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February 2019 chemo starters

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Re: February starters 2019 - yes, we rule!

Morning everyone 

Just caught up with all the chat, there's been loads since Friday! As Paul is on leave and Chris is away we're already getting into holiday mood. Hubby has done all the washing and ironing so the rest of the weekend is free. Had a good relaxing afternoon yesterday, let's just say we took advantage of an empty house ( saying no more), then we had a lovely meal out at a local village pub. In fact around here nearly all the decent pubs are in villages. We're gradually winding down on the BC chat. I even sent an email to my Mum and Brother bringing them up to date with everything and asking them, well more my Mum, not to ask about surgery date, explaining I may get late notification as I've told the surgeon we can take a last minute slot. Also pointed out that 5 months of continuous bc talk is enough for anyone. Didn't tell them, but chatting away with all of you about anything and everything, including bc, chemo, ops, etc isn't a problem. All the updates of T side effects is much appreciated, as they say fore warned is fore armed.

Daisydi sorry to hear about you yeast infection. It sounds awful, hope it gets sorted soon. And thanks to Pastamissus for the information regarding Fluconazol. Knowing you're a GP  is really helpful.

Implausible brilliant art work photos from Bristol. We've lived here for 20 years and never been to the place. The closest we've got is Cribbs Causeway for retail therapy๐Ÿ‘œ๐Ÿ‘ ๐Ÿ‘ข๐Ÿ‘ž๐Ÿ›.

Edinbird lovely photos of your park and headbands, they look greatโ˜บ.

Rosina thanks for the information about the benefits of walking. I'd heard about the micro wotsit cells - sorry can't remember what they were called - but after walking from a carpark I use when I go to the hospital 4 times last week it certainly got easier as the week went by. Good practice for walking around Aix although that will be a big more leisurely. Talking of Aix, I've just bought a new phone, my other one was playing up, so I'll see what  its like for photos, as well as my camera.

Marlyn you have to stay with us. You're still having treatment and we need your sense of humour. Totally with you on the drunken walk. I feel great about not having chemo for the next few weeks so I can't imagine how elated you must be feeling right now ๐Ÿ˜Š๐Ÿ˜Š๐Ÿ˜Š

Nettienoo hope your husband enjoyed his day at Twickers๐Ÿ‰. Don't know what the final score was. Hubby wasn't supporting either team as such, but hoped the Navy didn't win.   

Sorry I can't  mention/respond to all of you, as I said at the start there's too much chat, not that I'm complaining. Long may it continue. So all I can do is say that you are ALL in my thoughts and I truly don't  know what I would do without you.

Have a lovely day and enjoy the sunshineโ˜€๏ธโ˜€๏ธโ˜€๏ธ, well it's shining  here  in Martock, Somerset, if a little cold. Take care xxxxxxx   

 

                

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Re: February starters 2019 - yes, we rule!

โ€˜Routeโ€™ not โ€˜Rootโ€™ although both are important.

Member

Re: February starters 2019 - yes, we rule!

Morning Implausible, 

I live in Crawley ( so I am London over spill and commuter zone suburbia). No I am not driving to get to a pretty spot. I started with my local park and then extended this to adding on a second park ( having lived here for 17 years I had never been ๐Ÿ˜ฌ). This does involve walking through neighbourhoods, part of a golf club (look out for golfers ๐Ÿคช).

 I then had heard of the โ€˜Worth Wayโ€™ but had never walked it. A lot of people ( including myself) seem to think that you need to drive to itโ€™s starting point but as we discovered yesterday you donโ€™t . We used my google maps on my phone, looked at the root online and at one point asked - when we werenโ€™t sure.

We have many foot/cycle paths around here that are short cuts and take you off the roads.

There is quite a network.

I also walk into town , Hospital, library and it is fun to try different approaches.

 I am becoming more adventurous and donโ€™t mind getting โ€˜lostโ€™ as with the phone and google maps you are never lost.

The book โ€˜Healing Walks for Hard Timesโ€™  has lots of mental activities to try out and I use a variety of them some are as simple as counting breaths. The mental activities are there to switch off rubbish mental chatter.

 I highly recommend the book, I now want to go on walking holidays and I am thinking of walking into work more regularly when I return.

The author refers to walking as a โ€˜practiceโ€™ as opposed to a good habit.

Off to walk to Tescoโ€™s now, because I must bake those brownies.

Hugs,

Rosina

Member

Re: February starters 2019 - yes, we rule!

Hi Sarah,

 

Looks like you had a fab day out yesterday. Great pics! Pub food to boot. Yum.

 

Your post about walking resonated with me. I am so bored of the walking routes near my house and although there are many nice walks within driving distance, I too have felt unable to get in the car this last week.

 

Yesterday I braved a slightly longer walk, only to get rained on partway through. Still, it was nice to get out. I did feel the effects of my longer distance in my muscles by the time I got home though. What's that all about? 

 

Might get hubby to drive somewhere different for a change of scenery today.

Member

Re: February starters 2019 - yes, we rule!

Morning Daisy,

 

Hope you managed to get some sleep and that you can get the meds you need today.

 

Sar x

Member

Re: February starters 2019 - yes, we rule!

Daisy I hope they get you fixed up good and quick and that you managed to sleep through the itchiness!

I think I would take pain over itchy any day of the week.  

 

Rosina, while you are here, a question.  After our conversation yesterday about walking I have been thinking how I can get more walking .... and specifically more *interesting* walking.... into my day.

 

I wanted to ask.... do you have all those lovely nature spots immediately near your house or are you driving to somewhere nice and then walking there?  

 

Because i think that is my issue.... I often feel up for a walk but not up to driving.  Since T kicked in my eyesight has been a tiny bit blurred and also I feel a little woozy/ not quite on this planet 

 

The only time I have driven the car since a week and a half ago was to the polling station on Thurs, which was a 5 min drive and I made my 16yo come with me as i really didn't feel safe to drive alone.  Not sure what he would have done if i passed out at the wheel, mind, but luckily I didn't Smiley Happy

 

So consequently I am stuck with just walking round the block from my house.  And it really isn't inspiring scenery! 

 

Any ideas for how I can make my walks through Swindon suburbia more enticing?

 

All that said, today I think I am finally good to drive.  My eyesight has recovered enough that I have been able to read books before bed the last couple of nights (really missed reading!), and that spaced out woozy feeling seems to have finally cleared.  

 

So i am going to drive up to the local country park later and have a nice wander around, make the most of my freedom.

 

Sarah

Member

Re: February starters 2019 - yes, we rule!

Morning Daisydi

hope you had a reasonable night.

Get  your self sorted today and let us know how you get on.

Rosina x

 

Member

Re: February starters 2019 - yes, we rule!

Thank you Pastasmissus.  Hopefully I can get sorted tomorrow

Member

Re: February starters 2019 - yes, we rule!

Thanks all I have just got my call back from 111 but I cant face going in now so going to the hospital in the morning.  I am going to bed and hopefully will get some sleep.  Night night, scratch, night night, scratch .....  When I spoke to my onco team this morning they advised to call 111.  Not a lot of help!

Member

Re: February starters 2019 - yes, we rule!

The fluconazole you can buy is a single tablet of 150mg. For chemo patients, what you need is a week of 50mg tablet daily. Contact your chemo helpline as Sandra has said. (I'm a GP)

Member

Re: February starters 2019 - yes, we rule!

Thanks Sandra thatโ€™s the pill I was talking about... I wouldnโ€™t want to take anything as a pill without checking with medics first (hence my aversion to Imodium!) but I think you need the pill since itโ€™s not gonna get touched by a pessary.

 

Hope 111 has helped xx

Member

Re: February starters 2019 - yes, we rule!


@daisydi wrote:

Girls Ive got the worst yeast infection ever in every orifice even my armpits.  Got some canesten cream. Any other recommendations?


Daisydi, you must contact a chemo unit immediately. Please do not use yogurt because it could be worst and things like neem oil or tea tree should not be applied in chemo patients because there is no effective research.

You have a combi canesten, that includes a internal pessary or cream and an external cream.

Now, this is the important bit: in chemo patients it is advisable to use immediately a pill called Fluconazole and it can be bought even without prescription, but if you use the internal pessary or internal cream you cannot use the Fluconazole! However, Fluconazole can be used with Canesten external cream.

Normally, a call would suffice, in case you have no doubts, but if they feel that it is well spread, they must see you because it can be very dangerous for a chemo patient.

You should have a chemo unit available during the weekend, call them, tell them about the symptoms, what type of canesten are you using and mention the Fluconazole.

I am really sorry about this, honey, you must be in a terrible state.

Member

Re: February starters 2019 - yes, we rule!

Wow Implausible, 

all the art is amazing.

The hummingbird is my favourite though.

Full of energy.

Almost finished my book on walking. 

It just reinforces everything.

Walking is even advised for those who have arthritic joints.

 I didnโ€™t know the bit about the mitochondria ( the cells power stations either)  . I actually took walking for granted!!

image.jpgCognitive over- ride

 

image.jpgEnergy engines

 

Member

Re: February starters 2019 - yes, we rule!

Rosina, this bit is really interesting:

 

"The other science bit that I like is the fact that when we make energy demands on our cells the little power stations ( the mitochondria) have to meet that demand ( otherwise they shut down) so the more the demand the more energy and the less the demand the more fatigued we feel."

 

I have always known this to an extent.... that the more I lounge about the worse I feel, and if I make myself go out for a walk even if I don't really want to, it will always make me feel better.

 

But I didn't know the science behind it.  That is interesting.  Thanks for sharing.

 

 

Oh and Dr James - I saw the rock choir video you shared on Facebook.  You all looked and sounded great!!  Hope you had fun with it.

Member

Re: February starters 2019 - yes, we rule!

Hi all

 

Well I have had a good day today, I feel like I'm mainly back to feeling like me again.  Still a little weak and wobbly legged, and I have to take breathers in the middle of long walks, especially if they are remotely uphill, but I'm definitely getting there.

 

T - you cant keep a good woman down!!  Smiley Happy

 

So I've been all over Bristol.  Starting at the graffiti jam.  While my other half painted and chatted for a couple of hours I settled in at the pub in the garden with the sound system behind me and the sun shining, a pint (of orange juice and lemonadeSmiley Happy ), some yummy food and a good book.  It was rather nice!

20190504_131929-picsay.jpgStart of the jam. Everyone claiming their bit of wall.

 

20190504_140842-picsay.jpgPub Smiley Happy

After lunch we walked to the top of Windmill Hill (which half killed me Smiley Happy ) to see a recently completed wall that I was keen to see in person.  Because it is amazing!

20190504_160700-picsay.jpgBeautiful, huh?

 

20190504_173556-picsay.jpgOh and my favourite wall from the graffiti jam. Jungle book Smiley Happy

And then we went to a different part of the city where there was a pop up gallery with a really cool exhibition on.  They paired 50 scientists with 50 artists and each artist produced a piece inspired by the scientist's line of work or research.  My 2 favourite things together.  The lady at the gallery said I might even be able to take part next year if they do a similar thing again.  I would love that.20190504_170123-picsay.jpg

 

20190504_165828-picsay.jpg

 

And then we found some other cool walls..... love how this one spills over onto the pavement:

20190504_173359-picsay.jpg

 

And then I very excitedly found the remains of a monster sticker I put on a pole in a park 8 years ago Smiley Very Happy  he used to have a googly eye but that is long gone

20190504_172050-picsay.jpg

 

And then it was home time.  

 

First time I have got my 10k steps in over a week.

Feel so much better for it.

fitbit_sharing_220142755703577485.png

 

Sleep time now Smiley Happy

 

Sarah x

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Re: February starters 2019 - yes, we rule!

Daisydi, You poor darling, you must feel very uncomfortable. Did you speak to NHS helpline? I think you need advice from a doc on what to use as you donโ€™t want to irritate it more. Xx

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Re: February starters 2019 - yes, we rule!

Rosina you are right I ended up in bed with the electric blanket on this afternoon! Felt my eyes going and it was chilly.

 

Daisy I donโ€™t know if you should self medicate with the tablet you can take but that would get rid of everything everywhere in conjunction with cream... can you ring the helpline and ask about it? If you have the symptoms all over the place it must be clear thatโ€™s what it is so surely they wouldnโ€™t want you to go in for it? I waited with mine until I went in for my chemo but I was only afflicted in the traditional way and it wasnโ€™t too troublesome.

 

So I have nothing else to report... about to have a curry. Hope I get tired later after my nap!

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Re: February starters 2019 - yes, we rule!

Not been on antibiotics but obviously chemo has found my weakness.  Have read about yoghurt etc. but we cant take probiotics.  Feel rubbish. Think I may dial 111 as my onco department cant seem to help

Member

Re: February starters 2019 - yes, we rule!

Oh Daisy that sounds horrid Smiley Sad

 

I can't remember, have you been on antibiotics? As they always tend to make me thrushy.  Ugh.

I could feel it "threatening" when I got home from hospital this week after all the antibiotic drips they put me on, but so far it hasn't gone all out.  Touch wood.

 

As for treatment, Canesten cream is all I have ever used.  But maybe worth asking your local pharmacist if they have anything else you could use aswell?

Member

Re: February starters 2019 - yes, we rule!

Hi Daisydi,

 I did a google search:

https://www.medicalnewstoday.com/articles/317935.php

 

It lists some home remedies that you could try.

I have no personal experience of any of them.

 I would guess that the yogurt suggestion would be a good one to try.

Hope it clears up soon.

Rosina

Member

Re: February starters 2019 - yes, we rule!

Oh daisy, I'm so sorry to read this....is it a weakness that chemo has latched onto ? The only thing I can think of is live yoghurt slathered around your nether regions.......I do hope it clears.....

 

my weakness is my vertigo which chemo made a beeline for, been stumbling all over the place today anyone would think I'd been boozing! Xxx

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Re: February starters 2019 - yes, we rule!

Good evening.

Edinbird, just keep doing your bits of walking.

 It is better than nothing. Seriously this book that I am reading โ€˜ Healing Walks for Hard Timesโ€™ says even as little as 5 minutes has benefits. 

Each chapter is backed by an extensive bibliography of papers from science  journals ( medicine, psychology) so it is all evidence based and not anecdotal .

The author also stresses this thing called โ€˜cognitive over-rideโ€™ where basically an individual engages with an activity ( even when they donโ€™t feel up to it ) because they know that they will feel better afterwards. It is true.

The other science bit that I like is the fact that when we make energy demands on our cells the little power stations ( the mitochondria) have to meet that demand ( otherwise they shut down) so the more the demand the more energy and the less the demand the more fatigued we feel.

This encourages me to walk on most days.

 I also take afternoon naps when needed.

The fun part is I am discovering parts of my local area that I knew nothing about.

 I also have the goal of the โ€˜Thames Mighty Hike โ€˜ that I am determined to complete.

Implausible have a lovely time with your graffiti artist.

Seasidesar I like cats, they have minds of their own.

 

9D7125CB-B184-47B7-A095-BE1CF77E2880.jpegPlanning to do the full Worth Way on Monday

 

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Re: February starters 2019 - yes, we rule!

Girls Ive got the worst yeast infection ever in every orifice even my armpits.  Got some canesten cream. Any other recommendations?

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Re: February starters 2019 - yes, we rule!

Rosina please tell me your secret! Just walked and my legs still need to be physically told to go one in front of the other!

 

Had a wander to the pharmacy (where the woman at the till sneezed before giving me my husbands painkillers ๐Ÿ˜) and then round the park and back to Morrisons where I met husband to get a few things. Now Iโ€™m sat down my legs are ok but they just have no go when I want to get anywhere. Cold ears too.

 

Grey skies but here are a few pics of the park and the burn

C939DD5B-D8CB-4B37-AAEF-0B82FCC62FE2.jpeg

 

10021E40-FE02-40C9-9F06-2F43393C9E6C.jpeg

 

3A9FD888-7697-44A2-96ED-7D6712D9C133.jpeg

 

0997385F-857D-4FD7-AA9B-289AC6FA6C54.jpeg

 

7CCF2A47-D0D7-4AB1-A7E9-E9AB55BE229A.jpeg

 

992A8B47-6D6F-4C01-937C-17FC4A7D0E4A.jpeg

 

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Re: February starters 2019 - yes, we rule!

Morning all

Well, afternoon now Smiley Happy

 

Hope everyone is well and that the weather is picking up where you are

 

MBJ I can imagine worse songs to get stuck in the old noggin.  But still annoying I'm sure.  My favourite ear worm dislodging tune is c'est la vie by B*witched.  Always seems to work.  You are welcome to try it Smiley Happy

 

Nettie, sorry your glass of wine wasn't nice.  Although to be honest I've always thought wine tastes mank!  I am a real lightweight with alcohol, don't like to be able to taste it.  So I'm all about bucks fizz, alcopops and cocktails Smiley Happy  and maybe a decent cider that actually tastes of apples.

 

Seaside..... that is a really good description, that everything gets diluted.  I was struggling to explain the sensation.  Like everything tastes both bland but also a little unpleasant. 

Your cat is very naughty!!! Smiley Happy  do they not know you are poorly??

 

As for me, I am on my way to Bristol for a paint jam (kind of a small graffiti writer meet up) .  Still not feeling 100 percent but my other half is doing all the driving and all I have to do is sit on the grass in the sunshine (well, in the shade) and watch people paint and chat to our friends.  Doesn't sound overly taxing and Jay says as soon as I start to look tired he will bring me home again.

 

I'm glad I'm getting out of the house to do *something* as literally all my best pals are at an event in London today that I am totally gutted to be missing, so this is taking my mind off that.

I am being sent loads of photos and messages from London though so that's nice.

 

Take care all

Sarah x

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Re: February starters 2019 - yes, we rule!

Morning from a sunny (but cold) MK,

 

Carnage in my kitchen this morning as the cat decided to treat me to a furball and a poo on the floor. Delightful! Strangely, I then went on to have the most enormous breakfast. Must not stand on scales for a good couple of days until I've done some steps to work that one off.

 

Have fun at your gig, MBJ. I love Don't stop me now, it's such a feel good song. My choir emailed about gigs last night (scary as I've only been once!) But most of the songs are West End ballads. Maybe I need to find myself a rock choir too ๐Ÿค”

 

Nettie, you poor thing. Horlicks instead of wine. Must admit, I would have been with you on that one. My tastebuds seem to be diluting everything at the moment. It's driving me mad.

 

Hope the rest of you lovely ladies are OK today.

 

Big hugs,

 

Sar xxx

 

 

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Re: February starters 2019 - yes, we rule!

Morning lovelies, itโ€™s started out sunny here in Stafford but probably not going to last. Iโ€™m off to Birmingham to the wig shop (again) to have my lesson in caring for my real hair wig. I need the fringe sorting a bit more too. My husband was up with the lark, whistling around the house and has now left for Twickenham with his friends to watch the Army v Navy rugby (and drink a few beers no doubt). 

I am looking forward to 3 days of feeling okayish apart from ear before blood test Tuesday and chemo Wednesday. 

Have a good bank holiday weekend my darlings. Xxx

Ps some ex colleagues from the court service came round yesterday evening and I had my first glass of wine  since January. It tasted awful!!! Ended up going and making a horlicks instead. My life is so rock and roll these days! ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚.  X

MBJ
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Re: February starters 2019 - yes, we rule!

 ood Morning  Rosina 

What a lovely read that was. Every time I woke up last night and it's still there now I have the song Don't stop me now going on in my head. I have been listening to my Rock choir downloads too much to try and catch up. I even started to sing Oranges and Lemons to try to blank it out .Singing it today in our gig so I hope then it will disappear from my brain for a bit. 

I had better get up I can hear my dog demanding food. Hubby has gone for a paper he must have gone by car. 

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Re: February starters 2019 - yes, we rule!

Morning All,

this is such a great column in the Guardian:

The Joy of Small Things

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Re: February starters 2019 - yes, we rule!

20190503_164712-picsay.jpg

 

Whose bright idea was it to go out for a walk? Smiley Happy

It was dry and sunny when I left the house!  

 

Never mind.  I got to just under 7k steps even with turning back early because of the heavens opening.

 

That is the best I've managed in over a week.  

 

Tired now Smiley Happy

 

 

PS MBJ I love the idea of you wandering around the shops doing your best Sinead O'Connor impression thinking "I'm sure I've forgotten something......"   Smiley Happy Smiley Happy Smiley Happy

 

PPS Rosina that cyanotype print is gorgeous!  I've always wanted to have a go at one of those.

 

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Re: February starters 2019 - yes, we rule!

Marlyn

Such amazing news, so happy for you. Iโ€™m ringing that ๐Ÿ””๐Ÿ””๐Ÿ””๐Ÿ””๐Ÿ””๐Ÿ””

๐Ÿ˜˜xx

MBJ
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Re: February starters 2019 - yes, we rule!

Hi Lovely Gas Baggers

There is a lot going on here.

But I must start with our ๐ŸŒŸ Marlyn what wonderful news for you I am so pleased for you. It must feel fantastic to know you have done what you needed to do chemo wise. Now you can confidently move on to the next phase of your treatment. Well done. 

Susie great news that you are able to go on holiday knowing how well the chemo gas worked for you. I am sure they will look after you really well when you have your surgery. Enjoy France it's such a wonderful country. 

Trixi good luck for the heart scan, will be waiting to hear your news.

Rosina a weekend with your mum sounds great. 

Edinbird, Seaside Sa and Implausable I hope you are all having a better day today.

Now then Nettienoo, Susie B and Edinbird all this hair or lack of talk. You all know I lost all mine straight after my one and only chemo session. Well I too hated it to begin with could hardly look at myself. I have always had think hair which was a bit of a trademark. Well it's begining to grow back slowly but still mostly skull. I was getting ready this morning to go out. So showered makeup  done , dressed. Coat on my arm shoes in my hand all ready to go downstairs. Looked at my dressing table and there is my 'HAIR' on the head looking at me I take another look in the mirror and realise that I nearly went shopping BALD๐Ÿคฏ๐Ÿคฏ๐Ÿคฏ๐Ÿคฏ Just goes to show how quickly you can get used to something. 

Singing with the Rock Choir again tomorrow for the Gay Pride festival in Swansea.

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Re: February starters 2019 - yes, we rule!

Hello Ladies,

 I have just caught up on all the posts .

Wow Marlyn- Chemotherapy done.

Enjoy bouncing back ๐Ÿค—

SeasideSar good to hear from you again. Yes, T is tough.

Tough T for tough titties.

Marlyn  and Implausible I am trying to meet your high standards of funny posts ๐Ÿคช

Nettinoo I am also at the stage where I will pull off my bandana and show a complete stranger why I am wearing it (did so today at the art talk).

Trixielady , no alcohol for me since November. Donโ€™t miss it either but I may raise a glass of retsina to myself if I find myself in a Greek taverna on my birthday.

I will post photos of the country hotel once there ( donโ€™t want to jinx it).90087FD4-7368-4F56-A803-1DE2ACEDD0BF.jpegMy cyanotype print from the art talk today

A273004B-A97A-4A2D-8F5C-AA67449D9F91.jpegI had lunch with my friend at a local farm shop and this was opposite our table

We also walked around the village church as it was very pretty and my friend is doing some ancestry research 9338202B-2970-4756-A9D4-E89BA219717B.jpegI love donkeys

 

 

2B5268F9-F4EB-4ADD-8DA9-A62B26C464BC.jpegYew trees

I also tried to chat with one of my favourite animals . They are very good listeners.

 

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Re: February starters 2019 - yes, we rule!

Great news Marlyn๐Ÿ˜Š๐Ÿ””๐Ÿ””๐Ÿ””๐Ÿ””๐Ÿ””๐Ÿ””๐Ÿ””๐Ÿ””๐Ÿ””๐Ÿ””๐Ÿ””๐Ÿ””๐Ÿ”” Ringing bell for youโคโคโคโคโค Lots of hugs too. You deserve it

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Re: February starters 2019 - yes, we rule!

Tears of relief and happiness Marlyn. I hope you got lots of hugs. Xx

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Re: February starters 2019 - yes, we rule!

Trixielady, Hoping the good luck rubs off, and sending you good luck vibes for your scan ๐Ÿ€ 

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Re: February starters 2019 - yes, we rule!

Oh and Edinbird, another lovely headband. Like the colours a lot ๐Ÿ’•

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Re: February starters 2019 - yes, we rule!

Yay! Loving the good vibes on here today!!

 

Marlyn!! That is fantastic news! I want to come over and give you a HUGE hug! So, so happy for you. That's made my day ๐Ÿ™†โ€โ™€๏ธ

 

Sarah, you've summed up the T journey perfectly and like you say, we know what to expect next time so we can be armed and ready. 

 

As for the hockey....well, what a nightmare! Much as I'd love elite hockey to stay in MK, someone is going to lose out here. There is no way we can have 3 teams. The fans are all at each other's throats. I'm keeping out of it and will support whichever team we end up with. Hockey is such a big part of my life. Going without it just to spite the current owners is not an option for me.

 

Ladies, keep the good news coming. Xxx

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Re: February starters 2019 - yes, we rule!

Smiley Very Happy

 

It must be nice for them to be able to give someone good news for once!

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Re: February starters 2019 - yes, we rule!

Implausible,

 

no, I had no ideas.....total shock! He said my side effects were in danger of becoming permanent......so he weighed up the odds.....I could have flung myself at him!!! Xx

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Re: February starters 2019 - yes, we rule!

Oh Marlyn I am so happy for you!!!! That's wonderful news!  Did you even know that was a potential outcome of the chat today? Or was it completely unexpected?

 

You are free!!!! Smiley Happy Smiley Happy Smiley Happy

 

And of course you have to stick around.  The group is for people who *started* chemo in Feb.  It doesn't say anything about when you stop Smiley Happy   there is no escaping us! Smiley Very Happy

 

I am literally dancing around the front room on your behalf.  Which is a good sign of my own recovery as 2 days ago I couldn't have done that Smiley Happy

 

Trixielady best of luck for the heart scans this afternoon, hope all looks good so you can plough on to the next cycle.

 

Nettie, trust me, you don't want this T stuff.  It's horrid!  Although I do understand your concerns.  I would be the same.  If your onco is happy with you continuing with FEC then I'd say that's more than good enough.  They are the experts after all.  

 

Hope that ear infection clears up soon.

 

Oh and thanks for the words of reassurance about the hair.  I know I get way too worked up about that.  It is my main hot button Smiley Sad  I think it is just that my crazy coloured hair has been 99 percent of who I am for my whole adult life and I am like a headless chicken without it.  I dont know who I am any more :/  it is hard to explain.  I've hidden behind it since I was 17 so it is like a mask.  

 

All that said I am almost looking forward to the shave!  Full on bald will definitely be better than the weird wispy baby monkey look I'm rocking now Smiley Happy  

And no more cold cap! Yay!

 

Edinbird, loving today's Hygge look Smiley Happy  how much cheese have you got through so far today? Smiley Very Happy

 

Susie thank you for being brave and posting your hair loss pics.  It is interesting how we all are losing it in different spots.  You still have lots.  I do love your short wigs, they look so natural!  And I imagine they would be a lot easier to wear and cooler than long ones too.  And much less likely to tangle up which is the biggest problem with long synthetic wigs.  You can put them down on the side all fine and the next morning they are in dreadlocks somehow!  Smiley Happy

 

Are you all packed for your trip yet?  Make sure to take a ton of photos for us so we can all live vicariously through you and pretend we are on holiday Smiley Happy

 

Seaside!!! It's good to hear from you, I was worried.

Most important things first.   Did you see they are talking about adding a new elite team in MK aswell as the Lightning??  I can't see how you'd be able to support 3 teams in different tiers at once.... what's the scuttlebutt amongst the fans?

 

And I am sorry you have had such a tough time with T.  Me too Smiley Sad  just starting to come through the other side now.  Well in fact I started to feel better - quite rapidly - yesterday at 2pm or so.  It was like the fog suddenly lifted.  Weird.  So now I know for next cycle, it's:

chemo on Tuesday. 

Feel absolutely fine up until Friday so make the most of it. 

Then start to feel rough Saturday. 

Utterly broken Sunday through Thursday morning.  And then back to life.  

It should be (mentally) easier when we know what to expect....

 

As you had your T 2 days after me, I reckon that means you should be fully yourself by tomorrow afternoon latest.  Fingers crossed!

 

Oh and yes Daisy I get the same with the lymph node scar/armpit.  It always feels swollen and uncomfortable in the first week of chemo but it seems worse under T.  I do my exercises and it seems to calm it down a bit, but it isn't nice.

 

Right I had better go and do some work.  I am hoping to have my project finished by 3 ish so I can go out for a nice walk for the first time in a week!!! My Fitbit is sulking!!

 

Love to all

 

Sarah x

 

Member

Re: February starters 2019 - yes, we rule!

Yeah Marilyn ๐Ÿ›Ž๐Ÿ””๐ŸŽ‰

love we have so many positive vibes this week shrinkage, and T people coming out the other side. 

 

Susie love the wigs, they look fab on you.

Edinbird the headbands look great, hide that thereโ€™s been any hair loss at all.

will pop back later ladies in the car on the way to Stoke N Trent, and I am not driving, feeling much more like me today  finally 

Member

Re: February starters 2019 - yes, we rule!

Nettienoo,

just been around to tell my residents....getting very tearful now!! Xxx

Member

Re: February starters 2019 - yes, we rule!

Yay Marlyn!! ๐Ÿ™Œ๐Ÿป

 

This group isnโ€™t just about chemo itโ€™s about everything for our treatment and just whatever we feel like so yes weโ€™ll be needing all the info on herceptin and rads and anything else! ๐Ÿ˜Š

 

Hereโ€™s todayโ€™s hairband (no makeup tho ๐Ÿ˜)

4D9253E0-5D4E-4F59-A249-D78F061E590D.jpeg

 

Member

Re: February starters 2019 - yes, we rule!

Marlyn, you have made my weekend. So happy for you my lovely. I bet it hasnโ€™t properly sunk in yet has it? You can start planning a life again. Yeeeeeeeeeehaaaaaa! X xxx

Member

Re: February starters 2019 - yes, we rule!

Oh daisy, I can hear your bell ringing for me!!! I'm not going anywhere, I will be able to let you all know how the rads go....actually have a spring in my Sep today, wonder if it will increase my steps???? Xxx

Member

Re: February starters 2019 - yes, we rule!

Wow Marilyn that is good news.  So pleased for you.  Cant believe your chemo journey is over.  Ringing that bell so loud for you and dont you dare go anywhere.  We need you xxx

Member

Re: February starters 2019 - yes, we rule!

Morning gassy lasses,

 

well, I'm just back from my appointment with oncologist, and guess bloody what? He says I don't need any more chemotherapy!! That the 4 cycles I've already done will stand me in good stead, and that my side effects are in danger of becoming permanent if I carry on.....so here I am ringing my virtual bell!! Hope you can all hear it? 

 

Im in next Thursday for my herceptin ( 6 hours) and will continue with that every 3 weeks for at least 6 months.....and rads will start pretty soon too....so looks like I'm ahead of the game...

 

you lot wont be getting rid of me though....I'm still fully immersed in all your lives and want it to stay that way....in fact, I think we should all live together in one huge house! 

 

Ps....I was talking to hubby about chemotherapy side effects. He said..." oh, you can add chemo moan to that list" bloody cheek!! 

 

Susie....loving your wig, I wouldn't be without mine....

 

take care beautiful sassy gassy ladies, I bloody love you all!!!! And I couldn't have managed without you....... xxxxx

Member

Re: February starters 2019 - yes, we rule!

Nice wigs, Susie. They look so realistic. Never a bad hair day for you. ๐Ÿ‘ฉ๐Ÿ‘ฉโ€โš•๏ธ

Member

Re: February starters 2019 - yes, we rule!

Morning Daisy,

 

You're doing really well by the sounds of it and long may it continue. I know what you mean about pain in the lymph node arm. I've had the same and it feels like it's tripled in size, although it hasn't at all. I'm trying to keep it moving as I'm in fear of the dreaded lymphedema.