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February 2019 chemo starters

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Re: February starters 2019 - yes, we rule!


@daisydi wrote:

Girls Ive got the worst yeast infection ever in every orifice even my armpits.  Got some canesten cream. Any other recommendations?


Daisydi, you must contact a chemo unit immediately. Please do not use yogurt because it could be worst and things like neem oil or tea tree should not be applied in chemo patients because there is no effective research.

You have a combi canesten, that includes a internal pessary or cream and an external cream.

Now, this is the important bit: in chemo patients it is advisable to use immediately a pill called Fluconazole and it can be bought even without prescription, but if you use the internal pessary or internal cream you cannot use the Fluconazole! However, Fluconazole can be used with Canesten external cream.

Normally, a call would suffice, in case you have no doubts, but if they feel that it is well spread, they must see you because it can be very dangerous for a chemo patient.

You should have a chemo unit available during the weekend, call them, tell them about the symptoms, what type of canesten are you using and mention the Fluconazole.

I am really sorry about this, honey, you must be in a terrible state.

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Re: February starters 2019 - yes, we rule!

Wow Implausible, 

all the art is amazing.

The hummingbird is my favourite though.

Full of energy.

Almost finished my book on walking. 

It just reinforces everything.

Walking is even advised for those who have arthritic joints.

 I didn’t know the bit about the mitochondria ( the cells power stations either)  . I actually took walking for granted!!

image.jpgCognitive over- ride

 

image.jpgEnergy engines

 

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Re: February starters 2019 - yes, we rule!

Rosina, this bit is really interesting:

 

"The other science bit that I like is the fact that when we make energy demands on our cells the little power stations ( the mitochondria) have to meet that demand ( otherwise they shut down) so the more the demand the more energy and the less the demand the more fatigued we feel."

 

I have always known this to an extent.... that the more I lounge about the worse I feel, and if I make myself go out for a walk even if I don't really want to, it will always make me feel better.

 

But I didn't know the science behind it.  That is interesting.  Thanks for sharing.

 

 

Oh and Dr James - I saw the rock choir video you shared on Facebook.  You all looked and sounded great!!  Hope you had fun with it.

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Re: February starters 2019 - yes, we rule!

Hi all

 

Well I have had a good day today, I feel like I'm mainly back to feeling like me again.  Still a little weak and wobbly legged, and I have to take breathers in the middle of long walks, especially if they are remotely uphill, but I'm definitely getting there.

 

T - you cant keep a good woman down!!  Smiley Happy

 

So I've been all over Bristol.  Starting at the graffiti jam.  While my other half painted and chatted for a couple of hours I settled in at the pub in the garden with the sound system behind me and the sun shining, a pint (of orange juice and lemonadeSmiley Happy ), some yummy food and a good book.  It was rather nice!

20190504_131929-picsay.jpgStart of the jam. Everyone claiming their bit of wall.

 

20190504_140842-picsay.jpgPub Smiley Happy

After lunch we walked to the top of Windmill Hill (which half killed me Smiley Happy ) to see a recently completed wall that I was keen to see in person.  Because it is amazing!

20190504_160700-picsay.jpgBeautiful, huh?

 

20190504_173556-picsay.jpgOh and my favourite wall from the graffiti jam. Jungle book Smiley Happy

And then we went to a different part of the city where there was a pop up gallery with a really cool exhibition on.  They paired 50 scientists with 50 artists and each artist produced a piece inspired by the scientist's line of work or research.  My 2 favourite things together.  The lady at the gallery said I might even be able to take part next year if they do a similar thing again.  I would love that.20190504_170123-picsay.jpg

 

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And then we found some other cool walls..... love how this one spills over onto the pavement:

20190504_173359-picsay.jpg

 

And then I very excitedly found the remains of a monster sticker I put on a pole in a park 8 years ago Smiley Very Happy  he used to have a googly eye but that is long gone

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And then it was home time.  

 

First time I have got my 10k steps in over a week.

Feel so much better for it.

fitbit_sharing_220142755703577485.png

 

Sleep time now Smiley Happy

 

Sarah x

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Re: February starters 2019 - yes, we rule!

Daisydi, You poor darling, you must feel very uncomfortable. Did you speak to NHS helpline? I think you need advice from a doc on what to use as you don’t want to irritate it more. Xx

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Re: February starters 2019 - yes, we rule!

Rosina you are right I ended up in bed with the electric blanket on this afternoon! Felt my eyes going and it was chilly.

 

Daisy I don’t know if you should self medicate with the tablet you can take but that would get rid of everything everywhere in conjunction with cream... can you ring the helpline and ask about it? If you have the symptoms all over the place it must be clear that’s what it is so surely they wouldn’t want you to go in for it? I waited with mine until I went in for my chemo but I was only afflicted in the traditional way and it wasn’t too troublesome.

 

So I have nothing else to report... about to have a curry. Hope I get tired later after my nap!

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Re: February starters 2019 - yes, we rule!

Not been on antibiotics but obviously chemo has found my weakness.  Have read about yoghurt etc. but we cant take probiotics.  Feel rubbish. Think I may dial 111 as my onco department cant seem to help

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Re: February starters 2019 - yes, we rule!

Oh Daisy that sounds horrid Smiley Sad

 

I can't remember, have you been on antibiotics? As they always tend to make me thrushy.  Ugh.

I could feel it "threatening" when I got home from hospital this week after all the antibiotic drips they put me on, but so far it hasn't gone all out.  Touch wood.

 

As for treatment, Canesten cream is all I have ever used.  But maybe worth asking your local pharmacist if they have anything else you could use aswell?

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Re: February starters 2019 - yes, we rule!

Hi Daisydi,

 I did a google search:

https://www.medicalnewstoday.com/articles/317935.php

 

It lists some home remedies that you could try.

I have no personal experience of any of them.

 I would guess that the yogurt suggestion would be a good one to try.

Hope it clears up soon.

Rosina

Member

Re: February starters 2019 - yes, we rule!

Oh daisy, I'm so sorry to read this....is it a weakness that chemo has latched onto ? The only thing I can think of is live yoghurt slathered around your nether regions.......I do hope it clears.....

 

my weakness is my vertigo which chemo made a beeline for, been stumbling all over the place today anyone would think I'd been boozing! Xxx

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Re: February starters 2019 - yes, we rule!

Good evening.

Edinbird, just keep doing your bits of walking.

 It is better than nothing. Seriously this book that I am reading ‘ Healing Walks for Hard Times’ says even as little as 5 minutes has benefits. 

Each chapter is backed by an extensive bibliography of papers from science  journals ( medicine, psychology) so it is all evidence based and not anecdotal .

The author also stresses this thing called ‘cognitive over-ride’ where basically an individual engages with an activity ( even when they don’t feel up to it ) because they know that they will feel better afterwards. It is true.

The other science bit that I like is the fact that when we make energy demands on our cells the little power stations ( the mitochondria) have to meet that demand ( otherwise they shut down) so the more the demand the more energy and the less the demand the more fatigued we feel.

This encourages me to walk on most days.

 I also take afternoon naps when needed.

The fun part is I am discovering parts of my local area that I knew nothing about.

 I also have the goal of the ‘Thames Mighty Hike ‘ that I am determined to complete.

Implausible have a lovely time with your graffiti artist.

Seasidesar I like cats, they have minds of their own.

 

9D7125CB-B184-47B7-A095-BE1CF77E2880.jpegPlanning to do the full Worth Way on Monday

 

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Re: February starters 2019 - yes, we rule!

Girls Ive got the worst yeast infection ever in every orifice even my armpits.  Got some canesten cream. Any other recommendations?

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Re: February starters 2019 - yes, we rule!

Rosina please tell me your secret! Just walked and my legs still need to be physically told to go one in front of the other!

 

Had a wander to the pharmacy (where the woman at the till sneezed before giving me my husbands painkillers 😝) and then round the park and back to Morrisons where I met husband to get a few things. Now I’m sat down my legs are ok but they just have no go when I want to get anywhere. Cold ears too.

 

Grey skies but here are a few pics of the park and the burn

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3A9FD888-7697-44A2-96ED-7D6712D9C133.jpeg

 

0997385F-857D-4FD7-AA9B-289AC6FA6C54.jpeg

 

7CCF2A47-D0D7-4AB1-A7E9-E9AB55BE229A.jpeg

 

992A8B47-6D6F-4C01-937C-17FC4A7D0E4A.jpeg

 

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Re: February starters 2019 - yes, we rule!

Morning all

Well, afternoon now Smiley Happy

 

Hope everyone is well and that the weather is picking up where you are

 

MBJ I can imagine worse songs to get stuck in the old noggin.  But still annoying I'm sure.  My favourite ear worm dislodging tune is c'est la vie by B*witched.  Always seems to work.  You are welcome to try it Smiley Happy

 

Nettie, sorry your glass of wine wasn't nice.  Although to be honest I've always thought wine tastes mank!  I am a real lightweight with alcohol, don't like to be able to taste it.  So I'm all about bucks fizz, alcopops and cocktails Smiley Happy  and maybe a decent cider that actually tastes of apples.

 

Seaside..... that is a really good description, that everything gets diluted.  I was struggling to explain the sensation.  Like everything tastes both bland but also a little unpleasant. 

Your cat is very naughty!!! Smiley Happy  do they not know you are poorly??

 

As for me, I am on my way to Bristol for a paint jam (kind of a small graffiti writer meet up) .  Still not feeling 100 percent but my other half is doing all the driving and all I have to do is sit on the grass in the sunshine (well, in the shade) and watch people paint and chat to our friends.  Doesn't sound overly taxing and Jay says as soon as I start to look tired he will bring me home again.

 

I'm glad I'm getting out of the house to do *something* as literally all my best pals are at an event in London today that I am totally gutted to be missing, so this is taking my mind off that.

I am being sent loads of photos and messages from London though so that's nice.

 

Take care all

Sarah x

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Re: February starters 2019 - yes, we rule!

Morning from a sunny (but cold) MK,

 

Carnage in my kitchen this morning as the cat decided to treat me to a furball and a poo on the floor. Delightful! Strangely, I then went on to have the most enormous breakfast. Must not stand on scales for a good couple of days until I've done some steps to work that one off.

 

Have fun at your gig, MBJ. I love Don't stop me now, it's such a feel good song. My choir emailed about gigs last night (scary as I've only been once!) But most of the songs are West End ballads. Maybe I need to find myself a rock choir too 🤔

 

Nettie, you poor thing. Horlicks instead of wine. Must admit, I would have been with you on that one. My tastebuds seem to be diluting everything at the moment. It's driving me mad.

 

Hope the rest of you lovely ladies are OK today.

 

Big hugs,

 

Sar xxx

 

 

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Re: February starters 2019 - yes, we rule!

Morning lovelies, it’s started out sunny here in Stafford but probably not going to last. I’m off to Birmingham to the wig shop (again) to have my lesson in caring for my real hair wig. I need the fringe sorting a bit more too. My husband was up with the lark, whistling around the house and has now left for Twickenham with his friends to watch the Army v Navy rugby (and drink a few beers no doubt). 

I am looking forward to 3 days of feeling okayish apart from ear before blood test Tuesday and chemo Wednesday. 

Have a good bank holiday weekend my darlings. Xxx

Ps some ex colleagues from the court service came round yesterday evening and I had my first glass of wine  since January. It tasted awful!!! Ended up going and making a horlicks instead. My life is so rock and roll these days! 😂😂😂.  X

MBJ
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Re: February starters 2019 - yes, we rule!

 ood Morning  Rosina 

What a lovely read that was. Every time I woke up last night and it's still there now I have the song Don't stop me now going on in my head. I have been listening to my Rock choir downloads too much to try and catch up. I even started to sing Oranges and Lemons to try to blank it out .Singing it today in our gig so I hope then it will disappear from my brain for a bit. 

I had better get up I can hear my dog demanding food. Hubby has gone for a paper he must have gone by car. 

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Re: February starters 2019 - yes, we rule!

Morning All,

this is such a great column in the Guardian:

The Joy of Small Things

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Re: February starters 2019 - yes, we rule!

20190503_164712-picsay.jpg

 

Whose bright idea was it to go out for a walk? Smiley Happy

It was dry and sunny when I left the house!  

 

Never mind.  I got to just under 7k steps even with turning back early because of the heavens opening.

 

That is the best I've managed in over a week.  

 

Tired now Smiley Happy

 

 

PS MBJ I love the idea of you wandering around the shops doing your best Sinead O'Connor impression thinking "I'm sure I've forgotten something......"   Smiley Happy Smiley Happy Smiley Happy

 

PPS Rosina that cyanotype print is gorgeous!  I've always wanted to have a go at one of those.

 

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Re: February starters 2019 - yes, we rule!

Marlyn

Such amazing news, so happy for you. I’m ringing that 🔔🔔🔔🔔🔔🔔

😘xx

MBJ
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Re: February starters 2019 - yes, we rule!

Hi Lovely Gas Baggers

There is a lot going on here.

But I must start with our 🌟 Marlyn what wonderful news for you I am so pleased for you. It must feel fantastic to know you have done what you needed to do chemo wise. Now you can confidently move on to the next phase of your treatment. Well done. 

Susie great news that you are able to go on holiday knowing how well the chemo gas worked for you. I am sure they will look after you really well when you have your surgery. Enjoy France it's such a wonderful country. 

Trixi good luck for the heart scan, will be waiting to hear your news.

Rosina a weekend with your mum sounds great. 

Edinbird, Seaside Sa and Implausable I hope you are all having a better day today.

Now then Nettienoo, Susie B and Edinbird all this hair or lack of talk. You all know I lost all mine straight after my one and only chemo session. Well I too hated it to begin with could hardly look at myself. I have always had think hair which was a bit of a trademark. Well it's begining to grow back slowly but still mostly skull. I was getting ready this morning to go out. So showered makeup  done , dressed. Coat on my arm shoes in my hand all ready to go downstairs. Looked at my dressing table and there is my 'HAIR' on the head looking at me I take another look in the mirror and realise that I nearly went shopping BALD🤯🤯🤯🤯 Just goes to show how quickly you can get used to something. 

Singing with the Rock Choir again tomorrow for the Gay Pride festival in Swansea.

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Re: February starters 2019 - yes, we rule!

Hello Ladies,

 I have just caught up on all the posts .

Wow Marlyn- Chemotherapy done.

Enjoy bouncing back 🤗

SeasideSar good to hear from you again. Yes, T is tough.

Tough T for tough titties.

Marlyn  and Implausible I am trying to meet your high standards of funny posts 🤪

Nettinoo I am also at the stage where I will pull off my bandana and show a complete stranger why I am wearing it (did so today at the art talk).

Trixielady , no alcohol for me since November. Don’t miss it either but I may raise a glass of retsina to myself if I find myself in a Greek taverna on my birthday.

I will post photos of the country hotel once there ( don’t want to jinx it).90087FD4-7368-4F56-A803-1DE2ACEDD0BF.jpegMy cyanotype print from the art talk today

A273004B-A97A-4A2D-8F5C-AA67449D9F91.jpegI had lunch with my friend at a local farm shop and this was opposite our table

We also walked around the village church as it was very pretty and my friend is doing some ancestry research 9338202B-2970-4756-A9D4-E89BA219717B.jpegI love donkeys

 

 

2B5268F9-F4EB-4ADD-8DA9-A62B26C464BC.jpegYew trees

I also tried to chat with one of my favourite animals . They are very good listeners.

 

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Re: February starters 2019 - yes, we rule!

Great news Marlyn😊🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔 Ringing bell for you❤❤❤❤❤ Lots of hugs too. You deserve it

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Re: February starters 2019 - yes, we rule!

Tears of relief and happiness Marlyn. I hope you got lots of hugs. Xx

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Re: February starters 2019 - yes, we rule!

Trixielady, Hoping the good luck rubs off, and sending you good luck vibes for your scan 🍀 

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Re: February starters 2019 - yes, we rule!

Oh and Edinbird, another lovely headband. Like the colours a lot 💕

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Re: February starters 2019 - yes, we rule!

Yay! Loving the good vibes on here today!!

 

Marlyn!! That is fantastic news! I want to come over and give you a HUGE hug! So, so happy for you. That's made my day 🙆‍♀️

 

Sarah, you've summed up the T journey perfectly and like you say, we know what to expect next time so we can be armed and ready. 

 

As for the hockey....well, what a nightmare! Much as I'd love elite hockey to stay in MK, someone is going to lose out here. There is no way we can have 3 teams. The fans are all at each other's throats. I'm keeping out of it and will support whichever team we end up with. Hockey is such a big part of my life. Going without it just to spite the current owners is not an option for me.

 

Ladies, keep the good news coming. Xxx

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Re: February starters 2019 - yes, we rule!

Smiley Very Happy

 

It must be nice for them to be able to give someone good news for once!

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Re: February starters 2019 - yes, we rule!

Implausible,

 

no, I had no ideas.....total shock! He said my side effects were in danger of becoming permanent......so he weighed up the odds.....I could have flung myself at him!!! Xx

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Re: February starters 2019 - yes, we rule!

Oh Marlyn I am so happy for you!!!! That's wonderful news!  Did you even know that was a potential outcome of the chat today? Or was it completely unexpected?

 

You are free!!!! Smiley Happy Smiley Happy Smiley Happy

 

And of course you have to stick around.  The group is for people who *started* chemo in Feb.  It doesn't say anything about when you stop Smiley Happy   there is no escaping us! Smiley Very Happy

 

I am literally dancing around the front room on your behalf.  Which is a good sign of my own recovery as 2 days ago I couldn't have done that Smiley Happy

 

Trixielady best of luck for the heart scans this afternoon, hope all looks good so you can plough on to the next cycle.

 

Nettie, trust me, you don't want this T stuff.  It's horrid!  Although I do understand your concerns.  I would be the same.  If your onco is happy with you continuing with FEC then I'd say that's more than good enough.  They are the experts after all.  

 

Hope that ear infection clears up soon.

 

Oh and thanks for the words of reassurance about the hair.  I know I get way too worked up about that.  It is my main hot button Smiley Sad  I think it is just that my crazy coloured hair has been 99 percent of who I am for my whole adult life and I am like a headless chicken without it.  I dont know who I am any more :/  it is hard to explain.  I've hidden behind it since I was 17 so it is like a mask.  

 

All that said I am almost looking forward to the shave!  Full on bald will definitely be better than the weird wispy baby monkey look I'm rocking now Smiley Happy  

And no more cold cap! Yay!

 

Edinbird, loving today's Hygge look Smiley Happy  how much cheese have you got through so far today? Smiley Very Happy

 

Susie thank you for being brave and posting your hair loss pics.  It is interesting how we all are losing it in different spots.  You still have lots.  I do love your short wigs, they look so natural!  And I imagine they would be a lot easier to wear and cooler than long ones too.  And much less likely to tangle up which is the biggest problem with long synthetic wigs.  You can put them down on the side all fine and the next morning they are in dreadlocks somehow!  Smiley Happy

 

Are you all packed for your trip yet?  Make sure to take a ton of photos for us so we can all live vicariously through you and pretend we are on holiday Smiley Happy

 

Seaside!!! It's good to hear from you, I was worried.

Most important things first.   Did you see they are talking about adding a new elite team in MK aswell as the Lightning??  I can't see how you'd be able to support 3 teams in different tiers at once.... what's the scuttlebutt amongst the fans?

 

And I am sorry you have had such a tough time with T.  Me too Smiley Sad  just starting to come through the other side now.  Well in fact I started to feel better - quite rapidly - yesterday at 2pm or so.  It was like the fog suddenly lifted.  Weird.  So now I know for next cycle, it's:

chemo on Tuesday. 

Feel absolutely fine up until Friday so make the most of it. 

Then start to feel rough Saturday. 

Utterly broken Sunday through Thursday morning.  And then back to life.  

It should be (mentally) easier when we know what to expect....

 

As you had your T 2 days after me, I reckon that means you should be fully yourself by tomorrow afternoon latest.  Fingers crossed!

 

Oh and yes Daisy I get the same with the lymph node scar/armpit.  It always feels swollen and uncomfortable in the first week of chemo but it seems worse under T.  I do my exercises and it seems to calm it down a bit, but it isn't nice.

 

Right I had better go and do some work.  I am hoping to have my project finished by 3 ish so I can go out for a nice walk for the first time in a week!!! My Fitbit is sulking!!

 

Love to all

 

Sarah x

 

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Re: February starters 2019 - yes, we rule!

Yeah Marilyn 🛎🔔🎉

love we have so many positive vibes this week shrinkage, and T people coming out the other side. 

 

Susie love the wigs, they look fab on you.

Edinbird the headbands look great, hide that there’s been any hair loss at all.

will pop back later ladies in the car on the way to Stoke N Trent, and I am not driving, feeling much more like me today  finally 

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Re: February starters 2019 - yes, we rule!

Nettienoo,

just been around to tell my residents....getting very tearful now!! Xxx

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Re: February starters 2019 - yes, we rule!

Yay Marlyn!! 🙌🏻

 

This group isn’t just about chemo it’s about everything for our treatment and just whatever we feel like so yes we’ll be needing all the info on herceptin and rads and anything else! 😊

 

Here’s today’s hairband (no makeup tho 😝)

4D9253E0-5D4E-4F59-A249-D78F061E590D.jpeg

 

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Re: February starters 2019 - yes, we rule!

Marlyn, you have made my weekend. So happy for you my lovely. I bet it hasn’t properly sunk in yet has it? You can start planning a life again. Yeeeeeeeeeehaaaaaa! X xxx

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Re: February starters 2019 - yes, we rule!

Oh daisy, I can hear your bell ringing for me!!! I'm not going anywhere, I will be able to let you all know how the rads go....actually have a spring in my Sep today, wonder if it will increase my steps???? Xxx

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Re: February starters 2019 - yes, we rule!

Wow Marilyn that is good news.  So pleased for you.  Cant believe your chemo journey is over.  Ringing that bell so loud for you and dont you dare go anywhere.  We need you xxx

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Re: February starters 2019 - yes, we rule!

Morning gassy lasses,

 

well, I'm just back from my appointment with oncologist, and guess bloody what? He says I don't need any more chemotherapy!! That the 4 cycles I've already done will stand me in good stead, and that my side effects are in danger of becoming permanent if I carry on.....so here I am ringing my virtual bell!! Hope you can all hear it? 

 

Im in next Thursday for my herceptin ( 6 hours) and will continue with that every 3 weeks for at least 6 months.....and rads will start pretty soon too....so looks like I'm ahead of the game...

 

you lot wont be getting rid of me though....I'm still fully immersed in all your lives and want it to stay that way....in fact, I think we should all live together in one huge house! 

 

Ps....I was talking to hubby about chemotherapy side effects. He said..." oh, you can add chemo moan to that list" bloody cheek!! 

 

Susie....loving your wig, I wouldn't be without mine....

 

take care beautiful sassy gassy ladies, I bloody love you all!!!! And I couldn't have managed without you....... xxxxx

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Re: February starters 2019 - yes, we rule!

Nice wigs, Susie. They look so realistic. Never a bad hair day for you. 👩👩‍⚕️

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Re: February starters 2019 - yes, we rule!

Morning Daisy,

 

You're doing really well by the sounds of it and long may it continue. I know what you mean about pain in the lymph node arm. I've had the same and it feels like it's tripled in size, although it hasn't at all. I'm trying to keep it moving as I'm in fear of the dreaded lymphedema.

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Re: February starters 2019 - yes, we rule!

Now to my wigs. The lighter one is my NHS wig. The 3 I was waiting for turned up eventually and I 'm keeping this one. I just needthe wig kady to trim and style it a bit., especially at the front and sides. Tbe other one is the one I bought on line. I now have a choice of looks which is ideal as I go dark in tbe colder months and lighter when it gets warmer. Oops, in this light not much difference. The 1st one is the light one.

Must get on otherwise I'll be late for my appt. Will read posts and catch up later. Love to you all xx

15568750041242102152789.jpg15568751347171611875939.jpg 

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Re: February starters 2019 - yes, we rule!

Morning all, glad to hear from you Seaside. Was getting worried about you.  This is now day 4 for me on T and I am still ok  nothing really nasty so far other than that my lymph node arm is and wound is really painful.  Must get the injection out of the fridge now.  Have a good day everyone x

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Re: February starters 2019 - yes, we rule!

Morning my beauties,

 

I'm finally crawling out the other side of the barrying T. Feeling human again 😊

 

Been reading all your posts but didn't even have the energy to comment. That's how bad I felt. Still, I'm on the up now so the husband can breathe a sigh of relief. He's borne the brunt of my outbursts, tears and extreme lack of energy.

 

I was very happy to see your news, Susie - That's fantastic! Now the little voyage to look forward to as well. Really pleased for you.

 

Good luck with the scan, Trixielady. Fingers crossed that your treatment can go ahead next week.

 

Sarah, your hair photos show a lot of strength as to what you've been going through. When the regrowth starts, it will be strong like you.

 

Nettie, I totally understand your concerns about staying on FEC for the next lot of treatment but as you say, you've thankfully avoided a stay in casa NHS this time so hopefully it's for the best. You definitely deserve a tipple on your big birthday. 🍷🍸🍹

 

I had a little giggle at the gas posts from yesterday. I didn't suffer with FEC but with T it's a different story. We're talking loud! Even the cat jumped out of its skin when I passed one yesterday 😂

 

Looking forward to seeing today's headband, Edinbird. 

 

Hope all the rest of you ladies are feeling OK today.

 

Love to all

 

Sar xxx

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Re: February starters 2019 - yes, we rule!

15568742652211890619983.jpgThinning/balding at back too☹OK let's see if I can post a photo or two of my delightful, not, hair. Or what's left of it.☹1556874131977124339486.jpg 

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Re: February starters 2019 - yes, we rule!

Trixielady, I hope the scan goes ok later so you can crack on! Xx

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Re: February starters 2019 - yes, we rule!

Slow days are good Edinbird. Be kind to yourself love and don’t overdo things. 

Sorry for posting same thing twice girls. I have no idea how it happened. X

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Re: February starters 2019 - yes, we rule!

Morning xx

 

My plans for this morning didn’t quite go to plan... thought I’d have a lie in as I’m not working today but woke up with a headache and sore chest and shoulders... so had to get up. Not wanting to try for a walk this early but feel a bit better now I’m moving about.

 

Now I can eat cheese again I am at risk of just eating it all day! 😂 I think I might crack on with more eBay though. Husband is off so means I get nice food. Cheese and ham risotto tonight, tikka massala tomorrow that we’ll start today. Need to decide which headband to try today I’ll post a pic once I decide. Only drawback so far is it seems to make my hair far more greasy than the caps. I guess when it’s covered up it doesn’t matter 🤷🏻‍♀️

 

So hopefully a slow slow day with nothing much to report 🤞

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Re: February starters 2019 - yes, we rule!

Susie, I can feel the good vibes pouring from your post. I wish you an amazing holiday. I hope you can switch off completely from all this bc crap and just enjoy every minute. 

On the alcohol front, I went from a glass of wine a night to nothing since New Year. Some of it out of fear as to how I’ll react with all the drugs in me and also because I just haven’t felt the urge. It’s my 60th on Monday though so I am going to have some and to hell with it. I saw the Onco nurse specialist yesterday and she was encouraging me, saying my first alcoholic drink needs to be champagne! 🥂🤪.

I still have a bit of an ear infection but bloods are good, Neutrophils 3.7 so as long as the blood test on Tuesday is ok will be having FEC number 4 on Wednesday. I feel a little bit anxious about what the possible repercussions might be by not changing to T for last 3 but I have managed to escape hospital and the dreaded neutropenic sepsis this time so continuing with FEC is probably the right way to go. My oncologist won’t let me have the T anyway so I just need to get on with what I can have I suppose. 

Implausible, when I got to the patchy, very wispy stage and shaved my head, I found it very hard to look in a mirror without my eyes filling but a few weeks on, I am completely ok with it and have no qualms about whipping my hat off in front of others if I’m having a hot turn. My hair was everything to me and I spent a fortune keeping it looking good in the past (and probably will do again in the future). I think you may surprise yourself how quickly you get used to a bald head and you really haven’t got long to go before it starts to grow again. Xxx

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Re: February starters 2019 - yes, we rule!

Susie, I can feel the good vibes pouring from your post. I wish you an amazing holiday. I hope you can switch off completely from all this bc crap and just enjoy every minute. 

On the alcohol front, I went from a glass of wine a night to nothing since New Year. Some of it out of fear as to how I’ll react with all the drugs in me and also because I just haven’t felt the urge. It’s my 60th on Monday though so I am going to have some and to hell with it. I saw the Onco nurse specialist yesterday and she was encouraging me, saying my first alcoholic drink needs to be champagne! 🥂🤪.

I still have a bit of an ear infection but bloods are good, Neutrophils 3.7 so as long as the blood test on Tuesday is ok will be having FEC number 4 on Wednesday. I feel a little bit anxious about what the possible repercussions might be by not changing to T for last 3 but I have managed to escape hospital and the dreaded neutropenic sepsis this time so continuing with FEC is probably the right way to go. My oncologist won’t let me have the T anyway so I just need to get on with what I can have I suppose. 

Implausible, when I got to the patchy, very wispy stage and shaved my head, I found it very hard to look in a mirror without my eyes filling but a few weeks on, I am completely ok with it and gave no qualms about whipping my hat off in front of others if I’m having a hot turn. My hair was everything to me and I spent a fortune keeping it looking good in the past (and probably will do again in the future). I think you may surprise yourself how quickly you get used to a bald head and you really haven’t got long to go before it starts to grow again. Xxx

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Re: February starters 2019 - yes, we rule!

Mornin' gasbagsSmiley Happy

 

Hope you are all well.

 

Remember that expensive mattress topper I bought on impulse in the middle of the night when my T-related bone aches kicked in last week?  Well it turned up while I was in hospital and I got the teen twins to unpack it yesterday and install it on my bed for me.  Last night was its first outing and wow it is so comfy!!!!  And I no longer have a little rogue spring digging me in the leg Smiley Very Happy  win!

 

I have woken up with a slightly achey back still but I am assuming that is down to the chemo still.

 

Trixielady, no alcohol for me.  Was never a big drinker anyway but just haven't fancied it at all since all this started.  My other half did get me a glass of bucks fizz when we went out for my birthday dinner the other week, which I did drink and it went straight to my head!  Crazy given there was probably only about 2 teaspoons of alcohol in it.  But before then my last drink was before Christmas I think.

 

Susie, same here re better relationship with my dad than mum.  In fact my mum was objectively not a good parent to me at all.... lots of issues.... to the extent that I had to have some therapy after she died to unravel it all.    It wasn't really her *fault* as such (it's a long story), but I didn't know any of that as a kid when she was being very cruel...

 

What was that Philip Larkin poem again??? Smiley Wink

 

Sarah x

 

 

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Re: February starters 2019 - yes, we rule!

Have a lovely time in France Susie B

, do post photos.

 I am also pleased that chemotherapy is shrinking gremlins ( in those of you who are having chemotherapy before surgery).

My mum and I fortunately do have a good relationship. That’s not to say that she doesn’t drive me nuts either!

Hairwise, everything is staying put so far 🤞 just a bald patch on my crown.

Hugs,

Rosina