cancel
Showing results for 
Search instead for 
Did you mean: 

February 2019 chemo starters

Member

Re: February starters 2019 - yes, we rule!

Oh oh oh I cross posted with our star patient!!!!

 

Susie so glad it went so well!!  Now you get some rest and you can tell us all about it tomorrow.

 

Well done you absolute star!!

 

Sarah xxx

Member

Re: February starters 2019 - yes, we rule!

 

Hi everybody

 

I'm already shattered and tucked up in my bed at 20 past 7, I'm still so tired from this week!  So let me quickly catch up with you all before I drift off...

 

I didn't realise Susie was going home today (I had 2 nights in hospital after my lumpectomy as they didn't send me home until the drain came out), so yes you are probably right that we won't hear from her till tomorrow, Rosina.  Unlike me who was on Facebook spouting utter nonsense within 20 minutes of coming round from the anaesthetic Smiley Very Happy

The suspense though!!!!  I can't wait to hear how she is

 

Daisydi, the thing about your nieces and/or nephews blanking you after hearing your diagnosis is really sad Smiley Sad  It is weird how some people we thought were really close to us, just fade away when they hear about a scary illness. Almost like they think it is catching.  And then others step up over and above the call of duty.  I've got a friend who lives in Belgium who I only see once a year and we would maybe chat online once a month or so in between before I got cancer.  But he checks in on me every 2 or 3 days now!  I am running out of ways to answer the question "how are you feeling today?" Smiley Happy  I think it is because his mum had BC too about 5 years ago....  he certainly checks in on me far more often than my own sons do!

 

Rosina, you look fantastic!  When I have enough hair to cut, I hope it looks a tenth as good as yours does short.  Did you say you are 50 next month?  You most certainly don't look it, and that is after the ravages of chemo!

 

Talking of hair... still no sign of any new growth for me Smiley Sad  I'm sure it will start to come through eventually.  I really want to prove my Mr Negative onco wrong with his "sometimes the hair loss is permanent" fearmongering Smiley Happy

 

Oh... and Rocketman.  As you might remember I was in a delicate mental state when I saw it and cried like a burst fire hydrant throughout the whole movie, so my opinion may be skewed.  but yes I do think it was even better than Bo Rap. 

 

Nettie.....it sounds like you joined the club of the "just before the final chemo meltdown" , quite a few of us had that before number 6.  It must be a thing!  I think it is because you are just so bloody exhausted by that point and the thought of having to go through the horrid side effects one last time is just ugh!!!  And those horrid jabs too Smiley Sad   The end is in sight, but just not damn close enough!!  
I wouldn't worry too much about traumatising your boy, does them good to be reminded once in a while that mum is human!!

I hope today has been a little better for you.  Or even a lot better!

 

Sonia.... love the card!

 

I don't suppose our lovely Dr James will see this until she gets home now, as has presumably already set sail from Southampton (or do cruise ships have wifi?  Actually they probably do nowadays!) ...but bon voyage MBJ!!!

 

Rosina why are there sales now?  Are June sales a thing??? Off to investigate..... Smiley Happy

I do tend to pick up some wild and wonderful trainers in the sales, presumably because I like the wacky colours and designs that all the sensible people pass on Smiley Very Happy  I tend to dress in black jeans, black t shirts, black hoodies....but on my feet I allow colour Smiley Happy  and on my head! 

I hope you had fun at art therapy.  I almost did some painting today, but instead got sidetracked sorting out all my paints (I have so many!) into colour families.... at least they are now organised for when I *do* get around to using them.

 

Edinbird I hope your sore ear is calming down.  How did your super busy day go?  Made me sleepy just reading your itinerary Smiley Happy

 

Susie we were also in Florida during a hurricane once, we were down in St Petersburg and got evacuated back up to Orlando, but even up in Orlando it was crazy!  Trying to remember which hurricane it was.  I know I did a scrapbook page in one of my old Disney scrapbooks about it.  I was due to meet up with one of my pals for lunch (she lives in Scotland so it was easier to meet up with her in Florida than at home Smiley Very Happy) so I left my ex hub and kids at the hotel and drove up on the interstate to go see her thinking "ah it is just a bit of wind".  All the toll booths were unmanned, the interstate was deserted.  And just as I drove past a large body of water a huge gust of wind pushed me rapidly across about 3 lanes and I genuinely thought it was going to pick me up and deposit me in the lake Smiley Surprised  Smiley Sad  So terrifying!!!!  

I somehow managed to get back to the hotel alive.  What an idiot I was! 

 

I think Paul has totally missed the point of the baby mop, if you are going to put a broomstick up the poor little mite's nappy hole and sweep it around, he might as well just have a normal mop Smiley Very Happy 

PS I hope by now you have had something to eat and drink!  Nil by mouth is a bugger.

 

Seaside....  I hope your new slippers haven't ended up in anything unpleasant yet!  Blooming cats!  Mine rarely poops indoors but she is always eating things she shouldn't and then coming home and being sick in the most inconvenient places.  Most recently all over my.laser printer.  Ewwww.

I hope the rest of today has been nicer and less stressful after the M&S trip.

 

Daisydi your pringles post made me giggle Smiley Very Happy  it's funny I actually bought a tub of them this afternoon too, and it is very rare for me to be in a crisps mood.  Must be a recognised chemo craving and therefore most certainly not your fault in any way!!!!

 

Ocean, just how beautiful is the sky in those golden hour beach shots??? You really do take a striking photo Smiley Happy

What was the book you read for book club this week?

 

Rosina the Gaiman/Pratchett book is Good Omens

I had also hoped to read a lot more while ill.  Trouble is, if I have been well enough to work, I've worked.  And when I'm not well enough to work, I'm also not well enough to read.  Plus I used to mainly read in bed in the evening before falling asleep whereas now I am always SO tired I am asleep before my head hits the pillow.  So I have actually read way less than usual the last 6 months.  I've only read 2 prose books in that whole period and I am hugely behind with my comic readingSmiley Sad  I still pick up my comics every Wednesday from the comic shop but instead of reading them each week they are piling up and up.  I am months behind on some titles.  Makes me sad Smiley Sad

 

And on that sorry note, I'm going to go to sleep because I'm already fading!!!

Love to all x

Sarah x

Member

Re: February starters 2019 - yes, we rule!

So pleased your all done Susie.  Have a good rest now xxx

Member

Re: February starters 2019 - yes, we rule!

Hi everyone

Quickly read posts. Thanks for all your kind thoughts. Basically, I escaped hospital just before 5:00 pm after water toast and pee. Why do they have this facination for pee?  Haven't got a drain, more on that tomorrow when I'm more with it  Can't remember who commented on it but I am a bit tired, but not tired enough to sleep yet. And a huge THANK YOU  to you brilliant ladies who were honest and brave enough to tell me surgery would me much easier than chemo. I had been a bit sceptical as chemo  hadn't been too bad for me. It was absolutely fine and over in a flash. Will catch up later when hopefully I'll be a little more coherent . You really all are a very special bunch ❤❤❤❤❤❤❤❤

Member

Re: February starters 2019 - yes, we rule!

Just remembered 1 more  title: Healing Walks For Hard Times.

 This was my favourite read, or the most suited to my needs at the time.

The Feather Thief coincided with my operations. It’s about a true heist involving theft of priceless feathers from the Natural History Museum ( UK) for the fly fishing obsessives. It was a good read.

Member

Re: February starters 2019 - yes, we rule!

Oops , sorry, Just realised its Ocean21 I am replying to re. Books.

Taking my son to basketball now. I have Chakra Yoga to read as I wait/watch.

Daisydi, I am eating horseradish by the tablespoon!

Member

Re: February starters 2019 - yes, we rule!

Hi Daisydi,

 I would be interested in an online book group.

My problem is that I often have 3 books on the go and I swap about. Takes me longer to finish ( some I don’t finish at all or I return titles that I have started  much later).

 I have piles of books under my bed ( to read) and a virtual list on Goodreads.

 I thought I would read loads during my sickness leave but I have only completed 5 titles. So that’s not even 1 a month.

The titles were : 

The Feather Thief, The Overstory, ???? something funny by Gaiman and Pratchet which is being adapted for TV ( can’t remember the name) , The Choice ( autobiography) and The House of Spirits . 

Member

Re: February starters 2019 - yes, we rule!

Actually thinking about it I have been sweating so much over the past few days that I probably really am craving salt.  That's ok then!

Member

Re: February starters 2019 - yes, we rule!

Daisydi, Pringles are pretty salty maybe it’s that that your body is craving. I remember having terrible nausea during pregnancy , the only thing that I craved and that really helped was really strong ginger beer. Didn’t know the link between ginger and the way it can help nausea until I went to see a herbalist. I was just giving my body what it was telling me to.

 

Anyway, MBJ enjoy your  cruise.

 

Susieb , sure all will be well. Thinking of you.

 

Nettie, I wish I was better at crying and letting things out, spent my whole life being the ‘strong one’ and the one who gets sh*t done. Glad you felt better after .

 

Rosina , really love the new cut and the mindset. 

 

Today spent around the house. Had my book group meeting in the afternoon. Had an intensive listening session of the book on Audible  before the meet up. 

 

Id like to do an online book group. Was wondering if any of you lovely lasses would be interested in joining me. Let me know.

 

Love and big hugs to everyone.

 

Some pics for you.15CAA2F5-36F7-4429-A29F-8BB9EA253892.jpegStone bay Broadstairs.F2C01B82-1346-4F7D-A7F6-ED87D39C72C4.jpegAlll next pics are Viking Bay BroadstairsF17635A2-93B8-482B-9493-E82BE5DCE8E9.jpeg40FB6BCB-0A0F-4C6A-B846-088FE4B25247.jpeg

xx

 

 

 

Member

Re: February starters 2019 - yes, we rule!

Nearly ate a whole tube.  Disgusting behaviour for a fat girl!

Member

Re: February starters 2019 - yes, we rule!

Daisy, you made me titter.....you go girl, show the pringles who's boss! Xxxxxx

Member

Re: February starters 2019 - yes, we rule!

I CANT STOP EATING PRINGLES ....

Member

Re: February starters 2019 - yes, we rule!

Hi Implausible,

if Susie is having a full clearance as she says she is , she will probably have a drain put in.,

I think she will be very tired by the time she gets back home.

 I am thinking of her too.

Looks like we all are.

Edinbird, hope you’re taking it easy.

Keep the fluid intake up. 

Member

Re: February starters 2019 - yes, we rule!

Just a quick pop in to see if we have any news yet from Susie.....

 

Hope all is going smoothly

 

Back later 

Member

Re: February starters 2019 - yes, we rule!

Edinbird so relieved you have got some antibiotics on the go. You have been so through much already you really don’t need any more problems eh? Xxx

 

Member

Re: February starters 2019 - yes, we rule!

The oncologist gave me a slap on the wrist for not calling the chemo line... but he was happy to give me antibiotics provided my bloods were good. So impromptu bloods done (given I’d barely drunk anything was surprisingly easy) and sent away with the pills with a phone call should I be neutropenic. No call yet and did bloods about 11... he didn’t think I would be after 10 days of injections.

 

So I not only have five days of antibiotics but I also have another nice jug of contrast dye to take yummy! 😝😂 thought I was getting an injection of dye but no just this to drink. That’s better only one needle in me today.

 

Walking to the hospital was a real effort though. At least I get to sit and relax with my lovely liquid! Thinking of you Susie hope you’re out and recovering well xx

Member

Re: February starters 2019 - yes, we rule!

Hi everyone,

 

Bit late in joining you this morning. Had to go and buy some new slippers because I stood in cat poo! Ew! Trouble with having wood effect floor is it disguises the poop although the smell should have alerted me.

 

I definitely need a rest day as I was super grumpy while I was out. People kept cutting me up or walking into me. Was starting to think I was invisible or maybe it was the scary wig 😂🤣. Then in M&S I broke out into a nasty sweat while standing in the queue waiting to pay. Was glad to get back home, and yes the wig came off straightaway. Coffee and almond croissant consumed....and breathe.

 

Anyway, I'm sorry this is a late message to you, Susie but I hope you have gone down to theatre by now. Thinking of you and hope it's all done soon so you can eat! 

 

Also a belated happy cruising, MBJ. Enjoy every minute and relax. 

 

Rosina, that's a beautiful picture of you. Love the hair. I was going to wait another 5 weeks to get mine cut but I might have to bring that date forward now I've seen your lovely locks.

 

Nettie, those nasty injections are enough to make anyone cry. I would always shout Oh no! as my alarm went off to remind me. Keep ticking them off and thinking that's one less now. You are so close to the chemo finish line. Hang in there.

 

Edinbird, hope you get the earache sorted. Good luck with your busy day today. 

 

Marlyn, hope the new creams are helping to relieve the soreness. How many sessions left now?

 

Hope everyone else is having a good day.

 

Sar xxx

Member

Re: February starters 2019 - yes, we rule!

Susie, I hope you are well away with the fairies by now. Thinking of you constantly and imagining that bloody gremlin getting kicked into touch. 

Rosina, you look gorgeous. Xxxx

Member

Re: February starters 2019 - yes, we rule!

Susie, it's now 12 so here's hoping your now in theatre serving eviction papers to the gremlin.....he can shrivel up and die.....xxxxx

Member

Re: February starters 2019 - yes, we rule!

Hi all

Still waiting and starving and thirsty🍌🧀🍞🥓🍔🍟🌭🥃🥂☕🍷🍸☹☹

Member

Re: February starters 2019 - yes, we rule!

Beautiful photo Rosina. Love the haircut, it really suits you. xxx 

Member

Re: February starters 2019 - yes, we rule!

For SusieB,

big earrings (my favourite old pair) , big smile, make up ( eyebrows given some TLC) and a colour that suits me :

65A46A89-2EB3-41B8-B101-6FD20F3BC139.jpeg

Edinbird get that ear checked 💕

Member

Re: February starters 2019 - yes, we rule!

Sorry Edinbird, appointments not apps. Predictive text again.

Member

Re: February starters 2019 - yes, we rule!

Hi Edinbird 

Surprising what can magically happen when you mention the C word, cancer or chemo. Hope both apps go ok xxxx 

Member

Re: February starters 2019 - yes, we rule!

Hi everyone 

Well it's 9:35 and I'm not having surgery until around 11:00😭😭☹☹. Going in 2nd. There's only 2 of us in this ward. Yeovil uses the facilities in the Women's Hospital on a Friday if the theatre is free. On the plus side I've got the ward to myself at the moment. There has to be a positive. Also I can catch up with you all.    

Edinbird be careful of that ear. Get it checked out as Nettienoo suggests.

Rosina, sales can be fun but sometimes you can see why stuff hasn't sold. Shoes are my guilty pleasure too. Can't have too many pairs👟👠👡👢☺.

MJB thinking of you as you set off on your travels. I'm hungry already and need a drink, of water, but a Bacardi and coke would go down rather well at the moment 🥃.

I mentioned we went to Disneyland Florida a couple of times but didn't tell you that the first time in August 2004 we got hit by hurricane Charlie. That was an experience not easily forgotten. We went at Easter the second time in 2006. 

Marlyn, thanks for the heads up on what we should and shouldn't be putting on our skin in the rads zapping area. Wonder why they don't prescribe the creams that can help or at least warn us of what not to use. Glad to hear the area is beginning to heal. 

Implausible love the baby cleaner. Paul did suggest using a broom stick too to push it around. I'll leave it to you ladies to decide where the handle should go!

Rosina lovely photos. I've only had kale once in Iceland served crispy with a meal. Couldn't make out if I liked the taste or not. May try some in a salad sometime if I can get hubby to grow some. At the moment we're going through the lettuce and have recently picked our garlic which is now plaited together and hanging to dry. Strawberries, tomatoes, cucumber beans and other stuff to come. Must stop talking about food, I'm getting hungry now. 

Hope those of you who haven't popped in for a while are ok, Trixielady, Sandra and Veronica, Stargazer1, Deano and anybody else I may have forgotten.

As for me at the moment the anxiety levels have dropped a bit. They went up when surgeon and aneathatist came round for a chat  but not too bad now. That'll change when they come to collect me later. I'll probably start to cry my eyes out😭😭😭😭. Paul was here for a while but I sent him back home in the end. I've spoken to him on the phone since.

Anyway, take care all of you. I'll let you know how things go when I am able. In the meantime it's good riddance Gremlin, time to Barry off🐲🐲🐲🐲.

P S. Definitely having total nodal clearance☹  

 

 

 

 

 

 

 

Member

Re: February starters 2019 - yes, we rule!

Just waiting to see the oncologist. I have a GP appointment at 4 about my ear so don’t worry Nettie! Initially they had no appointments until Monday so I asked for a call back and dropped the chemo word and I got a call in 10 mins (just as I was about to brush my teeth!) and an appointment magically materialised... hoping it’s nothing too bad 🤞

Member

Re: February starters 2019 - yes, we rule!

E41822A7-9681-4835-93B0-4A5692E672E0.jpegMassaged kale and mango saladHad to stop myself from eating it as it’s for lunch! I toasted pumpkin seeds and walnuts ( no pistachios in da house).

Note how the kale goes a darker green and the olive oil makes it glisten. The mango juice, lemon juice and pinch of salt all add to the flavours. 

MBJ , have a fab cruise. Take note of any healthy food recipes you may come across 🤗

Member

Re: February starters 2019 - yes, we rule!

Good luck Susie.....thinking of you love xxx

mjb.....happy cruising......look forward to the pics xxxx

Member

Re: February starters 2019 - yes, we rule!

Edinbird, I had an ear infection cycle 3. No temp so just carried on taking paracetamol for about 3 days and it got worse and infected my glands in my neck. Finally succumbed  to a visit to the assessment unit and got antibiotics and a telling off for not coming sooner. I know you have a lot going on but I think you should make the call sooner rather than later sweetie. Xxx

Member

Re: February starters 2019 - yes, we rule!

Good luck Susie!!!! It’s quarter to 8 so you’ll already be there! Bye bye gremlin good riddance! I’ll have to keep checking for you to emerge.

 

About to get up and embark on my grand day of stuff. I have a sore ear to top it all off, paracetamol helped to sleep through it. But im

concerned it’s getting worse so I think I will have to try and do something about it 😞 don’t want to call the helpline again. Another thing to worry about 

Member

Re: February starters 2019 - yes, we rule!

Morning All,

woke up early and then decided to go on my iPad and look at the sales ! 

Madness, but I do love a sale !!!  I also like shoes, and I also like looking at what I can live without 🤪 some horrible colours/patterns/ designs go into the sales and I would not want them even if they were free !

SusieB everything will be fine today.

Nettienoo, it’s my party and I will cry if I want to - so cry when you feel the need. I hate the jabs too (didn’t even want to look at them in the beginning) I had H1 do them for me. Then when he wasn’t around I had to do one myself and now I do the deed whether he is here or not 😬

When I felt really bad on the horse tranquiliser I watched ‘Diana - in her own words ‘ on Netflix ( I was a big fan  of hers in my teens , collected every photo, got my mums friends and relatives in the UK and Australia to send me clippings , magazines etc.my friends were into Duran Duran and Wham but it was Princess Di for me. )

and allowed myself to feel jolly miserable - and this is OK.

 The next day I felt much better and walked.

Implausible , a friend of mine wants to see ‘Rocket Man’ so there is another one on my list . Apparently it’s better than ‘Bohemian Rapsody’ which we both loved. Would you agree?

SusieB I will get round to posting a picture of myself ( I am so hoping it can be my last chemo treatment next week- the bald patch on my crown is covered with baby fuzz ) .

What else, art therapy today. I know I will paint.

Got a fleeting image of rose hips as I meditated.

How does a rose feel after it’s petals have dropped?

No rain 🤗

ASDA chocolate ( the finest , dark, ).  

Equadorian £1.50 for a bar tastes delicious.

💕. Big Hugs. 

 

MBJ
Member

Re: February starters 2019 - yes, we rule!

Hi Girls

Suzie B good luck for tomorrow I am sure they will look after you really well. Take care rest, and try to eat the food. I remember being starving after my surgery and eating a three course meal and taking photos of it and sending it to all my family and friends. That's what Tramadol does to you. 

Nettienoo I hope you feel better tomorrow but a good cry is sometimes the best medicine. It must feel like it's all never ending and relentless.

Well we are packed and ready for the off tomorrow morning. Cats to cattery first, dog to friends the drive to Southampton should take about three hours or so depending on the traffic. 

Wishing you all a good week if that's possible. Keep your spirits up which you all try your hardest to do. I might be able to send some pictures but if not will do when we get back. Xxxx

Member

Re: February starters 2019 - yes, we rule!

Just read your whole  post Nettienoo. Sorry about your meltdown. They hit without warning ☹😭😭😦  

Member

Re: February starters 2019 - yes, we rule!

Thank you Nettienoo and sonia xxxxxx

Member

Re: February starters 2019 - yes, we rule!

Just wanted to wish Susie good luck for tomorrow, 🍀🍀

 

MJB, have a fab trip.

 

nettinoo, I think sometime our families need to see us cry to know we are all still human, and a good cry does a world of good 💕💕

 

implausible, loves the baby mop, need to borrow a baby now 😂

 

 

Rosina, think I might try the kale recipe this weekend 😋

daisydi, sorry to hear your sisters children haven’t been in touch since your diagnosis, maybe they are frightened, they do say there is nothing stranger than families 😍

4E5D4CE6-C113-4BA0-9367-9199683BBF57.jpeg

My friend popped round a card for me tonight

thought you ladies would

like it too xx  

 

 

Member

Re: February starters 2019 - yes, we rule!

Rosina, I showed my vegan son the Kale recipe. He was very interested in the concept of massaging the kale. I hope gives it a try whilst he is here so I can try some as I showed it to my husband and he pulled a face. Probably looked far too healthy for his tastebuds. No chance of ever getting him to go veggie I’m afraid.

Had a bit of a melt down day today. Not been feeling good. Also just started on my 7 days of wbc injections and have grown to hate them now. The thought of doing them for a week again and the fact I still have another cycle to go through after this  just really set me off. My poor son hasn’t seen me cry for a long time and he was quite worried. Thankfully, I gave myself a good talking to and I’m ok now, not so sure about my son though. 😞 I’ve probably traumatised him. 

Wishing each and every one of you the best sleeps tonight. I’m going to listen to Yoga Nidra on my headphones to get me there hopefully. Xxxx

 

Member

Re: February starters 2019 - yes, we rule!

Marie have an amazing holiday. You so deserve a lovely break. Just switch off and enjoy every minute.xxxx

Member

Re: February starters 2019 - yes, we rule!

Great news that you should be first on the list Susie. I’ll be thinking of you darling. Xxx

Member

Re: February starters 2019 - yes, we rule!

Hi everyone 

A quick catch up.

Implausible I can eat and drink until midnight and drink water until 6:00am. Sounds a bit little the film Gremlins, which is what my lump is named after. I need to be at the hospital by 7:30 and should be first on the list. I'll update you more about the lymphodeama machine when I know more, it is pretty new so medics may not be aware of it yet. Love the info regarding the rads, my 34C boobs could definitely do with a boost😊.

Sonia, love the slippers they would be ideal on some laminate flooring we have in our study and son's tv room otherwise known as the spare bedrooms. 

Rosina would love to see the new haircut. Mine still looks like a teenage urangatang. Lymphodeama worries me too and ANC worries me as I think if Gremlin makes a return visit to left boob what will stop the cells travelling elsewhere. I don't think the worrying will ever stop, maybe just go further into the background.

Anyway on to happier things we love Disney (Florida) and would love to return sometime. 

Take care everyone. Thanks for all your good wishes for tomorrow. I'll catch up when I can. Enjoy your cruise MJB🚢 xxxxxxxxx   

 

 

 

 

Member

Re: February starters 2019 - yes, we rule!

This is me

Implausible, the kale salad is really delicious. It has chopped raw mango in it 🤗 also you have to ‘ massage ‘ the kale in olive oil and lemon juice for about 5 minutes ( this breaks down the fibres) it is also good fun. Pinch of salt.

The salad tastes even better the next day ( store it in the fridge) as the olive oil/ lemon juice dressing works on the kale even more. 

I also add toasted pistachios and flame raisins. It really is delicious.

 I went to my hair dresser this afternoon and got myself tidied up - no more William Winks for me 🤪

I walked home without out head covering because I don’t care anymore about what others think , and I went into ASDA and I couldn’t care less what the others thought either. Feeling very good about myself.

As the ‘Greatest Showman ‘ film says : this is me ! 🤗

Member

Re: February starters 2019 - yes, we rule!

Hello all thought I'd better check in with all the crazy sisters aunts and cousins.  Im feeling a bit weary but not too bad, yet.  Sonia I bought some slipper mops a couple of years ago but unfortunately the novelty wore off very quickly when I kept slipping over!  Be careful.  Wish I could say I like ice hockey so I could join in the Sarahs gang but I dont know the first thing about it.  Would be lovely for you two to meet up doing something you both love.  I get very emotional at the thought of meeting you all but we must make it happen one day.  And yes Maryln you can definitely be the mad aunty.  That's what I was to my sisters children (the one who passed away in a diving accident) but unfortunately since October when I told one of them about my bc diagnosis I have not heard from any of them.  I am so disappointed but not surprised as they hardly came to see mum when she became ill although my mum and I were very very close to the kids and really looked after them after their mum died.  I cannot get my head round it really but I just think they cant tolerate any more upset in their lives.  Anyway enough about that.  I agree Sarah that I wish they would be more consistent with their advice on r/t creams.  Surely its better to stop a problem occurring rather than trying to heal it afterwards.  Not sure what I am going to do yet.   Have my planning on 12th July so will see what they say.  When I went to my LGFG course there was an ex nurse who had just finished r/t a week before and it had brought on lymphodema so of course I am now paranoid about that too.  There's always something else to worry about isn't there?

Hope everyone is ok.  Take it easy x

 

Oh and wishing Susie B the very best of luck for tomorrow.  It will be over before you blink x

Member

Re: February starters 2019 - yes, we rule!

OK - so we have a pile of fussy aunts, including at least one mad one, plus a super cool young cousin Smiley Happy He will be delighted/terrified! Smiley Very Happy

 

Edinbird, hope you have managed to get some rest today as tomorrow sounds like a crazy one!! I reckon if you do end up at the cinema at the end of all that, you'll end up falling asleep. Of the 4 films I've seen over the last month, I had a little doze off in 2 of them Smiley Happy There is something about sitting in a comfy chair in the dark....

 

Seaside - you get some rest too! I am also absolutely wiped out today after a couple of days of doing way too much way too soon. We don't learn, do we?? Annoyingly I'm stuck in the office till 6, when all I want to do is lie down and sleeeeeeeeep. Thankfully no work tomorrow. I plan to do NOTHING.

 

So excited for your daughter, really, I'd live in the Disney parks if I could Smiley Very Happy Until I was in my mid 20s I was so sneeringly cynical about the whole Disney thing but then my ex mother in law offered to bankroll us over to Orlando (this was about 1993, it was so much cheaper then!) as a treat for my big lads who were then pre-school age. Oh my goodness it was truly magical!! To the extent that we then went back for a month every autumn for the next 8 or so years (until the marriage ended and I couldn't afford it any more on my own money). I have managed to get back out there twice since, and once to California Disneyland, plus 4 or 5 trips to Paris along the way. I'd love to tick Tokyo off the list one day!

 

Sorry your doc was not very helpful re rads Smiley Sad Sounds like you are having the same regime as me, 3 weeks zapping all the general area and lymph nodes and then a week of "boost" to where the tumour used to be. Which reminds me, my onco's letter about it made me laugh:

 

bb.jpgwouldn't we all!

The type I'm having is called Surface Guided Radiotherapy (SGRT)
I wonder if that's another name for the same thing you are having?

This is the blurb on the hospital website:

 

SGRT uses sophisticated 3D camera technology to accurately target and kill cancer cells.
• During your treatment, cameras monitor your exact position to make sure the radiation is precisely targeted
• The treatment area receives the maximum dose of radiation therapy. The surrounding healthy tissue receives a much lower dose. This reduces the risk of side-effects
• SGRT is often used to enable DIBH treatment for left-sided breast cancer with the benefit of minimising dose to the heart
Unlike some other forms of radiotherapy, SGRT means you don’t need to have any permanent markings (tattoos) made on your body.

 

I hope they give you a start date soon. Do they not realise how important that is so we have something to focus on and plan around??

I've also got my season ticket sorted - see you in Sept/Oct! Smiley Happy

 

Susie - oh no, sorry you are feeling under the weather Smiley Sad Smiley Sad Smiley Sad I hope that start-of-a-sniffle buggers off in time for tomorrow! Hope all goes brilliantly. We are all cheering you on xx
Are you in early tomorrow?  Most importantly, when can you eat/drink until?  That is always the most important thing for me before surgery!   The no food I'm ok with but I hate to be thirsty, so I drink lots of water right up until final drinking cut off.

And when you are back here chatting after, I'd love to hear more about that lymphodoema machine, I mentioned it to my doc the other day and he said he hadn't heard of anything that gives advance warning..... he was intrigued and so am I! I must admit I can really notice that I haven't done my arm exercises for the past 3 days as have been so busy with work, it is really feeling heavy and uncomfortable now Smiley Sad I MUST do them tonight before bed and get back to twice a day from tomorrow.

 

Sonia, I really do love the mop slippers Smiley Very Happy I think you might be one of the mad aunts too!

 

Rosina - the concept of kale being something that the whole family likes rather throws me Smiley Very Happy I eat the stuff, and have found some ways to make it more tolerable than others. But I don't think I would ever claim to "like" it, and the thought of persuading anyone else in my family to eat it is, well, let's say it would be a non starter..... Smiley Happy

 

I've always driven over to Eurodisney rather than go by rail - I do really like the sound of the band serenading you onto the train though!

 

Marlyn - I'm so annoyed for you that you literally basted yourself for days and got your rads off to such an unpleasant start. They really ought to advise better which types of creams are a yes and which a no, and which to put on before and which after. You can't be the first person this has happened to but it was so preventable!

Glad it is healing up though.... x

Nearly 5pm now..... 1 hour till I can go home.  yaaaaawwwwnnnnnnnnnnnnn

 

Member

Re: February starters 2019 - yes, we rule!

I did ponder showing you all said bleeding boob ( obvs a discreet pic) but thought it may be removed as inappropriate content??

 

I think we are all amazing ladies, I know we may not feel it some days but we are.....

 

i plausible....your son defo has a loads of new aunts......I bagsie being the mad one...lol xxxx

Member

Re: February starters 2019 - yes, we rule!

IMG_2041.JPG

Member

Re: February starters 2019 - yes, we rule!

Just back from rads and I thought I would show you the gel and dressings I got today. Thenurse saw the bleeding boob today and said it's healing......( good to know) 

so for me slathering on the E45 under the boob area was a no no.....as you already know I was basically basting myself.....

My elbow behaved today......I don't get a choice of where to put my arms, the rads people position me....

good luck tomorrow Susie love.....it will be done before you know it!

 

now....let's see if I am post me pic xxxx

Member

Re: February starters 2019 - yes, we rule!

Even better - borrow a baby and put them to work!

 

babymop.jpg

Member

Re: February starters 2019 - yes, we rule!

Love the mop slippers Sonia28.

I need a pair too !

👍👍👍👍

 

Member

Re: February starters 2019 - yes, we rule!

http://www.foodnetwork.co.uk/recipes/massaged-kale-salad.html?utm_source=foodnetwork.com&utm_medium=...

Fingers crossed for you SusieB for tomorrow. 

I have been for  a walk with H1 to allotment and park. 

Town later on. 

Got kale from the allotment for a salad that we all like , see above.

 I also like to throw in some raisins or toasted pistachio nuts.

Park was wet and blustery.

Walking in the rain is ok too. I like the sound on the leaves above my head. 

 

694FBFA0-FDA5-449C-961B-A786D19AE2D7.jpegPretty

I have only been to Eurodisney with the kids when they were little. Good memories right from the Disney band that plays at Kings Cross before you board the Eurostar train. It was a permanent sugar rush after that.

Florida must be amazing.

Corfu has lovely beaches and Corfu town is lovely all year round. 

Seasidesar your kids are lucky.

Enjoy the peace and quiet 🤗

 

Member

Re: February starters 2019 - yes, we rule!

image.jpgThought this would make you smile

Thought you would like to see my new purchase, as I can’t do as much house work as I would like, I’ve bought myself a pair of mop slipper, my household think I’ve gone crazy, maybe I have.  

Member

Re: February starters 2019 - yes, we rule!

Hi everyone 

What a wet and miserable morning🌧🌧☹. Well operation day for me tomorrow and I'm keeping everything crossed that it will go ahead🤞🤞. I woke up on Monday with a sore throat and swollen glands, the usual signs that I am fighting something. Ended up going to bed and sleeping yesterday afternoon. Anyway throat feels better although I've got a sniffle and ears feel a bit blocked. Taken meds for sinus etc. Temperature is normal so hoping I'll be good to go tomorrow. 

Edinbird I had pre op stuff done a few weeks ago just before we went to Aix but I think stuff will be done tomorrow, blood pressure and heart rate. I think they'll get a reading done on the machine that will check for signs of lymphodeama in the future so that comparisons can be made.     

Oooopps, got to go hubby has just come back from doing a bit of food shopping and wants me to check out what he's bought. Take care everyone xxxxxx