61666members
325326posts
cancel
Showing results for 
Search instead for 
Did you mean: 

February 2019 chemo starters

MBJ
Member

Re: February starters 2019 - yes, we rule!

Hi Edinbird and Implausible

I asked my physio in Lymphoma clinic last week about going in a jacuzzi she told me yes it was fine. Mind you my cardiologist my have other ideas. Week two of the cardiac monitor, fitted with a different one today and it has three leads this time and needs to be attached to a belt. Not great if I want to wear a dress.

I have a jacuzzi bath here at home and I have used it since my surgery. But not a great deal as I prefer to shower really. 

Going to try to catch my sister in now she was engaged   a minute ago we need to look at shore excursions for the cruise 😃.

Member

Re: February starters 2019 - yes, we rule!

Sarah lucky people with a reasonable number of lymph nodes can take a bit of heat. Those is us lymph node lacking cannot. So no more hot tubs jacuzzi steam room sauna or even a hot bath! Well we can risk it for short periods if we want but really need to avoid anything that puts too much strain on the lymphatic system as we could end up with fat arms 😬

 

Missy doesn’t want to go on a diet she’s happy with the size she is so I’m wanting to avoid where I can. Although I’d like to do more about the lymphatic drainage self massage and brushing and things like that, left a message for the physio as she’s still not called me 😕

Member

Re: February starters 2019 - yes, we rule!

Nettie I don't think there can be any grand harm in delaying the start of the hormone tabs and giving yourself a little break to recover from the non stop medication, before launching into the next lot, as my docs don't seem to be in any hurry to give them to me.... I don't even have my appointment with my onco to *start* discussing onward treatment (zoledronic acid, hormone tabs) until end September....

 

and what's this about not being able to go in hot tubs???  I've been in the hot tub at the gym at least 3 times this week!

Member

Re: February starters 2019 - yes, we rule!

Hi everyone 

sorry ive not been on my lad joined Army last week as an aircraft technician and been helping him get his stuff costs a small fortune and emotional goodbye as he was a Little Rock to me...

I am still waiting for my appt to start my rads for 3 wks gotta have it on my boob armpit and neck and having some booster in my boob - I cried when onc went through the risks regarding my lung and having rads if you don’t go through enough.

my lump in armpit has finally gone gown this week I told myself I wasn’t having it drained again after the nurse was not very nice the last time. My nails are still shocking and ends are numb still

Also bought a hot tub and it’s bloody marvellous I think this helped my armpit to be honest by water massage

i have read through loads of your posts and although we are near the end we still suffer- hopefully we are through the worst and now recovering- tamoxifen hadn’t yet caused me any issues other than waking in the night but once said I’ll be on it over 10 years and small risk of ovarian cancer (ffs really) well I’m still here taking each day as it comes 

Hope you all have a good couple of weeks 

Deano xxx

 

Member

Re: February starters 2019 - yes, we rule!

Nettienoo, totally understand your delay with anastrozole, I delayed mine until I knew I had a "clear run" I started mine on July 4th and like our daisy have been absolutely fine, so I'm confident you will be too....have a lovely time x

Member

Re: February starters 2019 - yes, we rule!

Sounds lovely Nettienoo.  Have a great time.  I have been on the Anastrazole a week now and dont think I have any side effects so far so dont worry too much x

Member

Re: February starters 2019 - yes, we rule!

Hi lovelies, I’ve just managed to catch up with your posts. Sorry to see that you are suffering Susie. I wish I could press a fast forward button for you. It must seem never ending. Special hugs. Also for you too Daisydi, Sonia and Edinbird. Marlyn, the constant styles sound a right pain in the butt. I’ve never had one (yet) but imagine they are flipping painful. Hope they stop when the Herceptin does. Sarah, the results of your tidying look amazing. It must feel quite therapeutic having all your supplies so neat and accessible. We arrived in Kent yesterday after a pretty horrendous 5 hr drive. We came through torrential rain and lightening on M25. Did lots of crawling along on various roads but the doggies were really good. Luca is very laid back in the car and Callie has diazepam from the vets for travel so she was in happyland. It was pouring down when we got here but lovely and sunny today. Just lazing about recovering from yesterday. I still haven’t started my Anastrazole yet. Will do it when holiday finished. I hope I’m not causing problems by leaving it for a bit but I just didn’t want new side effects whilst away. I’ve noticed the nerves are repairing on the surgery line under both boobs. It was numb before but now I have feeling and they feel rather sore. They look alright thought so may be just a change of bra needed now.its nearly 10 months since diagnosis for me. I’m sure everyone will know the feeling of life having been on hold. I’m hoping a change of scenery and peace and quiet will help me to start feeling more normal. I appear to have capsular constriction (I think that’s right name) going on in my reconstructed boob. I am due to see the breast surgeon sometime soon and think she will tell me it needs correcting so I don’t think my bc experience is finished in any way. I’m just making the most of a little break in the barryness. My foggy brain seems to be improving a bit now at 5 weeks since last chemo but I’m still having a real problem with names. Anyone else having this problem? It’s making me look really stupid sometimes. 

I hope Seaside’s flight went ok and she is now in Orlando loving every minute. 

There is no WiFi on this campsite. We are right out in the countryside surrounded by oast houses and pretty villages. 4g is very intermittent so will just jump on forum when I can. Love you all. Xxx

 

Ps will try and post pic. X

Member

Re: February starters 2019 - yes, we rule!

Hi Trixielady 

 

Re lanyards at the airport I'll update you later when I'm a bit more 'with it'. When are you going away? You can either have one posted to you or collect at the airport. You don't need medical evidence.

Susie B xxxx   

Member

Re: February starters 2019 - yes, we rule!

Hi everyone 

 

Well TC is making me absolutely knackered😪😪😪😴😴😴 and aching. Didn't realise how much I was aching until I took some paracetamol. Rosina, I'm not quite at the suit of armour stage but not too far off. Despite the tiredness yesterday I did manage to get outside yesterday afternoon and dead head all the geraniums that had got battered by the wind and rain. No chance of doing it today as it's currently pouring down with rain🌨🌨🌨🌨🌨.  

 

Shame Boardmasters was canelled sonia28. Who'd have thought the weather could be so bad at this time of the year. I hope your skin continues to improve. I'm beginning wonder how mine will react to radiotherapy as I am prone to eczema and not sure how my skin will cope with creams I've never used before. Guess I'll just have to wait and see.   

 

Implausible, I'm impressed with your craft area☺. 

 

Edinbird, I hope the hotel comes up trumps and let your husband use the facilities instead of you. The risk of lymphodeama is a pain. When I was booking for Iceland I found myself looking to see if the hotels I was looking at had outdoor hot tubs with the romantic idea of being sat in one watching the Northern Lights.  Then I remembered☹☹☹😩😩. I may ask and see if a 5 to 10 min dip might be possible. Fortunately I've done the Blue Lagoon a few times so wasn't bothered this time. Hope you continue to recover well from your surgery. Just keep an eye out for any growing tennis balls and ensure you get the area drained if necessary. It doesn't hurt at all.

 

DiKat, good to hear from you. A meet up within your group sounds lovely. A chance to meet all those that have helped you throughout. And you're quite right, 9 months since diagnosis is a long, hard slog. I'm the same as Marlyn 8 months since diagnosis and finding it particularly hard at the moment. Doing a trial and having 8 rounds of chemo doesn't help.  

 

Noticed some chat about visitors. I'm sure my Mum wants to see me and I'm wondering how I can delay any visits until Christmas. Going through chemo and avoiding relatives I don't particularly want to see, as I can use side effects as a reason is easy, tired, low immune system etc.  Between chemo and rads isn't going to be so easy to avoid seeing her or my brother for that matter. I just want to get on and go through my treatment and not be told how well I look, how it's nearly finished, you know what I mean.  

 

Anyway must love you and leave you for now as I am going brain dead. Not sure if what I have posted makes much sense. Forgive me if it doesn't. Only 2 more sessions of chemo brain to look forward to😆😆😆😅. xxxxxx  

Member

Re: February starters 2019 - yes, we rule!

Morning lovely ladies 

Nice to hear hear from you Dikat 

Whats this about lanyards at the airport??

I was supposed to be getting assigned support at the airport but they want another letter  last one is apparently out of date, so hopefully can pick that up tomorrow.

Happy birthday or belated Sar xx

Member

Re: February starters 2019 - yes, we rule!

Sonia, yes...that's the stuff! Flamazine....I only used The hydrogel they gave me until the skin healed over....anything else stung like hell....it's mind boggling isn't it? If rads can do that to the surface, what's it doing/look like inside?? The underneath of my other boob was affected too but not so bad....it must have been in the line of fire! Xxx

Member

Re: February starters 2019 - yes, we rule!


@Marlyn wrote:

Sonia,

i never stopped slapping on the cream, I just made sure I didn't slap it on before I got blasted...my skin took an awful long time to get get better and heal....what you using? Mine only got better when I used the stuff they gave me....xx


I’ve got Flamazine to use on the site area which is almost all of it now, it was doing so well until nearly a week after radio finished and I was still using aveeno and aloe Vera gel. The Flamazine has silver in it to help the healing. The two areas that were a little red have all but cleared up, my scar line and under my arm pit are still red, the good thing as I don’t have a lot of feeling along the scar line that doesn’t hurt, and I think it’s just the movement in my arm that causes the discomfort now. They said not to use moisture when using  the cream and area sore, but unsure when to start up

moisturising again.   

Member

Re: February starters 2019 - yes, we rule!

Hi DiKat - let me know the types of things you like to see and do - Bristol has so much, I'd need to narrow it down.  It's a great city to take teens to.  Bath is also lovely, but in a posher way Smiley Happy

Member

Re: February starters 2019 - yes, we rule!

Hi Marlyn

The hycosan are the blue ones, just to put moisture back in the eyes so readily available.

I’ve had 8 Herceptin now so 10 more to go. I have mine with Pertuzumab IV due to latest research saying it ups the odds, only very slightly I think. I’m different to you though because I’m completely Her2, tested neg for Oestrogen and Progesterone, and was stage 3. Fingers crossed 🤞 you get to finish after 9. At least that would be 1 less drug in your system xx

Member

Re: February starters 2019 - yes, we rule!

Morning dikat,

lovely to hear from you. I'm defo putting my styes down to herceptin, I have just got rid of one and now have two coming on on the other eye(!) they get so sore and itchy....I shall enquiry about the hycosan eye drops in the chemist....unless they are POM? I'm hoping I can cease herceptin after number 9, the onco did mention the  trial at the very beginning....fingers crossed!

 

 

I agree, it's certainly a long hard slog, it's been 8 months since my diagnosis.....xxx

Member

Re: February starters 2019 - yes, we rule!

Good morning ladies 

Thought I would pop by and say hi to you all. Good to see that most of you are doing well and sending hugs to those of you that are still going through it with treatment and medication side effects. 

I’m just coming to the end of my Radiotherapy. Have 2 more left out of 20. Although it’s nowhere  near as bad, physically, as chemo I have been surprised by the effect it has had mentally. I think it’s a mixture of the travel, tiredness and being around other people in a far worse state. It’s been 9 months since diagnosis so also feels like a long hard slog! I just wanted to comment on your post re the Herceptin and sty’s Marilyn. I’ve never suffered with them before but have had a couple of small ones and I am on Herceptin so wonder if there is a link?? I do seem to suffer with my eyes now. I went to the opticians last week and she said they were very dry. She recommended that I use hycosan eyedrops indefinitely. Asked her if it was due to chemo and she said medication and hormonal changes are both factors so double whammy there then!! You may have noticed our Dec forum has gone a little quiet. We have set up a Facebook messenger group as we have been arranging our meet up so really excited about that 😁

Sarah, I hope you don’t mind me asking but me, hubby and kids age 17 & 15 are going to Bristol/Bath at the end of the month for a few days. Never been before so wondered if you have any recommendations for ‘must do’s’. Loved all your pics of the street art.

Sending you all love and 🤗🤗🤗 xx

Member

Re: February starters 2019 - yes, we rule!

Thanks Rosina I suppose I could... I might need to!

 

Had a shower and took off the drain dressing that area looks fine. Went for a walk for about 45 mins gentle pace and left hand in my pocket to keep it comfortable but now I’m home I’m tired and cold. Hopefully I can sleep, I’d rather be cold so I can warm myself up with the flushes! My eyelashes look so much better than last week although I have a few mutant really long ones!

 

Had some good news from the hotel who said husband can come to the spa day too but then they backtracked and said they’d need to check... might have to pay too. Will hear tomorrow. I’m not using stuff so he might as well, don’t mind paying for extra lunch but don’t really want to pay for him to swim. Hoping they’re nice given the situation.

 

Not got hold of the physio so hopefully I’m doing everything right!

Member

Re: February starters 2019 - yes, we rule!

Hi Edinbird,

this bit made me grin :


“@@Edinbird wrote:

I know it’s my birthday but I’m going to be so fed up of having people around me constantly by then. Can’t exactly say no.”

 

A friend of mine asked me what I am doing for my birthday and I said I am going off camping to walk in silence with 6 other strangers 🤪

 

Daisydi , I enjoy my own company and my own space too.  Any ‘sane ‘ adult , human being should .

 

Edinbird you could always excuse yourself for a nap and disappear to your bedroom couldn’t you???

 

 I had a friend/colleague  over for lunch today. It was good to catch up , but 3 and 1/2 hours later I wanted to flop. It’s not anti social it is self  care 👍

 

The R1/R2 is working very well. No burning or itching.

 

Safe journey Seasidesar.

 

Hugs to everyone,

Rosina

 




Member

Re: February starters 2019 - yes, we rule!

Sonia,

i never stopped slapping on the cream, I just made sure I didn't slap it on before I got blasted...my skin took an awful long time to get get better and heal....what you using? Mine only got better when I used the stuff they gave me....xx

Member

Re: February starters 2019 - yes, we rule!

Afternoon ladies, 

I'm still here too, just lacking in internet and kids keeping me busy. 

Wow 8 hours sleep Marilyn, that sound lovely. I wake several times in the night with hot sweats, and struggling at the moment with my sore arm pit, but hopefully that wont last much longer. I needed to ask you, when your area stopped being sore when did you begin to moisture again, as the all the areas are beginning to dry out where I'm using the cream.

 

Daisy, its just keeps giving I know you've suffered lots of side effects, hope the eyes settle soon. it must be so hard with all that driving too.

 

Sarah, I love your craft room, I love a good sort out.

 

Seaside Sar, enjoy your holiday xx

Susie, I hope the side effect don't last much longer, boy I hated them.

Edinbird, take is easy on yourself, and try and relax as much as you can.

MJB, how did the french toast go? 

Better go can here the fisher boys coming back from the beach wonder if I have any tea? Smiley Happy

 

Take care all xx

Member

Re: February starters 2019 - yes, we rule!

Maryln 8 hours wow Im so jealous!  I too have been suffering with my eyes.  So sore, swollen, red and itchy but no styes yet. I'm putting it down to my eyelashes trying to grow back and the follicles being irritated.  My friend who had bc last year kept getting styes and she isnt on Herceptin.  She only had 3 rounds of CT and is on Anastrazole.  Hard to understand  what causes what side effects.

Speak later have got to go out and put petrol in the car.   It is costing me a fortune travelling up and down to Norwich every day. x

Member

Re: February starters 2019 - yes, we rule!

Daisy, 

since the menopause I've struggled enormously with sleep, it's very much hit and miss with me now, the other night I lay awake until 3am.....last night I got off in about an hour, and awake around 7am...so about 8 hrs....result!!! So I can't blame the anastrozole. What I am getting now though are loads of styes, I asked the onco and he said unlikely to be herceptin but the chemo nurse said likely to be herceptin (?) will be interesting to see what happens when it finishes beginning Nov....xx

Member

Re: February starters 2019 - yes, we rule!

Edinbird good to hear from you.  Its sunny here in Norfolk but I cant go out without a hat and scarf so I'm sort of stuck in too!  Know what you mean about visitors.  A friend and her daughter want to come to stay at the beginning of September but I would rather they didnt.  I'm finding I am a lot less tolerant of people, even if they are nice, but I need a lot of space and the thought of two other people living here fills me with dread.  Also I have only just started on a major clean up and this then puts pressure on me to get everything done and I cant cope with pressure at the moment.  Its good you are not in too much pain.  I think I eventually just took painkillers at bed time so I could get some sleep.  On that note I cant sleep again.  I am waking up every couple of hours so never feel like I have had a proper sleep.  Wondering if it might be the hormone tablets.   Did they affect your sleep Maryln.  Wouldn't be normal for me not to have any side effects!

Member

Re: February starters 2019 - yes, we rule!

Morning lovely ladies,

 

Didn't think I was going to get a chance to pop in and say hi before I leave for Orlando but since my flight is delayed it gives me a chance for a quick natter.

 

I have had a busy weekend what with Newmarket on Saturday (didn't win a thing!) and packing yesterday. Then headed to the airport last night as we're flying from Manchester. Got my lanyard, thanks for the tip Susie, and here it's a sunflower one. Has been very helpful as I am struggling with the standing up and walking. So I've got my seat in the priority section and I'm feeling a bit calmer now.

 

I'm sorry to hear some of you are suffering SEs, Sonia, Daisy and Susie,.hope it all settles soon.

 

Sarah,.your art stuff looks fab! As a teacher I particularly appreciate that as I love things looking organised. My classrooms always have the tidy look about them.

 

Edinbird, sounds like your starting to recover. Hope you get your full range of movement back soon. It's depressing not being able to go in saunas and hot tubs isn't it? Hope you have a nice weekend with your parents.

 

Right, should be boarding soon so better get ready.

 

Have a great week everyone.

 

Sar xxx

Member

Re: February starters 2019 - yes, we rule!

Thank god you're all still here , I get so used to dipping in and out of everyone's lives, I'd wondered where you'd all gone! 

Daisy, ouchy...the itching drove me nuts too...hope the rest of it goes off smoothly...

 

edinbird, good to hear from you love, totally understand about the " too peoply " situation...a week? Oh boy....keep strong and pray for patience..

 

implausible, very neat arty corner...I do love straight lines and order....

 

susie, thinking of you getting through the chemo fog, you're well drilled now love, just do what you gotta do to get through it, how many more now? 2? 

 

im hoping everyone else is doing ok....and yes, it is a good sign that we're getting quieter, hopefully it means we cracking on with life...

 

love you all xxxxx

Member

Re: February starters 2019 - yes, we rule!

Hi everyone 

 

I'm here☺. Will catch up later. Chemo side effects are making me sooooooo tired😴😴😴😴😴😪😪 at the moment. xxxxx

Member

Re: February starters 2019 - yes, we rule!

I’m here! Managed to grab a dressing gown chuck it on run down the stairs and find a key whilst the postman waited so that’s progress! I feel very much like a did last time but just with a smaller range of movement and more numbness. The arm doesn’t hurt really although certain movements (like walking) can bring some discomfort. So I’m back in the why do I need painkillers for no pain position.

 

The weather here is just on off heavy rain and sometimes some sun (seems bright now) so not sure whether I’d want to be going anywhere. I have emailed the spa for next week telling them I can come but I can’t use most of the facilities (ever!! Seems I’m to avoid hot baths and saunas from now on as it’s a lymphedema risk) and they may have to modify the treatment too (not sure any massage onto my chest would be good and again, nothing on my left arm or hand) - so I’ve asked if maybe my husband can use the facilities instead since he’s got to drive me and then wait about for hours or drive home again. Fingers crossed for some nice compassionate people.

 

My parents have decided they are coming next weekend. That’s ok but it means because I can’t get myself to the spa that I won’t have a single moment to myself from Friday evening this week right the way through until the following Sunday evening. I know it’s my birthday but I’m going to be so fed up of having people around me constantly by then. Can’t exactly say no.

 

I know Susie and I are on the drag with our treatment compared with everyone else but it really feels like most people are moving on a little bit. And quite rightly so if you can. I know that actually some of you will be taking things for years and of course it never really goes away but when I still don’t know if the surgery phase is over and I’ve still got so much active treatment to come, it’s pretty depressing.

 

Anyway the physio I missed on Friday when I was in the shower called and wanted to go over the leaflet with me (which the nurse already did but good that she’s following up) so I’d better give her a call. If there is fun to be had let’s see please! Sar I think you win once you get to America! 🇺🇸

Member

Re: February starters 2019 - yes, we rule!

Very impressed Sarah!  I'm trying to get my house in a liveable condition but I cleaned the filter on my hoover and now I'm finding it really hard to push and I can only do little bits at a time.  It will take about a year at this pace!

Member

Re: February starters 2019 - yes, we rule!

I'm here Marlyn.  I was thinking the same.  I now have a red rash and itchy chest and neck which is driving me nuts.  Only 8 more ....

Member

Re: February starters 2019 - yes, we rule!

I'm here.... still trying to find time to reply "properly" (and the longer I leave it the longer a mammoth reply is going to take me!)

 

Back to work tomorrow, so I should be able to do it then.... unless they actually have something for me to do.  My work only has two settings, sitting around bored all day with sod all to do, or mental crazy busy and you don't get home till it's dark.... let's see which one I get!

 

I am taking the fact that this group is getting a teeny bit quieter as a good sign, shows that slowly but surely we are mostly starting to feel a little bit more human again, and are out and about or busy at home and therefore have a little less time for online nattering....  (unless like our Edinbird we are post op and stuck indoors Smiley Sad )

 

I'm just about to go out for my weekly walk with t'other Sarah.  And then this afternoon it's back to the craft room clearout.  Yesterday my other half put up some racking for my paints and it is nice after 2 weeks of solid hard work to see it all starting to come together.  Still so much work to do though, hence I'm only sharing a photo of this one corner Smiley Very Happy20190811_202129-picsay.jpg

 

Catch up with everyone properly tomorrow, hopefully.

 

Love to all

 

Sarah x

 

Member

Re: February starters 2019 - yes, we rule!

Where are you all? Have you all gone off on a secret holiday and not told me?? Feel like Billy no mates here....😩

Member

Re: February starters 2019 - yes, we rule!

Sonia, yes, mjb is right, the 2 pills in the morning are the faff ones....the clondrate....then I have to take 2 chewable extra strength calcium....but I have the pre cursor to osteoporosis, so am happy to take them plus they have the added bonus of helping to prevent cancer going to the bones, so I really shouldn't moan about everything I have to take, I think myself lucky that I have all these options...

you sound like your reacting to rads like I did....I had the silver cream too....which I could use afterwards...it really did help...my skin bled too....I do hope your managing it ok....I was obsessed about it getting infected....

 The film blinded by the light was a joy! Thank for the recommendation Rosina....it really lived my mood....

edinbird...hope your doing ok? 

Daisy..glad the anastrozole isn't turning you into a walking side effect....I was absolutely convinced I would be! But as all know by now, I'm never one to over react.....lol!

 

hope today is kind to everyone.....keep trucking ladies.....( just had to make sure i spelled that right) 

xxxxxx

MBJ
Member

Re: February starters 2019 - yes, we rule!

Hi Sonia28

I hope your skin will settle down it sounds really horribly painful. I think the bone infusions and the calcium tablets are two different things. Marilyn is having an oral version of the actual bone infusion so it's not the same as us taking the Calcichew. 

I am having the same regime as you 6 monthly infusions plus I take a calcium tablet every day. So don't worry about drinking the water or eating as it's not the same medication. I know it's all confusing as we are all having similar treatments but often there are differences too.

Our train day out was really nice and the weather stayed dry in the Shrewsbury flower show until it was almost time to leave. Tired today so have not done much at all. Grandson here staying the night hoping for French toast for his breakfast, but as he is 12 at least it won't be at 6am more like 11am😴.

Member

Re: February starters 2019 - yes, we rule!

Nice to hear from you Sonia.  I am so sorry about your skin.  It must be so sore.  I am keeping an eye on everything.  Im using a lot of Aveeno and if it feels a bit burny Im putting on the Aloe Vera Gel.  Cant do anymore than Im doing.  Just hoping it doesnt get any worse.  At my review yesterday she said the effects would peak after 1/2 weeks after last dose.  Im a lot better when it isnt so hot as my skin goes very red and itchy when Im hot and also I think the Anastrazole may be giving me hot flushes.  Oh the joys ....

Take care of yourself xx

Member

Re: February starters 2019 - yes, we rule!

Hi ladies, 

everyone has been busy, I’m still up the caravan. I have had to have a trip into the hospital to see the radiotherapy team, as my skin after being great all the way through radiotherapy is

now looking like something out of V, it’s all melting away and is red raw underneath. I have some cream with silver in it to help, the worse place is in my arm pit 😞 no swimming for me.

Both my older two were devastated as they were all ready  for boardmasters and it got cancelled due to the bad weather. Good old British weather. 

 

Susie I’m glad your feeling okay after chemo long may it last 😘 I understand totally where your coming from with your umbrella, having a bit of a blue day myself today. X

Edinbird, glad the surgery went  well, take care of yourself and take the pain killers as everyone else has said. 

Seaside Sar, how exciting off to see your daughter, I’m very jealous. 

Sarah, a lovely picture of the pair of you, looks like your enjoying your time off. 

Marilyn, I have to take calcium tablets since my bone infusion, mine are chewable, haven’t read about taking them with water, maybe I better read the info it came with. 

Rosina, the cake looks very nice, I seem to have adopted a sweet tooth since chemo. 

Daisydi, I hope your radiotherapy sessions go quickly without any problems keep an eye on any site bits as I think I left mine a few days too late and then it all seems to have gone sore. 

The weather seems to have cheered up here now as long as you don’t want to go in the sea, it’s a little rough. Hopefully it will stay bright, I can live in hope. 

Trixielady hope you okay xx 

MJB, I hope your enjoying your family being home, your train trip looks lovely. 

Hope everyone else is well.

I am keeping up with you all by reading everyday, Xx 

 

 

 

 

Member

Re: February starters 2019 - yes, we rule!

Hi everyone

 

Well it's a right mix of weather we're getting down here in Somerset, wind 🌬, rain 🌨🌧 and sunshine ⛅☀️. Not feelng too bad after yesterday's chemo and I managed to sleep quite well despite the steroids. I have been given some meds for indigestion as it was quite bad last time, so fingers crossed🤞they work for me. Lost count if the number of loo visits I've made today. I'm beginning to wonder if they put some diuretics in the mix🚺🚾🚽.  My eyebrows look as though they're going on another holiday so I'm glad I've kept up with the eyebrow pencil since the LGFB session. Taking it easy this weekend so hoping I may cope better when side effects kick in. Did a bit too much last time and we had my sister-in-law here.   

Lots of talk about hair colour. My new hair is coming through white and grey and looks very fetching with my slowly fading coloured hair that survived FEC - not. It looks as though I'm going through the process of going grey within a number if weeks or months rather than years. I'm with you Implausible, definitely colouring as soon as I can. I intend to get my hair cut to the same length after cold capping as at the moment my longer locks are giving my scalp some protection.  

On a somewhat more sombre note leading on from the hair I'm having that umbella conundrum. You know the one 'Do I need a brolly?. If I don't take one it'll rain. If I take one I won't need it'. When I've finished with the PICC line covers, wigs, fringes and bandanna scarves do I chuck them away or pack them away in the loft ready for another rainy day?  Or perhaps I won't need them after all. There's one that none if us can answer. Sorry to be a bit gloomy😩☹.  I think the TN diagnosis is beginning to affect me a bit. No doubt it'll pass and I'll be more positive again.

 

Rosina, I don't have much of a sweet tooth but cake does look rather yummy.

 

Implausible lovely photo of you and your son. Typhoon Lagoon, how could I forget. Much more relaxing than the Blizzard Beach one where you get sneezed in by Father Christmas🎅 from a chimney and get rained on going through a tunnel both with very cold water from what I remember. 

 

Marlyn, what a faff with the  clodronate. Infusions of bone meds for me please.

 

Edinbird, pleased to hear you're back home and have managed to get some decent sleep. Keep going with the paracetamol for any pain. I found if I was pain free the arm exercises where much easier and you can push yourself a bit further.  The Snoopy cartoon is brilliant. Shame about the Norwich match but as you say against Man U I don't think many teams newly promoted would beat them. 

 

Daisydi, I've got 2 more chemo sessions to go, one on the 30th Aug then final one on 20th Sept, so long as my body behaves itself🤞🤞🤞🤞, then onto rads. I've seen the helta skelta in Norfolk Cathedral. It looks a bit odd🤔. Glad it wasn't there when I went for a visit many years ago.    

 

Hope the weather improves wherever you are. Love Susie B xxxxxx

 

 

Member

Re: February starters 2019 - yes, we rule!

CC74BACC-8492-48E5-9345-B43BBA5AB0D9.jpeg

Got the baking urge today.

Member

Re: February starters 2019 - yes, we rule!

Marlyn, we both enjoyed ‘Blinded By The Light ‘ . H1 could totally relate to it. Says his childhood was similar but worse as it was the 70s . I noticed him taking off his specs and wiping his eyes.

 I can’t imagine being chased by thugs on a regular basis 😳

 I had ‘Born in the USA ‘ on a cassette tape. 

If you have seen and enjoyed ‘Bend it like Beckham’ you will enjoy this.

 I admire the director Gurinder Chadha  ( female) she also did ‘The Viceroy’s House ‘ which was excellent as well as the really funny ‘Bride and Predjudice’

Member

Re: February starters 2019 - yes, we rule!

I know daisy....and I haven't even factored in when I go away....I'm going to give it a week or so and see how I get on.....it may well be infusions for me too..xxx

Member

Re: February starters 2019 - yes, we rule!

Maryln dont think I could be bothered with that every morning before I have a coffee.  Think I will go down the infusion route!  Good to hear from you Sarah x

 

PS I take my Anastrazole in the morning along with my turmeric and probiotic so I can get everything out the way.  I only have to remember to take my Loratadine before bed and hopefully wont have to do that for much longer.

Member

Re: February starters 2019 - yes, we rule!

Implausible...our posts crossed....good to see you! Xxx

Member

Re: February starters 2019 - yes, we rule!

Daisy, it was the bone scan that picked up my oesteopenia, hence the extra strong calcium with vit D....took The chondrites this morn, I have to take it with a litre of filtered tap water....not bottled water as there's minerals in the plastic (!) then after an hour I can eat or have my coffee...

 

edinbird, glad you've managed a sleep...boy that was much needed! Here's to a speedy recovery....

 

rosina....you prompted me to look at my local cinema, and I've booked to see " blinded by the light" I could just do with a feel good film right now..

 

hope everyone one is ok? Implausible? Your a bit quiet? Xxxx

Member

Re: February starters 2019 - yes, we rule!

Just popping in to reassure you all that I'm alive ....  I have been busier this past fortnight than I have the whole year....  I have been off work and blessed with unexpected energy so I've been making the most of it hence hardly online...

 

I've been reading but, because my posts on here usually take a couple of hours to write as I like to reply to everybody, I just haven't had the time to do it.

 

But don't worry I'm back at work next week and that means, ironically, I will have more time to chat!  

 

So.... a quickie....

Edinbird take your painkillers!  I don't like to take them willy nilly either but you have just had major surgery girl!

 

Rosina et al.... my hair is also coming back grey and if you think I am going to gracefully accept that and stop dying my hair, then you clearly don't know me very well Smiley Very Happy

 

MBJ lovely photo on the choo choo

 

Seaside have an amazing time in Florida!!!!   (Typhoon Lagoon is the one with the big lazy river, but I always preferred Blizzard Beach because of the break neck slides Smiley Happy )

 

Marlyn your drug cocktail is impressive, ask them to slip something fun in there too to make it worth your while, some ecstasy perhaps or a couple of shroomsSmiley Happy

 

Everyone else, I'll catch up properly next week

 

Love y'all lots

 

Sarah x

 

Signing out with a photo of piggy eyed, no make up me (although I did notice this morning that my lashes are finally starting to grow back, yay!!) and son on the ferris wheel in Bristol last Wednesday:

20190807_190722-picsay.jpg

 

MBJ
Member

Re: February starters 2019 - yes, we rule!

Rosina I think I  am going to work my way though all of those colours. Fab.

Member

Re: February starters 2019 - yes, we rule!

Morning (again) 

Snoopy cartoon is funny 😂 although I have to say that I belong to a group of people that suffer with aches and pains (especially in the lower back region) when I don’t exercise. 

Anyway post surgery, just getting up out of bed and going to the loo, downstairs/upstairs counts as exercise . I really would love to be allowed to swim 🤗 but have another 7 rads to go. Totally agree with you Daisydi on not having to traipse to Hospital this morning ( I actually got excited because I have a 3 day stint of not needing to go - Monday’s session got cancelled and tagged on to August 20th due to technical checks this will be my last one and all the nurses know it’s my 50 th birthday on the 19th as I have to state my name, date of birth and full address prior to every zapping - looked at the computer screen last time and went ‘yup, that’s me’ ).

The Tamoxifen is also okay, hot flush that wakes me up at night and that is it  so far. So pleased on that score too.

Now to walk to Tesco’s (exercise) , then the Guardian Readers Group have picked ‘The Grapes of Wrath’ as the book to read this month. I found it in my Library and made a start yesterday (I will juggle it with the Biography of Cancer one as my mood takes me).

Seasidesar , have a great time in Florida. Which reminds me must get grapefruit 🤗

 

Member

Re: February starters 2019 - yes, we rule!

flipping eck its getting very very windy here!  Edinbird I never used to take tablets either but I have given in to that one!

Member

Re: February starters 2019 - yes, we rule!

Morning xx got home yesterday afternoon had a sleep got up and watched the football (Norwich were never going to win!) then had another sleep. Only took two paracetamol at 7pm so was very pleased with myself for sleeping! Was not that hot at all. Ended up having the painkillers at 6am instead so still laid in bed. My problem is that I don’t normally feel like being in discomfort requires painkillers - and I hate taking tablets. I got less painkillers for this op than the last! But signed off for longer.

 

Need to get up but after actually feeling comfortable in my bed I don’t want to move. Don’t want a blood clot either though and I don’t have anyone sticking needles in my stomach here. Saw this Snoopy and it’s pretty much the two positions I’ve been in all night 😂

1473E7CA-4F3D-4DAA-9235-B4365D763CFD.jpeg

 

4B3E5AE8-7FCF-486C-BD11-B62980350A5F.jpeg

 

CC4890C6-4AD2-4050-9E01-57AEAB0360C6.jpeg

 

79FCE50A-7205-446E-9B14-9597C20E8E6D.jpeg

 

Member

Re: February starters 2019 - yes, we rule!

Morning my bits of hair growing back are white so I dont fit the grey trend!  I used to have my hair highlighted but havent done so for years and now I have natural ones.  The bit at the front comes through white and then turns blonde.  All very strange but Im happy with it.  Eyebrows are growing dark and bushy which I quite like too but little sticks of eyelashes are growing through white and digging in my eye ball as they come through.  Cant wait for them to grow.

Must say it is a relief not to be having to go to radiotherapy today.  Only 8 more left, 3 normal ones and then 5 boosters. My skin is not too bad.  My chest is more red and freckly than usual and I have a bit of a sore bit by my clavicle but no broken skin so far.  I have been using lashings of Aveeno and also use organic Aloe Vera Gel as soon as my treatment finishes to take away the heat.  I have 3 late nights left and then all the rest are mid morning.  I really can see a light at the end of the tunnel.  Also so far I have had no problems with taking the Anastrazole. Are you finished now Rosina?

Hope everyone is ok  Seaside hope you have a fantastic time in Florida.

Edinbird hope you are recovering ok.  Just keep the painkillers topped up.  There is no need to be in pain.

Sarah you are very quiet, hope everything is ok.

Susie hope you are not suffering too much with the chemo.  Only 2 more?

Maryln that cocktail of drugs sounds interesting.  How do you know you need to take calcium.  Was it from a blood test?  I am still pushing for my bone scan although I found out yesterday that my oncologist is on sick leave so think I will go back to the breast care team, again.

Nettie hope you are feeling well and getting on with life.  Do you have any further treatment?

Love to everyone xx

Member

Re: February starters 2019 - yes, we rule!

Morning Rosina,

 

Thanks for the article. Have to say, I'm embracing the grey hair too. No more sitting in salons for hours or enduring an itchy scalp. I told my hairdresser I probably wouldn't be dyeing my hair anymore. She looked horrified! Also, my Mum has been going blonder for years now to cover up her greys and she has no intention of stopping so it looks like I'll be grey before her. Think I can convince her that I'm on trend? 😊

Member

Re: February starters 2019 - yes, we rule!

Morning Ladies,

a well written piece in ‘The Guardian ‘ this morning:

women-ageing-loss-looks-liberate-society-shame?CMP=Share_iOSApp_Other

My hair is growing back a steel grey and I have to say I like it 🤗

Was at the cinema yesterday ( with H1 ) to see ‘Blinded by the Light ‘ which we both enjoyed and during the ads at the start , one was for hair colour and greys and steel metallics were definitely ‘IN’ colours.

This was the advert :

Shwarzkofp Live Colour

Have a good weekend everyone,

Rosina