First chance I've had to get on today as am in the office today and apparently they expect me to do actual work and not just sit around chatting to my Barry Buddies. The cheek!
Rosina - I hope you are feeling better today and have recovered from the perfume accident - I bet that stung!!
Marlyn - yup the steroids switch from only post chemo with FEC, to starting the day before with T. My onc says it is because people can have a bad allergic reaction to T, and having the steroids already in your system mitigates against that. Makes sense. I kind of enjoy the steroid part (they make me so much more assertive than I usually am, and full of energy - I kind of like feisty 'roid rage me )
Susie - the fringe might work better with a less stretchy hat, agreed, I use mine inside a cap and it stays put nicely.
MBJ - I do like the sound of the moving forward course (although maybe not the alternative medicine bit as I am not a big believer - I'd still find it interesting though) - but sadly I looked on the big long list and they don't seem to do one anywhere near me - closest is an hour away I might still try to do it anyway and hope work don't mind that it will take me out of action for 4 full mornings/afternoons including the travel time....
Glennherriot - not sure if you have popped in from one of the other monthly threads to give us some encouragement (in which case, thank you!), or if you are a February starter like us? If the latter, please let us know a little more about yourself and how you have got on the past couple of months. We've all had varied experiences of chemo so far and it is always really interesting to hear different experiences.
Trixielady - great to hear from you. Glad you are getting on well treatment wise and that you got to spend some time with your brother. Hope your niece is recovering well x
Daisydi sorry to hear you are having such a rough time this time around - hopefully those Barrying side effects are starting to lift now?
Seaside - hope your tea and cake event is fun and you meet some nice people. My local hospital has a monthly coffee morning for breast cancer peeps - I found out about it the other day when I was googling looking to see if anyone does art therapy around here (sadly, no). I've never considered myself the "coffee morning" type, but depending on how you get on today, maybe I should consider popping along? This is going to sound really awful, and I don't mean it to!! But I'm not used to socialising with "normal people" All my friends are either comic book nerds, graffiti artists or hockey nuts. But maybe I should push myself out of my comfort zone a little
Marlyn (again) - how have you managed to avoid Tesco all this time???? I am literally in mine every day! As the kids are flipping useless at telling me what we are running out of..... I'm less worried about germs at the shops than I am here at work - all I can hear around the building is coughs and sneezes! Luckily the worst afflicted know they need to keep their distance from me....
Sonia - fingers crossed re your bloods - I hope you don't have a delay
Susie - looking good already! enjoy your Look Good Feel Better thing - mine is tomorrow - I'm oddly nervous (terrifed!) about it. I'm not one for "pampering" and have never been to anything remotely like it before.
Ocean - beautiful flowers!! <3
and yes it looks like the damage to ND is a lot less than it could have been - what a relief - and as you say, what heroes the firefighters were to hold the fire back as well as they did. I do hope nobody has been injured or worse, I've only seen the news mention damage to the building so I presume not?
Right - I'd better get back to work!!
love to all
Hey there beauties,
Rosina hope that your eyes and face have recovered.
Reading your sagas with blood levels I feel very lucky so far. The things I have high levels for haven’t stopped treatment although I worry about them. My liver is pretty stressed and my cholesterol is slight above normal limits. GP says not to worry but you do don’t you.
Marlyn, well done with your Mission Impossible moves through a Tesco’s. When we go shopping ,I don’t like touching the trolley handles. We went to the cash point the other day and the keypad was foul. Before chemo I bought loads of hand disinfectants and wipes, I’ve got them all over the house, in the car and in various bags. So they get well used.
Trixielady , nice to see you pop in and update us. Hope you and all the family is doing as well as you can given the circumstances.
Commiserations for all who’ve had treatment delayed. A frustration when we all just want this over and done with.
Weather here is lovely. Don’t what it’s like in Paris. The Notre Dame is a shocker. I haven’t caught up with the latest news but will do tonight. The damage is to the roof and the spire mainly. The firemen and women are heroes for managing to contain it the way they have. rebuild costs are going to be huge but would have been astronomical had the damage got to the main building and towers.
Got someone helping in the garden today , so a very happy bunny indeed.
Jackson, the canine destroyer has just let rip one of his silent but deadly farts so a good time to get outside again ))
Love and big hugs to you all.
Sorry chemo mix up brain Rosina I may be delayed with you, just waiting, fingers crossed Marilyn yours goes ahead XX
Sorry chemo mix up brain Rosina I may be delayed with you, just waiting, fingers crossed Marilyn yours goes ahead XX
Hope this works. Me before Look Good Feel Better Session
Sorry chemo mix up brain Rosina I may be delayed with you, just waiting, fingers crossed Marilyn yours goes ahead XX
had my bloods yesterday for tomorrow’s chemo. Heard nothing so took my steroids this morning, then thought I’d double check as had to delay last time, rang ward and one of my Levels are higher than they want so getting dr to check and I have to wait for call back 😣
Trixielady happy to hear your still
Coping, as much as anyone can.
Marilyn we may be delayed together x
Rosina, that’s so like me at the moment, and that’s what my daughter would say.
Glennherriott welcome to this lovely group x
Nettitnoo, Notre Dame is awful to watch xx
Rosina, you made me titter again love, your daughter sending you to bed...priceless xx
mbj, I'm in two about the moving forward course, do you think it's helping in any way? Xx
trixielady, your having a tough old time Hun, praying it all gets better. I'm having the herceptin 3 weeks after my last chemo, still find it interesting how it all differs from person to person....any after effects? Xx
nettinoo, is it today your chemo 3? I thought it was tomorrow....I'm cycle 4 Thursday ( bloods willing) good luck love xx
seadside, I know what what you mean ref visitors at night, sleep is a struggle at the best of times.....I just ban them after 5 pm....in fact for my niece and 3 children are visiting on Easter Monday, I've got chemo this Thursday....so god knows how I'm going to feel, on past performance I'm not good for a week! Wish she wasn't coming but feel mean telling her not to come....xx
glennherriott, welcome Hun, tell us about yourself xxx
well, get me! Today I actually went to our local Tesco ( first time since chemo began) I was a bit like a ninger elite soldier, tiptoeing in, looking around me, listening for coughs and sneezing and giving anyone who looked even remotely dodgy a very wide birth......came out with some socks and a pair of slippers....mission accomplished! Phew!!
looked after yourselves everyone, your all very precious to me xxxx
Good morning beauties,
Lovely to hear from you Trixielady. Hope you continue to be OK after your treatments. Take care xx
Good luck for treatment today Nettie. Hope it all goes well xx
Thank you for popping in glennherriott. Yes, we can!
Couldn't believe the news about Notre Dame. So sad.
I had some friends over last night who stayed quite late. This followed by a rubbish night's sleep has left me feeling really tired today. I'm still intending to go for tea and cake this aftenoon though and meet some other people from around here going through treatment.
Hope the day is kind to you all.
Read my post back and realised it wasn't very clear as to what I was replying to. My trial is to see if chemo can indeed be reduced from 8 to 6 down to 4 sessions. If the FEC hadn't worked to my onc's expectations then I would have gone onto TC for 4 sessions☹ prior to surgery. That's the risk I was prepared to take. Hope this makes more sence. xxx
Glad to hear you're ok. Lots to catch up on here! As I discovered the other day it can be like reading a novel📖. Take care. Sending you hugs❤❤❤❤❤❤❤❤
Trixielady so happy to see your post and know you are ok. Well as ok as any of us can be! I know how it is to have family at a distance. My brother has lived in Asia for over 20 years but thank goodness for facebook, instagram, video calls etc.
Rosina, omg, your poor eyes. I can totally see me doing something like that though. I’m just so distracted all the time, doing things then not remembering if I’ve done them or not. It’s quite scary really. I had my bloods done yesterday and no call from hospital so looks like chemo 3 on for tomorrow. Delay of treatment is a right pain in the Barry Rosina but a necessary annoyance I suppose.
Seeing Notre Dame up in flames was so upsetting. 😥. I hardly dare look at the news updates on it.
Daisydi sorry to hear you are struggling with the side effects. I hope they pass soon. Big hugs darling.
Anyone else having chemo this week? Xxx
Ps Did I see a new name pop up? Glennherriott was it? Hi there and welcome. Xx
Just a quick check in My brother has been up for the weekend from Leighton buzzard to support us and himself its awful living so far away from each other at times like this.
I had my first herceptin injection today nothing to report so far xx
Had Paclitaxel instead of T lucky for me nothing to report tonight on that score either 😀🤔 haven't read back over yet so sending big hugs and positive thoughts to you all my lovelies, come on keep plodding on xx night night ,hope i can sleep tonight xx
Well week three of the Moving Forward course, more tears and laughter again. First session was on counseling, she was very good and some of it was hard I have to say. Second session was on alternative therapies. I had great hopes for this session but was not so good bit of hand massage and tuning forks? don't think I will be ordering one from Amazon Prime!. Always feel tired after the sessions I think it's all the emotions. One more to go a week Monday.
I can see from your posts that some of you have had better days than others.
I hope Tuesday is kind to everyone x
I have just gone and sprayed perfume instead of rose water in my face. Picked up the wrong bottle from my daughter’s swim bag.
Boy it stank and stung.
My daughter has told me to go to bed and get some sleep.
I give up !!!
I'm working on it. That's partly what my trial is about but just for people with HER2, aggressive grade 3 tumour, minimum 20mm (mine was 21 x 18) requiring chemo prior to surgery, plus a few other criteria. It makes you realise just how long a trial can take. Mine had been going for a few years and is at stage 3 where they will be trialing 1056 people. xx
Re. Notre Dame: I know Implausible, apparently renovations were taking place and foul play is not suspected. Go figure or believe what you wish.
Regarding steroids they are just for the T, to be taken the day before chemo and on the day itself. Amongst other things the blood test is to check liver function. Even though I've finished my course of chemo, for now, I still have to be tested in a couple of weeks for that💉☹.
Tried one of my fringes today with a bandanna which I have worn around the house all day .Just need to get it more central which is a bit difficult when the headgear is quite stretchy. Need to try them with my chiffon scarves that have an inner less stretchy soft cap.
Still nothing from Trixielady. I hope she's ok.
Enjoy the rest of the evening. xxxxxx
Thanks Rosina! Good to know....also read somewhere that chemo used to be in 8 cycles....thank the Barry it's 6 .....shame it can't be lowered again....maybe In years to come it will be?? Xxx
Magic Roundabout😃🤔. Fond memories of late 70s and early 80s. Thanks Edinbird. Brilliant piece of artwork in the making. xx
Hi Marlyn (brain focus- me talking to self),
steroids are taken in advance of the T (Docetaxel) drug.
This is not the case with EC when they are taken afterwards.
The oncologist explained that the high steroid dose prior to T is to minimise the side effects. It continues during the dose day and the following day.
Hi Implausible ,
at was at the hospital for 7.50 , blood test was done by 8.25. Saw the oncologist at 9.15 and told her everything was fine so we were going ahead.
The oncologist said that on T the nausea isn’t the big problem it is more the aching muscles and joints ( paracetamol and ibuprofen are permitted if it is really uncomfortable ) Blood test results didn’t come in till 12.40 so then they were trying to contact me at home and on my mobile .
They did get hold of me or at least a lovely secretary did. She couldn’t tell me exactly what the problem was with my blood test result , only that it didn’t meet ‘expected protocol levels ‘ hence one week delay. The good thing is I don’t take the steroids tomorrow.
It does take you by surprise when you are feeling well , next time I will look more carefully at what the blood test paper says as apart from white blood cell count they were also checking something to do with the liver and there was a 3rd item which I cannot remember.
Anyway I had my walk behind the hospital and my reiki. Then I caught the bus home.
I hope I don’t have any further delays. Hey ho
Evening all, looks like you are all plodding along nicely. Me Im totally fed up! I think I have had every side effect listed with this 3rd dose and I really dont think I could tolerate another one. Just hope the T part is a bit kinder to me. Ive even had to resort to sucking ice lollies today and I didnt think that was meant to come until the T part ....
Seaside, my oncologist will have the results by the time of my next appointment 3 rd may......just hope I won't have to take the bio phosphates as they come with their own wee side effects...
also, why are some of you taking steroids a few days leading up to chemo? I only take them for 3 days ( including chemo day) not that I'm feeling left out or anything, they bung me up! Xxx
Marlyn, when will you get the results from your bone scan?
I know what you mean about ginger. I made the mistake of telling people I liked it during cycle 1 and guess what? I've been inundated with ginger tea, ginger biscuits, ginger everything. I can't even look at the stuff now! 😝
Oh Rosina that's annoying for you. Very frustrating, I know. At least the weather is meant to be beaut this weekend so hopefully you can make the most of it. I'm fully expecting my chemo which is due next week to be delayed again as my neutrophils were low the last 2 cycles so why would this one be any different?
Sarah your comic is looking amazing!
I'm getting on with my crochet project but it's gone a little bit wrong! The pattern tells me it's meant to measure 12.5cm diameter but I seem to be 2cm short. Oh well, who's checking anyway 😂
Marlyn I'm glad your bone scan went smoothly, and fingers crossed for your bloods!
Rosina it is such a pain you have been set back a week really feel for you. I hope it doesn't mess up your plans too much
I am dreading a delay on number 4 in particular. Not only because it would nobble my trip to Edinburgh. But also because, cos of the Easter weekend, I'm having my bloods on chemo morning for once instead of the day before. So if it is delayed I will already have taken 3 lots of steroids for nothing :/
There doesn't seem to be much rhyme or reason to it. You feel fine and healthy just like Seaside did the time she was delayed
Yet we have had ladies feeling totally grotty but their neutrowotsits were fine and dandy. :/
Only thing I can offer to cheer you up is that your walks are still much nicer than mine
I have just walked past Swindon footie ground:
And the equally attractive, and world famous, magic roundabout:
Before my walk though I made some decent progress on page 4 of my little comic. Be warned, nipples!
It is like a montage page of how their evening progressed. Quite well, as you can see
Catch you all later x
Hi Rosina, joking apart I'm sorry your chemo has been delayed, as you say it's a bummer. It all means that planning ahead is so difficult at times☹. Love the photos of your walk, it all looks very pretty and interesting. Around here wellies are often the required footwear.
sorry its being delayed but you're right, we need our bloods to be up for it, I will find out on wed, must admit I will be gutted if mines gets delayed...but we need to be as "healthy" as possible....xxx
I have just been told that my dose 4 will not happen this Wednesday.
Something in my blood is not at the level where the protocol wants it.
Back here next week for blood test on Tuesday and dose 4 on April 25th instead.
Bit of a bummer as I am feeling fine but good to know that they are sticklers here and they follow the rules.
just back from my bone scan, was relieved to find it straight forward, although they did scan my left thigh twice which I find interesting as that's the thigh that gives me gip....wonder if they picked anything up??? Didn't ask as I like to hoof it after treatments, scans, appointments etc...
funny a couple of you mention tastes...I now can't stand the thought of anything ginger related and I'm certain it's because during my first three cycles I drank ginger water and ate ginger biscuits and sucked ginger sweets.....can't go anywhere near the stuff now!
well, its cycle 4 this thurs ( bloods willing) and I'm still gobsmacked at how quickly it's going.....wow....bloody Barry wow......
And sisters.....remember I bloody love you all! Where would I be without you lot......xxxx
I have my LGFB session Wednesday afternoon this week. I will definitely go bare faced. I can't be fussed with putting on a face full of make up just for them to wipe it all off again as soon as I get there!
You should be able to do as much or little as you like Susie, the lady next to me was about to go and see her oncologist because her skin was quite red and they didn’t want her to put anything on it before the appointment so she skipped a lot of it and just did the eyes and lips. All the products are chosen for chemo skin but I found the moisturiser a little much (I generally do I hardly ever bother) and there was no consideration for the hormonal breakouts I still get around my jawline. It has to be very generic. You’ll be fine xx
I’ll look at the trials site thank you 😊
Thanks for the info regarding the Feel Good session. If they do the face cleanse on me I'll have to ask them not to use toner as it's too drying on my skin for some reason. As promised regarding your onc telling you there may not be a dramatic change in your tumour at the momment, you may find it useful to go to the Cancer Research UK website, click on the Research & Clinical trials, enter ROSCO in the trial type, press search then click on cancer type Breast cancer. I won't go into detail but I'm on the trial and it may help you understand why some people seem to be responding to treatment in different ways. Hope this helps. Like you I don't like not knowing either. For me it's not knowing whether I'm HER2 positive or negative and I won't know until after surgery. Just wish they'd done a second biopsy prior to chemo to try and confirm. Still onwards and upwards as they say. Take care xxxxx
Susie I'm exactly the same with sandwiches. Even thinking about them makes me want to heave. All because they serve them during treatment and I had a particularly limp cheese and tomato sarnie the time before last - never again!
Glad you asked about whether to wear make up to the workshop. I was wondering the same thing. Probably won't bother.
I've got a really busy week with lots of school friends visiting me because they're all on their Easter holiday. Am also going to a breast cancer tea & cake meeting tomorrow. It's no art therapy but I think it's MK's answer to supporting people going through treatment.
Just made some banana muffins for today's visitors. Will be chatting to my counsellor at lunchtime, then 2 lots of visitors so I may not reappear on here until much later.
Have a good day everybody xxx
"You have one week. You must be out in 3 hours"
Sometimes a really bad movie can be a lot of fun
Susie I couldn't sleep last night either. Thought I would be out like a light after all that walking! I finally dozed off around 2 but then woke up bright as a daisy at 6am. And no builder or work today so I totally could have had a lie in! Oh well.
Funny you should mention going off sarnies. I mentioned to my other half yesterday that I hope chemo doesn't ruin jacket potatoes for me. They bring me a jacket spud with cheese and beans mid way through each treatment. They always go down a treat but I wonder if for the rest of my life I will associate jackets with chemo? I hope not.
Edinbird I am much the same as you, in the first few days after treatment my taste buds go a little weird but most food still tastes the same and for weeks 2 and 3 I'm pretty much back to normal. But I am hungry all the time!! I almost wish I would go off some foods to stop me wanting to eat constantly
Have a good Monday all. I am not back at work till tomorrow so I have a morning of painting and then this afternoon I'm going to go and see Shazam at the movies.
Susie wear whatever makeup you want to the session - first thing they do is a complete cleanse. The demonstrated the eye makeup remover on me and I never wear any. I just put on concealer before I went. They do eye makeup remover then cleanse then tone then moisturise and then you do all the makeup.
Make sure you show us your results! I feel really sorry for everyone who is struggling with food... I have an occasional aversion for tea (that I make, more often that my husband makes but never ever do I have a problem with my friend’s!) and then there’s the burning caused by any form of chilli but that’s it! Can’t stop me eating otherwise! I’m back on the heart pills this morning... feeling apprehensive but on a half dose so hopefully it will all be ok now.
Have a lovely Monday ☀️🌈
Sorry Ocean21 Nollywood morphed into Hollywood. Let's try again. Barrying predictive text thinks I can't spell again.
Well just gone through another night of less than 5 hours sleep😴☹. No matter what time I go to bed I wake up at 4:10 for some strange reason. Wonder what miracles Look Good session can do for me tomorrow? Talking of which, those of you that have attended one, did you wear make up there? It's only that I'll have the gaunt look as a result of the Filisgram injections and don't want to turn up looking like a ghost👻. Totally different subject on the food front I have definitely gone completely off sandwiches to the point that when Paul took some bread out to make a late night cheese sarnie🍞🧀. I almost gagged and had to leave the kitchen🤢. Bless him he came into the living room with 2 biscuits instead🍪. I think it's come about as during each chemo session they serve sandwiches and they've tasted worse as time has passed by. The joys of chemo. Paul told his sister last night about my diagnosis. It's coming to the time year when her and her husband will pop in when going to craft fairs and antique fairs in the West Country. She was understandably shocked, followed by why didn't we tell her earlier etc she would have come to help. Paul just told her there was nothing to help with and that he was now an expert with the iron. In his usual calm manner he explained what treatment I'd so far and all the positives to come. I think she was ok after that.
Ocean21 love the piece about the Hollywood film, it did make me laugh last night😀. Thank you. I showed Paul the area you are living in and it was case of oh I've been that way we stayed in Cognac one night on our way to Tolouse - work related - and I had to have a cognac in Cognac🥃☺..
Sonia28 did you ask where Paul was living in Plymouth? He was born there and his parents were at RAF Colington Cross (not sure if spelt it right) but they moved to Norfolk when he was about 4 years old. He still knows quite a bit about the area though, he recognised Noss Mayo.
Sorry I can't remember who's got chemo this week so I'll just say that I'll be thinking of you all. I can't believe how quickly my 4 sessions went and that I feel a little guilty that for now I have a very welcome break from it all. Have a good day everyone. Will drop by later. ❤❤❤❤
Thanks all. Glad to know you’d do the same in my situation with granddaughter. Her account is set to private . She’s so innocent,It would never occur to her to be suspicious. I don’t even like them doing sleep overs but I get told I’m over cautious.
Three of the men following my granddaughter were overseas,in Brazil, US and India to be precise. Some of the other profiles I found could also be overseas but it was harder to tell.
Facebook . initially I signed up to it to make sure that I knew what my kids were up to and to make sure I knew the kinds of people they were mixing with. I’m still on it but I probably use Instagram more because it’s a more visual medium and as you might have noticed I love taking photographs
Im in bed relaxing now. Going to watch a Nollywood ( Nigerian equivalent of Bollywood )movie They’re mostly dreadful but quite addictive in a way . Hadn’t watched one in ages and a couple of days ago watched a ridiculously long one called The Humble Servant. In Nollywood films overacting it’s a requirement and so are terrible film scripts , bad editing and odd choices in music. I find them quite fun .
There was a scene in The Humble Servant where the dad got his lawyer to come to the house to serve notice to quit papers to his son and his wife. The lawyer made a great show of taking a couple of sheets of paper out of a briefcase that clearly only had those two bits of paper in it. He then delivered these memorable lines “These papers are your notice to quit this house. You have one week , you must be out in three hours.’ Cue dramatic music and stratospheric overacting.
On that note rest well all , the joys of Nollywood await.
you are certainly doing right by your granddaughter. When mine got Instagram they thought the idea was to get the most followers,I also had their passwords so knew very quickly that this had happened to explained to them it’s not the idea. I dont
think they have the understanding of what the bigger picture could lead too at that age.
That farm looks great! We could even tie it in with a trip to the ice hockey if our timing is right 😂🤣 Cardiff Devils have just won the playoffs 😁