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Registered: β€Ž25-11-2017

Re: December 2017 Chemo Starters

Kirsty had no 5 yesterday the same as you but carbaplatin as well x
Member
Posts: 248
Registered: β€Ž22-11-2017

Re: December 2017 Chemo Starters

It's horrible getting every side effect in the book isnt it! Cycle 5 was def the worst. Im hoping cycle 6 is not as bad but if it is then just need to get thru the 10 horrible days then hopefully come out the other side

Ill keep you updated with surgeon meeting tuesday

Hugs to everyone suffering xx
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Posts: 193
Registered: β€Ž07-11-2017

Re: December 2017 Chemo Starters

Runawaygirl - I could have written that post myself. Round 5 for me has been the worst. I feel like I have had every side effect this time and my body literally cannot take much more. I’m Day 9 post treatment and I’m still feeling rotten. No taste, no appetite, just all round meh!
I honestly don’t know how I’m going to drag myself to the last one to do it all over again???

Kirsty - well done for finally getting there!! Let us know how it goes and hope the meeting with the surgeon goes ok!! Smiley Happy

Xx
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Registered: β€Ž22-11-2017

Re: December 2017 Chemo Starters

What one are you on now cathsin? Im dreading the next week on this final docetaxol herceptin and perjeta πŸ™ˆ x
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Posts: 145
Registered: β€Ž25-11-2017

Re: December 2017 Chemo Starters

Fab news Kirsty the last one. Not looking forward to the next couple of weeks as it seems to be a bad one to expect from what I am reading. Hope you are all on the up soon x
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Posts: 248
Registered: β€Ž22-11-2017

Re: December 2017 Chemo Starters

Thanks rabbit! I have meds for pain this time snd booked next week off work in preparation of being floored lol

Oh not too far tho and number 4 over half way thru! The end is near.

I have meeting with surgeon and oncologist next tues so hear more about surgery soon! Scary xx
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Registered: β€Ž20-09-2017

Re: December 2017 Chemo Starters

Well done Kirsty, the end has finally arrived for you, hope you have a better time with the side effects this time. 

 

I'm well behind the rest of you know with cycle 4 looming next week, still I'll get there in the end!! xx

Member
Posts: 248
Registered: β€Ž22-11-2017

Re: December 2017 Chemo Starters

Bloods ok and number 6 going ahead xx
Member
Posts: 248
Registered: β€Ž22-11-2017

Re: December 2017 Chemo Starters

Hi runnawaygirl, I found cycle 5 the worst and the lowest ive felt throughout. Really struggled mentally so think the cumulative effect has built up, so you are not alone!
Im in the chair today for final cycle, number 6 is here! But they are hsving to repeat bloods as one of my liver function bloods was a bit high so waiting to hear if ok to go ahead, I so hope its not delayed xx
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Registered: β€Ž21-06-2017

Re: December 2017 Chemo Starters

Hi runawaygirl, I'm from the Oct group and finished chemo nearly 3 weeks ago. I found cycle 5 to be the hardest-I knew what to expect from T and I was nearly at the finish, but not quite.

I had the night sweats (I don't remember reading that they were a SE, but lots of us seem to have got them) but they suddenly just stopped, so hopefully that will be the same for you x

Member
Posts: 95
Registered: β€Ž19-11-2017

Re: December 2017 Chemo Starters

Sorry to hear Carhsin and Camilla that you had longer time in the chair yesterday but its another step forward and closer end of chemo. Hope your side effects arent too bad over the coming days.

 

Bad day for me, cycle 5 is just as hard as cycle 4 although I am starting to get so frustrated with my body now πŸ˜” The hot sweats are just getting ridiculous on an evening and all night long and if this is what Ive to expect with Tamoxifen also for the next 10 years then Im afraid Im not sure I can do it πŸ˜•

 

Down day today on day 7 and I feel like cancer and chemo has just stripped so much of my life away that I dont recognise me or my life I had before anymore. The chemo brain is well and truely in residence and my concentration, memory and ability to perform straight forward tasks is becoming worse! Hard to keep seeing that finishing line at the moment.

 

Anyone else starting to feel the cumulative effects of chemo now??

Member
Posts: 145
Registered: β€Ž25-11-2017

Re: December 2017 Chemo Starters

Good morning ladies hope you are doing ok

Camilla much the same really was there for 7 hours but my issue was that my red blood count was below acceptable levels for treatment so they retested and it had dropped again. The oncologist made decision to carry on with treatment .. Phew did not want it to slip, but having to spend the day in hospital tomorrow having blood transfusion . Hopefully I will come out skipping after that x
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Posts: 163
Registered: β€Ž30-11-2017

Re: December 2017 Chemo Starters

  1. Having said I would be sitting in the chair with a smile on my face, it slipped a bit when the whole thing took 7 and a half hrs.

 

I was supposed to have 4 diff drugs and wait an hr between 2 of them. Because the staff didn't notice when these drugs actually finished, a lot of waiting time was added.

 

I had got up early to do things at home before I left for hosp 8 30am appt so by the end of it all was shattered.

 

I have also been given the zoledronic acid.

Member
Posts: 163
Registered: β€Ž30-11-2017

Re: December 2017 Chemo Starters

Having said I would be sitting in the chair with a smile on my face, it slipped a bit when the whole thing took 7 and a half hrs.

 

I was supposed to have 4 diff drugs and wait an hr between 2 of them. Because the staff didn't notice when these drugs actually finished, a lot of waiting time was added.

 

I had got up early to do things at home before I left for hosp 8 30am appt so by the end of it all was shattered.

 

I have also been given the zoledronic acid.

Member
Posts: 206
Registered: β€Ž11-01-2018

Re: December 2017 Chemo Starters

Hi jencat, I’m also TN. This is a local recurrence for me. I had chemo last year which put me through the menopause & my oncologist put me on ibandronic acid. She said it helps protect against spread to the bones. This is a local recurrence & the other oncologist told me to stop taking it!!

Cathsin & camilla, hope everything went ok today.

Hope everyone else is doing ok xx
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Re: December 2017 Chemo Starters

Hi Cathsin, I'm from the Oct thread and I'm having Zoledronic Acid too-I had 3 every other chemo and then like you, 6 more every 6 months. My onc said it's for the bones, but she also said that in recent studies in the US it had also shown to help stop recurrance, which as I'm TN, good news x

Member
Posts: 145
Registered: β€Ž25-11-2017

Re: December 2017 Chemo Starters

Hello Camilla I too will be sat in the chair today hope it goes ok

Ladies I hope you are all feeling somewhat better today it's a trying time

I have been getting a buzzing in my right foot have any of you experienced that .

They are putting me on zoledronic acid this is to stop any spread to the bones if it reoccurs for post menopausal women . I know most of you are a lot younger than me so it will possibly not be applicable but may be worth an ask . It is given every 6 months for 3 years by infusion
Member
Posts: 163
Registered: β€Ž30-11-2017

Re: December 2017 Chemo Starters

So sorry everyone feeling so low. Just remember we're all nearing the chemo end which is a huge cause for celebration.

 

I am tail end Charlie, behind you all. I have chemo 5 tomorrow and will be in that chair 8 30 am with a smile on my face ticking it off.

 

Yes, it is hard, but we have no choice. I have one little grandchild, a joy, probably my only one. I want to see him at Infants, then Juniors, then, hopefully at Secondary school.

 

I want to be spat out at the end of this process and make better use of what time I have left than I did before.

 

(I had 8 steroid tabs today prob keeping me positive!)

 

We can do it!!

 

 

 

 

 

 

 

 

Highlighted
Member
Posts: 206
Registered: β€Ž11-01-2018

Re: December 2017 Chemo Starters

Happy belated birthday drbex πŸŽ‚

Well done karebear, I hope the side effects aren’t too hideous 🀞

Sam, you are tough, you’re more than entitled to have a bad day, it’s not easy feeling so awful for almost 2 weeks & knowing you get to do it all again πŸ˜” Each day, good or bad is a day nearer to the finishing line & to feeling well again with taste buds & hair!!!

Hope everyone else is doing ok xx
Member
Posts: 193
Registered: β€Ž07-11-2017

Re: December 2017 Chemo Starters

Thanks ladies... definitely feeling it this week!! Just got to get through it I know. Super hard when you are in the thick of it and the side effects are dragging you down every day.

I need to toughen up today!! Xx πŸ’ͺ🏼πŸ’ͺ🏼