Sonia I know it’s a pain to be delayed but feeling ok over Easter will definitely compensate. Marlyn, your fringe does look great. I’ve got one but need to to get it cut. It’s currently down to my chin and although I’m tempted to wear it that length and hide my pasty, lined face behind it and just peer through, I think I will look like a character from Sesame Street. That’s next on my list of to dos. Judah about to leave for chemo. I’m sad that my new found energy is about to disappear again but at least my house is a bit less covered in dust and dog hairs now. Love you all.
Thank you daisy and implausible.....I went to show one of my residents.....she is always brutally honest about everything, I stood in front of her and said.....what do you notice about me? She studied me carefully and said....well, your chin is darker than Normal and your cheeks are spotty.....and.....at which point I stopped her right there....by eck I won't be asking her anything again!
Oh Sonia, sorry to hear that, I'm always gobsmacked my liver is surviving, I have a fatty liver and yellow eyes.....xx
2 hour wait to find out liver levels too high, bounced to next week 😣 oh well at least I can enjoy Easter weekend
Marilyn that fringe looks really good. It suits you and you look so well! Ive cut a fringe into my hair for when eyebrows may go but it wont sit straight and I daren't straighten it so I look very strange!
The seal is ADORABLE!!!
and that fringe looks fantastic- so natural! Certainly more so than my pink and orange one Nobody would think that was a wig (or part of a wig) in a million years
Wish I lived near to seals, they are just lovely.....am going to try and post a pic of my fringe which arrived in the post this morning.....honest opinions please......then I'm off to treat myself to some cockporn......xxxx
Welcome back to the land of the living Daisydi - yay
and yes, that "cockporn" made me laugh too! out of the mouth of babes
Glad I'm not the only person whose house is an everlasting "project"
Mine was all redecorated and in fairly good working order when I moved in - but that was 17/18 years ago and until I got that money from my dad's will I'd done nothing else to it - when things leaked, broke or fell apart I basically had to put up with it as I've always been skint, and working such long hours at the office I had no time or energy to DIY anything....
I grew to really hate the place and was embarassed to have anyone round as everything was so visibly crumbling! After a year of hard work (well, I say hard work, it's the builders working hard and me paying hard ) it is really beginning to feel like a home again. And I'm not ashamed of it any more. It's a nice feeling.
Morning all, I think I am a human being today. Hoorrayyyyyy. Nettie you did make me laugh with the cockporn. Sarah the bathroom is looking great. Want mine done too and the living room where the shower has leaked onto the ceiling. One day ....Edinbird I am also worried about whats next. I cant bear the thought of being housebound with T but I am hoping that because I seemed to get all the side effects with FEC that I will sail through the T bit. Wishful thinking. Im not worried about radiotherapy. That's the easy bit in my opinion but I am bothered about the drive every day to the N+N and then trying to park. The onco said I could have evening appts but Im not sure about that as Im wondering if I might be too tired. Anyway lets not worry about that yet. Good luck for today Nettie and Marilyn for tomorrow. Have a great day everyone xxxx
I should add that we have already done 4 years work restoring fireplaces, putting back missing coving and original features and knocking through to brick outhouses etc but a restoration project is never ending. Time and resources are always in short supply. It will be worth it in the end. X
Good luck today all. I’ll be glad when I’m back home. 😳
Implausible, when you have waited a long time to get your home as you’d like it I think you appreciate the end result so much more. We had big plans to get our Victorian terrace sorted last year but due to fractured shoulder then bc, we’ve done zilch! I’m currently staring up at a big water stain on the bedroom ceiling from a leaking roof before Christmas. Roof sorted but bedroom needs redecorating. Kitchen, utility, hallway, stairs and landing all need redecorating. We started on the kitchen before bc diagnosis but then it got abandoned so it looks a right mess. When all this barryness is out of the way and we can get things sorted finally, I’m going to be a very happy bunny but there are more important things for us all to worry about aren’t there? Xx
Ah thanks Sarah travelling tiredness didn’t even enter my brain... I’m able to drive to work and walk round the corner or get a bus straight to the hospital and back. Was even thinking I’d work during radiotherapy since I can just wander over get zapped for 5 mins and wander back... that might be unrealistic. I guess I don’t realise how lucky I am that I have everything on my doorstep.
Of course I am working now... just not in the office. Once my immune system is back on track I can’t hide away at home! I have so much leave though so maybe I could do shorter days using a couple hours a day for a bit? I can’t have a proper return to work schedule unless I’m actually off sick for a while... I’ll need some sick leave after my op but again hoping it won’t be much.
Edinbird I have all the same worries about T and Radio.... I think because I've got through FEC fairly easily compared to a lot of people, my brain figures I'm "due" a naff time with the rest!
But I am trying to reassure myself with the fact that there seem to be plenty of people who have got through T and/or radio fairly unscathed , so it isn't a done deal it is going to be horrid.
My cousin has just finished his radio and said that it was "a doddle". So that's encouraging my onco says that the main thing that people find tiring about it is that it is every day , so it is kind of relentless. And usually there is travelling involved. Swindon doesn't have a radiotherapy facility so I will have to go to oxford every day (just under 2 hour round trip)
As for when people go back to work, I think that is mainly down to when you want or have to go back, more than anything else. Maybe if I had any other income coming into the household I would have had more time off (I don't live with my fella or take any money from him and I have never taken a penny from my ex for the kids, so it is all on me). But I feel fine to be back at work right now, and plan to work half days through radio and then go back to normal straight after that. If I'm up to it. I love my job, which helps
And if it makes you feel better re new bathroom, it has been pretty much unusable for 6 years! Neither toilet or sink were working and had been disconnected. We only used the old bathroom for the bath and everyone had to use the small loo for teeth brushing and everything else. I never had the money to fix it (or anything else in my falling apart house) until I inherited some money from my dad. Since then I've spent £20k getting everything sorted. It has been painful but I'm so glad that my house doesn't look like a crumbling squat any more
I am going to try and remember every one, so here goes:
1) Sandraindurham hope you and Veronica recuperate quickly. I saw your post last night and then forgot to send you ‘get well soon ‘ wishes. Good luck with the job hunting too.
2) Nettienoo lovely family pics. Good luck with dose 3 today.
3) Marlyn hope the blood test results allow you to go ahead with dose 4 tomorrow.
4) Seasidesar thank you for your kind words. I slept well last night ( I did wake up but I took myself through my Yoga Nidra meditation and was able to go back to sleep).
5) Daisydi I have made a mental note of Norfolk and Wintertorn beach. I have never been so it’s on my list of places to visit. Thanks.
6) Edinbird, Implausible, Trixielady, Susieb, Sonia28, MBJ, Ocean21 have a lovely day.
The sun is out here and I will be walking to town later . I may even watch some ‘magic roundabout’ on YouTube as it will be good to pretend that I am 4 again. I do have a dvd of Bagpuss!
Hope I have remembered every one ( except the new lady, that my brain is saying ‘glen ‘ something or other ).
Oh and I will be reading 🤗
ps yoga stretches now
Well yet another crap night's sleep😩☹. 4 hours seems to me my new normal no matter how tired I am when I go to bed🛏. I haven't been too bad since my 4th round of chemo, but that could be because I was determined to go to the party and LGFB session. Funnily enough I haven't got the Wobbly Wednesday feeling yet either, but that could come later☹. Maybe I'll check my heart rate and blood pressure later.
Caught up with all of yesterday's chat and have discovered I must be psychic since I somehow managed to answer some of your questions regarding the make-up session without seeing them. Spooky👻👻👻👻👻.
Loving all the beautiful photos, family and scenic. Those seals are soooooooo cute. What are the terns like in Norfolk? The Arctic terns in Iceland look so sleek and pretty, but boy, get too close to their nests on the ground and they literally dive bomb you!!! Looking forward to my little trip to France next month so I can see all the beautiful flowers in bloom🌻🥀🌹. Implausible the choo choo photo is brilliant. I'd forgotten how exciting Swindon could be😀!
So sorry to hear that some if you have had chemo delayed. Nothing seems to be guaranteed to happen when we want it to on this journey☹.
Will be back later for a catch up with everyone. Must get up now. xxxx
I’d love a new bathroom, kitchen, most things! But what we have is ok it does the job. Cosy in bed having taken the chance to come back in the big bed whilst husband is away. Hope I’ve not shed too much hair in here! Woke up twice having dreamt that my friend had died... not nice. Hoping he talks to me a bit more today, it’ll be our fight but also me worrying about next week, I’m scared that T is gonna wipe me out completely and make me housebound. I really hope not! Having seen more about radiotherapy on some of my triple negative forums, that seems to make people exhausted too and I don’t want to be! There have been lots of posts about return to work and people are going back three months after treatment finishes! I can’t even comprehend that, is it going to be that bad?
I’m worried about sleep and steroids too... I’m going to have about three changes of pjs lined up for Sunday night given how much I normally sweat on half the dose! But with everyone getting delayed that’s worrying me too... fingers crossed for Friday’s bloods! My halfway mammogram and ultrasound is at lunchtime so away to whip my boobs out then.
Trixie I'm glad you are getting on well with the pac. The lady I always see on my chemo days is having that weekly and she is getting on really well with it also. Much better than her initial rounds of EC. Long may your wellness continue!
Nettie what a gorgeous family you have!
Good luck to everyone getting round 4 xxx
Bathroom updates for those who asked:
Trixielady, glad the new regime seems to be working for you.
I love seeing all the photos of everyone's families trips out make and especially implausible.
Well the steroids make life slightly different, i thought i didn't sleep much before, I think I had about 3 hours tops, in broken sleep last night, got up for Danny to make sure he got his lift for swimming at 5am and have done all the back log of ironing, started to prepared tea, and will still have time to pack snacks and lunch before my bloods at 9am.
Marilyn and Nettinoo good luck today, ill be thinking of you both.
Hope everyone has a lovely day xx
Nettienoo your family look lovely good luck for today , today was day 2 of my paclitaxel and so far its been better than Fec, my temperature was always low and wbc appeared to ok but told yesterday they were improving nobody had said they were bad haha plus for some reason my temperature is 37.3 never been this high but i feel great been out for a meal tonight with a friend, left hubby home with carrot potato Red onion soup with a crusty baguette all is fair in love and war he's had loads of lovely day's and we never know what tomorrow brings but bless him he loved the soup and wants whats left for work this Barry BC will make a cook out of me yet haha, night night xx
The lovely photos from my girls are making me smile today, families, seals, flowers, deer, beaches, a glamorous SusieB and not forgetting trains.....Sarah you really crack me up! You are a natural born comedian. How’s the bathroom coming along btw?
Edinbird, I agree that you will indeed look gorgeous in whatever you decide to wear so stop worrying and get out there and have a lovely time you little beaut!
Sandra and Veronica, sending so much love and best wishes your way my darlings. So much barryness going on for you both but I can see you are trying to be positive Sandra. Good things must come soon, you so deserve a break.
My daughter came round this morning with my two grandsons. Arlo the 3year old told me he was going to the cinema with mummy to watch a film and have cockporn!!! I just couldn’t keep a straight face. 🍿😂😂😂. Xxx
They all do a fab job of keeping my spirits up. 😍 xxx
Susie this is one of the hardest novels to keep track of, who's doing what with who and when haha and then why aren't they !!
NNettienoo so is chemo 3 on then? Fingers crossed all goes well,, strangely enough whilst on Fec my temperature was always low and wbc appeared ok but now paclitaxel temperature is hanging around 37.3 and wbc are apparently getting better but thats strange coz last chemo i didn't have the injections and always thought they were good anyway! Pleased you enjoyed getting out even if it was only to tesco
Did you ever get out to Asia to see your brother ??
Sonia hopefully your chemo won't be delayed but i bet it was fabulous to be out with the family even if you were behind them haha i can't keep up theses days i get so breathless
Seaside sar, did you enjoy the makeup session ? i thought it was worth it for the company and chat plus the goodie bag was fantastic , i was the model on mine so never been able to put my makeup on so good since haha
Ocean21 omg your garden is absolutely amazing, how's your chemo going can't remember have you had surgery??
Edinbird hope you enjoyed your pizza and film?
Implausible now come on you've got a lot of work to catch up on and hows the bathroom ?
Sandra so sorry you're both not well, you must be one strong lady to cope with all this and still want to think ahead and moving so far away
MBJ pleased the moving forward group is helping, the makeup class is well worth a visit to
Marlyn hope you enjoyed the makeup class and I'm looking forward to your after photo pleased you didn't damage your eyes
Is your chemo delayed??
Sonia pleased you enjoyed the time spent with your famil, times so precious in between chemo
Rosina, whilst my brother was up he mentioned i should try meditation haha told him he was a bit late you'd already been posting plenty of info and some lovely recipes xx
Daisydi did you do the walk or just pinch the pictures ?? are you feeling better ?
Yep I'll put Swindon on my wish list! Edinbird I have been to Blakeney but not on the boats out to the seals. I dont need to now this has been another record breaking year for them and they are breeding here now as I think Horsey is a bit crowded. I love watching them and in the summer they quite often follow us up the beach if we are playing with the dogs. Rosina I am in Norfolk and the beach is Winterton where I live now having moved up from London about 10 years ago. In the summer we get lots of little terns which fly all the way from Africa to breed on our beach and also we get swifts which also come from Africa to breed. It is a beautiful place to live especially if you like wild life. We also have adders on the dunes so have to be careful with the dogs. Just had another ice lolly so feeling cool xx
I’m not sure what’s happening when I read the post lots aren’t there, then I post my message and see lots of messages.
I’m so sorry to hear about you and Veronica not being well, I had a virus on the first round and that was awful, fingers crossed this must get better for you both 🤞
Edinbird, I’m hanging on in there with my hair, not sure what I will do if I loose more, I think it’s one of the worse parts of this whole Barry cancer. I’m sure you will look fab what ever you wear xx
night Rosina, xx
you’ve sold it to me, I’m planning a trip to Swindon now 😂😂😂
Netti, I enjoyed my delay the last time too, gave me a glimpse of what life will be after Barry chemo !!
love the seals. Where is the beach?
Implausible you do make me laugh with your way with words.
Make over Ladies I am glad you enjoyed yourselves.
Edinbird the handybands from Seasalt are excellent. I can get them to cover my whole head.
I was asked at the hospital yesterday by another patient where I had got my head cover from, so I must be getting something right.
Goodnight , sleep tight,
Edinbird, we have to have it all!
Oh, by the way, I am now registered to receive job alerts for Edinburgh, for any position anywhere.
I am determined to see a huge change for us!
On TV: murder, she wrote, big bang, Murdoch mysteries, Ncis, the coroner, young Sheldon, Chicago fire.
Sandra! So sorry to hear that you are both poorly! you two really can't catch a break
Implausible, we catch everything else
Sandra I can’t believe Veronica now has another ailment to worry about... and you too. I really hope you can both rest and recover and come back stronger.
Sarah - thanks it’s my fault this time... it’s ok don’t worry. He’s getting a quiet evening I’ve just watched Christopher Robin (love Eeyore). Ordinarily I’d have had a glass of wine on a night like this but not these days!
Just been stressing about what to cover my bald patches with at dinner tomorrow... then I remembered I have a baker boy hat as my chemo cap with scarf is too big and covers my eyes too much. My balding patches are dreadful I just tried on a headband I have and it covers precisely nothing! I’m not giving up, caps for the next year I think! Need some more smart hats then (husband will be delighted 😂)
PPPS Seaside I used to detest parent /toddler groups too! I never fitted in with the other mums and had no idea how to make small talk with them. It was the same when I used to pick my kids up at the school gates. All the other mums chatting away and me stood there on my tod feeling awkward.
Eek. The closer this look good feel better thing gets the more worried I get that I'll be the nobby-no-mates again But at least by definition I've already got something rather major in common with everyone who will be there...
Thanks for the reassurance Susie. I'm sure I'll be fine when I get there. I'm just so rubbish at meeting new people.
Sandra! So sorry to hear that you are both poorly! you two really can't catch a break
LGFG session was good fun. Implausible if your session is anything like ours you won't be sat there have stuff lathered all over your face. Most of the cleansing and make-up was done ourselves after seeing it being demonstrated on a couple of willing volunteers. One of the ladies pencilled in one if my eyebrows and I did the other as they have got a bit thin and will no doubt disappear completely when I go onto T🤤. The goody bag is definitely worth going for💄👝 ☺. Will try and update tomorrow and catch up with all of today's posts. Have a lovely evening everyone.❤❤❤❤❤❤
Hi ladies, loads to read but I just wanted to send you all my love.
Veronica had to delay her Chemo because she caught a cough virus when she went to the clinic to draw some bloods.
She is going through a rough patch, doesn't want to go anywhere afraid of virus and then she gets this.
Apparently this virus is spreading quite quickly and it seems I caught it as-well.
I am still quite weak from the kidney removal and these things happen.
OK, as soon as I have a break I will be here reading.
Bless you all, take care.
I don't know, you lot, while I've been stuck behind a desk all day working on spreadsheets you've been:
Hobnobbing with deer and seals,
getting your make up did,
putting the world to rights with the soroptimists (sp?),
making new pals over a slice of cake and getting goodie bags,
and walking along glorious beaches?????
It's alright for some!
I just went out for a post work walk and saw a cargo train go past. Any good?
PS Nettie I'm glad you got some positives from your delay week. At least you know now that it won't take that long once all the chemo is over to get it out of your system and start to feel a little better and back to normal.... which is reassuring
PPS Edinbird tell your bestie from me to stop being so damn high maintenance! you could do without the hassle right now. It sounds like the kind of friendship I used to have with my old best friend. Me and she were crazy close but we also fought like siblings! Not healthy really!
Aw Daisy the seals are so cute! 😍 as is the deer 🦌 which I spotted (zoomed in waaay big 😂) have you been on the boats out to the sandbanks at Blakeney? We did years ago they are just like lines of fat sausages!
Been quiet today, husband is away again and was meant to see my friend but we had another falling out (won’t bore you) so cinema plans abandoned. Things are ok and I have films to watch here so just going to put a pizza in and do that. Tomorrow is scans at lunch and then my old boss and her husband (who used to be a Chief Inspector so I know him too) are visiting Edinburgh so just making dinner plans with them. Husband will get off the train in his suit and with a big bag and will have to be loaded and overdressed! Oh well... picking my way through menus for Italians going no, no, no... all the things I like are off limits!! Probably end up with a dull bolognese or something but can’t be too careful 😐
I’ve had a lovely day with the family completed for a change.
We went for a wonder to a country park this morning then an afternoon at Torquay.
Heard back from oncology, I have to go in early tomorrow for blood test to check levels again, I’m guessing it’s my Liver again as they said this morning my levels were too high, but that’s a pure guess
Hope you enjoyed the LGFB session, Susie. You look lovely.
Rosina, you do sound like you're suffering from fatigue my lovely. Well done for still getting out for a walk.
Fab photos again Ocean. Good job you escaped the dog fart!
Sonia did you hear back from the hospital yet?
Sarah I was like you, a bit out of my comfort zone going to the tea & cake meeting today. It reminded me of parent & toddler sessions which I didn't really enjoy. However today was a good way to network. I did meet some lovely ladies, one of whom is on the exact same regime as me so it was useful to have a chat. We've swapped numbers and will meet again. The same group also organise evening meetings where they have guest speakers and activities so it was a good way to find out what else is on offer in MK. I also got a goody bag which I was apparently meant to get when I had surgery.
that sounds right up my alley! And so worthwhile.......I'm ashamed to admit I've never heard it..but shall googling to find out more xxxx
Susie you look loverly! Thanks to all for your photos. My friend took some over the weekend so maybe just maybe I can work out how to get them on here. I ventured out in the car for the first time today to the local co-op and there was a woman in there coughing so much I put my jumper over my head. I bet security were worried. This is only day 9 so hopefully things are on the up. My worst problem this time is my mouth which is so sore and my tongue feels like it has been dipped in acid. Today I cant drink coffee for the first time and I have bought a big box of ice lollies which are my only relief. Sorry to hear that next sessions have been delayed for some of you. On a positive note I still have hair on head and everywhere else. Thank god there must be a positive for having hairy genes. And the sun is shining and it is warming up. Yay xxxxx
I think I can just see it, I can't make the photo any bigger unfortunately. It's so well camouflaged.
try to zoom in.
Then look at the second large tree trunk to the left . Count 2 smaller tree trunks that are along side it (practically stuck it seems on the right) the deer ( it’s young - no antlers- is standing next to them) . It was watching me.
Soroptimists is an international women's organisation a bit like Rotary. We raise money for charity, raise awareness about issues such as human trafficking, domestic violence, issues that affect women and girls. We work locally, nationally and Internationally. It's a good group to belong to, some of it is a bit boring mainly the business meetings, but we do a lot of fun things too. I was president about 7years ago, hard work.