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February 2019 chemo starters

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Re: February starters 2019 - yes, we rule!

Hi everyone 

 

Just popping in to catch up with the posts. Thanks for the links regarding lymphodeama prevention excercises and massage techniques. 5 days since my last lymphatic draining and no signs of  growing another tennis ball yet but the area is a little lumpy. 

 

Have a good day everyone  xxxxxxx 

Member

Re: February starters 2019 - yes, we rule!

Daisy,

chemo made me a bit flushy but herceptin stepped it up a gear and now with anastrozole I'm virtually a walking furnace! My air con unit has been a god send, I also have the fan on all night and when I'm on my travels I have my " Spanish fan" . I've also noticed the bone pain more since anastrozole but it's manageable ( at the mo) if this is "all" I'm getting I shall be very grateful as iv been reading some women get very depressed on these wee things. I also take it in the evening, as suggested by my nurse....

 

rosina....your nails! I could be looking at my own....odd isn't it? 

 

Netti, yes, thank goodness you were getting the yearly mammograms...doesn't bare thinking of! Hope you get through the day as best you can.....I loved killing eve....

 

im off to Tesco ( seem to live there at the mo) love you all to infinity and beyond xxxxxx

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Re: February starters 2019 - yes, we rule!

Ah thanks Rosina, my stupid fuddled head again..... Imp it’s you I need to thank for the Aveeno tub post. Looking forward to another slathering when I can finally get my lazy butt out of bed and have a shower. Also great tattoo. Brave though, mine is much smaller and I had to bite the back of the chair I was straddled on throughout. It was 20 years ago. I’ve wanted another one since but it would have to be quick and minute. 😂

Daisydi, just read about your faff with transport issues. What an absolute pain. The main reason I chose the place where I had my chemo was better parking as the main hospital in Wolverhampton is an utter pain (even though the small unit didn’t do cold capping). I always get dropped off when I have appts there and my lift then spends about half an hour trying to park. It makes me feel so bad and it makes visiting me in hospital there really stressful for people. Xx

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Re: February starters 2019 - yes, we rule!

Hi Marie, thank you. I got back to sleep at 5 and slept until gone 8. Unfortunately, it wasn’t a typo as I had DCIS 5 years ago, sorted with a lumpectomy and small implant. I was told I didn’t need any further treatment at the time, but unfortunately there must have been something left to grow into a tumour. 5 years on same boob but thankfully I was still having yearly mammograms so it was caught before it got too big. 

I’m slightly worried that I am not having rads  ( must be mad I know) but I suppose I’ve got to carry on trusting the professionals who say there is nowhere to target as full mastectomy this time and lymph nodes clear. 

Going to try and stay positive moving forward. 

Much love. Xxxx

Member

Re: February starters 2019 - yes, we rule!

 

A5A4798C-A167-4520-8109-4E262F66B24A.jpegStriped nails

Morning Daisydi, glad to hear that you have some solution for travelling to hospital and back. All my nails are have stripes. Will tape my toenail for the hike 😬

I have found this YouTube clip for lymphatic drain massage this morning,  always good to add tools to the prevention kit.

Massage to drain lymph from arm

 

MBJ I have a body brush too. It’s great. I don’t use it daily but definitely x3 a week. I brush up ,

towards the heart.

Implausible my friend in Seattle sent me a birthday card with that Native American whale design - just like your tattoo- must have taken ages but it is striking. Not for me though I don’t do needles except the WBC ones (and they are done).

Anything else??? That’s it for now 💕

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Re: February starters 2019 - yes, we rule!

Rosina all my finger nails have a line going across the middle but I dont think they will come off.  They just look really strange as below the line looks normal and above the line is yellow/white.  My toenails on the other hand look awful and my big toes especially are still very sore.  I think I will tape them down if they show signs of falling off!  They were bruised like someone has stamped on them

Member

Re: February starters 2019 - yes, we rule!

Morning all, hope everyone is having a good weekend.

 

Sarah that tattoo! No way!  My new phone is a Samsung S7 Edge.  I know its not the latest but I am not on a contract and have to buy my phone and expect them to last a while. The latest version is about £800 so that is a definite no no!  My sister has this one and so has one of my friends and they both really like it and it has a really good camera.  I might even be able to post some pics when I work out how to use it properly.  I will definitely get that tub of Aveeno although I have not seen it in the shops.  Did you get it on line.  Hope your skin continues to hold out for you.  Before they did my permanent tattoos they drew all over me with permanent markers and I cant get if off.  Any suggestions?  Take it easy at work.  Your health is more important!

 

I have a plan for the journey to r/t.  If parking is a major problem I have found a park and ride which is only 10 minutes from the hospital.  I do have to drive further away down the A47 to get there though so I will see what happens.  At least its an option and they run every 15 mins but seems a bit of a faff when I am  hopefully not going to be there that long.  My first session is on 24th July so 3 that week, every day for the next 2 weeks and then the last 2.  Will cost a fortune in petrol!

 

Nettie hope you are not feeling too bad.  At least your skin is soft.  Are you not having r/t?

Rosina thank you for all the links.  You are super efficient!

Edinbird you take it easy as well and hope you're feeling a bit better today.

Maryln are the hot flushes caused by the Anastrazole to you think?  If so will need to prepare myself.

Hope everyone else is ok.

Speak to you all later x

 

 

Member

Re: February starters 2019 - yes, we rule!

Hi Nettinoo, 

stay strong. 

That was Implausible that posted the pic of the Aveeno cream in a tub.

Good to know that you can get it on Amazon. 

The toenail on my big toe ( left) is coming off, just noticed this morning during my stretches. It had looked a bit purplish down the inner left side. I am sure it’s due to chemotherapy as I don’t remember bashing it anywhere .

 I am managing 7 hours of sleep every night and I have a nap in the afternoons on most days.

Hope everyone has a relaxing Sunday.

MBJ
Member

Re: February starters 2019 - yes, we rule!

Morning Nettienoo

I hope you eventually got some sleep. Yes you have had a tough time with all your side effects. Let's hope they will be over soon.

I really hope what you wrote about a 3rd reoccurrence is a typo!!! Not sure what's been happening if it's not. Do you expect to be on one of the hormone therapies. I f so I am coping well with Letrozole. Hope you have a better day today xx

MBJ
Member

Re: February starters 2019 - yes, we rule!

Hi Rosina

Yes those are my exercises + a few more I found on an American site that involve 🐔 wing arm exercises 😀. Gosh the yoga lady is flexible I don't think my arms would do that. Good idea using a scarf though. I have got a stress ball and a lovely shaped handle dry body brush. 

Have a good day x

 

Member

Re: February starters 2019 - yes, we rule!

Hi all, bit wired on the old roids tonight. Been awake since 1.30am and now 4am. Binge watching Killing Eve so time passing ok. Just don’t feel at all sleepy. 

Rosina, thanks so much for posting about the tub of Aveeno. Although, I’m not having rads, I thought I’d try some for my ultra dry, sore skin everywhere. Got it via Amazon Prime yesterday morning, and slathered it on. Bliss. 

SusieB I’m happy to hear that you are trying to get into the holiday spirit in your garden. It does sound rather nice. 

I’ve decided that my body has just decided it’s wants no more toxins, roids, wbc injections, antibiotics or even pain relief. I seem to be reacting to everything badly. Thank goodness this is the last one. I’m with you other ladies who think “never, never again” as far as chemo. I am hoping whatever carry on treatment I get put on will stop a 3rd reoccurrence until more targeted and less aggressive bc treatments are available. Even then, I may just take my chances. Who knows how we will all feel about everything that has gone on in 5/10 years time. I hope will will all still be in touch and have met more than once by then. 

Love you all. Xxxx

Member

Re: February starters 2019 - yes, we rule!

Hi MBJ 

Re, arm exercises I do all of these ( apart from the Nordic Walking)

how-to-do-arm-lymphedema-exercises-430210

This is an American site. No I don’t wear a compression sleeve ( don’t require one and you only need one if you do develop symptoms).

 I think this is what you used 

about-cancer/coping/physically/lymphoedema-and-cancer/treating/exercise

I do this with a scarf :

Yoga for Lymphedema

Hugs ,

Rosina

 

 

Member

Re: February starters 2019 - yes, we rule!

Hi everyone 

 

Can't believe the skies have finally cleared🌫🌫☁️🌤⛅☀️☀️ this evening. Bit of a shame as RNSA Yeovilton had their air day today so displays would have been limited to what they could do as the cloud was pretty low. We've been a few times, the last was going to see the Vulcan fly as our son had heard all about them, seen them on static displays but never seen or heard how noisy they were. Quite an experience. Hubby and me are having a bit of 'us' time today and part of tomorrow (empty house)😊😙💑 as Chris has gone down to the coast today, then staying with his mate overnight, then they're off to Taunton with a larger group to do the 10k Race for Life. My sister- in- law is popping in tomorrow afternoon on their way back from an antiques fair down this way. We haven't seen her since we told her about my bc. As I think I've mentioned before we didn't tell anybody until after Xmas about this Barrying bc. Preparing myself for the inevitable questions, you all know what I'm talking about.

 

MBJ, happy to hear that the exercises appear to be helping. I may start doing some myself, along with the ANC excercises, as that should give me more incentive to get more active as did quite a bit before I got my bc diagnosis🚶‍♀️🚶‍♀️🏃‍♀️🏃‍♀️💃💃🚴‍♀️🚴‍♀️. Then it all stopped☹☹. 

 

Implausible,  that's some piece of artwork you've got there. I would love to have a butterfly or something on the back of my right shoulder but am too chicken to get it done. Maybe after this is all over I'll think about it. Let's face it, if I can do chemo, undergo surgery and have rads I can manage a small, discreet tattoo🦋🌸?

 

I hope you're ok Trixielady, Sandra and Veronica, and Ocean 21, we haven't heard from you for a while. Deano I guess you're taking it easy after your surgery. Let us know how things are going when you feel able. I think everybody else has been on here in the last day or so. Appoglies I've forgotten anyone. 

 

Hubby and me about to have drinks🍷🍹🍹🥃🥂 in the summerhouse since we're supposed to be on our holidays🌍🏖🌡🌓🌞. Have a good evening xxx

 

   

MBJ
Member

Re: February starters 2019 - yes, we rule!

Lymphodema update!

Yes girls I do think it's better since doing the exercises. I have also been doing a dry brushing. 

I will try to set up a link but not sure if I am doing it right. www.cancerresearchuk.org

It seems to work but it's  a bit complicated to find. I think it would be easier if you just searched for exercise, positioning and lymphodema it came up as one of my searches and took me straight to the page instead of having to go through about 7 stages to find it from the link above.

 

Member

Re: February starters 2019 - yes, we rule!

Hi everyone

 

Edinbird, I was told not to drive for two weeks, then do short journeys to start with. From what I can remember you're a lefty like me so make sure you can change gear, use the handbrake and steer comfortably before you set off anywhere. On the plus side driving does provide a bit of arm exercise💪💪💪. I've just started to incorporate some arm exercises from a Rosemary Conley DVD to mix things up a bit and doing some leg toning exercises at the same time. Keep an eye on things if your arm is sore. The only pain I had was if I turned over in the night onto my left side. 4 weeks on from surgery and I've finally got rid of the last bit of tightness I felt when 'walking' my arms up the wall. Bit painful in the process but glad I persevered☺. Hopefully you'll make it to the book signing📚🖋🖋. 

 

Thanks Rosina for the information regarding the sesame oil. I'll start swishing on Saturday morning. And as for trampolining with a full bladder, a definite no,no me thinks🤣🤣🤣. Just imagining the scene is making me laugh. On my part, Iceland is where I've had a problem in the wee department. Must have been a mix of the cooler weather and the sound of all those waterfalls, although I didn't have that problem on 2 previous visits so maybe it's my age. Anyway I made sure I took advantage of the loos🚺🚺🚺🚺🚽🚽🚽 whenever we stopped after that little incident. Don't intend to become a Tenna lady just yet. 

 

Implausible stand your ground at work and learn to say the word 'no', politely of course.

 

Marlyn hope the AC cools you down. 

 

MJB, let us know if the exercises are showing any signs of heading off the lymphodeama.  

 

Hope everybody else is ok. Take care Susie B xxxxx

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Re: February starters 2019 - yes, we rule!

Slept awful Smiley Sad the bra was actually fine but I was so hot and my arm was really sore so I struggled to get comfortable. Stayed in bed until about half an hour ago, got up ate breakfast and now I could sleep again! Need to do my exercises. And this is without work... maybe it will mean I can sleep if I’ll be worn out! Getting apprehensive about driving too, I think I’ll be ok but my arm is so much worse today. At least it’s just numb and sore and doesn’t seem swollen like yours Susie. I’m going into town for a book signing on Tuesday so that will be a test to see how I go being out for longer and on the bus.

 

Right time to exercise 💪🏻

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Re: February starters 2019 - yes, we rule!

Rosina.....trampoline on a full bladder......🤣🤣🤣🤣🤣🤣🤣🤣🤣

Member

Re: February starters 2019 - yes, we rule!

Morning Ladies,

this is very powerful and worth listening to :

Responding not reacting

Hope everyone has a good day 🌼

PS. I rarely have accidents as the one described recently although I know that trampolining with a full bladder is a no no (and this is going back at least 3 years, haven’t been on a trampoline since ).

Member

Re: February starters 2019 - yes, we rule!

Hope you managed to sleep ok sans drugs!

 

 

Highlighted
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Re: February starters 2019 - yes, we rule!

Hi Sarah xx

 

Not sleepy just now and not wasting sleeping pills on a weekend.

 

New job starts 9th September but I imagine I’ll be in rads by then fingers crossed for no more surgery... so I’m not sure what I’ll do really. Wait for the dates and then come up with something... I definitely won’t be travelling any days during that, if working at all! I think I want to try to work at first, for a 10 minute zap I’ll feel wrong not to but we’ll see.

 

Yes I saw there’s a what’s next course they run but it just says pre book on the website not when each cycle starts so again, when I have dates I can speak to them. BCC also do one in Edinburgh looks like November for that. I don’t know if I can get away with taking work time for both or not I may as well try! But they both seem to be midweek which works for my Edinburgh days which will be Tuesday Wednesday and some Mondays.

 

Now funny I just said I wasn’t tired... got big yawns and sweats on now! Gonna see if I can sleep in the bra or not... might need the fan on though it’s suddenly very warm 🥵

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Re: February starters 2019 - yes, we rule!

Evening lovely peeps

 

I thought I'd just try to catch up from my last little post, as I'm not sure I have the energy to go all the way back to my last big comprehensive reply.... but that means I have to start with Rosina's pee accident Smiley Very Happy

 

But what a great start that is Smiley Happy Rosina thanks for sharing, as I've had a largely mirth-free week, yet this made me laugh out loud Smiley Very Happy sorry!!!

Hope for the sake of your laundry routines, that it was a one off!

 

Seaside, I hope that your bodily functions are behaving too Smiley Happy don't want to cause a scene in church!

 

As for tiredness, to be honest I don't think I can ascribe my sleepiness to the radiotherapy just yet, I think it is more down to the fact I'm up, showered and dressed and out of the house by 8am every morning, and was then working till around 8 at night. 12 hour days are too much for me when I still don't feel fully recovered from chemo. By end of Wednesday this week, after 3 super long days like that I was weeping in frustration from the exhaustion. But yesterday and today I've taken it much easier with the work, finishing up by 6pm both nights, and I now feel much better.

Next week, I don't care how loud the clients shout about their urgent requirements. I won't work past 6.

 

I'm expecting it to get tougher though as I go into week 3 and 4 of rads and the fortnight after when everything is supposed to really hit you for 6. Might take some time off as holiday seeing as my sick pay has run out.

 

Talking of sick pay, got a revised contract emailed to me today from the HR department of the company that has bought out the firm I work for. The 8 weeks sick pay we used to have, has now been reduced to 5 weeks. Glad I got mine out of the way before that change came in! It is now even more rubbish compared to the 6 months pay a few of you guys get :/

 

Sonia28, I do wish they had run that genetics test for you sooner, so that it would be back by now. I read that the gene is pretty rare so fingers crossed you (eventually!) get good news x

 

(And I would have both my boobs off in a second, rather than go through chemo again! I already said to my other half that if they ever try to give me chemo again they won't see me for dust. Would rather take my chances. Maybe I would think differently in 5 years time or whatever, but right now, no way!)

 

Rosina, you've just made me realise why I'm fat Smiley Happy if I accidentally made a double portion meal, there wouldn't be any leftovers in the fridge! And I'd still be hungry Smiley Very Happy

 

Marlyn I am giggling at the thought of you skipping around in front of the AC unit in your bikini while your other half is wrapped up like an eskimo Smiley Very Happy

 

Edinbird, when you go back to work next week, is that to your new job with all the travelling? Or to your existing role closer to home? If still the old job, when will the new one kick in?


Also, which of the Maggie's courses are you looking at? If it's the "what next?" one (or whatever it is called, the one that is like the BCC moving forward course), I called my Maggie's centre about that about a month ago and the first one available was September.

 

Daisydi what new phone did you get? I can't wait till my contract runs out as I smashed my phone screen 11 months ago and have had to put up with it all broken and scruffy ever since :/

 

Your hospital journey sounds like a nightmare! Are you going to have to do it every day? Smiley Sad at least you don't have to do the breath holding.

I asked about that btw, apparently the reason I have to do the breathing thing despite being right boob, is because they are also zapping the nodes that run up my middle between the boobs and that is close enough to the heart that they want me to breathe in to move the heart out of the way just to be on the safe side.

 

Sorry the tats were painfulSmiley Sad hopefully they were at least quick. If it makes you feel any better, this one took 9 hours Smiley Very Happy

FB_IMG_1562965453468.jpg

 

Good news is that the actual rads appts are over in minutes, waaaaaaay quicker than the planning thing. And compared to chemo, the time flies. I can't believe I'm half way through my 20 days already, seems like I just started.

 

MBJ, glad you are feeling a little better. Did you find the lymphedema exercises online? If so could you share the link? I'm a little worried since the reflexology lady pointed out to me last week that my right wrist was noticeably larger than my left, I hadn't even spotted it was swollen.  Nobody has measured mine like has happened with some of you....

 

Good luck with the garden! And the rock choir fundraising initiative

 

Rosina your eyebrows story was funny too Smiley Happy I also rarely have "the energy for brows". I only draw them on if I'm doing a full face of make up which is only if I'm going somewhere special.

 

Edinbird thanks for the map Smiley Happy

 

Sleepy time. Night night everyone xx

Sarah x

 

 

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Re: February starters 2019 - yes, we rule!

SusieB,

the sesame oil was for swishing 1 tablespoon full around the mouth every morning then spitting it out. I am still doing it.

Implausible thanks for the Aveeno information. I have only seen the bottle version in my local chemist. This is what I would have got !!! so thanks for the photo of the tub version 🤗

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Re: February starters 2019 - yes, we rule!

Aw Daisy I think we all are cancer buddies! I’ve not lived in Beccles since I was 21. I didn’t mark Kenninghall on the map where we lived before we moved up here. If I was still in Kenninghall I’m sure I’d have had all treatment at the N&N but in Beccles I guess I’d have gone to the Paget first? My dad went there when he had a stomach issue a few weeks ago but he goes to Norwich for his prostate cancer appointments. Not sure how it’s decided.

 

We have typical Edinburgh weather right now very heavy rain! Going to bed shortly the noise will either keep me up or actually be a soothing noise to sleep!

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Re: February starters 2019 - yes, we rule!

Thanks for the map Edinbird, I totally get it now. 

Gorgeous sunsets and beaches where Daisydi lives though, this must somehow compensate for the parking aggravation.

The only other thing I can think of is she asks a friend to help out or finds out if the hospital runs some pick up/drop off minibus scheme.

Apparently mine does ( they keep extremely quiet about it as it is for the very elderly/disabled not sure who else) but another aquaintance of mine had to take her very elderly dad for radiotherapy and she has a walking stick and swollen legs and she used this minibus service for this purpose. 

She even gave me the number.

I have never used it and nobody except for this lady has ever mentioned it to me or have I ever seen any posters or information about this service at the hospital.

So it may be worth enquiring as it cannot only be Daisydi that has to deal with this problem.

The  numbers she sent me are PTS Sussex and PTS ETA.  Am I guessing right that PTS stand for ‘patient transport service ‘ ? Don’t know what ETA stands for but this lady wasn’t making this story up. It was also a door to door service so it really must be for those with limited mobility/ very elderly. 

Worth checking out.

Edinbird I am a 32C and I got the ‘medium ‘ most of my swelling ( or whatever it was - felt more like I had a brick under my arm) can’t have been swelling as I had the drain, general numbness and bruising I guess. I bought the bras pre op as I could not imagine doing any kind of underwear shopping post op. The crop tops are soft and stretchy ( pull on pull off) I kept them on continuously in the beginning as I didn’t have great mobility in my right arm ( the operated one) and getting them on / off became part of my exercise routine.

So pleased that my right arm has regained full functionality 7 months down the line ( even switching the shower on had to be done with my left).

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Re: February starters 2019 - yes, we rule!

Sarah I bought that one first and it wasnt very good for my skin.  The one I have been using is in the same kind of bottle but I think its called intense skin relief in a black background instead of green.  I have not seen the one you have been using.  Will have a look online.  Thanks.

Thanks for the map Edinbird.  Shame you're not here now!  We could be cancer buddies!

Member

Re: February starters 2019 - yes, we rule!

Hi everyone 

 

Daisydi, I'm fine thank you. As for your journey to Norwich it's about 30 mins longer than ours to Taunton hospital, which is for us on the other side of Taunton itself. We don't have a bus service there either☹.The good thing is they do have free parking in an allocated area for people having rad treatment. My problem is with the driving. Although I am in no way a nervous driver I just can't do long journeys and have to stay on familiar roads. So I'm ok around Yeovil, although I will only drive in on certain roads. I have read that this is a fairly common thing, but sometimes difficult for me to explain and people to understand. So upshot is, unless my local hospital can arrange transport Paul will have to take me there everyday and possibly work from home. One of his work colleagues will have the same problem since his wife  has recently been diagnosed with bc.   

 

Edinbird on the bra front, still, I bought an m&s post surgery tee shirt bra which is the most comfortable of the 4 that I've bought. Rightly or wrongly I gave up wearing a bra at night. It was too uncomfortable and things kept digging in. Also as I've said before I wear my birthday suit to bed so not used to wearing anything. Although I do wear a PICC line cover. 

 

Implausible thanks for the extra information regarding the Aveena, I'd have bought what you originally did. What has everybody else tried?

 

Rosina you mentioned sesame oil when on T. How did you use it and was it for prevention rather than cure?

 

As you've probably guessed I'm getting armed and ready for CT and rads🔫🔫🏹🏹🗡🗡🔨🔨⛏.

 

Will catch up more tomorrow. Take care and have a lovely evening everybody xxxxxxxx 

 

 

Member

Re: February starters 2019 - yes, we rule!

Hi

 

Just popping in super quick re Aveeno

 

I bought this one at first, as I didn't realise there are a ton of different things called Aveeno:

20190712_184546-picsay.jpg

 

That turned out to be the wrong stuff

 

The right stuff looks like this and costs about £15 for an 11oz tub:

20190712_184450-picsay.jpg

 

20190712_184509-picsay.jpg

 

Hard to tell from the pic but I've so far used about a third of it, which is about right as I'm 2 weeks into rads now and I will need to continue applying it twice a day for the next 4 weeks (remaining 2 weeks of rads plus the following 2 weeks)

 

That is applying it *very* liberally everywhere, all over and around the boob, right up to the neck, over into the armpit etc.

 

Absolutely no redness or soreness anywhere yet.  Just a little tingle on the skin which feels a little like the early warning signs of sunburn 

Member

Re: February starters 2019 - yes, we rule!

I have created a helpful map to show Daisy’s predicament!

 

Blue arrow is where Daisy lives

Red arrow is the hospital

Yellow arrow is where I’m from if anyone is remotely interested 😂

31CB5C97-5C2D-42EC-A203-A6C37366CBD2.jpeg

 

Thanks for the link Rosina, I’d normally be a small in these but at the moment I think I’d be a medium... don’t really want to end up with something that’s too big in the long run. The bras that seem uncomfortable in bed are my normal size but I have put one of those extender things on the back so I have a wider band for now. It’s been fine all day. There’s an M&S near work so when I’m driving again I could go in and look.

 

Your eyebrows experience sounds good. I’m having to pluck mine plenty they really don’t seem to have changed at all! Considering I spent £225 on them before this all started... I don’t really feel like spending the further £50 to have them topped up. My eyelashes continue to be sparse but I don’t think it’s very noticeable... my eyelids seem to be constantly puffy though is that because of that? I guess with my glasses on you don’t focus on them. Was also looking at my nails, they’ve grown back to a decent length now and don’t seem to be flaking anymore. Even my rogue toenail isn’t falling off it just looks a bit grotty. Don’t want to speak too soon but hoping they’re all ok. Need to try some walking I’ve only been out once this week see if my legs have magically got some strength back too!

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Re: February starters 2019 - yes, we rule!

Oh Boy , Daisydi, I feel for you.

Rosina

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Re: February starters 2019 - yes, we rule!

Rosina I live in a small village at the end of the universe or you would think.  No bus service to Norwich as I cant go to my local hospital for radiotherapy.  There may be a bus an hour but they dont go very far!

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Re: February starters 2019 - yes, we rule!

Me again, my dupe for not being able to swim in the sea :

 

image.jpgSmells amazing

Although, it will have to be before rads start and once they are over. Hello bath 🛀 time 🤗

Daisydi is there no bus service to your hospital???? I have one that takes an hour (stops every where) another that does it in 30 minutes .

Ocean21 and Implausible hope you’re ok.

Marlyn here is another funny story ( well both I and the girl at the Benefit counter in Boots were laughing) I went looking for a darker eyebrow pencil so I described what the LGFB had given me ( too light ‘auburn’ but better than nothing). So she removes my fake brows and takes as long as I take to do 2 eyebrows to draw one back on. When she gets me to look at myself in the mirror I tell her that the brow was ‘too perfect ‘ and could she ‘ mess it up a bit ‘ ? Which she did - and then she did my other brow ( dark brown) and it was lovely to see my old self again. I said if I took that long to do my brows I would never leave the house !

Which she found hilarious as I said some days I just didn’t have the energy for brows , and I also said ‘perfect’ is a word that doesn’t exist in my vocabulary anymore.

For some reason we were both laughing and she admitted that some mornings even getting up was hard work.

Laughter is the best medicine.

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Re: February starters 2019 - yes, we rule!

Link For  Edinbird:

2-pack-non-padded-full-cup-crop-tops/p/p60177952?image=SD_02_T33_7002A_F4_X_EC_90&color=NAVYMIX&prev...

After coming out of my sports bra ( which I wore continuously after surgery round the clock- can’t remember for how long at least 3 days as drain was in and I didn’t want to move anything 😬)  I switched to these which are fab. Still use them so not a waste of money.

 

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Re: February starters 2019 - yes, we rule!

Daisy I think I’m just being tight not wanting to spend any money on bras and also not wanting to buy any more clothes as I already get moaned at for what I have!

 

I guess at least you’ll be ok getting home after rads as it will be quieter then. I’m so lucky where my hospital is, even if I don’t drive to work it’s so easy by bus. Just want to know what’s next now so I can work out how it fits with the new job. Want to get signed up to the Maggie’s course too, don’t know what the waiting list is like.

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Re: February starters 2019 - yes, we rule!

Edinbird there were no disabled spaces free either!  Its not so bad if I have someone with me as I can jump out if it gets too late and leave them looking for a space but I expect most of the time I will be one my own so will just have to deal with it.  I agree about getting sports bras on but I bought a couple that were bigger sizes and found it much easier.  Also had a couple with zips which really helped.  Yes to keeping an eye out for Aveeno.  Its £7 at the moment but goes down to 4 or 5 when on offer.  Will need an industrial size bottle.

Good news about the job!

Forgot to mention Susie B in previous post.  Hope you are ok x

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Re: February starters 2019 - yes, we rule!

Daisy wish I had a magic answer to the N&N parking situation... I don’t suppose even a blue badge would help? Have you considered one? Given that you’ve been using the mobility scooter. Shame you can’t run that along the Acle Straight, you’d probably get there in about the same amount of time! 

 

I have some sports bras but I think they would be too tight and tricky to get off in particular, I always needed to be a bit of a contortionist to remove them. I’m sure they’d squash my swollen areas too much. I’ll see what it’s like tonight, it’s been fine all day. I also think my mattress might need turning.

 

Finally work have announced a lot of the people who’ve got jobs as I was anxious having had nothing in writing. But I now have an email asking me to revise my flexible working plan ASAP... have told them it will have to wait until Friday when I’m back to work. I’ve been told the parameters so it won’t take long. They can’t do the contracts without it but I’m sick so tough! Waiting to talk to my boss about my phased return, I have an idea but as usual he’s not got back to me which is frustrating but there we go.

 

I’ll keep an eye out for offers on Aveeno and stock up now!

MBJ
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Re: February starters 2019 - yes, we rule!

Hi Ladies 

I hope everyone of you is having an ok day. I am getting used to my exercise plan I found to do for the lymphodema I think I do feel better but my muscles are aching a bit ( just shows how out of condition I am). But it feels good to be doing something active and positive. 

We have a friends and family night in Rock Choir next Thursday to raise money for charity, guess what it's going to be for breast cancer fair play to them all. So I shall be asking for the money to go to Breast Cancer Care who run this forum and also the moving forward course I did and the Becca app. I am also going to do the bucket collection in our local Asda in October. 

Edinbird,bras were my main source of pain and discomfort. I think I spent a fortune on them. I think a sports bra is the best, tight but good but get one that you can do up in the back as some have to go over your head, I could not have managed that, but then I had a mastectomy and reconstruction. If you have some swelling maybe go up a size and reduce the cup size that's what I did. I found the Wings of Love from Amazon the most comfortable and they come up nice and high at the front so don't push your boobs into that cleavage shape which gets to feel uncomfortable. 

Hopefully we have our ground workers coming back on Monday (at last) so been outside with hubby going through what we are having. I really hope they turn up. 

Have a good evening girls x

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Re: February starters 2019 - yes, we rule!

Hi all, Ive treated myself to a new phone so have had all kinds of problems logging in to everything but I think I am sorted now.

Implausible you dont have to apologise for not writing long posts.  We only want to know if you're ok and anything else is a bonus.

Edinbird maybe try wearing a sports bra, thats what I did.  There's nothing to dig in and no clips or anything to worry about.

Rosina you did make me laugh last night.  Been there done that especially at the moment as I seem to have developed a really annoying cough!

Nettie hope you are managing ok.

Maryln glad you have no nasty side effects from Anastazole.  Makes a change!

Sonia sorry to hear you have to wait so long for answers.  Must be torture for you and your family.

Seaside hope you got your tooth sorted.

Yesterday I had my hair cut as it was really breaking at the ends every time I combed it.  Still losing so much but in strands and I can really see my scalp but I am lucky so I am not complaining.

Today I went for my radiotherapy planning, as expected traffic was awful and there was nowhere to park and had to drive around for ages.  Lucky I went early.  Have to give myself at least an hour and a half to get there and park.  Just know I am going to get really fed up by the end of my treatment.  I will not have to do the breath holding.  Quite surprised how uncomfortable it was and I was laying there for ages with my arms up but hopefully wont take that long for treatment.  Those tattoos hurt!  Well the one in the middle of my chest did.  They said Aveeno was good to use but I can have a good chat before my first treatment.  I asked about the area to moisturise and it really needs doing from armpit all across chest  up to neck and down under breast.  Shall be using gallons of the stuff.

Hope everyone is well x

 

PS as I was checking out my tattoos I noticed my armpit hair is growing.  Didnt realise, have been flashing my pits around to everyone today!  

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Re: February starters 2019 - yes, we rule!

Hello xx

 

Finding it so hard to keep up these days as everyone is having different treatments and issues, there’s always something new! Hope we are all feeling ok today.

 

Well I didn’t sleep well last night because I changed bras to another non wired one but where there is instead extra material to replace the wire dug into me! So I had to take it off and then kept waking up to turn over as it wasn’t that comfortable and I had to keep holding my boob to do it! At 34b that’s not something I’d ever contemplated having to do! Put it back on now and I can try it again tonight but I don’t hold out much hope. I also have two of these bras in different colours as they came in a pack so doubly annoying 😕

 

Sonia try not to worry about the genetics test, nothing you can do until it’s back, 3 months is the normal timeframe. I had mine fast tracked because of my age, being triple negative and just about to start chemo (in case it affected the treatment plan). Mine came back in a month and was clear. I don’t know why it takes so long I never asked because mine was being pushed through. Ultimately I thought it was a good thing if there was something I can do to stop this happening again but I understand the extra concern with your children. I was concerned for my sister who had found out both her sister and dad had cancer in the space of a week. I’d be interested to know why they suddenly wanted to test you now though.

 

This time next week I’ll be back at work! Eek! Waiting to talk to my boss about a return to work plan, I also need to revise my flexible working plan for my new role but they’ll have to wait until I’m back for that. Given how tired people seem to be with rads I’m wondering if I’ll need that time off plus weeks after... getting to the impatient part again when I want to know what’s happening next and when. I want to book some leave but don’t want to until I know some timescales.

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Re: February starters 2019 - yes, we rule!

Implausible,

totally completley and utterly understand your fatigue. I'm now 3 weeks post rads and still on my knees, it's nuts how it can floor you like that, I gave in and had to have the final week off work...do what you gotta do love....hopefully no rads tomorrow? 

 

Edinbird and deano....hope your doing ok? 

Our netti? Keep taking the meds, it will soon be over 

ocean? Haven't seen any posts for a while...hope rads is going ok?

 

Its now been a week on meds.....so far so good...other than an underlying headache I seem ok.....oh and almost constant hot flushes! It got so bad that my wonderful hubby bought an air conditioning unit....what a god send!!! He sits there all wrapped up and I'm virtually stripped...but by eck it certainly works....

 

I hope your all doing ok? I like that we are a chatty lot....I don't know what I would have done without you all...... xxxx

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Re: February starters 2019 - yes, we rule!

Rosina,

thank you for starting my day with a massive giggle! Brilliant....just brilliant.....xxx

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Re: February starters 2019 - yes, we rule!

Morning Sonia28 

I don’t think I would put myself through chemotherapy again either!!!

 I bumped into a friend yesterday whose mum had had chemotherapy for lung cancer back in the 70s . They had given her 3 months to live and she did the chemo ( not as precise as it is now) and lived for 2 more years. Her attitude was well if it helps me great and if it helps others down the line even better !

Here is what I cooked yesterday (it got a 👍) from everyone:

/halloumi-and-aubergine-salad/

After making it I realised that the recipe is for 6 ( instead of 3 - H1 is with his mum, staples came out yesterday) so there is extra in the fridge 🤪

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Re: February starters 2019 - yes, we rule!

Morning everyone 

 

Just a quick pop in as I'll be doing my Tesco online shop later.

 

Deano and Edinbird hope you are both recovering well from your surgeries. 

 

Implausible no need to apologise for not saying much we all know how tiring it must be for you to do all that travelling, have rads then work.  Please don't overdo it😴😴😴😴.

 

Back to the socks/stockings during and after surgery, I was half right in that they did put some on me when I was under the aneasethic  but apparently I still had them on when I went back to the ward. Hubby confirmed last night that I had some on and the nurse took them off, but I can't remember that at all. I'm beginning to stress a little about next week, more results and chemo, but certainly no where near as much as when I was first due to have chemo. We're going to have a meal out somewhere on Thursday night  before everything starts to taste yuk😝😝😝😝.

 

Have good day everyone. xxxxxxx

 

 

 

 

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Re: February starters 2019 - yes, we rule!

I’m really not sure why the results takes so long. I know they throughly test the DNA, but why it takes that long is a mystery to me. Both my sisters are to have mammograms yearly now, and we all have to wait for the results. 

 

My bc consultant said she would sent me to the genetics clinic, but when I got to oncology he said she hadn’t done it, so he referred me, and they only hold a clinic every few weeks, so I think that’s where the delay has been, as they come down from Exeter.

No point in worrying until results are in, although when she asked me would I have the other breast off or closely monitor, 80% chance of getting in other breast if you’ve had it once with BRCA gene, I said take it off as I’m not doing chemo again!!! Also said I should have ovaries out as preventative but got that box to be ticked off anyway. 

 

Ive got a day off from radiotherapy today, only had 3 sessions booked in this week for some reason, so meeting the girls in work for

lunch as another person is leaving, we will have no one left when I get back. 

 

Rosina  you made me smile, ( not funny when it’s you been there after chemo) and seaside hopefully you’ll make it today xx 😘 

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Re: February starters 2019 - yes, we rule!

Implausible, as long as we know you are ok, that’s all that’s necessary.....you are ok aren’t you? Sounds like you may be overdoing things love. Take care. Rest as much as you can and get those lads to help you a bit more if poss. Xxxx

Sonia28, I can’t understand why it takes so long to get the results.  Does it have to go off to the States like the Onco Dx ones? I was told 6 weeks for that and they were back in just over 3, so maybe your results will be back sooner. I hope so sweetie. Xxx

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Re: February starters 2019 - yes, we rule!

I nearly joined you reading your post Rosina. Sorry to laugh at your predicament but been there, done that, feel your suffering! 😘 Seaside hope the poops clear up in time....make sure you sit at the back!!!! Xxxx

 

MBJ
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Re: February starters 2019 - yes, we rule!

Sonia 28

It's hard to believe that you have come so far and only now they decide to test you. Its not as if you family history would have changed surely. Why did they not think of doing this earlier. It would be hard enough to deal with without such a long wait for results. You have a lot going on at the moment, take care and say what ever you want to here in our safe zone. X

MBJ
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Re: February starters 2019 - yes, we rule!

Hi Rosina

I am sitting here in bed laughing out loud. That was so funny. 😂😂😂😂

 

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Re: February starters 2019 - yes, we rule!

And now you Seaside  Sar😅😅. When will it all end?🤔.

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Re: February starters 2019 - yes, we rule!

Sorry Rosina, too much information, but you did make me laugh😅😅😅.  

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Re: February starters 2019 - yes, we rule!

Hi Sarah,

 

No apologies needed. This RT really takes it out of you. I am exhausted already after only 4 sessions and without the long journey that you've got. As long as you're alright. 

 

Rosina, I know I shouldn't laugh but I did. What a way to end the day indeed.

 

As for me, along with being exhausted from being zapped, I'm also suffering with diarrhea from Herceptin. Joy! Wouldn't mind so much but I'm planning to attend a Mass tomorrow. Let's hope I can keep it all in 😮