of rain but then it would not be the green green grass of home without it.

Another hectic day today out later for coffee and lunch with some girl friends. Bet I won't be doing that Next week !

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Re: February 2019 chemo starters

Morning everyone.

 

First of all, most importantly, I did get my brie and cranberry baguette at about 9.30 last night and it was delicious! Smiley Happy

Now I'm waiting for my brekkie.  People turn their nose up at hospital food but here it is lovelySmiley Happy

 

I should be heading home around lunchtime.  A little bit bruised and achey from the portacath insertion but not in pain as such. All seems to have gone very smoothly.  They took me for an x ray to double check it has gone into the vein ok and I assume it was all ok because nobody has said otherwise (I was still coming round from the general anaesthetic so didn't actually think to ask!)

 

All this talk of cancelled holidays, I also had to cancel a big trip - we were due to head out to Chicago on March 14th, and then embark on an ice hockey round trip taking in Colombus Ohio, Detroit and St Louis as well as Chicago itself.

 

Annoyingly the insurance covers the flights but not all the hockey tickets, which cost more than the flights!  I'm trying to resell them but no luck yet Smiley Sad

 

I feel kind of guilty because the trip was for my other half 's 50th and now he misses out.  Obviously he is being super understanding, but still....

Missing the holiday has been the only thing so far on this journey that I've had a real good cry about, which makes me think that I've got my priorities wrong!

 

I also got a twinge of jealousy when a pal posted yesterday with a new , stunning dye job on her lovely long hair just after I had mine all cut to a super short pixie pre embarking on chemo.  It felt selfish of her somehow although of course it wasn't!

 

Funny how we fixate on the relatively trivial things

 

All that said, I'm still feeling relatively upbeat.  

 

Oh - re oncotype.  Mine was pretty high  - 34 - which is obviously worrying to a point!  But at least it means that I know the chemo will likely help me and it's not a waste of effort.

 

And one other thing .... doc reckons that my tumour may have been there for about 2 years (I lost a lot of weight - intentionally - towards the back end of last year and she says that's probably how I spotted it, as my boobs have lost fat and got smaller, and it was probably hidden behind the fat before) - 2 years ago this week my dad died and that was a big deal for me.  So maybe there is something in that whole "grief sets it off" theory!

 

Sarah

 

Last PS I've never been to Swansea, it sounds lovely!  A trip may be on the cards in one of my not-feeling-too-grotty chemo weeks! Smiley Happy

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Re: February 2019 chemo starters

Mmm Joe’s ice cream best in world! What a lovely evening for it! 

i did the Predict thing! It was like 2% benefit so I wouldn’t be offered chemo. I was stage 1 with no vascular or nodes involved, grade 2. estrogen IDC. It’s all down to the oncotype score. It’s the gene expression. I was told biology trumps pathology. The higher score ... the more chemo will benefit...you and I are in the grey area but the science behind it is massive. If we’d scored below 25 - even with a positive node - chemo isn’t a given for post meno women. It’s informing treatment now. Yet I was told the parameters will change again after more studies. That’s why I’m so fed up about it! And a bit scared as to why the gene expression was above average even though I had recurrence score of 19% the docs focus on that not on the 81% that it won’t! Only reason for chemo. It’s a pain but as you say it’s all just stats in the end! Doesn’t help us much hehe. 

MBJ
Member

Re: February 2019 chemo starters

Hi Sissy60

We had our meal in La Parilla in Mumbles in the new dining area on the front. It was lovely I had sea bass cooked in rock salt. Then we went to Joe's for ice cream fabulous darling as they say on Strictly. I start chemo on Wednesday. As for the predicted benefits I think they use a tool. I used PREDICT it's the NHS breast cancer epidemiology stats. It's easy to find online. Then you put in your age tumor size etc into the boxes and then at the end it gives you the prediction based on past data of how much benefit there is to women's like yourself from chemo, hormone therapy in 5,10,15 years. It's not easy to look at because it's not just stats to us it's our lives. My friend could not believe I had looked at it. But it does help or it did help me to see the benefits of chemo which after reading all about the sideffects of chemo I was very dubious about. Looking at this is not for everyone so think about it first. All those holidays in the UK sound lovely. 

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Re: February 2019 chemo starters

I’ve read that shocks like bereavement sets stuff off... I hurt my foot and was on crutches for 8 weeks.. different stuff since my mum died just over 18 months ago. Plus I had a very bad fall right on the boob where it all started. Why me is no good for us... why not me? Good on you doing grateful list that’s exactly right thing to do! I’m reading great book- Life over Cancer. It’s by an integrative oncologist and had so much info about avoiding recurrence and how to optimize chemo and is quite empowering - which is what we all need . Highly recommend it!! 

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Re: February 2019 chemo starters

I started targeted hormone therapy today, 8 hours, and, once the catheter was in and I wasn’t having an allergic reaction I actually started to really relax and enjoy just having time to read, drink tea and watch the incredible nurses do their thing. God bless the NHS. I know feel I am actively fighting this cancer and it’s way better than being passive and crumpling with scanxiety. Chemo proper starts tomorrow - bring it on.

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Re: February 2019 chemo starters

Wow! My daughter at Swansea Uni! We are there a lot! I love it... esp Mumbles. Were you in the marina restaurant in the tower? She’s moving to that bit next year.

oh your cruise sounds amazing... always wanted to see Raffles hotel and all that wildlife you’d see in that part of world. 65th and 70th are landmark bdays. But yes they will be quiet ones but next year it will be all the more precious ... instead of our Greek idyll we will go to Cornwall! Don’t want to go on germy planes for a while. My friend went to this place in the Lizard after her chemo where there’s cottages and a spa and restaurant ... and sea walks...sounds fantastic. Or maybe wales - my favorite place of all! You are right as you are so well informed re health stuff you are bound to know things in a deeper way and also being a patient has to be hard when you’ve been a nurse... and a Uni lecturer has to analyze stuff.. you are clever and want to understand what’s happening! I over analyze too but I think knowledge is power and while I wished I never said a casual yes to doing the oncotype I havent stopped researching since! For me ignorance was bliss on that one. I’ve been studying philosophy at Oxford Uni but had to stop as couldn’t get to lectures so I’m home alone a lot as husband works away a bit and is workaholic. 

3 doctors gave me different numbers on how many would benefit from chemo! One said 15 in 100 be saved another said 7 and another said 11. God knows where these stats come from! Very frustrating ! Anyway I’m glad you had lovely meal my daughter went for quiet meal too tonight! Who knows you may have been in same place... life is strangeSmiley Happy Let me know how it goes I’m having portacath done Wednesday when u start chemo. Hey ho. Xxx

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Re: February 2019 chemo starters

Hi Sarah, pleased you OK, hope you got to enjoy your Tea, thinking about you hope all goes well xx

MBJ
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Re: February 2019 chemo starters

Hi Sissy60

It's really uncanny how all our lives have been affected in the same way cancelled holidays ( ours was a holiday cruising around Australia and Singapore). This was to celebrate my husband's 70th and my 65th birthdays. I think theses birthdays will be quiet ones avoiding germs. Yes you gotta it exactly right I have lost that carefree feeling. I am a retired university lecturer, and  I think that being a nurse and health visitor is not helpful in this situation as I analyse everything too much. I start FEC-T on Wednesday and think Iight be better once started as I will have a focus again, the same as when I was recovering from surgery. It takes all your energy and none left for worrying. On a positive note we had a lovely meal today overlooking Swansea bay, the weather was fantastic and the wine nice and chilled. 

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Re: February 2019 chemo starters

Sissy60,

Yes, we can do this. I lost my mum 18 months ago and then last April fell in a pothole and fractured my shoulder. I ended up having it pinned and plated. I have had a few times when I’ve felt very sorry for myself recently and got into the “why me” frame of mind but each day I write down a list of positive things that have happened and give myself a good kick up the backside....it helps. X

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Re: February 2019 chemo starters

Oh it’s rubbish having to cancel plans and holidays and having to hear about others lives carrying on all normally... bitter moi?! Trying hard not to be! 60 not been my best age (mum died, daughter left home then the lovely diagnosis just to finish me off)... but I did get to celebrate with a nice holiday... yet worry was creeping in about the dimpling on my boob even then...I start day after you!! So we will nearly be in sync! I’d like to do something during the ‘purdah’... I guess surviving will be good enough! But maybe start painting or something... and watch The Godfather trilogy all at once.. hopefully there’ll be champagne in our future! Jennifer Saunders had vodka nights during her heavy chemo regime! Keep in touch and 27/28th are not farSmiley Sad xx

Member

Re: February 2019 chemo starters

Hi Sissy60

I’m with you on the  “want to get on with it all now and stop the imagining and get to reality” front. Recovered from my mastectomy and reconstruction that took place on Nov 28th, oncotype score of 26 so was expecting chemo and just to want to get it all over and done with now. First chemo session on 27th Feb and it feels a long way off. I am having FEC-T combination over 6 sessions, 3 weeks apart. Unfortunately, I’ve had to cancel a trip to Philippines to my niece’s wedding 2 weeks ago. My husband and I are due to travel to Amsterdam with friends at the beginning of May for a weekend to celebrate my 60th but that’s probably not on the cards now either. Ho hum! These things are sent to try us eh? I think my 60th birthday is going to be a lot more sedate and a lot less alcohol fuelled than I’d imagined! 

I too am relieved that the ladies who started today are doing well so far. It’s funny that we are all just names on a forum but we quickly start to care about the others who are posting. Us woman are awesome aren’t we? 😀

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Re: February 2019 chemo starters

Take that worry away! It’s fine if it takes a while. I’ve been delayed because of Xmas too. But my friend was diagnosed in a November and not had chemo till April! She’s fine 12 yrs on and had a node or two involved. Because I was being a pain about deciding my doc was prepared to give me longer saying it made no difference...I asked her if she could wait a few years Smiley Wink Would be strange if we weren’t anxious and nervous sometimes I think I will never have that carefree feeling again... but from others I hear you gradually get confidence back and even forget about it some days! I don’t relish losing immunity at 60 but we need to stay home.. at those times ..yes I bought some wool and might knit although I’m hopeless. But definitely don’t want to catch anything and stay bug free as far as poss. Don’t worry about the time lapse! What day do you start? I told doc if I don’t like it I will stop lol. She said not to worry as I will love it. She’s funny!! But im not doing 12 weekly sessions of Paclitaxel after 3 of EC ! Will do less as first doc said 9. So might make it to 8 and won’t feel at all bad about that... Can you stay home and look after yourself or are u still working? Hope your son had lovely birthday today! By his 41st it’ll all be over and done.  My daughter (19) told me home was a sad place now and she couldn’t wait to get back to Uni! Ahh the empathy of the young lol. .. we will be ok for them, won’t weSmiley Happy) Rock choir beckons and holidays and hair do’s. Just a few months of lowering our risk (and yes, we might not need it but kind of can’t relax if we don’t) xxxxxxxxxxxxxxxxxxxx

MBJ
Member

Re: February 2019 chemo starters

Hi Implausible

I hope you have a restful night, oh and that sandwich. 


@Implausible wrote:

Sissy - they didn't ask me if I wanted chest or arm, just went straight ahead and popped it near the top of my left breast (cancer was in the right one)

 

Local anaesthetic must have worn off by now but I'm still comfortable.  Other than the fact I'm still waiting for that brie and cranberry baguette I was promised Smiley Very Happy

 

 



@Implausible wrote:

Sissy - they didn't ask me if I wanted chest or arm, just went straight ahead and popped it near the top of my left breast (cancer was in the right one)

 

Local anaesthetic must have worn off by now but I'm still comfortable.  Other than the fact I'm still waiting for that brie and cranberry baguette I was promised Smiley Very Happy

 

 


 

Member

Re: February 2019 chemo starters

Sissy - they didn't ask me if I wanted chest or arm, just went straight ahead and popped it near the top of my left breast (cancer was in the right one)

 

Local anaesthetic must have worn off by now but I'm still comfortable.  Other than the fact I'm still waiting for that brie and cranberry baguette I was promised Smiley Very Happy

 

 

MBJ
Member

Re: February 2019 chemo starters

Hi Sissy60

To be honest I really knew I would be having chemo once my nodes were positive, but the Dr suggested the ONCO test I think it was part of a trial as it has  only really been used and verified in pre menopausal women who are node negative. To fit into the trial I had to have less than three nodes positive. Now I wonder if I should have done it at all as my test went away the week before Christmas and I did not have my result until after New year. I had to wait about three weeks to see the oncologist and another almost four to start chemo. On one had I worry about having chemo and the smallish benefits and on the other had I worry I have been waiting too long and something awful will be going on inside my body. Oh when will the worry and fear ever end - probably never. 

Member

Re: February 2019 chemo starters

Hi MBJ

Always wanted to do Rock choir! Me too re WhatsApp groups I had to drop out of a couple as couldn’t relate and felt I made it feel a bit awkward for others. Yes... we will prevail and am assured by friends who been through it that it does get forgotten. Mmmm! I try to remain positive but reality is not always with success.  And we will rejoin ‘normality’ maybe even better than before. I got diagnosed end of Nov. then given all clear end of Dec then told onco score mid Jan... does your score bother you?? Have they said how it changes recurrence score by doing chemo? I got hung up on mine because it changed the treatment plan even though our odds are still good... it’s seeing it written down that felt so odd.

 

Buddhist monk to hot dog vendor:

’Make me one with everything’ 

xxxxxx