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February 2019 chemo starters

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Re: February starters 2019 - yes, we rule!

Well girls on the sharps bin front, I did my very last wbc injection tonight another 🔔🔔🔔🔔🔔 moment  (I think I’ve done 42 in total) and sealed the bin as best I could. I will offload when I have my next hospital appt. Not sure what dept though🤔. I can’t believe there has been so much trouble getting rid of them for some of you. I hope I don’t encounter similar or I will probably just dump it on a counter somewhere and make a run for it. I’m feeling much better this evening. The bone pain and headaches from the wbc will start in the next day or two but I know I can cope with them so just want them out of the way. 

I can’t believe how much hair some of you have. Well done on persevering on the cold capping. I know it didn’t work for everyone but when it does it makes a huge difference to hair loss amounts.

I have a tiny bit of growth, a mix of dark, white and silver. I’ve given up with scarf/hat/ wig wearing in this warm weather. If I wear anything on my head at the moment, I feel hot and a bit faint within minutes so I’ve just had to be brave. I went for a hospital appt today and didn’t take anything to cover my head and actually forgot my head was bare most of the time. I got some looks and smiles but no outright staring. If anyone would have said in Feb that 5 months on I’d be happily trotting around in public bald, I would have laughed at the ridiculous notion. I really just don’t care anymore. I’m more self conscious about the eyelashes to be honest. Which reminds me, I’ve got a date for a LGFB course at long last. Mid Aug. I hope it will have been worth the wait.

My bestie showed me an app for trying different hairstyles on. I thought I should try and get used to the look of grey hair. We had a right giggle over it earlier. I’ll try and post a couple. AEB3C29D-C42C-42FF-B46D-BC0C3D61948A.png

 

D42D032F-C2CC-4F34-9015-5AFFCEE22E14.png

What do you reckon???? 

I think, I’ll stick with the brunette as soon as I can dye again. 😂😂😂. 

Congratulations on reaching 6 weeks post chemo Seaside. 🙌🏻.  Can you eat forbidden foods now?

Edinbird, work tomorrow? I hope it goes well love. Tell them they must all take special care of you or they will have Barry’s babes to answer to. 😊

I hope all the rads peeps are doing ok. It sounds so flipping exhausting but you all appear to be coping well so far.

Thinking of each and every one of you whether I’ve mentioned you or not. I do read every post. Loving the photos.

Rosina, I’ll keep everything crossed for good weather for you but I know you well enough now to know a bit of rain won’t stop you, Wonder Woman. Bye for now. 

Take care everyone. Xxx

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Re: February starters 2019 - yes, we rule!

They do like making things difficult up where you are Daidydi 😳

I had filled my bin of sharps and then any extras that I could not stuff in just went into a Tesco bag. I gave the lot to the nurse at my last chemo session.

She took them , no problems with the  bag , emptied it and returned the bag to me. 

 

 

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Re: February starters 2019 - yes, we rule!

Maybe it’s because I have a different NHS up here that mine was simple! I was told I could take my sharps back to the chemo ward or to the gp surgery. GP surgery were happy to take it, once they’d put a sticker on it with my name and address on it! I was concerned I was going to receive it back in the post! And why they needed to know the origin of a sealed sharps bin I don’t know? It was sealed... anyway, they took it straight away. Maybe you need to send them to me and NHS Scotland will sort it!

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Re: February starters 2019 - yes, we rule!

Thanks Sonia and Sarah.  I wish these people would realise that trying to get rid of a sharps bin when you are feeling very fragile is a big deal.  Why does everything have to be such a battle.  The receptionist said it wasnt sealed properly, it is a small one and I said my nails are too sore to do it after chemo.  I said the hospital took my other one and just put it in their bigger one.  Grrrrrrrrrrr!

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Re: February starters 2019 - yes, we rule!

Daisydi, I ended up wrapping my sharps bin up in a carrier bag and throwing it away with my normal rubbish in my wheelie bin!  

 

GP wouldn't take it, pharmacy wouldn't take it, and nobody ever answered the phone number on the sticker on the bin that you were supposed to call for collection.

 

Figured it was all sealed up and I don't have any germs so it was probably not going to do too much harm.  But still!

 

As for the aveeno, I do mine twice a day as instructed by the radiologist.  Once when I get home from hospital about lunchtime.  And then again just before bed.

 

 

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Re: February starters 2019 - yes, we rule!

Daisydi, I saw a trainee Dr last time I went to see the GP for my legs and broke down as he was lovely and ask how I really was doing. 

I had a nightmare trying to get Aveeno from my Gp, I said the hospital told me I needed it, took several phone calls, they gave me a generic cream that is meant to be the same as aveeno but it’s not as thick, so I gave up and bought my own.

i cream when I get home, and again at bedtime I  lay on the bed for a bit either then or later so the areas get some air time. Seems to be working so far . I had to take my sharps bin into the hospital as the Gp wouldn’t take it as it cost them !! 


 

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Re: February starters 2019 - yes, we rule!

Hi Rosina, it was the GP that I went to.  Couldn't even hand in my sharps bin.  Seems like a third world country over this way.  Cant be bothered with them any more.

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Re: February starters 2019 - yes, we rule!

Wow Seasidesar,

6 weeks post chemo 🍀🍀🍀🍀

Fab photo. 

I have ordered 4 headscarves , which can be worn as a wide headband style as I get lots of compliments when I wear my headband from accessorise.

I asked my son which was the best look ( with or without a headband) and he said without a headband I look as if an experiment has blown up in my face 😂 but he was particular about the colour ( he only like the ‘rose gold ‘ one) . So I have gone ahead and bought block colours only. 

Hopefully they will arrive tomorrow so that I can wear the ‘petrol green’ one on the hike. 🤗

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Re: February starters 2019 - yes, we rule!

Daisydi,

my GP did the prescription for me. Not the Hospital radiographer or my oncologist.

The chemist did find it on their list of items that can be obtained by prescription.

 I would go to your GP , fill in a repeat prescription form ( this is what I did) and then told the receptionist that it wasn’t a repeat prescription but a new one. Then I told her that I was due to start radiotherapy.

I left it at that and she said she would ask my GP on my behalf.

Anyway, it was approved.

Worth a try.

Rosina

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Re: February starters 2019 - yes, we rule!

Update on my massage.

 I was booked in at my regular salon ( where they use gorgeous Elemis products) but they were not happy about delivering a full body massage as I am still going through treatment as far as they are concerned.

So the lovely therapist gave me a hydrating facial and foot massage.

They also said that when cancer treatment ends they want a doctors letter stating that it’s ok for me to have massage treatments .

 They were very apologetic about the misunderstanding but I am ok with what they offered me instead as it was very relaxing.

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Re: February starters 2019 - yes, we rule!

Implausible and Nettienoo, glad you both agree with me! Smiley Happy Infact, after I had my weekly line flush I would sometimes go for a McDonalds afterwards and would tell the chemo nurses that was what I going to do! (I seemed to have a bit of a craving for them, not sure why because I rarely eat it normally) They always said if that's what you fancy, have it! They just seemed to be pleased I was eating and no-one said I don't think you should because of the possible weight gain.

As regards deodorant I had a little experiment going on because I was told not to use it on the side I was having rads-I think that side must have been affected because I didn't seem to sweat more or be smellier on the side I didn't use it! My rads onc told me I wasn't allowed to use it all last Summer even after I'd finished having radiotherapy. He told me I'd have other Summers to wear deodorant Smiley Happy  xx

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Re: February starters 2019 - yes, we rule!

Afternoon all, just an update on my progress today.  Managed to see a GP who was an Honorary trainee whatever that might mean.  Anyway he was very nice but didnt have answers to any of my questions and had to make various phone calls.  He thinks my pain in abdo is chemo related and the rib pain is due to the fact that cartilage heals quicker than bone, or vice versa, cant remember and should start to settle down in a few more weeks.  Ditto with the other abdo pain and checked whether I could start on probiotics which I can.  Whilst looking at my records he found a letter from the oncologist saying that I should be prescribed Anastrazole after chemo so he's queried that but still waiting for an answer.  I told him I would really like to get rads out of the way before taking on another load of potential side effects.  Asked about the Watergel R1/R2 system and he couldn't find it on his prescription list so that was a no.   Also told him I am being driven mad with itching and we decided I should start taking the antihistamines again so got him to presribe that at least.  Ended up in floods of tears because he was being nice and caring towards me.  My appointment lasted 45 minutes and I did keep apologising but just kept breaking down.  Sarah I think if I had to go back twice in one day for rads I would be in tears so well done for just getting on with it.    So now I have to decide whether to order the watergel system and pay for it myself or trust the Aveeno as Ive just bought loads of it.   When you apply do you do it straight after zapping and then at night or do you wait until you get home?  The disadvantage of the watergel system that I can see is that I have a large area to cover and the sachets might not be big enough and then I will have to buy another set.  Oooh dont know what to do.  Cant bear the thought of another load of blisters and sores to deal with.

 

On the sweaty armpit question I dont think I am sweating so much but saying that I am sweating everywhere else so who knows.  Now do you apply your cream before or after deodorant or crystal rock in my case?  Too many questions...

 

 

Hope everyone is ok x

 

PS loving the hair pics Sonia and Seaside.  I had mine cut last week and it doesnt look too bad but it is still falling out but regrowing as well.  Im sure there are natural colours you can use but cant remember what

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Re: February starters 2019 - yes, we rule!

Hello xx

 

Been quiet again as I felt rotten this morning - could not get off to sleep and was so wide awake that I didn’t want to take a sleeping tablet as they don’t seem to work unless I’m a bit drowsy to start with. So I was awake until the early hours and then when I got off it was only for a few hours and I woke up feeling sick! None of that nonsense during chemo! So I was then off and on from about 4.30 onwards, including going to the loo and changing beds! The stomach ache moved downwards after a while and then eventually I thought I’d better get up and all I’ve had is a cup of tea and a chocolate bar. Getting quite hungry now. Not exactly how I wanted to spend my last day before back to work!

 

On the sweaty stakes you know I’ve not been a dry person!! 🥵 my armpit on the good side has been a bit whiffy, all I can smell on the bad side is the dressings! I tried to pluck a few hairs out the other day as when I pulled the outer dressings off I had some quite long ones hiding underneath! My hair seems to be growing back everywhere except my eyelashes. My eyebrows look a little odd, it’s like the hair is dark and thick at the end and thinner and lighter at the root. But I don’t think I have any less of them still.

 

So I’m going to find something to eat now that doesn’t mess up my dinner and then wash my hair. I have to sleep tonight or I will be totally wiped out for work and oncologist appointment tomorrow.

 

Hope everyone is having a lovely day xx

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Re: February starters 2019 - yes, we rule!

Seaside Sar, looks like our posts overlapped.

 

love the hair, I had mine cut 2 weeks ago, I’m having a colour problem too, my hair dressers going to look into a natural colouring xx 7473B27B-3E52-435E-9452-5F6499F29FEA.jpegDoesn’t look as bad in this picture

 

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Re: February starters 2019 - yes, we rule!

I started writing this yesterday and found it on the lap top today, so I will continue Smiley Happy

Susie, I could have written this as i feel exactly the same.

"As for the chat about dealing with and reacting to our diagnosis I sometimes wonder if I'm still in shock from the diagnosis and don't quite comprehend that all this treatment is actually happening to me. Weird or what?"

I feel like I am going through the motions but not digesting whats  happening.

I love your elephant top.  Oh the rosy cheeks I remember those well. Enjoy Dibley's stay.

 

Rosina, enjoy your massage, I have booked in for one next Wednesday as part of the BC centre.

 

MJB, I hope you enjoyed your coffee, it must be lovely to have your daughter home for the summer.xx

 

Trixielady, thanks for think of me today, hope you are keeping well.

 

Implausible, What a palaver. Hope the rest of your day has gone more smoothly. I asked this morning about when I would start the hormones, she didn't have a clue, so will ask my oncologist, and hopefully I will see him in the next 2 weeks at one of the med reviews. I am having Goserelin (zoladex) a pellet under the skin monthly, and Exemestane (Aromasin) in tablet form. The Dr did review my skin, which they didn't at the skin review just asked was I using cream and did I have any sore skin. 

I will have to starve myself at this rate to loose weight Smiley Sad i really want to loose weight before both of the operations.

 

Marilyn, no wonder your fatigued, at least your herceptin nurse is realistic, the dr I saw today said i should get tired. Really !!!

 

Re being braver. I never needed a wig, so can't relate 100% to that, but I take my boob (prosthetic) off daily, but wouldn't dream of answering the door or leaving the house, but I have started to answer the door now, and not one person has batted an eyelid. I kind of think this is me now, hopefully not forever, but for now.

 

Daisydi, I hope your not in pain today and the chest pains have decreased. xx

 

Nettinoo, I hope that temperature has stayed down xx

 

Rads went okay today, 6 down 9 to go, no redness yet, sightly stiff shoulder today, but think that's the way I slept, but will do extra exercises. weather is changing for the worse just as the kids break up tomorrow what joy.  Hopefully the sun will come back or at least it stays dry to enjoying doing stuff outside.

 

Hope everyone else has had a good day. xx

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Re: February starters 2019 - yes, we rule!

Hello lovely ladies,

 

I am officially 6 weeks post chemo today so I celebrated by having my first haircut. The colour is a disaster so I will be wearing some headgear until I can even it out.

 

20190718_120748.jpg

 

Just at the hospital having my Herceptin injection. Appointment was at 3pm and it's now 3.50pm....still waiting. 

 

OK, 4.10 and it's done now. Not as painful as last time because they were so busy that by the time they got round to injecting me, it had come to room temperature. Yay.

 

Rads this morning was interesting. After my usual zapping I had to lie still for a further 10 minutes while they measured me up for the booster which will happen during the last week. They basically attached a metal device with several long rods to the normal machine. This then rested against my scar so it can deliver an intense boost to the area where the tumour was. They then had to trace the exact position of the device and take photographs. I got myself a nice physics lesson while they were doing all this.

 

Now for a catch up with you lot.

 

Nettie, I'm glad your temp came down. Must have been a worry. Hope you're feeling OK now.

 

Cor blimey, what a palaver with your rads today, Sarah. Much as it would have been amazing to see you in MK, I wouldn't have wished that journey on you. Glad it got sorted in the end.

 

Sonia, hope your zapping went well and your meds review. What was that in the end?

 

MBJ, hope you enjoyed your haircut. Nice to do something normal, isn't it?

 

Marlyn, werewolf hair...that made me chuckle! Hope the Herceptin went well for you today. Are you having injections too?

 

Rosina, you're a busy lady! Massage sounds good though. Good luck with the hike tomorrow.

 

Susie, hope you get some sleep tonight. Lovely pic of Dibley 😊

 

Trixielady, how are you feeling lovely? How many Herceptins have you had now?

 

Hope everyone else is OK today.

 

I'm continuing my 6 week post chemo celebrations with a Chinese takeaway tonight.

 

Love to all.

 

Sar xxx

 

 

 

 

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Re: February starters 2019 - yes, we rule!

I bought the elephant jacket 🐘🐘🐘🐘 not Dibley 🐕🐕🐕🐕😆😆😆

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Re: February starters 2019 - yes, we rule!

Rosina, growing blueberries in the ground? Guess you've got acid soil as they don't like clay. I'll have one geolous hubby if you have acid soil. On the underarm sweating I must admit I haven't noticed anything embarrassing with my post operation left arm which isn't getting the full deodorant treatment. May experiment but maybe not until my sister- in-laws visit on Sunday. Body massage sounds great. You deserve it.  xx

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Re: February starters 2019 - yes, we rule!

Marlyn, what a lovely nurse full of so much positivity  - not - .On the weight loss front it's fine to lose just a little at a time. Remember small steps. xxx 

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Re: February starters 2019 - yes, we rule!

Hi everyone 

 

Firstly a huge THANK YOU for all your replies to yesterdays news. I think I'm fairly well stocked up on  just about everything to either stave off or treat some of the possible side effects of CT, notably the T☹☹😵. Taken both lots of steroids for today so will wait and see how sleep pettern goes tonight. Also looking forward to red rosy cheeks which I'd forgotten about🤡.

 

MBJ,  Marlyn I'll be having 4 rounds of CT at 3 weekly intervals,  so long as my body behaves itself as it did with FEC🤞. As for the chemo bus is that the one that keeps going round and round the North Circular route? You never really know when you're going to reach your destination on each trip round🤔🤔. Good news on the boob front Marlyn. Scans are going to be the pits though, putting us through all that stress, etc beforehand and waiting for results, but they are there to help us. At least that's what I keep telling myself.  

 

Edinbird thanks for the offer of support now that I finally have a definite diagnosis. I haven't read too much about triple neg, nor HER2 pos to be honest, as I couldn't see the point until I knew for sure which way things would go. Hope your sore arm gets better soon. As I mentioned before I gave up wearing a bra at night and I seem to be fine. Gone more tha a week now without growing a tennis ball🎾, just a bit swollen and lumpy.

 

Rosina, what on earth was wrong with your original quote that I can't repeat, especially after what Implausible got away with the other day😅😅😶😶. 

 

Daisydi, Seaside Sar, Trixielady, sonia28, Implausible and Nettienoo, thanks for you comments and kind words. The nervous adrenaline rush did tire me in the end but I managed a good night's sleep so Billy bonus😴😴😴😴😴. The wine and pizza were yummy. Wonder when they'll next taste as good🤔🤔🤔? Glad your temp came back down Nettienoo. Guess I'll be back to checking mine from Saturday🌡. Hope today's zapping goes ok sonia. 

 

MJB congrats on getting a haircut. Even though I only had a bit of a tidy up the other day it felt good to be doing something close to normal. Hate the new grey and white hair though🦍🦍🐨🐇🐇🐺🐱.  

 

Implausible what a pain in the 🐎 It's supposed to be an a s s. Hope they soon get the rads machine working properly. 

 

OK, this is what I found yesterday had to buy it.20190718_135201.jpg1563459308249641001967.jpgDibley is with us again until Saturday

That's enough of me waffling for now. I'll see if anyone's been writing while I've doing this post. 

Take care Susie B xxxxx 

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Re: February starters 2019 - yes, we rule!

Hi, no sweaty underarms on this end either. 

I use a lemony solid deodorant bar under ( from Lush) the good armpit and the other side gets a rub on the top end of my arm ( not arm pit it’s still sensitive in there ) or I just spritz on my Clarins splash . 

Picked up my R1/R2 system from the chemist today so ready for Monday.

 Implausible your day sounds very frustrating.

I am going into school tomorrow morning. Then it’s up to Windsor tomorrow afternoon with my friend Liz ready for tomorrow’s hiking . 

Booked in for a full body massage in a hour’s time because I feel that I deserve it.

Hugs,

Rosin

4C9CE90A-EAD9-46A9-8EB4-68162A83A85B.jpegBlueberries

 

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Re: February starters 2019 - yes, we rule!

I have heard the same about anastrazole (sp?) that it makes losing weight super difficult.  I don't yet know if I'm going to be on that one or the other one (letrazole?), but from what I understand, they both make you tend towards "pudginess" in the same way that being on the pill used to until they brought in the mini pill....  

I'm determined that I will try to lose the bulk of my recent gain before they put me on those hormone treatments, and then it will be a battle to maintain rather than an even harder battle to lose.  That's the plan anyway!  Fingers crossed.

I think I'm seeing my onc again 2 weeks after the end of rads, so I assume that's when he will want me to start the hormone meds, so that gives me - let's work this out - 3.5 weeks to lose 2 stone.  Hmmmm.  Might be a bit of a squeeze!!! Smiley Very Happy

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Re: February starters 2019 - yes, we rule!

Implausible,

what a nuisance having to go back twice in one day, this happened to me on my last one....that will knacker you out! 

My herceptin nurse said no wonder I'm fatigued....chemo will apparently take around 6 months to leave my system, then rads will linger...now she says herceptin makes you tired! Oh blimey...

 

on a positive note i have managed to loose 2 pound...ok...it's taken 3 weeks and I seem to be virtually starving myself but it's going in the right direction...on a parting note the nurse said....oh your on anastrozole aren't you..that will make you gain! She was certainly full of the joys today! 

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Re: February starters 2019 - yes, we rule!

Morning everybody

 

Looks like I might have made the trip to Oxford this morning for nothing, as their rads machine is broken and they are waiting for the engineer to turn up. 

 

He won't be here for another half an hour and they don't know if he will be able to fix it in a timely manner, so they might end up sending me home and tagging another day on the end of my schedule.  Which will be a pain in the butt!  Never mind, these things happen...

 

At least it gives me some time to catch up with you lovely lot....

 

MBJ - great that your family are reunited now for the summer months.  I don't even like the fact that my middle son lives up near Liverpool as that is so far away, let alone a different country/continent!

 

And yes, I've always believed the same as what you've been told at SW - weight loss happens in the kitchen, not at the gym.  It's definitely more about the inward calories.  But I really find that I need both....as the exercise keeps me honest with my food.  If I've sweated away at the gym for an hour, I am damned if I'm going to negate all that hard work by having a doughnut!!  Smiley Happy

 

When I go back to the gym for good in November, I'm going to treat myself to 5 personal trainer sessions with the PT who specialises in post illness / treatment rehabilitation.  I don't want to push myself too hard but I also don't want to not push myself hard enough.  I can't wait to get back to a decent level of fitness.

 

Talking of sweating, here's an odd question (especially as I know a lot of you are having hot flushes).   Is anyone else sweating less since chemo?  I've discovered that I don't need to use deodorant any more.  My armpits just don't seem to sweat or smell any more.  It's very weird.


(Or maybe I do still stink but chemo has ruined my sense of smell Smiley Very Happy )

 

Trixielady, yup still getting chauffeured to Oxford and back every day.  I feel really bad for my lovely driver today.  I told her I was going to be "in and out" as I have no other treatments today.  But then of course I found out that the machine is broken!  She is going to have a long wait Smiley Sad

 

As for wig off moments (or in my case cap off moments as I haven't bothered with a wig).... I seem to have reached the "who cares" stage and I am braver about it now.  But just a few weeks ago I was taking the bins out on bin night and someone I half know walked past and said hi, and looked at me a little oddly, then I realised I didn't have my hat on after they had walked on.  I was mortified!  Especially as I don't think they knew that I was going through cancer treatment.  Oh well, they know now!  Smiley Happy

 

Oops re the car bump!  Glad there was no damage!  Good luck with your return to work interview.  Must be quite daunting after such a long break.  I had 14 months off about 12 years ago after being made redundant (through choice, I had a big payout and decided it would be nice to have some time off), and going back to work after that was a little scary at first.  Although I soon settled back in, as will you I'm sure.

 

Rosina.  Your "how is this happening to ME???" moment was very relatable!  I never thought for a second that I would ever get breast cancer.  No family history.  And although a bit pudgy I've always been fairly fit.  Never smoked, barely touched alcohol, veggie since I was 15, breast fed my kids.  All the stuff they reckon will keep the beast at bay.....  I always figured I would drop dead one day of a stroke like my mum did.  She was in her 80s by then, mind.  And my dad lived to 92, all my aunts and uncles lived well into their 80s or 90s.  My great aunt lived to 108!  I thought I had all the time in the world....

 

I remember after I told my kids about the diagnosis, my youngest (who is 17 today!) said "but mum it isn't FAIR, you are so nice to everyone, you don't deserve this Smiley Sad " and my response was "too right!!! There are some right b*itches out there, and I'm a f*cking SAINT!!" - which I mainly said to make him laugh and lighten the situation (he rarely hears me swear!).  But deep down I meant it!  Why me????  Give it to someone who deserves it instead.....  :/

 

I've got past that since.  To be honest I now genuinely think I'm lucky  (if the "cure" sticks, anyway).  That thing up there about believing I had all the time in the world.... I don't think that any more.  And that means instead of thinking "I'll do X or visit Y 'one day' ", I now think sod "one day", I'll do it next year!   And my whole attitude to life has changed, for the better.  I no longer "stress the small stuff".  In fact when I hear someone getting wound up over something petty, I want to shake their shoulders and shout "it doesn't MATTER!!!".  Life isn't about work, or money, or possessions, or whether or not Shirley from work nicked your tea mug.  It's about making happy memories with the people you love, and travelling, and looking at beautiful art, and stopping to smell the flowers.....

Rant over Smiley Very Happy

 

I love this:
"You have been stony for too many years.
Try something different."  
Thanks for sharing

 

Update... engineer has arrived.....  fixed the machine in under a minute Smiley Very Happy  I'm up in about 10 minutes Smiley Happy

 

Daisydi, hopefully if you get yourself a looser bra it should sort out those pains? Let us know how it goes....

 

MBJ, hooray for the digger!  When my sons were younger they would have been so excited to see something like that in the garden they would have fainted with glee!

Hope you didn't get too cold overnight out there chained to it Smiley Very Happy

 

Looking forward to see your garden transformation pics

 

Jencat 100 percent agree.  I think the lady on the other post must have got her wires crossed.

 

Update 2 ....

 

Well, they fixed it.  Ot thought they did.

Then they got half way through my treatment and it broke again!

They apparently can't leave me "half zapped" so now, if they can't fix it, I'm going to have to go to either Windsor or Milton Keynes to get the rest done!  I might see Seaside Sar!!!  Smiley Very Happy

 

Susie - such great news that your scan was all clear!!  And you now know where you stand with triple negative status and future treatment plans.  No further surgery is a big bonus too Smiley Happy    We will all be cheering you through your next lot of chemo.  Hope you enjoyed your celebratory shopping trip and pizza and booze Smiley Happy

 

Update 3 ..... apparently the head radiologist says that the second half of my dose can wait till tomorrow morning.  So I have to go to oxford, get the second half of today's zap, then come home, then go BACK to Oxford in the afternoon to get tomorrow's dose.

What a pain in the butt!  Heading home now.

 

Where was I?

 

Rosina, I can't believe that the mods objected to "may the force...." etc.  Perhaps they are more into Star Trek than Star Wars Smiley Happy

 

Nettie just reading your post about your temp spike gave me trauma flashbacks!  As you know I did the exact same thing (staying at home with a high temp when I probably should have gone to hospital!), and I did indeed get a big telling off from the onco nurse Smiley Happy  but after my previous horrid hospital experience I just couldn't bring myself to head back there!   Glad your temp came down fairly swiftly, so you could relax again.

 

Sonia I hope your zapping today was a lot more successful than mine Smiley Very Happy

 

MBJ how cool is it that you now have enough hair that it requires a trim!!

 

Marlyn - how spooky!!!  I started typing this post at quarter past 9 this morning.  Just checked again and you've posted about the lack of underarm sweat too Smiley Very Happy 

 

Am now home, shattered after all the palaver and late for work.   Need to wake up before 8pm tonight as I'm off to the cinema for an anniversary showing of Jaws!  🦈

 

Love to all x

Sarah



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Re: February starters 2019 - yes, we rule!

Morning Nettienoo 

Hope your feeling much better this morning, its strange the day they stopped my chemo it happened to me but like you I'd give up stressing and just took someone paracetamol and rested think id had very few headaches over the last year until that point, good luck for the remainder of your chemo xx

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Re: February starters 2019 - yes, we rule!

Morning beauties 

 

mjb.....oh the neck hair! Only just this morning I have noticed how thick and curly mine is....it's gone nuts....just worried it will continue to grow downwards, I'll be like a wear wolf!

netti....well done in keeping yourself out of hospital love...a bit wiser now aren't we, although I still obsess over my thermometer....and blood pressure machine.....lol

saw surgeon yesterday, she had a good feel of both breasts ( relieved she didn't find owt) see her again in jan after my first mammogram......what a worry that will be!!!!

 

off to get me herceptin.....good luck to all those having rads today.....( incidentally....rads have destroyed my sweat glands under my right arm.....suppose it will save money on deodorant)

 

i love you all xxxxx

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Re: February starters 2019 - yes, we rule!

Sonia28 go girl thinking about you xx

MBJ
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Re: February starters 2019 - yes, we rule!

Good Morning Girlies

Yes experience is a wonderful thing Nettienoo thank goodness it was nothing serious. 

Well I am sitting in the hairdresser's for the first time waiting to have my neck hair trimmed, don't need anything else trimmed that's for sure, but I have been to Slimming World now with my new hair and everyone said it looked lovely (well they would I suppose) but it's cooler and I have gone past caring to be honest. From here going to go for coffee with my daughter. 

Have a good day girls xx

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Re: February starters 2019 - yes, we rule!

Morning Ladies,

Nettinoo glad to hear you are feeling better.

Good Luck with the zapping Sonia28.

🌼🌸🌻🌺

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Re: February starters 2019 - yes, we rule!

Susie, great news on the clear CT scan, I hope you enjoyed celebrating, we are al here for you during your chemo journey 💕

 

Nettienoo, 

Im glad your temp came down, it just shows how we have al grown through this journey, but it must have been worrying for you, fingers crossed 🤞 that’s the last scare you have before you feel

your in the safe zone xx 

 

will pop pop back later just going for today’s zapping session, with meds review with whatever that involves xx 

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Re: February starters 2019 - yes, we rule!

Bit of an anxious evening yesterday. One week post final chemo and my temp suddenly started to shoot up and I had quite a bad headache. I had visions of the tedious journey to A&E for assessment and hours waiting to see if I was going to be admitted. 

I decided to not panic but wait and see what happened for the next couple of hours before calling for advice. So happy I did because it eventually started to drop again and when it got to a less worrying level, I took paracetamol. It’s 36.2 this morning. 

We’ve all come a long way since those early days of ringing straightaway. I’m seeing the Onco Nurse Specialist today and she will tell me off I’m sure. The way I look at it is, if I go to A&E unnecessarily, I am going to open myself to even more chance of infection. I reckon if I can get through the next 2 weeks without getting admitted I will finally be able to breathe again and will begin to feel that chemo is done and dusted. 🤒🙄 xx

 

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Re: February starters 2019 - yes, we rule!

SusieB 

Pleased your scan results are good, and best wishes for chemo onwards and upwards stay positive and keep fighting xx

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Re: February starters 2019 - yes, we rule!

Hi Susie,

 

Thanks for the update. So glad the CT scan was clear and that you now know what you're dealing with at least. Hope you enjoyed the wine and pizza. Now we're all gearing up with you for the next step. You can do it 💪

 

Sar xxx

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Re: February starters 2019 - yes, we rule!

SusieB, thanks for update darling. Pizza and wine sounds like a perfect way to celebrate those CT scan results. I bet you were exhausted this evening with all that nervous Adrenalin rushing around your body all day. Barry’s babes are with you every step of the way. Xxxx

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Re: February starters 2019 - yes, we rule!

Glad you now know the full story Susie and no more surgery!  That's a bonus.  Good luck with your chemo x  Hope you have had a good evening.

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Re: February starters 2019 - yes, we rule!

Very pleased for you Susieb.

Earlier on I said ‘May the Force Be with You’ ( without the quotation marks ‘ and the moderator didn’t like it 🤔

MBJ
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Re: February starters 2019 - yes, we rule!

Hi Susie B

Great news about your scan results, and at least you know where you are now you have had the triple negative confirmed. I am sure you enjoyed the pizza and what you washed it down with. A nice treat well deserved before you get on the chemo bus again. Xx

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Re: February starters 2019 - yes, we rule!

Aw Susie I’m so glad they’re chucking everything at you then with chemo as it’s our weapon! 💣 You’re not on Facebook are you? I know I don’t always sell the groups and ours is definitely the best here 🙌🏻 But they can be helpful.

 

I’ve gotten used to it over the past six months but if there’s anything you want to ask here or by DM then please do xx

 

Had another lazy day, just heating my wheat bag in the microwave to ease my sore arm. I slept without a bra last night (as the non wired ones were in the other room and couldn’t be bothered to get one!) and it was absolutely fine. So I think I’ll try and stick to the non wired during the day or try and tighten the straps on the others! I’ve not been too sweaty today until just now, blame the wheat bag... I’m bound to get sweaty soon anyway...

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Re: February starters 2019 - yes, we rule!

So pleased you have the all clear ct scan, and well done on the pizza and wine, I think you more than deserved it! How many rounds of chemo? 4? Every 3 weeks? Well, it goes without saying love but gonna say it anyway, we're all here for you ( and each other) so get ready to board the crazy chemo bus again and here's hoping the ride isn't too bumpy.....lots of love xxxxx

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Re: February starters 2019 - yes, we rule!

Hi everyone 

 

Very quick update. CT scan clear☺. Bloods fine so defo start chemo again Friday☺☹. Finally established I am triple negative so that makes us two together Edinbird👭. Retail therapy huge success🛍🛍🛍😊. Full up after too much pizza🍕🍕🍕🍕🍕🍕. Had wine to celebrate clear CT scan🍷. Now going to totally relax🛋. Start steroids tomorrow☹☹😝. Enjoy the rest of the evening. Love to you all xxx   

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Re: February starters 2019 - yes, we rule!

Jencat, my thoughts exactly! X

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Re: February starters 2019 - yes, we rule!

Surely if the weight gain affecting chemo was true our onc's would have informed us and we'd have been told to be careful what we ate?! I would have hoped so anyway! x

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Re: February starters 2019 - yes, we rule!

Rosina meant to tell you that there is a post on the radiotherapy section from someone who used the R1R2 watergel system and was very impressed.  Think I may see if my doc will prescribe for me x

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Re: February starters 2019 - yes, we rule!

Thinking of you Susie and hope it’s going ok. Xx

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Re: February starters 2019 - yes, we rule!

Hi all

 

Thanks for the good luck messages. Nice digger MJB. Bloods done. Now waiting with hubby to see oncologist. xxx

MBJ
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Re: February starters 2019 - yes, we rule!

Afternoon update

Firstly good luck Suzie B for this afternoon it must be so stressful. 

Well look at the photo my digger has arrived and it's not leaving because I am going to chain myself to it overnight 😀.IMG_20190717_140143.jpg

 

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Re: February starters 2019 - yes, we rule!

Best of luck Susie!

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Re: February starters 2019 - yes, we rule!

Good luck for today Susie xx

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Re: February starters 2019 - yes, we rule!

Susie,

good luck at the onco appointment.....totally with you ref being in shock about treatment....it still takes my breath away on some days! Me? Cancer? Chemotherapy? Bloody hell!!!! Also the first day I went wig less was so daunting! I remember the postman called...and I thought...bugger it! Your right...he didn't even glance up at me, I was thinking...go on then....look at me god damn you! Almost felt disappointed he didn't...now I don't even think about it......go on.....leave that wig on The shelf....

xx

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Re: February starters 2019 - yes, we rule!

Morning everyone 

 

Just popped to read the posts and do a quick catch up. 

 

Glad you appear to have solved the pain problem Daisydi. It's so easy to think the worst in many situations these days. 

 

Sorry about the lack of diggers MJB☹.

 

Trixielady, totally with you about the hair, although I'm being very brave and sat here in my living room, wigless for the first time but also paranoid about someone coming to the door. I have my tearful moments too😭😭😭. 

 

As for the chat about dealing with and reacting to our diagnosis I sometimes wonder if I'm still in shock from the diagnosis and don't quite comprehend that all this treatment is actually happening to me. Weird or what? On the excercise front until my diagnosis I used to go on my excercise bike and do stretching, toning and aerobic exercises (dvd at home) 2 or 3 times a week, plus some walking depending on the weather. I will get back to it after this Barrying bc treatment is over. I have started in a small way by integrating some arm and leg toning wirh my post ANC excercises.

 

I've got my oncologist appointment this afternoon and stress levels are definitely oh💩💩💩💩💩 what was I saying about being paranoid about someone coming to the door. Doorbell just rung and postie has a packet for my son which needed to be signed for. He didn't bat an eyelid. Must stop caring about what others think. Anyway sorry where was I? Right stress levels are definitely up as there is so much to find out. CT scan result, HER2 positive or negative, will bloods be ok, have surgery scars healed enough, etc, etc. Planning some retail therapy and a meal out afterwards at our nearest designer outlet in Street. We were going tomorrow but will be doggy sitting Dibley until Saturday instead. We knew he was staying sometime this week but hadn't firmed up on dates.

Anyway that's all for now. Will get back to you all later this evening or tomorrow and let you know how things went with onc. xxxxxxx