PPPS Seaside I used to detest parent /toddler groups too! I never fitted in with the other mums and had no idea how to make small talk with them. It was the same when I used to pick my kids up at the school gates. All the other mums chatting away and me stood there on my tod feeling awkward.
Eek. The closer this look good feel better thing gets the more worried I get that I'll be the nobby-no-mates again But at least by definition I've already got something rather major in common with everyone who will be there...
Thanks for the reassurance Susie. I'm sure I'll be fine when I get there. I'm just so rubbish at meeting new people.
Sandra! So sorry to hear that you are both poorly! you two really can't catch a break
LGFG session was good fun. Implausible if your session is anything like ours you won't be sat there have stuff lathered all over your face. Most of the cleansing and make-up was done ourselves after seeing it being demonstrated on a couple of willing volunteers. One of the ladies pencilled in one if my eyebrows and I did the other as they have got a bit thin and will no doubt disappear completely when I go onto T🤤. The goody bag is definitely worth going for💄👝 ☺. Will try and update tomorrow and catch up with all of today's posts. Have a lovely evening everyone.❤❤❤❤❤❤
Hi ladies, loads to read but I just wanted to send you all my love.
Veronica had to delay her Chemo because she caught a cough virus when she went to the clinic to draw some bloods.
She is going through a rough patch, doesn't want to go anywhere afraid of virus and then she gets this.
Apparently this virus is spreading quite quickly and it seems I caught it as-well.
I am still quite weak from the kidney removal and these things happen.
OK, as soon as I have a break I will be here reading.
Bless you all, take care.
I don't know, you lot, while I've been stuck behind a desk all day working on spreadsheets you've been:
Hobnobbing with deer and seals,
getting your make up did,
putting the world to rights with the soroptimists (sp?),
making new pals over a slice of cake and getting goodie bags,
and walking along glorious beaches?????
It's alright for some!
I just went out for a post work walk and saw a cargo train go past. Any good?
PS Nettie I'm glad you got some positives from your delay week. At least you know now that it won't take that long once all the chemo is over to get it out of your system and start to feel a little better and back to normal.... which is reassuring
PPS Edinbird tell your bestie from me to stop being so damn high maintenance! you could do without the hassle right now. It sounds like the kind of friendship I used to have with my old best friend. Me and she were crazy close but we also fought like siblings! Not healthy really!
Aw Daisy the seals are so cute! 😍 as is the deer 🦌 which I spotted (zoomed in waaay big 😂) have you been on the boats out to the sandbanks at Blakeney? We did years ago they are just like lines of fat sausages!
Been quiet today, husband is away again and was meant to see my friend but we had another falling out (won’t bore you) so cinema plans abandoned. Things are ok and I have films to watch here so just going to put a pizza in and do that. Tomorrow is scans at lunch and then my old boss and her husband (who used to be a Chief Inspector so I know him too) are visiting Edinburgh so just making dinner plans with them. Husband will get off the train in his suit and with a big bag and will have to be loaded and overdressed! Oh well... picking my way through menus for Italians going no, no, no... all the things I like are off limits!! Probably end up with a dull bolognese or something but can’t be too careful 😐
I’ve had a lovely day with the family completed for a change.
We went for a wonder to a country park this morning then an afternoon at Torquay.
Heard back from oncology, I have to go in early tomorrow for blood test to check levels again, I’m guessing it’s my Liver again as they said this morning my levels were too high, but that’s a pure guess
Hope you enjoyed the LGFB session, Susie. You look lovely.
Rosina, you do sound like you're suffering from fatigue my lovely. Well done for still getting out for a walk.
Fab photos again Ocean. Good job you escaped the dog fart!
Sonia did you hear back from the hospital yet?
Sarah I was like you, a bit out of my comfort zone going to the tea & cake meeting today. It reminded me of parent & toddler sessions which I didn't really enjoy. However today was a good way to network. I did meet some lovely ladies, one of whom is on the exact same regime as me so it was useful to have a chat. We've swapped numbers and will meet again. The same group also organise evening meetings where they have guest speakers and activities so it was a good way to find out what else is on offer in MK. I also got a goody bag which I was apparently meant to get when I had surgery.
that sounds right up my alley! And so worthwhile.......I'm ashamed to admit I've never heard it..but shall googling to find out more xxxx
Susie you look loverly! Thanks to all for your photos. My friend took some over the weekend so maybe just maybe I can work out how to get them on here. I ventured out in the car for the first time today to the local co-op and there was a woman in there coughing so much I put my jumper over my head. I bet security were worried. This is only day 9 so hopefully things are on the up. My worst problem this time is my mouth which is so sore and my tongue feels like it has been dipped in acid. Today I cant drink coffee for the first time and I have bought a big box of ice lollies which are my only relief. Sorry to hear that next sessions have been delayed for some of you. On a positive note I still have hair on head and everywhere else. Thank god there must be a positive for having hairy genes. And the sun is shining and it is warming up. Yay xxxxx
I think I can just see it, I can't make the photo any bigger unfortunately. It's so well camouflaged.
try to zoom in.
Then look at the second large tree trunk to the left . Count 2 smaller tree trunks that are along side it (practically stuck it seems on the right) the deer ( it’s young - no antlers- is standing next to them) . It was watching me.
Soroptimists is an international women's organisation a bit like Rotary. We raise money for charity, raise awareness about issues such as human trafficking, domestic violence, issues that affect women and girls. We work locally, nationally and Internationally. It's a good group to belong to, some of it is a bit boring mainly the business meetings, but we do a lot of fun things too. I was president about 7years ago, hard work.
I am catching up on posts and your lovely photos have cheered me up ( especially the roses).
I feel like a muppet after that perfume episode last evening ( I have never done something like that before) and also posting to myself. I am loosing the plot.
I am typing this from my bed.
I have been for a walk too.
Saw a deer. Felt like I was sleep walking again so this must be fatigue????
For me it’s more mental though as I have done my yoga stretches , housework and I could have kept on walking.
My appetite is fine too.
Then again I am sleeping for England.
Love to all,
Jackson, pardon you sweetie, better out than in eh!
Marlyn and Sonia I’m keeping everything crossed that you aren’t delayed. Although, my week’s delay has meant I have actually found the energy to do some housework and walk into town in the last couple of days for the first time since chemo started so quite positive in that respect.
My chemo is tomorrow afternoon Marlyn.
Susie I hope your session went well. In this area you have to wait for months for a Look good course. I’m sure the next available one I could go on was after my chemo finishes. I hope it turns out to be worth the long wait. X
lol...yes, I've been a complete drama queen hypochondriac! Plus my lovely hubby does all the shopping and doesn't want me near germy people. If any of my residents are ill I wear a surgical mask, I'm almost tempted to wear rubber gloves too, but I think that would scare them, they would probably think I'm about to carry out some examinations on them...
also gobmacked that your work actually expects you to work...blimmin nerve! Don't they realise we need you too?? Xxx
The flowers are so beautiful Ocean 21, yes dog farts are awful, but our cat can be even worse, maybe that's usually because he is cwtching on my lap when he does it 😂.
Susie B how did the feel good session go, I have not got around to booking one yet. Mainly because the parking in the hospital is a nightmare and I have been doing the Moving forward course.
Marlyn yes I would recommend it I has been good to talk to others who like us have the same worries, hopes and fears. The sessions have been quite good in the main. Some have been easier to deal with than others. I found the one on being body aware and the counseling sessions the hardest. But then they were also probably the most important.
Sorry to hear some of you are having delays, but better than risking it if bloods not right.
I am going to go to my Soroptimist AGM tonight where we will be welcoming in our new President for the forthcoming year, followed by a meal. The members have been very supportive of me in the last months.
I hope you have a good day girls x.
First chance I've had to get on today as am in the office today and apparently they expect me to do actual work and not just sit around chatting to my Barry Buddies. The cheek!
Rosina - I hope you are feeling better today and have recovered from the perfume accident - I bet that stung!!
Marlyn - yup the steroids switch from only post chemo with FEC, to starting the day before with T. My onc says it is because people can have a bad allergic reaction to T, and having the steroids already in your system mitigates against that. Makes sense. I kind of enjoy the steroid part (they make me so much more assertive than I usually am, and full of energy - I kind of like feisty 'roid rage me )
Susie - the fringe might work better with a less stretchy hat, agreed, I use mine inside a cap and it stays put nicely.
MBJ - I do like the sound of the moving forward course (although maybe not the alternative medicine bit as I am not a big believer - I'd still find it interesting though) - but sadly I looked on the big long list and they don't seem to do one anywhere near me - closest is an hour away I might still try to do it anyway and hope work don't mind that it will take me out of action for 4 full mornings/afternoons including the travel time....
Glennherriot - not sure if you have popped in from one of the other monthly threads to give us some encouragement (in which case, thank you!), or if you are a February starter like us? If the latter, please let us know a little more about yourself and how you have got on the past couple of months. We've all had varied experiences of chemo so far and it is always really interesting to hear different experiences.
Trixielady - great to hear from you. Glad you are getting on well treatment wise and that you got to spend some time with your brother. Hope your niece is recovering well x
Daisydi sorry to hear you are having such a rough time this time around - hopefully those Barrying side effects are starting to lift now?
Seaside - hope your tea and cake event is fun and you meet some nice people. My local hospital has a monthly coffee morning for breast cancer peeps - I found out about it the other day when I was googling looking to see if anyone does art therapy around here (sadly, no). I've never considered myself the "coffee morning" type, but depending on how you get on today, maybe I should consider popping along? This is going to sound really awful, and I don't mean it to!! But I'm not used to socialising with "normal people" All my friends are either comic book nerds, graffiti artists or hockey nuts. But maybe I should push myself out of my comfort zone a little
Marlyn (again) - how have you managed to avoid Tesco all this time???? I am literally in mine every day! As the kids are flipping useless at telling me what we are running out of..... I'm less worried about germs at the shops than I am here at work - all I can hear around the building is coughs and sneezes! Luckily the worst afflicted know they need to keep their distance from me....
Sonia - fingers crossed re your bloods - I hope you don't have a delay
Susie - looking good already! enjoy your Look Good Feel Better thing - mine is tomorrow - I'm oddly nervous (terrifed!) about it. I'm not one for "pampering" and have never been to anything remotely like it before.
Ocean - beautiful flowers!! <3
and yes it looks like the damage to ND is a lot less than it could have been - what a relief - and as you say, what heroes the firefighters were to hold the fire back as well as they did. I do hope nobody has been injured or worse, I've only seen the news mention damage to the building so I presume not?
Right - I'd better get back to work!!
love to all
Hey there beauties,
Rosina hope that your eyes and face have recovered.
Reading your sagas with blood levels I feel very lucky so far. The things I have high levels for haven’t stopped treatment although I worry about them. My liver is pretty stressed and my cholesterol is slight above normal limits. GP says not to worry but you do don’t you.
Marlyn, well done with your Mission Impossible moves through a Tesco’s. When we go shopping ,I don’t like touching the trolley handles. We went to the cash point the other day and the keypad was foul. Before chemo I bought loads of hand disinfectants and wipes, I’ve got them all over the house, in the car and in various bags. So they get well used.
Trixielady , nice to see you pop in and update us. Hope you and all the family is doing as well as you can given the circumstances.
Commiserations for all who’ve had treatment delayed. A frustration when we all just want this over and done with.
Weather here is lovely. Don’t what it’s like in Paris. The Notre Dame is a shocker. I haven’t caught up with the latest news but will do tonight. The damage is to the roof and the spire mainly. The firemen and women are heroes for managing to contain it the way they have. rebuild costs are going to be huge but would have been astronomical had the damage got to the main building and towers.
Got someone helping in the garden today , so a very happy bunny indeed.
Jackson, the canine destroyer has just let rip one of his silent but deadly farts so a good time to get outside again ))
Love and big hugs to you all.
Sorry chemo mix up brain Rosina I may be delayed with you, just waiting, fingers crossed Marilyn yours goes ahead XX
Sorry chemo mix up brain Rosina I may be delayed with you, just waiting, fingers crossed Marilyn yours goes ahead XX
Hope this works. Me before Look Good Feel Better Session
Sorry chemo mix up brain Rosina I may be delayed with you, just waiting, fingers crossed Marilyn yours goes ahead XX
had my bloods yesterday for tomorrow’s chemo. Heard nothing so took my steroids this morning, then thought I’d double check as had to delay last time, rang ward and one of my Levels are higher than they want so getting dr to check and I have to wait for call back 😣
Trixielady happy to hear your still
Coping, as much as anyone can.
Marilyn we may be delayed together x
Rosina, that’s so like me at the moment, and that’s what my daughter would say.
Glennherriott welcome to this lovely group x
Nettitnoo, Notre Dame is awful to watch xx
Rosina, you made me titter again love, your daughter sending you to bed...priceless xx
mbj, I'm in two about the moving forward course, do you think it's helping in any way? Xx
trixielady, your having a tough old time Hun, praying it all gets better. I'm having the herceptin 3 weeks after my last chemo, still find it interesting how it all differs from person to person....any after effects? Xx
nettinoo, is it today your chemo 3? I thought it was tomorrow....I'm cycle 4 Thursday ( bloods willing) good luck love xx
seadside, I know what what you mean ref visitors at night, sleep is a struggle at the best of times.....I just ban them after 5 pm....in fact for my niece and 3 children are visiting on Easter Monday, I've got chemo this Thursday....so god knows how I'm going to feel, on past performance I'm not good for a week! Wish she wasn't coming but feel mean telling her not to come....xx
glennherriott, welcome Hun, tell us about yourself xxx
well, get me! Today I actually went to our local Tesco ( first time since chemo began) I was a bit like a ninger elite soldier, tiptoeing in, looking around me, listening for coughs and sneezing and giving anyone who looked even remotely dodgy a very wide birth......came out with some socks and a pair of slippers....mission accomplished! Phew!!
looked after yourselves everyone, your all very precious to me xxxx
Good morning beauties,
Lovely to hear from you Trixielady. Hope you continue to be OK after your treatments. Take care xx
Good luck for treatment today Nettie. Hope it all goes well xx
Thank you for popping in glennherriott. Yes, we can!
Couldn't believe the news about Notre Dame. So sad.
I had some friends over last night who stayed quite late. This followed by a rubbish night's sleep has left me feeling really tired today. I'm still intending to go for tea and cake this aftenoon though and meet some other people from around here going through treatment.
Hope the day is kind to you all.
Read my post back and realised it wasn't very clear as to what I was replying to. My trial is to see if chemo can indeed be reduced from 8 to 6 down to 4 sessions. If the FEC hadn't worked to my onc's expectations then I would have gone onto TC for 4 sessions☹ prior to surgery. That's the risk I was prepared to take. Hope this makes more sence. xxx
Glad to hear you're ok. Lots to catch up on here! As I discovered the other day it can be like reading a novel📖. Take care. Sending you hugs❤❤❤❤❤❤❤❤
Trixielady so happy to see your post and know you are ok. Well as ok as any of us can be! I know how it is to have family at a distance. My brother has lived in Asia for over 20 years but thank goodness for facebook, instagram, video calls etc.
Rosina, omg, your poor eyes. I can totally see me doing something like that though. I’m just so distracted all the time, doing things then not remembering if I’ve done them or not. It’s quite scary really. I had my bloods done yesterday and no call from hospital so looks like chemo 3 on for tomorrow. Delay of treatment is a right pain in the Barry Rosina but a necessary annoyance I suppose.
Seeing Notre Dame up in flames was so upsetting. 😥. I hardly dare look at the news updates on it.
Daisydi sorry to hear you are struggling with the side effects. I hope they pass soon. Big hugs darling.
Anyone else having chemo this week? Xxx
Ps Did I see a new name pop up? Glennherriott was it? Hi there and welcome. Xx
Just a quick check in My brother has been up for the weekend from Leighton buzzard to support us and himself its awful living so far away from each other at times like this.
I had my first herceptin injection today nothing to report so far xx
Had Paclitaxel instead of T lucky for me nothing to report tonight on that score either 😀🤔 haven't read back over yet so sending big hugs and positive thoughts to you all my lovelies, come on keep plodding on xx night night ,hope i can sleep tonight xx
Well week three of the Moving Forward course, more tears and laughter again. First session was on counseling, she was very good and some of it was hard I have to say. Second session was on alternative therapies. I had great hopes for this session but was not so good bit of hand massage and tuning forks? don't think I will be ordering one from Amazon Prime!. Always feel tired after the sessions I think it's all the emotions. One more to go a week Monday.
I can see from your posts that some of you have had better days than others.
I hope Tuesday is kind to everyone x
I have just gone and sprayed perfume instead of rose water in my face. Picked up the wrong bottle from my daughter’s swim bag.
Boy it stank and stung.
My daughter has told me to go to bed and get some sleep.
I give up !!!
I'm working on it. That's partly what my trial is about but just for people with HER2, aggressive grade 3 tumour, minimum 20mm (mine was 21 x 18) requiring chemo prior to surgery, plus a few other criteria. It makes you realise just how long a trial can take. Mine had been going for a few years and is at stage 3 where they will be trialing 1056 people. xx
Re. Notre Dame: I know Implausible, apparently renovations were taking place and foul play is not suspected. Go figure or believe what you wish.
Regarding steroids they are just for the T, to be taken the day before chemo and on the day itself. Amongst other things the blood test is to check liver function. Even though I've finished my course of chemo, for now, I still have to be tested in a couple of weeks for that💉☹.
Tried one of my fringes today with a bandanna which I have worn around the house all day .Just need to get it more central which is a bit difficult when the headgear is quite stretchy. Need to try them with my chiffon scarves that have an inner less stretchy soft cap.
Still nothing from Trixielady. I hope she's ok.
Enjoy the rest of the evening. xxxxxx
Thanks Rosina! Good to know....also read somewhere that chemo used to be in 8 cycles....thank the Barry it's 6 .....shame it can't be lowered again....maybe In years to come it will be?? Xxx
Magic Roundabout😃🤔. Fond memories of late 70s and early 80s. Thanks Edinbird. Brilliant piece of artwork in the making. xx
Hi Marlyn (brain focus- me talking to self),
steroids are taken in advance of the T (Docetaxel) drug.
This is not the case with EC when they are taken afterwards.
The oncologist explained that the high steroid dose prior to T is to minimise the side effects. It continues during the dose day and the following day.
Hi Implausible ,
at was at the hospital for 7.50 , blood test was done by 8.25. Saw the oncologist at 9.15 and told her everything was fine so we were going ahead.
The oncologist said that on T the nausea isn’t the big problem it is more the aching muscles and joints ( paracetamol and ibuprofen are permitted if it is really uncomfortable ) Blood test results didn’t come in till 12.40 so then they were trying to contact me at home and on my mobile .
They did get hold of me or at least a lovely secretary did. She couldn’t tell me exactly what the problem was with my blood test result , only that it didn’t meet ‘expected protocol levels ‘ hence one week delay. The good thing is I don’t take the steroids tomorrow.
It does take you by surprise when you are feeling well , next time I will look more carefully at what the blood test paper says as apart from white blood cell count they were also checking something to do with the liver and there was a 3rd item which I cannot remember.
Anyway I had my walk behind the hospital and my reiki. Then I caught the bus home.
I hope I don’t have any further delays. Hey ho
Evening all, looks like you are all plodding along nicely. Me Im totally fed up! I think I have had every side effect listed with this 3rd dose and I really dont think I could tolerate another one. Just hope the T part is a bit kinder to me. Ive even had to resort to sucking ice lollies today and I didnt think that was meant to come until the T part ....
Seaside, my oncologist will have the results by the time of my next appointment 3 rd may......just hope I won't have to take the bio phosphates as they come with their own wee side effects...
also, why are some of you taking steroids a few days leading up to chemo? I only take them for 3 days ( including chemo day) not that I'm feeling left out or anything, they bung me up! Xxx