I now feel like a weirdo having had hair around my belly button!! 😂 it kinda went down towards my pants... that trail is gone
And what’s with everyone else losing their leg hair?! No fair 😕 I guess it’ll come...!
Hair? Let's see
Legs - just counted 4 hairs
Lady garden - still bald as a coot
Belly button - never had any
Arms - finer than normal
Under arms - no maintenance required since 1st chemo day
Nose - where did that hair go
Chin☹ - 3 or 4 persistent hairs went but just reappeared as if by magic a couple days ago
Eyebrows - ok but need help as grey mixed with brown. Also quite thin naturally - years of plucking
Eye lashes - lost a few but ok. Just use clear instead of coloured mascara to give some definition
Hair - Let's just say the Bobby Charlton comb over became ineffective many weeks ago😨. Deffinitely going for the badger meets baby monkey look. Wigs and bandanas only for the many months ahead
Chemo - the drug that can result in such random and inconsistent side effects.
Oh and eyebrows def on the move. Didnt have much to start with and lashes still there for now xxx
I started off super hairy so what Ive got now is just normal. Legs bit hairy but not as they were same as underarms and everywhere else. Just a bit thinner. My hands look really smooth and legs feel smoother as Im not shaving. Head is acceptable just thinner
Legs - not as hairy as they were a month ago but I can still spot the occasional straggler
Pubic area - 3/4 gone
Around my belly button - I don't think I had any there to start with? If so I never noticed!
Arms - still as hairy as ever
Under arms - completely gone, which saves shaving, can't complain
Any kind of peach fuzz - still peachy too
Nose - my nose drips more so I think maybe I've lost hairs up there. Can't see any.
Eyelashes - mine look a lot sparser than usual but still passable with a bit of mascara
Eyebrows - less aggressively Dennis Healy like than usual.... I'm not having to pluck them as often.... but still there
Head - totally Friar Tuck
Ouch sunburnt head sounds nasty Daisy! I’m too thin I’m not going out without a hat at all. But I have been able to wear my holiday beach hat the last two days! 😊 maybe not to do the shopping in...
Im slightly annoyed that I can’t wear shorts or a skirt because I’ve not shaved my legs since all this started determined to see when the hair falls out! 😂 not yet anyway... it’s odd what has and hasn’t -
Legs - not in the slightest bit different
Pubic area - still a light covering
Around my belly button - gone!
Arms - as always was
Under arms - hair free
Any kind of peach fuzz - still peachy
Nose - as normal
Eyelashes - seems like more come out but they look the same
Eyebrows - still need a good pluck
Head - just call me Patch
Morning everyone. Happy Easter Sunday. Hope you are all feeling well. I have another good nights sleep. So two in a row. Amazing how much better I feel with decent sleep. So hopefully I will now have a good week. I really noticed the heat yesterday on my head. Went for breakfast on the broads fairly earlyish about 10.30 and sat outside. Had a full English as a special easter treat. Havent had bacon or sausages for months and months and so enjoyed it. I have always had thick hair and not really had to worry too much about hats but yesterday where my hair has thinned and there are the old bits of scalp showing my head got sunburnt. Lesson learnt so now I will wear hats if I am in the sun. Glad you are feeling a bit better Marilyn. You and Susie have done so well tolerating your 4th FEC. Have a lovely day everyone. Edinbird enjoy your day on steroids!
Good morning my beauties and happy Easter to you all! 🐣🐇⚘
I hope you are all able to enjoy today and not feeling too poorly. I know lack of sleep is still affecting most of us. Hopefully a few naps in the sunshine will help.
How are you, Trixielady? Hope the aches and pains have eased off now. Any chance of you going home soon?
Sorry to hear you have been feeling a bit rubbish, Marlyn. Accumulated side effects are not fun. And yes, water tastes pretty awful when you're in that mode. Fingers crossed you'll be on the way up soon.
Sarah, your oncologist has spoken a lot of sense there. I just wish I had known that in the first place as it certainly has been the case for me having 4 week cycles. Having said that, the nurse told me to prepare for 8 months of chemo so that I wouldn't be disappointed - I guess I put that piece of advice to the back of my mind.
Edinbird, love those socks! My daughter has a bunch of fancy socks like that. My favourite pair has a picture of avocados and it says 'avocatoes'. Love a good pun.
Sandra, sorry to hear V is worrying so much. It is easy to do that when you can't go about your usual routine. Sending you both all the strength to get through this.
Ocean, how are you doing hun?
And where is Deano? Hope you're OK.
Rosina, 10 miles! You are unbelievable!
Hi Susie, Daisy, MBJ and Nettie. Hope you can enjoy some chocolate today.
Sorry if I've missed anyone. Brain defo not up to speed.
I managed a bike ride yesterday. Stopped off at the garden centre and bought some shrubs as well.
Off to the ice hockey today. GB are playing Hungary here in MK. Kind of wish I hadn't booked the tickets now I've seen the weather forecast for today 😎
Love to all.
Marlyn salt is what I crave too! Was good last night as I really wanted plain crisps with extra salt☹ but had unsalted nuts and raisins instead but it was soooooooo difficult to avoid opening that packet of crisps.
Trixielady hope you're feeling a bit better today. Being in hospital is the pits🤒😳😷 especially during the Easter break along with the warm weather☀️. I hope the medics can establish what the problem is and you can escape as soon as possible. Sending you hugs❤❤❤❤
Edinbird good luck for tomorrow. Changing to a new chemo regime is pretty daunting but I know you can do it! Your Gremlim doesn't know what's coming next🐉🐉
Hope you're all feeling a bit better than yesterday. Lack of sleep really isn't helping😪😴☹.
That said I think I got more than 4 hours last night, unfortunately not unbroken☹, but a step in the right direction☺.
Enjoy the rest of the day. Love you all xxxxxxx
well, that was another crap night sweaty sleep! So far feeling ok ( for chemo) still in bed and will see how today goes, although I can feel ok in bed, when moving around it can be a different story!
implausible....really interesting about what the lady said about tamoxifen, I have heard similar stories....hmmmmm also well done on all the walking, do some for me while your at it? Xx
edinbird, you too with the steps! But don't bugger yourself up for tomorrow....good luck Hun xx
rosina, another stepford wife....how on earth do you do it??? I'm always showing hubby your screen shots, you do better than him and he's walking the dog! He's secretly trying to beat you now! Xx
sandra...interesting about the cycles? Makes sense too, when is v going back? Give a hug from me xxx
trixylady....where are you??? Not still in hospital? Please pop in when your brighter? We worry about you xxxx
mjb your day sounded divine! I was with you in spirit...xxxx
where is ocean? Hope all ok her end? Unless iv course I've missed a post which is highly likely in my state!
Seaside? How's it going Hun? Glad your back on track with bestie xx
susie...I hope to God this taste thing doesn't last too long! Only things I can manage are uber salty....that will do my blood pressure the world of good...xx
daisy...you ok Hun? Xx
My chemo brain is kicking in now, remember I love you all and if I haven't mentioned you on here it because you are safely tucked in my brain for later....I love you all, and don't know where I would be without you.......keep trucking sisters xxxxx
I can understand Veronica's concerns regarding her delay in chemo, but from what I've read and been told, breaks of more than 3 weeks between sessions aren't a problem. As Implausible's onc said who wants chemo to go on for months on end? The way I look at it I've got a 5 to 6 week wait between chemo and surgery and I'm sure that if the medics thought my Gremlim would fight back during that time, then surgery would take place sooner. If you're well enough surgery can be done within 3 weeks but my onc is happy for us have our break in France followed by surgery.
As for Veronica worrying about the future I can't help much other than for her to try and do what my medics have suggested and try and break things up into little chunks and concentrate on each bit as it arrives. She really needs to focus on the here and now. Take care both of you xxxx
Sandra I hope you guys can think positive. V is getting treatment which is better than not. And imagine if they just kept pumping us full of this poison if we were not well enough to take it - we’d all be so poorly.
When I saw the consultant he said surgery for me is 4-6 weeks after last chemo - so again that shows what Sarah said, time to recover could be longer and sometimes is. They won’t operate until I’m ready but they wouldn’t risk it starting to grow again so a week or so off won’t hurt.
I have one Easter egg but not sure if I’ll have any today. Can’t quite shake the indigestion at the moment. But I need to get up and eat to start on my steroids. I kinda expect to be like the Incredible Hulk later! At the moment though I’m just laid in bed with sore hips and legs from walking and period pains... not very super hero like! Need to dust my hat off for tomorrow!
Just popped in from Dec thread to hopefully offer some more reassurance to what Implausible has already said.
Please tell your daughter not to worry or torture herself. I have just finished my chemo and have had 2 delays of a week each time. I’ve really not fared well on the treatment and have suffered with many side effects resulting in a hospital stay with neutropenic sepsis, and multiple trips to a&e due to one thing or another. At times, I didn’t think my body would cope and I’ve really taken some knocks tbh. However, staying strong mentally has got me through 6 cycles and my MRI after cycle 5 shows a good response with a reduction in tumour size from 26mm to 8mm. There’s hope it may have reduced further after 6th chemo. Please tell her to hang in there, she’s doing amazing. I believe she is doing the right thing by keeping herself away from people as much as possible. It’s hard when you see others out and about doing things but it’s important to do what’s right for you. We all react to the chemo differently. I avoided public places but did try and get out for a walk on the days I could, even if it’s only for 5 mins. My germ free friends would also pick me up in their cars, and park somewhere nice so we could sit and have a cuppa in the car and feel like I was out but away from everyone else. I feel it’s important to get out of the confines of your own 4 walls when you can for your mental health. She can and will do this...and I know you have amazing support on these forums. Sending love 💕 xx
Oh and good morning everyone!
Happy choccy egg day!!! for those of us who can eat chocolate without it tasting bleuuurrrggghhh anyway :/
How are our poorly ones getting on today? Hopefully a little/lot improved x
Because April babies are the best
I can't help much with the career/education woes - although I would hope that there is some way for V to continue her studies should she wish to do so when this is all over (I'd be tempted to park that one for now and worry about it later).
But I can reassure on the 2 week delay bit.... when I had my initial meeting with the onco I asked why the cycles are 3 weeks long. He told me that he thought that they should be 4/5 weeks, to really allow people to recover between cycles as then they wouldn't keep ending up delayed because of neutrophils not having bounced back in time.
But then he said that he understands why they went for 3 as that way 6 cycles only takes 4.5 months not 6 or more, and people wouldn't want their lives disrupted so long.
But the fact he says he thinks it would be better all round if we had longer cycles says to me that there is no damage to the efficacy of the treatment to have a week or two delay. So please do try to reassure V on that front.
This whole thing will be in her rear view mirror before she knows it, and she will be on the road to recovery, feeling stronger every day, and you guys will be building a new, much improved, life in a new place. Hold on to that x
Hi Sarah, V is mortified because she has lost two weeks in her treatment and is torturing herself saying that Chemo will not be as effective.
She doesn't want to go out because she is afraid to be contaminated with virus again and she is afraid of being left alone.
And then is the situation of her professional future. She lost the award when her cancer was known, she cannot proceed with a PhD without funds and she has no job to return to.
She strongly desires to move away and start working for something meaningful like a charity.
For now... Things are not OK.
And you both have birthdays on the same month! ))))
Well Ladies I leave you alone for a day and look at you. Some are walking more in a day than I do in 6 months, well done. Others are having s tough time with side effects, so sorry you are feeling crap. Sleep seems to be eluding most of you too.
Poor Trixie I hope you will be well enough to go home soon and that you are having good care.
Happy Birthday Sarah.
Yesterday I met my niece and her two boys in brother's church ( he is the vicar), for a children's service and hot cross buns. Then I met my friend for coffee in town. Then last night we went out for a meal with friends and it was delicious, I even managed a small glass of wine.
Tomorrow our son is coming and after .church we are going out for lunch. So as you can see I am really trying hard to enjoy my self. Monday who knows but I am sure I will think of something 🤔.
I hope you all get some sleep tonight it's hard because it's so warm. X
Marlyn, water was the one thing I didn't think I'd have a problem with since I drink it regularly throughout the day until dinner at 6pm. Then it's usually caffeine free coke during the evening (ok alcohol at the weekend). It tastes vile so I don't think I drink enough of the stuff now. I'll let you know if things change during my break from chemo. xx
Trixielady, what happened????
Why, what was the caus
Where are you now????
I am so sorry, honey, I hate this @###%%%!
Hey implausible/Sarah soooooo another quality year, and many wonderful and coloured hairs in your future, all the very best for you, honey!
And yes, keep a rainbow ahead of you, make every colour of it yours, because you are all the true colours in Nature!
Many happy returns my darling!
Implausible, I ‘d be very content with 70.
Thanks for the encouraging story about the lady you met.
Trixielady hope you’re out of hospital.
Marlyn and Susie b hope you start to feel better soon.
I haven’t eaten my favourite chorizo tortilla crisps from M&S since my first dose of chemo. They tasted awful!!
Junk food is off the menu. Infact, I haven’t eaten as healthy in my whole life . I go by my taste buds and state of my gut.
Re. Chocolate I have just discovered Hotel Chocolat . I went in with my daughter and there was so much choice it was difficult deciding what to buy. The caramel chocolate bunnies were scrumptious ( we sampled one first). The fruit smoothie chocolate was excellent. I have also made a mental note of the passion fruit/ mango combo and the lime/mint mojito.
If I want a treat I now know where to go !!!
I’ve done about 8k steps. Nothing as exciting as anyone else, I went to Morrisons at lunchtime (that I can see from my house) then decided I should go post something I sold on eBay so the buyer doesn’t get annoyed if it takes ages due to bank holiday and chemo so walked to the first post office to find it shut then walked to the next, all through a crummy housing estate so thought I’d walk back through the park which meant more crappy area to get there... eventually about 10 mins in the nice bit by the burn and then back home. And I had a Feast so that probably cancels it all out...
It’s so hot too. Just sat in the garden again eating crisps, again... might have a cider. Husband keeps offering me a mojito but I don’t fancy the mint. Looks like the hottest day will be Monday, great just what I need for chemo 🥵 they’d better not put me near the window again... roll on the cold cap!
Hi everyone, hope you are enjoying the sunshine if you feel up to it x
Nettie, tell your husband he is my new favourite person! but maybe he does need a return trip to the opticians
Edinbird, I LOVE those socks!!!
Rosina, I was hoping I'd beat you on steps today (I'm at 15k), but given that you had walked over 10 miles by lunchtime, maybe not you are a machine!
Marlyn and Susie, sorry you are feeling rough
And Trixielady hope you are home soon!
I have had a really nice birthday but I am soooooo tired now. On my way home in the car now (don't worry I'm not behind the wheel and typing!). The aircon has run out of gas and the car is like a mobile sauna!
Highlight of the day, finding (completely by accident) a graffiti wall seemingly dedicated to me
I also met a really nice lady today. She was on the guided walk I did this morning. She had a t shirt with a big sequinned pink breast cancer ribbon on it so I discretely asked her about it. Turns out she had bc 20 years ago. She is 70 now and looked super healthy. I couldn't keep up with her on the walk
She told me that her mum and aunt both also had bc in their late 40s, and both lived to their late 80s.
So that's all very encouraging
She insisted on giving me her email addy and said I need to surround myself with positive people and positive stories and survivors.
She also had very strong views about Tamoxifen. She refused to take it after the first couple of months. Said it made her feel terrible, and she read up on the benefits and decided they were too small. She reminded me that doctors get very well rewarded for encouraging us to take alllllllll the drugs and urged me to do my own thorough research and not be scared to say no.
I am a bit (scared to question the docs), but I guess it is all food for thought
She was a real character. I liked her a lot.
Susie, sorry your rough too....oh just for some good uninterrupted sleep! Everything tastes so slimey too...but have managed a pkt of salt and vinegar crisps......even water is yak! But we need to drink....hate to think what cycle 5 will be like....
Snap! I'm not feeling too good after 4th round of FEC either😪. Been sat down either inside or outside so far today. Got knackered popping upstairs just now. My taste buds aren't wonderful either. Not sure if feeling grotty because of the FEC or the culmination of lack of sleep😴. Usually by day 8 after chemo I start to regain some energy and by the 10th day I'm pretty much back to normal. Hope you feel better soon. Take care xxxxxx
We both didn’t think of taking money or water so we stopped by Crawley Hospital so that H1 could get a drink!
It definitely helps that I wasn’t ‘dosed’ on Wednesday last.
Well, I'm still in bed and feeling pretty groggy . Just looked on and seen so many posts. First, trixelady, so sorry you ended up in hospital! Please update us when you can?
Rosina...your yoga nidra link was fab....just what I needed yesterday, I had my windows open and all I could hear for the first few minutes were a couple arguing and if they were having a Chinese or an Indian for dinner...thank god it didn't go on for long...
all those switching to T good luck....will be interesting to see how it goes, I'm fec all the way...
feel sad I'm missing out on the beautiful weather but really can't do much moving around or eating! My taste buds are far worse on cycle 4....
remember I love you all.....keep trucking sisters xxxx
Sounds like bodily functions are the order of the day again! 😬
Keep getting stomach cramps my period should be due soon depending on what my body decides to do. I don’t know if it sounds daft but stopping my contraceptive pills after nearly 25 years was a big deal for me!
My husband’s friends brought me these yesterday... I think each looks like it’s on a different drug of the less prescription kind! Or I guess they could represent different chemo symptoms and feelings 😂
Anyway I’ll wear some to my session on Monday!
So sorry to hear you're in hospital 😔
Scary stuff, this chemo and all its side effects. Has your temperature returned back to normal now?
I hope you're being looked after well and that you're on your way home as soon as possible.
Sending big hugs xxx
Morning Hope you have a very Happy Birthday Sarah. At least its at a good time in the chemo calendar. Rosina you made me laugh with the farts. I am the same. Trixie sorry to hear that you are unwell. Hope you get better soon. I had the best nights sleep for months. I slept for 6 hours without needing to pee. Thats a record. Nettie I love that fart picture. Definitely sums me up! Going for breakfast at the new river cafe on the Broads now. Have a good day everyone. Catch you all later xxxx
Can I join the Wide Awake Club too? I'm so glad it's not just me who's waking up at all hours and buzzing. Also thirsty and needing to go to the loo rather too frequently. If it wasn't for all you wonderful ladies I'd be quite frustrated and concerned.
Rosina I've got the opposite problem, belching and burping alongside mild heartburn and indigestion.
As for the farting there's something my other half read once which was basically "Don't hold a fart in. It'll only go to your head and you'll come up with a 💩idea".
I'll leave it there.xxxxx
Implausible, I showed my husband the photo of your smashing wig fringe last night whilst you were out in Birmingham and he guessed your age at 30-35 at most.......and he has been to Specsavers! What is your secret? Enjoy your cupcake but don’t set light to your fringe with the candles. 🧁🔥😘 x
Oh Trixielady so sorry to hear you are in hospital. I thought you were quiet but hoped it was that you were just busy with other stuff. I hope you are being well looked after and get to come home very soon sweetheart. Please keep us updated with your progress when you feel up to it. Xxx
Ah no Trixielady
Your new regime was going so well too! glad you are on the mend and I hope you get home soon x
Thanks to all for the birthday wishes. I'm off to find a nice bakery so I can buy a cupcake and put 52 candles in it!
So sorry to hear you're in hospital🤒☹. I had noticed we hadn't heard from you recently. Get well soon. Sending you hugs and flowers ❤❤❤❤❤💐🌹🌻🌷🏵. Take care xxxx
I've been in hospital since Thursday afternoon due to shortness of breath and chest pains with a temp of 38.3 and diarrhoea stopped now, had all the tests under the sun done and very lucky for me the only thing that is wrong is my oxygen levels so now on oxygen for awhile plus terrible aches & pains in joints and muscles , taking oxoycodone for them xx at least I'll have time to read back over, big hugs to all you special lovely ladies xx
Seaside, same here. Awake at 2.30am. Sweaty, thirsty, needed a wee, didn’t get back to sleep until 5.30am and now awake again at 7.30am. Husband definitely on dog duty this morning before he goes to golf. I’m staying put for as long as I can get away with it. Gee, feel like I was “out out” last night painting the town red and all I did was lie in bed!. 🙄😴 xx
Happy birthday to you,
Happy birthday to you,
Happy birthday dear Sarah....
Happy birthday to you! 🎂🎁🎈🎶🎉
Ugh what a rubbish night again. Awake every hour, sweating and thirsty. Then I hop onto the forum and find some of you are early birds too. Hopefully I'll catch up on some sleep later in the sunshine.
How have you got the energy to walk, Rosina? Impressive!
I'm not moving out of my bed purely on principle as it's Saturday and too early.
Love you all xxx
I managed to get back to sleep last night. Farts have stopped and my tummy is flat 🤪
Off to breakfast and a long hike before it gets too hot.
Edinbird good luck with T today.
Very pretty birthday card Nettinoo , for Implausible.
Happy belated birthday from me too.
Hugs to all,
Edinbird, well done on getting the drinks down and the socialising done. I hope you are managing to sleep now.
I’m in the wide awake club tonight hence the bombardment of posts. I’ll pipe down now! 🤐🤐🤐😴😴😴😴. Love you all. Xxxxx
Rosina, all that farting is healthy. I’m surprised I’m not joining you tonight. My vegan son is here for the day and night and has loaded me with healthy green packed smoothies and a jackfruit and other veggies paprika dish (my first time having jackfruit, bit weird but I liked it).
Sorry couldn’t resist! 😂😂😂 xxxxx