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February 2019 chemo starters

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Re: February starters 2019 - yes, we rule!

Thanks Jencat xx I’m a way away from it but I’ve just heard awful things and I hate taking tablets. You never hear the good things only the bad I know that so it’s nice to know.

 

Is it sad that I wish I could go back months to chemo? 😞

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Re: February starters 2019 - yes, we rule!

I hope you don't mind me butting in on your thread, but I just wanted to give some more reassurance to Edinburd. My friend is being treated for bowel cancer and for some of the time he has been on oral chemo.. He has still been able to continue with his voluntary work x

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Re: February starters 2019 - yes, we rule!

Rosina I had to look up empath and I felt I was pretty much reading a description of D! Maybe that’s why I’ve always been so worried about him. And often not thought of or appreciated his point of view and upset him. What’s the opposite of an empath? I’ve been called a cold fish before! That’s me 😬

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Re: February starters 2019 - yes, we rule!

Just took a selfie, the ‘badger’ thing maybe more to do with me knowing where new growth is . It looks all grey in the photo and I look washed out !

 

AE21B47C-3133-4903-BEA4-EF8FE1751DC6.jpegTired me.

 

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Re: February starters 2019 - yes, we rule!

Oops sorry pressed the post button instead of return button on keyboard midway through. Chemo brain. Anyway I was about to pass a compliment onto Sonia. So let's try again.

 

Sonia28, your friend's hair is great and she looks really happy in the photo. Definitely an inspirational shot. As for your impending return to work can you start back on reduced hours then gradually increase your hours when you feel ready to do more? It might help returning to a working environment less stressful. 

 

Daisydi, only 3 more rad sessions to go☺. When you've completed the final one you'll be asking yourself how the Barrying h e l l did I do that?🤔🤔🤔🤔.

 

Edinbird, I'm with Implausible with regard to how we react to the treatment we receive. Look at how each and everyone one of us had completely different side effects. At the opposite end of the spectrum the gentleman that was starting intravenous chemo after surgery I met last week had been on oral chemo beforehand and had no problems at all.  Just remember we are all different and I'm sure the medics will prescribe you with meds to counteract any side effects in the same way as they did, or in my case, still do, whilst on intravenous chemo. Unfortunately that old chestnut 'Fear if the unknown' is probably lurking in the background. For now just concentrate on recovering from your surgery. If it's one thing I've learned going through this bc is to take one step at a time and try not to think about the next bit until each stage has been completed. 

 

Take care everyone. xxxxxx  

   

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Re: February starters 2019 - yes, we rule!

Hi Daisydi,

 I have 2 more rads to go ( Monday and Tuesday next week) I have been driving myself there and back ( 20 minutes in each direction) not as far as you have to go but still I will be pleased when I don’t have to do it. The summer holidays have worked to my advantage as there is no school run traffic in the morning ( this would have easily added 10 to 15 minutes to my journey in the going up trip).

Like you the booster doses are much quicker. In the evening my boob looks pink but it is not tingling or hurting. By the morning it is back to being pale again. I think the gel application immediately post zap has been crucial. I then lotion up at bedtime.

Fab hair Implausible,

 I am a bit more ‘badger’ as new growth ( on my crown and down the middle of my head at the front) is white ( light grey?) and curly.

My eyebrows are coming through ( I likened them to Velcro at the mo as the eyebrow makeup is lasting for

longer as there is something to latch on to) no eyelashes as yet though- at least none that I can see.

Sonia28 totally get the ‘emotional ‘ aspect to the work you do. I am determined to ‘protect’ myself more this time round. This is not selfish but sane.

Shout out to Edinbird if you are listening ‘SANE’. High stress levels and battling an insane world can ( will) make you ill. Especially if you are an empath. 

Hugs to all,

Rosina

MBJ
Member

Re: February starters 2019 - yes, we rule!

Afternoon Girls

Well I am sitting watching the rain pour down   and it's miserable. I am singing tonight with Rock Choir in the local music festival. Lucky it's in the arts theatre not out side but the downside is we are not on until 8.30pm. Also I have a dry cough and a bit of a cold so will be no asset to the singing at all.

My daughter and family are going back to Abu Dhabi on Tuesday I hope I will be well enough to go and see them in November. It's almost the end of week two of my heart monitor. I have a different one this week that needs to be clipped to a belt which is a bit of a pain. I hope the results will be ok. I have a wonderful social life next week!! Monday cardiology, Tuesday dentist, Wednesday bloods, Saturday bone watsit infusion. 

I am getting a bit impatient with my hair growth too. I think in the beginning it's such a novelty to feel you can go without a wig but now I just want MORE HAIR. 

Edinbird you are having a really tough time at the moment, please concentrate your strength on getting better then you can deal with other things later. I know my BC nurse was always looking for cording luckily I never had any. I think they need to snap them by using massage so ask next time you get seen.

Everyone else you seem to be getting on with things treatments coming to an end or at least moving on to the next stage. 

Have a good weekend I hope the weather is good for you. We will be having our two grandchildren to stay tomorrow before they go back on Tuesday so if it's dry we will be out with the dog and maybe get some ice-cream. 

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Re: February starters 2019 - yes, we rule!

Hi everyone 

 

What a 💩 day, weather wise 🌧🌧🌧🌧☔☔☔☹. It seems as though we've fast forwarded to the autumn🍁🍁🍃🍃. Well hubby worked from home for part of the day so that he could drive me to the hospital in the rain, which I very much appreciated as I'm not sure if I would have been awake enough to drive in difficult conditions. He's at the dentist at the moment😝 which he hates.

 

Implausible, the hair growth looks great and I'm sure it won't be too long before you can take back some control and start to colour it again. My hair is on a grow slow at the moment but at least I've not lost any (yet) whilst on TC. Perhaps I'll try the head and shoulders, that's if Marlyn doesn't buy up all the supplies😅😆😆.  

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Re: February starters 2019 - yes, we rule!

Think I'm getting a bit obsessed with my Aloe Vera Gel.  Whenever I feel the skin is hot I slap it on.  It gives me more relief than the Aveeno but I am using gallons of both!  If it works it would have been worth it though.

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Re: February starters 2019 - yes, we rule!

You're well on the home stretch with the rads now Daisydi - that's awesome.  
If you've got this far without too many problems then hopefully it will stay that way.  
I'm now 3 weeks past the end of my rads and despite being warned that all hell might break loose in the fortnight after they ended, I have (touch wood) had no problems at all.
I am still aveeno-ing the area just in case, but only once per day now, and what little redness there was has gone - as have the new freckles I developed during treatment.

 

 

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Re: February starters 2019 - yes, we rule!

Sarah you look so good.  Those eyebrows!  Mine are growing too and the hairs seem to be growing in all different directions so they will definitely need some attention but I dont want to start plucking them before they've finished.  On another note I have just got back from rads no. 17.  Only 3 more.  The boosters are much easier on my skin and although I do have a red itchy rash all over my chest and a sore red bit by the clavicle the radiographer today said my skin was in good condition at this stage of treatment for a large busted lady.  Lets hope it stays that way.  Looking forward to the weekend for a rest from driving.

Love to all xx

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Re: February starters 2019 - yes, we rule!

Sonia, that does sound like a lot to jump back into from a standing start....

Maybe if you can manage without the extra income for a little longer, you could resume your uni course first and get that out of the way before you go back to work?  Or if that would take too long, delay work until you feel more up to it maybe half way through the last uni year?  

Hopefully you'll figure out a solution that suits.

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Re: February starters 2019 - yes, we rule!

Gonna get me a shed load of that then! Throw the baby shampoo out......

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Re: February starters 2019 - yes, we rule!

Sarah, I’m a family health worker, I work along side the health visitors supporting families who need additional help, lots of child protection families. It can be very rewarding but also very emotionally draining.  I also should be finishing my uni course which I have placements all over the place including the hospital. Xx 

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Re: February starters 2019 - yes, we rule!

The brows are weird!  Should be ok once I've tamed them a bit though.

But yes, the head hair seems to have suddenly sprouted.

I don't know if it has actually helped at all - but I went shopping for some head & shoulders shampoo after chemo left my scalp a tad flaky, and I saw this one:
caffeinehair.jpg
It is more for blokes who are going bald than for post chemo regrowth, but I thought it was worth a try (Rosina, I checked and it is paraben free) - and I've used it in the showers after gym and swimming for the last couple of weeks.  And I swear it is since then that my hair growth has really picked up.....

 

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Re: February starters 2019 - yes, we rule!

Blimey orielly implausible, your hair is looking fab! Has it had a sudden growth spurt? I'm rather envious of your pretty thick eyebrows too....no scouser brows for you! X

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Re: February starters 2019 - yes, we rule!

Afternoon all

Just hopping on quickly between meetings.  It feels weird being at work on a Friday, I didn't used to work Fridays even before the cancer stuff!

 

Sonia, thanks for posting those pics of your friend.  They aren't only reassuring on a hair front, but also from the fact that she looks so damn healthy and full of vim and vigour.  That's brilliant Smiley Happy

 

My hair is now starting to come back in well, although scarily grey! Smiley Happy  my roots always used to be brown so old lady hair is a new thing for me, but I have to say that I don't entirely hate it :

20190816_130551-picsay.jpg

 

My eyebrows and lashes are also coming back, although the brows are growing in a bit strange as you can see!  I think I will have to take the tweezers to them this weekend, which is odd after spending the past month willing them to grow! Smiley Happy

 

What is your line of work Sonia?  I understand your wariness about going back to work, and to be honest I went back too early, I wasn't really physically up to it during chemo....  but even then I found it a reassuring return to some level of normality and I enjoyed that aspect of it.  You might find that you settle back in easier than you think.

 

Edinbird me dear, I really do get it.  Sometimes life serves you all the s*h*i*t at once and it sucks Smiley Sad

But try not to get too worked up about potential side effects of the next batch of drugs.  One thing that being in this group has really brought home to me is how different people respond hugely differently to the same treatments.  You may react to the oral chemo totally the same as that other girl or nothing like her.  And worrying about things like that before they happen is pretty pointless.  You'll just upset yourself further at an already difficult time Smiley Sad

 

I really hope that the coming week with your family visit and spa trip give you a little bit of a lift x  and that the blooming wasps leave you alone!  Just remember the time I was peed on by the giant dog! Smiley Very Happy  at least that hasn't happened to you yet!  X

 

Love to everyone

 

Sarah x

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Re: February starters 2019 - yes, we rule!

Thanks for all the love guys xx I know you think he’s drained me but he gave me something to keep going for during chemo rather than just sitting around feeling sorry which is what I’m doing now. I know it’s not my fault he’s been accused of what he has. It’s hard to take but I know it has to happen right now. I’ve started hearing all sorts of horror stories about the oral chemo and on the one hand I’m dreading taking that without him but on the other if it is going to make me ill I’ve got to stay put where I am. The hand and feet problems with oral chemo sound awful - I know some of us have had skin issues and struggled to get about and it sounds like a worse version of that. I know I might not get that at all but there’s a girl in her 20s just started it on Facebook and she’s got blisters appearing already on day 4 having had violent 💩! Everything just seems too much right now. If just one thing would ease up it would be ok xx

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Re: February starters 2019 - yes, we rule!

A6E64D92-A113-4924-B7FC-CC678EB0662F.jpegMy friend Michelle who had no hair after chemo 7 months later

 

F0DCE4C3-831F-43ED-85A5-7C34D187CCD6.jpegShe is also back to running, the mutter she is

Hi Trixielady I’ve added picture of Michelle and her hair growth, promising for us all. 

I’m sat here in the caravan with the raining coming down hard! The joys of the British weather. 

Edinbird, I agree with the others, you have to put yourself first, big hugs to you 🤗 

 

susie, not too much longer for that PICC line, but I really appreciated having mine. 

 

Sarah, glad your getting back to your old self/ life, I’m struggling a bit, my sick note runs out beginning of September and I’m not sure I’m in the right head space to go back just quite yet, hubby has said no hurry but I know financially it would be better to go back. I’m not sure I could be empathetic with people and their problems atm I feel I don’t have a lot of patience at all. Well we will have to see. 

 

Nettinoo, hope your weather is slightly better than ours today😬☔️ Maybe a reading day xx 

 

Daisydi, not too many more rads to go, nearly there. fingers crossed the skin stays good xx 

 

Ditkat, I found going up and down to the hospital very tiring so when the rads stopped I felt much less tired. Hopefully it will be the same for you.  

 

Rosina loved the photo😄

 

I know now what you all mean about ringing the bell, I’ve still got 5 months till my surgeries, then injections monthly it doesn’t feel like the rollercoaster is anywhere near finished, I’ve been a little down lately, as my Breast surgeon had said to me write off a year and it should be all done and dusted by then, we’ll I  won’t be !!! I got diagnosed at the end of November, with first op in December. I’m so struggling as I don’t feel like me anymore, swollen legs, aches and pains, lop side boob🤪 strange looking hair and I’m not sure she’s still going to be there when it’s all finished. 

Well I better go get ready for my wonderful day In the rain, someone pass me the Prosecco 🥂📚😘😘

 

 

 

 

 

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Re: February starters 2019 - yes, we rule!

Hi Trixielady 

 

Sorry, it wasn't me who has a friend in Australia with bc but I do remember some photos being posted ages ago of someone from there. As it happens my brother has a close female friend out there who I'm in occasional contact with..

As for the PICC line I'm glad I've got it. Yes it's a pain having it cleaned once a week but fortunately I  used to go into Yeovil weekly anyway so I'm not spending extra on petrol. Having had a fairly painful experience when a nurse put in a cannular when I had my last CT scan and a vampire nurse left me a huge bruise after taking some bloods - she wouldn't use the PICC line for some reason- .I'm grateful for it. That said I won't be sorry when it's removed. xx  

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Re: February starters 2019 - yes, we rule!

I really don't get people like that, do they think it's catching???

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Re: February starters 2019 - yes, we rule!

By the way Edinbird I agree with Maryln and Sarah about your friend.  I have had to let a local friend go, in fact she was the only person I knew in Norfolk when I moved here.  I have supported her through thick and thin and she disappeared as soon as I got by bc diagnosis.  I did so much for her especially when she was having dark moments, in fact just after my diagnosis I re-did her cv for her after my first surgery.  I saw her once, when she wanted something and I haven't heard from her since.  She lives 10 mins away and knows I was really struggling with the dogs especially but she was not there for me so I am afraid I dont have time for her anymore.  Apparently she cant do illness!

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Re: February starters 2019 - yes, we rule!

Just another quick pop in as I haven't long got in from work and am starving!  It's weird to think that a couple of months ago I could barely stay up past 7pm and now I'm fully back in the swing of working hard and eating late.  Not necessarily a good thing but I guess it shows I've got some energy back...

 

Just wanted to back Marlyn up really.  Edinbird you know my feelings on the whole situation as we've talked about it before and I still think you have to rip this one off like a plaster.

 

It will hurt like hell at first as it is difficult to adjust to losing someone who was a huge part of your daily life.  But some friendships are healthy and others do more harm than good, and I honestly believe this one was in the latter camp.

And definitely not worth losing your job overSmiley Sad

 

Anything the rest of us can do to make you feel better while you are feeling down, just shout.  Or rant.  Or cry.  Whatever helps.  I promise you that you won't feel this wretched for ever.  Next week will be much better.  Next month much better again.  Time passes and wounds heal.

 

Sending you a giant squishy hug from down south...

 

Sarah x

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Re: February starters 2019 - yes, we rule!

Hi daisydi 

Its strange how time is eventually passing, I actually had my call back on 4th October and was told then and as for ringing the bell I totally can't do it either because with HER2 I don't believe it is just so grateful for herceptin and letrozole and pleased I watched Living Proof. I Know we all have different kinds of BC but its been there and that's enough for me not to ring the bell. Hope you sleep better tonight xx

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Re: February starters 2019 - yes, we rule!

Oh Edinbird, just seen your post. Huge hugs coming your way❤❤❤❤❤❤. Don't allow your bestie you make you feel bad. He should realise that in your line of work you can't always pick and chose who you remain in contact with and he should respect that. It's a situation that you have no control over and I don't honestly think that losing your job is an option. You've got a whole package of emotions to cope with at the moment I doubt very much if you even know which way is up. This bc stuff has been such a lot to deal with at such a young age, you've undergone 2 lots of surgery almost back to back, with yet more treatment to come. Work has been a constant concern for you recently and added to that everybody, no doubt, expects you to be looking forward to your birthday. I think that's more than enough for one person to cope with. So rant, shout, scream as much as you want on here. We're all here for you and listening. 

 

On the arm front I also had a problem with one of the cords and just worked at it over a few days pushing myself as far as I could then tried to give a bit extra. It did improve over time and not a problem now.

 

Take care. You've got some big sisters, aunts and mum's on here looking out for you.  xxxxxxxx 

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Re: February starters 2019 - yes, we rule!

SusieB was it your friend in Australia that has BC?? Just wandering about her hair and its colour and length sure the photo we once seen was a good growth after about 4 months?? Hope she's doing well? My hair is slow at the front and a strange colour xx

Its awful when your mouth & tongue are sore, I used frozen pineapple,

Can't decide if i was lucky or unlucky about the PICC line as my veins still hurt at times.

Hope all goes well tomorrow xx

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Re: February starters 2019 - yes, we rule!

Edinbird,

want to pop in to give you a gentle hug. You have so much on your plate right now, you have to prioritise things and frankly you need to put yourself at the top of the priority list. I know how horrible it is to loose a friend but there's is absolutely nothing you can do ( even if you weren't going through hell) to help him, he sounds like he zaps your energy and you don't have enough spare , you need to seriously consider taking him up on his suggestion that you don't contact him ( I agree with him) I'm sorry if I come across blunt but he's dragging you down into a dark pit with him...you can't afford to allow yourself to go down with him.....

 

you need to heal and recover and when your able to think about work, as you say you need your work.....bills need to be paid....life needs to be lived.....

 

im so sorry again if I sound harsh but I genuinely worry for you if you try to continue this friendship, friendships should be easy....a pleasure...this one seems one sided.....so with much love from one of your pink sisters.....put yourself first....xxxx

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Re: February starters 2019 - yes, we rule!

Oh Edinbird what a mess. Really feel for you with all that you're having to deal with on top on this bc c r a p.  If its any consolation its almost 11 months since my diagnosis on 4th October.  Everything has taken so long.  I met a lady last night who was diagnosed in May and was ringing the bell for the end of her r/t.  Someone else rang it today too.  It makes me cry when people do that and I dont think I will be ringing any bells.  I dont feel that this is over by any stretch of the imagination.  I was so tired driving in today as I hardly had any sleep last night.  People cant believe Im driving myself in every day.  Not long to go now thank god.  Take care of yourself x

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Re: February starters 2019 - yes, we rule!

Hi Daisydi

 

Thanks for getting back to me. Going to swap the Corsodyl back to my usual alcohol free plax and will add lemon sherbets and ice lollies to my shopping list. As for the lymphodeama risk I also sit with my arm raised and find myself exercising it at odd times during the day. I used to do quite a lot of arm and leg strengthening and toning excercises 2 to 3 times per week before bc hit and am beginning to get back into the routine again, very slowly.

As for the Calendar Girls, our friend Rosanne owes me big time. xx    

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Re: February starters 2019 - yes, we rule!

Hi Edinbird, we are all here for you rant away sweetheart its the only thing you can probably do. Try and take one day at a time with work & your bestie its happened and nothing is going to change it, your own health has to come first and  good jobs are pretty hard to come by these days

As for your arm only exercise and time will help that but make sure you mention it to B C nurse, I'm still having slight issues with mine.

oh and bloody hell I've got a phantom itch on my boob. Xx

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Re: February starters 2019 - yes, we rule!

For Edinbird, to cheer her up :

 

 

B2C2725E-EACE-417A-925F-68FAD55F6676.jpegDoing a great job !

 

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Re: February starters 2019 - yes, we rule!

Hi guys xx so so down this week. Because my bestie is locked up work are looking at him/me and when I go back to work it’s highly likely I’ll have to sign something to say I won’t be in contact again. I told him that things are being assessed and he said I’d never choose him (how can I? I’ve got months of cancer treatment ahead I need my job) so he’s told me not to write anymore and he won’t be in contact. So upset. I hope he calms down but it’s almost inevitable. I know I just need to deal with it but on top of everything else it’s unbearable. I have ok movement in my arm for a week after surgery but the whole thing is half numb half sore and I have a huge cord in my armpit 😞 I’m sure the stretches will help and it might have been like this last time as I took ages to remove the dressings but I’m so fed up. Oh, and I got stung by a wasp when I did venture out earlier. I’ve spent the last two days pretty much in bed crying. I’m so apprehensive about going back to work because of D, because I’m meant to start my new role with barely any prep, because of the travel. Oh, and it’s my birthday next week and I hate anything that puts me at the centre of attention especially when I’m feeling so awful. Next Wednesday is 7 months since I was diagnosed and I’m not even halfway through treatment. Sorry for the rant but everything is a total mess right now 😢 

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Re: February starters 2019 - yes, we rule!

Hi Nettinoo,

there is a lovely park bang in the middle of TW. The pantiles are lovely, Fenwicks at the top of the hill. 

Glad you are enjoying your break 👍

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Re: February starters 2019 - yes, we rule!

SusieB if it had been my choice, I’d have gone for the bull and completely hidden myself behind it but you are obviously a very brave lady. I applaud you honey. I can’t wait to hear the next Calendar Girls update.

sarah, I’ve copied and saved all you Bristol info for when I visit my youngest there. So many great suggestions. Daisydi, I am so happy that the rads aren’t causing you too much grief after all the skin problems. 

Spent the morning walking around Tunbridge Wells and had lunch in the sun sat outside a lovely restaurant in The Pantiles (if any of you are familiar with TW). The dogs were fairly well behaved and spent all afternoon crashed out snoozing. I joined them! 😂 xx

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Re: February starters 2019 - yes, we rule!

Susie I had a very sore tongue most of the time and during T it was really white.  I got relief from sucking ice lollies.  Not sure about corsodyl mouthwash as it has alcohol in it I think and it would really irritate.  Also the pharamacist told me anything with lemon was good so I had a lot of sherbet lemons and fresh lemons in water.  Apparently frozen pineapple is also soothing but I didnt try it.  Bought a tin but it never reached the freezer. Also frozen grapes.  

Hope you feel better very soon and that everyone else is ok.  Re: the lymphodema risk I dont think it ever goes away so have to be really careful with lifting, gardening, saunas, hot tubs, jacuzzis, insect bites and radiotherapy can bring it on too.  I always sit with my arm raised on cushions and sleep with it raised too, when I can sleep!  Not sure about the underwired bras as I couldnt imagine putting one on for a very long time.  Also my underarm is still numb a bit and that op was in January.  Takes ages for the nerves to repair.  You are very brave on the calendar girls front.  Well done x

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Re: February starters 2019 - yes, we rule!

Thanks for replying Sarah

There’s some pretty awesome suggestions there, really appreciate you taking the time 😊 

We go on the 25th so can’t wait now. Just hope I’m less tired from rads by then (finished yesterday).

Cheers, Di 😘

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Re: February starters 2019 - yes, we rule!

Hi everyone 

 

Sun is finally shining here in Somerset🌞 and I'm more awake than I was on Tuesday😊.  Hopefully I'll be able to drive myself to hospital tomorrow for PICC care otherwise hubby will have to take me in then return to Yeovil for another dental appt - root canal treatment😝☹.

As far as TC side effects go I've now got a rather sore tongue and foods tastes bland to say the least. Fortunately no sign of oral thrush. Did any of you have this problem and if so was there anything that helped? It was quite painful overnight and kept me awake during the early hours. I'm currently using corsodyl mouthwash and sesame oil as recommended by Rosina. 

Right, Calendar Girl update, eeeeeeeeek😲. So it's definitely happening and photo sessions are starting next week. They're being held at various locations each with different themes so it should be fun. We each choose which shots we're interested in participating in. I've declined the one with a bull🐂😆. And yes, it's a real one. I'll let you know how it goes next week. 

 

Implausible, I'd forgotten how much there is to do in and around Brizzle. Believe or not I've never been since we moved here. Hubby goes sometimes to do with work and he did travel up to Abbey Wood to work for 4 years, so perhaps that's why we've never really been as tourists when Chris got older. We did more of the fun stuff in Dorset and Devon. Balloon Festival would be good to go too, weather permitting.

 

Daisydi you're definitely on the rads home straight now. Well done😊.  Fingers tightly crossed that your skin continues to remain in fairly good condition🤞🤞🤞🤞.  

 

Trixielady, all this stuff about what we can and can't do after ANC doesn't always seem that clear. I didn't think I could carry anything heavy at all on my operated side. As for bras I read something the other day that seemed to indicate I could never wear a wired bra. I think I'll check with the medics to get clarification. As for numbness I had hubby poking at me the other day so that he could get an idea of what I was having to deal with. He couldn't believe I could barely feel him touching me in some places.  

 

Hope everyone is ok. I've truly lost the plot now on what many of you are doing. Edinbird and Deano I fine with as you've both just had surgery the same as me. Hopefully me and my chemo brain😩🤤 will catch up sometime😃😃🤣. xxx

 

  

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Re: February starters 2019 - yes, we rule!

Hi everybody, hope you are all well

 

I'm still trying to find time to do one of my usual giant posts, but in the meantime, let me cover off my Bristol tourist board duties for DiKat, before I leave it so long that her trip has been and gone!

 

Bath-wise I think the others have covered it well - I definitely second Rosina's recommendation of the Fashion Museum. I really didn't expect to find it that interesting, as my idea of high fashion is jeans and a t-shirt, maybe a hoody if it is chilly out, but it really is a great museum.

 

And yes, the actual baths are a tourist trap, but worth a visit. Just don't go swimming in there Smiley Happy

https://www.mirror.co.uk/news/uk-news/hippy-went-three-hour-dip-18798122

 

Just outside Bath you have Dyrham Park which is worth a visit if you like a good stately home and deer park.... https://www.nationaltrust.org.uk/dyrham-park

 

OK - enough of the fancy stuff - back to Bristol Smiley Happy

 

I know I'm biased, but I'd definitely recommend going on the Where The Wall street art tour - I think it got voted best thing to do in Brizzle last year, and your teens would love it. Try to book one of the tours hosted by John Nation, he is a fascinating dude - he was Banksy's youth worker back in the day, so he has a LOT of interesting anecdotes to tell.

http://www.wherethewall.com/tours/

 

My second favourite thing to do in Bristol is a visit to the observatory in Clifton. It' an amazing place with the most wonderful views:

clifton_obs.jpg

 

There is a Camera Obscura inside which makes even the most cynical teenager utter a little "wow", and a really cool passageway through the caves which emerges at this little balcony carved into the side of the Clifton Gorge. It is quite the experience!! Honestly, it's hard to explain how cool the whole place is, just trust me.

 

Also - just near there is the rock slide - if your teens want to go down it, make sure they aren't wearing their favourite/most expensive clothes, as I've seen a lot of ripped trousers Smiley Happy It is so much fun though - you don't half go down fast!!!

clifton_slide.jpg

 

And of course you can take a walk over the suspension bridge.

 

More traditional things to do, but well worth your time - the SS Great Britain, Bristol Zoo, We The Curious (an interactive museum with a really good planetarium). There are also lots of other great museums and art galleries.

 

For independent shops and quirky stuff - including great street food - go to St Nicholas Market (open Mon-Sat)

 

As for places to eat/drink - the best people-watching spots are down at the harbourside....set your google maps for Za Za's Bazaar (giant, good quality buffet restaurant, highly recommended if your kids have good appetites) which will take you to the heart of it - most of the restaurants and bars down there have places where you can sit outside. And while you are there you can have a go on the ferris wheel or take a family photo in the reflection of the big silver disco ball (which houses the aforementioned planetarium) :

Millenium-Square-Bristol.jpg

 

If you want a more traditional pub with a warm welcome, great food, and some awesome street art and graffiti all around the courtyard, I'd recommend the Rope Walk pub in Bedminster. If you are there on a Tuesday night, you could do the Blood and Butchery tour, which sets off from the Rope Walk, it's a lot of fun:

https://visitbristol.co.uk/whats-on/blood-and-butchery-in-bedminster-p2390003

 

There are also a few good theatres - the Hippodrome has the big blockbuster musicals etc - the Bristol Old Vic is a little more "cultured", and the Tobacco Factory Theatre is a bit more hipster Smiley Happy In fact the whole area around the tobacco factory, up and down North Street in Bedminster, is another cool place to hang out. Lots of really trendy eateries and bars. And interesting shops and pop up galleries. And yet more GREAT street art.

 

Hopefully that's enough to give you a taster. I'm sure that you will have a great time in the South West.

Sarah

 

 

 

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Re: February starters 2019 - yes, we rule!

Hi Marlyn 

It showed up on Facebook and I thought why not saying I'd been diagnosed last year but they only advised no paracetamol and to watch my diet, apparently they carry out a fibroscan and  bloods, clinical trials held by Synexus 1565823145718955877792787317704.jpg

 

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Re: February starters 2019 - yes, we rule!

Well 15 down and just 5 boosters to go.  Whoop whoop!  Skin not too bad just a bit of a prickly heat rash and a sore bit but not broken down yet.  Fingers crossed x

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Re: February starters 2019 - yes, we rule!

Hi everyone 

 

Just found a video on YouTube filmed by CancerResearch UK demonstrating excercises for lymphodeama. Think it's only beem released recently. Sorry I don't know how to put a link in but it's easy to find. xx.  

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Re: February starters 2019 - yes, we rule!

Susi,

mine was picked up on a scan years ago, I was totally gobsmacked, I'm completely teetotal....I was told I store more fat in my liver than normal, and must try and keep to a sensible weight....chemo had other ideas! Xx

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Re: February starters 2019 - yes, we rule!

Trixielady, I will be starting Anastrazole and possible a bone med but possibly need an updated bone scan and dental check first. So that will be sorted at a later date. 

SuzieB I’m so happy to hear you only have 2 more to go but I know that will seem2 too many. 

Deano, I feel for you, so much going on to affect you emotionally. Sending hugs. Xx

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Re: February starters 2019 - yes, we rule!

Susie B and Rosina

Thank you so much, some fab suggestions there xx

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Re: February starters 2019 - yes, we rule!

Hi Dikat ,

if you like nature and walking I highly recommend this place 

prior-park-landscape-garden

It is National Trust.

It is sign posted from Bath Town Center as you can walk it  as I have done  about 35 - 40 minutes ( all up hill to get there and all down hill to get back) or catch the local bus.

Also the canal walks are pretty and tranquil ( and a good escape from busy town streets) actually a hidden gem IMO.

The Assembly rooms and the Fashion Museum ( the same ticket got you into both places- or at least it did 4 years ago).  Daughter and I visited the fashion museum and it was definitely worth the effort. 

The Roman Baths were interesting but  heaving with Tourists when I was there.

 I also recommend this place to stay 

http://www.paradise-house.co.uk/

I got a good deal via Booking.com and I would go back in a flash.

Gorgeous garden, excellent breakfast and fab location.

This place is famous 

.thermaebathspa.com

but I didn’t visit as we had gorgeous sunny weather and I preferred being outside.

Have a great time,

Rosina

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Re: February starters 2019 - yes, we rule!

Hi DiKat

 

Just jumping in on what to do in Bath and Bristol. If your hubby likes aircraft Filton Air Museum may be worth a go. For you and your daughter definitely Bath for the shops. Don't forget the Royal Crescent. 

Susie B xx

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Re: February starters 2019 - yes, we rule!

I'm intrigued🤔. What's a non-achohol fatty liver?

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Re: February starters 2019 - yes, we rule!

Trixelady,

glad you got your scans sorted....tell me more about the liver trial? I have non alcohol fatty liver...have you??? Xxx

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Re: February starters 2019 - yes, we rule!

Hi Deano

 

Good to hear from you☺. I was getting a little concerned. You seem to be going through it at the moment with your son going away plus the seemingly never ending treatment. I'm not surprised you were reduced to tears when talking through the rads side effects. I'm sure your son will cope well with his career in the army. An aircraft technician is an excellent choice as that is a  skill that will transfer well to a civilian career if and when he leaves the army. Not that I'm biased in any way but my hubby joined the RAF as an electical/mechanical aircraft technician and has never been unemployed. As for the rads I'll be having the same as you, I think, but don't know how many sessions I'll need. My onco is a man of few words but I'm seeing a different one next time, I've seen her before, so I will probably fire all my questions at her. The hot tub sounds lovely and at least you can set the temperature to suit your needs with regard to the lymphodeama risk. Susie B xxxx. 

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Re: February starters 2019 - yes, we rule!

Thanks SusieB, I'll certainly have a look. 

Edinbird what's this about hot tubs and so on? My mam also keeps telling me off for lifting heavy things and over using but I thought it was only whlist healing saying that my arm is still numb underneath its been 8 months!

Nettienoo what medication are you going to start on?

Hopefully everyone is doing the best they can. 

Well got a bone scan later today and a heart scan on Monday also taking part in a non alcohol fatty liver trial on Friday xx