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February 2019 chemo starters

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Re: February starters 2019 - yes, we rule!

Hi Edinbird,

yes , definitely much better today ( a whole week post dose 4).

Meeting a friend for lunch tomorrow, we are going to an ‘art talk’ led by the woman who did the arty bits at my yoga day - should be good.

Then my mum is coming over on May 14th and we are escaping for 2 nights at a local country house hotel. I like to treat her . Also good deal on booking.com.

 I can cancel at the last minute but I am determined to go. I told them about my chemotherapy and they are putting a small fridge in my room for my injection. I plan to walk in the Ashdown Forest whilst I am staying there - Pooh territory.

There you go Marlyn , hope that made you smile 😊 

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Re: February starters 2019 - yes, we rule!

That made me laugh! Plenty of gas around here!

 

I feel much better today and I dared try some cheddar just now and it tastes great! So maybe takes about 10 days before tastebuds are back to normal if anyone’s are currently screwed? I’m pleased anyway.

 

Day off tomorrow, I’ll be having a nice long lie! Every day this week I’ve not wanted to get up. And pleased to have a day off. I don’t want to use leave for nothing but husband is off tomorrow and Monday so that’s ok. I don’t get any of the May bank holidays and somehow he gets both and an extra Friday!! No fair! At least that means I can make my weeks shorter in May. Then once it gets to June I’ll have more appointments to break things up.

 

Glad you got what you were after Susie, and you’ll be able to enjoy your holiday. Hope everyone else feels better or continues to feel ok xx

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Re: February starters 2019 - yes, we rule!

Everyone reacts differently Daisydi.  I got off very lightly in the FEC stage, so maybe I am more susceptible than average to T?

 

I hope it is kinder to you 

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Re: February starters 2019 - yes, we rule!

Looks like I should prepare myself for tomorrow then day 4.  Must admit I am feeling very weary but I dont feel sick and that is a big bonus for me and because I dont feel sick Im not taking any tablets which means I dont get constipated or have really nasty headaches.  Lets see what tomorrow brings.  Also my mouth and tongue are holding up.  That was so painful last time my tongue looked like it was going to break in two down the middle.  I will keep everything crossed

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Re: February starters 2019 - yes, we rule!

Our new name......... The gas bags! I think that suits us actually, in more ways than one....titter titter xx

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Re: February starters 2019 - yes, we rule!

Blimey , we can't half gas.... in many ways! 

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Re: February starters 2019 - yes, we rule!

Look how much more we post compared to all the other monthly threads!  Smiley Very Happy

 

chatterboxes.jpg

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Re: February starters 2019 - yes, we rule!

Hi you lovely lot, how are you all?

 

Susie - fantastic news about your gremlin shrinkage!! what a difference!! That is really reassuring not only for yourself, but for all of us to hear, even those who are having the chemo after surgery, as it proves that it really blooming works! Thank goodness for that because it would be a blinking ordeal to go through for nothing.... Edinbird great news that your lump feels like it is shrinking up good too!

 

and Susie it is great too that they are being so accommodating about your trip to France and about your anxiety re the surgery, etc. Nice when they remember to human Smiley Happy

 

When you said you are happy with the surgeon, so you are going to stick with them, I suddenly realised that I didn't know we had a choice! Luckily my surgeon is lovely, but she was just who the hospital assigned to me, never occurred to me I could pick a different one.

 

That lymphodema (sp?) predicting machine sounds interesting..... I might mention that to my doc see if they are getting one. and congrats on nabbing post #4000 Smiley Happy

 

Marlyn - well done on the walk. Hopefully you feel better for it (even if it wiped you out Smiley Happy ) - I never regret a walk even if I have to force myself. That said, I haven't exceeded 2k steps since last Friday Smiley Sad Smiley Sad Saturday I wasn't feeling well so stayed in my jamas, Sunday through Tuesday I was in PRISON Smiley Happy, and yesterday and today I've still felt pretty rough plus have been working. I did at least get dressed and out of the house today to go and vote. Might try at least a wander round the block before dinner, if it ever stops pouring with rain.

and yes, we are awesome!! Smiley Very Happy

 

Rosina - gorgeous bluebells, I haven't seen any yet this year Smiley Sad

 

Sonia- I have also been totally exhausted the past couple of days - weak as a kitten! Usually by this stage in week 2 I am much livelier.

I know I have just got home from hospital, and that ought to factor in. But I am still fairly sure there was nothing wrong with me in the first place other than T side effects knocking me for six (and then antibiotics side effects adding to the mix and making me feel worse). They never found any evidence of any actual infection or problem.... I think that T is just a LOT harder on me than FEC was. (FEC I was ok days 1-3, rubbish days 4-7 ish and then pretty much fine for 2 weeks. T seems to be ok days 1-4, start to feel bad day 5, totally broken days 6-10 and counting.....)

 

All that said, though, I'm more awake/ok this evening than I was at this point yesterday - in fact I started to pick up a bit today from around 2pm ish - so here's hoping I am starting to come through the T fog. Just need to get rid of the horrid dry mouth now.

 

take care all

Sarah x

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Re: February starters 2019 - yes, we rule!

Sonia28, I hope you're not doing the driving🚗! 

Marlyn, yes I feel we really have come along way. At the beginning it all seemed daunting with tests ops, chemo,  radiotherapy, etc or chemo, ops, chemo, radiotherapy, etc, but we can and we are doing it step by barrying step.      

Implausible, sorry the cold cap hasn't worked for you but as you say you had to give it a go. I've managed to hang on to some hair, but definitely not enough to go out and about. But then it was always my intention to wear wigs and bandanas until I could colour my hair again. Vain or what?!

About to read more posts. I'll be back. xxxxx

  

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Re: February starters 2019 - yes, we rule!

yes i think you deserve that one todat Susie,

 

Heart you always make me smile Marilyn, well done on your steps,  Im with you that we have all come so far.

 

Daisydi, long may it last that you feel well. 

 

Im feeling better in myself today, but totally fatigued when i do anything, I did try Nytol last night, and slept slightly better, but not brilliant. I am determined it will not get the better of me, as I am off to Stoke N Trent tomorrow to watch my youngest Danny compete in the  national schools gymnastics competeition.  May mean I sleep in the car but I will go.

 

Take care ladies, hope you are all doing well xx

 

 

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Re: February starters 2019 - yes, we rule!

Oh go on then.....I will claim 4001 then!

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Re: February starters 2019 - yes, we rule!

Sorry quick post. Can I claim number 4000?

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Re: February starters 2019 - yes, we rule!

Back from 2nd visit to hospital, back again tomorrow for PICC care then that's me until the 14th when I have PICC care again. Can't believe how accommodating the hospital can be when it comes to bc care. The only gripe I've had is with the radiology dept that seems to book a number of patients in at the same time so you can be waiting for up to an hour🕑🕒. Not so good when your immune system is low. Anyway I was told I could have pre- assessment next Tues, but Susie with bc said no thanks can I have it after trip away? Lesley, without  bc would have said yes. I've either become more assertive or bolshy since diagnosis. Anyway they slotted me in this afternoon so all I need to be concerned about is surgery appt, which they may not notify me of until the last minute, my request. They aim to do breast/lymph node surgery in the morning and get you home the same day☺. After ANC I won't have a drain, and they use glue to fix you back together. Onto the better news regarding lymphodeama. Yeovil along with Taunton and one other hospital have just obtained a new machine which predicts lymphodeama before it happens. Basically you get checked every 3 months and it can detect any problems before the lymphodeama developes so an arm compression stocking  can be put on before things get out of hand. Not sure how long the checks go on for. 

Thanks for all your good wishes and kind words. Hopefully we'll be doing the same for you Edinbird and Deano when your chemo ends☺. Now let's have a look at the latest posts. May not get to reply for a while, hubby home soon. xxxx  

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Re: February starters 2019 - yes, we rule!

Really good news Susie.  Onwards and upwards.  Well done Marilyn for your walking.  Im still feeling ok after my first T. Think I had so many side effects with FEC that this seems like a gift.  Hope it stays that way.  Love to all of you beautiful ladies xx

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Re: February starters 2019 - yes, we rule!

Fab news Susie, makes it all worth it....chuffed to my best boots for you..

 

well, I'm pretty chuffed with myself too today....been on a walk and managed 5000 steps!!! First time since chemo began too, feel bloody knackered now though mind..but I did it! It's hard to imagine this time next week ( bloods permitting) I'll be in bed from cycle 5, I keep thinking back to when it all began and am astounded at what we've all been through, are we awesome or are we awesome!!!! Xxx

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Re: February starters 2019 - yes, we rule!

Thats fantsic news, Happy that they are supporting you and are going to let you enjpy your holiday. xx

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Re: February starters 2019 - yes, we rule!

Fab news about your gremlin Susie and also that you are happy with surgeon. Xx

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Re: February starters 2019 - yes, we rule!

Hi everyone 

Just a quick pop in as I am going back to hospital for pre-op assessment. The surgeon I saw this morning was lovely, and was recommended by one of hubby's work colleagues so I'm going to stick with her. Told them, a was a nurse there too,  about my fear if surgery so they will not notify me of op date until after my trip to France and with as little notice as possible. Gremlim has shrunk from 21mm to 6mm☺, and surgeon pointed out that some of this may be scar tissue. Seems I'm having full ANC, more on that later especially regarding lymphodeama. Be back later with more info and to catch up on all the gossip. xxxx    

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Re: February starters 2019 - yes, we rule!

Daisydi, I had my last one last night night and felt the same.

Smiley Happy

 

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Re: February starters 2019 - yes, we rule!

Just done my first injection.  No problems.  Hope Ive done it right..

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Re: February starters 2019 - yes, we rule!

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Re: February starters 2019 - yes, we rule!

-mile-in-his-moccasins

 

I am thinking about mocassins .18141DB9-A161-4966-A522-F2C330B8AC18.jpegTread lightly

 

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Re: February starters 2019 - yes, we rule!

Morning xx another hard to get up day but that’s because I was awake about 3 hours in the night and then I got back off about 6.30 until 8.50. So good and bad I guess

 

I seem to be an unusual triple negative in that I’m only grade 2... but still managed to get in two lymph nodes grr. I don’t actually have a full staging because there was a node on my lung that they weren’t overly concerned about but ultimately another CT scan is needed to check it again. It didn’t affect my chemo regime and the consultant says he’s treating me as curative so I’m happy enough.

 

So I’m T4b (has caused my whole breast to swell and affected how my nipple sits but ultimately is a small 15mm lump and it’s probably blocked nodes causing the disruption to drainage) N1 MX

 

i feel like the lump is less hard to find in the last few days but it was always about the nipple and I’ve not seen vast improvements there yet. It’s only been 10 days since first T need to give it the chance to eat it all up!

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Re: February starters 2019 - yes, we rule!

Morning all

 

I had another half decent kip!  Lovely.  Although I did have to take a paracetamol to get to sleep in the first place as I had the proper full on T leg pains.

 

Daisydi, I must admit I can never remember the stage and grade stuff.  Maybe my mind is blanking it.  Had to go back to my consultant letter to get the details:

 

31mm grade 3 invasive ductal cancer with extensive lymphovascular invasion.  Strongly ER positive and HER2 negative.  Oncotype DX score 34.

 

I can't find anything that mentions the stage.

 

And yes, right boob.

 

My surgeon said that had the lump been bigger or my actual boobs smaller, I would have had the chemo up front to shrink it before surgery.  But because my boobs are/were a good DD/E cup, she had room to manoeuvre.

 

So instead I went op first, then chemo and radio

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Re: February starters 2019 - yes, we rule!

Morning Daisydi, I am up early.

Going for a walk with H1.

Re. my cancer I am T2N1M0.

This translates as stage 2 tumour, 1 Node positive ( don’t know why it’s a 1 ,as 2 out of 13 removed nodes were positive but 1 was a sentinel node) and 0 metastasis.

 I am ER/PR positive and HER2 negative.

My treatment was surgery first, chemotherapy second (more than half way through now 🤪) to be followed by radiotherapy and Tamoxifen .

Yes, it was the right boob.

Have a great day,

Rosina

PS I was advised to go ahead with the chemotherapy as it gives me 7.3% improved survival at 10 years .

Off to enjoy the present moment.

I did take 2 ibuprofen last night in order to sleep without lower back pain. Slept well ⭐️

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Re: February starters 2019 - yes, we rule!

Hi Rosina, I am doing the best I can to get a job and move leaving behind all this, but it is not easy.

We were both caught in a situation of ending degrees, starting jobs, recuperate financially.

Then, suddenly, it was my kidney followed by V's cancer.

And no plan B or savings to cope.

She has to finish her treatment, I have to keep caring for her, injections, dressings, cooking, baking, cleaning, cope with the bills, uni, debts, etc., etc., and find a job, and hopefully move away from this university.

She cannot think about all this, she is frail, Chemo brain hit, she just needs to rest.

I have to be the one opening the doors for a different life.

I just do not know how, but I keep going, waiting for a miracle after so much rubbish.

S#####t happens!

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Re: February starters 2019 - yes, we rule!

Thanks for info re injections.  Havent decided yet when to do.  Will make my mind up tomorrow.  So Rosina and Implausible we all had right boob problems.  What grade were your cancers.  Mine was grade 2 and originally staged at 2 but maybe now changed but last time they said it was 2b.  I did ask my oncologist last week why some people had chemo first and he said it depended on grading and HER status.  I think we 3 are all ER+ and HER-  He also said I would be getting Anastrazole and radiotherapy about 3 weeks after chemo finishes so if everything goes to plan I will hopefully be finished treatment by August.  What a lovely thought.  Then I will have to decide if I want more surgery to match up breasts.  Not sure about that one yet.  Anyway enough of me wittering on, must be the steroids.  Night night. Ive got a really funny sensation on my nose feels like something crawling on it.  Very strange.  Must be the T

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Re: February starters 2019 - yes, we rule!

Hi Sandraindurham,

 I know that ‘patience is a virtue ‘ but you guys are on the receiving end of continuous excrement to put it politely.

At what point do you say ‘enough ‘ ?

 I had 5 and 1/2 years of teaching at a place that was emotionally , mentally and physically exhausting. When it got to the point of me waking up from nightmares in tears I knew that I had to move on. 

Stupid me I wouldn’t leave until I had another job to go to, which I got .

Within 2 months at this new post the same people who hired me then decided that I was meeting their expected standards.

 I spent 5 months jumping through hoops, being observed on almost a weekly basis, working from 6 am till 12 pm, presenting lesson plans 48 hours in advance of being observed getting no feedback on my planning only to then be shredded to bits after having been observed by 2 ‘senior leaders ‘.

My confidence was eroded, I doubted everything I was doing, then ‘capability ‘ was on the cards ( for teachers this is  where they have to prove that they are capable of doing the job they were hired to do) my union advised me to not enter into the  ‘capability ‘ process.

 It was the best thing I did !!!

I resigned, left, got my life back.

This ‘I won’t give up’ mentality is not always a great idea

I did supply work for 4 months and then landed my current post where I am looked after and appreciated.

I understand that V needs to continue her treatment but does she need to continue with her doctorate? Can’t she   stop? Put it on hold ?

 I don’t know how you are keeping all these plates spinning !!!

Life is too short to not enjoy it.

V is young.

You both need a break.

Allow yourselves a ‘time-out’ from trying to jump through hoops for others.

Hugs,

Rosina

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Re: February starters 2019 - yes, we rule!


@Implausible wrote:

But there must be something.  If she was a full time student on her own but needed full time care they wouldn't just leave her there to starve.  And similarly if there is a carer (you) they have to provide cover so you can leave the house occasionally plus respite.

 

This is completely untenable.


Reality is what it is. I can be a carer (I have a card because I have been V's carer due to her health issues) but no respite.

If a person is on her own in some councils welfare comes a few days, there are nurses, etc., but, in truth, she is my baby, and she would not feel comfortable with a stranger.

And, then, there is the crazy dog, the most unbelievable Chihuahua that does not allow anyone nearby her Mum Smiley Happy

We just have to be patient, things will improve.

I think the worst part came from the university. They have hardship funds and when Veronica applied, when she was diagnosed and had the mastectomy, they told her that she should have though about it before applying for the university (uni starts in October, Veronica was diagnosed in the end of November).

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Re: February starters 2019 - yes, we rule!

I'm still doing the arm exercises too.  Although only once or twice a day rather than the 3 times a day I did before.

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Re: February starters 2019 - yes, we rule!

Hi Ladies 

Its strange isn't the difference in advice we're given , i was actually given a front fastening zip up bar and yes had to wear it 24 /7 for a month until my drains were taken out. I eventually brought pull on bras from asda as i was told i couldn't wear underwire bras with an implant in but i actually had a couple of sports bras that fasten at the back, can't wait for the next surgery to replace my implant and uplift my other one xx plus i am also being told to keep exercising my arm to prevent issues later its still numb underneath xx

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Re: February starters 2019 - yes, we rule!

But there must be something.  If she was a full time student on her own but needed full time care they wouldn't just leave her there to starve.  And similarly if there is a carer (you) they have to provide cover so you can leave the house occasionally plus respite.

 

This is completely untenable.

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Re: February starters 2019 - yes, we rule!


@Implausible wrote:

 

If V is now needing pretty much full time care is there any assistance you can get from the NHS??


Oh, we are both full time students, which means that we are not entitled to anything at all!

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Re: February starters 2019 - yes, we rule!


@Implausible wrote:

Thanks for the nice words but I can assure you I wasn't fishing for compliments!!!  I was just explaining why I've decided to ditch the cold cap and go for the full shave....

 

I kind of wish I hadn't bothered cold capping at all but it was worth a try I guess?

 

More importantly..... a chemical burn??????  How?????

 

If V is now needing pretty much full time care is there any assistance you can get from the NHS??


Honey, with me you can be sure of one thing: I never, ever, say something I do not think or feel!

It comes with all age, I am entitled to be true and raw Robot tongue

V calls me Mumzilla... just to give you an idea of my 'lovely' personality Smiley Happy))))))))))))

Well, it seems that in some cases chemo can give this, the toxicity is not well metabolised by the body and these lovely things happen. Sometimes people get ulcers, other have this.

The blurred vision is another situation where the toxicity is too much.

Well, I have been stocking everything.

Let me see: we have two types of Difflam, the one that is a spray is excellent for this, Corsodyl, Listerine Nightly Reset (no alcohol), betodine for dry mouth Smiley Happy

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Re: February starters 2019 - yes, we rule!

Hi Implausible, the hair shave was absolutely sole destroying for me but I was brave qnd let my niece shave it the weekend before my second fec and I also let my hubby video it being done for when and if i ever actually want to watch it but still to this day i have difficulty letting anyone see me without my wig and it might only be hair but unfortunately thats not how I see it, I was happier losing my booby. Well done you anyway xxx 

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Re: February starters 2019 - yes, we rule!

Trixieeeee my friend, how are you?

Well, I look like #### to be honest Robot LOL

Trying to put all pieces together but failing completely!

I simply don't know what to do, she cannot be left alone, I have to go chase dinosaurs for dinner.... well, it is all a mess.

I have bills to pay, university work not done at all, no income and all the time I am seeing her in pain, really scared to the point that she has to hold my hand to sleep.

I look like those people trying to balance a lot of plates spinning in the air, running around..... they will start to fall eventually!

Well, let us see what will be the result from her oncologist appointment in two weeks, I am not convinced about chemo taking into account the impact in V's case.

Oh, and I keep applying and being rejected Smiley Happy)))))))))

I am such a people's person Woman Tongue

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Re: February starters 2019 - yes, we rule!

Thanks for the nice words but I can assure you I wasn't fishing for compliments!!!  I was just explaining why I've decided to ditch the cold cap and go for the full shave....

 

I kind of wish I hadn't bothered cold capping at all but it was worth a try I guess?

 

More importantly..... a chemical burn??????  How?????

 

If V is now needing pretty much full time care is there any assistance you can get from the NHS??

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Re: February starters 2019 - yes, we rule!

Oh Sandra, so sorry to hear about Veronica, pass on a big hug for me please, its absolutely barry rotten this, have they been giving her the corsodyl mouthwash?? I get it after each chemo session xx What are they doing about Veronica's chemo ?

How are you feeling as i feel for you as well its not easier being the one giving the support especially when your not well yourself. 

I've been for a heart scan today so fingers crossed chemo cam go ahead on Monday but I'm still also suffering from breathlessness xx

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Re: February starters 2019 - yes, we rule!

Just back from the hospital with my daughter, another sleepless night, she has a chemical burn in the back of her throat, increased heart beating, blurred vision, terrible headaches, and she hardly walks.

I have to bring her everything and cannot leave the house, what a mess.

In the end, neutrophils great, ECG normal, liver, kidney functions, all normal, it is just our 'good friend' FEC the barbarian striking all the weak points!

What a #######

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Re: February starters 2019 - yes, we rule!

The bands suit you Edinbird.  They look totally ridiculous on me. Think I have the wrong shaped head for them.

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Re: February starters 2019 - yes, we rule!

My Implausible/Sarah dear friend: could you please take a closer look?

You are so, so beautiful! Yes, the hair is different, but would you look at a Monet and say that the frame is what makes it beautiful?

Look at your eyes: they can catch all the luminosity in the world!

Look, Veronica shaved her head completely and she went through the same process, and I shaved mine because I really did not care, it will grow back, even more beautiful and strong, and, in a way, it will be a symbol of what you have won!

Every single bit of hair that came down is a symbol of a really nasty war, but you are winning, and those scars will disappear!

Look again in the mirror: what you are seeing is the naked face of a warrior that will not go down.

OK?

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Re: February starters 2019 - yes, we rule!

Oh don’t worry about the surgery talk I’m not worried about the anaesthetic I’m just frustrated by the unknown. My boss came round earlier and I was trying to explain what’s happening next and when and I am a little more informed but a lot of it is totally made up! Trying to work out how I might feel by then too... well who knows?! Just day by day which doesn’t help planning. Will be interesting when I get my occ health assessment...

 

I had all my headbands turn up today. It’s very odd for me as I never have my hair back and I felt very strange with it on at first. But I’ve worn it all day and everyone I’ve shown thinks it looks good. Here’s number one... have various designs in different colours, six so almost one for every day of the week! It’s a Hygge Band and there’s 5 for the price of 1 at the moment (also went for a lucky dip one at a really cheap price in case you think I can’t count!)

 

 

image.jpg

 

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Re: February starters 2019 - yes, we rule!

Implausible, I think you rock the look. I. A. Understand no cold caping and shaving your hair. I’m feeling pink when we can colour our hair again. The kids are horrified think it makes me want to do it more. I still have quite a bit, with very large roots showing now. I keep looking at the wig I’ve paid lots for, hoping that I never have to wear it, but double edge sword as didn’t have the money to buy it and never wear it. 

Rosina I think I’m with Sarah and would have called an Uber today, I popped into Asda on the way home from hospital and felt like an old woman walking around in a daze. 

Love to you all ladies, it’s tough but we are doing this 💪

 

 

 

 

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Re: February starters 2019 - yes, we rule!

Implausible, totally agree with you on shaving your head, hubby shaved mine off a few days after first cycle...oh and btw.....I still think you look pretty awesome with or without hair....it will be growing back sooner than we imagine.....xxxx

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Re: February starters 2019 - yes, we rule!

Think I would have to have gone over the barrier Rosina but then would I have been run over by a train or something.  Sarah you are very brave to shave your head.  You still have eyebrows.  Is it too painful as it is.  Seems a shame to lose what you have left but I understand why you would want to.  I have been so lucky with my hair but I think its to do with the fact that my hair hasnt seen any bleach or colour for a good few years now so it was prob in quite good condition.  I used to get highlights but got so fed up of them really drying my hair out that I just wait for summer and get the natural ones.  Saying that we are not out of the woods yet but I am quietly confident that it cant all fall out now.  Have lost most of my eyebrows though and my lashes are quite thinned out but I am not so concerned about them.  My cold cap yesterday was excruciating.  Brought tears to my eyes but I cant stop now.  I have also been using a botanical treatment which is supposed to protect the hair and follicles from the freeze so I dont know what has worked but I am not changing anything for the next two.  I have done really well today, been shopping, done loads of washing up, been to see my mum, done loads of washing, taken the dogs out, fed all the plants and now I have my feet up.  My sister broke her ankle last year and bough and old mobility scooter which is now in my garage ready for me to drag the dogs around if I cant manage to walk.  Seems weird to think that side effects kick in some much later.  I am feeling well, have no nausea and am taking no tablets.  Halved the steroid dose for today so will carry on with another half dose tomorrow and then see what happens.  

When my surgeon found one positive node he was happy to just do chemo and no more surgery, the American way but the MDT insisted that I had full node clearance.  My main concern was lymphodema as I am right handed but so far so good just paranoid now about getting cut or bitten.  Does anyone know of a good skin kind insect repellant.  Last year I really reacted badly to every bite and swelled up in large areas and I dont want that again expecially with no lymph nodes on the right.  Its been such a beautiful day here and I am now tempted to cut the grass but think that may be pushing it ...

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Re: February starters 2019 - yes, we rule!

Hi Susie B,

I decided to go right and take the long and scenic route.

Ended clocking up 6,000 steps.

Currently flopped on my bed, experiencing  lower back pain with a vengeance. 

Wondering weather it is due to :

1) PMT - period due this Friday and so far it hasn’t given up. When I was told it would stop I thought it would immediately!

2) T drug 

3) White blood cell injection-.last one was today and I didn’t do it very well as I wasn’t concentrating properly so lost half of it ( does rubbing lost drops on the skin work ? ) .

 I am going to pick (1) from the above.

Rosina

PS I also managed to burn the pine nuts ( toast not bbq them says my fool proof recipe).

Yes definitely PMT

In my next life I want to be a plant .30DD34C7-8119-48DA-857F-FFABCD319D35.jpegApple Blossom sounds good to me.

 

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Re: February starters 2019 - yes, we rule!

That was Rosina not me, I haven't got off the sofa today, let alone gone out for a walk! Smiley Very Happy

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Re: February starters 2019 - yes, we rule!

Hi everyone 

Sorry Edinbird blame me for the surgery stories. I had a call this morning asking if I could see surgeon tomorrow - they had a spare appt so that meant I would definitely get that out of the way before my holiday. I know I'm having a lumpectomy but, like you the nodes are an absolute mistery.  I had a few questions prepared, but needed a heads up on what else I could or should ask. Hope your throat gets better soon.

 

Leading on thank you so much to all of you for getting back to me. I am terrified of the anaesthetic so will definitely make sure they know about that one. As for bras I've already bought a couple of post op ones from Asda. Reasonably priced and soft and comfortable. Will ask surgeon if I'll need any others. There were a few questions I hadn't thought of and a couple I don't know if I'll want to ask at all. I don't know what I would have done with your support.

  

Sonia28 I hope they get you sorted. PICC line problems on top of the thrush is the last thing you need. To date Klingon has been fine but I'm a bit concerned bc nurse is happy to go 11 days without being cleaned through etc. I fully expected to have PICC care on the Tuesdays before and after my little jaunt to France. Hope they know best.

 

Implausible so what did you do after being faced with your little conundrum🤔? I don't think I would have braved going over the barrier, much as I would have liked to.    

 

All the Best to everyone I haven't  mentioned. Thinking of you all xxxxxx 

 

 

Member

Re: February starters 2019 - yes, we rule!

Ok anyone with a weak stomach look away now, as these photos are NOT pretty!!!
 
I haven't showed anyone outside of my immediate family just how god awful I look now, but if I can't be honest with you ladies, then what can I do?
 
OK deep breath....
 
So.....my hair is now so downright horrid that the sight of it depresses the living daylights out of me.

 

 

Ok this post is all messed up.  Ignore this photo here and pretend it is right at the bottom of the page where it is supposed to be.  It will all make sense laterSmiley Happy
 

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 (See pics below)
 
So I have made the decision today to just shave the whole thing off.  Bald has to look better than that!
 
And I'm going to ditch the cold cap for the last 2 sessions.  Not like it did much for me anyway!
 
I did find it really uncomfortable last time and it will be a relief not to have to bother.
 
Other half is going to shave me at the weekend.  He is used to it as he does his every morning Smiley Happy  we will be bald twins!
 
Wish me luck Smiley Happy
 
Sarah - who genuinely can't believe that chemo has gone from that last pic at the bottom to the new ones in just 3 months.  That photo (bathroom selfie showing off a new dye job Smiley Happy ) was taken on 2nd Feb , 10 days after my lumpectomy, and 2 weeks before my first round of FEC.
 
You wouldn't think it was the same person would you?
 20190501_102338-picsay.jpgAnd my face isn't much better but to be fair I am 5 minutes out of A and E Smiley Very Happy

 

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Member

Re: February starters 2019 - yes, we rule!

Proper catch up time

 

First of all, huge congrats to Daisy and Ocean for ticking another one off the list.  Woohoo!!!

 

Enjoy those first few T days which are definitely nicer than the early FEC days, and I hope that when it does kick in for you later on it is mild and forgiving x

 

Ocean as ever your photos are spectacular.  Some of those wouldn't look out of place in an exhibition, really!

 

Rosina your description of the crowded yoga yurt with everyone limbs a-tangled and stuff catching fire in the corner, really did make me laugh!  I actually think the delay in your treatment worked in your favour, as day 3 post T is more manageable than day 10, from what I have read.  I think you might have struggled!  Although that said I couldn't do it at day 3 either Smiley Very Happy

 

Marlyn I am keeping low but not moving very fast today Smiley Happy

 

Oooh Susie I didn't realise your holiday was so soon!  Brilliant!

 

I have sadly decided not to go ahead with my long weekend in Edinburgh in a week and a bit.  That is my "good weekend" and I am sure by then I will be feeling ticketyboo.  But so soon after my little hospital trauma (my other half laughed yesterday when we got home and I called it that, as he is used to me not being phased by anything, but it really WAS traumatic!), I don't think I would feel comfortable too far from home.  Pity though as I was looking forward to a coffee with our lovely Edinbird!

 

Nettie how are you feeling today?  Are those glands behaving?
That train ticket smile fooled me for a second Smiley Very Happy
And today I have made it up to 3 on your scale Smiley Happy

 

And Seaside?  Hope you are still on the mend and enjoying your boxsets Smiley Happy  I am finally watching Umbrella Academy and enjoying it a lot more than I expected to.  I read the comic when it came out about 10 years ago and wasn't particularly impressed.  The TV adaption seems to have mainly taken the better bits.  So that's good.

 

For all of you worrying about a gen anaesthetic for the first time, that is totally normal.  I was "lucky" that I had had a hysterectomy 2 years ago, so it wasn't my first rodeo.  I actually quite enjoy a GA now as that night you have the deepest loveliest sleep!! Smiley Happy  but before my first one I was TERRIFIED.  I even wrote the kids letters to open in case I didn't wake up!!!  Luckily they didn't know about them or they would have been worried.  I was a twit.  It was a breeze.

 

Injection wise, my nurse tells me to do mine at midday, but I am not sure why.  If you haven't been told a specific time I guess you do what suits you?

 

Oh Sonia you are in the wars Smiley Sad  hopefully patched up and home from hospital now and feeling a little better?

 

Rosina...what would I do with the closed footpath?  Today, call an uberSmiley Very Happy

 

Big love to everyone

 

Sarah x